The following medical professionals have agreed to becoming guest speakers at our 20th Annual AMCSI Conference in Norfolk, VA, July 9-12, 2025. Appearances are subject to change.
Dr. Harold J. P. van Bosse, M.D. is a pediatric orthopedic surgeon at Cardinal Glennon Children’s Hospital in St. Louis, Missouri. Dr. van Bosse has been practicing pediatric surgery exclusively since completing his orthopedic residency at the University of Illinois in Chicago in 1994, and his fellowship at Toronto’s Hospital for Sick Children in 1995. His specialty interests within pediatric orthopedics are arthrogryposis multiplex congenita (AMC), Prader-Willi syndrome (PWS), idiopathic clubfoot deformity, limb malalignment conditions, and pediatric spine deformities, especially of the growing spine. AMC and PWS alone make up more than 90% of his practice, allowing him to delve deeply into his special interest. He has published widely on topics related to arthrogryposis, clubfeet, and Prader-Willi syndrome. When developing an arthrogryposis center, the goals are to allow children with arthrogryposis to reach their fullest potential by addressing their limb deformities and helping them function/adapt to their limitations. Dr. Van Bosse considers himself privileged to follow patients from North and South America, Europe and Asia. He could not have gotten this far without the support of his wife, Ana.
Kimberly Kolstad is a full-time medical social worker at Craig H Neilsen Rehab Hospital at the University of Utah. For over 18 years she has been advocating for underprivileged individuals and most recently has had the opportunity to work with individuals with spinal cord injuries, amputations, and transplants. Kim has successfully created and runs a peer coaching program for patients with new spinal cord injuries. She works closely with TRAILS Adaptive Sports and has organized an event for Veterans with complex disabilities to experience the Tetra Watercraft. Kim has a love of adventure, and over the last two and a half years, her life has been changed for the better by participating in over 15 different adaptive sports, her favorites being snow skiing with the TetraSki, wake-surfing, and adaptive mountain biking. As a social worker and a person with AMC, Kim knows the importance of accessibility and inclusion for all. She is now advocating for adaptive sports to be known and accessible to all people with disabilities, especially those with AMC.
Jan Shea, MSW, joined up with her colleagues at Virginia Commonwealth University’s Center on Transition Innovations in 2014 when she relocated to Richmond, VA from the Appalachian Mountains of Northeast Tennessee. Jan brought her background of juvenile justice and mental health to the team along with the invaluable skill set of spreading office cheer. Over the past 10 years, Jan has served across many projects within CTI. Her work ranges from supporting young adults with an intellectual disability pursuing a inclusive higher education certificate; serving as the program coordinator for a project exploring mental health supports for transfer students in Virginia; and as a Technology and Employment Coordinator for women with TBI/SCIs. When Jan isn’t working at CTI, she can be found attempting to paddle board in the waters around Greater Richmond and enjoying time with her family.
Dr. Therese Willkomm, Ph.D., is the Director of New Hampshire’s State Assistive Technology Program with the Institute on Disability at the University of New Hampshire (UNH) Dr. Willkomm is a clinical associate professor emeritus in the Department of Occupational Therapy. She developed, coordinated, and taught assistive technology courses for the Graduate Certificate Program in Assistive Technology for 23 years. She is known nationally and internationally for her innovative strategies for creating solutions in minutes. She has designed and fabricated over two thousand solutions for individuals with disabilities. She has presented her work in 42 states, ten foreign countries, and three U.S. Territories and has authored over 22 publications, including her recent book Assistive Technology Solutions in Minutes Book 3: – “Make Stuff and Love People”.
Philip F. Giampietro, MD, PhD, is currently the Asok K. Ray, M.D. FRCS (EDIN) and Purnima Ray Endowed Professor of Pediatrics and Section Chief of Medical Genetics in the Department of Pediatrics at University of Illinois-Chicago School of Medicine. He received his B.S. in Biological Sciences at State University of New York at Stony Brook, Doctorate in Biomedical Sciences at the City University of New York and M.D. at the State University of New York at Stony Brook. Dr. Giampietro completed his internship in Pediatrics at the State University of New York at Stony Brook, a residency in Pediatrics at Long Island Jewish Medical Center, and a Fellowship in Medical Genetics at Weil Medical College of Cornell University. Throughout his career, he has been active in the education of medical students, genetic counseling students, physician assistants, and pediatric residents and fellows. Prior to his current position, Dr. Giampietro held positions at Rutgers -Robert Wood Johnson Medical School, Drexel University College of Medicine, University of Wisconsin- Madison, Marshfield Clinic, Marshfield Clinic and Weil Medical College of Cornell University. Dr. Giampietro’s research interests include dysmorphology and birth defects, in particular the genetics of congenital and idiopathic scoliosis. He has worked closely with orthopedic surgical colleagues, clinical and molecular geneticists, and epidemiologists to better understand genetic and environmental contributions to these conditions.
In 2015, Dr. David Feldman joined the Paley Institute to lead our new Spine Deformity Center and Hip Pain Center. Dr. Feldman was previously Professor of Orthopedic Surgery and Pediatrics as well as Chief of Pediatric Orthopedic Surgery NYU Langone Medical Center/ NYU Hospital for Joint Diseases. Dr. Feldman specializes in pediatric orthopedic surgery and subspecializes in children with scoliosis and severe limb and hip deformities. As well, he focuses his practice on conditions such as arthrogryposis, Multiple Hereditary Exostosis and Skeletal Dysplasias. After graduating from the Albert Einstein School of Medicine in 1988, Dr. Feldman interned in general surgery at NYU Langone Medical Center. He completed his residency in orthopedic surgery in June 1993 and spent the next year in fellowship at The Hospital for Sick Children Toronto with a special interest in pediatric orthopedic surgery and pediatric spine surgery. Dr. Feldman brings over 25 years of experience in pediatric orthopedics, spinal deformity and joint preservation to the practice. Since completing his studies, Dr. Feldman has been at the forefront of both simple and complex pediatric orthopedic treatments. He has helped many children with orthopedic deformities and conditions avoid surgery through early detection. His expertise with advanced non-surgical and surgical techniques has allowed hundreds of children to resume their normal activities after recovery times that are shorter than those of other methods.
Lauren C. Hyer, M.D. has worked at Shriners Hospitals for Children in Greenville, SC, since 2016. She completed her orthopedic surgery residency through Greenville Health System (now Prisma Health) in 2015. She spent the following year doing a pediatric orthopedic surgery fellowship at Phoenix Children’s Hospital in Arizona. Her main professional interests include arthrogryposis, gait improvement for cerebral palsy, and limb deficiency. Besides her work at Shriners, Dr. Hyer enjoys spending time with her husband and two young boys.
Reid Nichols, M.D., FAOA, FAAOS, is a pediatric orthopaedic surgeon at Nemours Children’s Health, Delaware Valley, and Assistant Professor of Orthopedic Surgery, at Thomas Jefferson University. She received her undergraduate degrees from the University of Virginia and from Johns Hopkins University School of Nursing. She earned her medical degree from Northeastern Ohio Universities College of Medicine. After graduating from residency in orthopaedic surgery at Maimonides Medical Center in Brooklyn, NY, she completed a limb lengthening and reconstruction fellowship at the International Center for Limb Deformity in Baltimore, MD. Under the supervision of John Herzenberg, M.D., she received advanced training in the management of clubfeet. She received advanced training in pediatric orthopaedics after completing a fellowship at the Nemours/Alfred I. duPont Hospital for Children. She is currently the president of the Limb Lengthening and Reconstruction Society(LLRS). She is active in many societies, including the Pediatric Society of North America, LLRS, American Academy of Orthopaedic Surgeons, American Orthopedic Association, and the Ruth Jackson Orthopaedic Society. She has served as the BOS representative for LLRS and is currently the POSNA BOS representative. Dr. Nichols’ clinical interests include limb deformity and reconstruction, clubfoot, arthrogryposis, and pediatric trauma. She serves as the director of the Clubfoot Clinic and co-director of the Arthrogryposis Clinic.
Dr. Donohoe is a board-certified pediatric clinical specialist specializing in pediatric orthopedics. She has worked with contracture disorders for over 30 years as the primary physical therapist in the hospital’s Arthrogryposis Program, Osteogenesis Imperfecta Program, and Clubfoot Program. Dr. Donohoe authored the chapters on arthrogryposis and osteogenesis imperfecta in all six editions of Physical Therapy for Children, authored Therapy, Orthotics and Assistive Devices for Osteogenesis Imperfecta in Osteogenesis Imperfecta: A Case-Based Guide to Surgical Decision-Making and Care, Ambulatory Assistive Devices for Children and Youth with Cerebral Palsy and Activities of Daily Living Supports for Persons with Cerebral Palsy in Cerebral Palsy 2nd edition, the Relapsed Clubfoot in Paediatric Clinical Case Studies, as well as Sports and Recreation in Children with Osteogenesis Imperfecta: Strategies to Enhance Performance. She has been involved in over ten research studies on the physical ability of individuals with arthrogryposis and club feet. She has lectured nationally and internationally on these topics. This is her 15th visit to share information at the AMCSI meeting.
Dr. Noémi Dahan-Oliel is a Clinician Scientist at Shriners Hospital for Children-Canada and has been an Associate Professor at McGill University, School of Physical and Occupational Therapy since 2014. Her research program focuses on improving clinical outcomes for children living with musculoskeletal conditions, specifically arthrogryposis. Research designs include mixed methods, stakeholder engagement, and knowledge translation. Together with a wonderful multidisciplinary and multisite research team, she obtained funding for several clinical research projects in arthrogryposis. These projects include developing a registry for children with arthrogryposis across North America, expanding a registry for arthrogryposis internationally, developing a measure for the upper limb specifically for children with arthrogryposis, and exploring social deprivation and costs of caring in arthrogryposis to improve care and advance research in arthrogryposis.
Don Brown has been in the financial services industry for over 30 years. He has been recognized as an industry leader in both personal production and management. Educating individuals and families on how to properly plan for dependents with special needs is a primary focus of Don’s practice. He has volunteered for over 20 years with Camp Fatima of New Jersey, an all-volunteer camp for individuals with developmental challenges. Don is a graduate of Rutgers University and has earned the Chartered Financial Consultant, Chartered Special Needs Consultant, and Chartered Advisor for Senior Living designations.
Dr. Russo is a Pediatric Upper Limb and Peripheral Nerve Surgeon and Akron Children’s Hospital in Akron, Ohio. She specializes in caring for children with brachial plexus and other nerve injuries, spinal cord injuries, arthrogryposis, spasticity, and congenital hand differences. Dr. Russo directs the Motion Analysis Laboratory at Akron Children’s Hospital. In this role, she mentors graduate students and collaborates with several other institutions for research projects. Outside of work, Dr. Russo enjoys travel, food, ballet and volunteer work.
Scott Oishi, M.D., FACS, is a staff hand surgeon and the director of the Center for Excellence in Hand at Scottish Rite for Children.
Arthrogryposis Multiplex Congenita Support Inc. (AMCSI)
P.O. Box 6291
Spartanburg, SC 29304
1-805-55-AMCSI (1-805-552-6274) | info@amcsupport.org
Arthrogryposis Multiplex Congenita Support, Inc. is a 501(c)(3) tax-exempt organization.
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