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AMCSI Press Releases

News, Resources & Community Updates

Welcome to the AMCSI Press Release Center, a dedicated space for sharing important news, educational resources, programs, and initiatives from Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI).

Through our press releases, we aim to increase awareness of Arthrogryposis Multiplex Congenita (AMC), highlight valuable resources, and provide individuals, families, medical professionals, businesses, and community supporters with information about the many ways AMCSI serves the AMC community worldwide.

As we continue to expand this resource, future press releases will highlight topics such as newly diagnosed family support, medical resources, annual conferences, research, grants, corporate giving opportunities, fundraising initiatives, and more.

Explore our latest press release below and check back as we continue sharing more about AMCSI’s programs, resources, and opportunities to get involved.

Latest Press Releases

FOR IMMEDIATE RELEASE

AMCSI Launches GivingTuesday & End-of-Year Campaign to Families Affected by Arthrogryposis

With 100% of donations going directly to families in need, the AMC Holiday Fund aims to ease financial hardship while raising awareness of a widely unfamiliar disability.

Download Press Release (PDF)

SPARTANBURG, SC | November 6, 2026 — Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI), a 501(c)(3) nonprofit organization dedicated to supporting individuals and families affected by Arthrogryposis Multiplex Congenita (AMC), has launched its 2026 GivingTuesday and End-of-Year Giving campaign in support of the AMC Holiday Fund, an annual initiative providing financial assistance to AMC families experiencing hardship during the holiday season.

As part of the global GivingTuesday movement on December 1, 2026, AMCSI is encouraging individuals, businesses, and communities to help families facing financial challenges by making a charitable contribution or sharing the campaign to increase awareness.

One hundred percent of donations to the AMC Holiday Fund go directly to AMC families in need.

Bringing Attention to an Often-Overlooked Community

Arthrogryposis Multiplex Congenita (AMC) is characterized by multiple joint contractures present at birth, which can affect mobility and everyday activities. Although individuals living with AMC are part of communities worldwide, public awareness and understanding of arthrogryposis remain limited.

For some AMC families, the financial responsibilities associated with medical care, accessibility needs, transportation, and everyday living expenses can create significant challenges. During the holiday season, these pressures may become even more difficult to manage.

Through the AMC Holiday Fund, AMCSI works to ease some of those burdens by providing direct financial assistance to eligible families, helping with essential expenses and bringing additional comfort and relief during the holidays.

Real Families. Real Impact.

The AMC Holiday Fund has already made a meaningful difference for families within the arthrogryposis community.

The Ferrone family, previous recipients of the AMC Holiday Fund, shared:

“We just wanted to thank you all so much for choosing us to receive the grant for the holidays! It made such a huge difference for us for the holidays!!”

Other recipients have described how the assistance helped their families purchase groceries, catch up on household bills, obtain essential items, and provide holiday gifts for their children.

One family shared that the grant provided much-needed relief after a difficult year of unexpected expenses and financial setbacks.

“It was the lift we needed to get us back on our feet.” — The Fisher Family, AMC Holiday Fund Recipients

These experiences demonstrate how direct financial assistance can make a difference for families facing challenging circumstances.

GivingTuesday 2026: Turning Generosity Into Direct Family Support

GivingTuesday, observed this year on December 1, is a global movement encouraging generosity and charitable giving.

AMCSI’s campaign, “Give Hope. Share Joy. Support AMC Families,” will continue throughout November and into December, featuring stories from previous AMC Holiday Fund recipients and highlighting the importance of community support.

Unlike fundraising initiatives that divide contributions among multiple organizational needs, donations designated for the AMC Holiday Fund are directed entirely toward assisting eligible AMC families.

Supporters can contribute at any time throughout the campaign, with donations of any amount helping AMCSI provide assistance to families experiencing financial hardship.

As an additional thank-you, donors contributing $200 or more will receive a complimentary June 30th T-shirt.

How the Public Can Help

AMCSI is encouraging individuals and organizations to support the campaign through charitable donations, workplace giving, and sharing the AMC Holiday Fund with friends, family members, coworkers, and social media communities.

Increasing public awareness is also a central goal of this year’s campaign. For many people, encountering the AMC Holiday Fund may be their first introduction to Arthrogryposis Multiplex Congenita.

By sharing the campaign, supporters can help introduce a wider audience to the AMC community while connecting potential donors with families who need assistance.

Donations and additional information are available at:
https://amcsupport.org/amc-holiday-fund/

Families seeking holiday assistance can also visit the webpage for eligibility information and the AMC Holiday Fund application.

About Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI)

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) is a nationally recognized 501(c)(3) nonprofit organization dedicated to providing education, resources, awareness, and community support for individuals and families affected by Arthrogryposis Multiplex Congenita (AMC).

Through educational initiatives, grants, scholarships, research support, community programs, and its annual conference, AMCSI works to connect families, expand access to resources, and promote greater understanding of arthrogryposis worldwide.

Reaching Out. Providing Hope. Showing the World.

Website: https://amcsupport.org/

Media Contact
Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI)
P.O. Box 6291
Spartanburg, SC 29304

Email: info@amcsupport.org
Phone: 1-805-55-AMCSI (1-805-552-6274)
Website: https://amcsupport.org/

AMCSI Logo with website address and socials

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FOR IMMEDIATE RELEASE

AMCSI Highlights Multiple Ways to Give Back and Support the Global Arthrogryposis Community

From volunteering and monthly donations to workplace giving, community fundraisers, and legacy gifts, Arthrogryposis Multiplex Congenita Support, Inc. offers meaningful ways for individuals and organizations to make a difference.

Download Press Release (PDF)

SPARTANBURG, SC | October 29, 2026 — Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI), a nationally recognized 501(c)(3) nonprofit organization serving individuals and families affected by Arthrogryposis Multiplex Congenita (AMC), is encouraging supporters to explore its comprehensive Ways to Give resource, highlighting opportunities to contribute through financial gifts, volunteer service, workplace programs, community fundraising, and planned giving.

For more than two decades, AMCSI has provided educational resources, family support, grants, scholarships, awareness initiatives, and opportunities for individuals living with AMC to connect with others who share similar experiences.

These programs are made possible through the generosity of donors, volunteers, members, families, businesses, and community supporters.

Recognizing that everyone has different resources, abilities, and opportunities to contribute, AMCSI’s Ways to Give initiative highlights how acts of generosity, both large and small, can support its mission and help sustain programs serving the AMC community worldwide.

More Than a Donation: Find Your Way to Give

AMCSI offers several opportunities for individuals, families, businesses, and organizations to become involved.

Volunteer Your Time. Multiply Your Impact.

Giving back does not always require a financial contribution. Volunteers can share their time, professional skills, and talents to support AMCSI’s programs, fundraising efforts, awareness initiatives, and community activities.

Many employers will pay money to nonprofit for an employees volunteer time

Learn more: https://amcsupport.org/volunteer-and-give/

Join Our Monthly Giving Circle

Consistent monthly contributions provide AMCSI with dependable support for year-round programs, educational resources, scholarships, grants, and community outreach.

Even contributions of $5 or $10 per month can help sustain ongoing services and support future initiatives benefiting individuals and families living with AMC.

Learn more: https://amcsupport.org/monthly-giving-circle/

Company Match: Multiply Your Contribution

Many employers offer charitable matching gift programs that can double, or sometimes increase further, an employee’s donation to an eligible nonprofit organization.

AMCSI encourages supporters to check with their human resources or corporate giving departments to determine whether their employers offer matching contributions.

Learn more: https://amcsupport.org/company-match/
Employer Giving in Action: A Message from AMCSI’s President

AMCSI President Tracey shares a firsthand example of how employer-sponsored giving programs can provide additional support to the organization.

“My oldest brother is a huge supporter of AMCSI and takes advantage of his employer providing money to nonprofits that their employees support. He has volunteered at the AMCSI conference and his employer donated $20 for every hour he volunteered with AMCSI back to AMCSI. Not only did AMCSI get the benefit of his help at conference, we then received money to put toward programming.

In other years he has used this money from his company by simply donating money and his company then matched the donation. His company uses Benevity and taking advantage of both the dollars for doer’s program and the matching program makes the process very easy. It took just minutes to request money for both programs.”

Tracey, President (de facto)
Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI)

Start a Fundraiser for AMCSI

From birthday fundraisers and lemonade stands to community walks, cycling events, concerts, and corporate fundraising activities, supporters can turn their creativity into financial support for the AMC community.

AMCSI can help individuals and organizations establish fundraising initiatives by providing dedicated fundraising webpages, personalized donation opportunities, and promotional support.

Learn more: https://amcsupport.org/ways-amcsi-can-help/

Give in Tribute: Honor a Loved One

Memorial and tribute contributions offer a meaningful opportunity to recognize someone special while supporting AMCSI’s ongoing mission.

AMCSI also honors members of the AMC community who have passed away through memorial activities at its annual conference, including a Memory Tree, memorial slideshow, and scrapbook.

Learn more: https://amcsupport.org/amc-memorials/

Leave a Legacy Gift

Planned giving allows individuals and families to extend their charitable impact beyond their lifetime.

By including AMCSI in estate or financial planning, supporters can help sustain educational programs, research initiatives, scholarships, grants, and community resources for future generations.

Learn more: https://amcsupport.org/leave-a-legacy-gift/

IRA Charitable Rollovers

Eligible individuals age 70½ or older may support AMCSI through a Qualified Charitable Distribution (QCD) made directly from an IRA.

For those who qualify, these contributions may offer tax advantages and can count toward applicable Required Minimum Distributions.

Supporters are encouraged to consult their financial or tax advisors to determine eligibility and applicable requirements.

Learn more: https://amcsupport.org/ira-charitable-rollovers/

Your Gift Makes a Difference: Direct Donations

One-time and recurring financial contributions help sustain AMCSI’s educational resources, medical travel assistance, accessibility programs, scholarships, research support, family grants, and annual conference activities.

AMCSI accepts online donations through Givebutter, providing supporters with a convenient way to contribute directly to its mission.

Donate today: https://givebutter.com/donate-support-amcsi

How Community Support Makes a Difference

Contributions to AMCSI help support a variety of programs and services, including:

Medical Travel Grants: Assisting eligible families with travel-related expenses for medical appointments and procedures.

Accessibility Grants: Helping individuals living with AMC obtain adaptive equipment and accessibility resources.

Conference Scholarships: Providing eligible individuals and families with opportunities to attend AMCSI’s annual conference.

Educational Scholarships: Supporting educational opportunities for individuals living with AMC.

Research Grants: Supporting research and advancing knowledge about arthrogryposis.

Family and Community Support: Providing resources for newly diagnosed families, local gatherings, bereavement assistance, and educational outreach.

Annual AMCSI Conference: Bringing individuals, families, medical professionals, and community members together for education, networking, adaptive recreation, and shared experiences.

These initiatives reflect AMCSI’s continued commitment to providing practical resources, strengthening community connections, and expanding access to support for individuals and families living with AMC.

Every Contribution Has a Purpose

Whether someone volunteers for a few hours, contributes a small amount each month, organizes a local fundraiser, or includes AMCSI in their long-term charitable plans, every contribution plays a role in supporting the organization’s work.

AMCSI encourages individuals, families, employers, and community organizations to explore the available opportunities and select the giving method that best fits their interests and circumstances.

Explore all the ways to support AMCSI:
https://amcsupport.org/ways-to-give/

About Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI)

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) is a nationally recognized 501(c)(3) nonprofit organization dedicated to providing education, resources, awareness, and community support for individuals and families affected by Arthrogryposis Multiplex Congenita (AMC).

Through educational initiatives, grants, scholarships, research support, community programs, and its annual conference, AMCSI works to connect families, expand access to resources, and promote greater understanding of arthrogryposis worldwide.

Reaching Out. Providing Hope. Showing the World.

Website: https://amcsupport.org/

Media Contact
Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI)
P.O. Box 6291
Spartanburg, SC 29304

Email: info@amcsupport.org
Phone: 1-805-55-AMCSI (1-805-552-6274)
Website: https://amcsupport.org/

AMCSI Logo with website address and socials

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Archived Press Releases

May 2024 | PR Packet For Immediate Release
In this Press Release:

1. #BlueForAMC Information 💙

2. How To Celebrate AMC Awareness Ideas 💙

3. Learn about getting Proclamations set up
in your City 💙

4. Where As Statement Example 💙

5. AMCSI Facts & Information 💙

Arthrogryposis Multiplex Congenita Support, Inc. PR Packet