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With a condition so rare that only one in 3000 babies born have this neuromuscular disorder, it’s easy to comprehend how alienated anyone with arthrogryposis multiplex congenita (AMC) must feel. Through the hard work of one mother’s vision and an army of members, the AMC support group has helped bridge the gap with the power of the internet. It is not only the group’s mission to provide and encourage a greater understanding and awareness of this condition, but also to provide a support system. To help those that have felt all their lives an outcast or alone, meet others who have lived that same life, to meet other families who have the same concerns and to provide a resource of information.
But meeting online is not enough. It’s hard to explain to a mom exactly how another mom has taught her child to sit up without the use of his arms, or how one child learned to stand. What so many people take for granted: the ease of walking, typing, eating and breathing those with AMC have had to struggle to adapt to this world. Our conferences solidify that bridge and strengthen the bond of our AMC family. Once a year, we come together, bring professionals, doctors, physical therapists, occupational therapists, provide workshops, and invite people throughout the world to learn, share, laugh, cry, and grow.
We invite you to our 3-day conference, coming together to learn about Arthrogryposis, raise awareness, and create community. #AMCatl24
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Then sign up to get involved in some adaptive sports fun on July 3rd, before the 19th Annual AMCSI Conference in Atlanta, Georgia
We’ll have three adaptive sports that you can get into; Mountain Biking, Rock Climbing & Wake Surfing!
Schedule is subject to change at any time. Please keep checking the website, announcements, and social media to remain updated.
Email us at info@amcsupport.org if you have any questions
Sign up by clicking the button below to volunteer at the AMC Annual Conference in Atlanta, GA on July 3-6, 2024. All times are in EST. 🤝✨
Please read the information below as some changes and updates are included.
Volunteers must be over 16 to volunteer alone. Pre-teens may volunteer *with* a parent or designated adult in certain locations.
Volunteers are encouraged to attend the volunteer training on Wednesday at 2:30pm. Any volunteers who attend the training AND volunteer for at least 4 hours will receive an exclusive lanyard (must meet both requirements). Volunteers who attend the training will also be granted special access to a special volunteer-only early registration line for conference at 3:30pm immediately following the training.
This sign-up will not work well on a mobile device – it is best to use a computer.
If you have any questions, please email volunteer.amcsi@gmail.com Thank you for helping make the AMC conference amazing! We couldn’t do it without you!🌟🌟🌟
July 3-5, 2023
Columbus, Ohio
First Command Bryan Tuschen
Wosnik Law
Cotto & Cochran Immigration Group
Matt & Julie Cavedon
Premium Distributors
Arthrogryposis Multiplex Congenita Support Inc. (AMCSI)
P.O. Box 6291
Spartanburg, SC 29304
1-805-55-AMCSI (1-805-552-6274) | info@amcsupport.org
Arthrogryposis Multiplex Congenita Support, Inc. is a 501(c)(3) tax-exempt organization.
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