Welcome to AMCSI — The Global Resource for Arthrogryposis Support & Awareness

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) is the leading worldwide organization dedicated to supporting individuals and families affected by Arthrogryposis (AMC), a rare congenital condition. For over two decades, we’ve provided trusted information, heartfelt connection, and life-changing community to those navigating a new diagnosis or living with AMC.

Whether you’re a parent seeking guidance, an adult living with Arthrogryposis, or a medical professional looking for resources, AMCSI is here to inform, inspire, and connect. Join our global network and help us raise awareness, share hope, and build a brighter future for everyone affected by AMC.

What is Arthrogryposis?

Arthrogryposis multiplex congenita (AMC) is a term used to describe a group of congenital conditions characterized by joint contractures in two or more body areas.

1 out of every 3,000 babies will have arthrogryposis & we are here to help.

New Diagnosis

If you are a parent of a child diagnosed with arthrogryposis multiplex congenita, please fill out the form below. A member of our team will reach out to you for support and resources.

Our Vision

To provide educational material to new or soon-to-be parents regarding the diagnosis of Arthrogryposis Multiplex Congenita (AMC).

To provide a resource of information to the medical field to include, but not limited to, occupational therapists, physical therapists to assist them in treating a child or person with the diagnosis of AMC.

To provide ongoing support, resources & access to anyone with AMC.

Become A Member

Our AMC community fully funds all of our programs. We could not do any of this without the help of our membership, donors, sponsors, fundraisers, friends, and family. We appreciate each and every one of you.

AMCSI is a nationally recognized 501(c)(3) Non-Profit Organization.

Celebrating 20 years with our AMC family! We cannot wait to see you all!

July 9-12, 2025 in Norfolk, Virginia

Early-Bird Registration Is Now Open To Members!

For budgeting purposes, please plan approx $165 total after taxes & fees Parking is $20 for self-park or $28 for Valet.

We highly recommend registering for this event early as this will likely be a sell out event.

• Early Bird Registration for members of AMCSI will begin in February 2025.
• General registration will begin in March 2025.
• Hotel link will be provided in your conference registration confirmation email!
(Everything is subject to change.)

AMC Community Testimonials

“There are few words to encompass the emotions of attending the AMCSI conference for the first time and as a grant recipient. The conference provided me with invaluable connections that have made me feel so accepted and excited to immerse myself further into our community.”

~ Kristen

“AMCSI is a wonderful organization for parents who have just learned that their baby/child has AMC. The Conference in Philadelphia was a life-changing experience for our daughter and us as parents.We owe many thanks to everyone associated with AMCSI!!”

~ NANDASS

“Since Ohio, I’ve felt lighter. Like a weight has been lifted and like I’ve finally looked in the mirror after being invisible for over 20 years. It feels as though my inner child finally got a big hug and was told that she would be okay. Ani, you gave me the greatest gift I’ve ever received and helped me meet people that will be in my life forever."

~ Skyler

Get Involved

Volunteer, join us every Tuesday on Facebook or our monthly Zoom sessions & more!

Every Tuesday let’s celebrate GRATEFUL TUESDAY – because there’s so much to be thankful for!

From the amazing Doctors, PT/OT Specialists, & Medical Professionals to our incredible Donors, Sponsors, Volunteers, & the AMC Community, YOU are the heart of everything we do. 💙

Let’s keep the gratitude flowing & continue supporting the Arthrogryposis Community together.💙
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