What is Arthrogryposis?

Arthrogryposis multiplex congenita (AMC) is a term used to describe a group of congenital conditions characterized by joint contractures in two or more body areas.

1 out of every 3,000 babies will have arthrogryposis, with over 500 known variations & we are here to help.

We encourage you to explore our extensive navigation bar, thoughtfully designed to help individuals and families affected by Arthrogryposis Multiplex Congenita (AMC) quickly find the support, information, and connections they need.

Whether you are a newly diagnosed family looking for guidance, searching for experienced AMC doctors and specialists, or hoping to connect through AMC events, conferences, and fundraisers, you’ll find a wide range of trusted resources available to you. Our site brings together educational materials, community support, financial assistance options, and real-life stories, all in one place, so you never have to navigate the AMC journey alone.

Take your time browsing through each section to discover tools, programs, and opportunities created to support every stage of life with AMC.

“I am very thankful that I found your website. Using the excellent information from your website, along with other sources, I have been able to help guide her care in a more informed way. Thank you again for providing information that helps families like ours navigate this stage of life with arthrogryposis.”

~ Greg T.

AMCSI | Global Support for Arthrogryposis (AMC)

Trusted resources, expert guidance, and a worldwide community for individuals, families, and professionals navigating AMC. Connect, learn, and raise awareness with us.

New Diagnosis

If you are a parent of a child diagnosed with arthrogryposis multiplex congenita, please fill out the form below. A member of our team will reach out to you for support and resources.

Our Vision

To provide educational material to new or soon-to-be parents regarding the diagnosis of Arthrogryposis Multiplex Congenita (AMC).

To provide a resource of information to the medical field to include, but not limited to, occupational therapists, physical therapists to assist them in treating a child or person with the diagnosis of AMC.

To provide ongoing support, resources & access to anyone with AMC.

Ways to Give

There are so many meaningful ways to make a difference for the AMC community! 💙
Whether you choose to donate once, give monthly, or start your own fundraiser, every gift helps AMCSI continue providing support, resources, and connections to families worldwide.

Become A Member

Our AMC community fully funds all of our programs. We could not do any of this without the help of our membership, donors, sponsors, fundraisers, friends, and family. We appreciate each and every one of you.

AMCSI is a nationally recognized 501(c)(3) Non-Profit Organization.

Celebrating 22 years with our AMC family! We cannot wait to see you all!

June 30 – July 3, 2027 in Columbus, Ohio

Important Note:

Please do not contact hotels to make reservations at this time. We are still finalizing our hotel block and group pricing. Early reservations made outside of our official block may not be eligible for adjustments once our arrangements are confirmed.

Thank you for your patience and support, we can’t wait to share what’s ahead!

AMC Community Testimonials

“There are few words to encompass the emotions of attending the AMCSI conference for the first time and as a grant recipient. The conference provided me with invaluable connections that have made me feel so accepted and excited to immerse myself further into our community.”

~ Kristen

“AMCSI is a wonderful organization for parents who have just learned that their baby/child has AMC. The Conference in Philadelphia was a life-changing experience for our daughter and us as parents.We owe many thanks to everyone associated with AMCSI!!”

~ NANDASS

“Since Ohio, I’ve felt lighter. Like a weight has been lifted and like I’ve finally looked in the mirror after being invisible for over 20 years. It feels as though my inner child finally got a big hug and was told that she would be okay. Ani, you gave me the greatest gift I’ve ever received and helped me meet people that will be in my life forever."

~ Skyler

Get Involved

Volunteer, join us every Tuesday on Facebook or our monthly Zoom sessions & more!

Every Tuesday let’s celebrate GRATEFUL TUESDAY – because there’s so much to be thankful for!

From the amazing Doctors, PT/OT Specialists, & Medical Professionals to our incredible Donors, Sponsors, Volunteers, & the AMC Community, YOU are the heart of everything we do. 💙

Let’s keep the gratitude flowing & continue supporting the Arthrogryposis Community together.💙
(Please share this with family, friends, employers, & companies)