With a condition so rare that only one in 3000 babies born have this neuromuscular disorder, it’s easy to comprehend how alienated anyone with arthrogryposis multiplex congenita (AMC) must feel. Through the hard work of one mother’s vision and an army of members, the AMC support group has helped bridge the gap with the power of the internet. It is not only the group’s mission to provide and encourage a greater understanding and awareness of this condition, but also to provide a support system. To help those that have felt all their lives an outcast or alone, meet others who have lived that same life, to meet other families who have the same concerns and to provide a resource of information.
But meeting online is not enough. It’s hard to explain to a mom exactly how another mom has taught her child to sit up without the use of his arms, or how one child learned to stand. What so many people take for granted: the ease of walking, typing, eating and breathing those with AMC have had to struggle to adapt to this world. Our conferences solidify that bridge and strengthen the bond of our AMC family. Once a year, we come together, bring professionals, doctors, physical therapists, occupational therapists, provide workshops, and invite people throughout the world to learn, share, laugh, cry, and grow.
We invite you to our 3-day conference, coming together to learn about Arthrogryposis, raise awareness, and create community.
#AMCVA25 (Be sure to use this hashtag on all social posts)
For hotel budgeting purposes, please plan approx $165 total after taxes & fees Parking is $20 (per day) for self-park or $28 (per day) for Valet.
We highly recommend registering for this event early as this will likely be a sell out event.
• Early-Bird Registration for members of AMCSI is now open!
• General registration will begin in March 16, 2025.
• Hotel link will be provided in your conference registration confirmation email!
We’ll have a limited number of printed copies available throughout the conference floor, but we know many attendees may prefer a digital version. Whether you need better accessibility or want to print a larger copy of the schedule or venue map — this PDF version is for you!
NOTE: The schedule is subject to change.
We can’t wait to welcome you to Norfolk!
IMPORTANT: Be sure to register by July 5!
Late registration begins after July 5 — don’t wait!
The 20th Annual AMCSI Conference in Norfolk, VA is turning up the energy — & we’re beyond excited to welcome Luca “Lazylegz” Patuelli as our special guest!
Luca is a world-renowned breakdancer, motivational speaker & founder of the ILL-Abilities™ International Dance Crew — a powerhouse group of dancers who prove that “No Excuses, No Limits” isn’t just a slogan, it’s a way of life.
You might recognize him from the Special Olympics in France, America’s Got Talent, or The Ellen Show — or maybe from his jaw-dropping performances in over 22 countries! Born with arthrogryposis, Luca transformed physical challenges into unstoppable creativity, developing a unique dance style that turns crutches into extensions of his art.
• Performed on global stages
• Choreographed award-nominated productions
• Now appearing LIVE at AMCSI 2025!
This is a performance you do not want to miss!
🔗 Learn more about Luca & his mission:
🌐 lucapatuelli.com
🌐 illabilities.com
Jennifer was born with Arthrogryposis and uses a wheelchair daily. She identifies as an Asian, Pacific Islander & Black woman with a disability. She serves as Citywide Accessibility Coordinator at the City of Long Beach – where she is tasked with making sure the City is in compliance with Title II of the Americans with Disabilities Act.
We’re turning up the YUM at this year’s 20th Annual AMCSI Conference in Norfolk, VA – July 9-12!
Get ready to indulge in a delicious treat from our friends at S’MORES AMORE – all in honor & memory of our beloved Brian Wayne.
Every attendee will receive a special ticket to redeem their ooey-gooey goodness next door. Trust us – your tastebuds will thank you!
Celebrating 20 amazing years together of AMC Awareness with S’MORES!
BLYSS Ice Cream & Desserts — just steps from the Hilton and next to Rolled Up — is showing some love to our AMCSI Conference community!
July 9–12 Conference attendees can grab a $5 OFF coupon for sweet treats from BLYSS — available at the event!
Accessibility Note: The entrance has two manual doors (no stairs), which may require assistance for some wheelchair users.
Big thanks to BLYSS for supporting the AMCSI community!
‼️ Don’t wait — register by July 4th before late registration kicks in on July 5th!
This year, we’re continuing to take things to the next level with Adaptive Sports! Whether you’re an outdoor enthusiast or just love a new adventure, this is your chance to help make it happen!
🔥 How can you be part of the action? 🔥
💪 Donate today to bring Adaptive Sports to the conference!
🏆 Empower and inspire our community!
🌟 Make this milestone year unforgettable!
📢 Donate now & help us make history!
How You Can Help:
🔹 All donations MUST BE pre-registered so we can start bidding as soon as the conference opens!
🔹 Pre-register here: https://forms.gle/c1tFGu1ipfUtpwUw5
Where Do I Send It?
🔹 Bringing a donation? Awesome! Once you’ve registered it, simply bring it with you to the conference.
🔹 Can’t make it? No worries! Email us at (info@amcsupport.org), & we’ll send you the mailing address.
Need donation ideas? Get inspired!
🎁 State-Themed Gift Baskets – Represent your state with local goodies! 🏞️
✈️ Airline Connections? Help us secure round-trip tickets for the auction! ✈️
🛍️ Small Business Love – Homemade candles, sauces, jams—yes, please! ❤️
🎬 Movie Theater Hookup? See if your local AMC or theater will donate! 🎟️
🔧 Know a tool company rep? Snap-On, Milwaukee—let’s make it happen! 🔨
We’re bubbling over with excitement to invite you to the “Bubbles & Beaches” Prom Night at the 20th Annual AMCSI Conference in beautiful Norfolk, VA this summer! 🎉
Get ready for a fun, family-friendly night of dancing, laughter, and magical seaside vibes as we celebrate 20 years with AMCSI !
📸 PLUS — Don’t miss our fabulous Photo Booth Fun! Strike a pose with your friends and family. You’ll want to capture every moment!
👗 What to Wear? As always, COME AS YOU ARE! But if you would like to dress to impress — Think beach party meets prom night! Here are some fun, family-friendly ideas:
🌸 Girls – Twirl-worthy dresses in pastel colors (like lavender or seafoam), flower crowns, and sparkly shoes.
🧢 Boys – Tropical or ocean-print shirts, khaki shorts, or comfy slacks with fun bowties or suspenders. Accessorize with some fun cool dude sunglasses.
Teens & Adults –
• Mermaid-inspired looks: shimmery fabrics, sea tones, or fishtail hems
• Beachy vibes: flowy dresses, island prints, and light shawls
• Bubble-inspired fun: layered tulle skirts or dresses with an airy, whimsical feel
• Casual beach formal: linen pants, pastel polos, or seashell accessories
The theme is playful and relaxed, so whether you go full mermaid glam, sunset surfer chic, or anything in between, just come as your fabulous self! 🌞🌴🫧
📍 Where? Norfolk, VA
📅 When? During prom night at the AMCSI Conference
🎈 Who’s Invited? All conference attendees — kids, teens, adults, and families!
✨ Please remember:
✔️ All attire must be family-friendly and age-appropriate
🚫 This is a ZERO TOLERANCE event for alcohol consumption
🪪 Name badges are REQUIRED for entry — no exceptions!
The theme is playful and relaxed, so whether you go full mermaid glam, sunset surfer chic, or anything in between, just come as your fabulous self! 🌞🌴🫧
Get your beachy best ready—we can’t wait to see you on the dance floor AND in the photo booth! 💃🕺📸
#AMCSI2025 #BubblesAndBeaches #PromNight #FamilyFun #PhotoBoothMagic #NorfolkVibes #AMCFamily
Be part of something amazing at the 20th Annual AMCSI Conference in Norfolk, VA — happening July 9–12, 2025!💙🌟
We’re looking for passionate, friendly, fun-loving volunteers to help us make this milestone year unforgettable!
Here’s what you need to know:
✅ Must be 16+ (younger volunteers welcome with an adult)
✅ Mandatory volunteer training: Wednesday, July 9 at 2:30 PM EST
✅ Perks include a VIP-style lanyard, early reg access, and more! 🎁
💻 Sign up using a desktop for the smoothest experience
Got questions? We’ve got answers!💙🙌 📧 volunteer.amcsi@gmail.com
Do you have a company/organizations or know of any in your area and want to get involved in our 20th Annual AMCSI Conference? Click on the buttons below to view the options we have available or click on the lick to download our Conference Sales Kit today!
(Note: you can open the PDF on a computer and type in your information & email it to us at info@amcsupport.org)
Learn about our Code Of Conduct, General Liability Waiver & Photo Release information before you arrive!
Matthew & Julie Cavedon
Dr. Reid Nichols
Gianmarco Martuscelli
The Martuscelli Restaurant Group
Ewa Okla
Arthrogryposis Multiplex Congenita Support Inc. (AMCSI)
P.O. Box 6291
Spartanburg, SC 29304
1-805-55-AMCSI (1-805-552-6274) | info@amcsupport.org
Arthrogryposis Multiplex Congenita Support, Inc. is a 501(c)(3) tax-exempt organization.
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