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Happy AMC Awareness Day!
June 30th Is AMC Awareness Day
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Arthrogryposis Daily Facts!

AMCSI AMC Awareness Day - Fact 12
AMCSI AMC Awareness Day - Fact 11
AMCSI AMC Awareness Day - Fact 10
Arthrogryposis Multiplex Congenita Support, Inc. AMC Awareness Day Fact 9
AMCSI - AMC Awareness Day 8
Arthrogryposis | AMC Awareness Day 7
Arthrogryposis | AMC Awareness Day 6
Arthrogryposis | AMC Awareness Day 5
Arthrogryposis | AMC Awareness Day 4
Arthrogryposis | AMC Awareness Day 3
Arthrogryposis | AMC Awareness Day 2
Arthrogryposis | AMC Awareness Day 1

June 30, 2005, was the day www.amcsupport.org was launched by our founder, Ani Samargian. This website was the seed for Arthrogryposis Multiplex Congenita Support, Inc., becoming an official non-profit two years later.

Every year, on this day, we spread the word about arthrogryposis multiplex congenita (AMC) over all social media platforms. Join the movement and help us tell the world about AMC using our hashtags #blueforAMC & #AMCstrong! There are many great ways to get involved with AMCSI & celebrate on June 30th!

During the entire month of June, we are offering a Store Code: BLUEFORAMC for 10% OFF all store merchandise!

The AMCSI Board of Directors selected the color blue as the official June 30th, Awareness Day color in 2010. In 2006, blue was selected as the website and message board theme inspired by Abigial’s (founders daughter) favorite color. Abigail’s clubbed footprints are the official seal of AMCSI.

AMC Bumble Bee in Blue for June 30th!

“Aerodynamically, the bumble bee shouldn’t be able to fly, but the bumble bee doesn’t know it so it goes on flying any way.” – Mary Kay Ash

How can you spread AMC awareness on June 30th?

There are several ways you can help spread awareness on Arthrogryposis Awareness Day:

  • Post on social media (Facebook, Twitter, & Instagram) using one of our graphics.
  • Wear blue, take a photo, & post it on any or all social media platforms using the hashtags #BlueForAMC, #Inclusion, #Acceptance, #Advocate, #AMCawarenessDay, and/or #ArthrogryposisAwarenessDay.
  • Change your cover (header) photo on Facebook with the image below.
  • Please send an email about AMC Awareness Day to your friends & family, encouraging them to wear blue on June 30th

Right-click the image below to save it to your desktop to upload as your Facebook header image.

Proclamations

AMC Awareness Day Proclamation FAQ

What is a proclamation?

A proclamation is a formal public statement. It is a major statement made in front of an audience or the authoritative word on some subject. It’s most often used in an official or government context. Proclamations can be created at the local, state, and federal level.

Why do I have to request a proclamation every year?

A proclamation is an official document to commemorate a specific time period (day, week, or month) for the purpose of raising awareness about an issue, or celebrating milestones. Therefore, if a proclamation has been issued in the past, a new request still needs to be requested each year.

Why is it important to obtain proclamations?

Proclamations are a great way to raise awareness within your community about arthrogryposis. You can use the proclamation for media outreach and social media.

Where do I request proclamations from?

Municipalities include: Governor’s office, Town, Cities, Boroughs, Counties or Parishes. A city or county website may list appropriate contacts.

Who do I request proclamations from?

A state Governor, Mayor, First Selectman, City Council or County Commission’s office

How do I get started in obtaining a proclamation?

Email AMCSIBOD@gmail.com to sign up for your state. We will maintain a list so our volunteers don’t duplicate efforts. If there is another volunteer working on your state, we can put you in contact with them to join forces.

Most states request submission of a request 2 months prior to AMC Awareness Day, June 30 each year.

Follow up 10 to 14 days after you submit the request.

What happens when I get the proclamation?

Share with AMCSI and the AMC community and flood the internet with photos. Don’t forget to add hashtags #AMCAwareness, #arthrogryposis and #AMCAwareness2019

Write a letter, post on officials Facebook and\or Twitter account to the mayor, governor or legislators and thank them for their support in bringing official attention to Arthrogryposis.

What do I write?

Here is an example of what to write:

  • Organization: AMC Support
    Website: AMCSUPPORT.ORG
  • Arthrogryposis Awareness Day Proclamation
  • Whereas: Arthrogryposis Multiplex Congenita (AMC) is a condition that causes many joints to be stiff and crooked at birth. A newborn with arthrogryposis lacks the normal range of motion in one or more joints. This condition develops prenatally and can be caused by an underlying condition or syndrome; andWhereas: Arthrogryposis Multiplex Congenita is an umbrella diagnosis, meaning that it is a part of many other
    conditions and syndromes. There are over 400 different types of AMC of which Amyoplasia, Distal Escobar Syndrome is the most common: and
  • Whereas: A newborn has to have three contracted joints in two different body areas to be diagnosed with arthrogrypoisis. This occurs in 1 in 3,000 births; and
  • Whereas: Joints that can be affected by AMC include the joints in the hands, feet, hips, knees, elbows, shoulders, wrists, fingers, toes, as well as the jaw and the spine. Though all joints can be affected, some may be unaffected as no two people experience the same symptoms; and
  • Whereas: Though arthrogryposis is not curable, it is treatable. Treatment goals aim to allow those living with the condition as much independence in their daily lives as possible; now
  • Therefore: I, Phil Murphy, Governor of New Jersey, do hereby proclaim June 30, 2024, as ARTHROGRYPOSIS AWARENESS DAY in New Jersey.

May 2024 | PR Packet For Immediate Release
In this Press Release:

1. #BlueForAMC Information 💙

2. How To Celebrate AMC Awareness Ideas 💙

3. Learn about getting Proclamations set up
in your City 💙

4. Where As Statement Example 💙

5. AMCSI Facts & Information 💙

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