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Ready for some laughs, real talk, & awesome tips on living with Arthrogryposis (AMC)? Join us as we hang out with friends, share advice, & maybe get a little silly along the way!
Watch anytime, anywhere — it’s all about what works for you! 💙
(You must register & to receive the zoom link before Together Tuesdays via email. Please check your spam or junk folders.)
We discussed our recent experiences, upcoming plans, and personal matters, including college schedules, job market challenges, and personal updates. We also shared our experiences with various topics such as spam attacks on social media accounts, updates on web design, and personal updates. The conversation ended with a discussion on personal email management habits, a documentary about college students, and the application process for disability benefits.
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We discussed our personal experiences, challenges, and favorite food places, focusing on accessibility and cultural differences. We also explored the possibility of organizing a conference cruise and the challenges of finding a suitable hotel for our group. The conversation ended with discussions on personal health issues, emotional support, and the importance of community connections.
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This week, we dove into everything from weather updates and health check-ins to brainstorming exciting conference ideas. 🌟
One fun (and delicious) challenge? Figuring out how to bring ice cream to our upcoming conference while navigating hotel catering rules and costs! 🍦❄️
We also tackled important topics like handling funds after the loss of an account owner and explored ways to support our adaptive sports program, ensuring more opportunities for our incredible community.
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We discussed the upcoming conference in Norfolk, VA, including registration details & hotel bookings.
Althea shared her experiences living with arthrogryposis, her personal journey, & her recent projects, including a “Biozine” featuring people with disabilities!
We also discussed terminology preferences regarding disabilities & the use of assistive devices and explored potential opportunities for collaboration and future meetups!
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We shared laughs and struggles over health adventures and the surprisingly tricky task of using Microsoft Paint for serious academic work. We also gave a big, warm welcome to our newest member from Georgia!
The conversation got even more exciting as we brainstormed ideas for our upcoming conference—like locking in a yearly go-to spot, shaking things up with a shorter format plus an optional fun-packed third day, and organizing mini field trip groups for extra adventure.
Of course, planning a conference that works for families across different regions isn’t easy, so we dove into what makes a location family-friendly and how to get more input from everyone (cue: poll time!). Lots of ideas, lots of energy, and plenty to look forward to!
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💙 Dyani, a 26-year-old biomedical engineer with AMC, shared her experiences in education, workplace accommodations, & motivational speaking—plus, we explored future speaking opportunities!💙 We wrapped up with strategic planning, brainstorming hotel donations, developing programs for the AMC community, & expanding our social media presence! 📢🤗💙
We discussed various topics, including football, weather, & education, focusing on personal experiences & preferences. We also talked about their favorite fast-food chains, the ongoing NFL season, & the potential for a special guest at our next meeting. The conversation ended with a discussion about the upcoming Super Bowl & the high hotel prices in New Orleans. 🤗💙
We are chilling with friends, talking about college classes & various other tricks of the trade. 🤗💙
We discussed various personal & professional topics, including health issues such as dealing with getting IVs for blood draws, artwork, & regional food preferences, and reminisced about game shows and their hosts. 🤗💙
We talk about different workout techniques, general life with Arthrogryposis & introducing Lana who is new to our weekly meet-ups! 🤗💙
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Arthrogryposis Multiplex Congenita Support Inc. (AMCSI)
P.O. Box 6291
Spartanburg, SC 29304
1-805-55-AMCSI (1-805-552-6274) | info@amcsupport.org
Arthrogryposis Multiplex Congenita Support, Inc. is a 501(c)(3) tax-exempt organization.
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