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Happy AMC Awareness Day!

Together Tuesdays

See everyone each week on Tuesday evening on Together Tuesday’s Live Session at 9 PM (EST), on our facebook page!

We hope you can join us!

Zoom Link

If you need a passcode, please use: 074190

2024
Together Tuesdays

Join us on Tuesday! 🤗💙

Tune in on Tuesdays to learn more & ask questions on Facebook Live! 📲💙

Together Tuesdays

Join us for our #PostConferenceBlues!

We know you tiredddddd! We know you are reading all the beautiful conference posts! But we miss you already!

Join us for a quick wrap-up and to share your favorite #AMCATL24 conference moments! 💙 🤗

Tune in on Tuesdays to learn more & ask questions on Facebook Live! 📲💙

Together Tuesdays

Erin Miller joined us as our special guest this coming Tuesday, June 18th, to celebrate her accomplishments and share her life story.🤗💙

Erin is 39 from Harrisburg PA. She has a Masters in Rehab Counseling and a Bachelors in Criminal Justice. She has worked as a claims specialist for the last 10 years with the Social Security Administration. She lives on her own with her little zoo of 3 dogs 2 cats and 7 goldfish! In her free time, she volunteers with various dog and cat rescues and also takes care of a handful of stray/feral cats and works to get them TNR’d when possible. She also enjoys being out and about with friends and teaming up with her nephews to drive their parents crazy! I mean isn’t that the job of an aunt?

Tune in on Tuesdays to learn more & ask questions on Facebook Live! 📲💙

Together Tuesdays

Ryan Allen Sharp (Ryan Allen Sharp Ledbetter) joined us as our special guest this coming Tuesday, June 11th, to celebrate his accomplishments and share his life story.🤗💙

Ryans’ Bio: I’m Ryan, I’m 29, I have AMC! I’m a dad to a 6-year-old son, I’m a social media influencer & also work a full-time job at Allstate Insurance! I’m obsessed with sports & I love to golf! And I love to help others with disabilities!

Tune in on Tuesdays to learn more & ask questions on Facebook Live! 📲💙

Together Tuesdays

Doug will join us as our special guest this coming Tuesday, June 4th, to celebrate his accomplishments and share his life story.

Doug Moreau was born with Arthrogryposis Multiplex Congenita (AMC). He teaches 7th-grade Literature at Christian Brothers School & is in his 27th season as the New Orleans Saints’ game-day press box public address announcer. Moreau is also the moderator of the Christian Brothers’ canoe, kayak, & cycling clubs. He was recently honored with the Joe Gemelli “Fleur de Lis” Award for his vast contributions to the Saints organization & has been known to say, “It doesn’t matter how you’re born, If you want something, go do it, go after it.” 🤗💙 

 

See you every Tuesday at 9 pm EST Tuesday on Facebook Live! 📲💙

Together Tuesdays

We will join a guest, Sara Gaver & Friends (A.K.A. The Sisterhood of the Traveling Sheets)! We are the Sisterhood of the Traveling Sheets.

A new travel blog movement about us! Women with disabilities who travel independently with their trusty pack of California King Bed Sheets. We hope to empower you to live your life experiences to the fullest without letting your limitations stop you. The Sisterhood of the Traveling Sheets strives to cultivate confidence, advocate for accessibility and awareness, and promote our mantra that Defeat is NOT your Destiny. 🤗💙

See you every Tuesday at 9 pm EST Tuesday on Facebook Live! 📲💙

Together Tuesdays

Don’t miss this chance to connect with fellow AMCSI members, share your ideas, & learn how you can positively impact the lives of those with Arthrogryposis.🌟💙

See you every Tuesday at 9 pm EST Tuesday on Facebook Live! 📲💙

Together Tuesdays

Matthew Cavedon has arthrogryposis & uses a wheelchair. In his youth, Cavedon was a national spokesperson for Boundless Playgrounds & a member of the National Council on Disability’s Youth Advisory Committee. He graduated from Harvard College & Emory University. A former law clerk & public defender, he is currently the Robert Pool Fellow at the Center for the Study of Law & Religion at Emory University.

See you every Tuesday at 9 pm EST Tuesday on Facebook Live! 📲💙

Together Tuesdays

We will join a guest, Daniel E. González! 🤗💙 I was born in Bogotá, Colombia, on November 11th, 1996. I was born with an Amyoplasia-type form of Arthrogryposis. My parents were told by doctors that I wouldn’t be able to dress myself, feed myself, or walk by myself. My father, my mother, brother, and sister all moved to Houston, Texas, in 1997 so I could receive treatment at Shriners Hospital for Children – Houston.

Through intense physical therapy and persistence, I’m now 27 years old, happily living with my girlfriend, her son, and our dog in San Marcos, Texas. I rode my motorcycle safely to my physically demanding job at a pipe factory, carrying heavy pipes around a warehouse. As a young adult seeking fame, I lived in Hollywood and gravitated toward the health and nutrition industry, which focused on mind, body, and spiritual well-being.

I played soccer or fútbol for over 18 years, did weight lifting for 9 years, incorporated meditation and gratitude in my daily rituals for around 11 years, and shared my story of living with AMC for roughly 12 years. In honor of my father, I continue to help people learn about themselves, teach tools to better their lives, and listen to the beautiful stories we all get to share.See you every Tuesday at 9 pm EST Tuesday on Facebook Live! 📲💙

Together Tuesdays

Don’t miss this chance to connect with fellow AMCSI members, share your ideas, & learn how you can positively impact the lives of those with Arthrogryposis. See you every Tuesday at 9 pm EST Tuesday on Facebook Live! 📲💙

Together Tuesdays

We will join a guest, Chris Hartwick, who shares his creative abilities! He shared his story of how he does everything from getting dressed to cooking with his mouth. 🤗💙

Together Tuesdays

Kimberly Kolstad, our Keynote Speaker for Adaptive Sports at this year’s 19th Annual AMCSI Conference in Atlanta, Georgia, July 3-6, is joined by Jo with Arizona Adaptive Water Sports & Cullen from Trails Adaptive as they discuss wake surfing and mountain biking on July 3rd!! 🤗💙

To learn how to get involved visit: https://amcsupport.org/19th-adaptive-sports/

Together Tuesdays

This week is all about fundraising Ana who is doing a Walk, Tun or Roll event called AMC & Me, in St. Louis and with Kim who is ogranizing the Adaptive Sports at the 19th Annual AMCSI Conference. & how you can get involved! 🤗💙

Be sure to follow our Together Tuesdays Facebook Event Page at: https://fb.me/e/4vbg9gzNq

Together Tuesdays

This week, Christof (@Charpsp20 on FB, IG & YT) will join us. He was born in Asia in the late 1980s with congenital AMC, affecting all four limbs. He moved to & grew up primarily in the midwestern & northern US before attending college and working in TX. Currently, Christof lives alone & independently, enjoying all the pros and cons that come with the millennial generation. By profession, he is an engineer by day and a freelance musician by night. 🤗💙

Visit Christof’s YouTube Channel: https://www.youtube.com/@charpsp20

Together Tuesdays

This week, Frances & Colwyn will join us on a new podcast called Accessible Adventures Podcast! Frances has a side hustle as a travel agent specializing in Disney. I think I have a unique perspective in this business because I have experience planning my own Disney vacations, but I also have experience booking trips with accessibility in mind. Having Arthrogryposis has never slowed me down, & I have always found ways to do what I enjoy. While Colwyn is a renaissance man of many interests. My mind and my formidable spirit do not let AMC rule my life! I have AMC, but it does not have me! I am currently a full-time gaming and reaction streamer & a full-time online game master (D&D and such) with StartPlaying Games. 🤗💙

Accessible Adventures Channel: https://www.youtube.com/watch?v=srsKaUyGBgc

Together Tuesdays

Tonight we join Barbara W., who is a software engineer who has been playing violin since she was five years old. Barbara was born with arthrogryposis affecting mainly her lower limbs but both her hands and right arm are weak. There is only one contracture in her left pointer finger. When she was young, the goal was to get her walking. Doctors paid very little attention to her hands. Her parents were concerned that she couldn’t hold a pencil! To strengthen her hands, her parents signed her (and her twin) up for violin classes. She has been playing ever since and is constantly evolving. She plays a small 1860 John Albert violin and uses a very light baroque bow.

Check out her performance of Tchaikovsky Canzonetta in out This Is How I… series! The Zoom audio was not very kind. 🤗💙

Together Tuesdays

Tonight we joined Laura Sharon! Brought to you by AMCSI & we shared ideas with our adult friends with AMC! 🤗💙

Together Tuesdays

Tonight met up with Tyler Holt, doctorate of occupational therapy working on her capstone project for Howard University & we shared ideas with our adult friends with AMC! 🤗💙

Together Tuesdays

Tonight met up woth Deana Fehr from Country Maid to discuss the Butter Braid Fundraiser & we shared ideas with our adult friends with AMC! 🤗💙

Together Tuesdays

Tonight we shared ideas, with our adult friends with AMC! 🤗💙

Together Tuesdays

Tonight we shared ideas, & talked about how you can positively impact the lives of those with Arthrogryposis at Conference. 🤗💙

Together Tuesdays

In this session, we will be joining special guest Kimberly Kolstad! 🤗💙

Together Tuesdays – Kimberly Kolstad

In this session, we will be joining special guest Kimberly Kolstad! 🤗💙

Together Tuesdays – Stetson Bradfield

In this session, we will be joined by our good friend Stetson Bradfield! 🤗💙

2023
Together Tuesdays – AMC Adults

In this session, we are joined by our adult friends with AMC! 🤗💙

Together Tusdays & Marty & Friends

In this session, we will join special guest Marty Sheedy from the Project Scissor Gait Foundation (@projectscissorgait) & Friends! 🤗💙

Together Tuesday – AMC Community

In this session, we will be joined by our adult friends with AMC! 🤗💙

Together Tuesdays – Misha & Friends

In this week’s session, we will be joining special guest Misha Dream Walker, AMCSI’s International Ambassador & friends! 🤗💙

Together Tuesday – Dr. Maureen Donohoe & Friends

In this week’s session, we will be joined by Dr. Maureen Donohoe & some of her friends, as we discuss @givingtuesday & share stories about how AMCSI has helped others! 🤗💙

Together Tuesdays – David Solano

In this week’s session, we will be joined by David Solano, a Sewall alumnus & board member, talking about his new book “Anything is Possible: A Journey of Resilience” 🤗💙

Together Tuesdays – Giving Tuesday & AMC Research

In this week’s session, we talked about Giving Tuesday & AMC Research! 🤗💙

Together Tuesdays – Fundraising

In this week’s session, we discuss fudnraiser to bring awareness to Arthrogryposis, with tips, ideas and more! 🤗💙

Together Tuesdays – Did You Know About The Links On The Website

In this week’s session, we talked about the AMCSI website, where links are, how to utilize all of resources on it and more! 🤗💙

Together Tuesdays – Mini Meetups – Importance of the smaller local gatherings

In this week’s session, we talked all about mini-meetups and more! 🤗💙

Together Tuesdays – Meet & Greet

In this week’s session, we introduce the AMCSI Team, Borad of Directors and more! 🤗💙

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