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Ready for some laughs, real talk, & awesome tips on living with Arthrogryposis (AMC)? Join us as we hang out with friends, share advice, & maybe get a little silly along the way!
Watch anytime, anywhere — it’s all about what works for you! 💙
(You must register & to receive the zoom link before Together Tuesdays via email. Please check your spam or junk folders.)
This week, we dove into everything from weather updates and health check-ins to brainstorming exciting conference ideas. 🌟
One fun (and delicious) challenge? Figuring out how to bring ice cream to our upcoming conference while navigating hotel catering rules and costs! 🍦❄️
We also tackled important topics like handling funds after the loss of an account owner and explored ways to support our adaptive sports program, ensuring more opportunities for our incredible community.
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We discussed the upcoming conference in Norfolk, VA, including registration details & hotel bookings.
Althea shared her experiences living with arthrogryposis, her personal journey, & her recent projects, including a “Biozine” featuring people with disabilities!
We also discussed terminology preferences regarding disabilities & the use of assistive devices and explored potential opportunities for collaboration and future meetups!
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We shared laughs and struggles over health adventures and the surprisingly tricky task of using Microsoft Paint for serious academic work. We also gave a big, warm welcome to our newest member from Georgia!
The conversation got even more exciting as we brainstormed ideas for our upcoming conference—like locking in a yearly go-to spot, shaking things up with a shorter format plus an optional fun-packed third day, and organizing mini field trip groups for extra adventure.
Of course, planning a conference that works for families across different regions isn’t easy, so we dove into what makes a location family-friendly and how to get more input from everyone (cue: poll time!). Lots of ideas, lots of energy, and plenty to look forward to!
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💙 Dyani, a 26-year-old biomedical engineer with AMC, shared her experiences in education, workplace accommodations, & motivational speaking—plus, we explored future speaking opportunities!💙 We wrapped up with strategic planning, brainstorming hotel donations, developing programs for the AMC community, & expanding our social media presence! 📢🤗💙
We discussed various topics, including football, weather, & education, focusing on personal experiences & preferences. We also talked about their favorite fast-food chains, the ongoing NFL season, & the potential for a special guest at our next meeting. The conversation ended with a discussion about the upcoming Super Bowl & the high hotel prices in New Orleans. 🤗💙
We are chilling with friends, talking about college classes & various other tricks of the trade. 🤗💙
We discussed various personal & professional topics, including health issues such as dealing with getting IVs for blood draws, artwork, & regional food preferences, and reminisced about game shows and their hosts. 🤗💙
We talk about different workout techniques, general life with Arthrogryposis & introducing Lana who is new to our weekly meet-ups! 🤗💙
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Arthrogryposis Multiplex Congenita Support Inc. (AMCSI)
P.O. Box 6291
Spartanburg, SC 29304
1-805-55-AMCSI (1-805-552-6274) | info@amcsupport.org
Arthrogryposis Multiplex Congenita Support, Inc. is a 501(c)(3) tax-exempt organization.
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