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Run, Walk or Roll For Arthrogryposis Awareness

Discover the AMC & Me Event!

Join us in raising awareness for Arthrogryposis Multiplex Congenita (AMC) on May 26th at Tilles Park in Ladue. AMC is characterized by multiple joint contractures present at birth, affecting approximately 1 in 3000 births. While it’s not a disease but a condition, it’s crucial to understand its impact, especially as 20-30% of those affected face a lethal genetic type or severe central nervous system dysfunction.

Though there’s currently no cure for AMC, early diagnosis opens doors to better treatments, including surgery, casting, therapy, and external fixators. At AMCsupport.org, we provide support and resources to our AMC community.

📅 Save the Dates: May 25th – 26th

You can meet AMC families, make new friends, and enjoy a wonderful day of solidarity. Let’s unite to raise awareness and support for those affected by AMC.

For more information, please contact Ana van Bosse at: ana@amcsupport.org

DAY 1 – May 25th
9:00 am – 2:00 pm –
Meet & Greet, Workshops, Lunch, Workshops
3437 Caroline Mall. St Louis, MO 63104
(SLU Allied Health Professions Building-Multi Purpose Room)

Lunch at 12:00 pm

Meet & Greet AMC families around Missouri & the Midwest.
• AMC Doctor Speakers: Harold van Bosse & Lindley Wall.
• Inspirational Speaker & Coach AMCer: David Solano from Denver
• Local Advocates & Community Leaders: Aimee Wehmeier – Paraquad

Ani Samargian – AMCsupport.org founder & AMC mom – SC
Lunch for everyone & crafts for kids


Day 2 – May 26th
10:00 am – 1:00 pm – Run, Walk & Roll Fundraiser
Tilles Park in Ladue – Green Pavilion
(Run, Walk & Roll begins at 10:00 am)

Lunch at 12:00 pm

Tilles Park – Green Pavilion
9551 Litzsinger Rd
St Louis, MO 6312

Tilles-Park-in-Ladue-St-Louis-2

OR DONATE DIRECTLY BELOW!

We wanna hear from you!

What does AMC & Me mean to you? You can take a short video from your phone and email it directly to us & we will post your video on this page.

Email us today at: info@amcsupport.org

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