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Learning the lingo to something new is an important part of the process & we are here to help you. Below are some of the many things we have learned along or travels with AMC.
A condition distinguished by a generalized lack in the newborn of muscular development & growth, with contracture and deformity at most joints. It is the most common form of arthrogryposis.
Typically a non-surgical approach aimed at correcting tightness around a joint or resolving a contracture. Methods and protocol vary.
Gastroenterologist is a doctor that deals with disorders of the stomach and intestines.
Geneticist is a biologist who studies genetics, the science of genes, heredity, and variation of organisms.
Neurologist is a physician specializing in neurology and trained to investigate, or diagnose and treat neurological disorders.
Permanent shortening of a muscle or joint.
A congenital deformity of the foot that is twisted so that the sole of the foot cannot be placed flat on the ground for walking. There are many types and varieties, and is fairly common occurring in 1 in 1,000 live births in the U.S. per year.
The unbending or straightening of any joint in the body.
The bending movement of any joint in the body.
A doctor who specializes in the diagnosis, prognosis, and, in some cases, treatment of genetic diseases.
The failure of the hip joints to develop normally, gradually deteriorating and leading to the loss of hip function.
Typically include an AFO in the lower portion connected by metal rods and a joint at the knee. These type of braces can stop, limit, or assist motion in the ankle, foot, and knee.
This includes hips, legs, knees, ankles, feet, and toes. Oftentimes, lower extremity specialists will also include the spine.
A form of therapy concerned with providing independence in activities of daily living.
Rotation of the hand and forearm so that the palm faces backwards or downwards. Also, a comparable rotation of the foot consisting of abduction followed be eversion.
A form of therapy that typically uses specially designed exercises and equipment to help patients gain or re-gain motion and independence.
Typically a non-surgical approach aimed at correcting tightness around a joint or resolving a contracture by casting changed at a high frequency.
An orthopedic cast used to immobilize the hip. It is typically used after surgery and includes the trunk of the body and upper portion of legs.
Rotation of the hand and forearm so that the palms face upwards. Also, a comparable rotation of the foot consisting of adduction followed by inversion.
The act of extending or flexing a part of one’s body in order to reach its maximum range of motion.
This includes shoulders, arms, elbows, wrists, fingers, and thumbs.
Arthrogryposis Multiplex Congenita Support Inc. (AMCSI)
P.O. Box 6291
Spartanburg, SC 29304
1-805-55-AMCSI (1-805-552-6274) | info@amcsupport.org
Arthrogryposis Multiplex Congenita Support, Inc. is a 501(c)(3) tax-exempt organization.
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