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Welcome to the 19th Annual AMCSI Conference in Atlanta, Georgia!

Books & Articles

article_Living-with-Arthrogryposis-Multiplex-Congenita

Living with Arthrogryposis Multiplex Congenita (AMC):
5 Lessons Learned — A Sister’s Perspective
By Laura Sharon

Book-The-Adventure-of-Gracie--Rose--A-Story-of-Becoming-Proudly-Different

The Adventure of Grace and Rose
By The Guadagni Family

AMC_Book_Her-Own-Two-Feet

Her Own Two Feet
By Meredith Davis & Rebeka Uwitonze

Anything_is_Possible_A_Journey_of_Resilience

Anything is Possible: A Journey of Resilience
By David Solano

Differently_Abled

Differently Abled
By Mira McCarty

Different_Like_Me

Different Like Me
By Alexis Wesley

Surrender_To_Being_Different

Surrender To Being Different: Reset The View Of The Disabled Parts That Limit Possibilities
By Lina Pane

Child_of_Promise

Child of Promise: One Woman’s Journey from Tragedy to Triumph
By Cheryl Green

Thank_My_Lucky_Scars

Thank My Lucky Scars
By Ward Foley

God_Didnt_Make_Me_a_Woman_Because_I_Had_Enough_Problems

God Didn’t Make Me a Woman Because I Had Enough Problems
By Ward Foley

Sammys_Physical_Therapy_Adventure_Coloring_and_Activity_Book

Sammy’s Physical Therapy Adventure Coloring & Activity Book
By Dr. Michael L. Fink

Some_Crawl_and_Never_Walk

Some Crawl and Never Walk
By Cheryl Green

In_Capable_Arms_Living_a_Life_Embraced

In Capable Arms: Living a Life Embraced by Grace
By Sarah Kovac

A_Guide_for_Parents_of_Children_with_Special_Needs_Where_to_Start

A Guide for Parents of Children with Special Needs: Where to Start
By Robert K. Page II

books-theresa

Deformed: My Remarkable Life Paperback
By Valerie Pepe

books-i-love-my-red-wagon

I Love My Red Wagon
By Angel Arredondo

Just_A_Krooked_Kid

Just A Krooked Kid
By Goodwin Hale

We_Are_1_In_3000_a_story_of_arthrogryposis

We Are 1 In 3000: a story of arthrogryposis
By Charlotte Thorpe

Medical Books

Arthrogryposis_A_Text_Atlas

Arthrogryposis: A Text Atlas
By Lynn T. Staheli (Editor),
Judith G. Hall (Editor),
Kenneth M. Jaffe (Editor),
Diane O. Paholke (Editor)

Arthrogryposis_Websters_Timeline_History_19552007

Arthrogryposis: Webster’s Timeline History, 1955 – 2007
By Icon Group International

Congenital_Anomalies_of_the_UpperExtremity_Etiologyand_Management

Congenital Anomalies of the Upper Extremity: Etiology and Management
By Donald Laub

Pediatric_Lower_Limb_Deformities_Principles_and_Techniques_of_Management

Pediatric Lower Limb Deformities: Principles and Techniques of Management
By Sanjeev Sabharwal

Rare_Genetic_Disorders_That_Affect_the_Skeleton

Rare Genetic Disorders That Affect the Skeleton
By H.J. Mankin MD (Author),
K.P. Mankin MD (Author)

Brochures

In English

AMCSI-brochure-english

In French

AMCSI-brochure-french

In Spanish

AMCSI-brochure-spanish

Films & Videos

Marnie King Makes Dorsal Hand Splints, Pt. 1

In this video, Marnie King, (OTR/L of A.I. duPont Children’s Hospital), demonstrates how to make dorsal hand splints for daytime use.

*Video provided for informational use only. Please consult your / your child’s physician prior to implementing any procedure or techniques demonstrated.

Marnie King Makes Dorsal Hand Splints, Pt. 2

In this video, Marnie King, (OTR/L of A.I. duPont Children’s Hospital), demonstrates how to make dorsal hand splints for nighttime use.

*Video provided for informational use only. Please consult your / your child’s physician prior to implementing any procedure or techniques demonstrated.

7_ways_of_AMC

7 Way of AMC

A series of videos by The Dream Walker Project showcasing techniques from other AMCers.

video-amc-and-me_spanish

AMC and Me

A short film about Arthrogryposis Multiplex Congenita in children and youth. (English version)

video-amc-and-me_spanish

AMC and Me

A short film about Arthrogryposis Multiplex Congenita in children and youth. (Spanish version)

video-amc-and-me_french

AMC and Me

A short film about Arthrogryposis Multiplex Congenita in children and youth. (French version)

Bartholomews_Gift

Bartholomew’s Gift

This video tells the heartwarming story of a young boy overcoming a severe disability and growing to become a man at peace with God and enjoying life to the full.

Coping_with_Arthrogryposis_A_Parents_Perspective

Coping with Arthrogryposis: A Parent’s Perspective

This video takes a look at what a parent can expect when their child is born with arthrogryposis. It is a documentary formatted video that interviews parents, physicians and allied health care providers to provide helpful insight in to the treatment and management of the disease. It also addresses some of the psychological issues that family members face when a child is born with special needs.

Hope_for_AMC

Hope for AMC

Parents and caregivers of children with arthrogryposis were asked, “What would you tell families new to the journey – To give hope for AMC?” Produced by parents of AMCers for anyone who has been touched by arthrogryposis multiplex congenita.

The_Sweetest_Gift_Living_with_Arthrogryposis_Multiplex_Congenita_documentary

The Sweetest Gift: Living with Arthrogryposis Multiplex Congenita documentary

My son was born with arthrogryposis in 2006. Arthrogryposis multiplex congenita is a rare physical condition affecting 1 in 3,000 births. This documentary will show how people of all ages are living and thriving with the condition, overcoming obstacles and living extraordinary lives. I wanted to share our story and all the stories of our AMC families. This is a story about hope and inspiration.

A_Day_with_Theresa

A Day with Theresa

On this DVD you will see Theresa doing everyday things like dressing, washing up, brushing teeth, putting on makeup, doing hair, cleaning, painting, cooking, doing yard work, playing putt putt and video games, getting therapeutic massage, exercising, etc…

Scarman_A_Short_Documentary

Scarman A Short Documentary

A short documentary about author and public speaker Ward ‘Scarman’ Foley directed by Robert Ashe, Lead Editor/ Two-Time Emmy Nominee for Conan on TBS.

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