Your hands have comforted generations. Now they can comfort an AMCer.
We invite grandmothers of children with Arthrogryposis Multiplex Congenita (AMC) to donate (NEW) handmade blankets for AMC babies in the NICU and children facing long hospital stays. Each blanket provides warmth, comfort, and reassurance when families need it most.
One blanket. Endless comfort.
Welcome to the AMC Family! It is probably a “family” you never knew existed until now, and being a part of it was not in your plans when you found out you were expecting. Finding out your child has arthrogryposis is a shocking experience, whether it was discovered by ultrasound during your pregnancy or not until birth. The joy, wonder, and hope for your new baby can quickly be overshadowed by fear, confusion, and isolation. The flood of medical information can be overwhelming. WE ARE HERE TO HELP! Arthrogryposis Multiplex Congenita Support, Inc (AMCSI) and Take TIME for AMC, Inc are two 501(c)3 non-profit organizations formed with the goal of raising awareness of AMC and providing pertinent information to individuals and families touched by AMC as well as the medical community who cares for them.
This space was created for parents, caregivers, and guardians walking the complex and deeply personal journey of supporting a child with Arthrogryposis. Rooted in lived experience, it exists to remind you that you are not alone, that your well-being matters, and that support is not a luxury, it is essential.
Here you will find community, understanding, and resources designed to help you navigate caregiving, connect with others who truly understand, and feel seen, supported, and valued every step of the way.
All ABOUT AMC: Learning Together is a fun and easy-to-read information packet designed especially for children, families, and classmates who want to better understand Arthrogryposis Multiplex Congenita (AMC). Inside, you’ll find simple explanations, illustrations, and interactive pages that answer common questions like what AMC is, how to say it, and what it looks like in everyday life. You’ll also discover the unique strengths and possibilities of kids with AMC—plus a special page to personalize with your own story. This packet is all about learning together and celebrating what makes each AMCer unique.
If you are a parent of a child diagnosed with arthrogryposis multiplex congenita, please fill out the form below. A member of our team will reach out to you for support and resources.