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Welcome to the 19th Annual AMCSI Conference in Atlanta, Georgia!

Guest Speakers

Kimberly Kolstad

Keynote Speaker

Kimberly Kolstad is a full-time medical social worker at Craig H Neilsen Rehab Hospital at the University of Utah. For over 18 years she has been advocating for underprivileged individuals and most recently has had the opportunity to work with individuals with spinal cord injuries, amputations, and transplants.  Kim has successfully created and runs a peer coaching program for patients with new spinal cord injuries. She works closely with TRAILS Adaptive Sports and has organized an event for Veterans with complex disabilities to experience the Tetra Watercraft. Kim has a love of adventure, and over the last two and a half years, her life has been changed for the better by participating in over 15 different adaptive sports, her favorites being snow skiing with the TetraSki, wake-surfing, and adaptive mountain biking. As a social worker and a person with AMC, Kim knows the importance of accessibility and inclusion for all.  She is now advocating for adaptive sports to be known and accessible to all people with disabilities, especially those with AMC.

Dr. Harold van Bosse

Dr. Harold J. P. van Bosse, M.D. is a pediatric orthopedic surgeon at Cardinal Glennon Children’s Hospital in St. Louis, Missouri. Dr. van Bosse has been practicing pediatric surgery exclusively since completing his orthopedic residency at the University of Illinois in Chicago in 1994, and his fellowship at Toronto’s Hospital for Sick Children in 1995. His specialty interests within pediatric orthopedics are arthrogryposis multiplex congenita (AMC), Prader-Willi syndrome (PWS), idiopathic clubfoot deformity, limb malalignment conditions, and pediatric spine deformities, especially of the growing spine. AMC and PWS alone make up more than 90% of his practice, allowing him to delve deeply into his special interest. He has published widely on topics related to arthrogryposis, clubfeet, and Prader-Willi syndrome. When developing an arthrogryposis center, the goals are to allow children with arthrogryposis to reach their fullest potential by addressing their limb deformities and helping them function/adapt to their limitations. Dr. Van Bosse considers himself privileged to follow patients from North and South America, Europe and Asia. He could not have gotten this far without the support of his wife, Ana.

Dr_Louise_Reid_Nichols

Dr. Reid Nichols

Reid Nichols, M.D., FAOA, FAAOS, is a pediatric orthopaedic surgeon at Nemours Children’s Health, Delaware Valley, and Assistant Professor of Orthopedic Surgery, at Thomas Jefferson University.  She received her undergraduate degrees from the University of Virginia and from Johns Hopkins University School of Nursing.  She earned her medical degree from Northeastern Ohio Universities College of Medicine.  After graduating from residency in orthopaedic surgery at Maimonides Medical Center in Brooklyn, NY, she completed a limb lengthening and reconstruction fellowship at the International Center for Limb Deformity in Baltimore, MD.  Under the supervision of John Herzenberg, M.D., she received advanced training in the management of clubfeet.  She received advanced training in pediatric orthopaedics after completing a fellowship at the Nemours/Alfred I. duPont Hospital for Children.  She is currently the president of the Limb Lengthening and Reconstruction Society(LLRS). She is active in many societies, including the Pediatric Society of North America, LLRS, American Academy of Orthopaedic Surgeons, American Orthopedic Association, and the Ruth Jackson Orthopaedic Society. She has served as the BOS representative for LLRS and is currently the POSNA BOS representative. Dr. Nichols’ clinical interests include limb deformity and reconstruction, clubfoot, arthrogryposis, and pediatric trauma.  She serves as the director of the Clubfoot Clinic and co-director of the Arthrogryposis Clinic.
Speaker-Dr-Dan-REV

Dr. Dan Zlotolow

Dr. Zlotolow is a Pediatric Upper Limb and Peripheral Nerve Surgeon at The Shriners Hospital for Children Philadelphia and Greenville, and The Hospital for Special Surgery in New York. He specializes in the care of children with Arthrogryposis, brachial plexus and peripheral nerve injuries, spinal cord injuries, complex post-traumatic deformities, congenital differences, and limb deficiencies. He leads medical outreach missions to Havana, Cuba and Kigali, Rwanda and has founded 3 professional societies including Plexus Nexus and the Pediatric Hand International Society of Surgeons (PHISOS). He travels nationally and internationally as a visiting professor and lecturer. He was also a team leader for Zion, the first pediatric hand transplant.
Speaker-Don-Brown

Don Brown

Don Brown has been in the financial services industry for over 30 years. He has been recognized as an industry leader in both personal production and management. Educating individuals and families on how to properly plan for dependents with special needs is a primary focus of Don’s practice. He has volunteered for over 20 years with Camp Fatima of New Jersey, an all-volunteer camp for individuals with developmental challenges. Don is a graduate of Rutgers University and has earned the Chartered Financial Consultant, Chartered Special Needs Consultant, and Chartered Advisor for Senior Living designations.

Speaker-Dr-Maureen-Donohue

Dr. Maureen Donohoe

Dr. Donohoe is a board-certified pediatric clinical specialist specializing in pediatric orthopedics. She has worked with contracture disorders for over 30 years as the primary physical therapist in the hospital’s Arthrogryposis Program, Osteogenesis Imperfecta Program, and Clubfoot Program. Dr. Donohoe authored the chapters on arthrogryposis and osteogenesis imperfecta in all six editions of Physical Therapy for Children, authored Therapy, Orthotics and Assistive Devices for Osteogenesis Imperfecta in Osteogenesis Imperfecta: A Case-Based Guide to Surgical Decision-Making and Care, Ambulatory Assistive Devices for Children and Youth with Cerebral Palsy and Activities of Daily Living Supports for Persons with Cerebral Palsy in Cerebral Palsy 2nd edition, the Relapsed Clubfoot in Paediatric Clinical Case Studies, as well as Sports and Recreation in Children with Osteogenesis Imperfecta: Strategies to Enhance Performance. She has been involved in over ten research studies on the physical ability of individuals with arthrogryposis and club feet. She has lectured nationally and internationally on these topics. This is her 15th visit to share information at the AMCSI meeting.

Speaker-Thersa-Willkomm

Dr. Therese Willkomm

Dr. Therese Willkomm, Ph.D., is the Director of New Hampshire’s State Assistive Technology Program with the Institute on Disability at the University of New Hampshire (UNH) Dr. Willkomm is a clinical associate professor emeritus in the Department of Occupational Therapy. She developed, coordinated, and taught assistive technology courses for the Graduate Certificate Program in Assistive Technology for 23 years. She is known nationally and internationally for her innovative strategies for creating solutions in minutes. She has designed and fabricated over two thousand solutions for individuals with disabilities. She has presented her work in 42 states, ten foreign countries, and three U.S. Territories and has authored over 22 publications, including her recent book Assistive Technology Solutions in Minutes Book 3: – “Make Stuff and Love People”.

Speaker-Lauren-Hyer

Dr. Lauren Hyer

Lauren C. Hyer, M.D. has worked at Shriners Hospitals for Children in Greenville, SC, since 2016. She completed her orthopedic surgery residency through Greenville Health System (now Prisma Health) in 2015. She spent the following year doing a pediatric orthopedic surgery fellowship at Phoenix Children’s Hospital in Arizona. Her main professional interests include arthrogryposis, gait improvement for cerebral palsy, and limb deficiency. Besides her work at Shriners, Dr. Hyer enjoys spending time with her husband and two young boys.

Speaker-Noemi-Dahan-Oliel

Dr. Noémi Dahan-Oliel

Dr. Noémi Dahan-Oliel is a Clinician Scientist at Shriners Hospital for Children-Canada and has been an Associate Professor at McGill University, School of Physical and Occupational Therapy since 2014. Her research program focuses on improving clinical outcomes for children living with musculoskeletal conditions, specifically arthrogryposis. Research designs include mixed methods, stakeholder engagement, and knowledge translation. Together with a wonderful multidisciplinary and multisite research team, she obtained funding for several clinical research projects in arthrogryposis. These projects include developing a registry for children with arthrogryposis across North America, expanding a registry for arthrogryposis internationally, developing a measure for the upper limb specifically for children with arthrogryposis, and exploring social deprivation and costs of caring in arthrogryposis to improve care and advance research in arthrogryposis.

Speaker-Phillip-Giampietro

Dr. Phillip Gaimpietro

Philip F. Giampietro, MD, Ph.D., is a professor in the Department of Pediatrics at the University of Illinois-Chicago School of Medicine. He received his B.S. in Biological Sciences at the State University of New York at Stony Brook, a Doctorate in Biomedical Sciences at the City University of New York, and an M.D. at the State University of New York at Stony Brook. Dr. Giampietro completed his internship in Pediatrics at the State University of New York at Stony Brook, a residency in Pediatrics at Long Island Jewish Medical Center, and a Fellowship in Medical Genetics at Weil Medical College of Cornell University. Throughout his career, he has actively educated medical students, genetic counseling students, physician assistants, and pediatric residents and fellows. Dr. Giampietro is the Section Head of the Section of Medical Genetics at the University of Illinois-Chicago. Before his current position, Dr. Giampietro held positions at Rutgers -Robert Wood Johnson Medical School, Drexel University College of Medicine, University of Wisconsin-Madison, Marshfield Clinic, Marshfield Clinic, and Weil Medical College of Cornell University. Dr. Giampietro’s research interests include dysmorphology and birth defects, in particular, the genetics of congenital and idiopathic scoliosis. He has worked closely with orthopedic surgical colleagues, clinical and molecular geneticists, and epidemiologists to better understand genetic and environmental contributions to these conditions.

Speaker-Fran-Guardo

Dr. Fran Guardo

Fran Guardo, MEd, MPT, DPT, BSPTS C1&2 Director of Rehabilitation for the Paley Orthopedic and Spine Institute (POSI) since 2009. She is a sought-after speaker in the field of Rehabilitation of Limb Lengthening and Treatment of Arthrogryposis, where she trains therapists and surgeons internationally.  She has authored multiple book chapters, presents nationally and internationally, and is an adjunct professor for Nova Southeastern University, where she lectures in the Physical Therapy Department.

Speaker-Jan-Shae

Jan Shea

Jan Shea, MSW, joined up with her colleagues at Virginia Commonwealth University’s Center on Transition Innovations in 2014 when she relocated to Richmond, VA from the Appalachian Mountains of Northeast Tennessee. Jan brought her background of juvenile justice and mental health to the team along with the invaluable skill set of spreading office cheer. Over the past 10 years, Jan has served across many projects within CTI. Her work ranges from supporting young adults with an intellectual disability pursuing a inclusive higher education certificate; serving as the program coordinator for a project exploring mental health supports for transfer students in Virginia; and as a Technology and Employment Coordinator for women with TBI/SCIs. When Jan isn’t working at CTI, she can be found attempting to paddle board in the waters around Greater Richmond and enjoying time with her family.

Speaker_Dr_Sarah_Nossov

Dr. Sarah Nossov

Sarah Nossov, M.D., is an orthopedic surgeon at Shriners Children’s Philadelphia. Dr. Nossov received her undergraduate degree in fine arts and a minor in computer science from Binghamton University. She then enrolled in a post-baccalaureate premedical program at Goucher College. She earned her medical degree as a distinguished scholar at University of North Carolina at Chapel Hill School of Medicine. In her first week of medical school, she was called to assist at a field hospital in Louisiana after Hurricane Katrina due to her emergency medical training. It was there that she worked side by side with volunteer orthopedic surgeons and her interest in bone health began — within the context of her desire to develop her commitment to community service.
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