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Welcome to the 19th Annual AMCSI Conference in Atlanta, Georgia!

Testimonials & Feel-Good Stories

Do you have a favorite story to share with the AMC Community about how AMCSI has helped you through grants, scholarships, conferences, or how we have improved your life? We’d like to hear about it! Email us at info@amcsupport.org or fill out the form below!

Read our Testimonials & Feel-Good Stories below the form & share the AMC love!

Testimonial Submission

All (required) (*) documents must be sent to info@amcsupport.org

Your application will not be processed until all required items are received.
Please do not email to check on the status of your application. We will reach out you if further information is needed.

The Fisher's photo of their child for their holiday grant testimonial.

“We have been members of AMCSI since 2012. Our daughter Red was born with Arthrogryposis multiplex congenita. We’ve been blessed to attend the annual conference since she was 5 years old. She just turned 18. The pandemic stole 2 years of conferences. This past year has paid a huge toll on our finances. We’ve also had a lot of medical and personal stuff going on. Both of our older cars have taken turns being in and out of the shop. At one point they were both unusable. We were drowning in debt. We put our pride aside and applied for the holiday grant. We were very surprised and appreciative when we found out we had gotten it. It took a lot of stress off of us. We were able to get stuff we needed as well as be able to buy her a couple of things. It was the lift we needed to get us back on our feet. We couldn’t have done it without this grant from AMCSI <3 This organization has blessed us in so many ways. Physically, emotionally and now financially. We look forward to being able to go to conference again this year, we especially enjoy volunteering our time as well.”

~ The Fisher’s

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“I want to say Thank you so much to AMCSI for helping our family out this holiday season. 2023 has been a roller coaster of a year and our family has experienced so much financial hardship, Ending the year with losing most of our belongings with our house flooding, and If that wasn’t enough, Our AMCer Jhay breaking his leg in December in a wheelchair accident, Causing a lot of missed work for me as a single Mom right around the holiday season. I am grateful to AMCSI for sponsoring our family for the holiday fund. The children were able to receive some nice gifts, We were able to put food on the table in a time of need and catch up on bills we had fallen behind on. Thank you so much! We are forever grateful for our AMC Family! We love you guys! Jhaylen personally says Thank you as he was able to get a new bed set and legos!”

~ Jhaylen R.

AMCSI-testimonial-Kylee
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“When I saw that the testimonials & feel-good stories had open forms I knew it was time for me to share my story because the community really has changed me in a great way.

Originally, I didn’t have any self-intentions when going to the conference, other than to go, meet a few people, and just have fun. Going I did not do any research other than purchasing my ticket. Before this, my AMC community was small and limited to two people, whom I already did not talk with much. Growing up my resources and community were nothing and I was never told great things about the AMC community in general. My mental health at the time was rapidly declining and I didn’t know why so I figured I would at least connect with a few people whom I could relate with.

The first conference I went to was the 17th annual in Orlando, I had just turned 18, the conference was in my home town so I easily could get there. In the first 45 minutes of me being at my first conference, my entire perspective of the entire community changed. I was greeted, introduced to many, and shown around as it was kind of intimidating. The positive energy and warmness that just poured out was unbelievable, I immediately knew I was in the right place. The entirety of the conference was so informative, I learned so much more than I intentionally thought I would, and confirmed for me that I was in the right spot of connection, love, and support. After the conference was over I knew I just had to go the next year.

The 18th annual conference in Ohio opened me to a whole new level of acceptance I felt. Going to this conference I had intentions, I wanted to find resources, hear others’ experiences, make forever connections, and really open myself up to better mental health resources, and that is exactly what I was able to do. I finally felt “home” enough to let others in and be open. I will forever say this but there seriously is not another group of people I will stay up till the sun comes up with just talking and bonding. Hearing others’ stories, experiences, tips, etc., and bonding with the right people helped me find self-acceptance and realize I will never be alone and my resources are right here in this family of the AMC community. The energy and comfort I felt around every. single. person. was unmatched and I can not express how grateful I am for this community that I call family. The annual conference will be something I no longer miss, I will be there, to share, to listen, and connect.

“Remember, this isn’t goodbye, this is see you later. <3”

~ Kylee

AMCSI-testimonial-Amanda

“It improved my life! To meet another people with same disability, and learn more about AMC too. And when meet up with Dr. Hall she told us I had distal arthrogryposis, and why!🙂💙👍

And after the first conference in Kansas City! My sister asked if she could started Facebook group for Canada! She was with us too. I am happy they accept it, and we had mini meet ups around  in Canada.”

~ Amanda

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“We are new to the AMC community, yet we are not.

In 2019, our family began our path to adopt a little girl with suspected Arthrogryposis. We scrambled to complete paperwork, much of it very familiar as we had completed an adoption with this country several years prior. We took this time to also familiarize ourselves with AMC and that is how we found AMC Support. We learned that you offered an adoption grant and we applied, knowing there were likely so many in need. And we were humbled when we received a very generous check in the mail, an incredible help to offset adoption costs. We got much more familiar with AMC through your resources, yet still had so much to learn.

We completed all paperwork in 6 months are got approval to travel to her in January 2020. We booked our flights and had our adoption appointments in country scheduled for February 2020.

And then…COVID. The pandemic shut down our little girl’s birth country. And we were told to cancel our flights and wait. Little did we know that the country would remain closed to tourists of any kind for YEARS. We waited, often not knowing if we would ever meet the little girl we had fallen deeply in love with. We sent her letters and photos and occasionally saw glimpses of her via photo or video. We waited. And we waited.

During this time, we also dug deeper and deeper into the world of AMC. We still sat on the outskirts, perhaps needing to know and learn and grow to help her thrive. So much was uncertain. But we followed AMCSI on social media and frequently went to the website. We reached out to local facilities such as Shriners New England and Boston Childrens.

AND we waited, yet. In fact we waited for 3 and a half years. And then suddenly, we were invited to travel once again.

In June of this year, we traveled to China and finally met our daughter. She has been through so much, yet is thriving and full of joy. And she is determined, motivated.

She was positively diagnosed with Arthrogryposis by both Shriners and Boston Children’s. She received very minimal treatment up until now and is quickly showing us how motivated she is to move. She has a loaner wheelchair, has been fitted for her own and is beginning her first surgical treatment in January. She thrives in therapy and is thrilled to be able to be on the move!

Thank you to AMCSI. Thank you for the adoption grant. And thank you for being an incredible resource. We anticipate becoming a bigger part of this community.”

~ Fitzgerald family

AMCSI-testimonial-Shameia
Ani joins Shameia in Greenville, SC to hand deliver some great news!   All smiles and just a few tears shed as we close out our Hardship Grant program.   Ms. Shameia was the recipient of our final hardship grant. She would like to thank AMCSI’s board of directors for their prompt decision and our donors for their support.  The Hardship Grant has been reestablished as the Accessibility Grant that will assist many of our AMC families with ADL tools that will be instrumental for independent living.  Please follow the link  to apply.
AMCSI-testimonial-Kahzryn

“To say it’s been difficult to find the words to talk about this experience is an understatement. I was gifted the opportunity to attend a conference on Arthrogryposis (AMC), the condition I was born with. I never met anyone in person with AMC until this trip that I was so blessed to have received! I have really been unable to put into language what this incredible trip has brought me. Community, friendship, education, resources, self-acceptance, memories, hugs, some of the rawest love i’ve ever witnessed & felt to name a few. I received more hugs during this trip than I have in the past year.. The people in this community love BIG and I can’t explain how much my heart has been filled by them all. The way this community has loved and uplifted me is unmatched. I have been terrified with planning my medical future alone and this has given me HOPE. This experience has truly taken my heart and ran with it. I’m so immensely grateful to have made it in those rooms, to those that made this happen for me, and to all that made this whole conference possible in general.. There are truly no words I could use to explain what you’ve done for me and my heart and my FUTURE, but thank you a million times over.. See you next year!”

~ Kahzryn

AMCSI-testimonial-Skyler

“A few weeks ago, Ani Samargian called me after an absolutely terrible day and gave me the most exciting yet terrifying opportunity of my life. This weekend I went to the Arthrogryposis Conference in Ohio, to tell me I was chosen for one of the scholarships. I had never gotten the opportunity to meet anyone like me, being that my disability is so rare. When I got there, I was hoping to run to my hotel room to prepare myself. But as soon as I walked in the lobby, I was faced with what I never thought I would experience. Not one, but maybe 50 others with my condition. Adults and children. I wasn’t ready but it was happening. So many emotions rushed through me and I just found a seat near the entrance and cried. Tears of relief that it finally happened, but also fear, and the overwhelming truth that I needed to face. I have AMC and I always will. I was a child that was traumatized and afraid, insecure and full of self hatred and closed off to the world. Confused and alone and ashamed. I needed to be free. All these years i carried these feelings into adulthood and all it did was hurt me. Since Ohio, I’ve felt lighter. Like a weight has been lifted and like I’ve finally looked in the mirror after being invisible for over 20 years. It feels as though my inner child finally got a big hug and was told that she would be okay. That she wasn’t all the things people told her she was. I can never thank you enough, Ani. You gave me the greatest gift I’ve ever received and helped me meet people that will be in my life forever.”

~ Skyler

AMCSI-testimonial-Kristen

“There are few words to encompass the emotions of attending the AMCSI conference for the first time and as a grant recipient. I am 28 years old and had not met another individual with arthrogryposis until this year. Stepping into a space full of other individuals who look like me and who understand my disability in a way no one else in my life ever has felt like coming home. It would not have been possible for me to attend conference this year without the support of the Brayden Dame Scholarship. I am forever honored and grateful to have received this incredible award and for the opportunity to spend time with members of the Dame family. They, along with countless other AMCers, embraced me and helped me feel like an instant member of the AMC family. The conference provided me with invaluable connections that have made me feel so accepted and excited to immerse myself further into our community.”

~ Kristen

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