Tag: Arthrogryposis

Arthrogryposis multiplex congenita (AMC) is a term used to describe a group of congenital conditions characterized by joint contractures in two or more body areas.
While the precise cause may be unknown for some individuals, causes are variable and may include genetic, parental and environmental factors, as well as abnormalities during fetal development. Individuals with AMC have limited joint movement, with or without muscle weakness, in the involved body areas. Contractures vary in distribution and severity, do not progress to previously unaffected joints, but may change over time due to growth and treatment. Spinal deformities may be present at birth or develop throughout childhood and adolescence. Depending on the underlying diagnosis, other body systems such as the respiratory, gastro-intestinal, genito-urinary and central nervous system may be affected. Cognition may be affected if the central nervous system is involved; sensation is usually intact. The impact on mobility, activities of daily living and participation is variable.

Privacy Policy

Privacy Policy Your privacy is important to Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI). Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) attaches great importance to protecting personal data and maintaining privacy. This policy describes the types of personal information we may collect from you, the purposes for which we use the information, the circumstances in which we […]

Research Submission Form

Research Submission Form Do you have an AMC Research Project you would like to share with AMCSI? We would love to share your AMC Research Project, fill out the form below to get started! All (required) & (*) must be filled out. By signing up, you also agree to receive email marketing communication from AMC […]

Roger’s Run 4 AMC

Roger’s Run 4 AMC Celebrate 15 years and still running with Roger’s Run 4 AMC! We are looking forward to another great event on Saturday June 13th, 2026. This will be our 16th year running and we are so glad to have brought so much awareness about Arthrogryposis Multiplex Congenita to our community. In the […]

Shop Closed Until Mid July

The store will temporarily shut down for the season. We will return in mid July. We will have a store at our annual conference. See you there!

Protected: The AMC Collective

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Utah AMC Mini Meetup 2024

Utah AMC Mini Meetup 2024 Adventure Heights Spanish Fork All-Abilities Park | September 14, 2024 We had our annual Utah AMC support group meet-up activity yesterday. Several wonderful AMCers and their lovely families came. This time, we even had Kim, who shared with the families the adapted sports for the AMCers. I love these people. […]

Ways To Give

Ways to Give
There are so many meaningful ways to make a difference for the AMC community! 💙
Whether you choose to donate once, give monthly, or start your own fundraiser, every gift helps AMCSI continue providing support, resources, and connection to families worldwide.
Explore the options below and find the giving method that works best for you:
• Donate: Make a one-time gift that supports AMCSI programs year-round.
• Monthly Contributions: Join our circle of recurring donors and create lasting impact.
• Company Match: Double your donation through your employer’s matching program.
• Be a Fundraiser: Rally your friends, family, or coworkers for a cause that matters.
• Give in Tribute: Honor someone special with a gift in their name.
• Employee Giving: Support AMCSI through payroll deductions or workplace campaigns.
• Give Freely: Make a contribution of any size, anytime—it all adds up!
Together, we can strengthen and support the AMC community—one gift at a time.

AMC Events

19th Annual AMCSI Conference

Conference Registration Is Open! With a condition so rare that only one in 3000 babies born have this neuromuscular disorder, it’s easy to comprehend how alienated anyone with arthrogryposis multiplex congenita (AMC) must feel. Through the hard work of one mother’s vision and an army of members, the AMC support group has helped bridge the […]

AMCSI – Meet The Team

About AMCSI — Empowering the Arthrogryposis Community Worldwide

Founded in 2001, AMCSI (Arthrogryposis Multiplex Congenita Support, Inc.) began as a small online group of mothers searching for answers, support, and understanding after their children were diagnosed with Arthrogryposis—a rare, non-progressive congenital condition affecting joint movement. What started as a heartfelt chat among parents has grown into the world’s largest and most trusted online community for AMC awareness, education, and support.

Today, AMCSI connects thousands of individuals and families across the globe, offering expert-backed resources, emotional support, advocacy tools, and life-changing events. Our mission is to ensure no one faces AMC alone. Through our website, conferences, and outreach programs, we continue to spread awareness, promote research, and uplift those affected by this rare condition.

Join us as we champion inclusion, celebrate ability, and provide hope to the AMC community—one story at a time.