Privacy Policy
Privacy Policy Your privacy is important to Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI). Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) attaches great importance to protecting personal data and maintaining privacy. This policy describes the types of personal information we may collect from you, the purposes for which we use the information, the circumstances in which we […]
Utah AMC Mini Meetup 2024
Utah AMC Mini Meetup 2024 Adventure Heights Spanish Fork All-Abilities Park | September 14, 2024 We had our annual Utah AMC support group meet-up activity yesterday. Several wonderful AMCers and their lovely families came. This time, we even had Kim, who shared with the families the adapted sports for the AMCers. I love these people. […]
AMC Events
19th Annual AMCSI Conference
Conference Registration Is Open! With a condition so rare that only one in 3000 babies born have this neuromuscular disorder, it’s easy to comprehend how alienated anyone with arthrogryposis multiplex congenita (AMC) must feel. Through the hard work of one mother’s vision and an army of members, the AMC support group has helped bridge the […]
AMCSI – Meet The Team
About AMCSI — Empowering the Arthrogryposis Community Worldwide
Founded in 2001, AMCSI (Arthrogryposis Multiplex Congenita Support, Inc.) began as a small online group of mothers searching for answers, support, and understanding after their children were diagnosed with Arthrogryposis—a rare, non-progressive congenital condition affecting joint movement. What started as a heartfelt chat among parents has grown into the world’s largest and most trusted online community for AMC awareness, education, and support.
Today, AMCSI connects thousands of individuals and families across the globe, offering expert-backed resources, emotional support, advocacy tools, and life-changing events. Our mission is to ensure no one faces AMC alone. Through our website, conferences, and outreach programs, we continue to spread awareness, promote research, and uplift those affected by this rare condition.
Join us as we champion inclusion, celebrate ability, and provide hope to the AMC community—one story at a time.
20th Annual AMCSI Conference
Celebrating 20 years with our AMC family! We cannot wait to see you all! July 9-12, 2025 in Norfolk, Virginia General Registration Is Open! With a condition so rare that only one in 3000 babies born have this neuromuscular disorder, it’s easy to comprehend how alienated anyone with arthrogryposis multiplex congenita (AMC) must feel. Through […]
Shop Closed Until Mid July
The store will temporarily shut down for the season. We will return in mid July. We will have a store at our annual conference. See you there!
Arthrogryposis Ohio Meetup Gallery
Arthrogryposis ohio meetup Dogwood Park | 241 7th St. North Canton, OH | September 14, 2024 We had a busy day. Cj played with his forever friends. Moms discussed struggles- we all can relate. 💙 Larina S.C. Had the best day yesterday with the most amazing people at the AMC Ohio Fall Meet-Up (Northeast Ohio)! […]
Research Submission Form
Research Submission Form Do you have an AMC Research Project you would like to share with AMCSI? We would love to share your AMC Research Project, fill out the form below to get started! All (required) & (*) must be filled out. By signing up, you also agree to receive email marketing communication from AMC […]
Occupational Therapy
Occupational Therapy Doctoral Capstone Project With the help of many AMCers, Kristen Donlevie created these tools through her occupational therapy doctoral dissertation project. They serve to ease the process of seeking medical care for adults with AMC. One handout is aimed at AMCers with tips and tricks to having successful interactions with medical professionals, while the […]
