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Happy AMC Awareness Day!

Tag: Arthrogryposis

Arthrogryposis multiplex congenita (AMC) is a term used to describe a group of congenital conditions characterized by joint contractures in two or more body areas.
While the precise cause may be unknown for some individuals, causes are variable and may include genetic, parental and environmental factors, as well as abnormalities during fetal development. Individuals with AMC have limited joint movement, with or without muscle weakness, in the involved body areas. Contractures vary in distribution and severity, do not progress to previously unaffected joints, but may change over time due to growth and treatment. Spinal deformities may be present at birth or develop throughout childhood and adolescence. Depending on the underlying diagnosis, other body systems such as the respiratory, gastro-intestinal, genito-urinary and central nervous system may be affected. Cognition may be affected if the central nervous system is involved; sensation is usually intact. The impact on mobility, activities of daily living and participation is variable.

Utah AMC Mini Meetup 2024

Utah AMC Mini Meetup 2024 Adventure Heights Spanish Fork All-Abilities Park | September 14, 2024 We had our annual Utah AMC support group meet-up activity yesterday. Several wonderful AMCers and […]

Research Submission Form

Research Submission Form Do you have an AMC Research Project you would like to share with AMCSI? We would love to share your AMC Research Project, fill out the form […]

Occupational Therapy

Occupational Therapy Doctoral Capstone Project With the help of many AMCers, Kristen Donlevie created these tools through her occupational therapy doctoral dissertation project. They serve to ease the process of seeking […]

Arthrogryposis Ohio Meetup Gallery

Arthrogryposis ohio meetup Dogwood Park | 241 7th St. North Canton, OH | September 14, 2024 We had a busy day. Cj played with his forever friends. Moms discussed struggles- […]

20th Annual AMCSI Conference

Celebrating 20 years with our AMC family! We cannot wait to see you all! July 9-12, 2025 in Norfolk, Virginia General Registration Is Open! With a condition so rare that […]

Shop Closed Until Mid July

The store will temporarily shut down for the season. We will return in mid July. We will have a store at our annual conference. See you there!

Privacy Policy

Privacy Policy Your privacy is important to Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI). Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) attaches great importance to protecting personal data and maintaining privacy. This […]

AMC Events

19th Annual AMCSI Conference

Conference Registration Is Open! With a condition so rare that only one in 3000 babies born have this neuromuscular disorder, it’s easy to comprehend how alienated anyone with arthrogryposis multiplex […]

Meet The Team

Meet The Team Ani Samargian AMCSI Founder/Community Support Advocate Ani is the proud mom of four, one of whom was born with arthrogryposis. Ani served on the AMCSI Board of […]