NICU Packet
Thank you so much for reaching out! We’re excited to share our NICU Packet with you — a special welcome guide for families preparing for or caring for a baby with Arthrogryposis Multiplex Congenita during pregnancy & early infancy.(for medical professionals & new parents) To download your copy, simply right-click the button below & select […]
The Long Road To AMC Awareness 2026
USA here we come! 🇺🇸 Is with a heart full of love and hope that we are thrilled to announce we will back at raising Arthrogryposis awareness in the US, where it all began but never ends. As many families keep reaching out to be part of this beautiful journey!
Oh!! Where we’ll begin?!?
Where ever will will finish?!?
Actually, those are already decided, but we really need your help with the rest.
This years ‘The Long Road to AMC Awareness’ trip is coming back to the USA, and we need your help deciding our route. Our preliminary route takes us all across the eastern states.
Would you like to join us and be part of our long road to the @amcsupport conference this year? If you are from one of the states announced and would like to take part please comment below where are you located and we will try our best to make it to you.
Our hearts are happy! The old lady rides again, black asphalt, blue hands, huge hugs and the best community to visit. Can’t wait for June 💙
#TheLongRoadToAMCAwareness
To learn more about AMC please visit: @amcsupport AMCSUPPORT.org
Ways To Give
Ways to Give
There are so many meaningful ways to make a difference for the AMC community! 💙
Whether you choose to donate once, give monthly, or start your own fundraiser, every gift helps AMCSI continue providing support, resources, and connection to families worldwide.
Explore the options below and find the giving method that works best for you:
• Donate: Make a one-time gift that supports AMCSI programs year-round.
• Monthly Contributions: Join our circle of recurring donors and create lasting impact.
• Company Match: Double your donation through your employer’s matching program.
• Be a Fundraiser: Rally your friends, family, or coworkers for a cause that matters.
• Give in Tribute: Honor someone special with a gift in their name.
• Employee Giving: Support AMCSI through payroll deductions or workplace campaigns.
• Give Freely: Make a contribution of any size, anytime—it all adds up!
Together, we can strengthen and support the AMC community—one gift at a time.
AMC Events
19th Annual AMCSI Conference
Conference Registration Is Open! With a condition so rare that only one in 3000 babies born have this neuromuscular disorder, it’s easy to comprehend how alienated anyone with arthrogryposis multiplex congenita (AMC) must feel. Through the hard work of one mother’s vision and an army of members, the AMC support group has helped bridge the […]
AMCSI – Meet The Team
About AMCSI — Empowering the Arthrogryposis Community Worldwide
Founded in 2001, AMCSI (Arthrogryposis Multiplex Congenita Support, Inc.) began as a small online group of mothers searching for answers, support, and understanding after their children were diagnosed with Arthrogryposis—a rare, non-progressive congenital condition affecting joint movement. What started as a heartfelt chat among parents has grown into the world’s largest and most trusted online community for AMC awareness, education, and support.
Today, AMCSI connects thousands of individuals and families across the globe, offering expert-backed resources, emotional support, advocacy tools, and life-changing events. Our mission is to ensure no one faces AMC alone. Through our website, conferences, and outreach programs, we continue to spread awareness, promote research, and uplift those affected by this rare condition.
Join us as we champion inclusion, celebrate ability, and provide hope to the AMC community—one story at a time.