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Supporting families & individuals affected by Arthrogryposis Multiplex Congenita (AMC). Join our global community for resources, events & empowerment.

Please join us in welcoming Sarah Turgeon-Desilets

Please join us in welcoming Sarah Turgeon-Desilets, MScPT, CAS, as a professional guest speaker for the 21st Annual AMCSI Conference, taking place July 1 to July 4, 2026, in Columbus, Ohio.

Sarah Turgeon-Desilets, MScPT, CAS, is a pediatric physiotherapist, future PhD student, clinician, and academic educator at McGill University with over a decade of experience in neuromuscular and rare pediatric conditions. She specializes in the clinical care, assessment, and rehabilitation of children and youth living with spinal muscular atrophy (SMA) and Duchenne muscular dystrophy & serves as a clinical evaluator in multiple international rare disease trials. Sarah is actively involved in advancing rare disease care through research, education, and provincial leadership. Her work focuses on improving standardized assessment, building clinician capacity, and promoting evidence-based, patient-centered care for individuals living with rare neuromuscular disorders.

💻 AMCSI Members receive early bird registration access and discounted rates. If you are not yet a member, now is the time to join. https://amcsupport.org/become-a-member/

Register for the conference: https://amcsupport.org/21st-annual-amcsi-conference/

View the full list of professional guest speakers: https://amcsupport.org/professional-guest-speakers/

💙 Help us spread the word by sharing this post and tagging your AMC community.

We look forward to seeing you in Columbus.

#AMCOH26 #AMCSIConference #Arthrogryposis #AMCSupport #MedicalSpeaker

🩵 Leave a Legacy with AMCSI A legacy gift is a me

🩵 Leave a Legacy with AMCSI

A legacy gift is a meaningful way to help ensure support, education, and connection continue for future generations of the AMC Community.

Your thoughtful planning helps AMCSI provide resources, grants, scholarships, and programs for individuals and families living with Arthrogryposis Multiplex Congenita.

Learn more or share your intentions here:
https://amcsupport.org/leave-a-legacy-gift/

#AMCSI #LegacyGiving #PlannedGiving #AMCCommunity #ArthrogryposisSupport

🚨 Silent Auction Alert! Let’s Get the Bidding Star

🚨 Silent Auction Alert! Let’s Get the Bidding Started 🚨

Pre-registered auction items make a huge impact, & they help us open bidding the moment the AMCSI Conference begins. Easy, fast, impactful.

👉 Pre-register your donation here:
https://forms.gle/zyE1XVLWaHhD3x6w8

👉 Learn more about the Silent Auction:
https://amcsupport.org/21st-annual-amcsi-conference/#silent

How it works: • Coming to the conference? Register your item, then bring it with you. • Can’t attend? Email us at info@amcsupport.org and we’ll send you the mailing address.

Need ideas? We’ve got you: 🎁 State-themed gift baskets with local favorites ✈️ Airline miles or round-trip tickets 🛍️ Small business goodies like candles, sauces, jams 🎬 Movie theater tickets or gift cards 🔧 Tools or gear from brands like Milwaukee or Snap-On

Every item helps fuel programs, resources, and connections across the AMC community.
 Let’s make this auction unforgettable. 💥

#AMCOH26 #SilentAuction #AMCstrong #NonprofitSupport

We are pleased to welcome Dr. Lisa V. Wagner, DHS,

We are pleased to welcome Dr. Lisa V. Wagner, DHS, OTR/L, as a professional guest speaker at the 21st Annual AMCSI Conference, July 1–4, 2026, in Columbus, Ohio.

Dr. Wagner received her occupational therapy degree from the Medical University of South Carolina and her doctorate from the University of Indianapolis. She has worked at Shriners Hospitals for Children for 34 years, where her career has included extensive clinical practice, research, and education.

Her work has contributed to peer-reviewed articles, a book chapter, and national and international speaking engagements. Dr. Wagner is a co-developer of three widely recognized outcome measures, the UBET, SHUEE, and SCUES, and serves as a clinical instructor for the Assisting Hand Assessment.

Deeply committed to children with Arthrogryposis, Dr. Wagner is collaborating on the development of an outcome assessment to improve understanding of upper-extremity function. Her expertise and long-standing dedication bring a meaningful clinical perspective to this year’s conference as families, clinicians, and advocates come together across the AMC community.

💻 AMCSI Members receive early bird registration access & discounted rates. If you are not yet a member, now is the time to join.
https://amcsupport.org/become-a-member/

Register for the conference: https://amcsupport.org/21st-annual-amcsi-conference/

View the full list of professional guest speakers: https://amcsupport.org/professional-guest-speakers/

💙 Help us spread the word by sharing this post & tagging your AMC community.

We look forward to seeing you in Columbus.

#AMCOH26 #AMCSIConference #Arthrogryposis #AMCSupport #MedicalSpeaker

Looking for a powerful way to support the AMC Comm

Looking for a powerful way to support the AMC Community this year?

If you are age 70½ or older, an IRA Charitable Rollover lets you give directly from your IRA to AMCSI while counting toward your Required Minimum Distribution, without increasing your taxable income.

Your gift helps strengthen programs, resources, and support for individuals and families living with Arthrogryposis.

Make your generosity go further and turn your required distribution into a meaningful impact.

Learn more or start your rollover today.
https://amcsupport.org/ira-charitable-rollovers/

#WaysToGiveWednesday #AMCSI #Arthrogryposis #IRARollover #AMCstrong

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AMCSI QR Code to donate

Arthrogryposis Multiplex Congenita Support Inc. (AMCSI)
P.O. Box 6291
Spartanburg, SC 29304
1-805-55-AMCSI (1-805-552-6274) | info@amcsupport.org

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