All About AMC: Learning Together
All About AMC: Learning Together All ABOUT AMC: Learning Together is a fun and easy-to-read information packet designed especially for children, families, and classmates who want to better understand Arthrogryposis Multiplex Congenita (AMC). Inside, you’ll find simple explanations, illustrations, and interactive pages that answer common questions like what AMC is, how to say it, and […]
AMC Library
Welcome to the AMC Library Your welcoming corner of the AMC Community where knowledge meets heart. Here, you’ll find an ever-growing collection of books, articles, guides, and AMC crafted resources that tell stories of strength, hope, and discovery. Whether you’re a newly diagnosed family, a curious friend, or someone seeking insight, this is your treasure […]
Arthrogryposis Medical Institutions
Specialized arthrogryposis care from leading institutions including Shriners Children’s, Nemours Children’s Health, and Paley Orthopedic & Spine Institute, offering coordinated treatment, therapy, and surgical expertise for children with AMC.
Arthrogryposis: New Parent Information Packet
Arthrogryposis New Parent Information Packet Welcome to the AMC Family! It is probably a “family” you never knew existed until now, and being a part of it was not in your plans when you found out you were expecting. Finding out your child has arthrogryposis is a eye-opening experience, whether it was discovered by ultrasound […]
My Own Knowledge: Care Notebook
My Own Knowledge: Care Notebook A Care Notebook is a helpful tool for families with children who have special health care needs. This notebook allows you to keep all important health information in one organized place, making it easier to track your child’s medical journey and share details with members of their care team. Creating […]
Occupational Therapy
Occupational Therapy Doctoral Capstone Project With the help of many AMCers, Kristen Donlevie created these tools through her occupational therapy doctoral dissertation project. They serve to ease the process of seeking medical care for adults with AMC. One handout is aimed at AMCers with tips and tricks to having successful interactions with medical professionals, while the […]
What Is Arthrogryposis?
What is Arthrogryposis Multiplex Congenita (AMC)? Arthrogryposis multiplex congenita (AMC) is a term used to describe a group of congenital conditions characterized by joint contractures in two or more body areas. While the precise cause may be unknown for some individuals, causes are variable and may include genetic, parental and environmental factors, as well as […]
Frequently Asked Questions
Frequently Asked Questions What is Arthrogryposis Multiplex Congenita (commonly called AMC)? The recognized definition of Arthrogryposis Multiplex Congentia is a condition that causes congenital contractures of two or more body parts. It is not a diagnosis but a umbrella term that is connected to over 300-400 more specific conditions and syndromes. Those conditions and syndromes […]
Words To Know
Words to Know Learning the lingo to something new is an important part of the process & we are here to help you. Below are some of the many things we have learned along or travels with AMC. Amyoplasia A condition distinguished by a generalized lack in the newborn of muscular development & growth, with […]
Arthrogryposis: A Text Atlas
Arthrogryposis A Text Atlas The term arthrogryposis describes a range of congenital contractures that lead to childhood deformities. It encompasses a number of syndromes and sporadic deformities that are rare individually but collectively are not uncommon. Yet the existing medical literature on arthrogryposis is sparse and often confusing. The aim of this book is to […]