AMCSI – Meet The Team
About AMCSI — Empowering the Arthrogryposis Community Worldwide
Founded in 2001, AMCSI (Arthrogryposis Multiplex Congenita Support, Inc.) began as a small online group of mothers searching for answers, support, and understanding after their children were diagnosed with Arthrogryposis—a rare, non-progressive congenital condition affecting joint movement. What started as a heartfelt chat among parents has grown into the world’s largest and most trusted online community for AMC awareness, education, and support.
Today, AMCSI connects thousands of individuals and families across the globe, offering expert-backed resources, emotional support, advocacy tools, and life-changing events. Our mission is to ensure no one faces AMC alone. Through our website, conferences, and outreach programs, we continue to spread awareness, promote research, and uplift those affected by this rare condition.
Join us as we champion inclusion, celebrate ability, and provide hope to the AMC community—one story at a time.
