Covid Research
We are doing a quick survey to understand the impact the last 3 yrs have had on people with AMC. Many of you have responded and completed it – thank you! Some have expressed participating in the COVID survey but have not completed the survey. We ask that you take 10 minutes to do so. […]
Height and Weight
Height and Weight Information is being collected to plot data specifically for AMCers under the age of 2 to compare with traditional growth curves. However, if you have info for an older AMCer over the age of 2, you can also share your info. Please feel free to submit your data as many times as […]
Literature and Films
Books & Articles Arthrogryposis New Parent Information Packet A welcome packet for families during pregnancy and early infancy for a child with ArthrogryposisMultiplex Congenita. View PDF The Amazing Curvy KidBy Mark with TAGNZ Want to be one of the first to get your hands on The Amazing Curvy Kid? Simply fill out this pre-order request! […]
Research
Research Research is key in unlocking the unique and complex door to arthrogryposis multiplex congenita. AMCSI has created a research fund to help with financial assistance to our medical community with a special interest in researching arthrogryposis multiplex congenita. Also, to learn more about adults with arthrogryposis connecting to a community of hope where they […]
Facebook Groups
AMC Family Facebook Groups Discord Young Adults With AMC Adults With AMC Staying Healthy & Active Adults with Arthrogryposis Multiplex Congenita (AMC) Arthrogryposis MomsAMC Moms ONLY Moms of AMCers with Multiple Disabilities AMC DadsAMC Dads ONLY AMC ParentsMoms, Dads, Caregivers Only AMC Grandparents AMC FamilyExtended family members, friends, doctors, & therapists are welcome! Familia AMCArtrogriposis […]
AMC Websites
Websites Individuals living with AMC Theresa Lucas Misha “Dream” Walker Marty Sheedy David Solano Luca “Lazylegz” Patuelli Ted Houser Olivia Owens Other AMC Related Topics Take T.I.M.E. For AMC AMG Fitness Adoption Reeces Rainbow Rainbow Kids Great Wall China Adoption Information Guide Children of All Nations Outreach Guide Tell Us Your Story Do you have […]
Assistive Devices
Assistive Devices & Everyday Items You will find our continually growing list of devices that many of our AMCers use on daily routines from bathing, showering, eating and more. We want to thank everyone for their input & sharing their ideas in helping us put these items together in one location. The impact this has […]
Medical Articles
Medical Articles Growth Charts for Children With Arthrogryposis Multiplex Congenita By Lauren C. Hyer – MD, Emily R. Shul – PhD, Bob Fray – PhD,& David E. Westberry – MD View PDF Prenatal diagnosis (or lack thereof) of Arthrogryposis Multiplex Congenita and its impact on the perinatal experience of parents: A retrospective survey by Sara […]
Global Support / World Map
Global Resources Global Support Groups ALLIANCE ARTHROGRYPOSE (FRENCH) The association was created in 2005 and aims to:• To allow people with arthrogryposis and their entourage to exchange their experiences• To provide technical and moral assistance to families facing arthrogryposis• Contribute to the medical research effort and the improvement of care practices related to arthrogryposis• To […]
