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# Arthrogryposis Multiplex Congenita Support, Inc. | AMCSI

For 20+ years, AMCSI has been a leading global resource for Arthrogryposis Multiplex Congenita (AMC), providing support, education, resources, and community for individuals, families, and those newly diagnosed with this rare congenital condition.

## Posts

### [Val's AMC Fall Music Festival](https://amcsupport.org/vals-amc-fall-music-festival/)

**Published:** July 24, 2026
**Author:** Ted Houser

**Content:**

## Valerie Pepe’s AMC Fall Music Festival '26

## Staten Island, NYC

 ![Valerie Pepe’s AMC Fall Music Festival at Rab’s Country Lanes in Staten Island on September 19, 2026, featuring live music from 25 Missions, The Kitchen, Mr Hood, and Lukabrazi, plus raffles and a 50/50 drawing to support AMCSI.](https://amcsupport.org/wp-content/uploads/2026/09/AMCSI26_ValsMusicFestival-Fall-8x11-4.jpg) 

### Valerie Pepe’s AMC Fall Music Festival

Spend an evening of live music, community, and fun while supporting Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) at Valerie Pepe’s AMC Fall Music Festival. Whether you’re coming for the bands, bowling, raffles, or simply to enjoy a great night with family and friends, everyone is welcome.

**Featuring Live Music From:**
🎵 25 Missions
🎵 The Kitchen
🎵 Mr Hood
🎵 Lukabrazi

Join us on Saturday, September 19, 2026, from 8:00 PM to Midnight at Rab’s Country Lanes, 1600 Hylan Blvd., Staten Island, NY.

**Event Highlights**
🎵 Live Bands
🎟️ Raffles
💰 50/50 Drawing
🎳 Bowling and entertainment
❤️ Support AMCSI and families affected by Arthrogryposis

There is no cover charge to attend. Donations are appreciated and help AMCSI continue providing programs, resources, grants, and support for the AMC Community.

We look forward to seeing you for an unforgettable evening of music, community, and support for AMCSI.

**Categories:** AMC Events

**Tags:** AMCSI, Festival, Music, Upcoming, Val's AMC Fall Music Festival, Valerie Pepe

---

### [AMC Tour - Morgan's Wonderland](https://amcsupport.org/amc-tour-morgans-wonderland/)

**Published:** September 4, 2026
**Author:** Ted Houser

**Excerpt:** The AMC Tour is coming to Morgan’s Wonderland in San Antonio on September 26, 2026! Join us for AMC Community connection, awareness, fun, and special guest Camille Mitchell. Don’t miss out. Registration is required!

**Content:**

![AMC Tour - Powered by Strength, Driven by Love](https://amcsupport.org/wp-content/uploads/2026/09/AMC-Tour_logo-outlined.png) 

## Morgan’s Wonderland | San Antonio, Texas

 [  Register Today!  ](#) 

# The AMC Tour is Coming to San Antonio! 💙

Join us on Saturday, September 26, 2026, from 11 AM–3 PM CST at Morgan’s Wonderland in San Antonio, Texas, for an afternoon of AMC Community connection, awareness, and fun!

Meet other individuals and families in the AMC Community, reconnect with friends, make new connections, and enjoy everything Morgan’s Wonderland has to offer.

Your AMC Tour ticket includes all-day access to Morgan’s Wonderland and a meal, so come for the event and enjoy the park for the day!

 [  Register Today!  ](#) 

### Ticket Pricing:

💙 Adults: $55.20
💙 AMCers: $33.85
💙 Ages 2 and under: $23.18
*All prices include Eventbrite fees.*

🎟️ Registration Is Required

Planning to join us? Make sure you register! Everyone participating in the AMC Tour must have a ticket.

We don’t want anyone to miss out because they planned to attend but forgot to register.

Short or Tall… We Need Registrations From All! 💙

 ![AMC Tour promotional graphic for Morgan’s Wonderland in San Antonio, Texas, on September 26, 2026, featuring the AMC Tour logo, San Antonio skyline, and AMCSI branding.](https://amcsupport.org/wp-content/uploads/2026/09/AMCT26-MorgansW-SanAntonioTX-flyer-1080.jpg) 

 [  Register Today!  ](#) 

### Meet Our Special Guest, Camille Mitchell

We’re excited to welcome Camille Mitchell as a special guest at the AMC Tour in San Antonio!

Camille is an author, educator, disability advocate, proud mother, and member of the AMC Community. Her experiences growing up with Arthrogryposis Multiplex Congenita (AMC) inspired her to write Please Don’t Stare, a children’s book that encourages conversations about disability, differences, kindness, and inclusion.
Through Please Don’t Stare, Camille hopes children with disabilities feel seen and represented while helping others understand that differences are something to understand, not fear.

Camille is also a reading tutor and is currently developing Don’t Dis My Ability, a nonprofit initiative focused on empowering individuals with disabilities.
As the proud mother of a 5-year-old daughter, Camille hopes her life reminds children with AMC and their families that a diagnosis does not determine what their future can hold. She lives by the motto:

### *“I designed the life I want to live.”*

Come meet Camille at Morgan’s Wonderland and spend the day connecting with the AMC Community! 💙

 ![Camille Mitchell, author and AMC advocate, announced as special guest at the AMC Tour at Morgan’s Wonderland in San Antonio, Texas, September 26, 2026.](https://amcsupport.org/wp-content/uploads/2026/09/AMCT26-MorgansW-SanAntonioTX-soecial-guest-camille.jpg) 

 [  Register Today!  ](#)

**Categories:** AMC Events

**Tags:** AMC Tour, Morgan's Wonderland, San Antonio, Texas, Upcoming

---

### [Upcoming Events & Fundraisers](https://amcsupport.org/upcoming-events-fundraisers/)

**Published:** January 1, 2026
**Author:** Ted Houser

**Content:**

# Upcoming Events & Fundraisers

*(Events or Fundraisers listed below are in random order with each page refresh, please click **Learn More >>** to get specific information about each of them.)*

  [![22nd Annual AMCSI Conference Logo](https://amcsupport.org/wp-content/uploads/2025/08/AMCOH27_logo-1920.png)

 ](https://amcsupport.org/22nd-annual-amcsi-conference/)###  [ 22nd Annual AMCSI Conference ](https://amcsupport.org/22nd-annual-amcsi-conference/) 

 [ Learn More » ](https://amcsupport.org/22nd-annual-amcsi-conference/) 

   [![A wide website header promoting the 2nd Annual Smokin' for a Cause: Wheeler's BBQ Competition & Fundraiser benefiting AMCSI (Arthrogryposis Multiplex Congenita Support, Inc.). The left side features bold event branding in white and orange against a dark smoky background, while the right side shows a pitmaster tending a large smoker at an outdoor evening BBQ festival with string lights and attendees gathered nearby. A memorial banner honors Dutton Cercy. The design highlights the BBQ competition categories (Best Ribs and Best Chicken) and uses a clean, modern layout with warm colors, smoke effects, and a community-focused atmosphere.](https://amcsupport.org/wp-content/uploads/2026/07/Smokin-For-A-Cause-gb-hdr.jpg)

 ](https://amcsupport.org/smokin-for-a-cause/)###  [ Smokin’ For A Cause ](https://amcsupport.org/smokin-for-a-cause/) 

 [ Learn More » ](https://amcsupport.org/smokin-for-a-cause/) 

   [![Join Valerie Pepe's AMC Fall Music Festival on September 19, 2026, at Rab's Country Lanes in Staten Island, NY. Enjoy live bands, raffles, a 50/50 drawing, and an evening of music supporting Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI). Admission is free with suggested donations.](https://amcsupport.org/wp-content/uploads/2026/07/AMCSI26_ValsMusicFestival-Fall-gb-hdr.jpg)

 ](https://amcsupport.org/vals-amc-fall-music-festival/)###  [ Val’s AMC Fall Music Festival ](https://amcsupport.org/vals-amc-fall-music-festival/) 

 [ Learn More » ](https://amcsupport.org/vals-amc-fall-music-festival/) 

   [![The photo is from the last day of the Conference and is the official group photo of the 20th Annual AMCSI Conference in Norfolk, VA, July 9-12, 2025.](https://amcsupport.org/wp-content/uploads/2025/07/Image-7.jpg)

 ](https://amcsupport.org/giving-tuesday/)###  [ Giving Tuesday ](https://amcsupport.org/giving-tuesday/) 

 [ Learn More » ](https://amcsupport.org/giving-tuesday/) 

   [![A group photo of those with AMC at the 20th Annual AMCSI Conference in Norfolk, Virginia, July 9-12, 2025.](https://amcsupport.org/wp-content/uploads/2025/10/AMCSI-group-photo.jpg)

 ](https://amcsupport.org/ways-to-give/)###  [ Ways To Give ](https://amcsupport.org/ways-to-give/) 

 [ Learn More » ](https://amcsupport.org/ways-to-give/) 

   [![](https://amcsupport.org/wp-content/uploads/2023/12/amc-awareness-day-hdr.jpg)

 ](https://amcsupport.org/amc-awareness-day/)###  [ AMC Awareness Day ](https://amcsupport.org/amc-awareness-day/) 

 [ Learn More » ](https://amcsupport.org/amc-awareness-day/) 

   [![](https://amcsupport.org/wp-content/uploads/2024/09/Marshall-2024-SharynPeaveyPhoto-S83_8299.jpg)

 ](https://amcsupport.org/253foramc/)###  [ 253 For AMC ](https://amcsupport.org/253foramc/) 

 [ Learn More » ](https://amcsupport.org/253foramc/) 

   [![AMCSI GRATEFUL TUESDAY](https://amcsupport.org/wp-content/uploads/2024/11/AMCSI24_grateful_tuesday.jpg)

 ](https://amcsupport.org/grateful-tuesday/)###  [ Grateful Tuesday ](https://amcsupport.org/grateful-tuesday/) 

 [ Learn More » ](https://amcsupport.org/grateful-tuesday/) 

   [![AMC Holiday Fund Logo](https://amcsupport.org/wp-content/uploads/2024/11/AMC-Holiday-fund-Logo-white-outline.png)

 ](https://amcsupport.org/amc-holiday-fund/)###  [ AMC Holiday Fund ](https://amcsupport.org/amc-holiday-fund/) 

 [ Learn More » ](https://amcsupport.org/amc-holiday-fund/) 

   [![The Prairie 103 For AMC - ARE YOU UP FOR A CHALLENGE? WANTED: CYCLISTS OF ALL SHAPES AND SIZES Last year I rode 103 miles in a single day to help raise money for AMCSI (Arthrogryposis Multiplex Congenita Support, Inc.) Do you think you could do the same thing, not in one day but in three weeks? I think you can.](https://amcsupport.org/wp-content/uploads/2026/07/GB-campaign_header-bckgrnd26.png)

 ](https://amcsupport.org/the-prairie-103-for-amc/)###  [ The Prairie 103 For AMC ](https://amcsupport.org/the-prairie-103-for-amc/) 

 [ Learn More » ](https://amcsupport.org/the-prairie-103-for-amc/) 

   [![Morgan’s Wonderland in San Antonio, Texas, with a colorful Ferris wheel-style ride and a small boat on the park’s waterway.](https://amcsupport.org/wp-content/uploads/2026/09/AMCT26-MorgansW-SanAntonioTX.jpg)

 ](https://amcsupport.org/amc-tour-morgans-wonderland/)###  [ AMC Tour – Morgan’s Wonderland ](https://amcsupport.org/amc-tour-morgans-wonderland/) 

 [ Learn More » ](https://amcsupport.org/amc-tour-morgans-wonderland/) 

   [![Event by Jayson Bird and AMC Awareness Ride & Support Public · Anyone on or off Facebook 🔥🏍️ AMC AWARENESS BIKE NIGHT 🏍️🔥 Come out and support a great cause while enjoying an awesome night of bikes, food, and fun! 📍 Black Sheep Bar & Grill – West Jordan, Utah South Valley's newest Bar & Grill has now opened in West Jordan with Great Food, a full bar, big screen TVs, and the friendliest staff in town. 🕖 7:00 PM – 9:00 PM 🍖 Whiskey, Ribs & Wings Specials 🎟️ Raffles + 50/50 Raffle 🏍️ Bikes • Community • Good Times All proceeds help support AMC Awareness and the families we serve 💙 Bring your crew, bring your bikes, and let’s make it a night to remember.](https://amcsupport.org/wp-content/uploads/2026/05/AMC-Awareness-Bike-Night-5.png)

 ](https://amcsupport.org/amc-awareness-bike-night-utah/)###  [ Community Bike Night Supporting AMC Awareness ](https://amcsupport.org/amc-awareness-bike-night-utah/) 

 [ Learn More » ](https://amcsupport.org/amc-awareness-bike-night-utah/) 

   [![The Dream Walker Project - The Long Road To AMC Awareness Euarotrip - Euro Flag And the Arthrogryposis flag for European hand prints is here!!!! 💙 To learn more about AMC please visit: Arthrogryposis · Disability · Nonprofit AMCSUPPORT.org #TheDreamWalkerProject #TheLongRoadToAMCAwareness #Arthrogryposis #Artrogriposis #ArthrogryposisAwareness](https://amcsupport.org/wp-content/uploads/2026/08/MM26-Euro-Flag-1920.jpg)

 ](https://amcsupport.org/the-long-road-to-amc-awareness-2026/)###  [ The Long Road To AMC Awareness 2026 ](https://amcsupport.org/the-long-road-to-amc-awareness-2026/) 

 [ Learn More » ](https://amcsupport.org/the-long-road-to-amc-awareness-2026/)

**Categories:** Arthrogryposis

**Tags:** Events, Fundraisers, Upcoming Events & Fundraisers

---

### [AMCSI Archives](https://amcsupport.org/archives/)

**Published:** September 3, 2026
**Author:** Ted Houser

**Content:**

# AMCSI Archives

Browse archived AMCSI news, announcements, events, fundraisers, grants, resources, and other past information that is no longer active or current. Archived posts are displayed in reverse chronological order, with the most recently published posts appearing first.

These posts are maintained for historical reference and may contain dates, links, registration details, applications, opportunities, or other information that is no longer current or available.

  [![Shriners Children's Greenville | ADL Camp 2026](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-40.jpg)

 ](https://amcsupport.org/shriners-childrens-greenville-adl-camp-2026/)###  [ Shriners Children’s Greenville – ADL Camp 2026 ](https://amcsupport.org/shriners-childrens-greenville-adl-camp-2026/) 

  June 29, 2026  

 [ Learn More » ](https://amcsupport.org/shriners-childrens-greenville-adl-camp-2026/) 

   [![Blue promotional graphic for the Philly AMC Meetup at the Independence Visitor Center in Philadelphia. The design features a large silhouette of the Liberty Bell in the background with AMCSI, Dream Walker Project, & AMC Tour logos. Event details include 6th & Market Street, Philadelphia & “Anytime after 3 PM.” Social media icons & the hashtag #PhillyAMCmeetup appear at the bottom. #AMC #Arthrogryposis #AMCSupport #AMCCommunity #AMCMeetup #Philadelphia #PhillyEvents #DisabilityCommunity #AccessiblePhiladelphia #DisabilityAwareness #WheelchairAccessible #InclusiveEvents #CommunityMeetup #PhillyMeetup #IndependenceVisitorCenter #TheDreamwalkerProject #AMCTour #AccessibleTravel #DisabilityAdvocacy #AdaptiveLiving](https://amcsupport.org/wp-content/uploads/2026/05/AMCtour26-philly-IVC.jpg)

 ](https://amcsupport.org/philly-meetup/)###  [ Philly Meetup ](https://amcsupport.org/philly-meetup/) 

  May 25, 2026  

 [ Learn More » ](https://amcsupport.org/philly-meetup/) 

   [![AMC Meetup Logo for AMCSI by TBSDesigns](https://amcsupport.org/wp-content/uploads/2026/05/AMC-Meetup-Logo.png)

 ](https://amcsupport.org/amc-meetup-concord-nc/)###  [ AMC Meetup – Concord, NC ](https://amcsupport.org/amc-meetup-concord-nc/) 

  May 25, 2026  

 [ Learn More » ](https://amcsupport.org/amc-meetup-concord-nc/) 

   [![Join us in Omaha for an AMC mini-meetup + book signing 📚💙 Connect with the community and meet Valerie Pepe alongside Linda Garcia for an evening of conversation & connection. 🗓 April 28, 2026
⏰ 5–7 PM
📍 Homewood Suites by Hilton Omaha Downtown Light refreshments will be provided, & Valerie’s books will be available for purchase. 💙 RSVP by April 26
💙 Contact: Valerie at valerie.m.pepecooper55@gmail.com or 917-524-5548 We hope to see you there 💙 #AMCstrong #AMCommunity #OmahaEvents #BookSigning #DisabilityCommunity 💙](https://amcsupport.org/wp-content/uploads/2026/04/AMCminiMeetup-Vals-booksigning.jpg)

 ](https://amcsupport.org/vals-book-signing/)###  [ Val’s AMC Mini Meetup & Book Signing ](https://amcsupport.org/vals-book-signing/) 

  April 14, 2026  

 [ Learn More » ](https://amcsupport.org/vals-book-signing/) 

   [![Valerie Pepe's AMC Music Festival](https://amcsupport.org/wp-content/uploads/2026/04/AMCSI26_ValsMusicFestival-web.jpg)

 ](https://amcsupport.org/vals-amc-music-festival-26/)###  [ Val’s AMC Music Festival ’26 ](https://amcsupport.org/vals-amc-music-festival-26/) 

  April 3, 2026  

 [ Learn More » ](https://amcsupport.org/vals-amc-music-festival-26/) 

   [![21st Annual AMCSI Conference Logo](https://amcsupport.org/wp-content/uploads/2025/07/AMCOH26_logo-1920pxW.png)

 ](https://amcsupport.org/prom-bees-stars/)###  [ Bees & Stars | 21st Conference Prom ](https://amcsupport.org/prom-bees-stars/) 

  February 19, 2026  

 [ Learn More » ](https://amcsupport.org/prom-bees-stars/) 

   [![](https://amcsupport.org/wp-content/uploads/2026/02/Siera-40thBDay-gb-heder.jpg)

 ](https://amcsupport.org/sieras-40-years/)###  [ Siera – 40 Years With AMC Birthday Celebration ](https://amcsupport.org/sieras-40-years/) 

  February 12, 2026  

 [ Learn More » ](https://amcsupport.org/sieras-40-years/) 

   [![Join the 21st Annual AMCSI Conference in Columbus, Ohio for adaptive sports including kayaking, cycling, wheelchair basketball, boccia, and 4-foot hoops. All activities offer adaptive equipment, trained support, and inclusive participation for people with disabilities.](https://amcsupport.org/wp-content/uploads/2026/01/Adaptive-Sports-Activities.jpg)

 ](https://amcsupport.org/adaptive-sports-oh26/)###  [ 21st Annual AMSCI Conference – Adaptive Sports ](https://amcsupport.org/adaptive-sports-oh26/) 

  January 31, 2026  

 [ Learn More » ](https://amcsupport.org/adaptive-sports-oh26/) 

   [![Roger's Run 4 AMC emblem](https://amcsupport.org/wp-content/uploads/2026/01/Rogers-Run-4-AMC-emblem.jpg)

 ](https://amcsupport.org/rogers-run-4-amc/)###  [ Roger’s Run 4 AMC ](https://amcsupport.org/rogers-run-4-amc/) 

  January 14, 2026  

 [ Learn More » ](https://amcsupport.org/rogers-run-4-amc/) 

  « PreviousPage1[Page2](https://amcsupport.org/archives/2/?action=as_async_request_queue_runner&nonce=9392d7711c)[Page3](https://amcsupport.org/archives/3/?action=as_async_request_queue_runner&nonce=9392d7711c)…[Page10](https://amcsupport.org/archives/10/?action=as_async_request_queue_runner&nonce=9392d7711c)[Next »](https://amcsupport.org/archives/2/)

**Categories:** Arthrogryposis

**Tags:** AMCSI, AMCSI Archives, Arthrogryposis

---

### [Misha’s Long Road To AMC Awareness](https://amcsupport.org/mishas-long-road-to-amc-awareness/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## Misha’s Long Road To AMC Awareness

## Building community one mile at the time! The Dream Walker Project - AMC Support

### **Celebrating Misha’s (Misha Dream Walker – [@mishadreamwalker](https://www.instagram.com/mishadreamwalker/)) Remarkable Dedication!**

We’re absolutely thrilled to honor the incredible hard work and unwavering dedication of Misha Walker, a true champion for Arthrogryposis Multiplex Congenita Awareness (AMC Awareness)!

Misha & Michael’s (just Misha’s husband) commitment to spreading awareness about AMC, through their inspiring journey, including 10,778 miles from coast to coast in Canada, stopping with hundreds of AMC families along their travels, is nothing short of extraordinary. Their efforts have touched countless lives and empowered the AMC community worldwide.

Join us in giving a massive shoutout to Misha for her unwavering passion and unyielding spirit!

**Learn more about Misha’s AMC journey and donate to her directly, visit: [www.mishadreamwalker.com](https://www.mishadreamwalker.com/general-4)**

**To learn more about The Dream Walker Project 》》**

**Buy Misha’s Tshirt 》》**

\#MishaDreamWalker #AMCwarrior #AMCawareness #AMCstrong #AMCSI #Inspiration #Advocacy #Dedication #CommunityHeroes #Inclusion #Acceptance #Advocate

**Your support makes this all possible. Please donate to Misha’s Long Road To AMC Awareness Fund today!**

 [ ](https://amcsupport.org/wp-content/uploads/2023/12/18-Edmonton-AB-Canada-AMC-Community-Pt2-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/23-Richmond-BC-Canada-Bonnie-and-Husband.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/17-Canada-With-Dallas.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/08-Ottowa-Canada-Donna-Danson-Fsmily-Pt-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/26-Calgary-AB-Canada-Karen.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/07-Montreal-Canada-Snriners-Pt-4-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/29-Brandon-MN-Trinity.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/16-Winnipeg-MB-Canada-Keiren-and-Parents-Pt-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/28-Brenna.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/18-Edmonton-AB-Canada-Amanda-and-Parents.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/21-N-Vancouver-BC-Canada-Patty.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/05-Listuguj.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/04-1st-Family-Levi-Family.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/22-Vancouver-BC-Canada-Dr-Hall.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/26-Calgary-AB-Canada-Pt2-Camille.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/18-Edmonton-AB-Canada-Pt2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/24-Coquitiam-BC-Canada-Crystal.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/20-Kamloops-BC-Canada-Kara.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/27-Last-Family-Canada-Reid.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/22-Vancouver-BC-Canada-Ann-and-Husband.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/25-Cranbrook-BC-Canada-Grace-Pt2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/15-North-Bay-ON-Canada-Brooklyn.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/08-Ottowa-Canada-Maeve-Family-Pt-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/19-Annette-Lake-Canada-Jacob-Pt2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/18-Edmonton-AB-Canada-AMC-Community-Pt2-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/07-Montreal-Canada-Aimee-Pt-3.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/07-Montreal-Canada-Ame-Helen-Alice-and-Jell-o-Pt-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/17-Saskatoon-SK-Canada-Dallass-School-Pt-3.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/07-Montreal-Canada-Tsatsu-Pt-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/09-Canada-_-Rae-Matt.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/06-Quebec-City.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/12-Fort-Erie-ON-Canada-Kaia-Family.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/18-Edmonton-AB-Canada-AMC-Community-Pt2-3.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/22-Vancouver-BC-Canada-Murray.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/13-Oakville-ON-Canada-Shawna.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/10-Burlington-ON-Canada-Christopher.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/11-Toronto-ON-Canada-Mini-Meetup.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/26-Calgary-AB-Canada-Pt4-Nereyda.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/08-Ottowa-Canada-Dsnson-Family-Pt-3.jpg)

**Categories:** AMC Events, Archived, Arthrogryposis, Misha’s Long Road To AMC Awareness

**Tags:** AMC Events, Misha’s Long Road To AMC Awareness

---

### [Brayden Dame Scholarship](https://amcsupport.org/brayden-dame-scholarship/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

![Brayden_Dame_Scholarship_01](https://amcsupport.org/wp-content/uploads/2023/12/Brayden_Dame_Scholarship_01.jpg) 

 ![](https://amcsupport.org/wp-content/uploads/2023/12/19th-Annual-AMCSI-Conference-461-619x1024.jpg) 

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Brayden_Dame_Scholarship_02.jpg) 

### **Brayden Dame Conference Scholarship**

The Brayden Dame Conference Scholarship is made possible through the generous support of the Calvin and Marissa Allen Foundation in honor of Brayden Dame. This scholarship will be awarded to a family within the Arthrogryposis Multiplex Congenita Support, Inc. *(AMCSI)* community, providing financial assistance to attend the 20th Annual AMCSI Conference in Norfolk, VA.

The scholarship covers conference registration, lodging, and travel expenses and will be reimbursed upon arrival at the event.

**Eligibility Criteria** The scholarship is available to:
*•* A child or teen *(18 years of age or younger)* living with Arthrogryposis Multiplex Congenita *(AMC)
•* One immediate family member *(e.g., parent, caregiver, sibling (18+), aunt, or uncle)*

**Scholarship Requirements** As requested by Brayden and her family, applicants must:
✔ Maintain an active AMCSI family membership *(**[Join Here](https://amcsupport.org/become-a-member/)**)*
✔ Have a confirmed diagnosis of Arthrogryposis Multiplex Congenita
✔ Be a first-time attendee of the AMCSI Annual Conference
✔ Be an active participant in the conference
✔ Submit eligible receipts for reimbursement upon arrival
✔ The application must be submitted by a parent or legal guardian *(18+)*

##### **Additional Registration Information**

If you wish to register additional family members, please complete the standard online registration via this link: **[Conference Registration](https://amcsupport.org/20th-annual-amcsi-conference/)**.

For any questions, please contact [**info@amcsupport.org**](mailto:info@amcsupport.org).

### Scholarship Application Is Now Closed.

### Application closes May 16th, at 11:59 PM EST

##### All (required) (\*) documents must be sent to info@amcsupport.org

Your application will not be processed until all required items are received.
Please do not email to check on the status of your application. We will reach out you if further information is needed.

**Categories:** Archived, Arthrogryposis, Brayden Dame Scholarship, Financial Aid, Scholarships

**Tags:** Brayden Dame Scholarship, Financial Aid, Scholarships

---

### [19th Sponsorship Form](https://amcsupport.org/19th-sponsorship-form/)

**Published:** December 12, 2023
**Author:** Ted Houser

**Content:**

### **19th Annual AMCSI Conference Sponsorship Online Form**

The Annual Arthrogryposis Multiplex Congenita Support, Inc. Conference provides an opportunity for people affected by arthrogryposis multiplex congenita (AMC) to gather and exchange ideas and support. During this annual 3-day event, over 500 family members and medical professionals learn from each other on “best practices” in the treatment of and living with AMC. Please join us as a conference sponsor!

**EXCLUSIVE PRESENTING SPONSOR: $10,000**
AMCSI’s Presenting Sponsorship option is the highest level of Sponsorship offered. This affords Sponsor named media and advertising partnership status across the board as the presenter of all AMCSI Conferences, Mini-Meetups & all Conference/Meetup promotions.
**Naming**
• As the presenting Sponsor, anytime the AMCSI Conference logo is used, the presenting Sponsor’s logo will be used in conjunction. The official name of the event becomes “19th Annual AMCSI Conference presented by SPONSOR”
**Media**
• First option on all incoming media, handled by the AMCSI media
• Dedicated email-announcing Sponsorship. Inclusion on all subsequent emails
**Logo Exposure**
• All logo use will be approximately 25% larger than any other Sponsor
• All advertising (Print, Outdoor, Online – seen by up to 20k followers across our social media)
• All pages of www.amcsupport.com
• Official Show Program
**Online Exposure**
• Logo inclusion on header image or video
• Permanent large header logo banner on All Conference webpages www.amcsupport.org (Run of site)
• Featured Conference speaker posts on www.amcsupport.org
• All email marketing campaigns
• Inclusion on all facets of @amcsupport social network including all header and profile images
**Onsite Exposure**
• Exhibitor Registration Sponsor-branded. All production costs are the responsibility of AMCSI.
• Check-In/Tshirt pickup counter Sponsor-branded. All production costs are the responsibility of AMCSI.
• Bold exhibitor listing within Official Conferecne Program
• Seen by up to 600 AMC Families
**Conference Program Exposure**
• Cover of Official Show Program
• 2 page premium spread (Seen by up to 600 AMC Families)
*(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by 5/17/2024)*
Other Notes
• First right of refusal to all future events

**DINNER SPONSOR: $10,000** AMCSI’s Presenting Sponsorship option is one of the highest levels of Sponsorship offered.

**Naming**
• As the Dinner Sponsor, anytime the AMCSI Conference logo is used, the Dinner Sponsor’s logo will be used in conjunction with any dinner promotions. The official name of the dinner becomes “19th Annual AMCSI Conference Dinner presented by SPONSOR.”

**Media**
• Dedicated email-announcing Sponsorship. Inclusion on all subsequent dinner emails

**Logo Exposure**
• All logo use will be approximately 25% larger than any other Sponsor
• Advertising (Online – seen by up to 20k followers across our social media)
• All pages of www.amcsupport.com
• Official Show Program

**Online Exposure**
• All email marketing campaigns
• Inclusion on all facets of the @amcsupport social network, including all header and profile images

**Onsite Exposure**
• Check-in at Dinner counter Sponsor-branded. All production costs are the responsibility of AMCSI.
• Bold exhibitor listing within the Official Conference Program
• Seen by up to 600 AMC Families

**Conference Program Exposure**
• Cover of the Official Show Program
• 2-page premium spread (Seen by up to 600 AMC Families)
*(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by 5/17/2024)*

**CONFERENCE T-SHIRT SPONSOR: $8,000** 
• Your company’s logo on the back of the conference t-shirt (Seen all across the country after the event)
• Your company’s logo on the www.amcsupport.org sponsor page, with a direct link to your website for one year 
• Full-page Ad in the Conference program (Seen by up to 600 AMC Families)
*(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by 5/17/2024)*
• Social media Sponsor post (up to 20k followers across our social media)
• Logo placed on the bottom of Conference webpages
• AMCSI Gift Basket with a ribbon pin, ribbon magnet, and two silicone bracelets *($30 retail value)* • Customized slide-in looping slideshow presentation.

**PLATINUM SPONSOR: $5,000**
• Your company’s logo on the www.amcsupport.org sponsor page, with a direct link to your website for one year
• Full page Ad in the Conference program (Seen by up to 600 AMC Families)
*(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by 5/17/2024)*
• AMCSI Gift Basket with a ribbon pin, ribbon magnet, and two silicone bracelets ($30 retail value)
• Customized slide in looping slide show presentation
• Social media Sponsor post (up to 20k followers across our social media)
• Logo placed on the bottom of Conference webpages

**GOLD SPONSOR: $3,250**
• Your company’s logo on the www.amcsupport.org sponsor page with a direct link to your website for one year
• 1/2 page Ad in the Conference program (Seen by up to 600 AMC Families)
*(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by 5/17/2024)*
• AMCSI ribbon pin (retail value $24)
• Customized slide in looping slide show presentation
• Social media Sponsor post (up to 20k followers across our social media)
• Logo placed on the bottom of Conference webpages

**SILVER SPONSOR: $1,500**
• Customized slide in looping slide show presentation
• 1/4 page Ad in the Conference program (Seen by up to 600 AMC Families)
*(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by 5/17/2024)* • Logo placed on the bottom of Conference webpages

**BRONZE SPONSOR: $800**
• Name/Company listed on a Bronze Donor Slide in a looping slide show presentation
• Logo placed on the bottom of Conference webpages

**PATRON SPONSOR: $300** • Listed on a shared Patron Donor Slide in a looping slide show presentation
• Name listed as Patron in the conference program

---

 *PAYMENT OPTIONS: CHECK VIA MAIL, PAYPAL (CREDIT CARDS), ONLINE ORDERS*

• **Online:** Please fill out the form below and once you hit submit it will bring you to the payment form for the Sponsorship you are signing up for. *(GiveButter charges a transaction fee, below are your other options)*
• **Checks:** Make Checks Payable to: AMCSI, Please note “Conference Sponsor” on the memo line
Mail to: AMCSI, P.O. Box 6291, Spartanburg, SC 29304
• **Paypal:** You can pay with a major credit card, and you do not need an account.
You must email a copy of your completed form to bod@amcsupport.org
www.paypal.com | AMCSI Paypal Account: bod@amcsupport.org

**[Downlod PDF of full 2024 Conference Sales Kit](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI24_Sponsorship_Exhibitor_Kit-REV2.pdf)**

##### The Sponsorship Submission Form Is Now Closed

**Categories:** 19th Sponsorship Form, AMC Events, AMCSI Annual Conference, Archived

**Tags:** 19th Annual AMCSI Conference, 19th Sponsorship Form, AMC Events

---

### [Together Tuesdays](https://amcsupport.org/together-tuesdays/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## Together Tuesdays

Ready for some laughs, real talk, & awesome tips on living with Arthrogryposis (AMC)? Join us as we hang out with friends, share advice, & maybe get a little silly along the way!

**Watch anytime, anywhere — it’s all about what works for you! 💙**

##### 2025

##### Together Tuesdays – Personal Experiences/Challenges & Favorite Foods

We discussed our recent experiences, upcoming plans, and personal matters, including college schedules, job market challenges, and personal updates. We also shared our experiences with various topics such as spam attacks on social media accounts, updates on web design, and personal updates. The conversation ended with a discussion on personal email management habits, a documentary about college students, and the application process for disability benefits.

📢🤗💙

##### Together Tuesdays – Personal Experiences/Challenges & Favorite Foods

We discussed our personal experiences, challenges, and favorite food places, focusing on accessibility and cultural differences. We also explored the possibility of organizing a conference cruise and the challenges of finding a suitable hotel for our group. The conversation ended with discussions on personal health issues, emotional support, and the importance of community connections.

📢🤗💙

##### Together Tuesdays – Heartfelt Conversations, Personal Wins & Big Dreams!

This week, we dove into everything from weather updates and health check-ins to brainstorming exciting conference ideas. 🌟

One fun (and delicious) challenge? Figuring out how to bring ice cream to our upcoming conference while navigating hotel catering rules and costs! 🍦❄️

We also tackled important topics like handling funds after the loss of an account owner and explored ways to support our adaptive sports program, ensuring more opportunities for our incredible community.

📢🤗💙

##### Together Tuesdays with special guest Althea Holmes

We discussed the upcoming conference in Norfolk, VA, including registration details & hotel bookings.

Althea shared her experiences living with arthrogryposis, her personal journey, & her recent projects, including a “Biozine” featuring people with disabilities!

We also discussed terminology preferences regarding disabilities & the use of assistive devices and explored potential opportunities for collaboration and future meetups!

📢🤗💙

##### Together Tuesdays with special guest Dyani Peterson

We shared laughs and struggles over health adventures and the surprisingly tricky task of using Microsoft Paint for serious academic work. We also gave a big, warm welcome to our newest member from Georgia!

The conversation got even more exciting as we brainstormed ideas for our upcoming conference—like locking in a yearly go-to spot, shaking things up with a shorter format plus an optional fun-packed third day, and organizing mini field trip groups for extra adventure.

Of course, planning a conference that works for families across different regions isn’t easy, so we dove into what makes a location family-friendly and how to get more input from everyone (cue: poll time!). Lots of ideas, lots of energy, and plenty to look forward to!

📢🤗💙

##### Together Tuesdays with special guest Dyani Peterson

💙 Dyani, a 26-year-old biomedical engineer with AMC, shared her experiences in education, workplace accommodations, & motivational speaking—plus, we explored future speaking opportunities!💙 We wrapped up with strategic planning, brainstorming hotel donations, developing programs for the AMC community, & expanding our social media presence! 📢🤗💙

##### Together Tuesdays

We discussed various topics, including football, weather, & education, focusing on personal experiences & preferences. We also talked about their favorite fast-food chains, the ongoing NFL season, & the potential for a special guest at our next meeting. The conversation ended with a discussion about the upcoming Super Bowl & the high hotel prices in New Orleans. 🤗💙

##### Together Tuesdays

We are chilling with friends, talking about college classes & various other tricks of the trade. 🤗💙

##### Together Tuesdays

We discussed various personal & professional topics, including health issues such as dealing with getting IVs for blood draws, artwork, & regional food preferences, and reminisced about game shows and their hosts. 🤗💙

##### Together Tuesdays

We talk about different workout techniques, general life with Arthrogryposis & introducing Lana who is new to our weekly meet-ups! 🤗💙

### [View 2024 Together Tuesdays](https://amcsupport.org/2024-together-tuesdays-sessions/)

### [View 2023 Together Tuesdays](https://amcsupport.org/2023-together-tuesdays-sessions/)

**Categories:** Archived, Arthrogryposis, Get Involved, Together Tuesdays

**Tags:** Get Involved, Together Tuesdays

---

### [253 For AMC Wrapup](https://amcsupport.org/253-for-amc-wrapup/)

**Published:** January 4, 2024
**Author:** Ted Houser

**Content:**

### 253 For AMC 2023 Team Wrapups!

All donations from 253 For AMC help fund our AMC Community by giving back through grants, scholarships, other AMC Mini Meet-Ups and help towards AMCSI’s Annual Conference, where everyone gets to meet, celebrate, see old friends & create new ones!

#### [View 253 For AMC Photo Gallery](https://amcsupport.org/253-for-amc-wrapup/#253)

#### [View Dylann’s Dash Photo Gallery](https://amcsupport.org/253-for-amc-wrapup/#dylanns)

### 253 For AMC 2023 Photo Gallery

 [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-38.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-39.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-24.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-22.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-26.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-3.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-9.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-28.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-42.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-10.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-11.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-29.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-18.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-32.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-21.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-37.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-41.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-20.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-12.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-40.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-15.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-33.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-5.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-4.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-23.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-16.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-44.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-6.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-27.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-30.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-36.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-35.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-14.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-13.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-34.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-7.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-45.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-43.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-31.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-19.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-8.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-17.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Portland-Maine-Spetember_23rd-25.jpg) 

### Dylann’s Dash 2023 Photo Gallery

 [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-32.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-51.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-62.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-15.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-12.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-56.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-14.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-13.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-18.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-43.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-60.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-68.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-69.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-49.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-33.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-6.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-3.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-30.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-65.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-5.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-53.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-9.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-11.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-50.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-40.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-29.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-20.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-8.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-47.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-31.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-70.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-67.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-41.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-66.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-44.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-58.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-57.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-35.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-7.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-59.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-45.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-73.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-21.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-52.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-16.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-37.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-28.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-4.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-72.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-54.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-10.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-22.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-24.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-23.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-17.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-26.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-63.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-61.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-36.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-64.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-42.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-48.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-38.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-34.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-55.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-25.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-27.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-46.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-39.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-19.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/253_For_AMC-Dylanns_Dash-Spetember_23rd-71.jpg) 

### We wanna hear from you!

What does your 253 For AMC movement mean to you? You can take a short video from your phone and email it directly to us & we will post your video on this page.

### Email us today at:

**Categories:** 253 For AMC, AMC Events, Archived, Arthrogryposis

**Tags:** 253 For AMC, About AMC

---

### [What 253 Means To You](https://amcsupport.org/what-253-means-to-you/)

**Published:** January 4, 2024
**Author:** Ted Houser

**Content:**

### What Our ***[253 With ME](https://givebutter.com/253foramc/253-me)*** Team Means To Us:

### What Our [Paint & Play Team](https://givebutter.com/253foramc/paint-and-play) Means To Us:

2 miles of movement (this can be in a power chair getting sunshine, so I have a video of a kid walking in leg braces, another one on the treadmill, and another video of a power chair outside)
5 painted rocks (to be left around town or sold with proceeds going to AMCSI), and
3 paintings (can’t leave those around town, but can be gifted or sold)

### What Our [Dylanns Dash Team](https://givebutter.com/253foramc/dylanns-dash) Means To Us:

### What Our [TBSDesigns Team](https://givebutter.com/253foramc/ted-houser) Means To Us:

 ![](https://amcsupport.org/wp-content/uploads/2024/01/Ted-Houser-263-For-AMC-2.jpg) 

 ![](https://amcsupport.org/wp-content/uploads/2024/01/Ted-Houser-263-For-AMC-4.jpg) 

 ![](https://amcsupport.org/wp-content/uploads/2024/01/Ted-Houser-263-For-AMC-1.jpg) 

 ![](https://amcsupport.org/wp-content/uploads/2024/01/Ted-Houser-263-For-AMC-3.jpg) 

### We wanna hear from you!

What does your 253 For AMC movement mean to you? You can take a short video from your phone and email it directly to us & we will post your video on this page.

### Email us today at:

**Categories:** 253 For AMC, AMC Events, Archived, Arthrogryposis

**Tags:** 253 For AMC, AMC Events

---

### [253 For AMC](https://amcsupport.org/253-for-amc/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## **Check Out All The Official Team Event Wrapups Here!**

 ![](https://amcsupport.org/wp-content/uploads/2023/12/253_For_AMC_tshirt-shop-2.jpg) 

White Gildan Softstyle. You will love this SUPER SOFT Tee! 253 For AMC directly helps provide resources to those affected by AMC.

 [  Purchase  ](https://www.amcsupport.org/store) 

### **WHAT IS 253 FOR AMC?**

What started as a local 253 mile bike ride to raise awareness about Arthrogryposis Multiplex Congenita (AMC) is now a national fundraiser built around activities that equal an amount of 253 – cycling, swimming, walking, wheeling, running, crawling, typing, using your wheelchair – you name it! The point is to get behind this movement using motion or an activity to support or spread awareness about Arthrogryposis.

All donations from 253 For AMC help fund our AMC Community by giving back through grants, scholarships, other AMC Mini Meet-Ups and help towards AMCSI’s Annual Conference, where everyone gets to meet, celebrate, see old friends & create new ones!

### [Check out what 253 For AMC means to others](https://amcsupport.org/what-253-means-to-you/)

 [  Join / Create A Team  ](https://amcsupport.org/join-create-a-253-team/) 

### OR DONATE DIRECTLY BELOW!

## **THANK YOU TO OUR 2023 SPONSORS**

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/liquid-riot-logo-lu-pm-600.png) ](https://liquidriot.com) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/253-HMInsuranceGroupLogo.png) ](https://www.hmig.com) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/apt-primary-white900.png) ](https://www.allianceptme.com) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/253-LocktonSponsorWhiteLogo.png) ](https://global.lockton.com/us/en) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/Guardian_Logo_Primary_white.png) ](https://www.guardianlife.com) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/bearclawlogo.png) ](https://tbsdesigns.com) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/365_white.png) ](https://givebutter.com/253foramc/253365) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_logo_white.png) ](https://www.amcsupport.org) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/LW_LOGO_RGB.png) ](https://www.lisawhited.com) 

## 253 For AMC 2023 Team Leaderboard

 ![](https://amcsupport.org/wp-content/uploads/2023/12/IMG_0356-marshal.jpg) 

### **$13,400**

253 With ME

 ![](https://amcsupport.org/wp-content/uploads/2023/12/DD23_Logo.jpg) 

### **$5,500**

Dylanns Dash Team

 ![](https://amcsupport.org/wp-content/uploads/2023/12/253_Lockton_Sponsor_black_Logo.jpg) 

### **$1,000**

Team Lockton Cares

 ![](https://amcsupport.org/wp-content/uploads/2023/12/j66gVJR5v09CwEWjE2kZR1vA8L06u3Ri0kxtJFle.jpg) 

### **$928**

MN Movers

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Alexis_Record_Headshot_BOD.jpg) 

### **$898.30**

Paint & Play

 ![](https://amcsupport.org/wp-content/uploads/2023/12/logo_826px.jpg) 

### **$435**

TBSDesigns

 ![](https://amcsupport.org/wp-content/uploads/2023/12/365_Logo_Concept.jpg) 

### **$253**

253//365

## 253 For AMC 2023 Donations

**$2,500** 
Nikki Fisher-Quittmeyer

**$1,500**
 Eddie P

**$1,253** 
Marshall Johnson

**$1,000** 
Matthew Cavedon

**$1,000** 
Ciaran Lynch

**$1,000** 
Philip Chamberlain

**$893** 
Jennifer Paradeis

**$853**
 Alexis Record

 **$500** 
Jeremy Stanchfield

**$500** 
Anonymous

**$500**
 Alex Goodhile

**$500** 
Krash Kirchner

 **$400** 
Mark & Barb Jones

 **$365** 
Chelsea Johnson

 **$300** 
Michael Jackson

**$288** 
Theodore Houser

 **$253** 
Branden W Neal

**$253** 
Kyle Mernitz

 **$253** 
Ani Samargian

**$253** 
Jennifer Feenstra

 **$253** 
Jennifer Paradeis

 **$253** 
Jo A Palmacci

**$253** 
Terence Ryan

**$253** 
Jared Connell

**$250** 
Donald Brown

**$250** 
Kitchen Family

 **$250**
 Pete & Pam

 **$200** 
Tim Kjeldgaard

**$200** 
Liana Magee 200 Carol Lynn Weinrod-Velez & family

**$200**
 Zach & Arin

**$200** 
Ken

**$150** 
Nancy Friedman

**$100**
 Jamie DeArman

**$100** 
Jason M Ouellette

**$100** 
Lawrence Miller

 **$100** 
Edwin Kingman

**$100** 
Rose Michael

**$100** 
Douglas Hoehle

 **$100**
 Robert Petersen

**$100** 
Susan Edberg

**$100** 
Maureen Donohoe

**$100** 
CAGHO

**$100** 
Jeff & Laura

 **$100** 
Cara @ Dempsey Center

**$100** 
Felicettas

**$100** 
Cal BD Gloe

**$100** 
Craig

 **$100**
 Shelby & Charley Bruce

 **$100** 
Jeff & Lynn Harder

 **$100** 
Kris Fallon

 **$100**
 James

**$100**
 Ben & Steph Johnson

**$100**
 Daniel Evans

**$100** 
Granny & Gramps Christensen

**$100** 
John

**$100** 
Meggie & Joe

**$100** 
Crystal & Joe Wahle

 **$100** 
Ben Harder

 **$100**
 The Romes

**$100** 
Anne

**$100** 
Andy Porter

**$50**
 Ryan Masteller

 **$50** 
Martin Hershy

**$50** 
Anonymous

**$50** 
Mark Miller

**$50** 
David Spach

**$50**
 Timothy Harper

**$50** 
Anonymous

**$50**
 Katelynn Havener

**$50** 
Eva Durkin

**$50**
 Jennifer Kittelson

**$50** 
Abigail Baer

**$50**
 Anonymous

**$50** 
Mack Rossignol

**$50**
 Nate Klein

 **$40**
 Anonymous

**$35** 
Mike Farrell

**$33** 
LINDA Flaig

 **$30**
 The Uncle Duncle

 **$25** 
Anonymous

**$25** 
Krista Isaacs

**$25** 
Anonymous

**$25** 
Eoin Lynch

 **$25**
 Ian Wexler

 **$25** 
Carly Argir

**$25** 
Judith Fogg

**$25** 
Stephen Buron

**$25**
 Kim Greenberg

**$20** 
Cassandrs Cicone

Still unsure about how to get involved, then CLICK HERE to watch videos explaining how you can Donate, Join/Create A Team, or become a Sponsor!

 ![](https://amcsupport.org/wp-content/uploads/2023/12/IMG_1245.JPG) 

*253 for AMC Co-Founders, Brandon Vera & Marshall Johnson, & AMCSI Founder, Ani Samargian at Liquid Riot in Portland, ME. 2022.*

### We wanna hear from you!

What does your 253 For AMC movement mean to you? You can take a short video from your phone and email it directly to us & we will post your video on this page.

### Email us today at:

**Categories:** 253 For AMC, AMC Events, Arthrogryposis

**Tags:** 253 For AMC, About AMC

---

### [Join/Create A 253 Team](https://amcsupport.org/join-create-a-253-team/)

**Published:** January 4, 2024
**Author:** Ted Houser

**Content:**

# Steps To Join/Create A Team

We invite you to get creative as we ask, what’s your 253? Show us your skill/passion/interest as you create awareness about Arthrogryposis & fundraise to benefit AMCSI

### To Create/Join A Team:

Please click on this link [**253 For AMC**](https://givebutter.com/253foramc) and follow the steps below:

### **STEP 1**
Click on Create/Join A Team

 ![](https://amcsupport.org/wp-content/uploads/2024/01/Step1.jpg) 

### **STEP 2** Add Your Info & Click Sign Up

 ![](https://amcsupport.org/wp-content/uploads/2024/01/Step2.jpg) 

### **STEP 3** Choose a Team OR Create Your Own

 ![](https://amcsupport.org/wp-content/uploads/2024/01/Step3.jpg) 

### OR DONATE DIRECTLY BELOW!

**Categories:** 253 For AMC, AMC Events, Archived

**Tags:** 253 For AMC, AMC Events

---

### [253 Sponsorship](https://amcsupport.org/253-sponsorship/)

**Published:** January 4, 2024
**Author:** Ted Houser

**Content:**

## 253 For AMC Sponsorship Application

### INSTRUCTIONS:

**First –** submit a sponsor donation. To learn about sponsor packages, click the Sponsorship Tiers Button.
**Second –** submit a sponsor application below. Once submitted, please email your organization’s high-quality logo for advertising.

### If you have any questions, please email [**info@amcsupport.org**](mailto:info@amcsupport.org).

 [  Sponsorship Tiers  ](https://amcsupport.org/wp-content/uploads/2024/01/253-for-AMC-SponsorshipTiers.pdf) 

       Organization Name   

  Email   

  Phone   

  Organization Address   

  Address 2   

  City   

  State   

  Zip   

  Please send a high quality logo to info@amcsupport.org.   

  Did you submit a donation in the GiveButter Form? If not please donate at: https://givebutter.com/253foramc  Yes No 

  Message   

 In order to empower our AMC Community, please answer the following questions below. 

  How did you hear about AMCSI?  Facebook Instagram Website Friend/Family Member Medical Professional Other

  Would you be interested in a 1:1 Zoom call with a support parent? A support parent is a vetted member of our community who is willing to meet with you one on one to answer any questions you may have about AMC.  Yes No  Maybe Later

   Send

**Categories:** 253 For AMC, AMC Events, Archived

**Tags:** 253 For AMC, AMC Events

---

### [Valerie Pepe’s AMC Music Festival](https://amcsupport.org/valerie-pepes-amc-music-festival/)

**Published:** January 13, 2024
**Author:** Ted Houser

**Content:**

## Valerie Pepe’s AMC Music Festival 2023

## Staten Island, NYC

 ![](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI_ValsMusicFestival-2.jpg) 

### Valerie Pepe’s AMC Music Festival 2023

Another successful AMC Music Festival is in the books.

It was a picture-perfect day, with four amazing bands and a fantastic group of attendees to support people afflicted with Arthrogryposis Multiplex Congenita—great job to all the volunteers.To donate to this amazing Music Festival, please use the form below or click no the Donate Today Button

\#ValeriePepeMusicFestival #MusicFestival #Music #Festival #AMCwarrior #AMCawareness #AMCstrong #AMCSI #Inspiration #Advocacy #Dedication #CommunityHeroes #Inclusion #Acceptance #Advocate

 [ ](https://amcsupport.org/wp-content/uploads/2024/01/115.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/069.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/090.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/131.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/113.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/059.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/093.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/049.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/078.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/054.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/173.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/065.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/057.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/060.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/053.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/056.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/118.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/067.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/051.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/123.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/160.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/083.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/162.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/146.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/145.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/135.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/122.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/119.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/062.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/159.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/187.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/170.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/208.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/089.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/190.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/159-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/048.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/151.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/117.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/050.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/074.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/141.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/058.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/158.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/125.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/080.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/163.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/205.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/130.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/161.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/077.jpg)

**Categories:** AMC Events, Archived, Arthrogryposis

**Tags:** AMC Events, Valerie Pepe’s AMC Music Festival

---

### [18th Annual AMCSI Conference Photo Gallery](https://amcsupport.org/18th-annual-amcsi-conference-photo-gallery/)

**Published:** January 20, 2024
**Author:** Ted Houser

**Content:**

## 18th Annual AMCSI Conference Photo Gallery

July 3-5, 2023
Columbus, Ohio

#### Thank you to all that attended!

 [  View Previous Event Site  ](https://www.shop.amcsupport.org/conference-2023) 

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](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Sat-80.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Sat-269.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Sat-173.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Fri-66.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Sat-253.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Fri-68.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Sat-310.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Sat-135.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Sat-60.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Sat-342.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Sat-345.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Sat-136.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Fri-76.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Fri-25.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Sat-334.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Sat-284.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Fri-127.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Fri-118.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Sat-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Sat-5.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Sat-107.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Sat-88.jpg) 

 [  View Previous Event Site  ](https://www.shop.amcsupport.org/conference-2023)

**Categories:** 20th Annual AMCSI Conference, AMC Events, Archived

**Tags:** Past Conference, Photo Gallery, Previous Conference

---

### [Auction Items](https://amcsupport.org/auction-items/)

**Published:** January 21, 2024
**Author:** Ted Houser

**Content:**

![](https://amcsupport.org/wp-content/uploads/2024/01/2024-silent-auction.jpg) 

#### 2024 AMC Conference Auction Items

We are looking for donated items for the Silent Auction at the Arthrogryposis Multiplex Congenita Support Inc. 19th Annual Conference. This is a great way to support the event even if you are not able to attend.

- Restaurant Gift Cards *(Starbucks, ChickFilA, Outback, Red Lobster etc.)*
- Homemade items *(crocheted blanket, quilts, candles, etc)*
- Movie Theater Tickets
- Tools for Dad *(Snap on, Milwaukee Tools)* Gift Card to Home Depot/Lowes
- Small Business Owners : Donate gift card to online shop or product Custom Art or Craft piece Custom Tshirts/other apparel
- Signed memorabilia from celebrity, musician, athlete
- Themed gift basket
    - Movie Night – Popcorn, Movie Tickets, Candy BBQ essentials – BBQ Tools, apron, sauce
    - Spa Basket – Eye/Face Masks, Towel/Robe, Nail Polish, Fuzzy Slippers
    - Man Cave Basket – Metal or Neon Signs, posters, comics
- Gift card for Fuel (BP, ExxonMobil, Sunoco, etc)
- Gift a staycation – (2 night stay at a bed & breakfast)
- Donate Experience Activities (theme park tickets, sports event, concert)
- Proud of your state get items found only in your state and make a state gift basket
- Donate Airline Tickets or Miles
- Donate unused gift cards.
- Donate Toys, Legos, Barbie If you are attending the conference in Atlanta, please feel free to bring the donated item with you.

If you will not be attending the event, please message [info@amcsupport.org]() for the address to send items to.

**Categories:** AMC Events, AMCSI Annual Conference, Archived

**Tags:** 19th Annual AMCSI Conference, AMC Events, Auction Items

---

### [Conference Volunteers](https://amcsupport.org/conference-volunteers/)

**Published:** February 10, 2024
**Author:** Ted Houser

**Content:**

### Conference Volunteer Registration

Select which day you would like to Volunteer for Conference.

## [Wednesday](https://amcsupport.org/conference-volunteers/#wednesday)

## [Thursday](https://amcsupport.org/conference-volunteers/#thursday)

## [Friday](https://amcsupport.org/conference-volunteers/#friday)

## [Saturday](https://amcsupport.org/conference-volunteers/#saturday)

##### All (required) (\*) documents must be sent to info@amcsupport.org

Your application will not be processed until all required items are received.

Please do not email to check on the status of your application. We will reach out you if further information is needed.

##### Thank you for your interest in helping us make a difference.

### Wednesday Conference Volunteer Form

     ## **Please check all that apply & fill in your information below.**

---

#### 07/03/2024 (Wed. 4:00PM - 5:00PM)

 **Security** *(2 needed)*
Adult - Male or Female

 **Registration Help** *(T-shirt distribution, 2 needed)*
Adults only

 **Welcome Table** *(1 needed)*
Adults Only - Extroverts Wanted! Assist in answering fundamental questions about the conference

---

#### 07/03/2024 (Wed. 5:00PM - 6:00PM)

 **Security** *(2 needed)*
Adult - Male or Female

 **Registration Help** *(T-shirt distribution, 2 needed)*
Adults only

 **Welcome Table** *(1 needed)*
Adults Only - Extroverts Wanted! Assist in answering fundamental questions about the conference

---

#### 07/03/2024 (Wed. 6:00PM - 7:00PM)

 **Security** *(2 needed)*
Adult - Male or Female

 **Registration Help** *(T-shirt distribution, 2 needed)*
Adults only

 **Welcome Table** *(1 needed)*
Adults Only - Extroverts Wanted! Assist in answering fundamental questions about the conference

  Name   

  Email   

  Phone   

   Send   

### Thursday Conference Volunteer Form

     ## **Please check all that apply & fill in your information below.**

---

#### 07/04/2024 (Thurs. 8:00AM - 9:00am)

 **Children's Programming** *(4 needed)*
Early am team to help set up the materials for the day

---

#### 07/04/2024 (Thurs. 9:00AM - 10:00am)

 **Security** *(2 needed)*
Adult - Male or Female

 **Registration Help** *(T-shirt distribution, 2 needed)*
Adults only

 **Welcome Table** *(1 needed)*
Adults Only - Extroverts Wanted! Assist in answering fundamental questions about the conference

---

#### 07/04/2024 (Thurs. 10:00AM - 11:00am)

 **Security** *(2 needed)*
Adult - Male or Female

 **Door Checks** *(badge validations, 4 needed)*
Sit in session doors and check name badges of participants for admittance

---

#### 07/04/2024 (Thurs. 11:00AM - 12:00pm)

 **Security** *(2 needed)*
Adult - Male or Female

 **Door Checks** *(badge validations, 7 needed)*
Sit in session doors and check name badges of participants for admittance

 **Welcome Table** *(1 needed)*
Adults Only - Extroverts Wanted! Assist in answering fundamental questions about the conference

---

#### 07/04/2024 (Thurs. 2:00PM - 3:00pm)

 **Security** *(2 needed)*
Adult - Male or Female

 **Door Checks** *(badge validations, 7 needed)*
Sit in session doors and check name badges of participants for admittance

 **Children's Programming** *(3 needed)*
2:45pm - 3:00pm only to flip the room and set up - Make it Take it

 **Welcome Table** *(1 needed)*
Adults Only - Extroverts Wanted! Assist in answering fundamental questions about the conference

---

#### 07/04/2024 (Thurs. 3:00PM - 4:00pm)

 **Security** *(2 needed)*
Adult - Male or Female

 **Door Checks** *(badge validations, 7 needed)*
Sit in session doors and check name badges of participants for admittance

 **Welcome Table** *(1 needed)*
Adults Only - Extroverts Wanted! Assist in answering fundamental questions about the conference

---

#### 07/04/2024 (Thurs. 4:00PM - 5:00pm)

 **Children's Programming** *(3 needed)*
5:00pm - 5:15pm only - clean up team - Make It - Take It

 **Security** *(2 needed)*
Adult - Male or Female

 **Door Checks** *(badge validations, 7 needed)*
Sit in session doors and check name badges of participants for admittance

 **Welcome Table** *(1 needed)*
Adults Only - Extroverts Wanted! Assist in answering fundamental questions about the conference

---

  Name   

  Email   

  Phone   

   Send   

### Friday Conference Volunteer Form

     ## **Please check all that apply & fill in your information below.**

---

#### 07/05/2024 (Fri. 8:00AM - 9:00am)

 **Children's Programming** *(4 needed)*
Early am team to help set up the materials for the day

---

#### 07/05/2024 (Fri. 9:00AM - 10:00am)

 **Security** *(2 needed)*
Adult - Male or Female

 **Door Checks** *(badge validations, 7 needed)*
Sit in session doors and check name badges of participants for admittance

 **Welcome Table** *(1 needed)*
Adults Only - Extroverts Wanted! Assist in answering fundamental questions about the conference

---

#### 07/05/2024 (Fri. 10:00AM - 11:00am)

 **Security** *(2 needed)*
Adult - Male or Female

 **Door Checks** *(badge validations, 7 needed)*
Sit in session doors and check name badges of participants for admittance

 **Welcome Table** *(1 needed)*
Adults Only - Extroverts Wanted! Assist in answering fundamental questions about the conference

---

#### 07/05/2024 (Fri. 11:00AM - 12:00pm)

 **Children's Programming** *(4 needed)*
1:45pm - 2:00pm only set up team - Under the Sea with Paley PTs

 **Security** *(2 needed)*
Adult - Male or Female

 **Door Checks** *(badge validations, 7 needed)*
Sit in session doors and check name badges of participants for admittance

---

#### 07/05/2024 (Fri. 2:00PM - 3:00pm)

 **Children's Programming** *(4 needed)*
2:45pm - 3:00pm only - flip the room and set up - WildLife Encounter

 **Security** *(2 needed)*
Adult - Male or Female

 **Door Checks** *(badge validations, 7 needed)*
Sit in session doors and check name badges of participants for admittance

---

#### 07/05/2024 (Fri. 3:00PM - 4:00pm)

 **Security** *(2 needed)*
Adult - Male or Female

 **Door Checks** *(badge validations, 7 needed)*
Sit in session doors and check name badges of participants for admittance

 **Children's Programming** *(4 needed)*
3:45pm - 4:00pm only - flip the room - Make a New Friend Game Time

---

#### 07/05/2024 (Fri. 4:00PM - 5:00pm)

 **Security** *(2 needed)*
Adult - Male or Female

 **Door Checks** *(badge validations, 7 needed)*
Sit in session doors and check name badges of participants for admittance

 **Children's Programming** *(3 needed)*
Dress to Impress - assist with hair and makeup before PROM!!

 **Children's Programming** *(2 needed)*
VIP care needed - 1 or 2 volunteers needed to hang out with the coolest kids around while their parents help everyone get ready for prom \*\*\*this position requires that you pass a background check! 

---

#### 07/05/2024 (Fri. 5:00PM - 6:00pm)

 **Set up for Prom** *(9 needed)*
Help decorate ballroom for prom

---

#### 07/05/2024 (Fri. 7:00PM - 8:00pm)

 **Security** *(2 needed)*
Adult - Male or Female

 **Door Checks** *(badge validations, 3 needed)*
Sit in session doors and check name badges of participants for admittance

---

#### 07/05/2024 (Fri. 8:00PM - 9:00pm)

 **Security** *(2 needed)*
Adult - Male or Female

 **Door Checks** *(badge validations, 3 needed)*
Sit in session doors and check name badges of participants for admittance

---

#### 07/05/2024 (Fri. 9:00PM - 11:00pm)

 **Late Night Painting Party!** *(10 needed)*
Help lay plastic for painting in the morning. Pre-teens must be accompanied by parent or responsible adult

---

  Name   

  Email   

  Phone   

   Send   

### Saturday Conference Volunteer Form

     ## **Please check all that apply & fill in your information below.**

---

#### 07/06/2024 (Sat. 8:00AM - 9:00am)

 **Security** *(2 needed)*
Adult - Male or Female

 **Painting Set-up** *(8 needed)*

---

#### 07/06/2024 (Sat. 9:00AM - 10:00am)

 **Security** *(2 needed)*
Adult - Male or Female

---

#### 07/06/2024 (Sat. 10:00AM - 11:00am)

 **Security** *(2 needed)*
Adult - Male or Female

---

#### 07/06/2024 (Sat. 11:00AM - 12:00pm)

 **Security** *(2 needed)*
Adult - Male or Female

 **Painting with Theresa** *(2 needed)*
Help with checking feet/tires/etc for paint at the exit doors

---

#### 07/06/2024 (Sat. 2:00PM - 3:00pm)

 **Security** *(2 needed)*
Adult - Male or Female

 **Door Checks** *(badge validations, 4 needed)*
Sit in session doors and check name badges of participants for admittance

---

  Name   

  Email   

  Phone   

   Send

**Categories:** AMC Events, AMCSI Annual Conference, Archived

**Tags:** 19th Annual AMCSI Conference, 19th Annual Conference, AMC Events, AMCSI Annual Conference

---

### [Nemours Children's Hospital Mini Meetup](https://amcsupport.org/nemours-childrens-hospital-mini-meetup/)

**Published:** March 21, 2024
**Author:** Ted Houser

**Content:**

#### Nemours Children's Hospital Mini-Meetup

## March 9, 2024

### Nemours Children’s Hospital Mini-Meetup
March 9, 2024

A great day at Nemours for Dr. Maureen Donohue’s AMC Mini-Meetup was enjoyed by all. Thank you to everyone who came out for the amc meet up.

**Your support makes these mini-meetups possible!**

The event shot by AMCSI & Bob Wellmon.

To view Bob’s full photo gallery recap, please visit:
[**https://www.bobwellmon.com/Other/AMCSI/AMCSI-Meet-Up-2024**](https://www.bobwellmon.com/Other/AMCSI/AMCSI-Meet-Up-2024)

 [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-74.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-10.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-18.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-51.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-82.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-57.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-69.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-81.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-9.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-52.jpg) [ 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](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-86.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-50.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-47.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-59.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-53.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-44.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-41.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-60.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-42.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-33.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-17.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-4.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-7.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-70.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-14.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-90.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-30.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-26.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-32.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-6.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-79.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-83.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-15.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-28.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-13.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-75.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-68.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-67.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-55.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-72.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-87.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-35.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-20.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-77.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-88.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-11.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-73.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/03/AMC-Mini-Meet-up-2024-Nemours-Bob-23.jpg)

**Categories:** AMC Events, Archived

**Tags:** Alfred I. duPont Institute Hospital, AMC Events, AMC Mini Meetup, Deleware, Mini Meetup, Nemours, Wilmington

---

### [Greenville, SC Mini Meetup - Playground Shelter](https://amcsupport.org/greenville-sc-mini-meetup-playground-shelter-wrapup/)

**Published:** April 7, 2024
**Author:** Ted Houser

**Content:**

#### Greenville Mini Meetup 
Playground Shelter

## Greenville, South Carolina April 6, 2024

### Greenville Mini Meetup 
Playground Shelter, April 6, 2024

A great day in Greenville, South Carolina, at the Playground Shelter. AMC families joined together for support, great conversations, pizza, and fun! It was great seeing our friends join us for this mini-meetup! We can’t wait to see you all again!

**Your support makes these mini-meetups possible!**

 [ ](https://amcsupport.org/wp-content/uploads/2024/04/Greenville-SC-MiniMeetup-April-6-2024-12.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/04/Greenville-SC-MiniMeetup-April-6-2024-15.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/04/Greenville-SC-MiniMeetup-April-6-2024-20.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/04/Greenville-SC-MiniMeetup-April-6-2024-8.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/04/Greenville-SC-MiniMeetup-April-6-2024-10.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/04/Greenville-SC-MiniMeetup-April-6-2024-5.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/04/Greenville-SC-MiniMeetup-April-6-2024-13.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/04/Greenville-SC-MiniMeetup-April-6-2024-17.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/04/Greenville-SC-MiniMeetup-April-6-2024-7.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/04/Greenville-SC-MiniMeetup-April-6-2024-9.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/04/Greenville-SC-MiniMeetup-April-6-2024-6.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/04/Greenville-SC-MiniMeetup-April-6-2024-16.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/04/Greenville-SC-MiniMeetup-April-6-2024-18.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/04/Greenville-SC-MiniMeetup-April-6-2024-14.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/04/Greenville-SC-MiniMeetup-April-6-2024-4.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/04/Greenville-SC-MiniMeetup-April-6-2024-19.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/04/Greenville-SC-MiniMeetup-April-6-2024-3.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/04/Greenville-SC-MiniMeetup-April-6-2024-11.jpg)

**Categories:** Archived, Arthrogryposis

**Tags:** AMCawareness, Greenville, GreenvilleSC, Mini Meetup, Playground Shelter, South Carolina

---

### [AMC & Me Speakers](https://amcsupport.org/amc-me-speakers/)

**Published:** April 10, 2024
**Author:** Ted Houser

**Content:**

## Speakers

**Dr. Harold van Bosse**
[www.hvanbossemd.com/](https://www.hvanbossemd.com/)

**Dr. Lindley Wall**
[Physicians.wustl.edu/people/lindley-b-wall-md-msc/](https://physicians.wustl.edu/people/lindley-b-wall-md-msc/)

**Ani Samargian**
[AMCsupport.org](https://amcsupport.org/) founder and superstar AMC mom

**David Solano**
Inspirational speaker and coach AMCer
[Solanosnolimithoops.wixsite.com/mysite](https://solanosnolimithoops.wixsite.com/mysite)

**Aimee Wehmeier**
Paraquad
Local advocates & community leaders
[Paraquad.org/…/guest-column-st-louis-business](https://paraquad.org/blog/guest-column-st-louis-business-journal-march-30-2023)

*More will be announced soon!*

---

 *Lunch for everyone and crafts for kids*

#### **Register here:** [**https://forms.gle/3x5pFVshnNGeAbDz6**](https://forms.gle/3x5pFVshnNGeAbDz6)

**Categories:** AMC & Me, AMC Events, Archived

**Tags:** AMC & Me, Speakers

---

### [AMC & Me Sponsors](https://amcsupport.org/amc-me-sponsors/)

**Published:** April 11, 2024
**Author:** Ted Houser

**Content:**

### AMC & Me Sponsorship

Arthrogryposis Multiplex Congenita (AMC) affects 1 in 3,000 births. Kids affected are born with deformities in various joints because of tight tendons and low muscle tone. 20-30% of those will face severe central nervous system dysfunction. Most affected have mobility impairments and utilize PT, OT, and/or surgeries to help with mobility.

AMC & Me is a community event drawing together families, runners and walkers from St. Louis and neighboring counties for this important cause.
These events wouldn’t happen if not for generous sponsors like you. We donate all the
money raised, above the cost of the event, to the not-for-profit organization;
Arthrogryposis Multiplex Congenita Support Inc.

### **We are organizing 2 local events:**

**1.** A free Arthrogryposis Family Conference here in St Louis, MO where families and children affected can attend to meet with doctors in St Louis and learn from experts who specialize in the condition. In addition to community leaders from Paraquad.

**2.** A fundraiser run/roll/walk in Tilles park in Ladue to raise funds for families affected by AMC.

---

### Here is how you can help:

**1.** Sponsor our events: make a donation that will go a long way in helping families with disabilities. Your logo will be printed on the event T Shirts and added to the AMC & Me website.
 **Platinum Sponsorship – $1,000**
• Company name/logo website placement• Gold – $500
• Bold company name on tshirt
• Company noted as Platinum Sponsor

**Gold Sponsorship – $500** • Bold company name on tshirt
• Company noted as Gold Sponsor

**Silver Sponsorship – $250** • Company name on tshirt
• Company noted as Gold Sponsor
 **Bronze Sponsorship – $100** • Company name on tshirt

**2.** Sponsor food, kids activities or items for the silent auction. In the form below tell us which items you are donating.

**3.** Take part in the Run/Walk on May 26th at Tilles park in Ladue. Get a team together and run for a wonderful cause. Meet local families affected by Arthrogryposis.
[**https://givebutter.com/AMCandMe**](https://givebutter.com/AMCandMe)

Can you please help us get the word out to the right department in your organization?
Thank you for your support!

### Fill out the form below to get involved today!

       Name   

  Email   

  Address   

  Address 2   

  City   

  State   

  Zip   

  Cell Phone   

  Phone   

  Contact Name   

  Email   

  1. PLEASE CHECK THE LEVEL OF SPONSORSHIP:  Platinum Sponsor - $1,000 Gold Sponsor - $500 Silver Sponsor - $250 Bronze Sponsor - $100

  Please send a logo file to ted@amcsupport.org. Preferrably a true vector (eps) file or a large transparent background version of you logo, so we can then get you post on our socials as Sponsoring the Conference.   

  2. Please tell us which items you are donating for the silent auction:   

 **Once you hit submit, the AMC & Me Donation page will open and you can hit 'Donate Today' to submit your sponsorship payment.**

 *If you are only donating items for the silent auction then you can close that tab.* 

   Send

**Categories:** AMC & Me, AMC Events, Archived

**Tags:** AMC & Me, Sponsors

---

### [AMC & Me](https://amcsupport.org/amc-and-me/)

**Published:** March 28, 2024
**Author:** Ted Houser

**Excerpt:** Run, Walk or Roll For Arthrogryposis Awareness

**Content:**

# **THANK YOU TO ALL THAT DONATED!**

All of the donations go directly to AMCSI to help those with AMC!

---

## **Discover the AMC & Me Event!**

Join us in raising awareness for Arthrogryposis Multiplex Congenita (AMC) on May 26th at Tilles Park in Ladue. AMC is characterized by multiple joint contractures present at birth, affecting approximately 1 in 3000 births. While it’s not a disease but a condition, it’s crucial to understand its impact, especially as 20-30% of those affected face a lethal genetic type or severe central nervous system dysfunction.

Though there’s currently no cure for AMC, early diagnosis opens doors to better treatments, including surgery, casting, therapy, and external fixators. At [**AMCsupport.org**](https://amcsupport.org/ "AMCSI Website"), we provide support and resources to our AMC community.

**📅 Save the Dates: May 25th – 26th**

You can meet AMC families, make new friends, and enjoy a wonderful day of solidarity. Let’s unite to raise awareness and support for those affected by AMC.

For more information, please contact Ana van Bosse at: ****

**DAY 1 – May 25th
9:00 am – 2:00 pm –** Meet & Greet, Workshops, Lunch, Workshops
3437 Caroline Mall. St Louis, MO 63104
*(SLU Allied Health Professions Building-Multi Purpose Room)*

Lunch at 12:00 pm

Meet & Greet AMC families around Missouri & the Midwest.
**• AMC Doctor Speakers:** Harold van Bosse & Lindley Wall.
**• Inspirational Speaker & Coach AMCer:** David Solano from Denver
**• Local Advocates & Community Leaders:** Aimee Wehmeier – Paraquad

Ani Samargian – AMCsupport.org founder & AMC mom – SC
Lunch for everyone & crafts for kids

---

**Day 2 – May 26th 10:00 am – 1:00 pm –** Run, Walk & Roll Fundraiser
Tilles Park in Ladue – Green Pavilion
(*Run, Walk & Roll begins at 10:00 am)*

Lunch at 12:00 pm

**Tilles Park – Green Pavilion**
9551 Litzsinger Rd
St Louis, MO 6312

 ![Tilles-Park-in-Ladue-St-Louis-2](https://amcsupport.org/wp-content/uploads/2024/03/Tilles-Park-in-Ladue-St-Louis-2.jpg) 

 [  🤍 Join/Create A Team 🤍  ](https://givebutter.com/AMCandMe) 

 [  🤍 Register Online For The 2-Day Event 🤍  ](https://docs.google.com/forms/d/e/1FAIpQLSfpdhZcSJ_CNDhN2vus3Je7B9g-WcHbvTHLHmpSnN1DBU9-AA/viewform) 

### OR DONATE DIRECTLY BELOW!

### We wanna hear from you!

What does AMC & Me mean to you? You can take a short video from your phone and email it directly to us & we will post your video on this page.

### Email us today at:

**Categories:** AMC & Me, Archived

**Tags:** AMC & Me, AMC Events, Arthrogryposis Awareness, Roll, Run

---

### [AMC & Me - Grants](https://amcsupport.org/amc-me-grants/)

**Published:** March 28, 2024
**Author:** Ted Houser

**Content:**

## AMCSI Grants

 ###  [ Accessibility Grant ](https://amcsupport.org/accessibility-grant/) 

Accessibility Grant Arthrogryposis Multiplex Congenita Support Inc. (AMCSI) offers an accessibility grant to individuals who meet the eligibility requirement. Any tool that helps a person with AMC achieve independence. Examples include ramps, lifts, grab bars, bidets, handrails, lowered cooktops, curved utensils, feeding devices, sock aides, dressing sticks, or technology that makes writing or speaking easier. Arthrogryposis Multiplex Congenita Support Inc. (AMCSI) offers an accessibility grant to individuals who meet the eligibility requirements. Please note grant guidelines are subject to change. Eligibility requirements for the Accessibility Grant: Assistance is awarded to individuals with the diagnosis of arthrogryposis or to the direct (parent

 [ Read More » ](https://amcsupport.org/accessibility-grant/) 

  ###  [ Adoption Grant ](https://amcsupport.org/adoption-grant/) 

About the AMCSI Adoption Grant The AMCSI Adoption Grant supports families adopting a child diagnosed with Arthrogryposis Multiplex Congenita (AMC). Please review the following eligibility requirements and important details before applying: A completed home study is required at the time of application. The child must have a diagnosis of AMC, confirmed through medical documentation or your adoption agency. The adoption is expected to finalize within 12 months of the application date. Grant awards range from $500 to $2,500, determined by available funds, demonstrated financial need, and unanimous approval from the AMCSI Adoption Committee during its monthly review. Funds are distributed once the

 [ Read More » ](https://amcsupport.org/adoption-grant/) 

   [![AMC Holiday Fund Logo](https://amcsupport.org/wp-content/uploads/2024/11/AMC-Holiday-fund-Logo-white-outline-300x143.png)](https://amcsupport.org/amc-holiday-fund/)###  [ AMC Holiday Fund ](https://amcsupport.org/amc-holiday-fund/) 

Every year, we want to express our heartfelt appreciation & #Love for the incredible support we’ve received from our AMC Community, Organizations, Hospitals, & Fundraisers. We’re excited to continue the AMC Holiday Fund in 2026, a fundraiser that aims to bring joy & relief to AMC families nationwide during the holiday season. Our mission is simple: help AMC families enjoy the holidays without the burden of expenses. Many AMC families face overwhelming challenges, including medical expenses & hospital visits. Your support can make their holiday season one to remember & every contribution brings us closer to achieving this goal. Your donations

 [ Read More » ](https://amcsupport.org/amc-holiday-fund/) 

   [![AMC Holiday Fund Logo](https://amcsupport.org/wp-content/uploads/2024/11/AMC-Holiday-fund-Logo-300x143.png)](https://amcsupport.org/amc-holiday-fund-2025/)###  [ AMC Holiday Fund 2025 ](https://amcsupport.org/amc-holiday-fund-2025/) 

Every year, we want to express our heartfelt appreciation & #Love for the incredible support we’ve received from our AMC Community, Organizations, Hospitals, & Fundraisers.

We’re excited to continue the AMC Holiday Fund in 2025! A fundraiser that aims to bring joy & relief to AMC families nationwide during the holiday season.

Our mission is simple: help AMC families enjoy the holidays without the burden of expenses. Many AMC families face overwhelming challenges, including medical expenses & hospital visits. Your support can make their holiday season one to remember & every contribution brings us closer to achieving this goal.

Your donations will go directly to support various AMC families within our community.

As a token of our appreciation, every donation of $200 or more will receive a free June 30th T-shirt!

Let’s come together & make this holiday season magical for AMC families. Your generosity can bring smiles, warmth, & happiness to those who need it most.

 [ Read More » ](https://amcsupport.org/amc-holiday-fund-2025/) 

  ###  [ AMC Holiday Grant 2023 ](https://amcsupport.org/amc-holiday-grant-2023/) 

2023 AMC Holiday Grant “I want to say Thank you so much to AMCSI for helping our family out this holiday season. 2023 has been a roller coaster of a year, and our family has experienced so much financial hardship, Ending the year with losing most of our belongings with our house flooding, and If that wasn’t enough, Our AMCer Jhay breaking his leg in December in a wheelchair accident, Causing a lot of missed work for me as a single Mom right around the holiday season. I am grateful to AMCSI for sponsoring our family for the holiday fund. The

 [ Read More » ](https://amcsupport.org/amc-holiday-grant-2023/) 

  ###  [ Bereavement Grant ](https://amcsupport.org/bereavement-grant/) 

Bereavement Grant AMCSI’s bereavement grant is available to any immediate family member of an AMCer who has passed away. AMCSI will provide one grant of $500 for funeral expenses to the surviving spouse, parent/guardian or children of an individual with a confirmed medical diagnosis of arthrogryposis multiplex congenita. These funds may be used to assist the family with any funeral expenses. AMCSI’s Bereavement Fund is open to all members and nonmembers of AMCSI. There is no age limit for the AMCer. Funds must be dispersed to immediate family members only. Immediate family members are defined as spouse, parent/guardian or children. The

 [ Read More » ](https://amcsupport.org/bereavement-grant/) 

  ###  [ Grants ](https://amcsupport.org/grants/) 

AMCSI Grants Accessibility Grant Accessibility Grant Arthrogryposis Multiplex Congenita Support Inc. (AMCSI) offers an accessibility grant to individuals who meet the eligibility requirement. Any tool that helps a person with AMC. Read More AdoptionGrant The AMCSI Adoption Grant is designed to support families in the process of adopting a child diagnosed with Arthrogryposis Multiplex Congenita (AMC). Read More AMC Holiday Grant “I want to say Thank you so much to AMCSI for helping our family out this holiday season. 2023 has been a roller coaster of a year, and our family has experienced so much financial hardship…” Read More Bereavement Grant

 [ Read More » ](https://amcsupport.org/grants/)

**Categories:** AMC & Me, AMC Events, Archived

**Tags:** AMC & Me

---

### [AMC & Me - Join/Create A Team](https://amcsupport.org/amc-me-join-create-a-team/)

**Published:** March 28, 2024
**Author:** Ted Houser

**Content:**

# Steps To Join/Create A Team

We invite you to reate awareness about Arthrogryposis & fundraise to benefit AMCSI

### To Create/Join A Team:

Please click on this link [**AMC & Me**](https://givebutter.com/AMCandMe) and follow the steps below:

### **STEP 1**
Click on Create/Join A Team

 ![AMC-and-Me-Step1 to create or join a team](https://amcsupport.org/wp-content/uploads/2024/03/AMC-and-Me-Step1-scaled.jpg) 

### **STEP 2** Add Your Info & Click Sign Up

 ![AMC-and-Me-Step2 to create or join a team](https://amcsupport.org/wp-content/uploads/2024/03/AMC-and-Me-Step2.jpg) 

### **STEP 3** Choose a Team OR Create Your Own

 ![AMC-and-Me-Step3 to create or join a team](https://amcsupport.org/wp-content/uploads/2024/03/AMC-and-Me-Step3.jpg) 

### OR DONATE DIRECTLY BELOW!

**Categories:** AMC & Me, AMC Events, Archived

**Tags:** AMC & Me, Join or Create A Team

---

### [4th International Symposium On Arthrogryposis](https://amcsupport.org/4th-international-symposium-on-arthrogryposis/)

**Published:** April 17, 2024
**Author:** Ted Houser

**Content:**

[ ![The 4th International Symposium For Arthrogryposis](https://amcsupport.org/wp-content/uploads/2024/04/4th_ISOA_english_promo_1080-1024x665.png) ](https://event.fourwaves.com/amcinternationalsymposium/pages) 

##### View the photo gallery of the event at: 
[**4th International Symposium On Arthrogryposis Photo Gallery**](https://link.shutterfly.com/77alDpzCDNb)

## **4th Symposium On Arthrogryposis**

#### From the womb to adulthood

We are excited to announce several workshops *(under development)* to be held on Saturday, September 28, and Monday, September 30,at the [Omni Hotels & Resorts](https://www.omnihotels.com/hotels/montreal-mont-royal/meetings/4th-international-symposium-on-arthrogryposis-09282024) in Montreal, Canada!

### By experts in the following fields:

**– Early Detection:** “Prenatal detection of arthrogryposis multiplex congenita *(AMC)*, challenges and opportunities”
**– Genetics:** “Why is it important to get a precise diagnosis of AMC *(after birth)*?”
**– Rehabilitation:** “Rehabilitation in a lifetime continuum – the 5 W´s for AMC.”
**– Rehabilitation and Pain:** “Pediatric Pain & Function in Arthrogryposis: Prevalence, Principles, and Plans of Care”
**– Orthopedics:** “Surgical reconstruction techniques of the upper limbs”
**– Orthopedics:** “Surgical approaches for a functional and cosmetic foot in AMC: Dream or reality?”
**– AMC Support Group:** “Coming together from all corners of the world”

##### To learn more & register, please visit: 
[**https://event.fourwaves.com/amcinternationalsymposium/pages**](https://event.fourwaves.com/amcinternationalsymposium/pages)

We are working on obtaining CME credits with McGill University and endorsement for this event by the major orthopedic and rehabilitation societies.

Thank you for sharing the call for abstracts with your colleagues, students, and networks.

**Don’t hesitate to share your suggestions or questions with us at **

Looking forward to hearing back from you,

**Noémi & Reggie**
*Event co-chairs & Organizing Committee*

**Categories:** 4th International Symposium For Arthrogryposis, AMC Events, Archived

**Tags:** 4th Symposium For Arthrogryposis, AMC Events

---

### [253 MILES - 1 MISSION](https://amcsupport.org/253foramc2024/)

**Published:** April 26, 2024
**Author:** Ted Houser

**Content:**

![](https://amcsupport.org/wp-content/uploads/2024/09/Marshall-2024-SharynPeaveyPhoto-S83_8299-1024x683.jpg) 

### 253 for AMC

Marshall Johnson was born with a rare condition called Arthrogryposis Mutiplex Congenita (AMC). Sport and movement has always been Marshall’s therapy: physically, mentally, spiritually. In 2022 he rode his bike 253 miles from Burlington, Vermont to Portland, ME, creating awareness and raising funds along the way. Now an annual bike ride coupled with a disability awareness and inclusion party on the final day of the ride, “253 for AMC” recognizes our differences … and celebrates them!

Our team’s goal is to raise $10,000. Every dollar raised goes to AMCSI, a 501 (c)(3) serving as one of the leading centers of support globally for those impacted by Arthrogryposis. On behalf of the entire organization, we thank you for your generosity from the bottom of our hearts. Your support makes [**our work**](https://amcsupport.org/) possible.

 ![Marshall Johnson baby photo in pj's smiling at the camera.](https://amcsupport.org/wp-content/uploads/2024/04/Marshall-Johnson-baby-rev.jpg) 

 ![Marshall Johnson and Ted Houser 253 For AMC in Portland, Maine 2023](https://amcsupport.org/wp-content/uploads/2024/04/Marshall-Johnson-Ted-Houser-253-For-AMC.jpg) 

 ![Marshall Johnson adult photo riding a bicycle.](https://amcsupport.org/wp-content/uploads/2024/04/Marshall-Johnson-adult.jpg) 

**[CLICK HERE](https://www.shop.amcsupport.org/store/p/253-for-amc-t-shirt-preorder)** to order the #iAMCapable Tshirts!

#### This year, the 253 for AMC team will ride all 253 miles in Maine from September 19th to 21st.

We will celebrate the ride & continue spreading AMC awareness on Sunday, September 22nd, with the #iAMCapacle Disability Inclusion & Awareness Party at Après in Portland, Maine.

Mark your calendar & stay tuned for exciting announcements, including the bike route and party details!

Please share this with everyone. The funds make a huge impact helping others with Arthrogryposis, but the awareness goes the extra mile!

### Tentative Bicycle Routes

*(Everything is subject to change.)*

### DAY ONE
**116 MILES**

 ![Marshall Johnson's Bicycle Routes for 253 MILES – 1 MISSION 2025.](https://amcsupport.org/wp-content/uploads/2024/09/1-253MILES_1MISSION_DAY-ONE-116-MILES-473x1024.jpeg) 

### DAY TWO
**114 MILES**

 ![Marshall Johnson's Bicycle Routes for 253 MILES – 1 MISSION 2025.](https://amcsupport.org/wp-content/uploads/2024/09/2-253MILES_1MISSION_DAY-TWO-114-MILES-473x1024.jpeg) 

### DAY THREE
**28 MILES**

 ![Marshall Johnson's Bicycle Routes for 253 MILES – 1 MISSION 2025.](https://amcsupport.org/wp-content/uploads/2024/09/3-253MILES_1MISSION_DAY-THREE-28-MILES-473x1024.jpeg) 

### TO DONATE USE THE FORM BELOW!

To credit a Team Member simply select them below.

### If you are riding or fundraising with us, create a page with the button below.

By creating a page you can upload your photo, story, etc. so your network can credit their donation to you. If you’re just donating, do so above.

 [  🤍 View/Create A Page 🤍  ](https://givebutter.com/253miles-1-MISSION) 

**To learn how to ‘Create A Page’ please watch this 35 second video.**

Please consider passing this URL along and encouraging others to do the same. In doing so, [**AMCSI’s website and resources** ](https://amcsupport.org/)just might reach someone in need!

**Categories:** 253 Miles - 1 Mission, AMC Events, Archived

**Tags:** 1 MISSION, 253 For AMC, 253 MILES, AMC Events

---

### [Hyatt Regency Atlanta - Know Before You Go](https://amcsupport.org/hyatt-regency-atlanta-know-before-you-go/)

**Published:** June 28, 2024
**Author:** Ted Houser

**Content:**

## Please download the Hyatt Regency's Information PDF Below

### [**Know Before You Go!**](https://amcsupport.org/wp-content/uploads/2024/06/Hyatt_Regency_Atlanta_Know_Before_You_Go.pdf)

Safe travels! We cannot wait to see everyone in Atlanta!

**Categories:** 19th FAQs, AMCSI Annual Conference, Archived

**Tags:** 19th Annual AMCSI Conference, Hotel, Hyatt Regency Atlanta

---

### [Past Conference Photo Galleries](https://amcsupport.org/past-conferences/)

**Published:** July 11, 2024
**Author:** Ted Houser

**Content:**

# Past Conference photos & more!

## 21st Annual AMCSI Conference

July 1-4, 2026
Columbus Ohio

#### Thank you to all that attended!

 [  Bob's Photo Gallery  ](https://www.bobwellmon.com/Other/AMCSI/AMCSI-Annual-Conference-2026) 

 [  Conference Site  ](https://amcsupport.org/21st-annual-amcsi-conference/) 

## 20th Annual AMCSI Conference

July 9-12, 2025
Norfolk, VA

#### Thank you to all that attended!

 [  Bob's Photo Gallery  ](https://www.bobwellmon.com/Other/AMCSI/AMCSI-Annual-Conference-2025) 

 [  Conference Site  ](https://amcsupport.org/20th-annual-amcsi-conference/) 

## 19th Annual AMCSI Conference

July 3-6, 2024
Atlanta, GA

#### Thank you to all that attended!

 [  View Photo Gallery  ](https://amcsupport.org/19th-annual-amsci-conference-photo-gallery/) 

 [  Conference Sessions  ](https://amcsupport.org/19th-annual-amcsi-conference-sessions/) 

 [  Conference Site  ](https://amcsupport.org/19th-annual-amcsi-conference/) 

## 18th Annual AMCSI Conference

July 3-5, 2023
Columbus, Ohio

#### Thank you to all that attended!

 [  View Photo Gallery  ](https://amcsupport.org/18th-annual-amcsi-conference-photo-gallery/)

**Categories:** AMC Events, Archived

**Tags:** Past Conference, Photo Galleries

---

### [AMC & Me - Testimonials](https://amcsupport.org/amc-me-testimonials/)

**Published:** March 28, 2024
**Author:** Ted Houser

**Content:**

## Testimonials & Feel-Good Stories

Sokme samples from the AMC Community about how AMCSI has helped them through grants, scholarships, conferences!

Read their Testimonials & Feel-Good Stories!

[**CLICK HERE**](https://amcsupport.org/testimonials/) o view all of AMCSI’s Testimonials

 ![The Fisher's photo of their child for their holiday grant testimonial.](https://amcsupport.org/wp-content/uploads/2023/12/The_Fishers-900.jpg) 

*“We have been members of AMCSI since 2012. Our daughter Red was born with Arthrogryposis multiplex congenita. We’ve been blessed to attend the annual conference since she was 5 years old. She just turned 18. The pandemic stole 2 years of conferences. This past year has paid a huge toll on our finances. We’ve also had a lot of medical and personal stuff going on. Both of our older cars have taken turns being in and out of the shop. At one point they were both unusable. We were drowning in debt. We put our pride aside and applied for the holiday grant. We were very surprised and appreciative when we found out we had gotten it. It took a lot of stress off of us. We were able to get stuff we needed as well as be able to buy her a couple of things. It was the lift we needed to get us back on our feet. We couldn’t have done it without this grant from AMCSI <3 This organization has blessed us in so many ways. Physically, emotionally and now financially. We look forward to being able to go to conference again this year, we especially enjoy volunteering our time as well.”*

**~ The Fisher’s**

 ![AMCSI-testimonial-Kylee](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-testimonial-Kylee.jpg) 

 ![AMCSI-testimonial-Kylee-02](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-testimonial-Kylee-02.jpg) 

*“When I saw that the testimonials & feel-good stories had open forms I knew it was time for me to share my story because the community really has changed me in a great way.*

*Originally, I didn’t have any self-intentions when going to the conference, other than to go, meet a few people, and just have fun. Going I did not do any research other than purchasing my ticket. Before this, my AMC community was small and limited to two people, whom I already did not talk with much. Growing up my resources and community were nothing and I was never told great things about the AMC community in general. My mental health at the time was rapidly declining and I didn’t know why so I figured I would at least connect with a few people whom I could relate with.*

*The first conference I went to was the 17th annual in Orlando, I had just turned 18, the conference was in my home town so I easily could get there. In the first 45 minutes of me being at my first conference, my entire perspective of the entire community changed. I was greeted, introduced to many, and shown around as it was kind of intimidating. The positive energy and warmness that just poured out was unbelievable, I immediately knew I was in the right place. The entirety of the conference was so informative, I learned so much more than I intentionally thought I would, and confirmed for me that I was in the right spot of connection, love, and support. After the conference was over I knew I just had to go the next year.*

*The 18th annual conference in Ohio opened me to a whole new level of acceptance I felt. Going to this conference I had intentions, I wanted to find resources, hear others’ experiences, make forever connections, and really open myself up to better mental health resources, and that is exactly what I was able to do. I finally felt “home” enough to let others in and be open. I will forever say this but there seriously is not another group of people I will stay up till the sun comes up with just talking and bonding. Hearing others’ stories, experiences, tips, etc., and bonding with the right people helped me find self-acceptance and realize I will never be alone and my resources are right here in this family of the AMC community. The energy and comfort I felt around every. single. person. was unmatched and I can not express how grateful I am for this community that I call family. The annual conference will be something I no longer miss, I will be there, to share, to listen, and connect.*

*“Remember, this isn’t goodbye, this is see you later. <3”*

**~ Kylee**

 ![AMCSI-testimonial-Kahzryn](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-testimonial-Kahzryn.jpg) 

*“To say it’s been difficult to find the words to talk about this experience is an understatement. I was gifted the opportunity to attend a conference on Arthrogryposis (AMC), the condition I was born with. I never met anyone in person with AMC until this trip that I was so blessed to have received! I have really been unable to put into language what this incredible trip has brought me. Community, friendship, education, resources, self-acceptance, memories, hugs, some of the rawest love i’ve ever witnessed & felt to name a few. I received more hugs during this trip than I have in the past year.. The people in this community love BIG and I can’t explain how much my heart has been filled by them all. The way this community has loved and uplifted me is unmatched. I have been terrified with planning my medical future alone and this has given me HOPE. This experience has truly taken my heart and ran with it. I’m so immensely grateful to have made it in those rooms, to those that made this happen for me, and to all that made this whole conference possible in general.. There are truly no words I could use to explain what you’ve done for me and my heart and my FUTURE, but thank you a million times over.. See you next year!”*

**~ Kahzryn**

**Categories:** AMC &amp; Me, AMC Events, Archived

**Tags:** AMC &amp; Me

---

### [AMC Holiday Grant 2024](https://amcsupport.org/amc-holiday-grant-2024/)

**Published:** July 18, 2024
**Author:** Ted Houser

**Content:**

# 2024 AMC Holiday Grant

##### Arthrogryposis Multiplex Congenita Support Inc. (AMCSI) is proud to offer assistance to AMC families in need this Holiday Season.

 ![AMCSI - 19th Annual AMCSI Conference](https://amcsupport.org/wp-content/uploads/2024/07/19th-Annual-AMCSI-Conference-328-1024x683.jpg) 

 ![](https://amcsupport.org/wp-content/uploads/2024/07/19th-Annual-AMCSI-Conference-60-1024x683.jpg) 

##### Every year, we want to express our heartfelt appreciation & #Love for the incredible support we’ve received from our AMC Community, Organizations, Hospitals, & Fundraisers.

We’re excited to continue the AMC Holiday Fund in 2024, a fundraiser that aims to bring joy & relief to AMC families nationwide during the holiday season.

Our mission is simple: help AMC families enjoy the holidays without the burden of expenses. Many AMC families face overwhelming challenges, including medical expenses & hospital visits. Your support can make their holiday season one to remember & every contribution brings us closer to achieving this goal.

Your donations will go directly to support various AMC families within our community.

##### As a token of our appreciation, every donation of $200 or more will receive a free June 30th T-shirt!

Let’s come together & make this holiday season magical for AMC families. Your generosity can bring smiles, warmth, & happiness to those who need it most.

### Testimonials from 2023 Recipients

 "I want to say Thank you so much to AMCSI for helping our family out this holiday season. 2023 has been a roller coaster of a year, and our family has experienced so much financial hardship, Ending the year with losing most of our belongings with our house flooding, and If that wasn’t enough, Our AMCer Jhay breaking his leg in December in a wheelchair accident, Causing a lot of missed work for me as a single Mom right around the holiday season. I am grateful to AMCSI for sponsoring our family for the holiday fund. The children were able to receive some nice gifts, We were able to put food on the table in a time of need and catch up on bills we had fallen behind on. Thank you so much! We are forever grateful for our AMC Family! We love you guys! Jhaylen personally says Thank you as he was able to get a new bed set and legos!" 

 ~ Jhaylen Family 

 “We have been members of AMCSI since 2012. Our daughter Red was born with Arthrogryposis multiplex congenita. We've been blessed to attend the annual conference since she was 5 years old. She just turned 18. The pandemic stole 2 years of conferences. This past year has paid a huge toll on our finances. We've also had a lot of medical and personal stuff going on. Both of our older cars have taken turns being in and out of the shop. At one point they were both unusable. We were drowning in debt. We put our pride aside and applied for the holiday grant. We were very surprised and appreciative when we found out we had gotten it. It took a lot of stress off of us. We were able to get stuff we needed as well as be able to buy her a couple of things. It was the lift we needed to get us back on our feet. We couldn't have done it without this grant from AMCSI <3 This organization has blessed us in so many ways. Physically, emotionally and now financially. We look forward to being able to go to conference again this year, we especially enjoy volunteering our time as well.” 

 ~ The Fisher’s 

 ![](https://amcsupport.org/wp-content/uploads/2024/07/AMCSI24_holiday_grant-ty-1024x1024.jpg) 

###### *Please not that the number & percentage information above only reflect the donations made through using the blue “**💙🎄Donate To AMC Holiday Fund 🎄💙**” button.*

**FaceBook Post 
Donations**

### $812

**General Donations Tagged for 
AMC Holiday Fund**

### $459

**Anonymous Check Donation**

### $2,500

### **PROGRAM DETAILS:** 

**Funds**
A grant will be awarded to approved grantee. Funds can only be issued to the AMCer or parent/legal guardian of the AMCer. If your AMCer is under 18, this form MUST be filled out and signed by a parent/ legal guardian of the AMCer. If you are nominating a family, please provide your contact information as well.

*Please note grant guidelines are subject to change.*

### **Eligibility requirements for the AMC Holiday Grant:**

- Assistance is awarded to individuals with the diagnosis of arthrogryposis or to the direct (parent or legal guardian) family member of the affected individual.
- Current registered member of AMCSI
    - All applicants **MUST** be a current member of Arthrogryposis Multiplex Congenita Support Inc.
    - Our members help make the community give back grants possible for hundreds of our AMC families.
        **A limited number of scholarships for membership is available upon request.**
- Applicants must reside in the US or Canada
- Proof of diagnosed condition of arthrogryposis

### AMC Holiday Grant Application Now Closed

##### All (required) (\*) documents must be sent to info@amcsupport.org

Your application will not be processed until all required items are received.
Please do not email to check on the status of your application. We will reach out you if further information is needed.

Funding for this grant is available thanks to our AMCSI Members, Friends & Family! Thank you so much for making this grant possible.

**Categories:** AMC Holiday Grant, Archived, Financial Aid, Grants

**Tags:** AMC Holiday Grant 2024, Grant

---

### [2023 Together Tuesdays Sessions](https://amcsupport.org/2023-together-tuesdays-sessions/)

**Published:** July 21, 2024
**Author:** Ted Houser

**Content:**

## Together Tuesdays

##### 2023 Together Tuesdays Sessions

**[>>> Back to Together Tuesdays main webpage <<<](https://amcsupport.org/together-tuesdays/)**

##### Together Tuesdays – AMC Adults

In this session, we are joined by our adult friends with AMC! 🤗💙

##### Together Tusdays & Marty & Friends 

In this session, we will join special guest Marty Sheedy from the Project Scissor Gait Foundation (@projectscissorgait) & Friends! 🤗💙

##### Together Tuesday – AMC Community 

In this session, we will be joined by our adult friends with AMC! 🤗💙

##### Together Tuesdays – Misha & Friends

In this week’s session, we will be joining special guest Misha Dream Walker, AMCSI’s International Ambassador & friends! 🤗💙

##### Together Tuesday – Dr. Maureen Donohoe & Friends 

In this week’s session, we will be joined by Dr. Maureen Donohoe & some of her friends, as we discuss @givingtuesday & share stories about how AMCSI has helped others! 🤗💙

##### Together Tuesdays – David Solano

In this week’s session, we will be joined by David Solano, a Sewall alumnus & board member, talking about his new book “Anything is Possible: A Journey of Resilience” 🤗💙

##### Together Tuesdays – Giving Tuesday & AMC Research 

In this week’s session, we talked about Giving Tuesday & AMC Research! 🤗💙

##### Together Tuesdays – Fundraising

In this week’s session, we discuss fudnraiser to bring awareness to Arthrogryposis, with tips, ideas and more! 🤗💙

##### Together Tuesdays – Did You Know About The Links On The Website 

In this week’s session, we talked about the AMCSI website, where links are, how to utilize all of resources on it and more! 🤗💙

##### Together Tuesdays – Mini Meetups – Importance of the smaller local gatherings 

In this week’s session, we talked all about mini-meetups and more! 🤗💙

##### Together Tuesdays – Meet & Greet 

In this week’s session, we introduce the AMCSI Team, Borad of Directors and more! 🤗💙

**Categories:** Archived, Get Involved, Together Tuesdays

**Tags:** 2023 Sessions, Together Tuesdays

---

### [Misha's Long Road To AMC Awareness 2025](https://amcsupport.org/mishas-long-road-to-amc-awareness-2025/)

**Published:** August 16, 2024
**Author:** Ted Houser

**Content:**

## Misha’s Long Road To AMC Awareness 2025

## Building community one mile at the time! The Dream Walker Project - AMC Support

 < 

 ![The Long Road to AMC Awareness Road Trip is Coming to Australia and New Zealand this January! As we travel, we aim to raise awareness, share stories, and celebrate the incredible strength and resilience of our AMC family. This is a time for us to come together, support one another, and shine a light on the importance of awareness and community.](https://amcsupport.org/wp-content/uploads/2024/08/The-Long-Road-To-AMC-Awareness-1024x1024.jpg) 

### A much waited announcement: The Long Road to AMC Awareness Road Trip is Coming to Australia and New Zealand this January!

We are beyond thrilled to share this incredible news with our beloved arthrogryposis community. The Dream Walker Project, in collaboration with AMCSI and TAGNZ, is embarking on another epic journey! 

From the bustling cities to the serene landscapes of Australia and New Zealand, we are set to build bridges and create lasting connections for our Arthrogryposis families. This road trip is not just a journey across beautiful lands, but a voyage of hope, understanding, and unity.

As we travel, we aim to raise awareness, share stories, and celebrate the incredible strength and resilience of our AMC family. This is a time for us to come together, support one another, and shine a light on the importance of awareness and community.

### Stay tuned for more details, and get ready to join us on this remarkable journey. Together, we are stronger. Together, we can make a difference.

With all our love and excitement,

Misha & Mike
The Dream Walker Project Team

### **[View the New Zealand Photo Gallery](https://link.shutterfly.com/WB8Kx0pB7Qb)**

### **[View the Australia Photo Gallery](https://link.shutterfly.com/ocmOaLTChUb)**

 [ ![The Long Road To AMC Awareness Goes Down Under](https://amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-1.jpg) ](https://link.shutterfly.com/WB8Kx0pB7Qb) 

 [   ![The Long Road To AMC Awareness Goes Down Under](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-2.jpg?w=196&h=252&ssl=1 "MM25_new-zealand-2") ](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-2.jpg?ssl=1) #image_title 

  [   ![The Long Road To AMC Awareness Goes Down Under](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-7.jpg?w=196&h=252&ssl=1 "MM25_new-zealand-7") ](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-7.jpg?ssl=1) #image_title 

  [   ![The Long Road To AMC Awareness Goes Down Under](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-11.jpg?w=196&h=252&ssl=1 "MM25_new-zealand-11") ](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-11.jpg?ssl=1) #image_title 

  [   ![The Long Road To AMC Awareness Goes Down Under](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-9.jpg?w=196&h=252&ssl=1 "MM25_new-zealand-9") ](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-9.jpg?ssl=1) #image_title 

  [   ![The Long Road To AMC Awareness Goes Down Under](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-4.jpg?w=263&h=337&ssl=1 "MM25_new-zealand-4") ](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-4.jpg?ssl=1) #image_title 

  [   ![The Long Road To AMC Awareness Goes Down Under](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-15.jpg?w=263&h=337&ssl=1 "MM25_new-zealand-15") ](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-15.jpg?ssl=1) #image_title 

  [   ![The Long Road To AMC Awareness Goes Down Under](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-3.jpg?w=262&h=337&ssl=1 "MM25_new-zealand-3") ](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-3.jpg?ssl=1) #image_title 

  [   ![The Long Road To AMC Awareness Goes Down Under](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-13.jpg?w=396&h=508&ssl=1 "MM25_new-zealand-13") ](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-13.jpg?ssl=1) #image_title 

  [   ![The Long Road To AMC Awareness Goes Down Under](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-8.jpg?w=396&h=508&ssl=1 "MM25_new-zealand-8") ](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-8.jpg?ssl=1) #image_title 

  [   ![The Long Road To AMC Awareness Goes Down Under](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-12.jpg?w=396&h=508&ssl=1 "MM25_new-zealand-12") ](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-12.jpg?ssl=1) #image_title 

  [   ![The Long Road To AMC Awareness Goes Down Under](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-14.jpg?w=396&h=508&ssl=1 "MM25_new-zealand-14") ](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-14.jpg?ssl=1) #image_title 

  [   ![The Long Road To AMC Awareness Goes Down Under](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-10.jpg?w=796&h=1022&ssl=1 "MM25_new-zealand-10") ](https://i0.wp.com/amcsupport.org/wp-content/uploads/2025/02/MM25_new-zealand-10.jpg?ssl=1) #image_title

**Categories:** AMC Events, Archived

**Tags:** AMC Events, Misha’s Long Road To AMC Awareness

---

### [Arthrogryposis Ohio Meetup Gallery](https://amcsupport.org/arthrogryposis-ohio-meetup-gallery/)

**Published:** September 16, 2024
**Author:** Ted Houser

**Content:**

## Arthrogryposis ohio meetup

## Dogwood Park | 241 7th St. North Canton, OH | September 14, 2024

 We had a busy day. Cj played with his forever friends. Moms discussed struggles- we all can relate. 💙 

 Larina S.C. 

 Had the best day yesterday with the most amazing people at the AMC Ohio Fall Meet-Up (Northeast Ohio)! Got to spend the day playing tag with the coolest kiddos and making new memories that will last a lifetime.💙 

 Hope s.K. 

*Photos Courtesy of Larina, Ashley, & Hope*

 [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-12.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-10.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-26.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-38.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-6.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-40.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-9.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-13.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-34.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-24.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-39.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-11.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-30.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-7.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-15.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-3.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Arhtogryposis-Ohio-Meetup-14.jpg)

**Categories:** AMC Events, Archived, Arthrogryposis

**Tags:** Arthrogryposis, Arthrogryposis Ohio, Meetup, Ohio

---

### [Utah AMC Mini Meetup 2024](https://amcsupport.org/utah-amc-mini-meetup-2024/)

**Published:** September 25, 2024
**Author:** Ted Houser

**Content:**

## Utah AMC Mini Meetup 2024

## Adventure Heights Spanish Fork All-Abilities Park | September 14, 2024

 We had our annual Utah AMC support group meet-up activity yesterday. Several wonderful AMCers and their lovely families came. This time, we even had Kim, who shared with the families the adapted sports for the AMCers. I love these people. 

 Rose R. 

*Photos Courtesy of **[AMC support group -Utah:)](https://www.facebook.com/groups/163001047243955/)***

 [ ](https://amcsupport.org/wp-content/uploads/2024/09/Utah-AMC-Mini-Meetup-2024-15.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Utah-AMC-Mini-Meetup-2024-9.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Utah-AMC-Mini-Meetup-2024-5.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Utah-AMC-Mini-Meetup-2024-12.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Utah-AMC-Mini-Meetup-2024-8.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Utah-AMC-Mini-Meetup-2024-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Utah-AMC-Mini-Meetup-2024-13.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Utah-AMC-Mini-Meetup-2024-4.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Utah-AMC-Mini-Meetup-2024-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Utah-AMC-Mini-Meetup-2024-16.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Utah-AMC-Mini-Meetup-2024-11.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Utah-AMC-Mini-Meetup-2024-3.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Utah-AMC-Mini-Meetup-2024-14.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Utah-AMC-Mini-Meetup-2024-6.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Utah-AMC-Mini-Meetup-2024-7.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/Utah-AMC-Mini-Meetup-2024-10.jpg)

**Categories:** AMC Events, Archived

**Tags:** Arthrogryposis, Mini Meetup, Utah, Utah AMC Mini Meetup 2024

---

### [253 MILES – 1 MISSION Photo Gallery](https://amcsupport.org/253-miles-1-mission-photo-gallery/)

**Published:** September 26, 2024
**Author:** Ted Houser

**Content:**

## 253 MILES – 1 MISSION 2024

## Riding 253 Miles & Spreading AMC Awareness | September 19-21, 2024

 Yes, these guys are incredible athletes… but they are better men. They put their jobs, families and other priorities on hold to focus on riding 253 miles in 2.5 days to raise funds for Arthrogryposis. Thank you Ryan, Eoin, Adam, Roscoe, Jake and Kyle - together we raised more than $15,000 in support of individuals and families impacted by Arthrogryposis. Until the next one and from everyone at Arthrogryposis Multiplex Congenita Support Inc - a huge, sincere THANK YOU!! 💙💙 

 Marshall Johnson 

*Photos Courtesy of Marshall Johnson.*

 [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-27.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-26.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-34.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-38.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-13.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-5.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-20.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-42.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-41.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-39.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-28.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-44.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-22.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-19.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-12.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-30.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-17.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-37.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-32.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-47.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-23.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-31.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-16.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-7.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-43.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-29.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-8.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-45.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-46.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-6.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-18.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-40.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-24.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-35.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-9.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-15.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-10.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-21.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-25.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-14.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-3.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-4.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-33.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-36.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/09/253-MILES--1-MISSION-11.jpg)

**Categories:** 253 Miles - 1 Mission, AMC Events, Archived

**Tags:** 253 MILES, Photo Gallery

---

### [Holiday Card Exchange](https://amcsupport.org/holiday-card-exchange/)

**Published:** November 8, 2024
**Author:** Ted Houser

**Content:**

## Holiday Card Exchange

Please use this form to submit your contact information to participate in the Annual AMCSI Holiday Card Exchange.

Not all participants can expect to receive or send international cards. Our card list grows each year, so depending on how many participate, we will separate families out in groups of 10 so we do not overwhelm anyone with postage costs!

The information must be submitted by 12/1.

Questions? Contact [***info@amcsupport.org***](mailto:info@amcsupport.org?subject=AMCSI%20Annual%20Holiday%20Card%20Exchange)

### Holiday Card Exchange Form Is Now Closed

##### All (required) (\*) documents must be sent to info@amcsupport.org

By signing up, you agree to receive email marketing communication from AMC Support Inc. You understand that you can unsubscribe at any time.

**Categories:** Archived, Get Involved, Holiday Card Exchange

**Tags:** Card, Exchange, Holiday Card Exchange, Holiday Season

---

### [2024 Together Tuesdays Sessions](https://amcsupport.org/2024-together-tuesdays-sessions/)

**Published:** January 7, 2025
**Author:** Ted Houser

**Content:**

## Together Tuesdays

##### 2024 Together Tuesdays Sessions

**[>>> Back to Together Tuesdays main webpage <<<](https://amcsupport.org/together-tuesdays/)**

##### Together Tuesdays

We welcome the new puppy on the show, talk about the holidays & more!

Join us as we discover the results of apple jelly and white rice, talk about Grateful Tuesday, and more!💙

To join the recordings, please register today at [**https://amcsupport.org/together-tuesdays/#TTreg**](https://amcsupport.org/together-tuesdays/#TTreg)

##### Together Tuesdays

A chill episode of hanging out with our close friends!

Join us as we discover the results of apple jelly and white rice, talk about Grateful Tuesday, and more!💙

To join the recordings, please register today at [**https://amcsupport.org/together-tuesdays/#TTreg**](https://amcsupport.org/together-tuesdays/#TTreg)

##### Together Tuesdays

Achievements, Building Resources, & AMC Life in General

Join us as we discover the results of apple jelly and white rice, talk about Grateful Tuesday, and more!💙

To join the recordings, please register today at [**https://amcsupport.org/together-tuesdays/#TTreg**](https://amcsupport.org/together-tuesdays/#TTreg)

##### Together Tuesdays

Achievements, Building Resources, & AMC Life in General

Join us as we discuss achievements, building our own resources for group support, how the social media plane is changing & evolving, & AMC life in general.💙

To join the recordings, please register today at [**https://amcsupport.org/together-tuesdays/#TTreg**](https://amcsupport.org/together-tuesdays/#TTreg)

##### Together Tuesdays

Navigating the World of Independent Living

Join us as we get caught up with replacing a caretaker, how that process worked out, the dynamics of AMC families, & AMC Life.💙

To join the recordings, please register today at [**https://amcsupport.org/together-tuesdays/#TTreg**](https://amcsupport.org/together-tuesdays/#TTreg)

##### Together Tuesdays

Navigating the World of Independent Living

Join us as we discuss the challenges of independent living, letting a caretaker go & figuring out ways to find the right fit. It’s not always easy to do, especially if you like the caretaker as a person, but your responsibilities for them regarding your needs are not fully met.

To join the recordings, please register today at [**https://amcsupport.org/together-tuesdays/#TTreg**](https://amcsupport.org/together-tuesdays/#TTreg)

##### Together Tuesdays

🎉 We’re Back! 🎉

This time, Together Tuesdays is taking a new approach. Expect a more relaxed, less restrained style! Join us for this new chapter & tune in whenever it suits you!

To join the recordings, please register today at [**https://amcsupport.org/together-tuesdays/#TTreg**](https://amcsupport.org/together-tuesdays/#TTreg)

##### Together Tuesdays

Join us on Tuesday! In this session, we talked about AMCSI News, including our Facebook groups link webpage, mini meetups, upcoming fundraisers, and possibly doing an AMC dating episode!🤗💙

Tune in on Tuesdays to learn more & ask questions on Facebook Live! 📲💙

To join us live, please be sure to register at [**https://bit.ly/TogetherTuesdays-Reg**](https://bit.ly/TogetherTuesdays-Reg)

##### Together Tuesdays

Join us on Tuesday! This is a great episode to learn about different gadgets and techniques from opening bottles to bathing! 🤗💙

Tune in on Tuesdays to learn more & ask questions on Facebook Live! 📲💙

To join us live, please be sure to register at [**https://bit.ly/TogetherTuesdays-Reg**](https://bit.ly/TogetherTuesdays-Reg)

##### Together Tuesdays

Join us on Tuesday! 🤗💙

Tune in on Tuesdays to learn more & ask questions on Facebook Live! 📲💙

To join us live, please be sure to register at [**https://bit.ly/TogetherTuesdays-Reg**](https://bit.ly/TogetherTuesdays-Reg)

##### Together Tuesdays

Join us on Tuesday! 🤗💙

Tune in on Tuesdays to learn more & ask questions on Facebook Live! 📲💙

##### Together Tuesdays

Join us for our #PostConferenceBlues!

We know you tiredddddd! We know you are reading all the beautiful conference posts! But we miss you already!

Join us for a quick wrap-up and to share your favorite #AMCATL24 conference moments! 💙 🤗

Tune in on Tuesdays to learn more & ask questions on Facebook Live! 📲💙

##### Together Tuesdays

Erin Miller joined us as our special guest this coming Tuesday, June 18th, to celebrate her accomplishments and share her life story.🤗💙

Erin is 39 from Harrisburg PA. She has a Masters in Rehab Counseling and a Bachelors in Criminal Justice. She has worked as a claims specialist for the last 10 years with the Social Security Administration. She lives on her own with her little zoo of 3 dogs 2 cats and 7 goldfish! In her free time, she volunteers with various dog and cat rescues and also takes care of a handful of stray/feral cats and works to get them TNR’d when possible. She also enjoys being out and about with friends and teaming up with her nephews to drive their parents crazy! I mean isn’t that the job of an aunt?

Tune in on Tuesdays to learn more & ask questions on Facebook Live! 📲💙

##### Together Tuesdays

Ryan Allen Sharp (Ryan Allen Sharp Ledbetter) joined us as our special guest this coming Tuesday, June 11th, to celebrate his accomplishments and share his life story.🤗💙

Ryans’ Bio: I’m Ryan, I’m 29, I have AMC! I’m a dad to a 6-year-old son, I’m a social media influencer & also work a full-time job at Allstate Insurance! I’m obsessed with sports & I love to golf! And I love to help others with disabilities!

Tune in on Tuesdays to learn more & ask questions on Facebook Live! 📲💙

##### Together Tuesdays

Doug will join us as our special guest this coming Tuesday, June 4th, to celebrate his accomplishments and share his life story.

Doug Moreau was born with Arthrogryposis Multiplex Congenita (AMC). He teaches 7th-grade Literature at Christian Brothers School & is in his 27th season as the New Orleans Saints’ game-day press box public address announcer. Moreau is also the moderator of the Christian Brothers’ canoe, kayak, & cycling clubs. He was recently honored with the Joe Gemelli “Fleur de Lis” Award for his vast contributions to the Saints organization & has been known to say, “It doesn’t matter how you’re born, If you want something, go do it, go after it.” 🤗💙

See you every Tuesday at 9 pm EST Tuesday on Facebook Live! 📲💙

##### Together Tuesdays

We will join a guest, Sara Gaver & Friends (A.K.A. The Sisterhood of the Traveling Sheets)! We are the Sisterhood of the Traveling Sheets.

A new travel blog movement about us! Women with disabilities who travel independently with their trusty pack of California King Bed Sheets. We hope to empower you to live your life experiences to the fullest without letting your limitations stop you. The Sisterhood of the Traveling Sheets strives to cultivate confidence, advocate for accessibility and awareness, and promote our mantra that Defeat is NOT your Destiny. 🤗💙

See you every Tuesday at 9 pm EST Tuesday on Facebook Live! 📲💙

##### Together Tuesdays

Don’t miss this chance to connect with fellow AMCSI members, share your ideas, & learn how you can positively impact the lives of those with Arthrogryposis.🌟💙

See you every Tuesday at 9 pm EST Tuesday on Facebook Live! 📲💙

##### Together Tuesdays

Matthew Cavedon has arthrogryposis & uses a wheelchair. In his youth, Cavedon was a national spokesperson for Boundless Playgrounds & a member of the National Council on Disability’s Youth Advisory Committee. He graduated from Harvard College & Emory University. A former law clerk & public defender, he is currently the Robert Pool Fellow at the Center for the Study of Law & Religion at Emory University.

See you every Tuesday at 9 pm EST Tuesday on Facebook Live! 📲💙

##### Together Tuesdays

We will join a guest, Daniel E. González! 🤗💙 I was born in Bogotá, Colombia, on November 11th, 1996. I was born with an Amyoplasia-type form of Arthrogryposis. My parents were told by doctors that I wouldn’t be able to dress myself, feed myself, or walk by myself. My father, my mother, brother, and sister all moved to Houston, Texas, in 1997 so I could receive treatment at Shriners Hospital for Children – Houston.

Through intense physical therapy and persistence, I’m now 27 years old, happily living with my girlfriend, her son, and our dog in San Marcos, Texas. I rode my motorcycle safely to my physically demanding job at a pipe factory, carrying heavy pipes around a warehouse. As a young adult seeking fame, I lived in Hollywood and gravitated toward the health and nutrition industry, which focused on mind, body, and spiritual well-being.

I played soccer or fútbol for over 18 years, did weight lifting for 9 years, incorporated meditation and gratitude in my daily rituals for around 11 years, and shared my story of living with AMC for roughly 12 years. In honor of my father, I continue to help people learn about themselves, teach tools to better their lives, and listen to the beautiful stories we all get to share.See you every Tuesday at 9 pm EST Tuesday on Facebook Live! 📲💙

##### Together Tuesdays

Don’t miss this chance to connect with fellow AMCSI members, share your ideas, & learn how you can positively impact the lives of those with Arthrogryposis. See you every Tuesday at 9 pm EST Tuesday on Facebook Live! 📲💙

##### Together Tuesdays

We will join a guest, Chris Hartwick, who shares his creative abilities! He shared his story of how he does everything from getting dressed to cooking with his mouth. 🤗💙

##### Together Tuesdays

Kimberly Kolstad, our Keynote Speaker for Adaptive Sports at this year’s 19th Annual AMCSI Conference in Atlanta, Georgia, July 3-6, is joined by Jo with Arizona Adaptive Water Sports & Cullen from Trails Adaptive as they discuss wake surfing and mountain biking on July 3rd!! 🤗💙

To learn how to get involved visit: ****

##### Together Tuesdays

This week is all about fundraising Ana who is doing a Walk, Tun or Roll event called [**AMC & Me**](https://amcsupport.org/amc-and-me/), in St. Louis and with Kim who is ogranizing the [**Adaptive Sports**](https://amcsupport.org/19th-adaptive-sports/) at the 19th Annual AMCSI Conference. & how you can get involved! 🤗💙

Be sure to follow our Together Tuesdays Facebook Event Page at: [**https://fb.me/e/4vbg9gzNq**](https://fb.me/e/4vbg9gzNq)

##### Together Tuesdays

This week, Christof (@Charpsp20 on FB, IG & YT) will join us. He was born in Asia in the late 1980s with congenital AMC, affecting all four limbs. He moved to & grew up primarily in the midwestern & northern US before attending college and working in TX. Currently, Christof lives alone & independently, enjoying all the pros and cons that come with the millennial generation. By profession, he is an engineer by day and a freelance musician by night. 🤗💙

Visit Christof’s YouTube Channel: [**https://www.youtube.com/@charpsp20**](https://www.youtube.com/@charpsp20)

##### Together Tuesdays

This week, Frances & Colwyn will join us on a new podcast called Accessible Adventures Podcast! Frances has a side hustle as a travel agent specializing in Disney. I think I have a unique perspective in this business because I have experience planning my own Disney vacations, but I also have experience booking trips with accessibility in mind. Having Arthrogryposis has never slowed me down, & I have always found ways to do what I enjoy. While Colwyn is a renaissance man of many interests. My mind and my formidable spirit do not let AMC rule my life! I have AMC, but it does not have me! I am currently a full-time gaming and reaction streamer & a full-time online game master *(D&D and such)* with StartPlaying Games. 🤗💙

Accessible Adventures Channel: [**https://www.youtube.com/watch?v=srsKaUyGBgc**](https://www.youtube.com/watch?v=srsKaUyGBgc)

##### Together Tuesdays

Tonight we join Barbara W., who is a software engineer who has been playing violin since she was five years old. Barbara was born with arthrogryposis affecting mainly her lower limbs but both her hands and right arm are weak. There is only one contracture in her left pointer finger. When she was young, the goal was to get her walking. Doctors paid very little attention to her hands. Her parents were concerned that she couldn’t hold a pencil! To strengthen her hands, her parents signed her (and her twin) up for violin classes. She has been playing ever since and is constantly evolving. She plays a small 1860 John Albert violin and uses a very light baroque bow.

Check out her performance of Tchaikovsky Canzonetta in out **[This Is How I…](https://amcsupport.org/this-is-how-i-series/)** series! The Zoom audio was not very kind. 🤗💙

##### Together Tuesdays

Tonight we joined Laura Sharon! Brought to you by AMCSI & we shared ideas with our adult friends with AMC! 🤗💙

##### Together Tuesdays

Tonight met up with Tyler Holt, doctorate of occupational therapy working on her capstone project for Howard University & we shared ideas with our adult friends with AMC! 🤗💙

##### Together Tuesdays

Tonight met up woth Deana Fehr from Country Maid to discuss the Butter Braid Fundraiser & we shared ideas with our adult friends with AMC! 🤗💙

##### Together Tuesdays

Tonight we shared ideas, with our adult friends with AMC! 🤗💙

##### Together Tuesdays

Tonight we shared ideas, & talked about how you can positively impact the lives of those with Arthrogryposis at Conference. 🤗💙

##### Together Tuesdays

In this session, we will be joining special guest Kimberly Kolstad! 🤗💙

##### Together Tuesdays – Kimberly Kolstad

In this session, we will be joining special guest Kimberly Kolstad! 🤗💙

##### Together Tuesdays – Stetson Bradfield

In this session, we will be joined by our good friend Stetson Bradfield! 🤗💙

**Categories:** Archived, Get Involved, Together Tuesdays

**Tags:** Together Tuesdays

---

### [Valerie Pepe’s AMC Music Festival 2025](https://amcsupport.org/valerie-pepes-amc-music-festival-2025/)

**Published:** January 18, 2025
**Author:** Ted Houser

**Content:**

## Valerie Pepe’s AMC Music Festival 2025

## Staten Island, NYC

 [ ![Valerie Pepe's AMC Music Festival](https://amcsupport.org/wp-content/uploads/2025/01/AMCSI25_ValsMusicFestival-ig-2.jpg) ](https://amcsupport.org/wp-content/uploads/2025/01/AMCSI25_ValsMusicFestival-ig-2.jpg) 

#### Valerie Pepe’s AMC Music Festival ✨🎶

A night of music, fun & community 💙

📅 Saturday, June 7, 2025 🕕 6:00 PM – 10:00 PM 
📍 Killmeyer’s Old Bavaria Inn 4254 Arthur Kill Rd, Staten Island, NY

**🎤 LIVE MUSIC BY:** 
🎸 Mr. Hood 
🎸 Radio Waves 
🎸 The Kitchen

🎟️ $20 per person 
👧 Kids under 12 — FREE! 
💙 AMC Families — HALF PRICE!
🎁 Raffle baskets & 💵 50/50 tickets too!

Come out for amazing vibes, great food & drink & support a beautiful cause, raising awareness for Arthrogryposis Multiplex Congenita (AMC)!

**Categories:** Archived, Fundraising, Valerie Pepe's AMC Music Festival

**Tags:** Fundraising, Valerie Pepe’s AMC Music Festival

---

### [Val's Bowl-A-Thon 2025](https://amcsupport.org/vals-bowl-a-thon-2025/)

**Published:** January 18, 2025
**Author:** Ted Houser

**Content:**

![Val's Bowl-A-Thon 2025](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_vals_bowl-a-thon-sq-1024x1024.jpg) 

### Val’s Bowl-A-Thon 2025

Will be held at **Rab’s County Lanes** at 1600 Hylan Blvd., Staten Island, NY 10305.

**March 29, 2025** 3:00 PM – 5:00 PM

**Registration starts at 2:30 PM | $25 per person** *(includes 2 hours of bowling, shoe rental and service for attendants)*

To donate, please use the ‘Donate To Val’s Cause Today!’ button or fill out the form below.

**Categories:** Archived, Fundraising, Val's Bowl-A-Thon

**Tags:** Fundraising

---

### [2025 Official Conference Program](https://amcsupport.org/2025-official-conference-program/)

**Published:** June 20, 2025
**Author:** Ted Houser

**Content:**

###  The 2025 Official AMCSI Conference Program is Here!

 [ ![](https://amcsupport.org/wp-content/uploads/2025/06/2025_Official_Conference_Program.jpg) ](https://amcsupport.org/2025_official_conference_program/) 

#### Get ready — the official 2025 AMCSI Conference Program is now available!

We’ll have a limited number of printed copies available throughout the conference floor, but we know many attendees may prefer a digital version. Whether you need better accessibility or want to print a larger copy of the schedule or venue map — this PDF version is for you!

#### [**View or Download the Conference Program (PDF)**](https://amcsupport.org/2025_official_conference_program/)

We can’t wait to welcome you to Norfolk!

**IMPORTANT:** Be sure to register by July 5! 
Late registration begins after July 5 — don’t wait!

 [  Register Today!  ](https://www.eventbrite.com/e/20th-annual-amcsi-conference-tickets-1089956692809?aff=oddtdtcreator)

**Categories:** 20th Annual AMCSI Conference, AMC Events, Archived

**Tags:** 2025 Official Conference Program, 20th Annual AMCSI Conference Program, Program

---

### [Shriner’s Greenville Mini-Meetup June 27, 2025](https://amcsupport.org/shriners-greenville-mini-meetup-june-27-2025/)

**Published:** June 27, 2025
**Author:** Ted Houser

**Content:**

#### Shriner’s Greenville Mini-Meetup

## Greenville, South Carolina June 27, 2025

### Shriner’s Greenville Mini-Meetup June 27, 2025

A great day in Greenville, South Carolina, at the Shriners Hospital for Children. AMC families joined together for support, great conversations, pizza, and fun! We can’t wait to see you all again in soon.

**Your support makes these mini-meetups possible!**

 [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-51.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-19.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-76.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-69.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-49.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-79.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-18.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-45.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-61.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-57.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-36.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-40.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-3.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-6.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-55.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-17.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-81.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-77.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-42.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-47.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-4.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-65.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-22.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-7.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-34.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-54.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-8.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-82.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-12.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-80.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-73.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-25.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-67.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-78.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-71.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMC-Awareness-Mini-Meetup-Shriners-Greenville-27.jpg)

**Categories:** AMC Events, Archived, Shriners’ Greenville Mini-Meetups

**Tags:** AMC Events, Greenville, Mini-Meetups, Shriners, Shriners’ Greenville Mini-Meetups

---

### [AMC Holiday Fund 2025](https://amcsupport.org/amc-holiday-fund-2025/)

**Published:** September 10, 2025
**Author:** Ted Houser

**Excerpt:** Every year, we want to express our heartfelt appreciation & #Love for the incredible support we’ve received from our AMC Community, Organizations, Hospitals, & Fundraisers.

We’re excited to continue the AMC Holiday Fund in 2025! A fundraiser that aims to bring joy & relief to AMC families nationwide during the holiday season.

Our mission is simple: help AMC families enjoy the holidays without the burden of expenses. Many AMC families face overwhelming challenges, including medical expenses & hospital visits. Your support can make their holiday season one to remember & every contribution brings us closer to achieving this goal.

Your donations will go directly to support various AMC families within our community.

As a token of our appreciation, every donation of $200 or more will receive a free June 30th T-shirt!

Let’s come together & make this holiday season magical for AMC families. Your generosity can bring smiles, warmth, & happiness to those who need it most.

**Content:**

##### Every year, we want to express our heartfelt appreciation & #Love for the incredible support we’ve received from our AMC Community, Organizations, Hospitals, & Fundraisers.

We’re excited to continue the AMC Holiday Fund in 2025, a fundraiser that aims to bring joy & relief to AMC families nationwide during the holiday season.

Our mission is simple: help AMC families enjoy the holidays without the burden of expenses. Many AMC families face overwhelming challenges, including medical expenses & hospital visits. Your support can make their holiday season one to remember & every contribution brings us closer to achieving this goal.

Your donations will go directly to support various AMC families within our community.

##### As a token of our appreciation, every donation of $200 or more will receive a free June 30th T-shirt!

Let’s come together & make this holiday season magical for AMC families. Your generosity can bring smiles, warmth, & happiness to those who need it most.

### Testimonials from past Recipients

 "We just wanted to thank you all so much for choosing us to receive the grant for the holidays! It made such a huge difference for us for the holidays!!" 

 ~ The Ferrone's 

 "I want to say Thank you so much to AMCSI for helping our family out this holiday season. 2023 has been a roller coaster of a year, and our family has experienced so much financial hardship, Ending the year with losing most of our belongings with our house flooding, and If that wasn’t enough, Our AMCer Jhay breaking his leg in December in a wheelchair accident, Causing a lot of missed work for me as a single Mom right around the holiday season. I am grateful to AMCSI for sponsoring our family for the holiday fund. The children were able to receive some nice gifts, We were able to put food on the table in a time of need and catch up on bills we had fallen behind on. Thank you so much! We are forever grateful for our AMC Family! We love you guys! Jhaylen personally says Thank you as he was able to get a new bed set and legos!" 

 ~ Jhaylen Family 

 “We have been members of AMCSI since 2012. Our daughter Red was born with Arthrogryposis multiplex congenita. We've been blessed to attend the annual conference since she was 5 years old. She just turned 18. The pandemic stole 2 years of conferences. This past year has paid a huge toll on our finances. We've also had a lot of medical and personal stuff going on. Both of our older cars have taken turns being in and out of the shop. At one point they were both unusable. We were drowning in debt. We put our pride aside and applied for the holiday grant. We were very surprised and appreciative when we found out we had gotten it. It took a lot of stress off of us. We were able to get stuff we needed as well as be able to buy her a couple of things. It was the lift we needed to get us back on our feet. We couldn't have done it without this grant from AMCSI <3 This organization has blessed us in so many ways. Physically, emotionally and now financially. We look forward to being able to go to conference again this year, we especially enjoy volunteering our time as well.” 

 ~ The Fisher’s 

### Funds Raised

*Please note that the numbers and percentages listed above only reflect donations made directly through our campaign link and participating Teams.*

In addition, the following contributions have been designated to support this year’s AMC Holiday Fund.

**Philadelphia Fundraiser** $1,590
*(Thank you to Poe’s Sandwich Joint & Big Charlies Saloon)*

### **GRANT PROGRAM DETAILS:** 

**Funds**
A grant will be awarded to approved grantee. Funds can only be issued to the AMCer or parent/legal guardian of the AMCer. If your AMCer is under 18, this form MUST be filled out and signed by a parent/ legal guardian of the AMCer. If you are nominating a family, please provide your contact information as well.

*Please note grant guidelines are subject to change.*

### **Eligibility requirements for the AMC Holiday Grant:**

- Assistance is awarded to individuals with the diagnosis of arthrogryposis or to the direct (parent or legal guardian) family member of the affected individual.
- Current registered member of AMCSI
    - All applicants **MUST** be a current member of Arthrogryposis Multiplex Congenita Support Inc.
    - Our members help make the community give back grants possible for hundreds of our AMC families.
        **A limited number of scholarships for membership is available upon request.**
- Applicants must reside in the US or Canada
- Proof of diagnosed condition of arthrogryposis

### AMC Holiday Grant Application Is Now Closed

##### All (required) (\*) fields must be filled out.

Your application will not be processed until all required items are received.
Please do not email to check on the status of your application. We will reach out you if further information is needed.

Funding for this grant is available thanks to our AMCSI Members, Friends & Family! Thank you so much for making this grant possible.

**Categories:** AMC Holiday Grant, Archived, Grants

**Tags:** AMC Holiday Grant, AMC Holiday Grant 2025, Grants, Holiday Fund

---

### [Join 253 for AMC - 2025](https://amcsupport.org/join-253-for-amc-2025/)

**Published:** September 16, 2025
**Author:** Ted Houser

**Content:**

##### **Join 253 for AMC** Pick Your Path & Make Every Mile Count

At AMCSI, 253 for AMC is more than a fundraiser, it’s a movement. It’s about turning miles into awareness, support, and strength for everyone in the Arthrogryposis Multiplex Congenita (AMC) community.

###### **253 for AMC**

Take on rugged terrain: 53 miles off-road in the wild beauty of Sugarloaf & Bigelow Mountains. Riders & non-riders both welcome!

###### **The Prairie 253 for AMC**

Pedal across bike paths & roads in Illinois, challenge yourself to ride between **53 and 253 miles** during our designated period.

### Why 253?

- **Inspired** by Marshall’s mountian bike ride & Mark’s Prairie recumbent adult tricycle ride, this year’s fundraisers kick off a tradition of celebrating our differences through movement.
- **Everyone’s invited:** whether you’re a hardcore rider or someone who simply wants to show support. Distance-based challenges allow flexibility.
- **100% impact:** All funds go directly to AMCSI, a 501(c)(3) nonprofit organization, dedicated to providing resources, community, and hope to those affected by AMC.

Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo.

**Categories:** AMC Events, Archived

**Tags:** 253 For AMC, AMCSI, Arthrogryposis, Fundraiser

---

### [Conference Testimonials](https://amcsupport.org/conference-testimonials/)

**Published:** November 15, 2025
**Author:** Ted Houser

**Content:**

## Testimonials

We are truly grateful for the thoughtful testimonials shared by attendees of our past Annual AMCSI Conferences. Hearing how these gatherings have supported, connected, and uplifted members of the AMC community means so much to us. Each message reflects the heart of why we do this work, and we deeply appreciate everyone who takes the time to share their experience. Your words help guide our efforts and strengthen the sense of community that makes the conference so meaningful year after year.

If you would like to tell us about your experience at conferences or recevieing grants/scholarships from AMCSI please [**CLICK HERE**](https://amcsupport.org/testimonials/).

 *"To all my AMC’ers… If you’ve never been, you should absolutely go!!!! I attended for the first time last year and it was incredibly insightful and extremely fun!!!!!"* 

 ~ Bong Delrosario 

 *"Norē LOVED PROM NIGHT! They played his jam and he immediately wanted to come out if his chair to break dance on the floor 🤣 Seeing everybody cheer him on and him grabbing the mic to get everybody to sing AMC-123 instead of ABC 123 like the song goes melted my Mama heart. The daily sessions during the conference filled me with so much information I never could've imagined. I thoroughly enjoyed sitting in on the doctors, therapists, and every speaker whose sessions we attended. The small groups/talks were special to me in so many ways. This trip, we named "The Sonshine Voyage," was our very first solo adventure together, just me and my SONshine! And tho no one could see it, it was empowering in every possible way. I connected with other moms walking similar paths, and found comfort, strength, & inspiration in those conversations. Watching Norien flourish in a space built just for him filled my heart more than words can ever say. We're so grateful to Ani, to the AMCSI crew, the Dust Family(who generously donated), our family who helped us make it happen, and to the entire AMC community for welcoming us with such warmth. This wasn’t just a trip. It was a beginning, a light-filled reminder that we are never alone, and that beautiful things bloom when we least expect them. 👣💙✨️"* 

  ~ Tess *(Nore's Mom)* 

 *“Attending the AMC Conference reminded me that I’m not alone. It was a powerful ‘been there, done that’ moment seeing so many people living full, independent lives gave me hope that I can and will live a long, successful, healthy life.”* 

 ~ Shameia R. 

 *"Growing up, I never met anyone with AMC in person. This organization allowed me to accomplish meeting others my age, similar type of AMC and more! As a first-time attendee, I had an incredible time connecting with people who share similar lived experiences. Whether it was contributing to the research, Meeting Valerie Pepe for the first time, leading an impromptu jam session to share my love of music, or simply enjoying drinks and laughter with some amazing individuals — I felt truly seen, supported, and uplifted. It was a deeply validating and heartwarming experience."* 

 ~ Julie M. 

 *"This was my very first AMCSI Conference, which I was able to attend courtesy of a generous donor. When I joined one of the many sessions available to discuss a variety of topics, I felt like I had known many of these people my entire life despite never having met almost all of them. I found it very eye-opening to hear from other people with AMC from all walks of life about what their experiences were like, both similarly and different to myself. There is immense value in holding an event like this every year because there were so many times growing up where I felt like I was one of one. I'm very grateful to Ani and the rest of the AMCSI staff for ensuring a fantastic event that I will remember forever, and also hope to attend annually moving forward."* 

 ~ Kevin S. 

 *“Attending the Arthrogryposis Conference for the very first time was an unforgettable experience for our family, made possible through the generosity of the scholarship program. Walking into a space filled with so many beautiful young adults with arthrogryposis, living confidently, being themselves, and having fun, was incredibly powerful for me as a mom. It gave me hope and reminded me that my son has such a bright future ahead of him. One of the most meaningful parts for me personally was connecting with other mothers who truly understand the joys and challenges of this journey. Having those conversations, sharing stories, and feeling that instant sense of community was deeply comforting and inspiring. For my son, the highlight was making new friends—friends who share his experiences and with whom he immediately felt a special connection. Seeing his smile as he laughed and played with them is something I’ll never forget. For my husband, one of the moments that stood out was meeting Teresa, an extraordinary person who paints beautiful artwork using her mouth. Her creativity and determination left a lasting impression on him and reminded us of the strength and possibilities within this community. We returned home from the conference with full hearts, new friendships, and a sense of belonging that we didn’t even realize we were missing. We are so grateful to have been given this opportunity and will carry the inspiration, hope, and connections we found with us forever.”* 

 ~ Veronica P. 

 *“Our experience was wonderful, I grew up with arthrogryposis and I had never seen such a sense of community and support. I was very overwhelmed with emotions. It made me reflect a lot on growing up feeling like it was just me who was different. As well as reflecting on how many different obstacles a person can overcome, things some can see as impossible, someone else has adapted to. It was beautiful. We were lucky to join Kelly and Maria’s family during dinner. Kelly really made me feel welcomed and helped break my introverted personality 🙂 As a person who grew up with AMC and a mother of an AMCer , my favorite part of the conference was watching the kids and their fearless spirit. Their smiles filled my heart and eased my worries about Rayan ever feeling isolated when he grows up. We are hoping to join again next year in Ohio!”* 

 ~ Hend

**Categories:** 21st Annual AMCSI Conference, AMC Events, Archived

**Tags:** Conference, Conference Testimonials, Testimonials

---

### [Conference Planning Committee](https://amcsupport.org/conference-planning-committee/)

**Published:** November 21, 2025
**Author:** Ted Houser

**Content:**

# Conference Planning Committee

*(a.k.a. The Loon Crew)*

 [ ![Michele Schaffer - Vice President of Programming](https://amcsupport.org/wp-content/uploads/2026/06/Michele-2026.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#harold) 

### Ms. Michele Schaffer

Michele Schaffer and her husband Allen have four adult children, David, Andrew-AMC, Christopher, and Kaytlin. Michele currently works for the New Albany Plain Local School District as an Intervention Specialist. She joined the Board of Directors of Arthrogryposis Multiplex Congenita Support, Inc., in 2006. With the help of the amazing Loon Crew, she has planned the Annual Conference since 2010. In her free time, Michele enjoys reading, crafting, and volunteering. Michele and her family currently reside in Columbus, Ohio.

 [ ![conference-crew-betsy-gates](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-betsy-gates.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#harold) 

### Ms. Betsy Gates-Ehlers

Betsy, mom to Jake (16, AMCer) and Karl (10), has finally ended her career as a professional student and has begun to enjoy a little “free” time! Betsy, her wife Andrea, and the boys spend much of their time doing activities with Scouts including camping trips and service projects. Jake is a soon-to-be Eagle Scout and Karl is currently finishing up his time in Cub Scouts. They also enjoy camping as a family with their two dogs, Loki and Thor.

 [ ![conference-crew-maureen-goede](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-maureen-goede.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#harold) 

### Ms. Maureen Goede

Maureen was born in Chile and grew up all over South America until she moved to Miami at the age of 15. She met her husband Armand, and they started their family there before moving to Orlando after Hurricane Andrew. Her grandson Sean is an AMCer, and they were lucky enough to find out about AMCSI months before the first conference in Chicago. She has been a part of AMCSI since then and currently enjoys being a loon and heading the grandparent’s group. Maureen is an accountant and enjoys traveling and spending time with family.

 [ ![conference-crew-anna-van-bosse](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-anna-van-bosse.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#harold) 

### Ms. Ana van Bosse

Ana has a masters in business. After working in the private sector for almost 2 decades, she now enjoys charity work including big brothers big sisters, CASA and of course AMCSI. She loves spending time with friends and family and looks forward to vacations with her husband and two boys.

 [ ![](https://amcsupport.org/wp-content/uploads/2025/01/Jan-Shea-02.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#harold) 

### Ms. Jan Shea

Jan Shea (she/her) calls Richmond, VA home. She and her husband, James, embrace life to the fullest through adventure, travel, and laughter. Jan is the mother of Finley, Lydia (AMC Angel), and Groot (fur baby), an amateur paddleboarder, and a loyal friend. Professionally, Jan works with young adults with disabilities as they transition out of high school into what comes next. Jan brings warmth and commitment to her role, embodying the spirit of service in everything she does.

 [ ![](https://amcsupport.org/wp-content/uploads/2024/03/conference-crew-larina-swans0n-REV.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#harold) 

### Ms. Larina Swanson-Carter

Bio coming soon.

 [ ![Beth Sellers Head Shot Photo](https://amcsupport.org/wp-content/uploads/2025/01/Beth-Sellers-headshot.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#harold) 

### Ms. Beth Sellers

Beth is a mom to 3 kids at home, including 18 year old AMCer Taylin. Beth works as an assistive technology professional for Techvision, providing instruction to students who are blind or who have low vision. She also contracts with local school divisions to provide evaluations and resources for students and their IEP teams. Beth was recently appointed by the Governor of Virginia to the Virginia State Rehabilitation Council for the Blind and Visually Impaired. She also serves as a board member and officer for the local Center for Independent Living (Valley Associates for Independent Living) and in her spare time she volunteers for the local SPCA raising neonatal kittens.

**Categories:** 21st Annual AMCSI Conference, AMC Events, Archived, Arthrogryposis

**Tags:** 21st Annual AMCSI Conference, Conference Planning Committee

---

### [Jalon Walker - NFL's My Cause My Cleats](https://amcsupport.org/jalon-walker-nfls-my-cause-my-cleats/)

**Published:** November 23, 2025
**Author:** Ted Houser

**Content:**

#  Falcons LB Jalon Walker (**[@jalon\_walker.3o](https://www.instagram.com/jalon_walker.3o/)**) will honor his cousin Edwin & AMC on his #MyCauseMyCleats. 💙

 ![](https://amcsupport.org/wp-content/uploads/2025/11/JalonWalker-MyCauseMyCleats-1.jpg) 

 ![](https://amcsupport.org/wp-content/uploads/2025/11/JalonWalker-MyCauseMyCleats-2.jpg) 

We are excited to share meaningful news from the upcoming NFL My Cause My Cleats initiative happening this Sunday. Atlanta Falcons linebacker Jalon Walker (**[@jalon\_walker.3o](https://www.instagram.com/jalon_walker.3o/)**) has chosen to represent Arthrogryposis Multiplex Congenita (AMC) on his custom cleats, bringing nationwide visibility to our community.

When Jalon steps onto the turf at Caesar’s Superdome, he will be wearing a bright shade of blue to honor his young cousin Edwin, who lives with AMC, as well as Edwin’s twin brother Howard. Their story reflects the experiences of many families connected to AMC. Jalon has spoken openly about their journey and the challenges Edwin has faced with joint contractures affecting his elbow, wrist & other areas. Despite these challenges, Edwin continues to move forward with determination, a quality familiar to so many in our community.

Jalon’s choice to elevate AMC during one of the NFL’s most recognized player-driven charity initiatives helps create a broader understanding of what AMC is & how it affects individuals and families. His support brings attention to the wide range of conditions under the AMC umbrella & reminds many others that our community deserves recognition, resources & representation.

We are grateful to Jalon Walker, the Atlanta Falcons (**[@atlantafalcons](https://www.instagram.com/atlantafalcons/)**), & the NFL ([**@nfl**](https://www.instagram.com/nfl/)) for helping raise awareness on such a visible stage. Acts like this help more people learn about AMC & the strength of the families & individuals living with it every day.

**Atlanta Falcons vs New Orleans Saints** 
Sunday, November 23 | 4:25 pm 
Caesars Superdome

##### Player to watch is Jalon Walker #11

##### My Cause My Cleats for E 💙 & #AMCAwareness

### **[Direct Donation Link through NFL partner #Rayze](https://mcmc.rayzeapp.com/jalonwalker)**

Cleats will be auctioned off for Arthrogryposis Multiplex Congenita Support, Inc. ([**@rayzeapp**](https://www.instagram.com/rayzeapp/))

### **[Official Altanta Falcons Statement](https://www.atlantafalcons.com/news/jalon-walker-nfl-my-cause-my-cleats-falcons-saints)**

\#MyCauseMyCleats #AMCSI #AMCstrong #NFL #JalonWalker #AtlantaFalcons

 [ ![](https://amcsupport.org/wp-content/uploads/2025/11/617376158748908718.jpg) ](https://amcsupport.org/wp-content/uploads/2025/11/617376158748908718.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2025/11/3725978540663327197.jpg) ](https://amcsupport.org/wp-content/uploads/2025/11/3725978540663327197.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2025/11/8949631898755628145.jpg) ](https://amcsupport.org/wp-content/uploads/2025/11/8949631898755628145.jpg) 

Full circle moment. Our very own [Doug Moreau](https://www.facebook.com/doug.moreau.7?__cft__[0]=AZWUUDX0S6yKRrdpRy1mESWMxhHnKdnha2pgNnJia_dv1D8vrTfYC5coqx4HQTUB6vfwvmLOgN9usTfJiosWvs5hAMAdn86y5rsfG-pR7x4gtzuAUmKsuEbVnmu9K5q2g0o4tlqfCJuaU534vgqMc9K-CxYdzhqp4E7-gyF_14qsc0T9htT-yc3XUyCpPQDPwaM&__tn__=-]K-y-R), meets [Jalon Walker](https://www.instagram.com/jalon_walker.3o/) ahead of tonight’s game.

Doug is the press box announcer for the New Orleans Saints.

Jalon is sporting his blue cleats for the My Cause My Cleats initiative to raise awareness for [\#arthrogryposis](https://www.facebook.com/hashtag/arthrogryposis?__eep__=6&__cft__[0]=AZWUUDX0S6yKRrdpRy1mESWMxhHnKdnha2pgNnJia_dv1D8vrTfYC5coqx4HQTUB6vfwvmLOgN9usTfJiosWvs5hAMAdn86y5rsfG-pR7x4gtzuAUmKsuEbVnmu9K5q2g0o4tlqfCJuaU534vgqMc9K-CxYdzhqp4E7-gyF_14qsc0T9htT-yc3XUyCpPQDPwaM&__tn__=*NK-y-R) and to raise funds for [Arthrogryposis Multiplex Congenita Support, Inc.](https://www.facebook.com/AMCSUPPORT?__cft__[0]=AZWUUDX0S6yKRrdpRy1mESWMxhHnKdnha2pgNnJia_dv1D8vrTfYC5coqx4HQTUB6vfwvmLOgN9usTfJiosWvs5hAMAdn86y5rsfG-pR7x4gtzuAUmKsuEbVnmu9K5q2g0o4tlqfCJuaU534vgqMc9K-CxYdzhqp4E7-gyF_14qsc0T9htT-yc3XUyCpPQDPwaM&__tn__=-]K-y-R) ![💙](https://static.xx.fbcdn.net/images/emoji.php/v9/tb/2/16/1f499.png)

**Don’t forget to tune into Fox tonight to catch the Atlanta Falcons vs Saints game. If you would like to support AMCSI please visit Jalon’s page thru Rayze to donate :**

[**https://mcmc.rayzeapp.com/jalonwalker**](https://mcmc.rayzeapp.com/jalonwalker?fbclid=IwZXh0bgNhZW0CMTAAYnJpZBExTG9oT0IwRUNTeEpOSDc0VHNydGMGYXBwX2lkEDIyMjAzOTE3ODgyMDA4OTIAAR5pY4bZS8gYTcCzA1ZGg1WS66n_7PfmlUNsx9CaGvERgtbDdxlYvPg3aihw-Q_aem_HJGpaXyvzEpwS6634nMYCw)

Jalon wears his cleats in honor of his cousin Edwin. ![💙](https://static.xx.fbcdn.net/images/emoji.php/v9/tb/2/16/1f499.png)

**Categories:** Archived, Fundraising

**Tags:** #11, Jalon Walker, My Cause, My Cause My Cleats, My Cleats, NFL, Week 13

---

### [Professional Guest Speakers](https://amcsupport.org/professional-guest-speakers/)

**Published:** November 21, 2025
**Author:** Ted Houser

**Content:**

# Professional Guest Speakers

The following medical professionals have agreed to becoming guest speakers at our 21st Annual AMCSI Conference in Columbus, Ohio, July 1-4, 2026. Appearances are subject to change.

# Keynote Speaker: Todd Craighead

 ![Todd Craighead, keynote speakers at the 21st Annual AMCSI Conference in Columbus, Ohio, July 1-4, 20206](https://amcsupport.org/wp-content/uploads/2025/12/amcoh26-keynote-Todd-Craighead.jpg) 

Born and raised in Stillwater, Oklahoma, Todd has degrees in Wildlife Conservation and Communications from Oklahoma State University. He has worked as a nature instructor at a children’s camp on the shore of Lake Superior, and a ranger with the U.S. Forest Service in Colorado. He then retired in 2025 after 30 years with the Oklahoma Department of Wildlife Conservation as producer and host of the award-winning television show, Outdoor Oklahoma. Currently, Todd is living out his childhood dream as a Ranger in Yellowstone National Park. His passions include hunting, camping, rock crawling in his 1980 Jeep CJ7, and his daughter Emily.

 ![Dr. Harold Van Bosse](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Harold_van_Bosse.jpg) 

### Dr. Harold J. P. van Bosse

Dr. Harold van Bosse has been practicing pediatric surgery exclusively since completing his orthopedic residency at the University of Illinois in Chicago in 1994, and his fellowship at Toronto’s Hospital for Sick Children in 1995. His specialty interests within pediatric orthopedics are arthrogryposis multiplex congenita (AMC), Prader-Willi syndrome (PWS), idiopathic clubfoot deformity, limb malalignment conditions, and pediatric spine deformities, especially of the growing spine. AMC and PWS alone make up more than 90% of his practice, allowing him to delve deeply into his special interest. He has published widely on topics related to arthrogryposis, clubfeet, and Prader-Willi syndrome. When developing an arthrogryposis center, the goals are to allow children with arthrogryposis to reach their fullest potential by addressing their limb deformities and helping them function/adapt to their limitations. Dr. van Bosse considers himself privileged to follow patients from North and South America, Europe and Asia. He is excited to announce that he has joined Good Samaritan Hospital in West Islip, NY, part of the Catholic Health Services. He could not have gotten this far without the support of his wife, Ana.

Session topic: A discussion designed to provide a structure to understand arthrogryposis.

 ![Speaker-Phillip-Giampietro](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Phillip-Giampietro.jpg) 

### Dr. Philip F. Giampietro

Philip F. Giampietro, MD, PhD, is currently the Asok K. Ray, M.D. FRCS (EDIN) and Purnima Ray Endowed Professor of Pediatrics and Section Chief of Medical Genetics in the Department of Pediatrics at University of Illinois-Chicago School of Medicine. He received his B.S. in Biological Sciences at State University of New York at Stony Brook, Doctorate in Biomedical Sciences at the City University of New York and M.D. at the State University of New York at Stony Brook. Dr. Giampietro completed his internship in Pediatrics at the State University of New York at Stony Brook, a residency in Pediatrics at Long Island Jewish Medical Center, and a Fellowship in Medical Genetics at Weil Medical College of Cornell University. Throughout his career, he has been active in the education of medical students, genetic counseling students, physician assistants, and pediatric residents and fellows. Prior to his current position, Dr. Giampietro held positions at Rutgers -Robert Wood Johnson Medical School, Drexel University College of Medicine, University of Wisconsin- Madison, Marshfield Clinic, Marshfield Clinic and Weil Medical College of Cornell University. Dr. Giampietro’s research interests include dysmorphology and birth defects, in particular the genetics of congenital and idiopathic scoliosis. He has worked closely with orthopedic surgical colleagues, clinical and molecular geneticists, and epidemiologists to better understand genetic and environmental contributions to these conditions.

Session topic: What is a Genetic Evaluation and How Will it Benefit my Child?

 ![Reenee - Medical Advisor](https://amcsupport.org/wp-content/uploads/2023/12/Reenee-headshot-2025-web.jpg) 

### Dr. Maureen Donohoe

Dr. Maureen (Reenee) Donohoe, PT, DPT Emeritus, is a board-certified pediatric clinical specialist with over 36 years of expertise in pediatric orthopedics, specializing in contracture disorders, clubfeet, and brittle bone diseases. She recently retired from clinical practice at Nemours Children’s Health in Wilmington, Delaware, where her career included 20 years of part-time work in educational physical therapy. Currently, Dr. Donohoe remains active in clinical research with both Nemours and the University of Delaware physical therapy research lab. She also practices per diem at a private, physical therapist-owned clinic, focusing on adult care and aquatic exercise. A leading expert in her field, she is a contributing author on 21 text book chapters including Arthrogryposis Multiplex Congenita in all seven editions of Physical Therapy for Children. She has been involved in over 20 published research papers related to issues around AMC. In her free time, she volunteers with an adaptive rowing program.

Session topic: The Top 10: Things a PT might share that may surprise you

 ![Dr. Reid Nichols from Nemours](https://amcsupport.org/wp-content/uploads/2025/01/Dr-headshots-Dr-Reid-Nichols.jpg) 

### Dr. Reid Nichols

Reid Nichols, M.D., FAOA, FAAOS, is a pediatric orthopaedic surgeon at Nemours Children’s Health, Delaware Valley, and Assistant Professor of Orthopedic Surgery, at Thomas Jefferson University. She received her undergraduate degrees from the University of Virginia and from Johns Hopkins University School of Nursing. She earned her medical degree from Northeastern Ohio Universities College of Medicine. After graduating from residency in orthopaedic surgery at Maimonides Medical Center in Brooklyn, NY, she completed a limb lengthening and reconstruction fellowship at the International Center for Limb Deformity in Baltimore, MD. Under the supervision of John Herzenberg, M.D., she received advanced training in the management of clubfeet. She received advanced training in pediatric orthopaedics after completing a fellowship at the Nemours/Alfred I. duPont Hospital for Children. She is currently the president of the Limb Lengthening and Reconstruction Society(LLRS). She is active in many societies, including the Pediatric Society of North America, LLRS, American Academy of Orthopaedic Surgeons, American Orthopedic Association, and the Ruth Jackson Orthopaedic Society. She has served as the BOS representative for LLRS and is currently the POSNA BOS representative. Dr. Nichols’ clinical interests include limb deformity and reconstruction, clubfoot, arthrogryposis, and pediatric trauma. She serves as the director of the Clubfoot Clinic and co-director of the Arthrogryposis Clinic.

Session topic: Focused on the arthrogrypotic hip

 ![Dr. David Feldman](https://amcsupport.org/wp-content/uploads/2023/12/Dr_David_Feldman.jpg) 

### Dr. David Feldman

In 2015, Dr. David Feldman joined the Paley Institute to lead our new Spine Deformity Center and Hip Pain Center. Dr. Feldman was previously Professor of Orthopedic Surgery and Pediatrics as well as Chief of Pediatric Orthopedic Surgery NYU Langone Medical Center/ NYU Hospital for Joint Diseases. Dr. Feldman specializes in pediatric orthopedic surgery and subspecializes in children with scoliosis and severe limb and hip deformities. As well, he focuses his practice on conditions such as arthrogryposis, Multiple Hereditary Exostosis and Skeletal Dysplasias. After graduating from the Albert Einstein School of Medicine in 1988, Dr. Feldman interned in general surgery at NYU Langone Medical Center. He completed his residency in orthopedic surgery in June 1993 and spent the next year in fellowship at The Hospital for Sick Children Toronto with a special interest in pediatric orthopedic surgery and pediatric spine surgery. Dr. Feldman brings over 25 years of experience in pediatric orthopedics, spinal deformity and joint preservation to the practice. Since completing his studies, Dr. Feldman has been at the forefront of both simple and complex pediatric orthopedic treatments. He has helped many children with orthopedic deformities and conditions avoid surgery through early detection. His expertise with advanced non-surgical and surgical techniques has allowed hundreds of children to resume their normal activities after recovery times that are shorter than those of other methods.

Session topic: To help patients, parents and care givers to have the information to make informed decisions about making a thoughtful life plan for an individual with arthrogryposis

 ![Speaker-Fran-Guardo](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Fran-Guardo.jpg) 

### Dr. Fran Guardo

Fran Guardo, MEd, MPT, DPT, BSPTS C1&2 Director of Rehabilitation for the Paley Orthopedic and Spine Institute (POSI) since 2009. She is a sought-after speaker in the field of Rehabilitation of Limb Lengthening and Treatment of Arthrogryposis, where she trains therapists and surgeons internationally. She has authored multiple book chapters, presents nationally and internationally, and is an adjunct professor for Nova Southeastern University, where she lectures in the Physical Therapy Department.

Session topic: Early Intervention and Beyond.

 ![Dr. Lauren Hyer](https://amcsupport.org/wp-content/uploads/2026/03/Dr_Lauren_Hyer.jpg) 

### Dr. Lauren Hyer

Lauren C. Hyer, M.D. joined Shriners Children’s in Greenville, SC in 2016. Since then she has She primarily cares for lower extremity differences in children with arthrogryposis. She embraces a multidisciplinary model involving therapy, motion analysis, orthotics, and orthopedics. Her primary research interests involve understanding and improving mobility as well as enhancing functional independence for children and youth with arthrogryposis.

Session topic: Discussing foot conditions in arthrogryposis.

 ![AMCSI24Speaker-image-Lisa-Wagner](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24Speaker-image-Lisa-Wagner.jpg) 

### Dr. Lisa V. Wagner

Dr. Lisa V Wagner DHS, OTR/L, has a dedication for all things AMC! She loves engaging with people both on a clinical and a research level. This work has resulted in peer-review articles, book chapter and the ability to speak nationally and internationally. Passionate about children with AMC, she is currently collaborating on an outcome assessment for better understanding of the upper extremities, knowledge dissemination of rehabilitation guidelines and defining AMC classifications for better understanding across disciplines.

Session topic: Adventures in Autonomy

 ![Dr. Sarah Turgeon Desilets, MScPT, CAS](https://amcsupport.org/wp-content/uploads/2026/02/Dr_Sarah_Turgeon_Desilets_MScPT_CAS.jpg) 

### Ms. Sarah Turgeon Desilets

Sarah Turgeon-Desilets, MScPT, CAS, is a pediatric physiotherapist, future PhD student, clinician, and academic educator at McGill University with over a decade of experience in neuromuscular and rare pediatric conditions. She specializes in the clinical care, assessment, and rehabilitation of children and youth living with spinal muscular atrophy (SMA) and Duchenne muscular dystrophy and serves as a clinical evaluator in multiple international rare disease trials. Sarah is actively involved in advancing rare disease care through research, education, and provincial leadership. Her work focuses on improving standardized assessment, building clinician capacity, and promoting evidence-based, patient-centered care for individuals living with rare neuromuscular disorders.

 ![Liezel - AMC research speaker at the 21st annual AMCSI conference](https://amcsupport.org/wp-content/uploads/2026/06/Liezel.jpg) 

### Ms. Liezel

As the mother of a child with Arthrogryposis Multiplex Congenita (AMC), Liezel brings a lived experience perspective to the DARE Partnership (Developing Arthrogryposis Rehabilitation Expert Guidance, Dissemination through Partnership). Through their family’s journey navigating healthcare, rehabilitation services, and advocacy, Liezel has gained valuable insight into the challenges and priorities faced by children with AMC and their families. Liezel has contributed to the co-design and review of educational resources and dissemination strategies to ensure they are meaningful, accessible, and relevant to families. Passionate about amplifying the voices of individuals with lived experiences and supporting the translation of evidence-based rehabilitation recommendations into practical resources that can improve outcomes and empower families across Canada.

Session topic: From Collaboration to Impact: Developing E-Learning for Rare Neuromuscular Diseases

 ![Bong Delrosario](https://amcsupport.org/wp-content/uploads/2025/11/Bong-Delrosario.jpg) 

### Mr. Bong Delrosario

Currently serves as Director of Transportation Policy and Programs, for the Maryland Department of Disabilities. With an exceptional background dealing with statewide transportation issues concerning the disabled and older age communities. Experienced Recruiter with a demonstrated history of working in the health wellness industry. Strong advocate for people with disabilities. Well skilled in cross disabilities. Skilled in Policy Change, Strategic Public Relations Planning, Customer Service, Data Entry, Staff Recruitment, and IT Operations. Also serves as the Vice President of the “League of Extraordinary Gentlemen Society” (L.E.G.S.) a peer mentoring group. Prior to my current position as VP, I served as the President of the LEGS organization while also being involved in several other organizations including the Christopher Reeve Mentoring Program. I foresee a bright future for LEGS and the disability community with the assistance of a great network of team players taking the necessary actions required to be successful.

Session topic: Beyond Labels

 ![Matthew Dobbs, MD, FACS is director of the Dobbs Clubfoot Center at the Paley Institute in West Palm Beach, Florida. Prior to that he was the Dr. Asa C. and Mrs. Dorothy W. Jones Professor of Orthopedic Surgery and the Director of Strategic Planning at Washington University School of Medicine. Dr. Dobbs trained under Ignacio Ponseti MD (Ponseti method). Since that time, he has introduced the Ponseti method for clubfoot management to surgeons in more than 50 countries. Dr. Dobbs is dedicated to Research and Teaching. He co-directed an NIH funded musculoskeletal genetics research laboratory and was founder (2001) and director of the clubfoot clinic at Saint Louis Children’s from 2001-2020. He has been named a top orthopedic surgeon by US News & World Report, Top Doctors, Castle Connelly, Consumers’ Research Council, Orthopedics This Week, the International Association of Orthopedic Surgeons, and St. Louis Magazine. He has been featured in the Chicago Tribune, San Francisco Chronicle, and the LA Times. He is internationally recognized for his expertise and innovation in the field of pediatric foot and lower limb deformities and experience with the differences that can arise with Arthrogryposis, Spina Bifida, Nail Patella Syndrome, and genetic conditions. He is the founder of the Dobbs method for treatment of vertical talus and remains the leading innovator in bracing for foot deformities. He values the multidisciplinary efforts needed to help children be their best self and minimize recurrences.](https://amcsupport.org/wp-content/uploads/2026/03/Dr_Matthew_Dobbs_MD.jpg) 

### Dr. Matthew Dobbs MD

Matthew Dobbs, MD, FACS is director of the Dobbs Clubfoot Center at the Paley Institute in West Palm Beach, Florida. Prior to that he was the Dr. Asa C. and Mrs. Dorothy W. Jones Professor of Orthopedic Surgery and the Director of Strategic Planning at Washington University School of Medicine. Dr. Dobbs trained under Ignacio Ponseti MD (Ponseti method). Since that time, he has introduced the Ponseti method for clubfoot management to surgeons in more than 50 countries. Dr. Dobbs is dedicated to Research and Teaching. He co-directed an NIH funded musculoskeletal genetics research laboratory and was founder (2001) and director of the clubfoot clinic at Saint Louis Children’s from 2001-2020. He has been named a top orthopedic surgeon by US News & World Report, Top Doctors, Castle Connelly, Consumers’ Research Council, Orthopedics This Week, the International Association of Orthopedic Surgeons, and St. Louis Magazine. He has been featured in the Chicago Tribune, San Francisco Chronicle, and the LA Times. He is internationally recognized for his expertise and innovation in the field of pediatric foot and lower limb deformities and experience with the differences that can arise with Arthrogryposis, Spina Bifida, Nail Patella Syndrome, and genetic conditions. He is the founder of the Dobbs method for treatment of vertical talus and remains the leading innovator in bracing for foot deformities. He values the multidisciplinary efforts needed to help children be their best self and minimize recurrences.

Session topic: Atypical Clubfoot and Foot Deformities in Arthrogryposis

 ![](https://amcsupport.org/wp-content/uploads/2025/01/Jan-Shea-01.jpg) 

### Ms. Jan Shea

Jan Shea, MSW, joined Virginia Commonwealth University’s Center on Transition Innovations (CTI) in 2014, bringing a rich background in juvenile justice and mental health. As the program coordinator for the recently accredited ACE-IT in College program, Jan fosters a sense of belonging and community for young adults with intellectual disability pursuing inclusive higher education at Virginia Commonwealth University. Over the past decade, she has contributed to various CTI projects, including providing mental health support to transfer students and coordinating employment for women with traumatic brain injuries (TBI) and spinal cord injuries (SCI). Outside of work, Jan enjoys paddleboarding around Greater Richmond, spending time with her family, and pursuing her doctorate in Educational Leadership.

Session topic: Let’s talk about college and education pathways after high school.

 ![Jake-ehlers speaking with Jan Shea at teh 21st annual AMCSI conference](https://amcsupport.org/wp-content/uploads/2025/11/Jake-ehlers.jpg) 

### Mr. Jake Gates-Ehlers

Jake Gates-Ehlers, an Information Sciences Major at University of Illinois, is excited to take the stage for the first time as a conference presenter. Usually found on the stage playing the Euphonium for the university band, Jake is switching gears to speak about the importance of college access and navigating the college landscape. Jake is an avid gamer and scouter and officially earned the rank of Eagle Scout in January 2026. Something Jake is excited for the world to know about him is he is actually enrolled at two universities at once and he looks forward to meeting new people and having a more fun over his remaining years in college.

 ![Tammy DRCE](https://amcsupport.org/wp-content/uploads/2025/01/Tammy-DRCE.jpg) 

### Ms. Tammy Phipps

Tammy Phipps is an Occupational Therapist (OT) and Certified Driver Rehabilitation Center of Excellence CDRS. She has been practicing in the area of driver rehab for over 20 years, starting her first program at a hospital in Aberdeen, SD (2005). She deployed to Iraq in support of Operation Iraqi Freedom from June 2007-June 2008, while in Iraq MAJ (then CPT) Phipps was recruited to create the driving rehab program at the Department of Defense’s largest amputee care rehabilitation facility, Walter Reed Army Medical Center in Washington DC. She developed (2008-2016) and led the first comprehensive driving rehabilitation program in the Department of Defense. During her tenure she provided driving rehab services to over 600 military service members with limb-loss, traumatic brain injury, post-traumatic stress and anxiety, paralysis, burns, visual deficits and complex poly-trauma. The complex nature of the illnesses and injuries seen required her to be extremely innovative as “out of the box solutions” were not going to work. Her experience at Walter Reed provided her the unique perspective needed to start private practice. In August 2016, Tammy opened Driver Rehabilitation Center of Excellence, LLC (DRCE) in Chantilly V A. Her business combines driver rehabilitation and vehicle modifications all in one shop. She has recently expanded driver rehabilitation centers in Richmond V A and Columbus OH. She currently employs 13 driver rehab specialists whose common goal is to make community mobility / driving accessible to as many as they can reach.

Session topic: Driving Rehab Solutions – Featuring cases where AMC was the primary diagnosis.

 ![Dr. Kaveh Asadi-Moghaddam](https://amcsupport.org/wp-content/uploads/2025/11/Dr_Kaveh_Asadi-Moghaddam.jpg) 

### Dr. Kaveh Asadi-Moghaddam

Kaveh Asadi-Moghaddam, MD, PhD, FAANS is a board-certified pediatric and adult neurosurgeon serving as Director of the Spasticity Center at the Paley Orthopedic & Spine Institute and Director of Pediatric Neurosurgery at Palm Beach Children’s Hospital in West Palm Beach, Florida. He specializes in complex neurosurgical care including pediatric neurosurgery, trauma, and neuro-oncology, with prior leadership roles at AdventHealth for Children and Helen DeVos Children’s Hospital. Dr. Asadi-Moghaddam completed his medical and doctoral training in Germany and neurosurgical training at The Ohio State University and Cincinnati Children’s Hospital, and remains active in research, clinical trials, and national neurosurgical organizations.

Session topic: A tethered cord spinal cord

 ![Speaker image kimberly kolstad the keynote speaker at the 19th Annual AMCSI Conference in Atlanta, GA](https://amcsupport.org/wp-content/uploads/2024/04/Speaker-image-kimberly-kolstad.jpg) 

### Ms. Kimberly Kolstad

Kimberly Kolstad is a full-time medical social worker at Craig H Neilsen Rehab Hospital at the University of Utah. For over 18 years she has been advocating for underprivileged individuals and most recently has had the opportunity to work with individuals with spinal cord injuries, amputations, and transplants. Kim has successfully created and runs a peer coaching program for patients with new spinal cord injuries. She works closely with TRAILS Adaptive Sports and has organized an event for Veterans with complex disabilities to experience the Tetra Watercraft. Kim has a love of adventure, and over the last two and a half years, her life has been changed for the better by participating in over 15 different adaptive sports, her favorites being snow skiing with the TetraSki, wake-surfing, and adaptive mountain biking. As a social worker and a person with AMC, Kim knows the importance of accessibility and inclusion for all. She is now advocating for adaptive sports to be known and accessible to all people with disabilities, especially those with AMC.

Session topic: Different Gear, Same Soul: Maintaining Identity through the “off-season.”

 ![Misha Walker speaker at the 21st annual AMCSI conference](https://amcsupport.org/wp-content/uploads/2026/06/misha.jpg) 

### Ms. Misha Walker

Misha Walker is an international disability advocate, speaker, writer, and founder of The Dream Walker Project. Born with Arthrogryposis Multiplex Congenita (AMC), she has spent almost a decade traveling the world, connecting with individuals and families affected by AMC, and helping raise awareness through storytelling, community building, and advocacy. Through The Long Road to AMC Awareness, an annual road trip initiative, Misha and her husband Michael have visited hundreds of families across multiple countries, reminding people that they are not alone. Known for her authenticity, vulnerability, and heartfelt approach, Misha encourages others to embrace who they are, live boldly, and discover the power that comes from showing up as their true selves.

Session topic: The power of authenticity

# Pre-Teen & Teen Moderators

Aly & Navina are the official Pre-Teen & Teen Moderators at the 21st Annual AMCSI Conference!

 ![Aly is passionate about disability awareness, acceptance, and accessibility for all. Aly volunteers at Scottish Rite Hospital with kids of various upper-limb differences & she is pursuing a degree in Speech-Language Pathology.](https://amcsupport.org/wp-content/uploads/2026/05/Preteen-teen-moderators-aly.jpg) 

### Aly

Aly has arthrogryposis in all limbs and she discovered AMCSI in 2022. She attended her first conference in Orlando, Florida that same year and her life has not been the same since. She’s passionate about disability awareness, acceptance, and accessibility for all. Aly volunteers at Scottish Rite Hospital with kids of various upper limb differences and she is pursuing a degree in Speech Language Pathology. She loves all things coffee, art, the outdoors, cooking, and books!

 ![Navina has participated in multiple adaptive/disability programs, including adaptive skiing/snowboarding, being an ambassador for Easterseals.](https://amcsupport.org/wp-content/uploads/2026/05/Preteen-teen-moderators-navina.jpg) 

### Navina

Navina has Arthrogryposis Multiplex Congenita with all limbs, spine, and airway affected, she was also diagnosed with Type 1 diabetes at the age of 11. She has had minimal surgeries but vigorous therapy which helped her to gain the range motion and the passive range that she has. She’s lived in Maine, Minnesota, and now Florida. She has participated in multiple adaptive/disability programs including adaptive skiing/snowboarding, being an ambassador for Easterseals, going to an adaptive gym, etc…She was homeschooled and took interest in arts, computer skills, library volunteering and reading. She greatly enjoys co-leading a Bible Study she started for others affected by AMC. She loves to travel to other countries with her family and to see how others live and all the beauty this world has to offer. She rarely passes up coffee, and enjoys spending time with her friends and family. She has loved coming to the annual conference since she was young and growing up with the community and being inspired each year by the people in it. She is looking forward to getting to inspire others herself.

**Categories:** 21st Annual AMCSI Conference, AMC Events, Archived

**Tags:** Doctors, Lawyers, Medical Professionals, Medical Support, Professional Guest Speakers, Speakers

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### [21st Annual AMCSI Conference Sponsorship](https://amcsupport.org/21st-annual-amcsi-conference-sponsorship/)

**Published:** August 12, 2025
**Author:** Ted Houser

**Content:**

### Conference Sponsors

Platinum Sponsor

 [ ![Shriners Children's Hospital Logo in Color](https://amcsupport.org/wp-content/uploads/2024/06/L_SC_e_h_4c_p_p-color900.png) ](https://www.shrinerschildrens.org/en) 

Silver Sponsors

 [ ![Nemours Children's Hospital Logo](https://amcsupport.org/wp-content/uploads/2025/07/Nemours-logo-900-horizontal.png) ](https://www.nemours.org/) 

## Alexis Record

Adaptive Sports Sponsors

 [ ![Adaptive Sports Connection - ASC](https://amcsupport.org/wp-content/uploads/2025/07/ASC-logo-RGB-color.png) ](https://adaptivesportsconnection.org/) 

 [ ![Adaptive Sports Ohio Logo](https://amcsupport.org/wp-content/uploads/2026/06/Adaptive-Sports-Ohio-Logo.png) ](https://adaptivesportsohio.org) 

 [ ![TRAILS - Technology - Recreation - Independence - Lifestyle - Sports](https://amcsupport.org/wp-content/uploads/2024/07/TRAILS_Wordmark-900.png) ](https://www.utrails.us) 

Patron Sponsor

##### The Beller Family

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### **21st Annual AMCSI Conference Sponsorship
[Online Form Below](https://amcsupport.org/21st-annual-amcsi-conference-sponsorship/#sponsor)** 

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#### [**Click here to download a PDF file of the Conference Sponsorship Sales Kit**](https://amcsupport.org/21st-annual-amcsi-conference-2026-sales-kit/)

*(Note: you can open the PDF on a computer and type in your information & email it to us at ****)*

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The Annual Arthrogryposis Multiplex Congenita Support, Inc. Conference provides an opportunity for people affected by arthrogryposis multiplex congenita (AMC) to gather and exchange ideas and support. During this annual 3-day event, over 500 family members and medical professionals learn from each other on “best practices” in the treatment of and living with AMC. Please join us as a conference sponsor!

### **LEGACY SPONSOR: $10,000**

*(Can be more than one)*

AMCSI’s Legacy Sponsorship option is the highest level of Sponsorship offered. This affords Sponsor named media and advertising partnership status across the board as the legacy sponsor of the AMCSI Conference.
**Media**
• Dedicated email-announcing Sponsorship. Inclusion on all subsequent emails
**Logo Exposure**
• All logo use will be approximately 25% larger than any other Sponsor
• All advertising (Print, Outdoor, Online – seen by up to 21.2k followers across our social media)
• All pages of www.amcsupport.org
• Official Show Program
**Online Exposure** • Logo inclusion on header image or video
• Permanent large header logo banner on All Conference webpages www.amcsupport.org (Run of site)
• Featured Conference speaker posts on www.amcsupport.org
• All email marketing campaigns
• Inclusion on all facets of @amcsupport social network including all header and profile images
**Onsite Exposure**
• 6Ft. draped and skirted exhibitor table
• Two (2) chairs
• Exhibitor Registration Sponsor-branded. All production costs are the responsibility of AMCSI.
• Check-In/Tshirt pickup counter Sponsor-branded. All production costs are the responsibility of AMCSI.
• Bold exhibitor listing within Official Conferecne Program
• Seen by up to 600 AMC Families
**Conference Program Exposure**
• Cover of Official Show Program
• 2 page premium spread (Seen by up to 600 AMC Families)
***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 29, 2026)***
Other Notes
• First right of refusal to all future events

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### **DINNER SPONSOR: $10,000**

*(Can be more than one)*

AMCSI’s Presenting Sponsorship option is one of the highest levels of Sponsorship offered. 
**Media**
• Dedicated email-announcing Sponsorship. Inclusion on all subsequent dinner emails
**Logo Exposure**
• All logo use will be approximately 25% larger than any other Sponsor
• Advertising (Online – seen by up to 21.2k followers across our social media)
• All pages of www.amcsupport.com
• Official Show Program
**Online Exposure**
• All email marketing campaigns
• Inclusion on all facets of the @amcsupport social network, including all header and profile images
**Onsite Exposure** • 6Ft. draped and skirted exhibitor table
• Two (2) chairs
• Check-in at Dinner counter Sponsor-branded. All production costs are the responsibility of AMCSI.
• Bold exhibitor listing within the Official Conference Program
• Seen by up to 600 AMC Families
**Conference Program Exposure**
• Cover of the Official Show Program
• 2-page premium spread (Seen by up to 600 AMC Families)
***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 29, 2026)***

---

---

### **CONFERENCE T-SHIRT SPONSOR: $8,000** 

*(Can be more than one)*

• 6Ft. draped and skirted exhibitor table
• Two (2) chairs
• Your company’s logo on the back of the conference t-shirt (Seen all across the country after the event)
• Your company’s logo on the www.amcsupport.org sponsor page, with a direct link to your website for one year
• Full-page Ad in the Conference program (Seen by up to 600 AMC Families)
***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 29, 2026)***
• Social media Sponsor post (up to 21.2k followers across our social media)
• Logo placed on the bottom of Conference webpages
• AMCSI Gift Basket with a ribbon pin, ribbon magnet, and two silicone bracelets *($30 retail value)* • Customized slide-in looping slideshow presentation.

---

---

### **PLATINUM SPONSOR: $5,000**

*(Can be more than one)*

• 6Ft. draped and skirted exhibitor table
• Two (2) chairs
• Your company’s logo on the www.amcsupport.org sponsor page, with a direct link to your website for one year
• Full page Ad in the Conference program (Seen by up to 600 AMC Families)
***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 29, 2026)***
• AMCSI Gift Basket with a ribbon pin, ribbon magnet, and two silicone bracelets ($30 retail value)
• Customized slide in looping slide show presentation
• Social media Sponsor post (up to 21.2k followers across our social media)
• Logo placed on the bottom of Conference webpages

---

---

### **ADAPTIVE SPORTS SPONSOR: $5,000**

*(Can be more than one)*

• 6Ft. draped and skirted exhibitor table
• Two (2) chairs
• Your company’s logo on the www.amcsupport.org sponsor page, with a direct link to your website for one year
• Full page Ad in the Conference program (Seen by up to 600 AMC Families)
***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 29, 2026)***
• AMCSI Gift Basket with a ribbon pin, ribbon magnet, and two silicone bracelets ($30 retail value)
• Customized slide in looping slide show presentation
• Social media Sponsor post (up to 21.2k followers across our social media)
• Logo placed on the bottom of Conference webpages

---

---

### **GOLD SPONSOR: $3,250**

*(Can be more than one)*

• 6Ft. draped and skirted exhibitor table
• Two (2) chairs
• Your company’s logo on the www.amcsupport.org sponsor page with a direct link to your website for one year
• 1/2 page Ad in the Conference program (Seen by up to 600 AMC Families)
***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 29, 2026)***
• AMCSI ribbon pin (retail value $24)
• Customized slide in looping slide show presentation
• Social media Sponsor post (up to 21.2k followers across our social media)
• Logo placed on the bottom of Conference webpages

---

---

### **SILVER SPONSOR: $1,500**

*(Can be more than one)*

• 6Ft. draped and skirted exhibitor table
• Two (2) chairs
• Customized slide in looping slide show presentation
• 1/4 page Ad in the Conference program (Seen by up to 600 AMC Families)
***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 29, 2026)*** • Logo placed on the bottom of Conference webpages

---

---

### **MOVING SPONSOR: $1,200**

*(Can be more than one)*

• This sponsorship will cover our conference moving expenses, which include all of our setup items and AMCSI Shop.
• 1/4 page Ad in the Conference program (Seen by up to 600 AMC Families)
***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 29, 2026)*** • Logo placed on the bottom of Conference webpages

---

---

### **BRONZE SPONSOR: $800**

*(Can be more than one)*

• Name/Company listed on a Bronze Donor Slide in a looping slide show presentation
• Logo placed on the bottom of Conference webpages

---

---

### **PATRON SPONSOR: $300**

*(Can be more than one)*

• Listed on a shared Patron Donor Slide in a looping slide show presentation
• Name listed as Patron in the conference program

---

---

---

 *PAYMENT OPTIONS: CHECK VIA MAIL, PAYPAL (CREDIT CARDS), ONLINE ORDERS*

• **Online:** **Please fill out the form below and once you hit submit it will bring you to the payment form for you to pay for your Sponsorship.** *(GiveButter charges a transaction fee, below are your other options)*

• **Checks:** Make Checks Payable to: AMCSI, Please note “Conference Sponsor” on the memo line
Mail to: AMCSI, P.O. Box 6291, Spartanburg, SC 29304

• **Paypal:** You can pay with a major credit card, and you do not need an account.
You must email a copy of your completed form to bod@amcsupport.org
www.paypal.com | AMCSI Paypal Account: bod@amcsupport.org

#### The Sponsorship Submission Form

       Name   

  Email   

  Address   

  Address 2   

  City   

  State   

  Zip   

  Cell Phone   

  Phone   

  Contact Name   

  Email   

  Please provide a website link (if applicable)   

  Please provide social media links (if applicable)   

  PLEASE CHECK THE LEVEL OF SPONSORSHIP:  Legacy Sponsor - $10,000 Dinner Sponsor - $10,000 Conference T-Shirt Sponsor - $8,000 Platinum Sponsor - $5,000 Adaptive Sports Sponsor - $5,000 Gold Sponsor - $3,250 Silver Sponsor - $1,500 Moving Sponsor - $1,200 Bronze Sponsor - $800 Patron Sponsor - $300

  Please upload a logo, preferably as a true vector (EPS) file or a high-resolution file with a transparent background.   

If you have any questions please email ted@amcsupport.org

   Submit

**Categories:** 21st Annual AMCSI Conference, AMC Events, Archived

**Tags:** 21st Annual AMCSI Conference Sponsorship, Conference, Sponsorship

---

### [21st Annual AMCSI Conference Exhibitor](https://amcsupport.org/21st-annual-amcsi-conference-exhibitor/)

**Published:** August 12, 2025
**Author:** Ted Houser

**Content:**

### Welcome to our 21st Annual AMCSI Conference Vendors!

We’re excited to showcase the incredible organizations and businesses joining us this year, be sure to visit their tables during the conference!

**Interested in becoming a vendor?** Scroll down to explore vendor opportunities and complete the online registration form to reserve your spot. *(A downloadable & digtally fillable PDF version is also available below)*

 [ ![21st Annual AMCSI Conference AMCer Exhibitor](https://amcsupport.org/wp-content/uploads/2025/09/AMCOH26-exh-whitney-rmz-creations.jpg) ](https://www.facebook.com/people/RMZ-Creations/61568150349383/) 

##### [RMZ Creations](https://www.facebook.com/people/RMZ-Creations/61568150349383/)

Crafts · Design & fashion · Sewing & Alterations Service

  [ Etsy  ](https://www.etsy.com/shop/rmzcreationsus/)   [ Facebook  ](https://www.facebook.com/people/RMZ-Creations/61568150349383/)   [ Instagram  ](https://www.instagram.com/rmzcreationsky/)   [ Tiktok  ](https://www.tiktok.com/@rmzcreations)  

 [ ![The 21st Annual AMCSI Conference logo is at the top left, with ‘New Company Exhibitor’ written to the right of it. The background is a photo of Partners In Medicine at their exhibitor's table from the 20th Annual AMCSI Conference. In the center at the bottom, it says ‘Welcome RMZ Creations!’ with their logo centered under that. At the bottom is the artistic outline of the Columbus, Ohio, skyline in red behind a transparent to crimson red gradient on top of it. In the bottom right is the AMCSI Logo with the FB, IG, BlueSky, TikTok, YouTube & X logos, with @AMCSUPPORT on the bottom left & the hashtags #AMCOH26 #Exhibitor on the bottom right, both in white. Below that is the exhibitor link https://amcsupport.org/21st-annual-amcsi-conference-exhibitor/ to learn more about getting involved.](https://amcsupport.org/wp-content/uploads/2025/10/AMCOH26-exh-partners-in-medicine.jpg) ](https://partnersinmed.com/) 

##### [Partners In Medicine](https://partnersinmed.com/)

Cutting-edge technology · Life changing devices · Unparalleled services

  [ Globe  ](https://partnersinmed.com/)   [ Facebook  ](https://www.facebook.com/PartnersInMed)   [ Instagram  ](https://www.instagram.com/partnersinmedicine09/)  

 [ ![The 21st Annual AMCSI Conference logo is at the top left, with ‘New AMC Exhibitor’ written to the right of it. In the center, it says ‘Welcome’ with the Project Lightning Bug centered under that. At the bottom is the artistic outline of the Columbus, Ohio, skyline in red behind a transparent to crimson red gradient on top of it. In the bottom right is the AMCSI Logo with the FB, IG, BlueSky, TikTok, YouTube & X logos, with @AMCSUPPORT on the bottom left & the hashtags #AMCOH26 #Exhibitor on the bottom right, both in white. Below that is the exhibitor link https://amcsupport.org/21st-annual-amcsi-conference-exhibitor/ to learn more about getting involved.](https://amcsupport.org/wp-content/uploads/2025/08/AMCOH26-exh-project-lughtning-bug.jpg) ](https://www.facebook.com/projectlightningbug) 

##### [Project Lightning Bug](https://www.facebook.com/projectlightningbug)

Be sure to stop by their table to explore their handcrafted items and take home something special

  [ Facebook  ](https://www.facebook.com/projectlightningbug)  

 [ ![Platinum Sponsor announcement for AMCSI Conference 2026 featuring Shriners Children’s. A conference booth scene shows a smiling woman behind a table filled with small orange stuffed toys and giveaways, interacting with an attendee using a mobility device. The Shriners Children’s logo is prominently displayed with signage in the background. Bold text at the top reads “Platinum Sponsor.” Bottom text highlights the 21st Annual AMCSI Conference in Columbus, Ohio, July 1 to 4, 2026, along with AMCSI branding and social media icons. 
AMCSI Conference 2026, Shriners Children’s sponsorship, Arthrogryposis conference, AMCOH26, pediatric care nonprofit, disability community event, rare disease conference, Columbus Ohio event July 2026, AMCSI sponsor booth, inclusive healthcare support](https://amcsupport.org/wp-content/uploads/2025/08/AMCOH26-sponsor-shriners-platinum.jpg) ](https://www.shrinerschildrens.org/en) 

##### [Shriners Children’s](https://www.shrinerschildrens.org/en)

Crafts · Design & fashion · Sewing & Alterations Service

  [ Facebook  ](https://www.facebook.com/ShrinersChildrens/)   [ Instagram  ](https://www.instagram.com/shrinershospitals/)   [ X-twitter  ](https://x.com/shrinershosp)   [ Youtube  ](https://www.youtube.com/user/shrinershospitals)   [ Tiktok  ](https://www.tiktok.com/@shrinerschildrens)  

 [ ![The 21st Annual AMCSI Conference logo is at the top left, with ‘New COMPANY Exhibitor’ written under it with a photo of DRCE’S booth from the past conferecne. In the bottom middle left, it says ‘Welcome’ with the Alora Grove centered under that. At the bottom is the artistic outline of the Columbus, Ohio, skyline in red behind a transparent to crimson red gradient on top of it. In the bottom right is the AMCSI Logo with the FB, IG, BlueSky, TikTok, YouTube & X logos, with @AMCSUPPORT on the bottom left & the hashtags #AMCOH26 #Exhibitor on the bottom right, both in white. Below that is the exhibitor link https://amcsupport.org/21st-annual-amcsi-conference-exhibitor/ to learn more about getting involved.](https://amcsupport.org/wp-content/uploads/2025/08/AMCOH26-exh-drce.jpg) ](https://www.instagram.com/driverrehabcenter/) 

##### [Driver Rehabilitation Center if Excellence](https://www.instagram.com/driverrehabcenter/)

At DRCE our mission is to deliver exceptional, personalized services tailored to your unique driving & mobility needs.

  [ Instagram  ](https://www.instagram.com/driverrehabcenter/)  

 [ ![The 21st Annual AMCSI Conference logo is at the top left, with ‘New AMC Exhibitor’ written under it with a photo of Alora Grove’s booth from the past conferecne. In the bottom middle left, it says ‘Welcome’ with the Alora Grove centered under that. At the bottom is the artistic outline of the Columbus, Ohio, skyline in red behind a transparent to crimson red gradient on top of it. In the bottom right is the AMCSI Logo with the FB, IG, BlueSky, TikTok, YouTube & X logos, with @AMCSUPPORT on the bottom left & the hashtags #AMCOH26 #Exhibitor on the bottom right, both in white. Below that is the exhibitor link https://amcsupport.org/21st-annual-amcsi-conference-exhibitor/ to learn more about getting involved.](https://amcsupport.org/wp-content/uploads/2025/08/AMCOH26-exh-alora-grove.jpg) ](https://aloragrove.com) 

##### [Alora Grove](https://aloragrove.com)

Healing pain relief salve to address chronic pain

  [ Facebook  ](https://www.facebook.com/AloraGrove)   [ Instagram  ](https://www.instagram.com/aloragrovellc/)  

 [ ![](https://amcsupport.org/wp-content/uploads/2025/08/AMCOH26-exh-val.jpg) ](https://www.facebook.com/valerie.m.pepe) 

##### [Valerie Pepe](https://www.facebook.com/valerie.m.pepe)

Author of 3 books based on her life for adults & children

  [ Facebook  ](https://www.facebook.com/valerie.m.pepe)   [ Instagram  ](https://www.instagram.com/authorvaleriepepe)   [ Amazon  ](https://www.amazon.com/Deformed-Remarkable-Life-Valerie-Pepe-ebook/dp/B01LXYVHDJ/ref=sr_1_2)   [ Amazon  ](https://www.amazon.com/Deformed-My-Remarkable-Life-Continues-ebook/dp/B08KSJP166/ref=sr_1_3)   [ Amazon  ](https://www.amazon.com/Valeries-Remarkable-Steps-Valerie-Pepe-ebook/dp/B0B4GNV72D/ref=sr_1_6)  

 [ ![](https://amcsupport.org/wp-content/uploads/2025/08/AMCOH26-exh-theresa.jpg) ](https://www.theresalucas.com) 

##### [Theresa Lucas](https://www.theresalucas.com)

Theresa is an artist who helped make AMCSI official with Ani back in 2006! Every year at the conference, she celebrates this with a ‘Painting with Theresa’ session on the last day of the conference.

  [ Link  ](https://www.theresalucas.com)   [ Facebook  ](https://www.facebook.com/TheresaMLucas)   [ Instagram  ](https://www.instagram.com/amcreesa/)  

 [ ![Adaptive Sports Sponsor announcement graphic for AMCSI Conference 2026 featuring Adaptive Sports Connection. The image shows a person kayaking on calm water, wearing a red life vest and using adaptive paddling equipment. The Adaptive Sports Connection logo appears at the top under bold text reading “Adaptive Sports Sponsor.” The background includes water activity and outdoor scenery, representing inclusive recreation. The bottom section includes AMCSI branding, social media icons, and event details for the 21st Annual Arthrogryposis Multiplex Congenita Support Conference in Columbus, Ohio, July 1 to 4, 2026.](https://amcsupport.org/wp-content/uploads/2025/08/AMCOH26-sponsor-adaptive-sports.jpg) ](https://www.theresalucas.com) 

##### [Adaptive Sports Connection](https://adaptivesportsconnection.org/)

Empowering the human spirit since 1992, Adaptive Sports Connection is a 501 (c) (3) organization dedicated to serving children, veterans, and adults with disabilities through outdoor and therapeutic recreation and education.

  [ Link  ](https://adaptivesportsconnection.org/)   [ Facebook  ](https://www.facebook.com/adaptivesportsconnection/)   [ Instagram  ](https://www.instagram.com/adaptivesportsconnection/)  

 [ ![Adaptive Sports Sponsor announcement graphic for AMCSI Conference 2026 featuring TRAILS. The image shows a person kayaking on calm water, wearing a red life vest and using adaptive paddling equipment. The TRAILS logo appears at the top under bold text reading “Adaptive Sports Sponsor.” The background includes water activity and outdoor scenery, representing inclusive recreation. The bottom section includes AMCSI branding, social media icons, and event details for the 21st Annual Arthrogryposis Multiplex Congenita Support Conference in Columbus, Ohio, July 1 to 4, 2026.](https://amcsupport.org/wp-content/uploads/2025/08/AMCOH26-sponsor-adaptive-sports-trails.jpg) ](https://www.theresalucas.com) 

##### [TRAILS](https://www.utrails.us/)

TRAILS Adaptive focuses on the recreation, sports, wellness and education needs of people with complex physical injury or disease.

  [ Link  ](https://www.utrails.us/)   [ Instagram  ](https://www.instagram.com/trails_adaptive/)  

## **21st Annual AMCSI Conference Vendor**

### **[Online Form Below](https://amcsupport.org/21st-annual-amcsi-conference-exhibitor/#exh)** 

---

#### [**Click here to download a PDF file of the Conference Vendor Sales Kit**](https://amcsupport.org/21st-annual-amcsi-conference-2026-sales-kit/)

*(Note: you can open the PDF on a computer and type in your information & email it to us at (****)*

---

The Annual Arthrogryposis Multiplex Congenita Support, Inc. Conference provides an opportunity for people affected by arthrogryposis multiplex congenita (AMC) to gather and exchange ideas and support. During this annual 3-day event, over 500 family members and medical professionals learn from each other on “best practices” in the treatment of and living with AMC. Please join us as a conference Vendor! Note NO direct sales merchandise such as clothing, home goods, make-up, oils etc are permitted.

---

### General Vendor Information

• Vendors must be registered attendees of the Conference.
• Vendors are responsible for arranging power and internet access directly with the hotel. *(AMCSI does not handle these services.)* 
• Vendors may not plug into hotel wall outlets. Unauthorized use will result in hotel-imposed penalties.

##### **Tables may not be shared.**

### **DIRECT LITERATURE: $800**

• Company brochure included in Conference Registration Packet,5provided to each registered family
• Brochures must be approved by AMCSI prior to acceptance
• 1/2 page Ad in the Conference program
***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 29, 2026)***

---

---

###  **COMPANY VENDOR TABLE: $500**

• Available for individuals or organizations that are representing a corporation
• Two (2) representatives per table (each additional representative is $50.00)
• 6Ft. draped and skirted table
• Two (2) chairs
• Single line ID sign
• 1/2 page Ad in the Conference program
***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 29, 2026)***

---

---

###  **NON-COMPANY VENDOR TABLE: $250**

• Available for individuals or organizations that are **not** representing a corporation
• Two (2) representatives per table *(each additional representative is $50.00)*
• 6Ft. draped and skirted table
• Two (2) chairs
• Single line ID sign
• 1/2 page Ad in the Conference program
***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 29, 2026)***

---

---

###  **AMCer VENDOR TABLE: $150**

**• Available for individuals with Arthrogryposis**
• Two (2) representatives per table *(each additional representative is $50.00)*
• 6Ft. draped and skirted table
• Two (2) chairs
• Single line ID sign

---

###  **EXHIBITOR HOURS**

• Wednesday, July 1st: 4:00 pm – 8:00 pm *(Optional, Registration/Reception)*
• Thursday, July 2nd: 9:00 am – 12:30 pm & 1:30 pm – 6:00 pm
• Friday, July 3rd: 9:00 am – 12:30 pm & 1:30 pm – 6:00 pm
• Saturday, July 4th: 9:00 am – 1:00 pm

\*\*Exhibitors are required to be present and man booths during entire exhibitor hours (unless registered for the literature table). \*\*Electric and Internet access are not guaranteed. Check with the hotel for fees. \*\*Displays must be cleared by 6:30 pm, Saturday, July 12th, 2025

---

 *PAYMENT OPTIONS: CHECK VIA MAIL, PAYPAL (CREDIT CARDS), ONLINE ORDERS*

• **Online:** **Please fill out the form below and once you hit submit it will bring you to the payment form for you to pay for the Exhibitor or Vendor table that you are signing up for.** (GiveButter charges a transaction fee, below are your other options)

• **Checks:** Make Checks Payable to: AMCSI , Please note “Conference Sponsor” on memo line
Mail to: AMCSI, P.O. Box 6291, Spartanburg, SC 29304

• **Paypal:** You can pay with a major credit card and you do not need an account.
You must email a copy of your completed form to bod@amcsupport.org
www.paypal.com | AMCSI Paypal Account: bod@amcsupport.org

#### The Vendor Submission Form

       Name   

  Email   

  Address   

  Address 2   

  City   

  State   

  Zip   

  Cell Phone   

  Phone   

  Contact Name   

  Email   

  Please provide a website link (if applicable, not required)   

  Please provide social media links (if applicable, not required)   

  PLEASE CHECK THE LEVEL OF EXHIBITOR:  Direct Literature: $800 Company Vendor Table: $500 Non-Company Vendor Table $250 AMC Vendor Table $150

  Please upload a logo, preferably as a true vector (EPS) file or a high-resolution file with a transparent background.   

  Please upload any promotional photos.   

If you have any questions please email ted@amcsupport.org

   Send

**Categories:** 21st Annual AMCSI Conference, AMC Events, Archived

**Tags:** 21st Annual AMCSI Conference Exhibitor, Conference

---

### [21st Annual AMCSI Conference Schedule](https://amcsupport.org/21st-schedule/)

**Published:** November 30, 2025
**Author:** Ted Houser

**Content:**

## Annual Conference Events Include:

- First Time Attendee Session
- Professional Medical Support/Information Sessions
- AMC Peer Support Sessions
- Children’s Programming
- AMCSI Dinner
- AMCSI Prom
- Annual Public Meeting
- Annual Group Photo
- Annual Silent Auction
- AMCSI Merchandise Store
- Exhibitors

##### Full Conference Schedule

## Schedule is subject to change.

##### Wednesday, July 1, 2026

####      2:30 PM - 3:30 PM | Volunteers Meetup 

Location: Easton Foyer

####      4:00 PM - 6:45 PM | Registration & Tshirt Pickup | AMC Store | Vendors | Auction 

**Locations:**

- Registration & t-shirt pickup: Easton Foyer
- AMCSI Store: Easton Foyer
- Exhibitors/Vendors: Easton Foyer

####      7:30 PM - 8:15 PM | First-time Attendees Welcome 

Location: Easton C, D, E

####      8:15 PM - 9:00 PM | Preteen/Teen Meetup 

Location: Hotel Foyer

####      7:30 PM - 10:00 PM | Informal Social Time for All Attendees Hotel 

Location: Hotel Lobby/Bar

(Food *& drink on your own.)*

## Schedule is subject to change.

##### Thursday, July 2, 2026

####      8:00 AM - 6:00 PM | Registration/Tshirt Pickup | Silent Auction | AMC Store | Vendors 

**Locations:**

- Registration & TShirt Pickup: Easton Foyer
- AMCSI Store: Easton Foyer
- Exhibitors/Vendors: Easton Foyer
- Silent Auction: Regent 3

####      10:00 AM - 10:45 AM | Opening Ceremony - Keynote Speaker: Todd Craighead 

Born and raised in Stillwater, Oklahoma, Todd has degrees in Wildlife Conservation and Communications from Oklahoma State University. He has worked as a nature instructor at a children’s camp on the shore of Lake Superior, and a ranger with the U.S. Forest Service in Colorado. He then retired in 2025 after 30 years with the Oklahoma Department of Wildlife Conservation as producer and host of the award-winning television show, Outdoor Oklahoma. Currently, Todd is living out his childhood dream as a Ranger in Yellowstone National Park. His passions include hunting, camping, rock crawling in his 1980 Jeep CJ7, and his daughter Emily.

Location: Easton A & B

####      11:15 AM - 12:00 PM | Dr. Philip F. Giampietro 

##### What is a Genetic Evaluation and How Will it Benefit my Child?

In this session we will review the nuts and bolts of a genetic evaluation in the context of arthrogryposis multiplex congenita. We will discuss the components of a genetic evaluation including what historical and physical examination findings are important. The different types of genetic testing utilized in clinical practice and types of results which are expected along with limitations of testing will be highlighted. We will discuss categories of genes found to be associated with AMC. The process of genetic counseling will also be discussed.

**Location: Easton A**

####      11:15 AM - 12:00 PM | Adaptive Sports - Kimberly Kolstad 

##### Different Gear, Same Soul: Maintaining Identity through the “off-season.”

What happens when the thing that defines you is suddenly taken away? This powerful session dives into the identity crisis that follows injury, illness, or life disruption—and the often-unspoken grief of losing not just an activity, but a sense of self. Blending raw personal experience with clinical insight, we will challenge the idea that we are what we do, and instead reframe identity as something deeper, more resilient, and adaptable. Through adaptive sport and community connection, attendees will explore how to stay grounded in who they are—even when everything familiar shifts. Because identity doesn’t have an off-season—it evolves.

**Location: Easton B**

####      11:15 AM - 12:00 PM | Teen Girls with AMC 

**Location: Easton C**

####      11:15 AM - 12:00 PM | Teen Boys with AMC 

**Location: Easton D**

####      11:15 AM - 12:00 PM | Sib Shop 

**Location: Easton E**

####      12:00 PM - 2:00 PM | Lunch 

**On your own …**

####      2:00 PM - 2:45 PM | Dr. Lauren Hyer 

During this session Dr. Hyer will be discussing foot conditions in arthrogryposis. From clubfoot to congenital vertical talus, and everything in between, we will walk through what treatment looks like from infancy to adulthood.

**Location: Easton A**

####      2:00 PM - 2:45 PM | Driver Rehabilitation Center for Excellence  

##### Driving Rehab Solutions – Featuring cases where AMC was the primary diagnosis.

This session explores how individuals with Arthrogryposis Multiplex Congenita (AMC) can achieve independence with driving through working with a Certified Driver Rehabilitation Specialist. Planning can often begin early, and we will explain the comprehensive driving evaluation. Attendees will see a variety of case studies showcasing customized vehicle modifications. Attendees will gain insight into the full spectrum of adaptive driving solutions, ranging from low-tech to advanced high-tech steering and braking systems.

**Location: Easton B**

####      2:00 PM - 2:45 PM | Preteen Girls with AMC 

**Location: Easton C**

####      2:00 PM - 2:45 PM | Dads 

**Location: Easton D**

####      3:00 PM - 3:45 PM | Dr. Lisa V. Wagner 

##### Adventures in Autonomy

We all strive for autonomy and independence, but what does this look like in our real day-to-day lives? For AMC, independence has multiple layers. In this session, we will consider the balance of self-awareness, adaptive equipment, social considerations and more in our quest to be independent people living in an ever more connected world. Come ready to share and discuss your quest for autonomy.

**Location: Easton A**

####      3:00 PM - 3:45 PM | Dr. Reid Nichols 

##### Focused on the arthrogrypotic hip

This session focused on the arthrogrypotic hip, reviewing the unique anatomical and functional challenges associated with hip involvement in arthrogryposis. Discussion included clinical assessment of hip motion, stability, gait, pelvic alignment, and the impact of associated contractures on overall mobility and function. Relevant anatomy was reviewed, including soft tissue contractures, muscle imbalance, acetabular development, and the presence of unilateral or bilateral hip dislocation commonly seen in these patients. Treatment options were explored based on patient age, functional goals, and severity of deformity, ranging from conservative management and physical therapy to surgical interventions such as soft tissue releases, osteotomies, and hip reduction procedures. Emphasis was placed on individualized decision-making and balancing hip stability with preservation of mobility and functional independence.

**Location: Easton B**

####      3:00 PM - 3:45 PM | Moms of AMCers *(10 under)* 

**Location: Easton C**

####      3:00 PM - 3:45 PM | Adults with AMC Co-Ed 

**Location: Easton D**

####      4:00 PM - 4:45 PM | Dr. Kaveh Asadi-Moghaddam 

##### A tethered cord spinal cord:

A tethered cord spinal cord can contribute to weakness, imbalance, pain, and progressive deformity. When the spinal cord is under chronic tension, orthopedic correction alone may not lead to durable functional improvement. This session will highlight when to suspect a tethered cord and why a spine MRI evaluation is important in patients with AMC.

**Location: Easton A**

####      4:00 PM - 4:45 PM | Dr. Fran Guardo 

##### Early Intervention and Beyond

In this session, participants will learn about the variety of options available for infants and the subsequent interventions recommended as children age. We will discuss surgical options and the rehabilitation techniques employed to unlock and restore motion in various situations.

**Location: Easton B**

####      4:00 PM - 4:45 PM | Moms of AMCers *(ages 11-17)* 

**Location: Easton C**

####      4:00 PM - 4:45 PM | Preteen Boys with AMC 

**Location: Easton D**

####      4:00 PM - 4:45 PM | Parenting with AMC 

**Location: Easton E**

####      6:45 PM - 8:00 PM | Dinner 

Location: Easton A-E

## Schedule is subject to change.

##### Friday, July 3, 2026

####      8:00 AM - 5:00 PM | Registration/Tshirt Pickup | Silent Auction | AMC Store 

**Locations:**

- Registration & Tshirt Pickup: Easton Foyer
- AMCSI Store: Easton Foyer
- Exhibitors/Vendors: Easton Foyer
- Silent Auction: Regent 3

####      9:00 AM - 9:45 AM | Dr. David Feldman 

##### To help patients, parents and care givers to have the information to make informed decisions about making a thoughtful life plan for an individual with arthrogryposis

The purpose of my talk is to help patients, parents and care givers to have the information to make informed decisions about making a thoughtful life plan for an individual with arthrogryposis. I will be discussing how to create reasonable goals and expectations when dealing with arthrogryposis. What is available, surgically and non-surgically, to aid function? What is the sacrifice?

How can we achieve stronger muscles with more joint motion to achieve the outcomes we deem possible? At what age will we create these goals? Do we have to choose between standing and sitting? Would stem cells help?

**Location: Easton A**

####      9:00 AM - 9:45 AM | Mr. Bong Delrosario 

##### Beyond Labels:

This presentation offers an insightful look into my life journey, beginning in the third grade. I will highlight three different documentaries filmed at pivotal stages: one in elementary school, one spanning middle and high school, and a final one produced 29 years after the first. Alongside these films, I will share the personal trials and tribulations I have experienced throughout my life as a person with AMC.

**Location: Easton B**

####      9:00 AM - 9:45 AM | Men with AMC 

**Location: Easton C**

####      9:00 AM - 9:45 AM | Women with AMC 

**Location: Easton D**

####      10:00 AM - 10:45 AM | Dr. Noémi Dahan-Oliel's Team - Ms. Liezel & Ms. Sarah 

##### From Collaboration to Impact: Developing E-Learning for Rare Neuromuscular Diseases

Rare neuromuscular diseases present unique challenges for education and knowledge sharing among healthcare professionals, patients, families, and community partners. This presentation will highlight the importance and opportunity of co-developing meaningful educational resources through collaborative partnerships that include clinicians, researchers, patient advocates, and individuals with lived experience. We will describe the development process of an e-learning program for arthrogryposis, designed to improve access to reliable, practical, and patient-centered information. We will discuss key steps in the creation of the modules, including needs assessment, stakeholder engagement, content co-design, and adaptation for diverse audiences. Finally, we will explore the impact and broader implications of collaborative e-learning initiatives in rare diseases, including increased accessibility to knowledge, empowerment of patients and families, and opportunities to strengthen interdisciplinary care and international collaboration.

**Location: Easton A**

####      10:00 AM - 10:45 AM | Ms. Jan Shea & Mr.Jake Ehlers 

##### Let’s talk about college and education pathways after high school.

Be it a 2 or 4-year college, technical schools, or workforce programs – there are lots of choices and it can feel like a lot. Join Jake Gates-Ehlers and Jan Shea to learn about that transition out of high school. This informal presentation will go over some of those key differences between high school and college, discuss college accomodations, and create space to brainstorm that college search process. We want to help answer questions or give some tips about navigating some of those systems.

**Location: Easton B**

####      10:00 AM - 10:45 AM | Men with AMC *(continued)* 

**Location: Easton C**

####      10:00 AM - 10:45 AM | Women with AMC *(continued)* 

**Location: Easton D**

####      11:00 AM - 11:45 AM | Dr. Maureen Donohoe 

##### The Top 10: Things a PT might share that may surprise you

This session will address key aspects across the early years and into adulthood as it relates to therapy and function.

**Location: Easton A**

####      11:00 AM - 11:45 AM | Dr. Matthew Dobbs 

##### Atypical Clubfoot and Foot Deformities in Arthrogryposis

Arthrogryposis is associated with various foot deformities requiring specialized treatment expertise. In this session, I will discuss clubfoot subsets and their treatment. We will discuss other foot conditions such as vertical talus and progressive foot deformities associated with Arthrogryposis.

**Location: Easton B**

####      11:00 AM - 11:45 AM | Adults with AMC Dating 

**Location: Easton C**

####      11:00 AM - 11:45 AM | Grandparents of AMCers 

**Location: Easton D**

####      12:00 PM - 2:00 PM | Lunch 

**On your own …**

####      2:00 PM - 2:45 PM | Julie Melton  

Jammin’ with Julie

**Location: Easton A**

####      2:00 PM - 2:45 PM | Dr. Harold J. P. van Bosse 

##### A discussion designed to provide a structure to understand arthrogryposis

Arthrogryposis multiplex congenita is a term to describe a spectrum of disorders that all have in common babies born with multiple joint contractures. This talk is an overview, designed to provide a structure to understand arthrogryposis, the conditions that cause it, and the differences between diagnoses. There will be special focus on treatment of foot deformities (clubfoot and congenital vertical talus), hip deformities (contractures and congenitally dislocated hips), and knee contractures (both flexion and extension). Scoliosis will also be discussed, with an emphasis on different forms of treatment.

**Location: Easton B**

####      2:00 PM - 2:45 PM | Gay Straight Alliance 

**Location: Easton C**

####      2:00 PM - 2:45 PM | Significant Others/Caregivers 

**Location: Easton E**

####      3:00 PM - 3:45 PM | Misha Walker 

##### The Power of Authenticity

At a world that often pressures disabled people to shrink, soften, or perform acceptability, authenticity can become an act of freedom. In this talk, AMCSI ambassador and Dream Walker Project founder Misha Walker shares how embracing her full, unapologetic self transformed not only her confidence, but the way she moves through the world. Through personal stories, vulnerability, humor, and hard-earned perspective, this session explores the power of showing up truthfully in a body that society constantly tries to define for you. Attendees will leave with a deeper understanding of how authenticity can create connection, self-worth, visibility, and unexpected opportunities. More than anything, this talk is an invitation to stop hiding and start living fully as exactly who you are.

**Location: Easton A & B**

####      7:00 PM - 9:00 PM | AMCSI Prom  

Location: Easton A, B, C, D, & E

####      9:00 PM - 11:00 PM | Set up for Painting with Theresa (Regency 1 & 2) 

Location: Regency 1 & 2

## Schedule is subject to change.

##### Saturday, July 4, 2026

####      9:00 AM - 12:00 PM | AMC Shop 

Locations: Easton Foyer

####      9:00 AM - 12:00 PM | Silent Auction 

Silent Auction Location: Regency 3

###### *(All Bidding Ends At Noon.)*

####      10:00 AM - 10:45 AM | AMCSI Group Photo 

Location: Easton A-E

####      11:00 AM - 12:00 PM | Painting with Theresa 

Location: Regency 1 & 2

####      12:35 PM - 1:00 PM | Closing Ceremony 

Location: Easton A & B

##### Pre-Teen & Teen Group Activities

## Schedule is subject to change.

##### Wednesday, July 1, 2026

####      7:30 - 8:15 PM - First Time Attendees Welcome 

Location: Easton C, D, & E

####      8:15 - 9:00 PM - Pre Teen/Teen Meetup 

Location: Hotel Foyer

## Schedule is subject to change.

##### Thursday, July 2, 2026

####      11:15 - 12:00 PM - Teen Girls 

Location: Easton C

####      2:00 - 2:45 PM - Pre Teen Girls 

Location: Easton C

####      5:00 - 6:00 PM - Teen Pool Social 

Location: Hotel Pool

## Schedule is subject to change.

##### Friday, July 3, 2026

####      1:00 PM - 1:45 PM - Ice cream with Pre Teens 

Location: Meet in Lobby, will be at Graeter’s Ice Cream

##### Children's Schedule

 ![Brians Den Logo – Choldren's Programming In Honor Of Brian Wayne Page](https://amcsupport.org/wp-content/uploads/2025/03/Brians-Den_Logo.png) 

#### **DISCLAIMER: PARENTS MUST STAY WITH THEIR CHILDREN IN CHILDREN’S PROGRAMMING.**

#### Kids must have an adult (ages 16 or up) with them at all times, including children’s programming.

Location: Regent 1 & 2
*(Both Days)*

## Schedule is subject to change.

##### Thursday, July 2, 2026

####      2:00 PM | Make-it take it part 1 

Come “bee” creative with us in this make-it take-it session. Drop it at any point during part 1 or part 2 *(they are the same)* and make some fun things to take home.

####      3:00 PM | Make-it take it part 2 

Come “bee” creative with us in this make-it take-it session. Drop it at any point during part 1 or part 2 *(they are the same)* and make some fun things to take home.

###### **DISCLAIMER: PARENTS MUST STAY WITH THEIR CHILDREN IN CHILDREN’S PROGRAMMING.**

## Schedule is subject to change.

##### Friday, July 3, 2026

####      9:00 AM | Story Time with Tammy 

Come relax and listen to stories from Ms. Tammy!

####      10:00 AM | Escape Room! 

Information coming soon, stay tuned …

####      11:00 AM | Music Therapy with Julie 

Looking to Bee a star? Perfect opportunity is to jam out with Julie! She is a fellow AMCer that is a board certified music therapist! No experience necessary, all you have to do is just come! No pressure and all abilities are welcome! See you there!

####      2:00 AM - 4:00 PM | Game Time with Your Favorite Doctors and Therapists 

Drop in for as long or as short as you like – fun games will be set up in Children’s programming all afternoon! All doctors, therapists, and other medical professionals are invited to come play games with our kids and families. Have fun playing games with new friends, building with legos or magnet blocks, or just hanging out in a fun social space. This is a fun, unstructured time to play games with other AMC families and providers.

## CHILDREN’S PROGRAMMING & REMINDERS

- ALL children under the age of 18 MUST be supervised by an adult at ALL times. Due to the lack of volunteers, we are unable to provide childcare.
- Kids must have an adult (ages 16 or up) with them at all times, including children’s programming.
- An individual aged 14 or older MUST remain in the Children’s Programming Room with your child(ren) during all Children’s Programming.
- During Painting with Theresa please don’t let children ‘swim’ in the paint.
- Badges MUST be worn to all conference sessions, including prom, and activities. AMCSI reserves the right to deny entrance to conference events to individuals lacking conference ID badges. This is for the safety and security of all Attendees. You may be asked to return to your guestroom to get your badge. PLEASE wear them at all times in the conference area.
- Children’s Programming is available during conference sessions but is not childcare.
- Please use the hashtag #AMCOH26 when posting to social media!
- The hotel elevators are for the use of all guests, children are not permitted to “play” on the elevators.
- In being respectful of our presenters, individual conversations should be taken outside of the conference rooms during presentations.
- Areas outside of the conference rooms are available should your child need your full attention while a speaker is presenting.
- Please remember we are able to provide this conference through the generosity of our members and attendees.
- Alcohol is NOT permitted at any AMCSI event. Please visit one of the many establishments on the hotel property.
- Attendees may not use the conference space after scheduled events have ended for the day.
- As always, consult with your or your child’s physician before implementing any new ideas as a result of attending this conference.
- Please remember that aside from your hotel room, all hotel areas are considered “Public Spaces” and individuals who are not a part of our conference may pass through. Please keep all belongings you bring to the meeting space with you at all times and be aware of those around you.
- All Attendees agreed to abide by the code of conduct at registration. AMSCI reserves the right to enforce the code of conduct.

**Categories:** 21st Annual AMCSI Conference, AMC Events, Archived

**Tags:** 21st, 21st Annual AMCSI Conference Schedule, AMCSI, Annual, Conference, Schedule

---

### [21st Annual AMCSI Conference Important Documents](https://amcsupport.org/21st-annual-amcsi-conference-important-documents/)

**Published:** September 17, 2025
**Author:** Ted Houser

**Content:**

#### Important Documents

####      Code of Conduct 

We are committed to providing a friendly, safe and welcoming environment for all, regardless of gender, sexual orientation, disability, ethnicity, or religion. This code of conduct outlines our expectations for participant behavior as well as the consequences for unacceptable behavior.

We invite all sponsors, volunteers, speakers, attendees, media, exhibitors, and other participants to help us make the AMCSI Conference a safe and positive experience for everyone.

All event participants must abide by this code of conduct at all conference venues and conference-related social events.

All decisions about appropriate or inappropriate behavior are at the sole discretion of the event organizers AMCSI Board of Directors & Planning Team.

######  **EXPECTED BEHAVIOR**

- Be considerate and respectful.
- Refrain from demeaning, discriminatory, or harassing behavior and speech.
- Be mindful of your surroundings and of your fellow attendees. Alert conference organizers if you notice a dangerous situation or someone in distress.

######  **UNACCEPTABLE BEHAVIOR**

- Unacceptable behavior includes but is not limited to intimidating, harassing, abusive, discriminatory, derogatory, demeaning behavior, inappropriate physical contact, and unwelcomed sexual conduct by any attendees of AMCSI and related events like the after-hours networking parties.
- Harassment includes offensive verbal comments related to gender, sexual orientation, race, religion, or disability; inappropriate use of nudity and/or deliberate intimidation, stalking or following; harassing photography or recording in an aggressive manner; disruption of talks or other events.
- Inappropriate Clothing for Family Friendly Event
- Verbal, Written or Physical Abuse (pushing, shoving, or use of any physical force), threats, whatsoever against any person, which in any way creates a disturbance that is disruptive or dangerous.
- Possession of any item that can be used as a weapon and may cause danger to others.
- Any lewd behavior or offensive language, including but not limited to sexually explicit language, materials or conduct, profanity, obscene gestures, racial, religious, gender, or ethnic slurs.
- Drinking alcohol outside designated areas. Please drink responsibly.
- Possession or use of any illegal substance. AMCSI does not tolerate the use or abuse of illegal substances anywhere in the venue.
- Smoking in non-designated areas.
- Assembling for the purpose of, or resulting in, disturbing the peace, or committing any unlawful act.
- Failure to obey any rules or regulations of the Venue.

######  **CONSEQUENCES OF UNACCEPTABLE BEHAVIOR**

- Unacceptable behavior will not be tolerated.
- Anyone asked to stop unacceptable behavior is expected to comply immediately.
- If a participant engages in unacceptable behavior, the conference organizers may take any action they deem appropriate, up to and including expulsion from the conference without warning or refund.

######  **WHAT TO DO IF YOU WITNESS OR ARE A VICTIM OF UNACCEPTABLE BEHAVIOR**

- If you are subjected to unacceptable behavior, notice that someone else is being subjected to unacceptable behavior, or have any other concerns during the event, please notify a member of AMCSI Board of Directors and Planning Team as soon as possible. All reports will remain completely confidential.

The AMCSI Board of Directors and Planning Team will be available to help participants contact hotel venue security and/or local law enforcement as deemed necessary, or to otherwise assist victims in reporting unlawful unacceptable behavior.

If you have any questions, please contact the planning team at

[**info@amcsupport.org**]()

####      General Liability Waiver 

All persons participating in the 2026 AMCSI Conference in Columbus, Ohio, (hereinafter referred to as “Event”) held on July 1 – July 4, 2026 are required to read, agree to, and sign this waiver before participating.

I hereby release and forever discharge Arthrogryposis Multiplex Congenita Support, Inc., its Board of Directors, and any person working jointly and severally, volunteers, directors, officers, administrators, agents, and assigns (hereinafter referred to as “the Releasees”) from all liability for any and all claims or causes of action of any kind or nature whatsoever and particularly on account of any injuries, both to person and property, which may result from or develop in the future as a result of my participation in the Event.

I further agree that if, despite this Release and Waiver of Liability I or any person on my behalf makes a claim against the Releasees, I will indemnify, save and hold harmless the Releasees from any monetary losses including, but not limited to, legal fees and litigation costs. This release is binding on my heirs, executors, assigns, and administrators.

The undersigned is aware of the risks of participation in the Event. The undersigned assumes all risks. The risks include those foreseen and unforeseen, known and unknown. We may also share or disclose your data to comply with a court order or other legal obligation, to enforce the Site terms of use, and to protect the rights, property or safety of our users and other third parties.

We may disclose data to government or law enforcement officials or private parties as we determine, in our sole and absolute discretion, is necessary or appropriate to respond to claims or to comply with legal processes, to comply with laws, regulations or ordinances or to prevent or stop illegal, unethical or actionable activity.

If a minor child accompanies me and participates in the Event, I shall be responsible for supervising such minor child (or children). I agree to indemnify the Releasees from and against any claims for damages or injuries (to the child or third parties) to the extent such claims arise from or are related to my failure to exercise due care in supervision.

I acknowledge that photographs may be taken of persons taking part in the Event by AMCSI and waive any rights of compensation or ownership there to. I hereby authorize and consent to either or both of the Releasees, making make use of any Event-related photographs in which I and/or my minor child or children may be included for purposes of news reporting and/or public relations and, further, authorize either or both of the Releasees to publish and/or re-publish such photograph or photographs in the fundraising materials and literature in connection with the Event and other fundraising events.

I hereby declare that I:

- Have read, understood, and voluntarily accept the terms and conditions of this document.
- Recognize my right to seek legal counsel before submitting my registration form.
- Am waiving legal rights and in knowing this, I agree to it of my own free will.
- I am aware that my agreement to this Waiver and Release of Liability is in effect once I submit this registration form.

Please submit your full name on registration form, if you accept.

####      Photo Release 

1\. Video/audio capture of AMCSI sessions and activities is strictly prohibited without express written permission from BOTH: 1.) the session presenter/s, person/s, and 2.) AMCSI. AMCSI reserves all video/audio taping and photography rights at conferences and events. No video or audio taping is permitted in session rooms.

2\. Amateur video/audio capture and still photographs are permitted of ambient environments, informal exchanges, and sessions and activities not organized by AMCSI, outside of AMCSI session rooms, provided that appropriate permissions have been granted by the parties affected. AMCSI assumes no liability for copyright and/or intellectual property violations that may occur as a result.

3\. Under no circumstances may any length or quality of video/audio capture of AMCSI sessions be used for marketing, advertising, or commercial purposes without express written permission from BOTH: 1.) the session presenter/s, and 2.) AMCSI.

4\. Private recording is not allowed without permission. The Board of Directors are authorized to halt the creation of unauthorized recordings.

5\. Any costs associated with the creation of an audio/video record must be incurred by those wishing to create the audio/video recording unless funding is specifically authorized by the Board of Directors of AMCSI.

6\. Audio/video material created at an AMCSI event shall not be used by the recorders for financial gain without permission from the Board of Directors of AMCSI.

7\. AMCSI will be provided with a copy of each instance of audio/video recording created at an AMCSI event, within 30 days of the creation of the recording.

8\. Any costs associated with the creation of an audio/video record must be incurred by those wishing to create the audio/video recording unless funding is specifically authorized by AMCSI.

9\. AMCSI is authorized to reuse the copy in a non-profit manner that is consistent with AMCSI’s Mission and Vision.

10\. Requests for audio/video capture of AMCSI Events may be made by emailing bod@amcsupport.org

**Categories:** 21st Annual AMCSI Conference, AMC Events, Archived

**Tags:** Important Documents

---

### [21st Annual AMCSI Conference FAQs](https://amcsupport.org/21st-annual-amcsi-conference-faqs/)

**Published:** September 17, 2025
**Author:** Ted Houser

**Content:**

### 21st Annual AMCSI Conference FAQs

##### Event Registration & Membership Fees

    Why is AMCSI charging a registration fee? 

     AMCSI strives to provide a Conference that provides not only support to our community, but education as well. To do this, unfortunately it costs money. The VOLUNTEER planning team strives to keep costs as affordable as possible, but like everything else, costs continue to rise and donations are few. Therefore, we must charge a fee to help cover the costs of the event.

     What if I am already a Member? 

     If you already have a Membership please skip Step 1 & go to Step 2 “Conference Registration” button.

You will need your Membership # to register for conference.

     Who has to register? 

     Anyone who will be attending or participating in ANY AMCSI functions, including but not limited to sessions, AMC prom, or dinner, must be registered for the conference. This includes, but is not limited to, friends, personal care assistants, nurses, extended family, etc. This is for the safety and security of our attendees. Children (anyone under the age of 18) MUST be registered with an adult.

     If I am an Individual Member, can I bring additional family members/friends at member rates? 

     Since you do not have a family membership, any additional registrations would be at the non-member prices. Consider joining with a family membership! A family membership would be an option for those living in the same household. Others would need their own memberships.

**Note:** Anybody over 18 needs their own membership, regardless of “Family” status.

     We have a family membership, can we register our children as members? 

     If you have a family membership, your membership includes two adults and any minor children in the family. Therefore, your children can be registered at member rates. Adult children (18 and over) each need their OWN membership to register at member rates.

**Note:** Anybody over 18 needs their own membership, regardless of “Family” status.

     Where is my Membership number? 

     When you become a member, you will receive a **Membership Confirmation Email** with a link to view your Membership card & it should be in the bottom right corner of your Membership card image (on older cards) & in the upper right corner if you are a recent AMCSI Member.

***Note:** This is the current view of the Membership Cards from Zeffy. Older cards may have the number in the bottom right corner and may be difficult to read or see. Please email us if you have trouble with the older Membership card formatting at info@amcsupport.org.*

![](https://amcsupport.org/wp-content/uploads/2025/11/AMCSI-Membership-Card-sampke-1024x715.png)

     My child holds a lifetime membership, but I am not a member. Can I register under my child's membership? 

     If your child holds the membership in their name, only your child can register as a member. You and your second child would need to register at NON Member rates. (Consider a Family Membership!)

     We have a family membership, but our child is over the age of 18. Can they register under our family membership? 

     No. If your child is 18 or over, they are no longer considered a Minor Child. They would need to hold their own membership to AMCSI in order to register as a member.

**Note:** Anybody over 18 needs their own membership, regardless of “Family” status.

     Is the price for 1-day or all 3-days? 

     The ticket price is for all 3-days.

     Does AMCSI offer a One-Day Ticket? 

     No. Registration is for ALL 3-Days, we do not offer single-day tickets.

     What is your refund policy? 

     **When registering, attendees agree to the following refund terms:**

- All refund requests must be submitted **in writing** to **.**
- Requests made via social media **will not** be honored.
- The date of the email request will determine the refund amount.
- Eventbrite fees are **non-refundable**.

 **Refund Schedule:**

- **149 days prior to July 1, 2026** → Full refund minus $50 administrative fee + Eventbrite fees
- **90 days prior to July 1, 2026** → 50% refund minus $50 administrative fee + Eventbrite fees
- **60 days or less prior to July 1, 2026** → No refunds

 **Eventbrite Per Ticket Fees:**

- Service fee: 3.70% + $1.79 per ticket
- Processing fee: 2.90% per order
- Sales tax: 8.90%

Refunds will typically be processed within 14 days of official notification and within the refund limits.

 [  Go Back To Conference Homepage  ](https://amcsupport.org/21st-annual-amcsi-conference/) 

##### Traveling

    Acessible Traveling Information 

     ##### Attendees will be responsible for coordinating their own transportation throughout the conference.

**For those requiring wheelchair-accessible transportation, Columbus offers several options:**

- Yellow Cab of Columbus provides a limited number of wheelchair-accessible vans. Because availability is limited, we strongly recommend reserving accessible transportation at least 2-3 hours in advance whenever possible. Taxi service is generally available from 6:00 AM to 11:00 PM.
- If you can transfer from your wheelchair or folding scooter into a vehicle seat and store your mobility device in the trunk or rear cargo area, standard taxi and rideshare vehicles may also be an option.

**Additional transportation resources:**
• [Yellow Cab of Columbus](https://yellowcabofcolumbus.com/)
• [MobilityWorks Wheelchair Van Rentals](https://www.mobilityworks.com/wheelchair-vans-for-rent/)
• [Columbus Transport Services](https://www.experiencecolumbus.com/meetings/plan/accessibility/)
• [Safe Hands Transportation](https://safehandsohio.com/schedule/)
*(Note: Use the links above at your own risk. AMCSI is not responsible for the content, accuracy, or availability of external websites or resources linked.)*

Planning ahead will help ensure a smooth and stress-free conference experience. We encourage all attendees to review their transportation needs before arriving in Columbus.

     Adaptive Sports | Power Soccer Traveling Information 

     ##### ⚽ Power Soccer Participants at #AMCOH26 ⚽

Important travel tip before heading to Adaptive Sports!

**If you enter the school address into your GPS, it may direct you to the staff parking lot, which is a long distance from the gym entrance.**
📍 Instead, use GPS coordinates: 40.0860869, -82.8135438

🚗 **Biggest takeaway:**
DO NOT turn into the drive at the stoplight on Chatham Green Dr. This will take you to the staff lot.

➡️ Continue to Kardules Flds Way
➡️ Follow the drive toward the school building
➡️ Turn right
➡️ The gym entrance is located near the tennis courts and accessible ramp

📄 Click the button to download the complete Power Soccer directions.

 [  Download PDF Of Directions  ](https://amcsupport.org/amcoh26-adaptive-soccer-2/) 

 [  Go Back To Conference Homepage  ](https://amcsupport.org/21st-annual-amcsi-conference/) 

##### Hotel

    At what hotel is the conference? 

     **Hilton Columbus at Easton**
3900 Chagrin Drive
Columbus, OH 43219

**Note:** ***You will receive your Discounted AMCSI Hotel Booking Link in your Registration Confirmation Email.** Please use a valid email address during registration & check your spam or junk folder after registering for conference.*

     How much does the hotel room cost, and how do I get the group rate? 

     **Rooms & Rates** *(through our booking Link **ONLY**)*
• 1 King Mobility/hearing Access Ri Shwr – $159.00
• 2 Queen Beds with Walkin Shower – $159.00
• 1 King Mobility Accessible W/bathtub – $159.00
• 2 Queen Beds Mobility Accessible W/bathtub – $159.00
• 2 Queen Beds Mobility/hearing Acc W/bathtub – $159.00

**Disounted AMCSI Hotel booking link is received in your Registration Confirmation email.** *(Be sure to use a valid email address & check your junk/spam folder after registering for conference.)*

Once you click on the hotel booking link from your email confirmation, please look for this section on that webpage, the booking link is highlighted in yellow:

 ![](https://amcsupport.org/wp-content/uploads/2026/03/Hotel-Booking-link.jpg) 

     How do I book my room with the group rate? 

     After you register for the conference, you will receive a confirmation email. In that email will be a link to reserve your hotel room.

     How do I reserve an Accessible Room? 

     You will ind all of the accessible options when you receive your Hotel Booking link in you Conference Registration confirmation email.

If none are shown, please contact the hotel directly for availability.

**Hilton Columbus at Easton**
[(614) 414-5000](https://www.google.com/search?client=firefox-b-1-d&q=Hilton+Columbus+at+Easton+3900+Chagrin+Drive+Columbus%2C+OH+43219#)

     Does the hotel have lockout/connecting rooms? 

     Most hotels have lockout/connecting rooms. Please contact the hotel to cofirm their availability.

     Can I use a debit card to reserve my hotel room? 

     Yes, you may use a debit card to reserve your room. Please be aware the hotel will charge one night’s room and tax/fees to the card at the time of reservation. Also please note that when using a debit card during the event, the hotel will place a “30% Hold” on the reservation to cover any potential charges made to the room. Those funds will not be available until after they are refunded 5-10 days after checkout. This is not something under AMCSI’s control. Please contact the hotel directly with any questions.

     Can I cancel my Hotel Reservation? 

     Every hotel has different policies regarding room cancellations. Please contact the hotel directly.

     Can my reservation include days before or after the dates of the conference? 

     The three days prior to the start conference and the three days after conference ends are called “Shoulder Dates.” Based on hotel availability, rooms may be booked at our discounted rates on these dates.

     Is there a coin laundry on property? 

     No.

     PARKING 

      [ ![Hilton Easton Hotel Parking Entrance Update](https://amcsupport.org/wp-content/uploads/2026/06/Hotel-parking.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/Hotel-parking.jpg) 

##### HOTEL UPDATE!

**If you have attended a conference at the Columbus Hilton at Easton in the past, please note:**

You can only access the parking lot via the main entrance on Chagrin Drive. *(The entrances off of Easton Loop Way/Brighton Rose Way are no longer open, hopefully next year! :))*

**ALSO NOTE:** Although the booking website says parking is $12 per night, **parking is complimentary to AMCSI attendees**. *(It is a portion of the booking website that cannot be changed.)*

     Is it ok for my family to stay at a different hotel? 

     AMCSI recommends that, if at all possible, you stay at our conference hotel for several reasons. We have a contract with the hotel to fill a specific number of rooms (at a discounted rate) in return for use of the meeting space. If AMCSI does NOT fill the contracted block during the conference, we are charged a large fee. By staying at the conference hotel, you are helping AMCSI by doing *your part* to help support the conference. Staying at the conference hotel also provides greater opportunities to connect with other families and the speakers. Families have shared that they felt they missed out on parts of the conference by staying at another property.

 [  Go Back To Conference Homepage  ](https://amcsupport.org/21st-annual-amcsi-conference/) 

##### Conference

    Where will the sessions be held? 

     In the hotel meeting space. You don’t have to go outside!

     Is the conference a good place to bring siblings or should they stay home? 

     The WHOLE family is WELCOME to attend! We try to have sessions for everyone.

     Children’s Programming 

     AMCSI provides a room for Children’s Programming. ***This is NOT CHILDCARE***. An adult or responsible caregiver over the age of 16 is required to stay with all children. Parents/Caregivers MAY NOT LEAVE their child unattended for any reason in the Children’s Programming sessions.

     Can my child attend the sessions with me? 

     Your child may attend the sessions with you; however, please know that some of the medical sessions may include photographs of medical procedures that a child may find disturbing. We also ask that if your child needs your attention, you respect the speaker and attendees and care for them outside of the session room.

     Will we get a list of those attending with their contact information? 

     AMCSI will not publish our list of attendees for privacy reasons but we do include a blank page in our program for you to write down contact info from families you chose to exchange that with as well as have an “I attended” thread on our forums after the conference for those who choose to participate.

     When will AMCSI announce the location of the 22nd annual conference? 

     2026 and 2027 will both be in Columbus, Ohio. There will be no new announcement for 2027.

     Why can't I attend the sessions noted as "Moms, Dads, Grandparents, Siblings, Teens/Adults/Men/Women with arthrogryposis" with my spouse/teen/sibling? 

     To respect the privacy of individuals in these highly personal sessions, AMCSI tries to maintain an atmosphere of confidentiality and promote peer to peer connections during these sessions.

     I am not comfortable allowing my tween/teen with arthrogryposis to attend the session without me. How can you reassure me that discussions are age appropriate? 

     We have adults with arthrogryposis serving as moderators in this session, this is to assure that topics discussed are age appropriate.

**Teen/Tween Sessions:** Are two adults deep, with at least one of those adults typically being a member or former member of the BOD. Anybody in sessions with teens/tweens has been vetted.

 [  Go Back To Conference Homepage  ](https://amcsupport.org/21st-annual-amcsi-conference/)

**Categories:** 21st Annual AMCSI Conference, AMC Events, Archived

**Tags:** Conference FAQs, FAQs

---

### [Bees & Stars | 21st Conference Prom](https://amcsupport.org/prom-bees-stars/)

**Published:** February 19, 2026
**Author:** Ted Houser

**Excerpt:** AMCSI | 21st Annual AMCSI Conference Prom - themed Bees & Stars

**Content:**

# 🐝✨ BEE A STAR AT PROM ✨⭐

This year’s prom theme is Bees & Stars, & we cannot wait to celebrate with you.

Enjoy an evening of music, dancing, & a fun time to celebrate & shine!

👗 What to wear (Come as you are or lean into the theme) 
• Gold, black, and honey-inspired looks 
• Celestial sparkle, stars, shimmer, and glow
 • Creative bee & constellation details
• Family-friendly attire required

📍 Location: Columbus Host Hotel 
📅 July 1 to July 4, 2026 
👥 Open to all registered conference attendees

**Conference badge required for entry**
**Alcohol-free event**

### Follow the steps below to register for conference!

#### Step 1

 [  Check/Become A Member  ](https://www.zeffy.com/en-US/ticketing/6808115b-4616-4e5c-bdae-9eb758bd4975) 

#### Step 2

 [  Early-Bird Registration  ](https://www.eventbrite.com/e/1492533189949) 

## A few photos from last year's Prom

 [ ](https://amcsupport.org/wp-content/uploads/2026/02/AMCSI-prom-6.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/AMCSI-prom-4.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/AMCSI-prom-7.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/AMCSI-prom-3.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/AMCSI-prom-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/AMCSI-prom-5.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/AMCSI-prom-1.jpg) 

**[View Bob’s full Prom photo library here.](https://www.bobwellmon.com/Other/AMCSI/AMCSI-Annual-Conference-2025/Celebrating-in-Style-Prom-Attendees)**

**Categories:** 21st Annual AMCSI Conference, AMC Events, Archived

**Tags:** Bees &amp; Stars, Bees and Stars, Columbus, Conference prom, Ohio, Prom, Stars

---

### [20th Sponsorship Signup](https://amcsupport.org/20th-sponsorship-signup/)

**Published:** October 12, 2024
**Author:** Ted Houser

**Content:**

---

### **20th Annual AMCSI Conference Sponsorship 
[Online Form Below](https://amcsupport.org/20th-sponsorship-signup/#sponsor)** 

---

#### [**Click here to download a PDF file of the Conference Sponsorship Sales Kit**](https://amcsupport.org/wp-content/uploads/2025/03/AMCSI25_Sales_Kit.pdf)

*(Note: you can open the PDF on a computer and type in your information & email it to us at ****)*

---

The Annual Arthrogryposis Multiplex Congenita Support, Inc. Conference provides an opportunity for people affected by arthrogryposis multiplex congenita (AMC) to gather and exchange ideas and support. During this annual 3-day event, over 500 family members and medical professionals learn from each other on “best practices” in the treatment of and living with AMC. Please join us as a conference sponsor!

### **EXCLUSIVE PRESENTING SPONSOR: $10,000**

AMCSI’s Presenting Sponsorship option is the highest level of Sponsorship offered. This affords Sponsor named media and advertising partnership status across the board as the presenter of all AMCSI Conferences, Mini-Meetups & all Conference/Meetup promotions.
**Naming**
• As the presenting Sponsor, anytime the AMCSI Conference logo is used, the presenting Sponsor’s logo will be used in conjunction. The official name of the event becomes “19th Annual AMCSI Conference presented by SPONSOR”

**Media**
• First option on all incoming media, handled by the AMCSI media
• Dedicated email-announcing Sponsorship. Inclusion on all subsequent emails

**Logo Exposure**
• All logo use will be approximately 25% larger than any other Sponsor
• All advertising (Print, Outdoor, Online – seen by up to 20k followers across our social media)
• All pages of www.amcsupport.com
• Official Show Program

**Online Exposure** • Logo inclusion on header image or video
• Permanent large header logo banner on All Conference webpages www.amcsupport.org (Run of site)
• Featured Conference speaker posts on www.amcsupport.org
• All email marketing campaigns
• Inclusion on all facets of @amcsupport social network including all header and profile images

**Onsite Exposure**
• 6Ft. draped and skirted exhibitor table
• Two (2) chairs
• Exhibitor Registration Sponsor-branded. All production costs are the responsibility of AMCSI.
• Check-In/Tshirt pickup counter Sponsor-branded. All production costs are the responsibility of AMCSI.
• Bold exhibitor listing within Official Conferecne Program
• Seen by up to 600 AMC Families

**Conference Program Exposure**
• Cover of Official Show Program
• 2 page premium spread (Seen by up to 600 AMC Families)
***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 30, 2025)***
Other Notes
• First right of refusal to all future events

---

### **DINNER SPONSOR: $10,000**

AMCSI’s Presenting Sponsorship option is one of the highest levels of Sponsorship offered.

**Naming**
• As the Dinner Sponsor, anytime the AMCSI Conference logo is used, the Dinner Sponsor’s logo will be used in conjunction with any dinner promotions. The official name of the dinner becomes “19th Annual AMCSI Conference Dinner presented by SPONSOR.”

**Media**
• Dedicated email-announcing Sponsorship. Inclusion on all subsequent dinner emails

**Logo Exposure**
• All logo use will be approximately 25% larger than any other Sponsor
• Advertising (Online – seen by up to 20k followers across our social media)
• All pages of www.amcsupport.com
• Official Show Program

**Online Exposure**
• All email marketing campaigns
• Inclusion on all facets of the @amcsupport social network, including all header and profile images

**Onsite Exposure** • 6Ft. draped and skirted exhibitor table
• Two (2) chairs
• Check-in at Dinner counter Sponsor-branded. All production costs are the responsibility of AMCSI.
• Bold exhibitor listing within the Official Conference Program
• Seen by up to 600 AMC Families

**Conference Program Exposure**
• Cover of the Official Show Program
• 2-page premium spread (Seen by up to 600 AMC Families)
***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 30, 2025)***

---

### **CONFERENCE T-SHIRT SPONSOR: $8,000** 

• 6Ft. draped and skirted exhibitor table
• Two (2) chairs
• Your company’s logo on the back of the conference t-shirt (Seen all across the country after the event)
• Your company’s logo on the www.amcsupport.org sponsor page, with a direct link to your website for one year
• Full-page Ad in the Conference program (Seen by up to 600 AMC Families)
***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 30, 2025)*** 
• Social media Sponsor post (up to 20k followers across our social media)
• Logo placed on the bottom of Conference webpages
• AMCSI Gift Basket with a ribbon pin, ribbon magnet, and two silicone bracelets *($30 retail value)* • Customized slide-in looping slideshow presentation.

---

### **PLATINUM SPONSOR: $5,000**

• 6Ft. draped and skirted exhibitor table
• Two (2) chairs
• Your company’s logo on the www.amcsupport.org sponsor page, with a direct link to your website for one year
• Full page Ad in the Conference program (Seen by up to 600 AMC Families)
***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 30, 2025)*** 
• AMCSI Gift Basket with a ribbon pin, ribbon magnet, and two silicone bracelets ($30 retail value)
• Customized slide in looping slide show presentation
• Social media Sponsor post (up to 20k followers across our social media)
• Logo placed on the bottom of Conference webpages

---

### **GOLD SPONSOR: $3,250**

• 6Ft. draped and skirted exhibitor table
• Two (2) chairs
• Your company’s logo on the www.amcsupport.org sponsor page with a direct link to your website for one year
• 1/2 page Ad in the Conference program (Seen by up to 600 AMC Families)
***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 30, 2025)*** 
• AMCSI ribbon pin (retail value $24)
• Customized slide in looping slide show presentation
• Social media Sponsor post (up to 20k followers across our social media)
• Logo placed on the bottom of Conference webpages

---

### **SILVER SPONSOR: $1,500**

• 6Ft. draped and skirted exhibitor table
• Two (2) chairs
• Customized slide in looping slide show presentation
• 1/4 page Ad in the Conference program (Seen by up to 600 AMC Families)
***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 30, 2025)*** • Logo placed on the bottom of Conference webpages

---

### **BRONZE SPONSOR: $800**

• Name/Company listed on a Bronze Donor Slide in a looping slide show presentation
• Logo placed on the bottom of Conference webpages

---

### **PATRON SPONSOR: $300**

• Listed on a shared Patron Donor Slide in a looping slide show presentation
• Name listed as Patron in the conference program

---

---

 *PAYMENT OPTIONS: CHECK VIA MAIL, PAYPAL (CREDIT CARDS), ONLINE ORDERS*

• **Online:** **Please fill out the form below and once you hit submit it will bring you to the payment form for you to pay for your Sponsorship.** *(GiveButter charges a transaction fee, below are your other options)*

• **Checks:** Make Checks Payable to: AMCSI, Please note “Conference Sponsor” on the memo line
Mail to: AMCSI, P.O. Box 6291, Spartanburg, SC 29304

• **Paypal:** You can pay with a major credit card, and you do not need an account.
You must email a copy of your completed form to bod@amcsupport.org
www.paypal.com | AMCSI Paypal Account: bod@amcsupport.org

##### The Sponsorship Submission Form

       Name   

  Email   

  Address   

  Address 2   

  City   

  State   

  Zip   

  Cell Phone   

  Phone   

  Contact Name   

  Email   

  PLEASE CHECK THE LEVEL OF SPONSORSHIP:  Presenting Sponsor - $10,000 Dinner Sponsor - $10,000 Conference T-Shirt Sponsor - $8,000 Platinum Sponsor - $5,000 Gold Sponsor - $3,250 Silver Sponsor - $1,500 Bronze Sponsor - $800 Patron Sponsor - $300

  Please send a logo file to ted@amcsupport.org. Preferrably a true vector (eps) file or a large transparent background version of your logo, so we can then get you post on our socials as Sponsoring the Conference.   

   Submit

**Categories:** 20th Annual AMCSI Conference, AMC Events, Archived

**Tags:** 20th Annual AMCSI Conference, Norfolk, Sponsorship

---

### [20th Exhibitor Signup](https://amcsupport.org/20th-exhibitor-signup/)

**Published:** October 12, 2024
**Author:** Ted Houser

**Content:**

### **20th Annual AMCSI Conference Exhibitor 
[Online Form Below](https://amcsupport.org/20th-exhibitor-signup/#exh)** 

---

#### [**Click here to download a PDF file of the Conference Exhibitor Sales Kit**](https://amcsupport.org/wp-content/uploads/2025/03/AMCSI25_Sales_Kit.pdf)

*(Note: you can open the PDF on a computer and type in your information & email it to us at ****)*

---

The Annual Arthrogryposis Multiplex Congenita Support, Inc. Conference provides an opportunity for people affected by arthrogryposis multiplex congenita (AMC) to gather and exchange ideas and support. During this annual 3-day event, over 500 family members and medical professionals learn from each other on “best practices” in the treatment of and living with AMC. Please join us as a conference exhibitor! Note NO direct sales merchandise such as clothing, home goods, make-up, oils etc are permitted.

---

### **DIRECT LITERATURE: $800**

• Company brochure included in Conference Registration Packet,5provided to each registered family
• Brochures must be approved by AMCSI prior to acceptance
• 1/2 page Ad in the Conference program
***(Artwork to be provided by the exhibitor*** in *JPEG format at 300 dpi – must be supplied by 5/30/2025)*

---

### **COMPANY EXHIBITOR TABLE: $500**

• Two (2) representatives per table (each additional representative is $50.00)
• 6Ft. draped and skirted table
• Two (2) chairs
• Single line ID sign
• 1/2 page Ad in the Conference program
***(Artwork to be provided by the exhibitor*** in *JPEG format at 300 dpi – must be supplied by 5/30/2025)*

---

### **AMCer VENDOR TABLE: $50**

• Two (2) representatives per table (each additional representative is $50.00)
• 6Ft. draped and skirted table
• Two (2) chairs
• Single line ID sign
• 1/2 page Ad in the Conference program
***(Artwork to be provided by the exhibitor*** in *JPEG format at 300 dpi – must be supplied by 5/30/2025)*

---

### **EXHIBITOR HOURS**

• Wednesday, July 9th: 4:00 pm – 8:00 pm (Optional, Registration/Reception)
• Thursday, July 10th: 9:00 am – 12:30 pm & 1:30 pm – 6:00 pm
• Friday, July 11th: 9:00 am – 12:30 pm & 1:30 pm – 6:00 pm
• Saturday, July 12th: 9:00 am – 6:00 pm

\*\*Exhibitors are required to be present and man booths during entire exhibitor hours (unless registered for the literature table). \*\*Electric and Internet access are not guaranteed. Check with the hotel for fees. \*\*Displays must be cleared by 6:30 pm, Saturday, July 12th, 2025

---

 *PAYMENT OPTIONS: CHECK VIA MAIL, PAYPAL (CREDIT CARDS), ONLINE ORDERS*

• **Online:** **Please fill out the form below and once you hit submit it will bring you to the payment form for you to pay for the Exhibitor or Vendor table that you are signing up for.** (GiveButter charges a transaction fee, below are your other options)

• **Checks:** Make Checks Payable to: AMCSI , Please note “Conference Sponsor” on memo line
Mail to: AMCSI, P.O. Box 6291, Spartanburg, SC 29304

• **Paypal:** You can pay with a major credit card and you do not need an account.
You must email a copy of your completed form to bod@amcsupport.org
www.paypal.com | AMCSI Paypal Account: bod@amcsupport.org

**Any Exhibitor Table (vendor) engaging in the exchange of funds is required to obtain a City of Norfolk Business License.**

The Hilton Norfolk The Main has notified us that city agents will be present during the conference to conduct compliance checks. Vendors who do not have the required license are subject to immediate fines issued by the City of Norfolk. Please be advised that these fines are significant and will be the sole responsibility of the vendor.

To assist you, we have outlined the licensing process below. The license fee is $50 and involves three steps:

1. **Complete the Application:** 
2. **Submit for Zoning Approval:**  When prompted, please list “SPECIAL EVENT” as your location.
3. **Obtain Your License:** After zoning approval, you will need to contact the Commissioner of Revenue, who will issue an invoice for payment. Once the fee is paid, your business license will be finalized and issued.

Please note: There are no exceptions to this requirement. Every vendor engaging in sales must complete this process before participating in the event.

If you have any questions about the licensing process or need assistance, please do not hesitate to contact us. If you wish to cancel your Exhibitor Table participation, please notify us no later than June 1st.

We appreciate your attention to this important matter and your cooperation in ensuring a successful and compliant event for all.

##### The Exhibitor Submission Form Is Closed

**Categories:** 20th Annual AMCSI Conference, AMC Events, Archived

**Tags:** 20th Annual AMCSI Conference, Virginia

---

### [20th Program Form](https://amcsupport.org/20th-program-form/)

**Published:** October 12, 2024
**Author:** Ted Houser

**Content:**

### **20th Annual AMCSI Conference Program 
[Online Form Below](https://amcsupport.org/20th-program-form/#program)** 

---

#### [**Click here to download a PDF file of the Conference Exhibitor Sales Kit**](https://amcsupport.org/wp-content/uploads/2025/03/AMCSI25_Sales_Kit.pdf)

*(Note: you can open the PDF on a computer and type in your information & email it to us at ****)*

---

### Conference Program Specs

**Acceptable FIles:**
• Electronic ONLY (PDF, JPG, EPS, TIF)
• 300 DPI minimum resolution (Color Ads) (Please Embed All Images & Outline All Fonts)

If you have any questions about the file setup or acceptable files, please contact:
****

***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 30, 2025)***

 ![](https://amcsupport.org/wp-content/uploads/2023/12/FP_image_sample.jpg) 

**FULL PAGE SIZE IS – 5.5’’W x 8.5”’H**

***1/4’’ BLEED ON EACH SIDE*** 
***FULL PAGE BLEED FILE SIZE IS – 6’’W x 9’’H***

**BLACK LINE IS THE LIVE ART AREA** 
**KEEP ANYTHING IMPORTANT INSIDE THIS AREA** 
**5’’W x 8’’H**

\~~~~~~~~~~~~~~~~~~~~

**FULL PAGE CUT AD SIZE (5.5”W x 8.5”H):** 
• With 1/4 Bleed on each side = 6”W x 9’H 
(Bleed is any image or color that extends past the actual cut Ad size) 
• Please keep any important things like text inside the Live Area

 ![](https://amcsupport.org/wp-content/uploads/2023/12/HalfP_image_sample.jpg) 

**HALF PAGE SIZE** 
**5’’W x 3.75”’H** 
\~~~~~~~~~~~~~~~~~~~~ 
• THERE IS NO BLEED

 ![](https://amcsupport.org/wp-content/uploads/2023/12/program_wrtr_pg_size-683x1024.jpg) 

**QUARTER PAGE SIZE** 
**2.5’’W x 3.75”’H** 
\~~~~~~~~~~~~~~~~~~~~ 
• THERE IS NO BLEED

Sample Ad sizes are not actual sizes, if you have any questions, please contact:
****

**Reach For The Stars send a personalized note to your favorite AMCer, MAXIMUM of 200** characters (approximately 35 words)

---

 **PAYMENT OPTIONS:** CHECK VIA MAIL, PAYPAL (CREDIT CARDS), ONLINE ORDERS

**Online: Please fill out the form below and once you hit submit it will bring you to the payment form for you to pay for the Event Program options you are signing up for.** (GiveButter charges a transaction fee, below are your other options)

• **Checks:** Make Checks Payable to: AMCSI , Please note “Conference Program” on memo line
Mail to: AMCSI, P.O. Box 6291, Spartanburg, SC 29304

• **Paypal:** You can pay with a major credit card and you do not need an account.
You must email a copy of your completed form to bod@amcsupport.org
www.paypal.com | AMCSI Paypal Account: bod@amcsupport.org

##### The Program Ad Form Is Closed

**Categories:** 20th Annual AMCSI Conference, AMC Events, Archived

**Tags:** 20th Annual AMCSI Conference, Norfolk, Program

---

### [20th Annual AMCSI Conference Guest Speakers](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/)

**Published:** January 11, 2025
**Author:** Ted Houser

**Content:**

# Professional Guest Speakers

The following medical professionals have agreed to becoming guest speakers at our 20th Annual AMCSI Conference in Norfolk, VA, July 9-12, 2025. Appearances are subject to change.

###### To view the full schedule, please [**CLICK HERE**](https://amcsupport.org/20th-annual-amcsi-conference-schedule/)

 [ ![](https://amcsupport.org/wp-content/uploads/2024/07/AMCSI25_Appearacne_Luca-2.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#kumi) 

### Get Ready for an Unforgettable Experience! 

The 20th Annual AMCSI Conference in Norfolk, VA is turning up the energy — & we’re beyond excited to welcome **Luca “Lazylegz” Patuelli** as our special guest!

Luca is a world-renowned breakdancer, motivational speaker & founder of the ILL-Abilities™ International Dance Crew — a powerhouse group of dancers who prove that “No Excuses, No Limits” isn’t just a slogan, it’s a way of life.

You might recognize him from the Special Olympics in France, America’s Got Talent, or The Ellen Show — or maybe from his jaw-dropping performances in over 22 countries! Born with arthrogryposis, Luca transformed physical challenges into unstoppable creativity, developing a unique dance style that turns crutches into extensions of his art.

• Performed on global stages
• Choreographed award-nominated productions 
• Now appearing LIVE at AMCSI 2025!

This is a performance you do not want to miss!

🔗 Learn more about Luca & his mission: 
🌐 [**lucapatuelli.com** ](https://www.lucapatuelli.com/)
🌐 [**illabilities.com**](https://www.illabilities.com/)

 [  Register Today!  ](https://www.eventbrite.com/e/20th-annual-amcsi-conference-tickets-1089956692809?aff=oddtdtcreator) 

# Keynote Speaker

 ![Jennifer Kumiyama](https://amcsupport.org/wp-content/uploads/2024/07/AMCSIVA25_jennifer-kumiyama.jpg) 

  [ Facebook  ](https://www.facebook.com/jennifer.kumiyama/)   [ Instagram  ](https://www.instagram.com/kumirocks/)   [ Tiktok  ](https://www.tiktok.com/@kumirocks)  

### Jennifer Kumiyama

Jennifer was born with Arthrogryposis and uses a wheelchair daily. She identifies as an Asian, Pacific Islander & Black woman with a disability. She serves as Citywide Accessibility Coordinator at the City of Long Beach – where she is tasked with making sure the City is in compliance with Title II of the Americans with Disabilities Act.

A disability activist for over two decades, her work began in 2002 when Jennifer was cast in Disney’s “Aladdin; a Musical Spectacular” at Disney California Adventure Theme Park, where she was the first performer in a wheelchair to ever be on any Disney stage in the world. Jennifer used her performing platform at Disney to compete & win the title of Ms. Wheelchair California 2010 where she promoted empowerment for youth with disabilities, speaking throughout the state of California & the nation during her reign. Other credits include Carmen in ‘The Sessions’, MTV’s ‘awkward.’, & ‘Celebrity Undercover Boss’.

Recently, Jennifer can be heard as the voice of ‘Dahlia’ in Disney’s animated feature film, ‘WISH’.

She is currently a Communication Studies major at California State University Long Beach.

 ![Dr. Harold Van Bosse](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Harold_van_Bosse.jpg) 

### Dr. Harold J. P. van Bosse

Dr. Harold van Bosse has been practicing pediatric surgery exclusively since completing his orthopedic residency at the University of Illinois in Chicago in 1994, and his fellowship at Toronto’s Hospital for Sick Children in 1995. His specialty interests within pediatric orthopedics are arthrogryposis multiplex congenita (AMC), Prader-Willi syndrome (PWS), idiopathic clubfoot deformity, limb malalignment conditions, and pediatric spine deformities, especially of the growing spine. AMC and PWS alone make up more than 90% of his practice, allowing him to delve deeply into his special interest. He has published widely on topics related to arthrogryposis, clubfeet, and Prader-Willi syndrome. When developing an arthrogryposis center, the goals are to allow children with arthrogryposis to reach their fullest potential by addressing their limb deformities and helping them function/adapt to their limitations. Dr. Van Bosse considers himself privileged to follow patients from North and South America, Europe and Asia. He could not have gotten this far without the support of his wife, Ana.

Session Topic: AMC 101

 ![Speaker image kimberly kolstad the keynote speaker at the 19th Annual AMCSI Conference in Atlanta, GA](https://amcsupport.org/wp-content/uploads/2024/04/Speaker-image-kimberly-kolstad.jpg) 

### Ms. Kimberly Kolstad

Kimberly Kolstad is a full-time medical social worker at Craig H Neilsen Rehab Hospital at the University of Utah. For over 18 years she has been advocating for underprivileged individuals and most recently has had the opportunity to work with individuals with spinal cord injuries, amputations, and transplants. Kim has successfully created and runs a peer coaching program for patients with new spinal cord injuries. She works closely with TRAILS Adaptive Sports and has organized an event for Veterans with complex disabilities to experience the Tetra Watercraft. Kim has a love of adventure, and over the last two and a half years, her life has been changed for the better by participating in over 15 different adaptive sports, her favorites being snow skiing with the TetraSki, wake-surfing, and adaptive mountain biking. As a social worker and a person with AMC, Kim knows the importance of accessibility and inclusion for all. She is now advocating for adaptive sports to be known and accessible to all people with disabilities, especially those with AMC.

Session topic: Adaptive Sports

 ![](https://amcsupport.org/wp-content/uploads/2025/01/Jan-Shea-01.jpg) 

### Ms. Jan Shea

Jan Shea, MSW, joined Virginia Commonwealth University’s Center on Transition Innovations (CTI) in 2014, bringing a rich background in juvenile justice and mental health. As the program coordinator for the recently accredited ACE-IT in College program, Jan fosters a sense of belonging and community for young adults with intellectual disability pursuing inclusive higher education at Virginia Commonwealth University. Over the past decade, she has contributed to various CTI projects, including providing mental health support to transfer students and coordinating employment for women with traumatic brain injuries (TBI) and spinal cord injuries (SCI). Outside of work, Jan enjoys paddleboarding around Greater Richmond, spending time with her family, and pursuing her doctorate in Educational Leadership.

Session topic: College Transistions

 ![Chloe Sutterfield](https://amcsupport.org/wp-content/uploads/2025/06/Chloe-Sutterfield.jpg) 

### Mr. Chloe Sutterfield

My name is Chloe Sutterfield. I’m from Aylett, Virginia. I am attending James Madison University for grad school and will be studying communications and advocacy. I am also a musician, public speaker/advocate, actress, writer/published author, and I play lots of adaptive sports.

Session topic: College Transistions

 ![20th Annual AMCSI Conference Guest Speaker Theresa-Willkomm](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Thersa-Willkomm.jpg) 

### Dr. Therese Willkomm

Dr. Therese Willkomm, PhD, is an Associate Clinical Professor Emeritus in the Department of Occupational Therapy, at the University of New Hampshire. She is known nationally and internationally as the McGyva of Assistive Technology for her rapid and innovative approach in making assistive technology solutions in minutes for living, learning and working. Over the past 40 years, she has created over 2000 different assistive technology solutions; presented over 600 workshops in 42 states and 14 different countries; received many awards including the 2019 RESNA Fellow Award; and authored three books on creating assistive technology solutions in minutes.

Session topic: DIY

 ![Speaker-Phillip-Giampietro](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Phillip-Giampietro.jpg) 

### Dr. Philip F. Giampietro

Philip F. Giampietro, MD, PhD, is currently the Asok K. Ray, M.D. FRCS (EDIN) and Purnima Ray Endowed Professor of Pediatrics and Section Chief of Medical Genetics in the Department of Pediatrics at University of Illinois-Chicago School of Medicine. He received his B.S. in Biological Sciences at State University of New York at Stony Brook, Doctorate in Biomedical Sciences at the City University of New York and M.D. at the State University of New York at Stony Brook. Dr. Giampietro completed his internship in Pediatrics at the State University of New York at Stony Brook, a residency in Pediatrics at Long Island Jewish Medical Center, and a Fellowship in Medical Genetics at Weil Medical College of Cornell University. Throughout his career, he has been active in the education of medical students, genetic counseling students, physician assistants, and pediatric residents and fellows. Prior to his current position, Dr. Giampietro held positions at Rutgers -Robert Wood Johnson Medical School, Drexel University College of Medicine, University of Wisconsin- Madison, Marshfield Clinic, Marshfield Clinic and Weil Medical College of Cornell University. Dr. Giampietro’s research interests include dysmorphology and birth defects, in particular the genetics of congenital and idiopathic scoliosis. He has worked closely with orthopedic surgical colleagues, clinical and molecular geneticists, and epidemiologists to better understand genetic and environmental contributions to these conditions.

Session Topic: Genetics

 ![Dr. David Feldman](https://amcsupport.org/wp-content/uploads/2023/12/Dr_David_Feldman.jpg) 

### Dr. David Feldman

In 2015, Dr. David Feldman joined the Paley Institute to lead our new Spine Deformity Center and Hip Pain Center. Dr. Feldman was previously Professor of Orthopedic Surgery and Pediatrics as well as Chief of Pediatric Orthopedic Surgery NYU Langone Medical Center/ NYU Hospital for Joint Diseases. Dr. Feldman specializes in pediatric orthopedic surgery and subspecializes in children with scoliosis and severe limb and hip deformities. As well, he focuses his practice on conditions such as arthrogryposis, Multiple Hereditary Exostosis and Skeletal Dysplasias. After graduating from the Albert Einstein School of Medicine in 1988, Dr. Feldman interned in general surgery at NYU Langone Medical Center. He completed his residency in orthopedic surgery in June 1993 and spent the next year in fellowship at The Hospital for Sick Children Toronto with a special interest in pediatric orthopedic surgery and pediatric spine surgery. Dr. Feldman brings over 25 years of experience in pediatric orthopedics, spinal deformity and joint preservation to the practice. Since completing his studies, Dr. Feldman has been at the forefront of both simple and complex pediatric orthopedic treatments. He has helped many children with orthopedic deformities and conditions avoid surgery through early detection. His expertise with advanced non-surgical and surgical techniques has allowed hundreds of children to resume their normal activities after recovery times that are shorter than those of other methods.

Session topic: Lowers

 ![Dr. Reid Nichols from Nemours](https://amcsupport.org/wp-content/uploads/2025/01/Dr-headshots-Dr-Reid-Nichols.jpg) 

### Dr. Reid Nichols

Reid Nichols, M.D., FAOA, FAAOS, is a pediatric orthopaedic surgeon at Nemours Children’s Health, Delaware Valley, and Assistant Professor of Orthopedic Surgery, at Thomas Jefferson University. She received her undergraduate degrees from the University of Virginia and from Johns Hopkins University School of Nursing. She earned her medical degree from Northeastern Ohio Universities College of Medicine. After graduating from residency in orthopaedic surgery at Maimonides Medical Center in Brooklyn, NY, she completed a limb lengthening and reconstruction fellowship at the International Center for Limb Deformity in Baltimore, MD. Under the supervision of John Herzenberg, M.D., she received advanced training in the management of clubfeet. She received advanced training in pediatric orthopaedics after completing a fellowship at the Nemours/Alfred I. duPont Hospital for Children. She is currently the president of the Limb Lengthening and Reconstruction Society(LLRS). She is active in many societies, including the Pediatric Society of North America, LLRS, American Academy of Orthopaedic Surgeons, American Orthopedic Association, and the Ruth Jackson Orthopaedic Society. She has served as the BOS representative for LLRS and is currently the POSNA BOS representative. Dr. Nichols’ clinical interests include limb deformity and reconstruction, clubfoot, arthrogryposis, and pediatric trauma. She serves as the director of the Clubfoot Clinic and co-director of the Arthrogryposis Clinic.

Session topic: Hips

 ![Speaker-Dr-Maureen-Donohue](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Dr-Maureen-Donohue.jpg) 

### Dr. Maureen Donohoe

Dr. Donohoe is a board-certified pediatric clinical specialist specializing in pediatric orthopedics. She has worked with contracture disorders for over 30 years as the primary physical therapist in the hospital’s Arthrogryposis Program, Osteogenesis Imperfecta Program, and Clubfoot Program. Dr. Donohoe authored the chapters on arthrogryposis and osteogenesis imperfecta in all six editions of Physical Therapy for Children, authored Therapy, Orthotics and Assistive Devices for Osteogenesis Imperfecta in Osteogenesis Imperfecta: A Case-Based Guide to Surgical Decision-Making and Care, Ambulatory Assistive Devices for Children and Youth with Cerebral Palsy and Activities of Daily Living Supports for Persons with Cerebral Palsy in Cerebral Palsy 2nd edition, the Relapsed Clubfoot in Paediatric Clinical Case Studies, as well as Sports and Recreation in Children with Osteogenesis Imperfecta: Strategies to Enhance Performance. She has been involved in over ten research studies on the physical ability of individuals with arthrogryposis and club feet. She has lectured nationally and internationally on these topics. This is her 15th visit to share information at the AMCSI meeting.

Session topic: PT

 ![Bong D headshot](https://amcsupport.org/wp-content/uploads/2025/07/Bong_D-headshot.jpg) 

### Bong Delrosario

Currently serves as Director of Transportation Policy and Programs, for the Maryland Department of Disabilities. With an exceptional background dealing with statewide transportation issues concerning the disabled and older age communities. Well skilled in cross disabilities. Skilled in Policy Change, Strategic Public Relations Planning, Customer Service, Data Entry, Staff Recruitment, and IT Operations. Also serves as the Vice President of the “League of Extraordinary Gentlemen Society” (L.E.G.S.) a peer mentoring group. Prior to my current position as VP, I served as the President of the LEGS organization while also being involved in several other organizations including the Christopher Reeve Mentoring Program. I foresee a bright future for LEGS and the disability community with the assistance of a great network of team players taking the necessary actions required to be successful.

Session Topic: Accessible Travel

 ![20th Annual AMCSI Conference Guest Speaker Dr. Stephanie Russo](https://amcsupport.org/wp-content/uploads/2024/02/Dr-headshot-dr-stephanie-russo.jpg) 

### Dr. Stephanie Russo

Dr. Russo is a Pediatric Upper Limb and Peripheral Nerve Surgeon and Akron Children’s Hospital in Akron, Ohio. She specializes in caring for children with brachial plexus and other nerve injuries, spinal cord injuries, arthrogryposis, spasticity, and congenital hand differences. Dr. Russo directs the Motion Analysis Laboratory at Akron Children’s Hospital. In this role, she mentors graduate students and collaborates with several other institutions for research projects. Outside of work, Dr. Russo enjoys travel, food, ballet and volunteer work.

Session topic: Uppers

 ![20th Annual AMCSI Conference Guest Speaker Dr. Scott Oishi](https://amcsupport.org/wp-content/uploads/2025/01/Dr-headshot-dr-scott-oishi.jpg) 

### Dr. Scott Oishi

Dr. Scott Oishi is the Director of Hand Services in Texas Scottish Rite Hospital for Children’s Hand and Upper Limb Service, as well as the Program Director for the 6-mo. Pediatric Upper Extremity Surgery Fellowship Program. He is a Professor in the Departments of Plastic Surgery and Orthopaedic Surgery at the University of Texas Southwestern Medical Center at Dallas. Dr. Oishi grew up in Honolulu, Hawaii, and earned a Bachelor of Science degree in biology at Washington University in St. Louis, Missouri. He earned his medical degree at Tufts University School of Medicine in Boston, completed his general surgery residency at the University of Texas Health Science Center at San Antonio, and his plastic surgery residency at the University of Kentucky Medical Center in Lexington. He completed a hand and microvascular fellowship at the University of Texas Southwestern Medical Center at Dallas and as part of that fellowship, completed a rotation with the Hand Center at Texas Scottish Rite Hospital for Children. Dr. Oishi is a diplomate of the American Board of Plastic Surgery and holds a certificate of Added Qualifications in Surgery of the Hand. Dr. Oishi has made presentations throughout the United States and around the world, and he has authored and co-authored numerous publications.

Session topic: Uppers

 ![AMCSI24Speaker-image-Lisa-Wagner](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24Speaker-image-Lisa-Wagner.jpg) 

### Dr. Lisa V. Wagner

Dr. Lisa V Wagner DHS, OTR/L received her OT degree from the Medical University of South Carolina and her doctorate from the University of Indianapolis. Working for Shriners Hospitals for Children for the past 34 years has allowed Lisa to participate in various research projects resulting in peer-review articles, book chapter and the ability to speak nationally and internationally. She has co-developed three distinct outcome measures including the UBET, SHUEE and SCUES. She is a clinical instructor for the Assisting Hand Assessment. Passionate about children with AMC, she is currently collaborating on an outcome assessment for better understanding of the upper extremities.

Session Topic: OT

 ![20th Annual AMCSI Conference Guest Speaker Dr. Aaron Huser](https://amcsupport.org/wp-content/uploads/2024/07/Dr-Aaron-Huser.jpg) 

### Dr. Aaron Huser

Dr. Huser is a pediatric orthopedic surgeon specializing in lower extremity limb deformities and limb length discrepancies in both children and adults. He completed an additional year of training specifically for limb deformity and limb lengthening, and has experience caring for patients with rare or complex disorders that require limb reconstruction.

Session topic: Lowers

 ![20th Annual AMCSI Conference Guest Speaker Dr. Dan Zlotolow](https://amcsupport.org/wp-content/uploads/2024/07/Dr-Dan-Zlotolow.jpg) 

### Dr. Dan Zlotolow

Dr. Zlotolow is a Pediatric Upper Limb and Peripheral Nerve Surgeon at The Shriners Hospital for Children Philadelphia and Greenville, and The Hospital for Special Surgery in New York. He specializes in the care of children with Arthrogryposis, brachial plexus and peripheral nerve injuries, spinal cord injuries, complex post-traumatic deformities, congenital differences, and limb deficiencies. He leads medical outreach missions to Havana, Cuba and Kigali, Rwanda and has founded 3 professional societies including Plexus Nexus and the Pediatric Hand International Society of Surgeons (PHISOS). He travels nationally and internationally as a visiting professor and lecturer. He was also a team leader for Zion, the first pediatric hand transplant.

Session topics: Pediatric Uppers & Adult Uppers

 ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-Meet-The-Team-Dr-Sara-Lemin.jpg) 

### Dr. Sara Lemin

Dr. Sara Lemin is a board-certified Obstetrician Gynecologist practicing full-time in Canton, Ohio. She has served as the chairman of the Department of OB/GYN at Cleveland Clinic Mercy Hospital and is currently an Assistant Program Director of the OB/GYN residency program at Aultman Hospital/NEOMED. In addition to her private practice, Dr Lemin has a particular interest in the prenatal detection of arthrogryposis and raising awareness among pregnancy care providers in order to help more families prepare for the birth of their child with AMC. Dr Lemin and her husband Ian have seven children, including two boys with AMC, blessing them with a unique position at the intersection of AMC and pregnancy care. Together they founded the non-profit Take TIME For AMC, an organization dedicated to research and promotion of the prenatal detection of arthrogryposis. Dr Lemin is honored to work alongside her distinguished colleagues on the Medical Advisory Board for AMCSI.

Session topic: OB

 ![Speaker Dr. Arun Hariharan at the 19th Annual AMCSI Conference in Atlanta, Georgia](https://amcsupport.org/wp-content/uploads/2024/05/Speaker-Dr-Arun-Hariharan.jpg) 

### Dr. Arun Hariharan

Dr. Arun Hariharan is a pediatric orthopedic and spine surgeon at the Paley Institute, specializing in complex spinal deformities, including those found in arthrogryposis. He completed his medical education at the University of Michigan, followed by an orthopedic residency at the University of Maryland and Johns Hopkins, and pediatric orthopedic and spine fellowships at Nemours/A.I. duPont Hospital for Children and in Auckland, New Zealand. Actively involved in research and education, Dr. Hariharan has numerous publications and presentations and is a member of the Scoliosis Research Society (SRS) and the Pediatric Orthopaedic Society of North America (POSNA). His passion for patient care and innovation ensures the highest quality of care for his patients. Outside of his professional work, Dr. Hariharan enjoys spending time with his family and cheering for Michigan, Go Blue!

Session Topic: Coming soon.

 ![](https://amcsupport.org/wp-content/uploads/2025/01/Dr-Kevin-Park-web.jpg) 

### Dr. Kevin Park

Dr. Kevin Park is a board-certified physician specializing in Spinal Cord Injury (SCI) Medicine and Neurorehabilitation. As an Assistant Professor in the Department of Physical Medicine & Rehabilitation at the University of Utah, Dr. Park plays a pivotal role in adaptive sports community, resident and fellow education, multidisciplinary team leadership, and advanced spasticity management. Beyond the hospital setting, Dr. Park is a strong advocate for adaptive sports and community reintegration, recognizing the critical role recreation plays in the physical and emotional well-being of individuals with disabilities. They are actively involved with TRAILS (Technology, Recreation, Access, Independence, Lifestyle, and Sports), a pioneering adaptive recreation program at the University of Utah that empowers individuals with complex disabilities to engage in outdoor sports and active lifestyles. Through his work with TRAILS, Dr. Park has helped patients and athletes with disabilities gain access to skiing, handcycling, kayaking, and other adaptive recreational opportunities, emphasizing the importance of functional recovery, independence, and quality of life beyond the clinical setting.

Session topic: Adaptive Sports

 ![Dr. Noémi Dahan-Oliel](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-image-noemi.jpg) 

### Dr. Noémi Dahan-Oliel

Dr. Noémi Dahan-Oliel is a Clinician Scientist at Shriners Hospital for Children-Canada and has been an Associate Professor at McGill University, School of Physical and Occupational Therapy since 2014. Her research program focuses on improving clinical outcomes for children living with musculoskeletal conditions, specifically arthrogryposis. Research designs include mixed methods, stakeholder engagement, and knowledge translation. Together with a wonderful multidisciplinary and multisite research team, she obtained funding for several clinical research projects in arthrogryposis. These projects include developing a registry for children with arthrogryposis across North America, expanding a registry for arthrogryposis internationally, developing a measure for the upper limb specifically for children with arthrogryposis, and exploring social deprivation and costs of caring in arthrogryposis to improve care and advance research in arthrogryposis

Session Topic: Coming soon.

 ![Tammy DRCE](https://amcsupport.org/wp-content/uploads/2025/01/Tammy-DRCE.jpg) 

### Ms. Tammy Phipps

Tammy Phipps is an Occupational Therapist (OT) and Certified Driver Rehabilitation Center of Excellence CDRS. She has been practicing in the area of driver rehab for over 20 years, starting her first program at a hospital in Aberdeen, SD (2005). She deployed to Iraq in support of Operation Iraqi Freedom from June 2007-June 2008, while in Iraq MAJ (then CPT) Phipps was recruited to create the driving rehab program at the Department of Defense’s largest amputee care rehabilitation facility, Walter Reed Army Medical Center in Washington DC. She developed (2008-2016) and led the first comprehensive driving rehabilitation program in the Department of Defense. During her tenure she provided driving rehab services to over 600 military service members with limb-loss, traumatic brain injury, post-traumatic stress and anxiety, paralysis, burns, visual deficits and complex poly-trauma. The complex nature of the illnesses and injuries seen required her to be extremely innovative as “out of the box solutions” were not going to work. Her experience at Walter Reed provided her the unique perspective needed to start private practice. In August 2016, Tammy opened Driver Rehabilitation Center of Excellence, LLC (DRCE) in Chantilly V A. Her business combines driver rehabilitation and vehicle modifications all in one shop. She has recently expanded driver rehabilitation centers in Richmond V A and Columbus OH. She currently employs 13 driver rehab specialists whose common goal is to make community mobility / driving accessible to as many as they can reach.

Session topic: Driving Rehab Solutions

**Categories:** 20th Annual AMCSI Conference, AMC Events, Archived

**Tags:** 20th Annual AMCSI Conference, Guest Speakers

---

### [20th Annual AMCSI Conference Important Documents](https://amcsupport.org/20th-annual-amcsi-conference-important-documents/)

**Published:** January 11, 2025
**Author:** Ted Houser

**Content:**

## Important Documents

####      Code of Conduct 

We are committed to providing a friendly, safe and welcoming environment for all, regardless of gender, sexual orientation, disability, ethnicity, or religion. This code of conduct outlines our expectations for participant behavior as well as the consequences for unacceptable behavior.

We invite all sponsors, volunteers, speakers, attendees, media, exhibitors, and other participants to help us make the AMCSI Conference a safe and positive experience for everyone.

All event participants must abide by this code of conduct at all conference venues and conference-related social events.

All decisions about appropriate or inappropriate behavior are at the sole discretion of the event organizers AMCSI Board of Directors & Planning Team.

 **EXPECTED BEHAVIOR**

- Be considerate and respectful.
- Refrain from demeaning, discriminatory, or harassing behavior and speech.
- Be mindful of your surroundings and of your fellow attendees. Alert conference organizers if you notice a dangerous situation or someone in distress.

**UNACCEPTABLE BEHAVIOR**

- Unacceptable behavior includes but is not limited to intimidating, harassing, abusive, discriminatory, derogatory, demeaning behavior, inappropriate physical contact, and unwelcomed sexual conduct by any attendees of AMCSI and related events like the after-hours networking parties.
- Harassment includes offensive verbal comments related to gender, sexual orientation, race, religion, or disability; inappropriate use of nudity and/or deliberate intimidation, stalking or following; harassing photography or recording in an aggressive manner; disruption of talks or other events.
- Inappropriate Clothing for Family Friendly Event
- Verbal, Written or Physical Abuse (pushing, shoving, or use of any physical force), threats, whatsoever against any person, which in any way creates a disturbance that is disruptive or dangerous.
- Possession of any item that can be used as a weapon and may cause danger to others.
- Any lewd behavior or offensive language, including but not limited to sexually explicit language, materials or conduct, profanity, obscene gestures, racial, religious, gender, or ethnic slurs.
- Drinking alcohol outside designated areas. Please drink responsibly.
- Possession or use of any illegal substance. AMCSI does not tolerate the use or abuse of illegal substances anywhere in the venue.
- Smoking in non-designated areas.
- Assembling for the purpose of, or resulting in, disturbing the peace, or committing any unlawful act.
- Failure to obey any rules or regulations of the Venue.

**CONSEQUENCES OF UNACCEPTABLE BEHAVIOR**

- Unacceptable behavior will not be tolerated.
- Anyone asked to stop unacceptable behavior is expected to comply immediately.
- If a participant engages in unacceptable behavior, the conference organizers may take any action they deem appropriate, up to and including expulsion from the conference without warning or refund.

WHAT TO DO IF YOU WITNESS OR ARE A VICTIM OF UNACCEPTABLE BEHAVIOR

- If you are subjected to unacceptable behavior, notice that someone else is being subjected to unacceptable behavior, or have any other concerns during the event, please notify a member of AMCSI Board of Directors and Planning Team as soon as possible. All reports will remain completely confidential.

The AMCSI Board of Directors and Planning Team will be available to help participants contact hotel venue security and/or local law enforcement as deemed necessary, or to otherwise assist victims in reporting unlawful unacceptable behavior.

If you have any questions, please contact the planning team at

1-805-55-AMCSI (1-805-552-6274)

[info@amcsupport.org]()

####      General Liability Waiver 

All persons participating in the 2025 AMCSI Conference in Norfolk, VA, (hereinafter referred to as “Event”) held on July 9 – July 12, 2025 are required to read, agree to, and sign this waiver before participating.

I hereby release and forever discharge Arthrogryposis Multiplex Congenita Support, Inc., its Board of Directors, and any person working jointly and severally, volunteers, directors, officers, administrators, agents, and assigns (hereinafter referred to as “the Releasees”) from all liability for any and all claims or causes of action of any kind or nature whatsoever and particularly on account of any injuries, both to person and property, which may result from or develop in the future as a result of my participation in the Event.

I further agree that if, despite this Release and Waiver of Liability I or any person on my behalf makes a claim against the Releasees, I will indemnify, save and hold harmless the Releasees from any monetary losses including, but not limited to, legal fees and litigation costs. This release is binding on my heirs, executors, assigns, and administrators.

The undersigned is aware of the risks of participation in the Event. The undersigned assumes all risks. The risks include those foreseen and unforeseen, known and unknown. We may also share or disclose your data to comply with a court order or other legal obligation, to enforce the Site terms of use, and to protect the rights, property or safety of our users and other third parties.

We may disclose data to government or law enforcement officials or private parties as we determine, in our sole and absolute discretion, is necessary or appropriate to respond to claims or to comply with legal processes, to comply with laws, regulations or ordinances or to prevent or stop illegal, unethical or actionable activity.

If a minor child accompanies me and participates in the Event, I shall be responsible for supervising such minor child (or children). I agree to indemnify the Releasees from and against any claims for damages or injuries (to the child or third parties) to the extent such claims arise from or are related to my failure to exercise due care in supervision.

I acknowledge that photographs may be taken of persons taking part in the Event by AMCSI and waive any rights of compensation or ownership there to. I hereby authorize and consent to either or both of the Releasees, making make use of any Event-related photographs in which I and/or my minor child or children may be included for purposes of news reporting and/or public relations and, further, authorize either or both of the Releasees to publish and/or re-publish such photograph or photographs in the fundraising materials and literature in connection with the Event and other fundraising events.

I hereby declare that I:

- Have read, understood, and voluntarily accept the terms and conditions of this document.
- Recognize my right to seek legal counsel before submitting my registration form.
- Am waiving legal rights and in knowing this, I agree to it of my own free will.
- I am aware that my agreement to this Waiver and Release of Liability is in effect once I submit this registration form.

Please submit your full name on registration form, if you accept.

####      Photo Release 

1\. Video/audio capture of AMCSI sessions and activities is strictly prohibited without express written permission from BOTH: 1.) the session presenter/s, person/s, and 2.) AMCSI. AMCSI reserves all video/audio taping and photography rights at conferences and events. No video or audio taping is permitted in session rooms.

2\. Amateur video/audio capture and still photographs are permitted of ambient environments, informal exchanges, and sessions and activities not organized by AMCSI, outside of AMCSI session rooms, provided that appropriate permissions have been granted by the parties affected. AMCSI assumes no liability for copyright and/or intellectual property violations that may occur as a result.

3\. Under no circumstances may any length or quality of video/audio capture of AMCSI sessions be used for marketing, advertising, or commercial purposes without express written permission from BOTH: 1.) the session presenter/s, and 2.) AMCSI.

4\. Private recording is not allowed without permission. The Board of Directors are authorized to halt the creation of unauthorized recordings.

5\. Any costs associated with the creation of an audio/video record must be incurred by those wishing to create the audio/video recording unless funding is specifically authorized by the Board of Directors of AMCSI.

6\. Audio/video material created at an AMCSI event shall not be used by the recorders for financial gain without permission from the Board of Directors of AMCSI.

7\. AMCSI will be provided with a copy of each instance of audio/video recording created at an AMCSI event, within 30 days of the creation of the recording.

8\. Any costs associated with the creation of an audio/video record must be incurred by those wishing to create the audio/video recording unless funding is specifically authorized by AMCSI.

9\. AMCSI is authorized to reuse the copy in a non-profit manner that is consistent with AMCSI’s Mission and Vision.

10\. Requests for audio/video capture of AMCSI Events may be made by emailing bod@amcsupport.org

**Categories:** 20th Annual AMCSI Conference, AMC Events, Archived

**Tags:** 20th Annual AMCSI Conference, Important Documents

---

### [20th Annual AMCSI Conference Planning Committee](https://amcsupport.org/20th-annual-amcsi-conference-planning-committee/)

**Published:** January 14, 2025
**Author:** Ted Houser

**Content:**

# Conference Planning Committee

*(a.k.a. The Loon Crew)*

 [ ![](https://amcsupport.org/wp-content/uploads/2025/01/AMCSI-Meet-The-Team-2025-Michele.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#harold) 

### Ms. Michele Schaffer

Michele Schaffer and her husband Allen have four adult children, David, Andrew-AMC, Christopher, and Kaytlin. Michele currently works for the New Albany Plain Local School District as an Intervention Specialist. She joined the Board of Directors of Arthrogryposis Multiplex Congenita Support, Inc., in 2006. With the help of the amazing Loon Crew, she has planned the Annual Conference since 2010. In her free time, Michele enjoys reading, crafting, and volunteering. Michele and her family currently reside in Columbus, Ohio.

 [ ![conference-crew-betsy-gates](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-betsy-gates.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#harold) 

### Ms. Betsy Gates-Ehlers

Betsy, mom to Jake (16, AMCer) and Karl (10), has finally ended her career as a professional student and has begun to enjoy a little “free” time! Betsy, her wife Andrea, and the boys spend much of their time doing activities with Scouts including camping trips and service projects. Jake is a soon-to-be Eagle Scout and Karl is currently finishing up his time in Cub Scouts. They also enjoy camping as a family with their two dogs, Loki and Thor.

 [ ![conference-crew-maureen-goede](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-maureen-goede.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#harold) 

### Ms. Maureen Goede

Maureen was born in Chile and grew up all over South America until she moved to Miami at the age of 15. She met her husband Armand, and they started their family there before moving to Orlando after Hurricane Andrew. Her grandson Sean is an AMCer, and they were lucky enough to find out about AMCSI months before the first conference in Chicago. She has been a part of AMCSI since then and currently enjoys being a loon and heading the grandparent’s group. Maureen is an accountant and enjoys traveling and spending time with family.

 [ ![conference-crew-anna-van-bosse](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-anna-van-bosse.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#harold) 

### Ms. Ana van Bosse

Ana has a masters in business. After working in the private sector for almost 2 decades, she now enjoys charity work including big brothers big sisters, CASA and of course AMCSI. She loves spending time with friends and family and looks forward to vacations with her husband and two boys.

 [ ![](https://amcsupport.org/wp-content/uploads/2025/01/Jan-Shea-02.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#harold) 

### Ms. Jan Shea

Jan Shea (she/her) calls Richmond, VA home. She and her husband, James, embrace life to the fullest through adventure, travel, and laughter. Jan is the mother of Finley, Lydia (AMC Angel), and Groot (fur baby), an amateur paddleboarder, and a loyal friend. Professionally, Jan works with young adults with disabilities as they transition out of high school into what comes next. Jan brings warmth and commitment to her role, embodying the spirit of service in everything she does.

 [ ![](https://amcsupport.org/wp-content/uploads/2024/03/conference-crew-larina-swans0n-REV.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#harold) 

### Ms. Larina Swanson-Carter

Bio coming soon.

 [ ![Beth Sellers Head Shot Photo](https://amcsupport.org/wp-content/uploads/2025/01/Beth-Sellers-headshot.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#harold) 

### Ms. Beth Sellers

Beth is a mom to 3 kids at home, including 18 year old AMCer Taylin. Beth works as an assistive technology professional for Techvision, providing instruction to students who are blind or who have low vision. She also contracts with local school divisions to provide evaluations and resources for students and their IEP teams. Beth was recently appointed by the Governor of Virginia to the Virginia State Rehabilitation Council for the Blind and Visually Impaired. She also serves as a board member and officer for the local Center for Independent Living (Valley Associates for Independent Living) and in her spare time she volunteers for the local SPCA raising neonatal kittens.

**Categories:** 20th Annual AMCSI Conference, AMC Events, Archived

**Tags:** 20th Annual AMCSI Conference, Planning Committee

---

### [20th Annual AMCSI Conference Exhibitors](https://amcsupport.org/20th-annual-amcsi-conference-exhibitors/)

**Published:** January 21, 2025
**Author:** Ted Houser

**Content:**

### 20th Annual AMCSI Conference Exhibitors

We are excited to welcome this year’s Exhibitors in celebrating 20 years with our AMC Family at the 20th Annual AMCSI Conference!

Don’t miss the opportunity to learn, connect, & grow with the community dedicated to Arthrogryposis awareness, inclusion, & medical advancements.

#### **[CLICK HERE to register online for an Exhibitor Table & secure your spot today!](https://amcsupport.org/20th-exhibitor-signup/)** 

 [ ![](https://amcsupport.org/wp-content/uploads/2025/01/AMCSI25_sponsor-platinum-shriners.jpg) ](https://www.shrinerschildrens.org/en) 

##### [Shriners Children’s](https://www.shrinerschildrens.org/en)

Shriners Children’s has been providing hope and healing to children for more than 100 years. Our compassionate, prestigious doctors and care teams are committed to excellence in pediatric care.

  [ Link  ](https://www.shrinerschildrens.org/en)   [ Facebook  ](https://www.facebook.com/ShrinersChildrens/)   [ Instagram  ](https://www.instagram.com/shrinershospitals/)  

 [ ![20th AMCSI Annual Conference Silver Sponsorhip – ABLEnow®](https://amcsupport.org/wp-content/uploads/2025/01/AMCSI25_sponsor-silver-ablenow.jpg) ](https://www.ablenow.com/) 

##### [ABLEnow®](https://www.ablenow.com/?gad_source=1&gbraid=0AAAAADlva1y95oDm03dFCrw1pKbVKrqn0&gclid=Cj0KCQjw5azABhD1ARIsAA0WFUFu-ZUUBUu_75WXYfLIi54M83z_pkcv8DAakM9jPdi6lgb1ZN452pYaAhSeEALw_wcB)

More independence, greater financial security and a better quality of life – that’s the future ABLEnow is building. Save for today’s needs or invest for tomorrow in a tax-advantaged ABLE account that won’t impact the means-tested benefits critical to many with disabilities.

  [ Link  ](https://www.ablenow.com/)   [ Facebook  ](https://www.facebook.com/ABLEnowVA)   [ Instagram  ](https://www.instagram.com/ablenowva/)   [ X-twitter  ](https://x.com/ABLEnowVA)   [ Youtube  ](https://www.youtube.com/@ABLEnowVA)  

 [ ![](https://amcsupport.org/wp-content/uploads/2025/01/AMCSI25_sponsor-adaptive-sports-trails.jpg) ](https://www.utrails.us) 

##### [TRAILS](https://www.utrails.us)

TRAILS is a leader in adaptive Sports & Recreation programming, utilizing innovative technology and equipment designed and built at the University of Utah. Our expert medical and technical staff provide a fun and safe environment for beginners to seasoned pros in alpine and nordic skiing, water sports, cycling (road, mountain and virtual), swimming, wheelchair tennis and recoil shooting.

  [ Link  ](https://www.utrails.us)   [ Instagram  ](https://www.instagram.com/trails_adaptive/)  

 [ ![Sportable](https://amcsupport.org/wp-content/uploads/2025/01/AMCSI25_sponsor-adaptive-sports-sportable.jpg) ](https://sportable.org) 

[Sportable](https://sportable.org)

Making Sports Accessible

Sportable creates opportunities by making sports accessible and inclusive for individuals with physical disabilities and visual impairments.

  [ Link  ](https://sportable.org)   [ Facebook  ](https://www.facebook.com/SportableRVA/)   [ Instagram  ](https://www.instagram.com/sportablerva/)   [ X-twitter  ](https://x.com/SportableRVA)   [ Youtube  ](https://www.youtube.com/user/SportableRVA)  

 [ ![Theresa Lucas Artist](https://amcsupport.org/wp-content/uploads/2025/01/AMCSI25_exhibitor-theresa-lucas.jpg) ](https://www.theresalucas.com/) 

##### [Theresa Lucas Artist](https://www.theresalucas.com/)

 My name is Theresa, I’m a 58 year old Artist born with a rare “Diff” ability called arthrogryposis multiplex congenita (AMC). (I don’t like to say “DIS” ability, because to me “DIS” means cant, and I CAN, …..just differently) My passion is teaching kids (and adults) that you can do anything you put your mind to

  [ Instagram  ](https://www.instagram.com/marty.sheedy/)  

 [ ![Alora Grove Logo exhibitor design promo image](https://amcsupport.org/wp-content/uploads/2025/05/AMCSI25_exhibitor-Alora-Grove.jpg) ](https://www.instagram.com/marty.sheedy/) 

##### [Alora Grove](https://www.instagram.com/marty.sheedy/)

Register today & speak directly to Marty about his new project that will help you Soothe. Nourish. Thrive.

  [ Instagram  ](https://www.instagram.com/marty.sheedy/)  

 [ ![Project Lightning Bug](https://amcsupport.org/wp-content/uploads/2025/05/AMCSI25_exhibitor-Project-Lightning-Bug.jpg) ](https://www.facebook.com/profile.php?id=61567495760713) 

##### [Project Lightning Bug](https://www.facebook.com/profile.php?id=61567495760713)

Be the voice for the voiceless.

  [ Link  ](https://projectlightningbug.com)   [ Facebook  ](https://www.facebook.com/profile.php?id=61567495760713)  

 [ ![20th AMCSI Annual Conference Exhibitor](https://amcsupport.org/wp-content/uploads/2025/01/AMCSI25_exhibitor-d-r-c-e.jpg) ](https://www.driverrehabcenter.com) 

##### [DRCE](https://www.driverrehabcenter.com)

At Driver Rehabilitation Center of Excellence, LLC, their mission is to deliver exceptional, personalized services that address the unique driving and community mobility needs of each client. They are committed to finding the best solutions to maximize independence, empowering their clients to achieve their greatest potential.

  [ Link  ](https://www.driverrehabcenter.com)   [ Facebook  ](https://www.facebook.com/DriverRehabCenter)   [ Instagram  ](https://www.instagram.com/driverrehabcenter/)   [ Linkedin  ](https://www.linkedin.com/company/drcellc/)  

 [ ![Beyond Boundaries](https://amcsupport.org/wp-content/uploads/2025/01/AMCSI25_exhibitor-beyond-boundaries.jpg) ](https://www.beyondboundariesrva.org) 

##### [Beyond Baoundaries](https://www.beyondboundariesrva.org)

Beyond Boundaries is a non-profit based in Richmond, Virginia specializing in guiding participants with disabilities, veterans, underserved youth, and recovery programs on outdoor adventures.

  [ Link  ](https://www.beyondboundariesrva.org)   [ Facebook  ](https://www.facebook.com/beyondboundariesrva)   [ Instagram  ](https://www.instagram.com/beyondboundariesrva/)  

 [ ![](https://amcsupport.org/wp-content/uploads/2025/01/AMCSI25_exhibitor-partners-in-medicine-1.jpg) ](https://partnersinmed.com) 

##### [Partners In Medicine](https://partnersinmed.com)

Is a US-based distributor focused exclusively on delivering FDA-registered, best-in-class, foreign-manufactured assistive devices, such as the Jaco Robotic Arm, and other medical products to patients, clinicians, and caregivers.

  [ Link  ](https://partnersinmed.com)   [ Facebook  ](https://www.facebook.com/PartnersInMed)   [ Instagram  ](https://www.instagram.com/partnersinmedicine09)  

 [ ![](https://amcsupport.org/wp-content/uploads/2025/01/AMCSI25_exhibitor-val-pepe.jpg) ](https://www.instagram.com/authorvaleriepepe/) 

##### [Valerie Pepe](https://www.instagram.com/authorvaleriepepe/)

Valerie Pepe was born with Arthrogryposis Multiplex Congenita & after writing two books for grown-ups & meeting so many parents & children at AMC conferences, she decided to write a third book of true stories based on her life just for children.

  [ Instagram  ](https://www.instagram.com/authorvaleriepepe/)  

 ![](https://amcsupport.org/wp-content/uploads/2025/01/AMCSI25_exhibitor-lorelailooms.jpg) 

##### Lorelai Looms

Displaying her handmade bracelets.

 [ ![20th AMCSI Annual Conference Exhibitor - The Safety Sleeper®](https://amcsupport.org/wp-content/uploads/2025/01/AMCSI25_exhibitor-the-safety-sleeper.jpg) ](https://safetysleeper.com) 

##### [The Safety Sleeper®](https://safetysleeper.com)

The Safety Sleeper® is an enclosed bed system designed to keep a child safe inside. Their fabric is medical grade & our lightweight aluminum frame is incredibly strong. Every aspect of their design is intended to keep your loved one safe.

  [ Youtube  ](https://www.youtube.com/channel/UC8FJ9YCgDQLeCsJlgIaf3OA)   [ Facebook  ](https://www.facebook.com/thesafetysleeperbyabramsnation)   [ Instagram  ](https://www.instagram.com/thesafetysleeperbyabrams/)  

### Get Involved!

Do you have a company/organizations or know of any in your area and want to get involved in our 20th Annual AMCSI Conference? Click on the buttons below to view the options we have available or click on the lick to download our Conference Sales Kit today!

 [  Become A Sponsor  ](https://amcsupport.org/20th-sponsorship-signup/) 

 [  Become An Exhibitor  ](https://amcsupport.org/20th-exhibitor-signup/) 

[**CLICK HERE to view this years Exhibitors**](https://amcsupport.org/20th-annual-amcsi-conference-exhibitors/)

 [  Advertise In Program  ](https://amcsupport.org/20th-program-form/) 

#### [**Click here to download a PDF file of the Conference Sales Kit**](https://amcsupport.org/wp-content/uploads/2025/03/AMCSI25_Sales_Kit.pdf)

*(Note: you can open the PDF on a computer and type in your information & email it to us at ****)*

### See you in Norfolk!

**Categories:** 20th Annual AMCSI Conference, AMC Events, Archived

**Tags:** 20th Annual AMCSI Conference, Exhibitors

---

### [20th Annual AMCSI Conference FAQs](https://amcsupport.org/20th-annual-amcsi-conference-faqs/)

**Published:** January 31, 2025
**Author:** Ted Houser

**Content:**

### 20th Annual AMCSI Conference FAQs

*NOTE: if you are arriving to Norfolk on Tuesday to site see, everything is closed on Tuesday.*

##### Event Registration & Membership Fees

    Why is AMCSI charging a registration fee? 

     AMCSI strives to provide a Conference that provides not only support to our community, but education as well. To do this, unfortunately it costs money. The VOLUNTEER planning team strives to keep costs as affordable as possible, but like everything else, costs continue to rise and donations are few. Therefore, we must charge a fee to help cover the costs of the event.

     What if I am already a Member? 

     If you already have a Membership please skip Step 1 & go to Step 2 “Conference Registration” button.

You will need your Membership # to register for conference.

     Who has to register? 

     Anyone who will be attending or participating in ANY AMCSI functions, including but not limited to sessions, AMC prom, or dinner, must be registered for the conference. This includes, but is not limited to, friends, personal care assistants, nurses, extended family, etc. This is for the safety and security of our attendees. Children (anyone under the age of 18) MUST be registered with an adult.

     If I am an Individual Member, can I bring additional family members/friends at member rates? 

     Since you do not have a family membership, any additional registrations would be at the non-member prices. Consider joining with a family membership! A family membership would be an option for those living in the same household. Others would need their own memberships.

     We have a family membership, can we register our children as members? 

     If you have a family membership, your membership includes two adults and any minor children in the family. Therefore, your children can be registered at member rates. Adult children (18 and over) each need their OWN membership to register at member rates.

     Where is my Membership number? 

     When you become a member, you will receive a **Membership Confirmation Email** with a link to view your Membership card & it should be in the bottom right corner of your Membership card image.

 [  Become A Member  ](https://www.zeffy.com/en-US/ticketing/6808115b-4616-4e5c-bdae-9eb758bd4975) 

     My child holds a lifetime membership, but I am not a member. Can I register under my child's membership? 

     If your child holds the membership in their name, only your child can register as a member. You and your second child would need to register at NON Member rates. (Consider a Family Membership!)

     We have a family membership, but our child is over the age of 18. Can they register under our family membership? 

     No. If your child is 18 or over, they are no longer considered a Minor Child. They would need to hold their own membership to AMCSI in order to register as a member.

     Is the price for 1-day or all 3-days? 

     The ticket price is for all 3-days.

     What is your refund policy? 

     AMCSI offers the following refund policy that is agreed to when you register. All refund requests must be made in writing and sent to bod@amcsupport.org. Refund requests made via social media WILL NOT be honored. The date stamp on the email will determine the amount of refund according to the following schedule:

- 60+ days prior to Saturday, July 9, 2025– Full Refund minus a $25 administrative Fee & eventbrite fees
- 59-30 days prior to Saturday, July 9, 2025– 50% refund minus $25 administrative Fee & eventbrite fee
- 29 days or less prior to Saturday, July 9, 2025– – No Refunds
- Eventbrite Per Ticket fees are: Service fee: 3.70% + $1.79 per ticket, Processing fee: 2.90% per order, Sales tax: 8.90%

Refunds will typically be processed within 14 days of official notification and within the refund limits.

##### Hotel

    At what hotel is the conference? 

     Hilton Norfolk The Main, 100 EAST MAIN STREET, NORFOLK, VIRGINIA, 23510, USA

     How much does the hotel room cost, and how do I get the group rate? 

     The hotel is $129 + tax and fees per night. ($157 per night plus parking if applicable)

     How do I book my room with the group rate? 

     After you register for the conference, you will receive a confirmation email. In that email will be a link to reserve your hotel room.

     How do I reserve an Accessible Room? 

     When you are on AMCSI’s designated Conference Booking site, you must select *“**Show Accessible Rooms”***. If you do not select this option “Accessible Room”, only standard rooms will be listed as options.

***Accessible rooms are on a first come, first access basis. AMCSI does NOT assign accessible rooms.***

     Does the hotel have lockout/connecting rooms? 

     Most hotels have lockout/connecting rooms. Please contact the hotel to cofirm their availability.

     Can I use a debit card to reserve my hotel room? 

     Yes, you may use a debit card to reserve your room. Please be aware the hotel will charge one night’s room and tax/fees to the card at the time of reservation. Also please note that when using a debit card during the event, the hotel will place a “30% Hold” on the reservation to cover any potential charges made to the room. Those funds will not be available until after they are refunded 5-10 days after checkout. This is not something under AMCSI’s control. Please contact the hotel directly with any questions.

**EX:**  If you have a 5 night stay at your contracted $129 rate per night ($153.29, after taxes). Total Hold on your Debit card for the stay would be $766.45+$299.94 = $1066.39 total hold, with $299.94 refunded if no charges are applied to the room.

     Can I cancel my Hotel Reservation? 

     Every hotel has different policies regarding room cancellations. Please contact the hotel directly.

     Can my reservation include days before or after the dates of the conference? 

     The three days prior to the start conference and the three days after conference ends are called “Shoulder Dates.” Based on hotel availability, rooms may be booked at our discounted rates on these dates.

     Is there a coin laundry on property? 

     Yes, there are laundry facilities located in the hotel.

     PARKING 

     As of 1/22/2025, the hotel offers both Self-Parking ($20) and Valet-Parking ($28) per night. AMCSI recommends utilizing Valet parking if you have a vehicle over 6′ 8″.

The Hotel Parking Garage has a 6’ 8” clearance. Oversize parking for vehicles over 7 foot will be at the mall or at Harbor Park, approximately a 4-5 minute walk from the hotel.

There are several surface lots and parking garages near the Hilton Norfolk The Main hotel.

All parking garages are owned by the City of Norfolk and prices will change during peak season.

---

#####  **Parking Garages/Lots**

For those with handicapped signs/placards/license plates:

Park **FREE** at any on-street metered space for the posted time (2 hours at most downtown meters, except Waterside, which is 15 minutes). Does not apply to parking garages. (Source: ****)

Metered Parking is **FREE** after 6 PM every Monday through Saturday. Parking is free ALL DAY on SUNDAY. (Source: [**https://norfolk.gov/FAQ.aspx?QID=145**](https://norfolk.gov/FAQ.aspx?QID=145))

---

#### These locations were vetted by a member of our community:

[**Education Surface Lot**](https://www.downtownnorfolk.org/go/education-surface-lot) *(I couldn’t get a picture of this because there was a lot of construction and it’s right next to the highway. I also do not recommend this cause It’s far from the Hilton.)*

The **MACARTHUR MALL** has a 7′ foot clearance *(It’s a bit of a walk in my AMC’er opinion. But i guess it depends on the family.)*

Here’s the MacArthur Mall rates: [**https://www.norfolk.gov/Facilities/Facility/Details/Macarthur-Center-South-Garage-9**](https://www.norfolk.gov/Facilities/Facility/Details/Macarthur-Center-South-Garage-9)

Also here is the page that includes all the parking garages and lots and their rates: [**https://www.norfolk.gov/Facilities**](https://www.norfolk.gov/Facilities)

 [ ![](https://amcsupport.org/wp-content/uploads/2025/03/Cedar-Grove-Parking.jpg) ](https://amcsupport.org/wp-content/uploads/2025/03/Cedar-Grove-Parking.jpg) 

[**Cedar Grove Surface Lot**: ](https://www.downtownnorfolk.org/go/cedar-grove-surface-lot)1000 Monticello Avenue

*(I personally do not recommend this lot. It’s dangerous towards this area especially at night!! ALSO, this is SUPER far from the Hilton — not walkable)*

 [ ![](https://amcsupport.org/wp-content/uploads/2025/03/East-Street-Lot.jpg) ](https://amcsupport.org/wp-content/uploads/2025/03/East-Street-Lot.jpg) 

**[East Street Surface Lot:](https://www.downtownnorfolk.org/go/east-street-surface-lot)** 100 East Street

*(this one is kind of far from the Hilton. It’s a really long walk)*

 [ ![](https://amcsupport.org/wp-content/uploads/2025/03/East-Street-Lot-2.jpg) ](https://amcsupport.org/wp-content/uploads/2025/03/East-Street-Lot-2.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2025/03/Main-Street-Garage.jpg) ](https://amcsupport.org/wp-content/uploads/2025/03/Main-Street-Garage.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2025/03/Main-Street-Garage-sign.jpg) ](https://amcsupport.org/wp-content/uploads/2025/03/Main-Street-Garage-sign.jpg) 

*[**Main Street Garage:**](https://www.downtownnorfolk.org/go/main-street-garage) 230 East Main Street*

*(Has 7′ 2” clearance)*

 [ ![](https://amcsupport.org/wp-content/uploads/2025/03/West-Plume-Street-Garage.jpg) ](https://amcsupport.org/wp-content/uploads/2025/03/West-Plume-Street-Garage.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2025/03/West-Plume-Street-Garage-sign.jpg) ](https://amcsupport.org/wp-content/uploads/2025/03/West-Plume-Street-Garage-sign.jpg) 

*[**West Plume Street Garage:**](https://www.downtownnorfolk.org/go/west-plume-street-garage)* 135 West Plume St.

*(It’s safer in my opinion and a bit closer to the Hilton. Also, i couldn’t find the clearance measurement.)*

 [ ![](https://amcsupport.org/wp-content/uploads/2025/03/Town-Point-Garage.jpg) ](https://amcsupport.org/wp-content/uploads/2025/03/Town-Point-Garage.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2025/03/Town-Point-Garage-sign.jpg) ](https://amcsupport.org/wp-content/uploads/2025/03/Town-Point-Garage-sign.jpg) 

**[Town Point Garage:](https://www.downtownnorfolk.org/go/town-point-garage)** 110 West Main Street

*(Has 7.0” clearance)*

 [ ![](https://amcsupport.org/wp-content/uploads/2025/03/Union-Street-Parking-Lot.jpg) ](https://amcsupport.org/wp-content/uploads/2025/03/Union-Street-Parking-Lot.jpg) 

[**Union Street Surface Lot**:](https://www.downtownnorfolk.org/go/union-street-surface-lot) 999 East Main Street

 *(really far from the Hilton)*

 [ ![](https://amcsupport.org/wp-content/uploads/2025/03/Waterside-Garage.jpg) ](https://amcsupport.org/wp-content/uploads/2025/03/Waterside-Garage.jpg) 

[**Waterside Garage:**](https://www.downtownnorfolk.org/go/waterside-garage) 50 Martin’s Lane

*(Has A 7′ 2” clearance)*

     Is it ok for my family to stay at a different hotel? 

     AMCSI recommends that, if at all possible, you stay at the Hilton Norfolk The Main for several reasons. We have a contract with the hotel to fill a specific number of rooms (at a discounted rate) in return for use of the meeting space. If AMCSI does NOT fill the contracted block during the conference, we are charged a large fee. By staying at the conference hotel, you are helping AMCSI by doing *your part* to help support the conference. Staying at the conference hotel also provides greater opportunities to connect with other families and the speakers. Families have shared that they felt they missed out on parts of the conference by staying at another property.

##### Conference

    Where will the sessions be held? 

     Hilton Norfolk The Main, 100 EAST MAIN STREET, NORFOLK, VIRGINIA, 23510, USA

     Is the conference a good place to bring siblings or should they stay home? 

     The WHOLE family is WELCOME to attend! We try to have sessions for everyone.

     Children’s Programming 

     AMCSI provides a room for Children’s Programming. ***This is NOT CHILDCARE***. An adult or responsible caregiver over the age of 14 is required to stay with all children. Parents/Caregivers MAY NOT LEAVE their child unattended for any reason in the Children’s Programming sessions.

     Can my child attend the sessions with me? 

     Your child may attend the sessions with you; however, please know that some of the medical sessions may include photographs of medical procedures that a child may find disturbing. We also ask that if your child needs your attention, you respect the speaker and attendees and care for them outside of the session room.

     Will we get a list of those attending with their contact information? 

     AMCSI will not publish our list of attendees for privacy reasons but we do include a blank page in our program for you to write down contact info from families you chose to exchange that with as well as have an “I attended” thread on our forums after the conference for those who choose to participate.

     When will AMCSI announce the location of the 21st annual conference? 

     AMCSI will not announce the location for the 21st annual AMC Conference until the closing ceremonies of the 20th annual AMCSI Conference. This is, and will continue to be, an AMCSI tradition. Our conference crew is an all volunteer unpaid group that is working VERY hard on making 2025 a success. If we announced 2026 before the end of the 2025 Conference, they would be bombarded with questions.

     Why can't I attend the sessions noted as "Moms, Dads, Grandparents, Siblings, Teens/Adults/Men/Women with arthrogryposis" with my spouse/teen/sibling? 

     To respect the privacy of individuals in these highly personal sessions, AMCSI tries to maintain an atmosphere of confidentiality and promote peer to peer connections during these sessions.

     I am not comfortable allowing my tween/teen with arthrogryposis to attend the session without me. How can you reassure me that discussions are age appropriate? 

     We have adults with arthrogryposis serving as moderators in this session, this is to assure that topics discussed are age appropriate.

##### Transportation

    Does the airport/hotel have a shuttle? 

     This hotel does not provide shuttle service. The hotel is approximately 9 miles from the Norfolk International Airport.. Uber X rom the airport to the hotel are estimated at $29 each way.

     Accessible transportation: *(None vetted by AMCSI)* 

     ***zTrip** 
6304 Sewells Point Road* 
*Norfolk, VA 23513 
(757) 855-3333*

*Accessible Cab service.*

     Hampton Roads Paratransit *(Public Transportation)* 

     Paratransit Department at (757) 222-6087 or email us at [**paratransitdept@hrtransit.org**](mailto:paratransitdept@hrtransit.org).

To help us provide service during your stay, please have your present service provider fax your current eligibility information to (757) 222-6025.

Afterward, please call (757) 222-6087 to provide the following information:

- Date(s) service is needed
- Local address for stay
- Date of Birth
- Contact phone number

If you are not currently a certified Paratransit customer, or there is no Paratransit service available in your area, you will need to provide us documentation of your disability. Please call our office at (757) 222-6087 for more information.

As a visitor, all HRT Paratransit service policies and procedures are to be followed. Eligible visitors may use HRT Paratransit service for a total of 60 days per year. Service beyond those 60 days will require the standard eligibility application process for permanent use.

     F.R.E.D. Transportation 

     A low cost option but **NOT accessible – [F.R.E.D. Transportation](https://www.downtownnorfolk.org/go/fred)**

##### Food

    Are there places to eat that we can walk to, or do we need a car? 

     There are three restaurants inside the hotel and in-room dining available. There are numerous restaurants within a square mile of the hotel.

The hotel restaurants will offer a special children’s menu for those 12 and under with an entre, fries cookie and for around $8.

     Most Accessible Restaurants & Places 

     **These restaurants have accessible entrances, ramps, and elevators:**

- 219 Bistro
- Baxter’s Sports Lounge
- Waterside District (open floor plan, accessible entrances, elevators)
- Bonchon Norfolk
- MacArthur Mall
- Chicho’s Pizza
- Freemason Abbey Restaurant (first floor accessible; ramp at the entrance)
- The General Public
- Granby Street Pizza
- Moe’s Southwest Grill
- Selden Market (food and shopping hall – very accessible)
- Starbucks on Granby Street

 **Accessible museums, libraries, attractions:**

- Chrysler Museum
- d’Art Center
- Slover Library
- Nauticus (certain areas are accessible with modifications for certain exhibits – [more info](https://nauticus.org/visit/accessibility/))
- Pagoda and Oriental Garden *(open area and great for photos!)*

 **Other accessible areas outside of Norfolk *(15-30 mins by car)***

- Town Center of Virginia Beach – food and shopping
- Lynnhaven Mall *(Virginia Beach)*
- Greenbrier Mall *(Chesapeake)*
- Virginia Beach Oceanfront
- Virginia Museum of Contemporary Art

     Bars 

     Bars are open from 8:00 PM – 2:00 AM & are a 2-5 minute walk from the hotel.

##### Shopping & Attractions

    Are there places to shop? 

     ### YES, at the AMCSI Store!!

- **MacArthur Center (Mall):** 300 Monticello Avenue | Norfolk, VA 23510
- **Harris Teeter (Grocery)** 
    1320 Colonial Ave, Norfolk, VA 23517

- **Target (Department Store)** 
    1245 N Military Hwy, Norfolk, VA 23502

Medical:

- **Concentra Urgent Care**
    750 S Main St Ste 218, Norfolk, VA 23523
- **Pharmacy:** 
    - **Community, A Walgreens Pharmacy**
        201 W 21st St., Ste. 6, Norfolk, VA 23517

     AMC’er Guide To The City Of Norfolk 

     **Accessibility Guide to Norfolk:** [**https://www.visitnorfolk.com/norfolk-accessibility-guide/**](https://www.visitnorfolk.com/norfolk-accessibility-guide/)

**Accessible Attractions: **

**Guide to Downtown Norfolk: ** (*Useful map to find all restaurants and attractions.)*

**Best Norfolk Events Website: ** *(The most up-to-date events website for Norfolk – usually updated daily)*

     Other Things To Do 

      [ ![](https://amcsupport.org/wp-content/uploads/2025/01/Visit-Norfolk.jpg) ](https://amcsupport.org/wp-content/uploads/2025/01/Visit-Norfolk.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2025/01/Norfolk-ferry.jpg) ](https://amcsupport.org/wp-content/uploads/2025/01/Norfolk-ferry.jpg) 

***Ride ferry – $4.50***

*Buy the Ferry passes at Visit Norfolk.*

*The Ferry is accessible.*

 [ ![](https://amcsupport.org/wp-content/uploads/2025/01/Childrens-Museum-of-VA.jpg) ](https://amcsupport.org/wp-content/uploads/2025/01/Childrens-Museum-of-VA.jpg) 

[**Childrens Museum Of Virginia**](https://childrensmuseumvirginia.com)

You can visit this museum by taking the Ferry.

 [ ![Nauticus](https://amcsupport.org/wp-content/uploads/2025/01/Website-Headers-6-1.jpg) ](https://amcsupport.org/wp-content/uploads/2025/01/Website-Headers-6-1.jpg) 

[**Nauticus & The Battleship Wisconsin**](https://nauticus.org/visit/hours-tickets/)

##### Guided Tours

Take a deeper look into the Battleship *Wisconsin* with a guided-tour! Our experts will show you areas not open to the public and share the stories of the WisKy. Each participant must also purchase an admission ticket to participate in the tour. Limited spaces are available and there are multiple tours each day. Tours can be purchased online or at the Front Admissions Desk.

**Categories:** 20th Annual AMCSI Conference, AMC Events, Archived

**Tags:** 20th Annual AMCSI Conference, FAQs

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### [20th Annual AMSCI Conference – Adaptive Sports](https://amcsupport.org/20th-annual-amsci-conference-adaptive-sports/)

**Published:** January 31, 2025
**Author:** Ted Houser

**Content:**

### **🌟 Adaptive Sports at the 20th Annual AMCSI Conference! 🌟**

 ![Adaptive Sports](https://amcsupport.org/wp-content/uploads/2025/01/AMCSI25_VA_guvebutter-adaptive-sports-1024x536.jpg) 

Get ready to celebrate 20 incredible years with our AMC Family at the 20th Annual AMCSI Conference—July 9-12 in Norfolk, VA! 🏨🌊💙

This year, we’re continuing to take things to the next level with Adaptive Sports! Whether you’re an outdoor enthusiast or just love a new adventure, this is your chance to help make it happen!

🔥 How can you be part of the action? 🔥 
💪 Donate today to bring Adaptive Sports to the conference! 
🏆 Empower and inspire our community! 
🌟 Make this milestone year unforgettable!

Let’s move, play, and celebrate together—because EVERYONE deserves the thrill of sports! 💙💫

📢 Donate now & help us make history!

 ![Beyond Boundaries Logo](https://amcsupport.org/wp-content/uploads/2025/01/BBLogoHorizontalRGB-white.png) 

#### Exhibiting

Beyond Boundaries is a non-profit based in Richmond, Virginia specializing in guiding participants with disabilities, veterans, underserved youth, and recovery programs on outdoor adventures. Our mission is to offer individuals of all ability levels, no matter physical, cognitive, or economic situation, the opportunity to experience outdoor activities with the surrounding community.

At the AMC Conference, Beyond Boundaries will showcase adaptive kayaking and climbing gear, including an adaptive kayak and a pull-up bar / misty mountain seat and mechanical advantage pulley system demo with a stuffed bear. We won’t offer on-water activities or participant climbing, but we’ll be there to share equipment options and possibilities for adaptive adventures.

 [ ![Adaptive climbing](https://amcsupport.org/wp-content/uploads/2025/01/janie-900.jpg) ](https://amcsupport.org/wp-content/uploads/2025/01/janie-900.jpg) 

 [ ![River rats](https://amcsupport.org/wp-content/uploads/2025/01/River-Rats-900.jpg) ](https://amcsupport.org/wp-content/uploads/2025/01/River-Rats-900.jpg) 

 ![Sportable Logo](https://amcsupport.org/wp-content/uploads/2025/01/sportable-logo.png) 

Sportable has created opportunities and transformed the lives of individuals with physical disabilities and visual impairments through sport since 2005.

Central Virginia’s premier adaptive sports club, Sportable provides sporting opportunities to more than 400 athletes each year by offering a variety of competitive and recreational adaptive sports programs.

Our athletes are all ages, come from different backgrounds, and have varying abilities.
By fostering a fun, inclusive, competitive, and accessible environment, we transform the lives of our athletes and free them to see beyond their disability, enhance their peer relationships and help them to reach their personal finish line.

Join Sportable at the 2025 AMC Conference and try out adaptive sports!

 ![](https://amcsupport.org/wp-content/uploads/2025/06/3rd-floor.jpg) 

#### **About Activities:**

### Cycling:

Are you ready to experience the thrill and freedom of adaptive cycling? Sportable is bringing a fleet of adaptive cycles and stationary trainers straight to you! Whether you’re curious about trying a handcycle, a recumbent bike, or other innovative adaptive options, this is your chance to discover what’s possible.

We will be on-site to guide you through the experience, answer questions, and help you find the cycle that fits your needs and goals. Whether you’re new to adaptive sports or an experienced athlete looking for your next adventure, there’s something for everyone.

Come out, hop on a cycle, and see how adaptive cycling can open new doors to fitness, fun, and freedom. Let’s ride together — the possibilities are endless with Sportable!

### Power Soccer:

Power Soccer is the ultimate adaptive sport, combining speed, skill, and strategy on a standard basketball court. Teams of four players — including a goalkeeper — battle it out in two exciting 20-minute halves, delivering nonstop action and competition.

Whether you play in your everyday power chair with an attached foot guard or in a specialized chair designed for elite-level performance, Power Soccer is accessible for athletes of all experience levels. The oversized 13-inch soccer ball is specially designed for better visibility and control, ensuring every play is full of energy and excitement.

Get in the game, showcase your skills, and discover why Power Soccer is one of the fastest-growing adaptive sports in the world!

### The Adaptive Sports Application Is Closed

##### All (required) (\*) documents must be sent to info@amcsupport.org

Your application will not be processed until all required items are received.
Please do not email to check on the status of your application. We will reach out you if further information is needed.

 *"I walked into the conference lobby the morning before the conference began and asked a guy passing by if he was with the wake surfing group, and he said, "No, but could I come anyway?" Johnathon got in a van in Georgia and drove 2 hours with a complete stranger to Alabama on a whim, with little information to go off. I think this is a perfect example of what I experienced at the AMC conference. I received nothing but kindness, openness, a sense of trust, and honest interest from everyone I met. I was amazed by this community and the welcome I felt in it. It was a highlight in my nearly 10-year career to share adaptive recreation with a community that has been underserved. I look forward to seeing AMC be more represented in recreation and for Adaptive sports to be a staple at AMC conferences moving forward!"* 

 Truman Shoaff2024 Exhibitor - High Country Adaptive Sports 

 *"Matthew had the time of his life on the waves. He didnt want the day to end. It was freeing and genuinely heart warming to witness not just him but everyone else experiencing the wake surfing in a way that worked for them. It was an experience him and I will never forget and I hope to do again. We also made some great friends out on the water and can't wait to see them again at the next conference. I hope to see even more amcers turn out for the next adaptive sporting event!."* 

 Rebeccah Gomez2024 Attendee - AMC Family 

 *"I was truly impressed by the adaptability and willingness of each participant during the recent AMCSI adaptive mountain biking event at conference hosted by Catalyst. What stood out to me was how each participant was eager to troubleshoot bike fit with me and remained flexible to the limitations of the equipment. Every rider is unique, and their valuable input on adjusting bike controls helped create a fun and successful ride for everyone. The collaborative spirit and determination displayed were truly uplifting, making the event a memorable and impactful experience for all involved."* 

 Matt Kirby2024 Exhibitor - Catalyst Sports 

 *"I participated in the adaptive mountain biking program with Catalyst Sports this past summer. I had an AMAZING experience; the volunteers were incredible and riding felt nothing short of euphoric. I hope to do it again next conference!"* 

 Person With AMCAMCSI Member 

 *"This was our first experience working with the AMC Community, and it was truly wonderful. As partners in the adaptive sports program for this year's AMCSI conference, we had the pleasure of collaborating with many dedicated individuals. Starting over a year ago with initial planning alongside Kim Kolstad, followed by monthly meetings, and culminating in our attendance and sports provision at the conference, we have been thoroughly impressed by the entire community. Everything was well-organized and perfectly executed. It's clear that those at the heart of this event put so much of their time, energy, and passion into it because they genuinely love what they do."* 

 Gillian Sharp2024 Exhibitor - Catalyst Sports 

 *"As a Recreational Therapist I love seeing people get out and get active. I have been to many conferences that focus on other conditions over the years, and this was the first time I have had the pleasure of seeing the families attend and those with AMC of all ages. The conference atmosphere felt like a family including attendees, volunteers, speakers, and staff. It was refreshing to be involved with such a dynamic culture. I am excited that the conference showcased adapted sports and recreation!"* 

 Jo Crawford2024 Exhibitor - AZ Adaptive Watersports 

##### Adaptive Sports Sponsor

 [ ![TRAILS - Technology - Recreation - Independence - Lifestyle - Sports](https://amcsupport.org/wp-content/uploads/2024/07/TRAILS_Wordmark-900.png) ](https://www.utrails.us) 

 [ ![Sportable Logo](https://amcsupport.org/wp-content/uploads/2025/01/sportable-logo.png) ](https://sportable.org) 

### 2024 Adaptive Sports Event Photo Gallery

 [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-714.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-700.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/03/AMCSI-Adaptive-Sports-2024-Steve-Putsell-25.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-715.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-707.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-711.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-712.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Gomez-Family-Adaptive-Sports2024-900.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-710.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-708.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-698.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/03/AMCSI-Adaptive-Sports-2024-Steve-Putsell-20.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-720.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-701.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-704.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/03/AMCSI-Adaptive-Sports-2024-Steve-Putsell-21.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-724.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-709.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-706.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-699.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/03/AMCSI-Adaptive-Sports-2024-Steve-Putsell-22.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-719.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-716.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/03/AMCSI-Adaptive-Sports-2024-Steve-Putsell-24.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/03/AMCSI-Adaptive-Sports-2024-Steve-Putsell-23.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-702.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-723.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-722.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/02/19th-Annual-AMCSI-Conference-697.jpg)

**Categories:** 20th Annual AMCSI Conference, AMC Events, Archived

**Tags:** 20th Annual AMCSI Conference

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### [20th Annual AMCSI Conference Sponsorships](https://amcsupport.org/20th-annual-amcsi-conference-sponsorships/)

**Published:** February 25, 2025
**Author:** Ted Houser

**Content:**

### Thank you to our 20th Annual AMCSI Conference Sponsors

Your support goes a long way to help our conference bring awareness to Arthrogryposis & support for AMC Community.

##### Platinum Sponsor

 [ ![Shriners Children's Hospital Logo in Color](https://amcsupport.org/wp-content/uploads/2024/06/L_SC_e_h_4c_p_p-color900.png) ](https://www.shrinerschildrens.org/en) 

#####  The Bulsiewicz Family Donation

##### Silver Sponsors

 [ ![Nemours Logo](https://amcsupport.org/wp-content/uploads/2025/02/Nemours-logo-900.png) ](https://www.nemours.org/) 

 [ ![](https://amcsupport.org/wp-content/uploads/2025/02/ABLEnow_logo-900.png) ](https://www.ablenow.com/?gad_source=1&gbraid=0AAAAADlva1y95oDm03dFCrw1pKbVKrqn0&gclid=Cj0KCQjw5azABhD1ARIsAA0WFUFu-ZUUBUu_75WXYfLIi54M83z_pkcv8DAakM9jPdi6lgb1ZN452pYaAhSeEALw_wcB) 

##### Childrens Programing Teddy Bear Clinic Sponsor

 [ ![The unLIMBited Foundation is committed to making world class limb saving treatment accessible to children from all over the world through direct temporary housing support for families, by providing financial assistance to ease the burden of temporary housing, the unLIMBited Foundation is able to ensure access to life changing treatments for children and families with limited resources. Through awareness campaigns and a strategic partnership with the world renowned Paley Orthopedic and Spine Institute, located in West Palm Beach, Florida, we help provide families with a choice to undergo limb saving treatment instead of unnecessary amputation or living with a lifelong disability. Every dollar raised by the unLIMBitied Foundation’s Financial Aid program goes directly towards providing temporary housing for families with children undergoing treatment at Paley Orthopedic & Spine Institute. Housing support for our families is provided through partnerships with local hospital hospitality housing; Quantum House, Molly’s House, and Fisher House.](https://amcsupport.org/wp-content/uploads/2025/06/unLIMBited-Foundation-round-logo900pxW.png) ](https://unlimbited.org) 

##### Grant Awarded to AMCSI

 [ ![We were notified that we’re receiving a @4imprint #4onebyone promotional products grant!](https://amcsupport.org/wp-content/uploads/2023/12/4imprint_logo-900.png) ](https://www.4imprint.com) 

##### Sponsor of Painting with Theresa

 [ ![BLICK-Art-Materials-stacked-black-900](https://amcsupport.org/wp-content/uploads/2024/03/BLICK-Art-Materials-stacked-black-900.png) ](https://www.dickblick.com) 

##### Adaptive Sports Sponsor

 [ ![TRAILS - Technology - Recreation - Independence - Lifestyle - Sports](https://amcsupport.org/wp-content/uploads/2024/07/TRAILS_Wordmark-900.png) ](https://www.utrails.us) 

 [ ![Sportable Logo](https://amcsupport.org/wp-content/uploads/2025/01/sportable-logo.png) ](https://sportable.org) 

##### Patron Sponsors

Matthew & Julie Cavedon

Dr. Reid Nichols

Gianmarco Martuscelli
The Martuscelli Restaurant Group

Ewa Okla

### Get Involved!

Do you have a company/organizations or know of any in your area and want to get involved in our 20th Annual AMCSI Conference? Click on the buttons below to view the options we have available or click on the lick to download our Conference Sales Kit today!

 [  Become A Sponsor  ](https://amcsupport.org/20th-sponsorship-signup/) 

 [  Become An Exhibitor  ](https://amcsupport.org/20th-exhibitor-signup/) 

[**CLICK HERE to view this years Exhibitors**](https://amcsupport.org/20th-annual-amcsi-conference-exhibitors/)

 [  Advertise In Program  ](https://amcsupport.org/20th-program-form/) 

#### [**Click here to download a PDF file of the Conference Sales Kit**](https://amcsupport.org/wp-content/uploads/2025/03/AMCSI25_Sales_Kit.pdf)

*(Note: you can open the PDF on a computer and type in your information & email it to us at ****)*

### See you in Norfolk!

**Categories:** 20th Annual AMCSI Conference, AMC Events, Archived

**Tags:** 20th Annual AMCSI Conference, Sponsor, Sponsorships

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### [20th Annual AMCSI Conference Schedule](https://amcsupport.org/20th-annual-amcsi-conference-schedule/)

**Published:** March 4, 2025
**Author:** Ted Houser

**Content:**

## Annual Conference Events Include:

- First Time Attendee Session
- Professional Medical Support/Information Sessions
- AMC Peer Support Sessions
- Children’s Programming
- AMCSI Dinner
- AMCSI Prom
- Annual Public Meeting
- Annual Group Photo
- Annual Silent Auction
- AMCSI Merchandise Store
- Exhibitors

### Norfolk The Hilton Main – 4th Floor Map

 [ ![](https://amcsupport.org/wp-content/uploads/2025/03/hilton_norfolk_the_main_4th-floor-1.jpg) ](https://amcsupport.org/wp-content/uploads/2025/03/hilton_norfolk_the_main_4th-floor-1.jpg) 

## Schedule is subject to change.

##### Wednesday, July 9th, 2025

####      9:00 AM - 12:00 PM | Adaptive Sports - Cycling Activity 

**Location:** Info coming soon.

**[SIGN UP FOR ACTIVITIES](https://amcsupport.org/20th-annual-amsci-conference-adaptive-sports/)**

####      1:00 PM - 4:00 PM | Adaptive Sports - Power Soccer Activity 

**Location:** Info coming soon.

**[SIGN UP FOR ACTIVITIES](https://amcsupport.org/20th-annual-amsci-conference-adaptive-sports/)**

####      2:30 PM - 3:30 PM | Volunteers Meetup 

Location: 4th Floor Foyer

####      4:00 PM - 6:45 PM | Registration & Tshirt Pickup | AMC Store | Vendors | Auction 

**Locations:**

- Registration & t-shirt pickup: 4th Floor LOBBY
- AMCSI Store: 4th Floor LOBBY
- Exhibitors/Vendors: 4th Floor LOBBY
- Silent Auction: Salon F

####      7:30 PM - 8:15 PM | First-time Attendees Welcome 

Location: Paul D. Fraim Center for Excellence

####      8:15 PM - 9:00 PM | Preteen/Teen Meetup 

Location: Outside of the Paul D. Fraim Center for Excellence

####      7:30 PM - 10:00 PM | Informal Social Time for All Attendees Hotel 

*(Food & drink on your own.)*

## Schedule is subject to change.

##### Thursday, July 10th, 2025

####      8:00 AM - 6:00 PM | Registration/Tshirt Pickup | Silent Auction | AMC Store | Vendors 

**Locations:**

- Registration & TShirt Pickup: 4th Floor LOBBY
- AMCSI Store: 4th Floor LOBBY
- Exhibitors/Vendors: 4th Floor LOBBY
- Silent Auction: Salon A

####      10:00 AM - 10:45 AM | Opening Ceremony | Keynote Speaker, Jennifer Kumiyama (Salon D/E) 

##### Jennifer Kumiyama

From childhood to adulthood – disability has shaped who Jennifer Kumiyama is and how she shows up for herself and others like her. She proves that disability is an inherent part of the human experience that affects all communities. Rooted in disabled joy, Jennifer continues to focus on activism that uplifts the disabled community by continuing to fight for equitable legislation at the local, state and federal levels, independent living and intersectional disability visibility.

####      11:15 AM - 12:00 PM | Adults with AMC Co-Ed (Salon B) 

##### Adults with AMC Co-Ed

Location: Salon B

####      11:15 AM - 12:00 PM | Dr. Philip Giamietro (Salon D) & Dr. Reid Nichols (Salon E) 

##### Dr. Philip Giampietro – Genetics | Location: Salon D

###### What is a Genetic Evaluation and How Will it Benefit my Child?

In this session we will review the nuts and bolts of a genetic evaluation in the context of arthrogryposis multiplex congenita. We will discuss the components of a genetic evaluation including what historical and physical examination findings are important. The different types of genetic testing utilized in clinical practice and types of results which are expected along with limitations of testing will be highlighted. We will discuss categories of genes found to be associated with AMC. The process of genetic counseling will also be discussed.

---

##### Dr. Reid Nichols – Hips | Location: Salon D

###### Hip in AMC

Contractures of the hip are present in almost 90% of AMC children. Hip dislocations are seen in 30% to 40% of AMC children. The purpose of this talk is to clarify some of the medical jargon that surrounds this complex joint. There is no “one way” to treat an AMC hip, so the aim of this talk is to bring a better understanding of what the surgeon is thinking when planning surgery.

####      11:15 AM - 12:00 PM | Tween Girls (Salon H) 

##### Tween Girls

Location: Salon H

####      12:00 PM - 2:00 PM | Lunch 

*(On your own.)*

####      12:30 PM - 2:30 PM | BOD Office Hours 

Location: Exchange 6

####      2:00 PM - 2:45 PM | Sib Shop (Salon B) 

##### Sib Shop

Location: Salon B

####      2:00 PM - 2:45 PM | Dr.Harold J.P. van Bosse (Salon D) & Bong Delrosario (Salon E) 

##### Dr. Harold J. P. van Bosse | AMC 101 | Location: Salon D

Arthrogryposis multiplex congenita is a term to describe a spectrum of disorders that all have in common babies born with multiple joint contractures. This talk is an overview, designed to provide a structure to understand arthrogryposis, the conditions that cause it, and the differences between diagnoses. There will be special focus on the treatment of foot deformities (clubfoot and congenital vertical talus), hip deformities (contractures and congenitally dislocated hips), and knee contractures (both flexion and extension). Scoliosis will also be discussed, with an emphasis on different forms of treatment.

---

##### Bong Delrosario – Accessible Travel

####      2:00 PM - 2:45 PM | Tween Boys (Salon H) 

##### Tween Boys

Location: Salon H

####      3:00 PM - 3:45 PM | Teen Girls (Salon B) 

##### Teen Girls

Location: Salon B

####      3:00 PM - 3:45 PM | Jennifer Kumiyama (Salon D) & Dr. Sara Lemin (Salon E) 

##### Jennifer Kumiyama | Location: Salon D

From childhood to adulthood – disability has shaped who Jennifer Kumiyama is and how she shows up for herself and others like her. She proves that disability is an inherent part of the human experience that affects all communities. Rooted in disabled joy, Jennifer continues to focus on activism that uplifts the disabled community by continuing to fight for equitable legislation at the local, state and federal levels, independent living and intersectional disability visibility.

---

##### Dr. Sara Lemin – OB | Location: Salon E

Dr Sara Lemin will present updates in the field of obstetrics and the prenatal diagnosis of AMC. She will review recently published research studies, including surveys that many conference attendees participated in. She will discuss the current guidelines for screening for AMC during pregnancy and opportunities for improvement. She will share new resources, including the 2025 Arthrogryposis New Parent Information Packet.

####      3:00 PM - 3:45 PM | Moms of AMCers (Salon H) 

##### Moms of AMCers

Location: Salon H

####      4:00 PM - 4:45 PM | Dads of AMCers (Salon B) 

##### Dads of AMCers

Location: Salon B

####      4:00 PM - 4:45 PM | Dr. Kevin Parks (Salon D) & Dr. Arun Hariharan (Salon E) 

##### Dr. Kevin Parks – Adaptive Sports | Location: Salon D

Join us for an inspiring session highlighting the power of adaptive sports to break barriers, foster inclusion, and enhance quality of life for individuals with disabilities. Through real stories and program examples from the University of Utah’s TRAILS initiative, we’ll explore how people of all abilities—alongside their families and able-bodied peers—can experience the joy, challenge, and connection that sports provide. Whether on snow, water, or wheels, adaptive recreation proves that the outdoors is for everyone. Come see what’s possible when we move together.

---

##### Dr. Arun Hariharan – Spine | Location: Salon E

Spinal deformities in arthrogryposis present unique challenges due to rigid contractures, poor muscle function, and varied underlying causes. This session will explore modern surgical and non-surgical approaches to managing scoliosis and kyphosis in arthrogryposis, emphasizing the importance of early diagnosis and multidisciplinary care. We will discuss recent advancements in spine surgery, including techniques to maximize correction while minimizing complications in this high-risk population. Topics will include the role of early bracing, surgical strategies such as posterior spinal fusion and growth-friendly constructs, and the impact of spinal alignment on overall function and mobility. Case studies will illustrate decision-making in real-world scenarios, highlighting the balance between achieving correction and maintaining long-term stability. The session will also address ongoing research and emerging technologies aimed at improving spine care for children with arthrogryposis. Attendees will gain insights into optimizing treatment strategies to enhance quality of life for patients with complex spinal deformities.

####      4:00 PM - 4:45 PM | Teen Boys (Salon H) 

##### Teen Boys

Location: Salon H

####      5:00 PM - 5:45 PM | Dr. Noémi Dahan-Oliel (Salon D) | Dr. Scott Oishi (Salon E) 

##### Dr. Noémi Dahan-Oliel | Location: Salon D

###### Latest evidence on the rehabilitation of children with arthrogryposis: International clinical and lived experience workgroup

Want to learn more about rehabilitation for children with AMC? Our team has partnered with clinicians, people with AMC and families from several countries in the world to co-develop recommendations for rehabilitation. We provide 16 recommendations to address early intervention and motor development, muscle and joint function, orthotics, mobility, participation in areas of life, pain, psychosocial wellbeing, and perioperative rehabilitation. These areas were identified by clinicians, youth with AMC and caregivers as important and were therefore prioritized. We expect that these recommendations will contribute to improving child- and family-centered practice and health outcomes. Next steps include sharing the recommendations and implementing them in practice to promote equity of care. I am looking forward to sharing this work on behalf of our international team.

---

##### Dr. Scott Oishi – Uppers | Location: Salon E

###### Treatment of the upper extremities in arthrogryposis

The goal in treatment of the upper extremities in arthrogrypotic children is to provide maximum ability for them to perform activities of daily living (ADL’s) with the least amount of assistance. Every child has a unique presentation so treatment needs to be individualized based on clinical findings.

####      6:45 PM - 8:00 PM | Dinner 

Location: The Granby Ball Room *(One level DOWN from the meeting space)*

## Schedule is subject to change.

##### Friday, July 11th, 2025

####      8:00 AM - 5:00 PM | Registration/Tshirt Pickup | Silent Auction | AMC Store 

**Locations:**

- Registration & Tshirt Pickup: 4th Floor LOBBY
- AMCSI Store: 4th Floor LOBBY
- Exhibitors/Vendors: 4th Floor LOBBY
- Silent Auction: Salon A

####      9:00 AM - 9:45 AM | Dr. David Feldman (Salon D) & A Mixed Professional Medical Panel Discussion (Salon E) 

###### Dr. David Feldman – Lowers | Location: Salon D

###### The Path to Mobility: Setting Realistic Walking Goals

How to achieve ambulation and how to set realistic goals for the child and their family.

---

##### A Mixed Professional Medical Panel Discussion | Location: Salon E

You know you have questions. We have a panel of experts across multiple specialties ready to discuss your questions and concerns.

####      10:00 AM - 10:45 AM | Moms of AMCers Under 10 (Salon B) 

##### Moms of AMCers Under 10

Location: Salon B

####      10:00 AM - 10:45 AM | Kim Kolstad (Salon D) | Dr. Dan Zlotolow (Salon E) 

##### Ms. Kim Kolstad – Adaptive Sports | Location: Salon D

###### Beyond the Finish Line

How Adaptive Sports Unleash Mental Strength and Unstoppable Confidence,” will define adaptive sports through diverse examples. The presentation will delve into how these activities foster crucial social connections, reduce stress, and cultivate profound self-belief and independence. Ultimately, it aims to inspire and empower attendees to explore adaptive sports as a pathway to greater joy, personal growth, and true access within the broader adaptive sports world.

---

##### Dr. Dan Zlotolow – Uppers | Location: Salon E

The old and the new: maximizing independence and function for kids

####      11:00 AM - 11:45 AM | Men with AMC (Salon B) 

##### Men with AMC

Location: Salon B

####      11:00 AM - 11:45 AM | Dr. Aaron Huser (Salon D) & Dr. Therese Willkomm (Salon E) 

##### Dr. Aaron Huser – Lowers | Location: Salon D

Spinal deformities in arthrogryposis present unique challenges due to rigid contractures, poor muscle function, and varied underlying causes. This session will explore modern surgical and non-surgical approaches to managing scoliosis and kyphosis in arthrogryposis, emphasizing the importance of early diagnosis and multidisciplinary care. Dr. Arun Hariharan will discuss recent advancements in spine surgery, including techniques to maximize correction while minimizing complications in this high-risk population. Topics will include the role of early bracing, surgical strategies such as posterior spinal fusion and growth-friendly constructs, and the impact of spinal alignment on overall function and mobility. Case studies will illustrate decision-making in real-world scenarios, highlighting the balance between achieving correction and maintaining long-term stability. The session will also address ongoing research and emerging technologies aimed at improving spine care for children with arthrogryposis. Attendees will gain insights into optimizing treatment strategies to enhance quality of life for patients with complex spinal deformities.

---

##### Dr. Therese Willkomm – DIY | Location: Salon E

###### Making, Mounting and Modifying in Minutes with Everyday Materials

This session will discuss and demonstrate over 50 different rapid solutions created for holding: cellphones, beverages, styluses, sandwiches, scissors, ball and dice launchers, cameras, and more. Learn rapid fabrication methods using coroplast, CPVC, Loc-Line, corner guard, twist ties and Instamorph. Discover 8 different tapes for rapid solution creating embracing the “… ABLE” Principles – Adjustable, bendable, removable, washable, portable, affordable, repositionable, and collapsible.

####      11:00 AM - 11:45 AM | Woman with AMC (Salon H) 

##### Women with AMC

Location: Salon H

####      12:00 PM - 2:00 PM | Lunch 

*(On your own.)*

####      12:30 PM - 2:30 PM | BOD Office Hours 

Location: Exchange 6

####      2:00 PM - 2:45 PM | Adults with AMC Dating (Salon B) 

##### Adults with AMC Dating

Location: Salon B

####      2:00 PM - 2:45 PM | Driver Rehabilitation Center of Excellence (Salon D) 

Driving Rehab Solutions – Featuring 2 recent cases where AMC was the primary
diagnosis.

####      2:00 PM - 2:45 PM | Dr. Lisa Wagner (Salon E) 

##### Dr. Lisa Wagner – OT | Location: Salon E

###### Adventures in Autonomy

We all strive for autonomy and independence, but what does this look like in our real day to day lives? For AMC, independence has multiple layers. In this session, we will consider the balance of self-awareness, adaptive equipment, social considerations and more in our quest to be independent people living in an evermore connected world. Come ready to share and discuss your quest for autonomy.

####      3:00 PM - 3:45 PM | Grandparents of AMCers (Salon B) 

##### Grandparents of AMCers

Location: Salon B

####      3:00 PM - 3:45 PM | Ms. Jan Shea (Salon D) & Dr. Dan Zlotolov (Salon E) 

##### Ms. Jan Shea – College Transition | Location: Salon D

There are many new words and ways things are done in college – especially for a student with a disability. What’s Different? How do you get help? What does \_\_\_\_ mean? Why go on a college tour? Who at college can help me? This presentation, “Beyond the Threshold: Embracing College Opportunities,” is designed to initiate those conversations. Through interactive discussion, hearing from experts – students with disabilities navigating college, research, and professional knowledge – we’ll discuss the college experience. We will explore the differences between college and high school, provide practical tips for college preparation, help you become confident in exploring various college options, and offer a chance to ask those burning questions about college. This presentation is designed to help students and their families understand what comes after graduation and how to navigate that transition with a plan for success.

---

##### Dr. Dan Zlotolov – Adult Uppers | Location: Salon E

It’s not too late: improving function and appearance in adults

####      3:00 PM - 3:45 PM | Gay Straight Alliance (Salon H) 

##### Gay Straight Alliance

Location: Salon H

####      4:00 PM - 4:45 PM | Parenting with AMC (Salon B) 

##### Parenting with AMC

Location: Salon B

####      4:00 PM - 4:45 PM | Dr.Maureen Donohoe (Salon D) & Dr. Stephanie Russo (Salon E) 

##### Dr. Maureen Donohoe – PT | Location: Salon D

###### AMC and Pain: What we know so far with strategies to support care

Pain perception is unique to each individual but what we know is that those who have AMC experience pain. This session will delve into the types of pain that can be experienced and work on some non-medication based strategies to support care.

---

##### Dr. Stephanie Russo – Uppers | Location: Salon E

Every person with arthrogryposis has unique needs to optimize their functionality. This presentation will address surgical options to improve wrist, hand, and thumb function in patients with arthrogryposis. Considerations for determining who is an appropriate candidate for surgery will be discussed. Participants will gain better understanding of upper limb treatment options. The need for individualized goals and treatment plans will be highlighted.

####      7:00 PM - 9:00 PM | AMCSI Prom | Bubbles Themed 

Location: The Granby Ball Room *(One level DOWN from the meeting space)*

####      9:00 PM - 11:00 PM | Set up for Painting with Theresa 

Location: Salon G/H

## Schedule is subject to change.

##### Saturday, July 12th, 2025

####      8:00 AM - 2:00 PM | AMC Shop 

Locations: 4th Floor LOBBY

####      9:00 AM - 12:00 PM | Silent Auction & Board of Directors 

Silent Auction Location: Salon A

###### *(All Bidding Ends At Noon.)*

---

Board of Directors’s Location: Exchange 6

####      9:00 AM - 10:00 AM | AMCSI Group Photo 

Location: Salon D/E

####      10:00 AM - 11:45 AM | Painting with Theresa 

Location: Salon G/H

####      11:00 AM - 11:30 AM | AMCSI Board of Directors Meeting 

Location: Salon D/E

####      11:45 AM - 12:45 PM | Closing Ceremony 

- Performance by Luca “Lazylegz” Patuelli
- Recap Slide Show
- Announcements of 2026/2027

Location: Salon D/E

##### Children's Schedule

 ![Brians Den Logo – Choldren's Programming In Honor Of Brian Wayne Page](https://amcsupport.org/wp-content/uploads/2025/03/Brians-Den_Logo.png) 

#### **DISCLAIMER: PARENTS MUST STAY WITH THEIR CHILDREN IN CHILDREN’S PROGRAMMING.**

#### Kids must have an adult (ages 16 or up) with them at all times, including children’s programming.

Location: Salon F/G 
*(Both Days)*

## Schedule is subject to change.

##### Thursday, July 10th, 2025

####      2:00 PM & 3:00 PM | Make-it take it (part 1 & 2) 

Have fun exploring outer space with space-themed crafts and fun activities. Part 1 and Part 2 are the same session – please choose the one session that best fits your schedule

####      4:00 PM - 4:45 PM | Blast off to S pace - Glow Party (part 1 & 2) 

Blast off to Space for our annual glow party! Come get some glow gear and dance the afternoon away with glow sticks, black lights and music. This is a drop in session – stay for as long or as short of a time as you like during the two hour session.

###### **DISCLAIMER: PARENTS MUST STAY WITH THEIR CHILDREN IN CHILDREN’S PROGRAMMING.**

## Schedule is subject to change.

##### Friday, July 11th, 2025

####      10:00 AM - Teddy Bear Clinic with Child Life at the Paley Institute 

Come be the doctor for the day and make your own stuffed animal to care for! All ages of kids and teens welcome to come and stuff your own bear!
sponsored by Dr. Feldman and the unLIMBited Foundation

####      11:00 AM - Story Time with Tammy 

Who wants to hear a story? Join Ms. Tammy for an interactive story time with lots of fun books and stories. All ages welcome.

####      2:00 PM - Music with Chaney 

An AMC conference favorite! Join Chaney Roko for a sing-along of your favorite songs! Kids of all ages are welcome to come sing and dance.

####      3:00 PM - Game Time with Your Favorite Doctors and Therapists (part 1) 

Attend Part 1, Part 2, or both! This session will continue for 2 hours with no break in between. All doctors, therapists, and other medical professionals are invited to come play games with our kids and families. Drop in for as long as you like. Have fun playing games with new friends, building with legos or magnet blocks, or just hanging out in a fun social space. This is a fun, unstructured time to play games with other AMC families.

####      4:00 PM - Game Time with Your Favorite Doctors and Therapists (part 2) 

Attend Part 1, Part 2, or both! This session will continue for 2 hours with no break in between. All doctors, therapists, and other medical professionals are invited to come play games with our kids and families. Drop in for as long as you like. Have fun playing games with new friends, building with legos or magnet blocks, or just hanging out in a fun social space. This is a fun, unstructured time to play games with other AMC families.

## CHILDREN’S PROGRAMMING & REMINDERS

- ALL children under the age of 18 MUST be supervised by an adult at ALL times. Due to the lack of volunteers, we are unable to provide childcare.
- Kids must have an adult (ages 16 or up) with them at all times, including children’s programming.
- An individual aged 14 or older MUST remain in the Children’s Programming Room with your child(ren) during all Children’s Programming.
- During Painting with Theresa please don’t let children ‘swim’ in the paint.
- Badges MUST be worn to all conference sessions, including prom, and activities. AMCSI reserves the right to deny entrance to conference events to individuals lacking conference ID badges. This is for the safety and security of all Attendees. You may be asked to return to your guestroom to get your badge. PLEASE wear them at all times in the conference area.
- Children’s Programming is available during conference sessions but is not childcare.
- Please use the hashtag #AMCVA25 when posting to social media!
- The hotel elevators are for the use of all guests, children are not permitted to “play” on the elevators.
- In being respectful of our presenters, individual conversations should be taken outside of the conference rooms during presentations.
- Areas outside of the conference rooms are available should your child need your full attention while a speaker is presenting.
- Please remember we are able to provide this conference through the generosity of our members and attendees.
- Alcohol is NOT permitted at any AMCSI event. Please visit one of the many establishments on the hotel property.
- Attendees may not use the conference space after scheduled events have ended for the day.
- As always, consult with your or your child’s physician before implementing any new ideas as a result of attending this conference.
- Please remember that aside from your hotel room, all hotel areas are considered “Public Spaces” and individuals who are not a part of our conference may pass through. Please keep all belongings you bring to the meeting space with you at all times and be aware of those around you.
- All Attendees agreed to abide by the code of conduct at registration. AMSCI reserves the right to enforce the code of conduct.

**Categories:** 20th Annual AMCSI Conference, AMC Events, Archived

**Tags:** 20th Annual AMCSI Conference, Schedule

---

### [20th Annual AMCSI Conference Thank you](https://amcsupport.org/20th-annual-amcsi-conference-thank-you/)

**Published:** April 30, 2025
**Author:** Ted Houser

**Excerpt:** Thank you page for the conference form submissions.

**Content:**

## Thank you.

Your submission has been received.

**Categories:** 20th Annual AMCSI Conference, AMC Events, Archived

**Tags:** 20th Annual AMCSI Conference, Thank you

---

### [19th Exhibitor Form](https://amcsupport.org/19th-exhibitor-form/)

**Published:** December 12, 2023
**Author:** Ted Houser

**Content:**

### **19th Annual AMCSI Conference Exhibitor Online Form**

The Annual Arthrogryposis Multiplex Congenita Support, Inc. Conference provides an opportunity for people affected by arthrogryposis multiplex congenita (AMC) to gather and exchange ideas and support. During this annual 3-day event, over 500 family members and medical professionals learn from each other on “best practices” in the treatment of and living with AMC. Please join us as a conference exhibitor! Note NO direct sales merchandise such as clothing, home goods, make-up, oils etc are permitted.

**DIRECT LITERATURE: $800**
• Company brochure included in Conference Registration Packet,5provided to each registered family
• Brochures must be approved by AMCSI prior to acceptance
• 1/2 page Ad in the Conference program
(Artwork to be provided by the exhibitor in JPEG format at 300 dpi – must be supplied by 5/17/2024)

**EXHIBIT TABLE: $500**
• Two (2) representatives per table (each additional representative is $50.00)
• 6Ft. draped and skirted table
• Two (2) chairs
• Single line ID sign
• 1/2 page Ad in the Conference program
(Artwork to be provided by the exhibitor in JPEG format at 300 dpi – must be supplied by 5/17/2024)

**AMC VENDOR TABLE: $50**
• Two (2) representatives per table (each additional representative is $50.00)
• 6Ft. draped and skirted table
• Two (2) chairs
• Single line ID sign
• 1/2 page Ad in the Conference program
(Artwork to be provided by the exhibitor in JPEG format at 300 dpi – must be supplied by 5/17/2024)

**EXHIBITOR HOURS**
• Wednesday, July 3rd: 4 pm – 8 pm (Optional, Registration/Reception)
• Thursday, July 4th: 9 am – 12:30 pm and 1:30 pm – 6 pm
• Friday, July 5th: 9 am – 12:30 pm and 1:30 pm – 6 pm
• Saturday, July 6th: 9 am – 6 pm

\*\*Exhibitors are required to be present and man booths during entire exhibitor hours (unless registered for the literature table). \*\*Electric and Internet access are not guaranteed. Check with the hotel for fees. \*\*Displays must be cleared by 6:30 pm, Saturday, July 6, 2024

---

 *PAYMENT OPTIONS: CHECK VIA MAIL, PAYPAL (CREDIT CARDS), ONLINE ORDERS*

• **Online:** Please fill out the form below and once you hit submit it will bring you to the payment form for the Exhibitor or Vendor option you are signing up for. (GiveButter charges a transaction fee, below are your other options)
• **Checks:** Make Checks Payable to: AMCSI , Please note “Conference Sponsor” on memo line
Mail to: AMCSI, P.O. Box 6291, Spartanburg, SC 29304
• **Paypal:** You can pay with a major credit card and you do not need an account.
You must email a copy of your completed form to bod@amcsupport.org
www.paypal.com | AMCSI Paypal Account: bod@amcsupport.org

**[Downlod PDF of full 2024 Conference Sales Kit](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI24_Sponsorship_Exhibitor_Kit-REV.pdf)**

##### The Exhibitor Submission Form Is Now Closed

**Categories:** 19th Exhibitor Form, AMC Events, AMCSI Annual Conference, Archived

**Tags:** 19th Annual AMCSI Conference, 19th Exhibitor Form, AMC Events, BEcome an Exhibitor, Exhibitor

---

### [19th Program Form](https://amcsupport.org/19th-program-form/)

**Published:** December 12, 2023
**Author:** Ted Houser

**Content:**

### **19th Annual AMCSI Conference Program Online Form**

### Conference Program Specs

**Acceptable FIles:** 
• Electronic ONLY (PDF, JPG, EPS, TIF) 
• 300 DPI minimum resolution (Color Ads) (Please Embed All Images & Outline All Fonts)

If you have any questions about the file setup or acceptable files, please contact: 
ted@amcsupport.org

 ![](https://amcsupport.org/wp-content/uploads/2023/12/FP_image_sample.jpg) 

**FULL PAGE SIZE IS – 5.5’’W x 8.5”’H**

***1/4’’ BLEED ON EACH SIDE*** 
***FULL PAGE BLEED FILE SIZE IS – 6’’W x 9’’H***

**BLACK LINE IS THE LIVE ART AREA** 
**KEEP ANYTHING IMPORTANT INSIDE THIS AREA** 
**5’’W x 8’’H**

\~~~~~~~~~~~~~~~~~~~~

**FULL PAGE CUT AD SIZE (5.5”W x 8.5”H):** 
• With 1/4 Bleed on each side = 6”W x 9’H 
(Bleed is any image or color that extends past the actual cut Ad size) 
• Please keep any important things like text inside the Live Area

 ![](https://amcsupport.org/wp-content/uploads/2023/12/HalfP_image_sample.jpg) 

**HALF PAGE SIZE** 
**5’’W x 3.75”’H** 
\~~~~~~~~~~~~~~~~~~~~ 
• THERE IS NO BLEED

 ![](https://amcsupport.org/wp-content/uploads/2023/12/program_wrtr_pg_size-683x1024.jpg) 

**QUARTER PAGE SIZE** 
**2.5’’W x 3.75”’H** 
\~~~~~~~~~~~~~~~~~~~~ 
• THERE IS NO BLEED

**Sample Ad sizes are not actual sizes, if you have any questions, please contact:** 

**Reach For The Stars send a personalized note to your favorite AMCer, MAXIMUM of 200** characters (approximately 35 words)

---

 **PAYMENT OPTIONS:** CHECK VIA MAIL, PAYPAL (CREDIT CARDS), ONLINE ORDERS

• **Online:** Please fill out the form below and once you hit submit it will bring you to the payment form for the Event Program optiuons you are signing up for. (GiveButter charges a transaction fee, below are your other options)
• **Checks:** Make Checks Payable to: AMCSI , Please note “Conference Program” on memo line 
Mail to: AMCSI, P.O. Box 6291, Spartanburg, SC 29304 
• **Paypal:** You can pay with a major credit card and you do not need an account. 
You must email a copy of your completed form to bod@amcsupport.org 
www.paypal.com | AMCSI Paypal Account: bod@amcsupport.org

##### The Program Ad Submission Form Is Now Closed

**Categories:** 19th Program Form, AMC Events, AMCSI Annual Conference, Archived

**Tags:** 19th Annual AMCSI Conference, 19th Program Form, AMC Events

---

### [19th Important Documents](https://amcsupport.org/19th-important-documents/)

**Published:** January 9, 2024
**Author:** Ted Houser

**Content:**

## Important Documents

####      Code of Conduct 

We are committed to providing a friendly, safe and welcoming environment for all, regardless of gender, sexual orientation, disability, ethnicity, or religion. This code of conduct outlines our expectations for participant behavior as well as the consequences for unacceptable behavior.

We invite all sponsors, volunteers, speakers, attendees, media, exhibitors, and other participants to help us make the AMCSI Conference a safe and positive experience for everyone.

All event participants must abide by this code of conduct at all conference venues and conference-related social events.

All decisions about appropriate or inappropriate behavior are at the sole discretion of the event organizers AMCSI Board of Directors & Planning Team.

 **EXPECTED BEHAVIOR**

- Be considerate and respectful.
- Refrain from demeaning, discriminatory, or harassing behavior and speech.
- Be mindful of your surroundings and of your fellow attendees. Alert conference organizers if you notice a dangerous situation or someone in distress.

**UNACCEPTABLE BEHAVIOR**

- Unacceptable behavior includes but is not limited to intimidating, harassing, abusive, discriminatory, derogatory, demeaning behavior, inappropriate physical contact, and unwelcomed sexual conduct by any attendees of AMCSI and related events like the after-hours networking parties.
- Harassment includes offensive verbal comments related to gender, sexual orientation, race, religion, or disability; inappropriate use of nudity and/or deliberate intimidation, stalking or following; harassing photography or recording in an aggressive manner; disruption of talks or other events.
- Inappropriate Clothing for Family Friendly Event
- Verbal, Written or Physical Abuse (pushing, shoving, or use of any physical force), threats, whatsoever against any person, which in any way creates a disturbance that is disruptive or dangerous.
- Possession of any item that can be used as a weapon and may cause danger to others.
- Any lewd behavior or offensive language, including but not limited to sexually explicit language, materials or conduct, profanity, obscene gestures, racial, religious, gender, or ethnic slurs.
- Drinking alcohol outside designated areas. Please drink responsibly.
- Possession or use of any illegal substance. AMCSI does not tolerate the use or abuse of illegal substances anywhere in the venue.
- Smoking in non-designated areas.
- Assembling for the purpose of, or resulting in, disturbing the peace, or committing any unlawful act.
- Failure to obey any rules or regulations of the Venue.

**CONSEQUENCES OF UNACCEPTABLE BEHAVIOR**

- Unacceptable behavior will not be tolerated.
- Anyone asked to stop unacceptable behavior is expected to comply immediately.
- If a participant engages in unacceptable behavior, the conference organizers may take any action they deem appropriate, up to and including expulsion from the conference without warning or refund.

WHAT TO DO IF YOU WITNESS OR ARE A VICTIM OF UNACCEPTABLE BEHAVIOR

- If you are subjected to unacceptable behavior, notice that someone else is being subjected to unacceptable behavior, or have any other concerns during the event, please notify a member of AMCSI Board of Directors and Planning Team as soon as possible. All reports will remain completely confidential.

The AMCSI Board of Directors and Planning Team will be available to help participants contact hotel venue security and/or local law enforcement as deemed necessary, or to otherwise assist victims in reporting unlawful unacceptable behavior.

If you have any questions, please contact the planning team at

1-805-55-AMCSI (1-805-552-6274)

[info@amcsupport.org]()

####      General Liability Waiver 

All persons participating in the 2024 AMCSI Conference at the Hyatt Regency Atlanta in Atlanta, Georgia (hereinafter referred to as “Event”) held on July 3 – July 6, 2024 are required to read, agree to, and sign this waiver before participating.

I hereby release and forever discharge Arthrogryposis Multiplex Congenita Support, Inc., its Board of Directors, and any person working jointly and severally, volunteers, directors, officers, administrators, agents, and assigns (hereinafter referred to as “the Releasees”) from all liability for any and all claims or causes of action of any kind or nature whatsoever and particularly on account of any injuries, both to person and property, which may result from or develop in the future as a result of my participation in the Event.

I further agree that if, despite this Release and Waiver of Liability I or any person on my behalf makes a claim against the Releasees, I will indemnify, save and hold harmless the Releasees from any monetary losses including, but not limited to, legal fees and litigation costs. This release is binding on my heirs, executors, assigns, and administrators.

The undersigned is aware of the risks of participation in the Event. The undersigned assumes all risks. The risks include those foreseen and unforeseen, known and unknown. We may also share or disclose your data to comply with a court order or other legal obligation, to enforce the Site terms of use, and to protect the rights, property or safety of our users and other third parties.

We may disclose data to government or law enforcement officials or private parties as we determine, in our sole and absolute discretion, is necessary or appropriate to respond to claims or to comply with legal processes, to comply with laws, regulations or ordinances or to prevent or stop illegal, unethical or actionable activity.

If a minor child accompanies me and participates in the Event, I shall be responsible for supervising such minor child (or children). I agree to indemnify the Releasees from and against any claims for damages or injuries (to the child or third parties) to the extent such claims arise from or are related to my failure to exercise due care in supervision.

I acknowledge that photographs may be taken of persons taking part in the Event by AMCSI and waive any rights of compensation or ownership there to. I hereby authorize and consent to either or both of the Releasees, making make use of any Event-related photographs in which I and/or my minor child or children may be included for purposes of news reporting and/or public relations and, further, authorize either or both of the Releasees to publish and/or re-publish such photograph or photographs in the fundraising materials and literature in connection with the Event and other fundraising events.

I hereby declare that I:

- Have read, understood, and voluntarily accept the terms and conditions of this document.
- Recognize my right to seek legal counsel before submitting my registration form.
- Am waiving legal rights and in knowing this, I agree to it of my own free will.
- I am aware that my agreement to this Waiver and Release of Liability is in effect once I submit this registration form.

Please submit your full name on registration form, if you accept.

####      Photo Release 

1\. Video/audio capture of AMCSI sessions and activities is strictly prohibited without express written permission from BOTH: 1.) the session presenter/s, person/s, and 2.) AMCSI. AMCSI reserves all video/audio taping and photography rights at conferences and events. No video or audio taping is permitted in session rooms.

2\. Amateur video/audio capture and still photographs are permitted of ambient environments, informal exchanges, and sessions and activities not organized by AMCSI, outside of AMCSI session rooms, provided that appropriate permissions have been granted by the parties affected. AMCSI assumes no liability for copyright and/or intellectual property violations that may occur as a result.

3\. Under no circumstances may any length or quality of video/audio capture of AMCSI sessions be used for marketing, advertising, or commercial purposes without express written permission from BOTH: 1.) the session presenter/s, and 2.) AMCSI.

4\. Private recording is not allowed without permission. The Board of Directors are authorized to halt the creation of unauthorized recordings.

5\. Any costs associated with the creation of an audio/video record must be incurred by those wishing to create the audio/video recording unless funding is specifically authorized by the Board of Directors of AMCSI.

6\. Audio/video material created at an AMCSI event shall not be used by the recorders for financial gain without permission from the Board of Directors of AMCSI.

7\. AMCSI will be provided with a copy of each instance of audio/video recording created at an AMCSI event, within 30 days of the creation of the recording.

8\. Any costs associated with the creation of an audio/video record must be incurred by those wishing to create the audio/video recording unless funding is specifically authorized by AMCSI.

9\. AMCSI is authorized to reuse the copy in a non-profit manner that is consistent with AMCSI’s Mission and Vision.

10\. Requests for audio/video capture of AMCSI Events may be made by emailing bod@amcsupport.org

**Categories:** AMC Events, AMCSI Annual Conference, Archived

**Tags:** 19th Annual AMCSI Conference, 19th Important Documents, AMC Events

---

### [19th Adaptive Sports](https://amcsupport.org/19th-adaptive-sports/)

**Published:** January 16, 2024
**Author:** Ted Houser

**Content:**

![](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI24_adaptive_sports2-REV2-1024x1024.jpg) 

 ![](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI24_adaptive_sports1-REV2-1024x1024.jpg) 

 ![](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI24_adaptive_sports3-REV2-1024x1024.jpg) 

### Adaptive Sports Registration

Are you curious or interested in the outdoors? Then sign up to get involved in some adaptive sports fun on July 3rd, before the 19th Annual AMCSI Conference in Atlanta, Georgia!

#### Deadline to sign up has been extended to June 15th!

Anyone who signs up & we are over the limit, will go on a waitlist. So Please sign up as soon as possible to get in before then!

Reminder: Stay hydrated during & before your water activities.
All fields are required.

Photos on this page may not reflect activities taking place during the 19th Annual AMCSI Conference, please see the form below.

Sponsored By

 [ ![Centurionlogo_color_600](https://amcsupport.org/wp-content/uploads/2023/12/Centurionlogo_color_600.png) ](https://centurionboats.com/) 

 [ ![Wake_for_warroirs_black-red_logo](https://amcsupport.org/wp-content/uploads/2023/12/vinyl_wfw2015_black-600.png) ](https://www.wakeforwarriors.org/) 

 [ ![nautique-boat-company-inc-logo-vector-color-600](https://amcsupport.org/wp-content/uploads/2023/12/nautique-boat-company-inc-logo-vector-color-600.png) ](https://nautique.com/) 

#### >>> [Click Here To Donate To Adaptive Sports](https://www.azadaptivewatersports.org/kim-amcsi-2024) <<<

##### All (required) (\*) documents must be sent to info@amcsupport.org

Your application will not be processed until all required items are received.
Please do not email to check on the status of your application. We will reach out you if further information is needed.

### The Adaptive Sports Application is now closed.

**Categories:** AMC Events, AMCSI Annual Conference, Archived

**Tags:** 19th Annual AMCSI Conference, Adaptive Sports, AMC Events

---

### [19th Annual AMCSI Conference Volunteer](https://amcsupport.org/19th-annual-amcsi-conference-volunteer/)

**Published:** May 9, 2024
**Author:** Ted Houser

**Content:**

![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_Conference_Volunteers.jpg) 

### Conference Volunteers

Sign up by clicking the button below to volunteer at the AMC Annual Conference in Atlanta, GA on July 3-6, 2024. All times are in EST. 🤝✨

Please read the information below as some changes and updates are included.

Volunteers must be over 16 to volunteer alone. Pre-teens may volunteer \*with\* a parent or designated adult in certain locations.

Volunteers are encouraged to attend the volunteer training on Wednesday at 2:30pm. Any volunteers who attend the training AND volunteer for at least 4 hours will receive an exclusive lanyard (must meet both requirements). Volunteers who attend the training will also be granted special access to a special volunteer-only early registration line for conference at 3:30pm immediately following the training.

This sign-up will not work well on a mobile device – it is best to use a computer.

If you have any questions, please email **** Thank you for helping make the AMC conference amazing! We couldn’t do it without you!🌟🌟🌟

 [  Sign Up Here To Volunteer  ](https://www.signupgenius.com/go/10C0D4FA5A623A1F94-49071274-amcatlanta#/)

**Categories:** AMC Events, AMCSI Annual Conference, Archived

**Tags:** 19th Annual AMCSI Conference Volunteer, Volunteer

---

### [19TH Annual AMCSI Conference Program](https://amcsupport.org/19th-annual-amcsi-conference-program/)

**Published:** June 5, 2024
**Author:** Ted Houser

**Content:**

## 19th Annual AMCSI COnference Program Link

Please **[CLICK HERE](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI24_Program-outlined-web.pdf)** *(or the Program Cover Image)* to view/download a PDF file of the Conference Program. You can then enlarge the PDF file on your devices.

 [ ![19th Annual AMCSI Conference Program cover](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI24_Program-cover.jpg) ](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI24_Program-outlined-web.pdf)

**Categories:** AMC Events, AMCSI Annual Conference, Archived

**Tags:** 19th Annual AMCSI Conference, Program

---

### [19th Annual AMSCI Conference Photo Gallery](https://amcsupport.org/19th-annual-amsci-conference-photo-gallery/)

**Published:** July 11, 2024
**Author:** Ted Houser

**Content:**

![AMCSI24 Official Photo Gallery of the 19th Annual AMCSI Conference, held in Atlanta, GA July 3-6, 2024](https://amcsupport.org/wp-content/uploads/2024/07/AMCSI24_official_photo_gallery-1024x1024.jpg) 

## 19th Annual AMCSI Conference Photo Gallery

July 3-6, 2024
Atlanta, GA

#### Thank you to all who attended!

 [  Conference Sessions  ](https://amcsupport.org/19th-annual-amcsi-conference-sessions/) 

 [  Conference Site  ](https://amcsupport.org/19th-annual-amcsi-conference/) 

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**Categories:** 20th Annual AMCSI Conference, AMC Events, Archived

**Tags:** Past Conference, Photo Gallery

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### [19th Annual AMCSI Conference Sessions](https://amcsupport.org/19th-annual-amcsi-conference-sessions/)

**Published:** July 30, 2024
**Author:** Ted Houser

**Content:**

Unleash Your Potential: Discover the Superpower of Adaptive Recreation

Imagine: Pushing your limits further than ever before. Uncovering hidden strengths that go beyond daily life. Feeling a surge of independence and confidence you never knew existed. For me, adaptive sports transformed my life. As a woman with AMC, I craved self-sufficiency and independence. Adaptive sports opened a whole new world of possibilities. In just 3 years, I’ve completely changed my life and have become healthier and happier than ever. But here’s the shocker: It took me 40 years to find this. That’s why I’m here. To tell you, it’s never too late. Even if you’re scared, take that first step. Trust the process and see what happens when the impossible becomes possible.

What is a Genetic Evaluation and How Will it Benefit my Child?

In this session we will review the nuts and bolts of a genetic evaluation. We will discuss the components of a genetic evaluation including what historical and physical examination findings are important. We will delve into the different types of genetic testing utilized in clinical practice and discuss types of results which are expected along with limitations of testing. The process of genetic counseling will also be discussed.

Hip in AMC

Contractures of the hip are present in almost 90% of AMC children. Hip dislocations are seen in 30% to 40% of AMC children. The purpose of this talk is to clarify some of the medical jargon that surrounds this complex joint. There is no “one way” to treat an AMC hip, so the aim of this talk is to bring a better understanding of what the surgeon is thinking when planning surgery.

In “Moving the Curve: Modern Approaches to Spinal Care in Arthrogryposis

Dr. Arun Hariharan will explore the latest advancements in treating spinal deformities associated with arthrogryposis. The talk will cover innovative surgical techniques and treatment strategies that improve patient outcomes. Dr. Hariharan will share insights from his experience and research in pediatric spine surgery. Attendees will learn about the integration of cutting-edge technologies and personalized care plans in managing complex spinal conditions in AMC. This presentation aims to enhance understanding and collaboration among healthcare professionals dedicated to improving the lives of patients with arthrogryposis.

Adaptive Sports

Adaptive recreation can be broadly defined as any recreational activity that is modified to enable people with physical or mental disabilities to participate in said activity. Adaptations could range from something as simple as using an orange bib to help guide someone with a visual impairment to a customized piece of equipment that allows for physical expression in that recreational environment. This brings up the question, “How can I participate?” If you are looking to answer this question or learn more about what a recreational activity may look like for you, stop by for this hour-long open informational discussion with TRAILS Adaptive Sports, TetraAdapt, High Country Adaptive Sports, Arizona Adaptive Water Sports, and Paradox Climbing. Each program has some informational videos and lots of knowledge on how everyBODY can participate in sports and recreation.

Development milestones in children with AMC:

Understanding and creating new tools. The development of a child is determined by complex interactions between various factors, such as the severity of the child’s condition and environmental factors. Better understanding how children with AMC reach developmental milestones was shared as an important need by families of children with AMC, and having tools to evaluate children with AMC was voiced as an important deliverable for clinicians. This session will describe: a) The development of children with AMC between 0-5 years of age using data from an AMC registry of 400 children across North America. b) The SHAPE-UP (Shriners Hospital Arthrogryposis Pediatric Evaluation-UPper Extremity) tool to evaluate the upper extremity in children 1-21 years of age. This talk will shed light on how this information can be useful for parents, clinicians, and researchers working with a child with AMC.

Arthrogryposis 101:

Arthrogryposis multiplex congenita (AMC) is a term to describe a spectrum of disorders that all have something in common – the babies were born with multiple joint contractures. This talk is designed to provide a structure to understand arthrogryposis, in terms of its causes, and differences between the common types of AMC. In that way, the information gained should provide participants with a knowledge foundation to help the get the most out of other medical talks in the conference. It will also touch upon some of the procedures done to correct lower extremity deformities.

Upper Extremity Orthotics EVERYONE?

Orthotics (Splinting) are a part of AMC journey. However why do we wear them? What is their purpose? Are there other options? This session will review the basics of orthotics from the general components/materials to the varied purposes of orthosis. Participant discussion is encouraged throughout especially with alternative options to UE splinting and suggestions for handling our little Houdini’s.

Understanding ABLE Accounts & Special Needs Trusts

Learn how these two pillars of special needs planning may be used to maximize resources. Topics include protecting government benefits, eligibility requirements, guidelines for use, and funding options. Information will be presented simply and practically on how you might best provide quality of life and a lifetime of care. Participants are welcome to a resource kit and complimentary consultation.

Lower Extremity Deformity and Arthrogryposis

I am so excited to talk with everyone about the basics of what defines deformity of the legs including angular deformity like knock knees and bowlegs. I will teach you how deformity doctors figure out how to balance a leg to a more anatomic position. We will also discuss the implications of rotational deformity to the hips, knees, and feet and some features that are specific to arthrogryposis. I will explain some of the surgical options that may be appropriate for these problems. We will touch on hip, knee, and ankle contractures, but these will be covered more in depth by other speakers.

What to know about lower extremity amputations

A hot topic in arthrogryposis is amputation. This session will review the many amputation options for those with lower extremity limb deformity. Not all have positive outcomes with this surgical intervention. This session will address types of amputations, prosthetic components, and the strategies needed for success and independence.

Come join a diverse panel of Adults with AMC as they discuss their hobbies and interests and some tricks and tips on how to make it work!

The foot is the most commonly affected area in persons with arthrogryposis.

Because the foot and ankle complex is composed of 28 bones and 33 joints, it can also be one of the more tricky aspects of arthrogryposis to manage. During this session we will discuss everything from clubfoot to congenital vertical talus as well as treatment from infancy through adulthood. We hope this session will be informative to parents and patients alike.

Toolkits for adults with AMC and caregivers

As AMC is rare, individuals with AMC and caregivers of children with AMC may experience challenges in accessing care, getting information, and finding supports. To address these challenges, this session will present the work of two trainees on: a) The developmental of a toolkit for adults with AMC using focus groups with knowledge users and experts; b) Describing the caregiving experience in AMC using information collected from a survey and interviews across 4 countries. This session will provide tools to raise awareness on the needs of adults with AMC and caregivers of children with AMC. We are looking forward to your feedback during this session in order to refine our projects!

Spine:

The incidence of scoliosis in children with arthrogryposis multiplex congenita (AMC) is estimated to be about 20% over the course of childhood. Babies can be born with curves, or they can develop a curve at any time during childhood. In this talk, we will discuss the various ways that spine curves can present, and options for treatment, including bracing, spine casting, non-fusion (“growth friendly”) implants, and spinal fusions.”

Make Stuff and Love People – Creating Assistive Technology Solutions in Minutes

This session will discuss new methods, materials and resources for creating hundreds of assistive technology solutions in minutes using low-cost materials including Coroplast, InstaMorph, loc-Line, PVC, and 10 different specialty tapes for rapid solution creations. This session will also discuss the importance of embracing the “…ABLE” principle in developing solutions that are: Adjustable, moldable, reuseable, removeable, affordable, washable, collapsible, portable, pliable, repurposeable and more. Learn how to become an AT McGyver, McGyva, or McGyvett for quickly solving every day challenges on the fly.

This presentation will focus on the application of Section 504 and Title II in schools. We will cover the laws protecting physical accessibility in schools, covering aspects such as doors, sidewalks, hallways, parking, and access to facilities for guests, guardians and students. We will discuss the federal laws that apply to public and charter schools and almost all colleges and universities, and how these laws, when correctly implemented, should eliminate barriers to education from pre-k through college and beyond. Additionally, we will review how Section 504 protects students’ fair access to the classroom and day-to-day learning environment – including ways to help schools craft the best 504 plan for an individual student’s specific needs.

Effective therapeutic intervention for individuals with arthrogryposis occurs through a lifetime continuum.

Session attendees will gain an understanding of early intervention strategies and how early intervention is the first and key opportunity to promote movement and independence in children with arthrogryposis. An overview of rehabilitation following surgical interventions will educate the attendee on how children further progress with movement and independence as they grow and mature.

What comes next after high school for students with disabilities.

“Let’s talk about life after high school” is a chance to have a conversation and share resources about what college can look like for yourself/your son/daughter/loved one after high school. This presentation is going to talk about the difference between college and high school, what college accommodations are, tips for prospective students researching colleges, the national movement for inclusive postsecondary education, saving up for college, and setting expectations for college and employment early.

Come join a group of Adults with arthrogryposis as they discuss their diverse careers of choice, and how they were able to achieve their goals.

Simple Solutions to Complex Cases; An Interdisciplinary Approach to Orthotic Care in AMC

This presentation will include case studies of children with AMC and describe the collaboration between physical therapy and orthotics as we work to optimize each child’s mobility and functional skills. This will include detailed videos and pictures of each case study. The goal of the presentation is to describe the interdisciplinary approach used between physical therapy and orthotics and the materials that were used for these complex cases.

This session will be about disability law, especially the right to accessibility in public accommodations and to employment. A good companion to the separate session on disability rights in education.

AMCSI Board Of Directors Meeting in Atlanta, Georgia July 6th, 2025.

19th Annual AMCSI Conference Closing Ceremony with the Lady Karen Przytula, Grand High Priestess

Lady Karen Przytula , the 2023-2024 Grand High Priestess presented AMCSI several checks for $72,892.64 ![💙](https://static.xx.fbcdn.net/images/emoji.php/v9/tb/2/16/1f499.png)![😭](https://static.xx.fbcdn.net/images/emoji.php/v9/tdf/2/16/1f62d.png) So very thankful and honored for being selected for Lady Karen’s special project during her reign! ![🙏](https://static.xx.fbcdn.net/images/emoji.php/v9/t1f/2/16/1f64f.png) And also so thankful to have Karen with us at the 19th Annual AMCSI Conference ! She put in the work ladies ~ ZaHirUDin court would be so proud!

Karen, we love you! Thank you! Thank you! These memories will be forever etched as one of the best moments in the history of our organization!

**Categories:** AMC Events, AMCSI Annual Conference, Archived

**Tags:** 19th Annual AMCSI Conference, Video Sessions

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### [Shriners Children's Greenville - ADL Camp 2026](https://amcsupport.org/shriners-childrens-greenville-adl-camp-2026/)

**Published:** June 29, 2026
**Author:** Ted Houser

**Content:**

# Shriners Children’s Greenville, SC | ADL Camp 2026

*(Photos are courtesy of The Dreamwalker Project and Ani)*

 [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-28.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-42.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-93.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-79.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-22.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-77.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-58.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-95.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-86.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-92.jpg) 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](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-103.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-24.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-89.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-25.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-55.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-21.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-59.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-23.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-91.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-75.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-31.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-76.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-34.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-39.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-16.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-37.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-18.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-48.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-94.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-105.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-81.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-71.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-100.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-99.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-50.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-36.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-68.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-5.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-96.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-66.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-87.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-11.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-52.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-74.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-56.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-106.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-3.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-26.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-65.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-88.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-10.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-104.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-32.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-47.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-84.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-40.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-62.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-54.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-7.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-35.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-19.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-53.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-6.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-27.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-8.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-90.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-101.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-78.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-9.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-85.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-13.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-63.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-41.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-46.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-98.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-51.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-57.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-64.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-67.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-45.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-80.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-20.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-69.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Shriners-Childrens-Grenville-ADL-Camp-29.jpg)

**Categories:** AMC Events, Archived

**Tags:** ADL Camp, GreenvilleSC, Shriners Greenville

---

### [AMC Meetup - Concord, NC](https://amcsupport.org/amc-meetup-concord-nc/)

**Published:** May 25, 2026
**Author:** Ted Houser

**Content:**

[ ![AMC Meetup Logo for AMCSI by TBSDesigns](https://amcsupport.org/wp-content/uploads/2026/05/AMC-Meetup-Logo.png) ](https://amcsupport.org/amc-library/) 

 ![AMC Meetup logo centered at the top, with "Concord, NC" below it in black. Then a brief description of the event that says, "Join us for a relaxed afternoon of games, connection, and community! 📍 Location: Luck Factory Games 📅 Date: June 20 🕝 Time: 2:30 PM 💲 Admission: $8 per person." The AMCSI logo is in the bottom-left corner with @AMCSUPPORT and social icons & the hashtags #AMCmeetup & ConcordNC are in the bottom-right corner, all in light blue. The background is mostly white, with a blue-to-dark blue gradient at the bottom.](https://amcsupport.org/wp-content/uploads/2026/05/AMCmeetup-Concord-NC.jpg) 

# AMC Meetup >>> Concord, NC

### Join us for a relaxed afternoon of games, connection, & community! 🎲💙

**📍 Location:** Luck Factory Games 
**📅 Date:** June 20, 2026
 **🕝 Time:** 2:30 PM 
**💲 Admission:** $8 per person

Bring the family & spend the afternoon playing together. There will be tons of games available for all ages 2 & up, so everyone can join in.

Afterward, anyone who wants to keep the fun going is welcome to grab an optional dinner together at Gibson Mill Market.

📩 RSVP by June 6th:

**Categories:** Archived, Arthrogryposis

**Tags:** AMC Meetup, AMCSI, Concord, Concord NC, North Carolina

---

### [Philly Meetup](https://amcsupport.org/philly-meetup/)

**Published:** May 25, 2026
**Author:** Ted Houser

**Content:**

[ ![AMC Tour - Powered by Strength, Driven by Love](https://amcsupport.org/wp-content/uploads/2025/10/AMC-Tour-logo-color.png) ](https://amcsupport.org/amc-library/) 

 ![Blue promotional graphic for the Philly AMC Meetup at the Independence Visitor Center in Philadelphia. The design features a large silhouette of the Liberty Bell in the background with AMCSI, Dream Walker Project, & AMC Tour logos. Event details include 6th & Market Street, Philadelphia & “Anytime after 3 PM.” Social media icons & the hashtag #PhillyAMCmeetup appear at the bottom. #AMC #Arthrogryposis #AMCSupport #AMCCommunity #AMCMeetup #Philadelphia #PhillyEvents #DisabilityCommunity #AccessiblePhiladelphia #DisabilityAwareness #WheelchairAccessible #InclusiveEvents #CommunityMeetup #PhillyMeetup #IndependenceVisitorCenter #TheDreamwalkerProject #AMCTour #AccessibleTravel #DisabilityAdvocacy #AdaptiveLiving](https://amcsupport.org/wp-content/uploads/2026/05/AMCtour26-philly-IVC.jpg) 

### Let’s meet up in Philly! 

Join us for an AMC Meetup at the Independence Visitor Center!

📍 6th & Market Street, Philadelphia
📅 June 4, 2026 – 3:00 PM
*(May end around 6 unless people are still around)*

Accessible parking:

Food & drinks nearby:

More info about the Visitor Center:
[https://www.nps.gov/…/pla…/independencevisitorcenter.htm](https://www.nps.gov/.../pla.../independencevisitorcenter.htm)

Presented by AMC Tour & [The Dreamwalker Project](https://www.facebook.com/mishadreamwalker)

**Categories:** Archived, Arthrogryposis

**Tags:** Philadelphia PA, Philly, Philly Meetup, Philly Philly

---

### [Val's AMC Music Festival '26](https://amcsupport.org/vals-amc-music-festival-26/)

**Published:** April 3, 2026
**Author:** Ted Houser

**Excerpt:** Join us for Valerie Pepe’s AMC Music Festival on Saturday, June 6, 2026, from 5:00 PM to 10:00 PM in Staten Island, NY. This evening brings together live music, community, and connection in support of AMC awareness. Enjoy a fun, welcoming atmosphere with raffle baskets and 50/50 tickets, all while helping make a meaningful impact. Tickets are $25 per person, AMC families receive half-price admission, and children under 12 attend free.

**Content:**

## Valerie Pepe’s AMC Music Festival '26

## Staten Island, NYC

 ![Valerie Pepe's AMC Music Festival](https://amcsupport.org/wp-content/uploads/2026/05/AMCSI26_ValsMusicFestival-web-2.jpg) 

### 🎶 Val’s AMC Music Festival is back! 💙

 **Join us for a night of music, community, and fun.**

📅 Saturday, June 6, 2026
🕔 5:00 PM – 10:00 PM 
📍 4254 Arthur Kill Rd, Staten Island, NY

Featuring: 
• Deceiver
• The Kitchen
• 24 Missions 
• “Light’em Up” 
• The Kitchen *(with special guests)*

🎟️ $25 per person 
💙 AMC Families half price
👧 Children under 12 free

🎁 Raffles & 50/50 tickets 
⚠️ No credit cards accepted

Come out, enjoy the vibes, & support AMC awareness 💙

**Categories:** Archived, Fundraising

**Tags:** AMC Music Festival, AMCSI Fundraiser, Music Festival, Val's Music Festival '26

---

### [Val's AMC Mini Meetup & Book Signing](https://amcsupport.org/vals-book-signing/)

**Published:** April 14, 2026
**Author:** Ted Houser

**Excerpt:** Join us in Omaha for an AMC mini-meetup + book signing 📚💙

Connect with the community and meet Valerie Pepe alongside Linda Garcia for an evening of conversation & connection.

🗓 April 28, 2026
⏰ 5–7 PM
📍 Homewood Suites by Hilton Omaha Downtown

Light refreshments will be provided, & Valerie’s books will be available for purchase.

💙 RSVP by April 26
💙 Contact: Valerie at valerie.m.pepecooper55@gmail.com or 917-524-5548

We hope to see you there 💙

#AMCstrong #AMCommunity #OmahaEvents #BookSigning #DisabilityCommunity 💙

**Content:**

# Join us in Omaha for an AMC mini-meetup + book signing 📚💙

 ![Join us in Omaha for an AMC mini-meetup + book signing 📚💙 Connect with the community and meet Valerie Pepe alongside Linda Garcia for an evening of conversation & connection. 🗓 April 28, 2026
⏰ 5–7 PM
📍 Homewood Suites by Hilton Omaha Downtown Light refreshments will be provided, & Valerie’s books will be available for purchase. 💙 RSVP by April 26
💙 Contact: Valerie at valerie.m.pepecooper55@gmail.com or 917-524-5548 We hope to see you there 💙 #AMCstrong #AMCommunity #OmahaEvents #BookSigning #DisabilityCommunity 💙](https://amcsupport.org/wp-content/uploads/2026/04/AMCminiMeetup-Vals-booksigning.jpg) 

**Connect with the community and meet Valerie Pepe alongside Linda Garcia for an evening of conversation & connection.**

🗓 April 28, 2026 
⏰ 5–7 PM 
📍 Homewood Suites by Hilton Omaha Downtown

Light refreshments will be provided, & Valerie’s books will be available for purchase.

💙 RSVP by April 26 💙 Contact: Valerie at valerie.m.pepecooper55@gmail.com or 917-524-5548

##### We hope to see you there 💙

\#AMCstrong #AMCommunity #OmahaEvents #BookSigning #DisabilityCommunity 💙

**Categories:** Archived, Fundraising

**Tags:** AMC Mini Meetup, Book Signing, Valerie Pepe

---

### [Siera - 40 Years With AMC Birthday Celebration](https://amcsupport.org/sieras-40-years/)

**Published:** February 12, 2026
**Author:** Ted Houser

**Excerpt:** Siear's 40 Years With AMC Birthday Celebration

**Content:**

# Celebrating 40 Years with AMC

 ![](https://amcsupport.org/wp-content/uploads/2026/02/Siera-40thBDay-07.jpg) 

### 40th Birthday Celebration Honoring Siera’s AMC Journey

On February 22 from 2:00 PM to 5:00 PM, Siera will be celebrating her 40th birthday with a special private gathering titled “40 Years with AMC.”

This meaningful milestone is not only a birthday celebration, but also a time to reflect on four decades of life with AMC and the community that has been part of the journey.

While this is a private event, Siera would love to include those who are unable to attend but would still like to be part of the celebration. If you feel moved to contribute in honor of her 40 years with AMC, your support is warmly welcomed and deeply appreciated.

### A few AMC facts that Siera would like to share with everyone!

 [ ](https://amcsupport.org/wp-content/uploads/2026/02/Siera-40thBDay-10.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/Siera-40thBDay-06.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/Siera-40thBDay-04.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/Siera-40thBDay-01.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/Siera-40thBDay-09.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/Siera-40thBDay-12.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/Siera-40thBDay-14.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/Siera-40thBDay-05.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/Siera-40thBDay-02.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/Siera-40thBDay-03.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/Siera-40thBDay-11.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/Siera-40thBDay-13.jpg)

**Categories:** Archived, Fundraising

**Tags:** 40 years, Birthday, Celebration, Fundraiser, Fundraising, Siera

---

### [Roger's Run 4 AMC](https://amcsupport.org/rogers-run-4-amc/)

**Published:** January 14, 2026
**Author:** Ted Houser

**Content:**

# Roger’s Run 4 AMC

**​Celebrate 15 years and still running with [Roger’s Run 4 AMC](https://www.rogersrun4amc.com)!**

​We are looking forward to another great event on Saturday June 13th, 2026. This will be our 16th year running and we are so glad to have brought so much awareness about Arthrogryposis Multiplex Congenita to our community. In the past 16 years Roger’s Run 4 AMC has donated over $140,000 to the AMCSI support organization. We want to thank the community for their generous donations year after year. AMCSI support organization supports many individuals diagnosed with Arthrogyposis Multiplex Congenita through education, resources, medical journals, symposiums and yearly conferences. The most important thing they offer is hope and community.

RogersRun for AMC has joined forces with the red hook Raiders sports club and they are taking over the running of the annual event in 2025 and years to come. The club will continue to donate a portion of proceeds to AMCSI, fund the Roger’s Run scholarships and support sports teams in the red hook central school district.

Everyone that knows Roger knows his love for sports and this is the next natural chapter for RogersRun for AMC. The run will continue to raise awareness for AMC, bring the the community together, support those going into the field of occupational and physical therapy and Red Hook sports.

[![Roger's Run 4 AMC emblem](https://amcsupport.org/wp-content/uploads/2026/01/Rogers-Run-4-AMC-emblem-300x231.jpg)](https://www.rogersrun4amc.com)

 [  To Learn More Click Here  ](https://www.rogersrun4amc.com)

**Categories:** Archived, Fundraising, Rogers Run 4 AMC

**Tags:** 4 AMC, Arthrogryposis, Roger's Run 4 AMC, Rogers Run

---

### [21st Annual AMSCI Conference – Adaptive Sports](https://amcsupport.org/adaptive-sports-oh26/)

**Published:** January 31, 2026
**Author:** Ted Houser

**Content:**

### **Adaptive Sports at the 21st Annual AMCSI Conference!**

 ![Join the 21st Annual AMCSI Conference in Columbus, Ohio for adaptive sports including kayaking, cycling, wheelchair basketball, boccia, and 4-foot hoops. All activities offer adaptive equipment, trained support, and inclusive participation for people with disabilities.](https://amcsupport.org/wp-content/uploads/2026/01/Adaptive-Sports-Activities.jpg) 

Supporting our Adaptive Sports program is essential to ensuring that people have meaningful access to recreation, movement, and community. Adaptive sports remove barriers that too often limit participation by providing the equipment, expertise, and support needed to make physical activity accessible.

This program helps create spaces where individuals can engage on their own terms, build skills, and connect with others who share similar experiences.

**Continued support allows these opportunities to grow, reach more participants, and remain inclusive, safe, and accessible, reinforcing the importance of equity and belonging within our conference and beyond.**

### Sponsored By

 [ ![Adaptive Sports Connection - ASC](https://amcsupport.org/wp-content/uploads/2025/07/ASC-logo-RGB-color.png) ](https://adaptivesportsconnection.org/) 

 [ ](https://amcsupport.org/wp-content/uploads/2026/02/ASC-Cycling-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/ASC-Kayaking-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Force.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/Wheelchair-Basketball-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/ASC-Cycling-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/Wheelchair-Basketball-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/02/ASC-Kayaking-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Force3.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Force2.jpg) 

 [ ![A young participant is playing power soccer. The conference branding for the 21st Annual AMCSI Conference in Columbus, Ohio, July 1 to 4, 2026. A red city skyline graphic spans the bottom of the image. In the bottom right are the FB, IG, BlueSky, TikTok, YouTube & X logos, with @AMCSUPPORT on the bottom left & the hashtags #AMCOH26 & #AdaptiveSports on the bottom right, both in white.](https://amcsupport.org/wp-content/uploads/2026/01/AMCOH26-adaptive-sports-p-soccer-directions.jpg) ](https://amcsupport.org/amcoh26-adaptive-soccer-2/) 

##### ⚽ Power Soccer Participants at #AMCOH26 ⚽

Important travel tip before heading to Adaptive Sports!

**If you enter the school address into your GPS, it may direct you to the staff parking lot, which is a long distance from the gym entrance.**
📍 Instead, use GPS coordinates: 40.0860869, -82.8135438

🚗 **Biggest takeaway:**
DO NOT turn into the drive at the stoplight on Chatham Green Dr. This will take you to the staff lot.

➡️ Continue to Kardules Flds Way
➡️ Follow the drive toward the school building
➡️ Turn right
➡️ The gym entrance is located near the tennis courts and accessible ramp

📄 Click the button to download the complete Power Soccer directions.

 [  Download PDF Of Directions  ](https://amcsupport.org/amcoh26-adaptive-soccer-2/) 

### Sign Up For The Adaptive Sports Activity

##### All (required) (\*) documents must be sent to info@amcsupport.org

Your application will not be processed until all required items are received.
Please do not email to check on the status of your application. We will reach out you if further information is needed.

       Name Of The Person Participating   

  Age Of The Person Participating   

  If under the age of 18, what is your Parent/Guardians Name   

  Email   

  Phone   

  Name Of Emergency Contact   

  Phone Of Emergency Contact   

---

 Please check off the adaptive sports that you are interested in participating in? (required)

Each event costs $20 per person. After we receive your inquiry, a member of the Adaptive Sports Team will contact you to arrange payment. You also have the option to submit payment in the next window that appears after clicking the “Send” button below. If cost is a concern, please contact Kimberly at: **[kimberly.kolstad@utah.edu]()**) 

---

 Option #1 

 **ASC Kayaking**

Paddle your way through a memorable morning on the water. ASC Kayaking takes place at an accessible waterfront property near the Columbus Zoo and offers adaptive kayaks and specialized equipment to support a wide range of needs. Participants can paddle independently or with assistance, with staff and volunteers helping with transfers, setup, and on-water support. It is relaxed, refreshing, and a great way to kick off the day outdoors. All equipment is provided.

**Date:** July 1, 2026
**Location:** ASC Waterfront Property *(near the Columbus Zoo)*
**Time Slots:** *Please choose your preferred time slots* 9:00 AM to 10:15 AM 10:30 AM to 11:45 AM

---

 Option #2 

 **Power Soccer**

Power Soccer is the ultimate adaptive sport, combining speed, skill, and strategy on a standard basketball court. Teams of four players, including a goalkeeper, battle it out in two exciting 20-minute halves, delivering nonstop action and competition. Whether you play in your everyday power chair with an attached foot guard or in a specialized chair designed for elite-level performance, Power Soccer is accessible for athletes of all experience levels. The oversized 13-inch soccer ball is specially designed for better visibility and control, ensuring every play is full of energy and excitement. Get in the game, showcase your skills, and discover why Power Soccer is one of the fastest-growing adaptive sports in the world!

**Date:** July 1, 2026
**Location:** New Albany Intermediate School at 177 N. High Street. New Albany, Ohio 43054
**Time Slots:** 11:30 AM to 2:15 PM

**Eight participants per session.** (3) – 45 minute sessions *(11:30am-12:15pm, 12:30pm-1:15pm, 1:30pm-2:15pm)*

---

 Option #3 

 **ASC Cycling**

Feel the breeze and enjoy the ride. ASC Cycling gives participants the chance to ride adaptive bikes, including handcycles, recumbent trikes, and other options designed to match different abilities and comfort levels. Staff and volunteers will assist with bike fitting and support so you can focus on enjoying the experience. All equipment is provided.

**Date:** July 1, 2026
**Location:** Westerville Park
**Time Slot:** 1:00 PM to 3:00 PM

---

  Which activity are you signing up for?   

  ASC Kayaking Power Soccer ASC Cycling Wheelchair Basketball Boccia Wheelchair 4-Foot Hoops  

  What type of mobility device do you use?   

  What is your height?   

  What is your weight?   

  Can you support your own weight?   

  How much mobility are you capable of?   

  Can you bend your knee/elbow?   

  Can you maintain a sitting position?   

  Do you need trunk support? (required)  Yes No

  Do you need lifting assistance? (required)  Yes No

  Do you have issues regulating heat? (required)  Yes No

   Send   

Supporting our Adaptive Sports program is essential to ensuring that people have meaningful access to recreation, movement, and community. Adaptive sports remove barriers that too often limit participation by providing the equipment, expertise, and support needed to make physical activity accessible.

This program helps create spaces where individuals can engage on their own terms, build skills, and connect with others who share similar experiences.

**Continued support allows these opportunities to grow, reach more participants, and remain inclusive, safe, and accessible, reinforcing the importance of equity and belonging within our conference and beyond.**

**Categories:** 21st Annual AMCSI Conference, AMC Events, Archived

**Tags:** Adaptive, Adaptive Sports, ASC Cycling, ASC Kayaking, Boccia, Sports, Wheelchair 4-Foot Hoops, Wheelchair Basketball

---

### [Val's Bowl-A-Thon 2026](https://amcsupport.org/vals-bowl-a-thin-2026/)

**Published:** December 4, 2025
**Author:** Ted Houser

**Excerpt:** Val's Bowl-A-Thon | Saturday, March 14, 2026

50/50 Raffles (Bring Cash $$$)

Rab's Country Lanes
1600 Hylan Blvd., Staten Island, NY 10305

Registration starts at 2:30 PM | $25 per person Bowling Time: 3:00 PM to 5:00 PM
(Cost per person: $25 (Includes 2 hours of bowling/shoe rental/ one staff member to assist all attendees. Adaptive equipment available for those who require it.)

**Content:**

![Val's Bowl-A-Thon | Saturday, March 14, 2026 50/50 Raffles (Bring Cash $$$) Rab's Country Lanes 1600 Hylan Blvd., Staten Island, NY 10305 Registration starts at 2:30 PM | $25 per person Bowling Time: 3:00 PM to 5:00 PM (Cost per person: $25 (Includes 2 hours of bowling/shoe rental/ one staff member to assist all attendees. Adaptive equipment available for those who require it.)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI26_vals_bowl-a-thon-ig.jpg) 

### Val’s Bowl-A-Thon | Saturday, March 14, 2026

**50/50 Raffles** *(Bring Cash $$$)*

**Rab’s Country Lanes**
1600 Hylan Blvd., Staten Island, NY 10305

**Registration starts at 2:30 PM | $25 per person Bowling Time: 3:00 PM to 5:00 PM** *(Cost per person: $25 (Includes 2 hours of bowling/shoe rental/ one staff member to assist all attendees. Adaptive equipment available for those who require it.)*

**Categories:** Archived, Fundraising

**Tags:** Val's Bowl-A-Thin

---

### [21st Annual AMCSI Conference Program](https://amcsupport.org/21st-annual-amcsi-conference-program/)

**Published:** August 12, 2025
**Author:** Ted Houser

**Content:**

### View this years Conference Program

*(Best if viewed on a computer or laptop)*

##### You can also [download the above (epub) file](https://amcsupport.org/2026_official_conference_program-web-2/) & take it with you on your mobile device.

*(Certain restrictions may apply, please review your devices settings on viewing saved (epub) files)*

OR

##### [Right Click Here](https://amcsupport.org/2026_official_conference_program-web/) to Download a PDF FIle of the Conference Program

*(File is 8.2 megs and may take time to fully download, depending on your internet speed)*

### Please note that the most up-to-date schedule is on our [Schedule Page](https://amcsupport.org/21st-schedule/)

*(schedule is subject to change)*

## Thank You To This Years Advertising Partners

 [ ](https://amcsupport.org/wp-content/uploads/2026/06/AMCOH26_Membership_Ad.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI26_TY-Fundraisors.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/AMCOH26_TY-Exhibitors.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/MoodyNolanGraphic2_PrintMakers.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Alora-Grove-HalfPg-Ad-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/DRCE-HalfPg-Ad.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/AMCOH26_TY-Sponsors.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Harold-FP-Ad.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Partners-In-Medicine-HalfPg-Ad.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/Theresa-Halfpg-Ad.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/TRAILS-HalfPg-Ad.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/ShrinersChildrens_Full-Page-Ad_AMCSI_2025-print.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/MC24821_SYS_Ortho_AMCSI_Ad_Q2-2026-FIN-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/ValeriePepe-FullPg-Ad.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/06/LoonCrewTY26-HalfPg-Ad.jpg) 

### **21st Annual AMCSI Conference Program 
[Online Form Below](https://amcsupport.org/20th-program-form/#program)** 

---

#### [**Click here to download a PDF file of the Conference Exhibitor Sales Kit**](https://amcsupport.org/21st-annual-amcsi-conference-2026-sales-kit/)

*(Note: you can open the PDF on a computer and type in your information & email it to us at ****)*

---

### Conference Program Specs

**Acceptable FIles:**
• Electronic ONLY (PDF, JPG, EPS, TIF)
• 300 DPI minimum resolution (Color Ads) (Please Embed All Images & Outline All Fonts)

If you have any questions about the file setup or acceptable files, please contact:
****

***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 29, 2026)***

 ![](https://amcsupport.org/wp-content/uploads/2023/12/FP_image_sample.jpg) 

**FULL PAGE SIZE IS – 5.5’’W x 8.5”’H**

***1/4’’ BLEED ON EACH SIDE*** 
***FULL PAGE BLEED FILE SIZE IS – 6’’W x 9’’H***

**BLACK LINE IS THE LIVE ART AREA** 
**KEEP ANYTHING IMPORTANT INSIDE THIS AREA** 
**5’’W x 8’’H**

\~~~~~~~~~~~~~~~~~~~~

**FULL PAGE CUT AD SIZE (5.5”W x 8.5”H):** 
• With 1/4 Bleed on each side = 6”W x 9’H 
(Bleed is any image or color that extends past the actual cut Ad size) 
• Please keep any important things like text inside the Live Area

 ![](https://amcsupport.org/wp-content/uploads/2023/12/HalfP_image_sample.jpg) 

**HALF PAGE SIZE** 
**5’’W x 3.75”’H** 
\~~~~~~~~~~~~~~~~~~~~ 
• THERE IS NO BLEED

 ![](https://amcsupport.org/wp-content/uploads/2023/12/program_wrtr_pg_size-683x1024.jpg) 

**QUARTER PAGE SIZE** 
**2.5’’W x 3.75”’H** 
\~~~~~~~~~~~~~~~~~~~~ 
• THERE IS NO BLEED

Sample Ad sizes are not actual sizes, if you have any questions, please contact:
****

**Reach For The Stars send a personalized note to your favorite AMCer, MAXIMUM of 200** characters (approximately 35 words)

---

 **PAYMENT OPTIONS:** CHECK VIA MAIL, PAYPAL (CREDIT CARDS), ONLINE ORDERS

**Online: Please fill out the form below and once you hit submit it will bring you to the payment form for you to pay for the Event Program options you are signing up for.** (GiveButter charges a transaction fee, below are your other options)

• **Checks:** Make Checks Payable to: AMCSI , Please note “Conference Program” on memo line
Mail to: AMCSI, P.O. Box 6291, Spartanburg, SC 29304

• **Paypal:** You can pay with a major credit card and you do not need an account.
You must email a copy of your completed form to bod@amcsupport.org
www.paypal.com | AMCSI Paypal Account: bod@amcsupport.org

#### The Program Ad Form 

       Name   

  Email   

  Address   

  Address 2   

  City   

  State   

  Zip   

  Cell Phone   

  Phone   

  Contact Name   

  Email   

  PLEASE CHECK YOUR PROGRAM AD:

Back Cover - Nemours  Inside Front Cover - $350 Inside Back Cover - $300 Full Page - $250 Half Page - $150 Quarter Page - $75 Reach For The Stars Note $30 (For Non-Memebrs)  Reach For The Stars Note $25 (For Members)

  If you have your ad ready, please uplaod it (Files accepted: EPS, PDF, 300 dpi JPG)   

If you have any questions please email ted@amcsupport.org

   Send

**Categories:** 21st Annual AMCSI Conference, AMC Events, Archived

**Tags:** 21st Annual AMCSI Conference Program, Conference, Program

---

### [22nd Annual AMCSI Conference](https://amcsupport.org/22nd-annual-amcsi-conference/)

**Published:** August 13, 2025
**Author:** Ted Houser

**Content:**

##### Celebrating 22 years with our AMC family! We cannot wait to see you all!

## June 30 – July 3, 2027 in Columbus, Ohio

### Learn how Arthrogryposis Multiplex Congenita Support, Inc. has helped Julie during her very first visit to the 20th Annual AMCSI Conference, in Norfolk, VA, on the AMCSI Scholarship!

Meeting new friends, building lasting relationships, and supporting those with Arthrogryposis are at the heart of what AMCSI is all about!

“My favorite part of the conference was the teen session because that’s where I met a lot of my friends at the conference, and it was funny and cool to go to something where everyone had the same disability as me.”
**~ Ryan**

 [  Other Conference Experiences  ](https://amcsupport.org/conference-testimonials-22nd/) 

With a condition so rare that only one in 3000 babies born have this neuromuscular disorder, it’s easy to comprehend how alienated anyone with arthrogryposis multiplex congenita (AMC) must feel. Through the hard work of one mother’s vision and an army of members, the AMC support group has helped bridge the gap with the power of the internet. It is not only the group’s mission to provide and encourage a greater understanding and awareness of this condition, but also to provide a support system. To help those that have felt all their lives an outcast or alone, meet others who have lived that same life, to meet other families who have the same concerns and to provide a resource of information.

But meeting online is not enough. It’s hard to explain to a mom exactly how another mom has taught her child to sit up without the use of his arms, or how one child learned to stand. What so many people take for granted: the ease of walking, typing, eating and breathing those with AMC have had to struggle to adapt to this world. Our conferences solidify that bridge and strengthen the bond of our AMC family. Once a year, we come together, bring professionals, doctors, physical therapists, occupational therapists, provide workshops, and invite people throughout the world to learn, share, laugh, cry, and grow.

We invite you to our 3-day conference, coming together to learn about Arthrogryposis, raise awareness, and create community.

\#AMCOH27 *(Be sure to use this hashtag on all social posts)

**Conference registration will open in early 2027!***

### **Important Note:**

Please **do not contact hotels to make reservations at this time**. We are still finalizing our hotel block and group pricing. Early reservations made outside of our official block may not be eligible for adjustments once our arrangements are confirmed.

Thank you for your patience and support, we can’t wait to share what’s ahead!

# Support the AMCSI Annual Conference

## By Becoming A Sponsor

The Annual Arthrogryposis Multiplex Congenita Support, Inc. Conference provides an opportunity for people affected by arthrogryposis multiplex congenita (AMC) to gather & exchange ideas and support. During this annual 3-day event, over 600 family members & medical professionals learn from each other on “best practices” in the treatment of & living with AMC. Please join us as a conference sponsor!

 [  Learn how...  ](https://amcsupport.org/22nd-annual-amcsi-conference-sponsorship/) 

## By Becoming A Vendor Today!

We’re excited to showcase the incredible organizations and businesses joining us this year, be sure to visit their tables during the conference!

**Interested in becoming a vendor?**

 [  Learn how...  ](https://amcsupport.org/22nd-annual-amcsi-conference-exhibitor/) 

## Or By Advertising In The Program

Advertise in the official AMCSI Conference Program and showcase your organization to hundreds of attendees while supporting those with Arthrogryposis.

 [  Learn how...  ](https://amcsupport.org/22nd-annual-amcsi-conference-program/) 

### Take a look back and relive the unforgettable moments from past AMCSI Conferences! Click the button below to explore today!

  [![21st Annual AMCSI Conference Logo](https://amcsupport.org/wp-content/uploads/2025/07/AMCOH26_logo-1920pxW.png)

 ](https://amcsupport.org/21st-annual-amcsi-conference/)###  [ 21st Annual AMCSI Conference ](https://amcsupport.org/21st-annual-amcsi-conference/) 

 [ Learn More » ](https://amcsupport.org/21st-annual-amcsi-conference/) 

   [![20th Annual AMCSI Conference Logo](https://amcsupport.org/wp-content/uploads/2024/07/AMCSI25_Logo_color_1080.png)

 ](https://amcsupport.org/20th-annual-amcsi-conference/)###  [ 20th Annual AMCSI Conference ](https://amcsupport.org/20th-annual-amcsi-conference/) 

 [ Learn More » ](https://amcsupport.org/20th-annual-amcsi-conference/) 

   [![19th Annual AMCSI Conference Logo](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_Conference_Logo-scaled.png)

 ](https://amcsupport.org/19th-annual-amcsi-conference/)###  [ 19th Annual AMCSI Conference ](https://amcsupport.org/19th-annual-amcsi-conference/) 

 [ Learn More » ](https://amcsupport.org/19th-annual-amcsi-conference/) 

 [  View Past Conferences...  ](https://amcsupport.org/past-conferences/)

**Categories:** 22nd Annual AMCSI Conference, AMC Events, Archived

**Tags:** 22nd Annual AMCSI Conference, Columbus, Conference, Ohio, Upcoming

---

### [The Prairie - 253 for AMC | Turning Miles Into Impact](https://amcsupport.org/the-prairie/)

**Published:** August 26, 2025
**Author:** Ted Houser

**Content:**

![](https://amcsupport.org/wp-content/uploads/2025/08/IMG_0942-web-scaled.jpg) 

### The Prairie – 253 for AMC

##### Turning Miles Into Impact: My Journey

My name is Mark Indreika, and I was born with Arthrogryposis Multiplex Congenita (AMC), a rare condition that causes joint contractures in all four of my limbs.

Staying active has always been important to me, but in 2023 I discovered something that completely changed my life: cycling on a recumbent adult tricycle. Riding has given me freedom, strength, and joy, and since then I’ve pedaled thousands of miles across the roads and bike paths of Illinois.

This year, I want to use my passion for cycling to make a difference. From September 15 to October 13, 2025, my team and I are each challenging ourselves to ride between 53 and 253 miles.

**Together, we hope to:**
**•** Share the health benefits of cycling
**•** Raise awareness about Arthrogryposis Multiplex Congenita
**•** Support AMCSI’s mission to connect and serve the AMC community

Every dollar raised goes directly to Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI), a 501(c)(3) nonprofit supporting families around the world.

Your support means so much to me and to everyone impacted by AMC. Thank you for helping me turn every mile into something bigger.

 [ ![Mark in a marathon on his sport tricycle](https://amcsupport.org/wp-content/uploads/2025/08/PXL_20250719_130243376.jpg) ](https://amcsupport.org/wp-content/uploads/2025/08/PXL_20250719_130243376.jpg) 

 [ ![Mark on his sport tricycle](https://amcsupport.org/wp-content/uploads/2025/08/Mark-top-photo.jpg) ](https://amcsupport.org/wp-content/uploads/2025/08/Mark-top-photo.jpg) 

### TO DONATE USE THE FORM BELOW!

To credit a Team Member (A.K.A. credit a Rider) simply select them below.

**Categories:** AMC Events, Archived, The Prairie - 253 for AMC

**Tags:** The Prairie - 253 for AMC

---

### [21st Annual AMCSI Conference](https://amcsupport.org/21st-annual-amcsi-conference/)

**Published:** July 18, 2025
**Author:** Ted Houser

**Content:**

##### Celebrating 21 years with our AMC family! We cannot wait to see you all!

## July 1-4, 2026 in Columbus, Ohio

### Learn how Arthrogryposis Multiplex Congenita Support, Inc. has helped Julie during her very first visit to the 20th Annual AMCSI Conference, in Norfolk, VA, on the AMCSI Scholarship!

Meeting new friends, building lasting relationships, and supporting those with Arthrogryposis are at the heart of what AMCSI is all about!

*“To all my AMC’ers… If you’ve never been, you should absolutely go!!!! I attended for the first time last year and it was incredibly insightful and extremely fun!!!!!”*
**~ Bong Delrosario**

## General Registration Is Now Open!

With a condition so rare that only one in 3000 babies born have this neuromuscular disorder, it’s easy to comprehend how alienated anyone with arthrogryposis multiplex congenita (AMC) must feel. Through the hard work of one mother’s vision and an army of members, the AMC support group has helped bridge the gap with the power of the internet. It is not only the group’s mission to provide and encourage a greater understanding and awareness of this condition, but also to provide a support system. To help those that have felt all their lives an outcast or alone, meet others who have lived that same life, to meet other families who have the same concerns and to provide a resource of information.

But meeting online is not enough. It’s hard to explain to a mom exactly how another mom has taught her child to sit up without the use of his arms, or how one child learned to stand. What so many people take for granted: the ease of walking, typing, eating and breathing those with AMC have had to struggle to adapt to this world. Our conferences solidify that bridge and strengthen the bond of our AMC family. Once a year, we come together, bring professionals, doctors, physical therapists, occupational therapists, provide workshops, and invite people throughout the world to learn, share, laugh, cry, and grow.

We invite you to our 3-day conference, coming together to learn about Arthrogryposis, raise awareness, and create community.

\#AMCOH26 *(Be sure to use this hashtag on all social posts)*

#### Step 1

 [  Check/Become A Member  ](https://www.zeffy.com/en-US/ticketing/6808115b-4616-4e5c-bdae-9eb758bd4975) 

#### Step 2

 [  General Registration  ](#) 

 ![The 21st Annual AMCSI Conference logo is at the top left, with the AMCSI logo in the top right, in white, & each image has a photo of children enjoying themselves at last year's prom. At the bottom is the artistic outline of the Columbus, Ohio, skyline in red, with a transparent-to-crimson red gradient on top. In the bottom right are the FB, IG, BlueSky, TikTok, YouTube & X logos, with @AMCSUPPORT on the bottom left & the hashtags #AMCOH26 #Prom & #BeesAndStars on the bottom right, both in white. Below that is the professional guest speakers link https://amcsupport.org/21st-annual-amcsi-conference/ to learn more about getting involved.](https://amcsupport.org/wp-content/uploads/2025/07/AMCOH26-prom-1.jpg) 

### 🐝✨ BEE A STAR AT PROM ✨⭐

This year’s prom theme is Bees & Stars, & we cannot wait to celebrate with you.

Enjoy an evening of music, dancing, & a fun time to celebrate & shine!

👗 What to wear (Come as you are or lean into the theme) 
• Gold, black, and honey-inspired looks 
• Celestial sparkle, stars, shimmer, and glow
 • Creative bee & constellation details
• Family-friendly attire required

📍 Location: Columbus Host Hotel 
📅 July 1 to July 4, 2026 
👥 Open to all registered conference attendees

**Conference badge required for entry**
**Alcohol-free event**

### Follow the steps above to register!

 [ ![](https://amcsupport.org/wp-content/uploads/2024/03/AMCSI-Conferecne_scholarship-awarded-2.jpg) ](https://amcsupport.org/conference-scholarship/) 

### 21st Annual AMCSI Conference Scholarship

This AMCSI Conference Scholarship is made possible by the generous donation of Paul and Wendy Tracy. We are deeply grateful for their support and their commitment to helping members of our community attend conference.

The AMCSI Conference Scholarship will be awarded to a member of our community. The scholarship supports attendance at the 21st Annual AMCSI Conference in Columbus, Ohio.

A limited number of families will be selected to receive a full grant scholarship.

 [  Learn More  ](https://amcsupport.org/conference-scholarship/) 

 ![](https://amcsupport.org/wp-content/uploads/2026/03/AMCOH26-jammin-with-julie-rev.jpg) 

### 🎶 Jammin’ with Julie in Columbus!

Board Certified Music Therapist Julie Melton, based in Charlotte, NC, brings experience across hospital, school, & community settings. A 2023 Queens University of Charlotte graduate, she sings and plays guitar, ukulele, & piano, & is passionate about inclusive, accessible spaces for all abilities. 💙

Musicians of all levels are invited to join the jam at the 21st Annual AMCSI Conference. 💙

⏰ Early Bird Registration ends at midnight on March 7th. Rates increase after that, 🐝 bee 💙 sure to secure your spot!

### Follow the steps above to register!

### Thank you to our Participating Vendors/Exhibitors

 [  View Vendors/Exhibitors  ](https://amcsupport.org/21st-annual-amcsi-conference-exhibitor/) 

# Keynote Speaker: Todd Craighead

 [ ![Todd Craighead, keynote speakers at the 21st Annual AMCSI Conference in Columbus, Ohio, July 1-4, 20206](https://amcsupport.org/wp-content/uploads/2025/12/amcoh26-keynote-Todd-Craighead.jpg) ](https://amcsupport.org/professional-guest-speakers/#todd) 

Born and raised in Stillwater, Oklahoma, Todd has degrees in Wildlife Conservation and Communications from Oklahoma State University. He has worked as a nature instructor at a children’s camp on the shore of Lake Superior, and a ranger with the U.S. Forest Service in Colorado. He then retired in 2025 after 30 years with the Oklahoma Department of Wildlife Conservation as producer and host of the award-winning television show, Outdoor Oklahoma. Currently, Todd is living out his childhood dream as a Ranger in Yellowstone National Park. His passions include hunting, camping, rock crawling in his 1980 Jeep CJ7, and his daughter Emily.

 [  View All Speakers  ](https://amcsupport.org/professional-guest-speakers/) 

### Professional Guest Speakers

*(More announcements will be made as we confirm our professional guest speakers)*

 [ ![Dr. Harold Van Bosse](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Harold_van_Bosse.jpg) ](https://amcsupport.org/professional-guest-speakers/#harold) 

##### [Dr. Harold J. P. van Bosse](https://amcsupport.org/professional-guest-speakers/#harold)

 [ ![Speaker-Phillip-Giampietro](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Phillip-Giampietro.jpg) ](https://amcsupport.org/professional-guest-speakers/#philip) 

##### [Dr. Philip F. Giampietro](https://amcsupport.org/professional-guest-speakers/#philip)

 [ ![Reenee - Medical Advisor](https://amcsupport.org/wp-content/uploads/2023/12/Reenee-headshot-2025-web.jpg) ](https://amcsupport.org/professional-guest-speakers/#reenee) 

##### [Dr. Maureen Donohoe](https://amcsupport.org/professional-guest-speakers/#reenee)

 [ ![Dr. Reid Nichols from Nemours](https://amcsupport.org/wp-content/uploads/2025/01/Dr-headshots-Dr-Reid-Nichols.jpg) ](https://amcsupport.org/professional-guest-speakers/#reid) 

##### [Dr. Reid Nichols](https://amcsupport.org/professional-guest-speakers/#reid)

 [ ![Dr. David Feldman](https://amcsupport.org/wp-content/uploads/2023/12/Dr_David_Feldman.jpg) ](https://amcsupport.org/professional-guest-speakers/#david) 

##### [Dr. David Feldman](https://amcsupport.org/professional-guest-speakers/#david)

 [ ![Speaker-Fran-Guardo](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Fran-Guardo.jpg) ](https://amcsupport.org/professional-guest-speakers/#fran) 

##### [Dr. Fran Guardo](https://amcsupport.org/professional-guest-speakers/#fran)

 [ ![Dr. Lauren Hyer](https://amcsupport.org/wp-content/uploads/2026/03/Dr_Lauren_Hyer.jpg) ](https://amcsupport.org/professional-guest-speakers/#hyer) 

##### [Dr. Lauren Hyer](https://amcsupport.org/professional-guest-speakers/#hyer)

 [ ![AMCSI24Speaker-image-Lisa-Wagner](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24Speaker-image-Lisa-Wagner.jpg) ](https://amcsupport.org/professional-guest-speakers/#lisa) 

##### [Dr. Lisa V. Wagner](https://amcsupport.org/professional-guest-speakers/#lisa)

 [ ![Dr. Sarah Turgeon Desilets, MScPT, CAS](https://amcsupport.org/wp-content/uploads/2026/02/Dr_Sarah_Turgeon_Desilets_MScPT_CAS.jpg) ](https://amcsupport.org/professional-guest-speakers/#sarah) 

##### [Ms. Sarah Turgeon-Desilets](https://amcsupport.org/professional-guest-speakers/#sarah)

 [ ![Liezel - AMC research speaker at the 21st annual AMCSI conference](https://amcsupport.org/wp-content/uploads/2026/06/Liezel.jpg) ](https://amcsupport.org/professional-guest-speakers/#liezel) 

##### [Ms. Liezel](https://amcsupport.org/professional-guest-speakers/#liezel)

 [ ![Bong Delrosario](https://amcsupport.org/wp-content/uploads/2025/11/Bong-Delrosario.jpg) ](https://amcsupport.org/professional-guest-speakers/#bong) 

##### [Mr. Bong Delrosario](https://amcsupport.org/professional-guest-speakers/#bong)

 [ ![Matthew Dobbs, MD, FACS is director of the Dobbs Clubfoot Center at the Paley Institute in West Palm Beach, Florida. Prior to that he was the Dr. Asa C. and Mrs. Dorothy W. Jones Professor of Orthopedic Surgery and the Director of Strategic Planning at Washington University School of Medicine. Dr. Dobbs trained under Ignacio Ponseti MD (Ponseti method). Since that time, he has introduced the Ponseti method for clubfoot management to surgeons in more than 50 countries. Dr. Dobbs is dedicated to Research and Teaching. He co-directed an NIH funded musculoskeletal genetics research laboratory and was founder (2001) and director of the clubfoot clinic at Saint Louis Children’s from 2001-2020. He has been named a top orthopedic surgeon by US News & World Report, Top Doctors, Castle Connelly, Consumers’ Research Council, Orthopedics This Week, the International Association of Orthopedic Surgeons, and St. Louis Magazine. He has been featured in the Chicago Tribune, San Francisco Chronicle, and the LA Times. He is internationally recognized for his expertise and innovation in the field of pediatric foot and lower limb deformities and experience with the differences that can arise with Arthrogryposis, Spina Bifida, Nail Patella Syndrome, and genetic conditions. He is the founder of the Dobbs method for treatment of vertical talus and remains the leading innovator in bracing for foot deformities. He values the multidisciplinary efforts needed to help children be their best self and minimize recurrences.](https://amcsupport.org/wp-content/uploads/2026/03/Dr_Matthew_Dobbs_MD.jpg) ](https://amcsupport.org/professional-guest-speakers/#matt) 

##### [Dr. Matthew Dobbs MD](https://amcsupport.org/professional-guest-speakers/#matt)

 [ ![](https://amcsupport.org/wp-content/uploads/2025/01/Jan-Shea-01.jpg) ](https://amcsupport.org/professional-guest-speakers/#jan) 

##### [Ms. Jan Shae](https://amcsupport.org/professional-guest-speakers/#jan)

 [ ![Jake-ehlers speaking with Jan Shea at teh 21st annual AMCSI conference](https://amcsupport.org/wp-content/uploads/2025/11/Jake-ehlers.jpg) ](https://amcsupport.org/professional-guest-speakers/#jake) 

##### [Mr. Jake Gates-Ehlers](https://amcsupport.org/professional-guest-speakers/#jake)

 [ ![Tammy DRCE](https://amcsupport.org/wp-content/uploads/2025/01/Tammy-DRCE.jpg) ](https://amcsupport.org/professional-guest-speakers/#tammy) 

##### [Ms. Tammy Phipps](https://amcsupport.org/professional-guest-speakers/#tammy)

 [ ![Dr. Kaveh Asadi-Moghaddam](https://amcsupport.org/wp-content/uploads/2025/11/Dr_Kaveh_Asadi-Moghaddam.jpg) ](https://amcsupport.org/professional-guest-speakers/#kaveh) 

##### [Dr. Kaveh Asadi-Moghaddam](https://amcsupport.org/professional-guest-speakers/#kaveh)

#####  

 [ ![Speaker image kimberly kolstad the keynote speaker at the 19th Annual AMCSI Conference in Atlanta, GA](https://amcsupport.org/wp-content/uploads/2024/04/Speaker-image-kimberly-kolstad.jpg) ](https://amcsupport.org/professional-guest-speakers/#kim) 

##### [Ms. Kimberly Kolstad](https://amcsupport.org/professional-guest-speakers/#kim)

#####  

 [ ![Misha Walker speaker at the 21st annual AMCSI conference](https://amcsupport.org/wp-content/uploads/2026/06/misha.jpg) ](https://amcsupport.org/professional-guest-speakers/#misha) 

##### [Ms. Misha Walker](https://amcsupport.org/professional-guest-speakers/#misha)

#####  

 [ ![A blue graphic featuring AMCSI and Southwest logos with the text “Perfect Together… Meet your next low fare.” A large heart shape sits in the background with a dotted flight path and airplane illustration. The text highlights discounted Southwest fares to the conference and includes a call to action to book flights. “Book Your Flights Today!’ in Southwest yellow & our booking link: https://www.swabiz.com/air/booking/index.html?companyId=90141796 in white. In the bottom right are the FB, IG, BlueSky, TikTok, YouTube & X logos, with @AMCSUPPORT on the bottom left & the hashtags #AMCSI & #Southwest on the bottom right, both in white.](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-soutwest.jpg) ](https://www.swabiz.com/air/booking/index.html?companyId=90141796) 

# ✈️ Headed to conference? Save on your flight and travel with heart.

Through our partnership with Arthrogryposis Multiplex Congenita Support, Inc. and Southwest Airlines, you can access discounted fares when you book through our official link.

It is a simple way to make your trip more affordable while staying connected to the AMC community.

### [**Book your flight**](https://www.swabiz.com/air/booking/index.html?companyId=90141796)

Plan your trip, join us at conference, and be part of the AMC community.

\#AMCSI #AMCOH26 #SouthwestAirlines #AMCStrong

### Pre-Teen & Teen Moderators

 [ ![Aly is passionate about disability awareness, acceptance, and accessibility for all. Aly volunteers at Scottish Rite Hospital with kids of various upper-limb differences & she is pursuing a degree in Speech-Language Pathology.](https://amcsupport.org/wp-content/uploads/2026/05/Preteen-teen-moderators-aly.jpg) ](https://amcsupport.org/conference-planning-committee/#aly) 

##### [Aly](https://amcsupport.org/conference-planning-committee/#aly)

 [ ![Navina has participated in multiple adaptive/disability programs, including adaptive skiing/snowboarding, being an ambassador for Easterseals.](https://amcsupport.org/wp-content/uploads/2026/05/Preteen-teen-moderators-navina.jpg) ](https://amcsupport.org/conference-planning-committee/#navina) 

##### [Navina](https://amcsupport.org/conference-planning-committee/#navina)

### Get Involved!

Do you have a company/organizations or know of any in your area and want to get involved in our 21st Annual AMCSI Conference? Click on the buttons below to view the options we have available or click on the lick to download our Conference Sales Kit today!

 [  Become A Sponsor  ](https://amcsupport.org/21st-annual-amcsi-conference-sponsorship/) 

 [  Become An Exhibitor  ](https://amcsupport.org/21st-annual-amcsi-conference-exhibitor/) 

 [  Advertise In Program  ](https://amcsupport.org/21st-annual-amcsi-conference-program/) 

#### [**Click here to download a PDF file of the Conference Sales Kit**](https://amcsupport.org/21st-annual-amcsi-conference-2026-sales-kit/)

*(Note: you can open the PDF on a computer and type in your information & email it to us at (****)*

### Conference Planning Committee

 [ ![Michele Schaffer - Vice President of Programming](https://amcsupport.org/wp-content/uploads/2026/06/Michele-2026.jpg) ](https://amcsupport.org/conference-planning-committee/#michele) 

##### [Ms. Michele Schaffer](https://amcsupport.org/conference-planning-committee/#michele)

 [ ![conference-crew-betsy-gates](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-betsy-gates.jpg) ](https://amcsupport.org/conference-planning-committee/#betsy) 

##### [Ms. Betsy Gates-Ehlers](https://amcsupport.org/conference-planning-committee/#betsy)

 [ ![conference-crew-maureen-goede](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-maureen-goede.jpg) ](https://amcsupport.org/conference-planning-committee/#maureen) 

##### [Ms. Maureen Goede](https://amcsupport.org/conference-planning-committee/#maureen)

 [ ![conference-crew-anna-van-bosse](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-anna-van-bosse.jpg) ](https://amcsupport.org/conference-planning-committee/#ana) 

##### [Ms. Ana van Bosse](https://amcsupport.org/conference-planning-committee/#ana)

 [ ![](https://amcsupport.org/wp-content/uploads/2025/01/Jan-Shea-02.jpg) ](https://amcsupport.org/conference-planning-committee/#jan) 

##### [Ms. Jan Shea](https://amcsupport.org/conference-planning-committee/#jan)

 [ ![conference-crew-larina-swans0n-REV](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-larina-swans0n-REV.jpg) ](https://amcsupport.org/conference-planning-committee/#larina) 

##### [Ms. Larina Swanson-Carter](https://amcsupport.org/conference-planning-committee/#larina)

 [ ![Beth Sellers Head Shot Photo](https://amcsupport.org/wp-content/uploads/2025/01/Beth-Sellers-headshot.jpg) ](https://amcsupport.org/conference-planning-committee/#beth) 

##### [Ms. Beth Sellers](https://amcsupport.org/conference-planning-committee/#beth)

 [ ![The image shows two smiling conference attendees posing together indoors at an AMCSI event. One person is leaning their head affectionately against the other while both wear blue conference lanyards. In the top right corner is the “21st Annual Arthrogryposis Congenita Support Conference” logo with the location and dates: Columbus, Ohio, July 1–4, 2026. A large red banner across the center displays the volunteer signup link: “https://bit.ly/AMCOH26-Volunteer” The bottom section features the AMCSI logo, social media icons, the text “Celebrating 21 years with our AMC Family!” and hashtags including #AMCOH26 and #Volunteer, along with the conference webpage URL. #AMCConference #AMCFamily #VolunteerNeeded #ConferenceVolunteer #AMCSupport #Arthrogryposis #AMCSI #VolunteerOpportunity #DisabilityCommunity #CommunitySupport #NorfolkVA #AMC2026 #NonprofitVolunteer #EventVolunteer #DisabilityAdvocacy #AMCWarrior #SupportAMC #InclusiveCommunity #AdaptiveCommunity #VolunteerLife](https://amcsupport.org/wp-content/uploads/2025/07/AMCOH26-volunteer.jpg) ](https://www.signupgenius.com/go/10C0D4FA5A623A1F94-56970734-amcnorfolk#/) 

### 🚨 Volunteers Needed 🚨

We’re a little short on volunteers this year and could really use some extra help at conference.

If you’ve been thinking about getting involved, this is a great time to jump in. Help the Loons keep things running smoothly 🐦💙

We’re looking for volunteers who are friendly, reliable, and ready to help out.

**Requirements:** 
• Must be registered for conference
 • Ages 16+ • Younger volunteers are welcome with an adult 
• Volunteer training is Wednesday, July 1 at 2:30 PM EST

**Volunteer perks:** 
• Special volunteer lanyard
 • Early registration access
 • And a few extra goodies 👀

Questions? Email 

 [  Sign Up Today!  ](https://www.signupgenius.com/go/10C0D4FA5A623A1F94-63958261-amccolumbus#/) 

### Calling All Creative Leaders for AMCSI 2026!

Are you joining us in Columbus this summer? We hope to see you there.

We are building an unforgettable children’s program and we are looking for creative people to help bring it to life. If you are a music therapist, art therapist, teacher, child life specialist, or someone who loves designing hands-on, meaningful activities, we would love to hear from you.

Have an idea for a session or interested in helping lead one? If you or someone attending the conference wants to be involved, please email **[amcoh26@gmail.com]()**.

Let’s make this year’s children’s programming our best yet!

 ![Calling All Creative Leaders for AMCSI 2026! Are you joining us in Columbus this summer? We hope to see you there. We are building an unforgettable children’s program and we are looking for creative people to help bring it to life. If you are a music therapist, art therapist, teacher, child life specialist, or someone who loves designing hands-on, meaningful activities, we would love to hear from you. Have an idea for a session or interested in helping lead one? If you or someone attending the conference wants to be involved, please email amcoh26@gmail.com. Let’s make this year’s children’s programming our best yet.](https://amcsupport.org/wp-content/uploads/2025/12/amcoh16-creative-2B7A5731-X4.jpg) 

 ![21st Annual AMCSI Conference – Silent Auction](https://amcsupport.org/wp-content/uploads/2025/07/2B7A4123-X5.jpg) 

### 🚨 SILENT AUCTION PRE-REGISTERED DONATIONS NEEDED! 🚨

### **How You Can Help:** 

All donations MUST BE pre-registered so we can start bidding as soon as the conference opens!

### **[Pre-register here](https://forms.gle/zyE1XVLWaHhD3x6w8)**

### **Where Do I Send It?** 

🔹 Bringing a donation? Awesome! Once you’ve registered it, simply bring it with you to the conference. 
🔹 Can’t make it? No worries! Email us at (info@amcsupport.org), & we’ll send you the mailing address.

### **Need donation ideas? Get inspired!**

🎁 State-Themed Gift Baskets – Represent your state with local goodies! 🏞️ 
✈️ Airline Connections? Help us secure round-trip tickets for the auction! ✈️ 
🛍️ Small Business Love – Homemade candles, sauces, jams—yes, please! ❤️ 
🎬 Movie Theater Hookup? See if your local AMC or theater will donate! 🎟️ 
🔧 Know a tool company rep? Snap-On, Milwaukee—let’s make it happen! 🔨

### Take a look back and relive the unforgettable moments from past AMCSI Conferences! Click the buttons below to explore each year’s highlights.

## 20th Annual AMCSI Conference

July 9-12, 2025
Norfolk, VA

#### Thank you to all that attended!

 [  Bob's Photo Gallery  ](https://www.bobwellmon.com/Other/AMCSI/AMCSI-Annual-Conference-2025) 

 [  Conference Site  ](https://amcsupport.org/20th-annual-amcsi-conference/) 

## 19th Annual AMCSI Conference

July 3-6, 2024
Atlanta, GA

#### Thank you to all that attended!

 [  View Photo Gallery  ](https://amcsupport.org/19th-annual-amsci-conference-photo-gallery/) 

 [  Conference Site  ](https://amcsupport.org/19th-annual-amcsi-conference/) 

## 18th Annual AMCSI Conference

July 3-5, 2023
Columbus, Ohio

#### Thank you to all that attended!

 [  View Photo Gallery  ](https://amcsupport.org/18th-annual-amcsi-conference-photo-gallery/)

**Categories:** 21st Annual AMCSI Conference, AMC Events, Archived

**Tags:** 21st Annual AMCSI Conference, Columbus, Ohio, Past Conference Listing

---

### [253 For AMC - 2025](https://amcsupport.org/253foramc-2025/)

**Published:** May 13, 2025
**Author:** Ted Houser

**Content:**

![](https://amcsupport.org/wp-content/uploads/2024/09/Marshall-2024-SharynPeaveyPhoto-S83_8299-1024x683.jpg) 

Photograph courtesy of

 [ ![Sharyn Peavey Photography](https://amcsupport.org/wp-content/uploads/2024/04/2019_SharynPeavey_LogoF_black_900.png) ](https://www.sharynpeavey.com/) 

### 253 for AMC

Marshall Johnson was born with a rare condition called Arthrogryposis Mutiplex Congenita (AMC). Sport and movement have always been Marshall’s therapy: physically, mentally, spiritually. In 2022 he cycled 253 miles from Burlington, Vermont to Portland, ME, creating awareness and raising funds along the way. Now an annual bike ride and fundraiser, “253 for AMC” recognizes our differences … and celebrates them!

Every dollar raised goes to AMCSI, a 501 (c)(3) serving as one of the leading centers of support globally for those impacted by Arthrogryposis. On behalf of the entire organization, we thank you for your interest and generosity – your support makes [**our work**](https://amcsupport.org/) possible.

 [ ![253 for AMC Mountain Biking 2025](https://amcsupport.org/wp-content/uploads/2025/08/253-group.jpg) ](https://amcsupport.org/wp-content/uploads/2025/08/253-group.jpg) 

 [ ![253 for AMC Mountain Biking 2025](https://amcsupport.org/wp-content/uploads/2025/08/253-group2.jpg) ](https://amcsupport.org/wp-content/uploads/2025/08/253-group2.jpg) 

# Mountain Biking to 253

## We’re gearing up for the Fourth Annual 253 for AMC Fundraiser & Awareness Campaign & this year, we’re hitting the trails on mountain bikes!

In past years, our incredible riders have cycled a whopping 253 miles over several days to support AMCSI. This time, we’re switching things up with a brand-new twist: 53 miles of mountain biking over 2 days, surrounded by the breathtaking beauty of Sugarloaf and Bigelow Mountain in Franklin County, Maine.

Whether you love riding bikes or just want to be part of the good vibes, there will be exciting ways for both riders and non-riders to get involved.

### Mark your calendars! 
Dates are set for October 10-12, 2025 for the Maine ride.

Our goal = 53 miles of mountain biking over 4 sessions in Carrabassett Valley, Maine: 
**• 1 Friday afternoon** 
**• 2 Saturday** 
**• 1 Sunday morning**

Call/Message Marshall (207-653-0222) for meeting spots & ways to help.

### 53 Miles for AMC in Carrabassett Valley

 [ ](https://amcsupport.org/wp-content/uploads/2025/10/253-For-AMC-2025-4.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/10/253-For-AMC-2025-5.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/10/253-For-AMC-2025-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/10/253-For-AMC-2025-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/10/253-For-AMC-2025-3.jpg) 

Be sure to watch Marshall’s video message from Day 3 of the ride, filmed on the trails in Carrabassett Valley, Maine, where he shares his gratitude for everyone who helped make this possible.

### TO DONATE USE THE FORM BELOW!

To credit a Team Member simply select them below.

**Categories:** 253 For AMC - 2025, AMC Events, Archived

**Tags:** 253 For AMC, Mountain Biking

---

### [Grateful Tuesday](https://amcsupport.org/grateful-tuesday/)

**Published:** November 16, 2024
**Author:** Ted Houser

**Content:**

### We’re kicking off **GRATEFUL TUESDAY** – because there’s so much to be thankful for!

 [ ![AMCSI GRATEFUL TUESDAY](https://amcsupport.org/wp-content/uploads/2024/11/AMCSI24_grateful_tuesday-today-1024x1024.jpg) ](https://givebutter.com/AMCSI-GratefulTuesday) 

 [ ![AMCSI GRATEFUL TUESDAY](https://amcsupport.org/wp-content/uploads/2024/11/AMCSI24_grateful_tuesday-1024x1024.jpg) ](https://givebutter.com/AMCSI-GratefulTuesday) 

 [ ![AMCSI GRATEFUL TUESDAY](https://amcsupport.org/wp-content/uploads/2024/11/AMCSI24_grateful_tuesday-day-before-1024x1024.jpg) ](https://givebutter.com/AMCSI-GratefulTuesday) 

From the amazing Doctors, PT/OT Specialists, & Medical Professionals to our incredible Donors, Sponsors, Volunteers, & the AMC Community, YOU are the heart of everything we do. 💙

Let’s keep the gratitude flowing & continue supporting the Arthrogryposis Community together.💙
*(Please share this with family, friends, employers, & companies)*

#### [**💭 What are YOU grateful for?**](https://amcsupport.org/grateful-tuesday/#grateful)
Fill out the form below and we will post your responce on this webpage!

For General donations, please choose Grateful Tuesday when donating ツ

### Learn how Arthrogryposis Multiplex Congenita Support, Inc. has helped Julie during her very first visit to the 20th Annual AMCSI Conference, in Norfolk, VA, on the AMCSI Scholarship!

### [**View our testimonials!**](https://amcsupport.org/testimonials/)

### Gratefulness

 "I am grateful that got to go amc conferences in USA for 10 years. 2011-2019 and 2023 . And I meet people with same disability and learned more about my disability. And I grateful I had good doctor for my legs when I was kid. And every good mom and dad and my sister Christine and she started amc Canada on Facebook too." 

 ~ Amanda 

 "I grateful I meet Luca at muscular dystrophy in Edmonton Alberta Canada and he told me about amc conferences in USA. At 2010." 

 ~ Amanda 

 "I am grateful we live in Edmonton Alberta Canada and they have good reb center. glenrose hospital." 

 ~ Amanda 

### What Are You Grateful For?

##### All (required) & (\*) must be filled out.

       Name   

  Email   

  Address   

  Address 2   

  City   

  State   

  Zip   

  Please tell us what you are grateful for:   

   Send

**Categories:** Archived, Grateful Tuesday

**Tags:** Grateful, Grateful Tuesday, Tuesday, Upcoming

---

### [20th Annual AMCSI Conference](https://amcsupport.org/20th-annual-amcsi-conference/)

**Published:** July 8, 2024
**Author:** Ted Houser

**Content:**

##### Celebrating 20 years with our AMC family! We cannot wait to see you all!

## July 9-12, 2025 in Norfolk, Virginia

## General Registration Is Open!

 ![Photo of a young AMCer from the 19th Annual AMCSI Conference](https://amcsupport.org/wp-content/uploads/2024/07/19th-Annual-AMCSI-Conference-71-1.jpg) 

With a condition so rare that only one in 3000 babies born have this neuromuscular disorder, it’s easy to comprehend how alienated anyone with arthrogryposis multiplex congenita (AMC) must feel. Through the hard work of one mother’s vision and an army of members, the AMC support group has helped bridge the gap with the power of the internet. It is not only the group’s mission to provide and encourage a greater understanding and awareness of this condition, but also to provide a support system. To help those that have felt all their lives an outcast or alone, meet others who have lived that same life, to meet other families who have the same concerns and to provide a resource of information.

But meeting online is not enough. It’s hard to explain to a mom exactly how another mom has taught her child to sit up without the use of his arms, or how one child learned to stand. What so many people take for granted: the ease of walking, typing, eating and breathing those with AMC have had to struggle to adapt to this world. Our conferences solidify that bridge and strengthen the bond of our AMC family. Once a year, we come together, bring professionals, doctors, physical therapists, occupational therapists, provide workshops, and invite people throughout the world to learn, share, laugh, cry, and grow.

We invite you to our 3-day conference, coming together to learn about Arthrogryposis, raise awareness, and create community.

\#AMCVA25 *(Be sure to use this hashtag on all social posts)*

#### Step 1

 [  Become A Member  ](https://www.zeffy.com/en-US/ticketing/6808115b-4616-4e5c-bdae-9eb758bd4975) 

#### Step 2

 [  Conference Registration  ](#) 

 For hotel budgeting purposes, please plan approx $165 total after taxes & fees Parking is $20 *(per day)* for self-park or $28 *(per day)* for Valet.

**We highly recommend registering for this event early as this will likely be a sell out event.**

• Early-Bird Registration for members of AMCSI is now open!
• General registration will begin in March 16, 2025.
**• Hotel link will be provided in your conference registration confirmation email!**

###  The 2025 Official AMCSI Conference Program is Here!

 [ ![](https://amcsupport.org/wp-content/uploads/2025/06/2025_Official_Conference_Program.jpg) ](https://amcsupport.org/2025_official_conference_program/) 

#### Get ready — the official 2025 AMCSI Conference Program is now available!

We’ll have a limited number of printed copies available throughout the conference floor, but we know many attendees may prefer a digital version. Whether you need better accessibility or want to print a larger copy of the schedule or venue map — this PDF version is for you!

**NOTE:** The schedule is subject to change.

#### [**View or Download the Conference Program (PDF)**](https://amcsupport.org/2025_official_conference_program/)

We can’t wait to welcome you to Norfolk!

**IMPORTANT:** Be sure to register by July 5! 
Late registration begins after July 5 — don’t wait!

 [  Register Today!  ](#) 

### For the most up-to-date version of the conference schedule, please visit our [**Schedule Page**](https://amcsupport.org/20th-annual-amcsi-conference-schedule/)

 [ ![](https://amcsupport.org/wp-content/uploads/2024/07/AMCSI25_Appearacne_Luca-2.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#kumi) 

### Get Ready for an Unforgettable Experience! 

The 20th Annual AMCSI Conference in Norfolk, VA is turning up the energy — & we’re beyond excited to welcome **Luca “Lazylegz” Patuelli** as our special guest!

Luca is a world-renowned breakdancer, motivational speaker & founder of the ILL-Abilities™ International Dance Crew — a powerhouse group of dancers who prove that “No Excuses, No Limits” isn’t just a slogan, it’s a way of life.

You might recognize him from the Special Olympics in France, America’s Got Talent, or The Ellen Show — or maybe from his jaw-dropping performances in over 22 countries! Born with arthrogryposis, Luca transformed physical challenges into unstoppable creativity, developing a unique dance style that turns crutches into extensions of his art.

• Performed on global stages
• Choreographed award-nominated productions 
• Now appearing LIVE at AMCSI 2025!

This is a performance you do not want to miss!

🔗 Learn more about Luca & his mission: 
🌐 [**lucapatuelli.com** ](https://www.lucapatuelli.com/)
🌐 [**illabilities.com**](https://www.illabilities.com/)

 [  Register Today!  ](#) 

### Keynote Speaker

 [ ![Jennifer Kumiyama](https://amcsupport.org/wp-content/uploads/2024/07/AMCSIVA25_jennifer-kumiyama.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#kumi) 

### JENNIFER KUMIYAMA

Jennifer was born with Arthrogryposis and uses a wheelchair daily. She identifies as an Asian, Pacific Islander & Black woman with a disability. She serves as Citywide Accessibility Coordinator at the City of Long Beach – where she is tasked with making sure the City is in compliance with Title II of the Americans with Disabilities Act.

 [  Learn More About Jennifer  ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#kumi) 

### Professional Guest Speakers

 [ ![Dr. Harold Van Bosse](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Harold_van_Bosse.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#harold) 

##### [Dr. Harold J. P. van Bosse](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#harold)

 [ ![Speaker image kimberly kolstad the keynote speaker at the 19th Annual AMCSI Conference in Atlanta, GA](https://amcsupport.org/wp-content/uploads/2024/04/Speaker-image-kimberly-kolstad.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#kim) 

##### [Ms. Kimberly Kolstad](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#kim)

 [ ![](https://amcsupport.org/wp-content/uploads/2025/01/Jan-Shea-01.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#jan) 

##### [Ms. Jan Shea](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#jan)

 [ ![Chloe Sutterfield](https://amcsupport.org/wp-content/uploads/2025/06/Chloe-Sutterfield.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#chloe) 

##### [**Mr. Chloe Sutterfield**](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#chloe)

 [ ![20th Annual AMCSI Conference Guest Speaker Theresa-Willkomm](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Thersa-Willkomm.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#therese) 

##### [Dr. Therese Willkomm](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#therese)

 [ ![Speaker-Phillip-Giampietro](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Phillip-Giampietro.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#phil) 

##### [Dr. Philip F. Giampietro](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#phil)

 [ ![Dr. David Feldman](https://amcsupport.org/wp-content/uploads/2023/12/Dr_David_Feldman.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#david) 

##### [Dr. David Feldman](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#david)

 [ ![Dr. Reid Nichols from Nemours](https://amcsupport.org/wp-content/uploads/2025/01/Dr-headshots-Dr-Reid-Nichols.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#reid) 

##### [Dr. Reid Nichols](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#reid)

 [ ![Speaker-Dr-Maureen-Donohue](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Dr-Maureen-Donohue.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#reenee) 

##### [Dr. Maureen Donohoe](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#reenee)

 [ ![Speaker Dr. Arun Hariharan at the 19th Annual AMCSI Conference in Atlanta, Georgia](https://amcsupport.org/wp-content/uploads/2024/05/Speaker-Dr-Arun-Hariharan.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#arun) 

##### [Dr. Arun Hariharan](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#arun)

 [ ![Bong D headshot](https://amcsupport.org/wp-content/uploads/2025/07/Bong_D-headshot.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#bong) 

##### [Bong Delrosario](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#bong)

 [ ![20th Annual AMCSI Conference Guest Speaker Dr. Stephanie Russo](https://amcsupport.org/wp-content/uploads/2024/02/Dr-headshot-dr-stephanie-russo.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#steph) 

##### [Dr. Stephanie Russo](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#steph)

 [ ![20th Annual AMCSI Conference Guest Speaker Dr. Scott Oishi](https://amcsupport.org/wp-content/uploads/2025/01/Dr-headshot-dr-scott-oishi.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#scott) 

##### [Dr. Scott Oishi](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#scott)

 [ ![AMCSI24Speaker-image-Lisa-Wagner](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24Speaker-image-Lisa-Wagner.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#lisa) 

##### [Dr. Lisa V. Wagner](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#lisa)

 [ ![20th Annual AMCSI Conference Guest Speaker Dr. Aaron Huser](https://amcsupport.org/wp-content/uploads/2024/07/Dr-Aaron-Huser.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#aaron) 

##### [Dr. Aaron Huser](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#aaron)

 [ ![20th Annual AMCSI Conference Guest Speaker Dr. Dan Zlotolow](https://amcsupport.org/wp-content/uploads/2024/07/Dr-Dan-Zlotolow.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#dan) 

##### [Dr. Dan Zlotolow](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#dan)

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-Meet-The-Team-Dr-Sara-Lemin.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#sara) 

##### [Dr. Sara Lemin](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#sara)

 [ ![](https://amcsupport.org/wp-content/uploads/2025/01/Dr-Kevin-Park-web.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#park) 

##### [Dr. Kevin Park](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#reggie)

 [ ![Dr. Noémi Dahan-Oliel](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-image-noemi.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#noemi) 

##### [Dr. Noémi Dahan-Oliel](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#noemi)

 [ ![Tammy DRCE](https://amcsupport.org/wp-content/uploads/2025/01/Tammy-DRCE.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#tammy) 

##### [Ms. Tammy Phipps](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#reggie)

 [ ![The 20th Annual AMCSI Conference logo is in the top left, with the S’MORES AMORE logo next to it on the right. In the center are photos from AMCSI’s site visit in Norfolk, Virginia. At the bottom left is the AMCSI logo, accompanied by the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X, with the username @AMCSUPPORT & on the bottom right, it says ‘Celebrating 20 years with our AMC Family’ with the hashtags #AMCVA25 and #Smores all in white.](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_smores-1.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#kumi) 

### Sweet Surprise Alert!

 We’re turning up the YUM at this year’s 20th Annual AMCSI Conference in Norfolk, VA – July 9-12!

Get ready to indulge in a delicious treat from our friends at S’MORES AMORE – all in honor & memory of our beloved Brian Wayne.

Every attendee will receive a special ticket to redeem their ooey-gooey goodness next door. Trust us – your tastebuds will thank you!

Celebrating 20 amazing years together of AMC Awareness with S’MORES!

 [  Register Today!  ](#) 

 [ ![The 20th Annual AMCSI Conference logo is in the top left. In the center is a photo from the BLYSS Ice Cream shop window in Norfolk, Virginia. At the bottom left is the AMCSI logo, accompanied by the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X, with the username @AMCSUPPORT. On the bottom right, it says ‘Celebrating 20 years with our AMC Family,’ accompanied by the hashtags #AMCVA25, #Blyss, and. #IceCream all in white.](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_blyss.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-guest-speakers/#kumi) 

### More Sweet news from #AMCVA25

 BLYSS Ice Cream & Desserts — just steps from the Hilton and next to Rolled Up — is showing some love to our AMCSI Conference community!

July 9–12 Conference attendees can grab a $5 OFF coupon for sweet treats from BLYSS — available at the event!

**Accessibility Note:** The entrance has two manual doors (no stairs), which may require assistance for some wheelchair users.

Big thanks to BLYSS for supporting the AMCSI community!

‼️ Don’t wait — register by July 4th before late registration kicks in on July 5th!

 [  Register Today!  ](#) 

 [ ![Adaptive Sports](https://amcsupport.org/wp-content/uploads/2025/01/AMCSI25_VA_guvebutter-adaptive-sports-1024x536.jpg) ](https://amcsupport.org/20th-annual-amsci-conference-adaptive-sports/) 

This year, we’re continuing to take things to the next level with Adaptive Sports! Whether you’re an outdoor enthusiast or just love a new adventure, this is your chance to help make it happen!

🔥 How can you be part of the action? 🔥 
💪 Donate today to bring Adaptive Sports to the conference! 
🏆 Empower and inspire our community! 
🌟 Make this milestone year unforgettable!

📢 Donate now & help us make history!

**[CLICK HERE TO LEARN MORE](https://amcsupport.org/20th-annual-amsci-conference-adaptive-sports/)**

 *"The AMC conference was a great way for us to meet members of the AMC community and really get to understand the condition better. It was a wonderful experience meeting everyone at the conference and building friendships with those in the AMC community which we hope to maintain over the years. It was great having the opportunity to demo our device for attendees and also receive feedback on ways to improve our existing device. The conference also helped us to think of new products which we hope to debut next year through the very insightful input of the conference attendees."* 

 Roisin ~ Summit Assistive Tech2024 Exhibitor - iReach Stylus 

 *"I walked into the conference lobby the morning before the conference began and asked a guy passing by if he was with the wake surfing group, and he said, "No, but could I come anyway?" Johnathon got in a van in Georgia and drove 2 hours with a complete stranger to Alabama on a whim, with little information to go off. I think this is a perfect example of what I experienced at the AMC conference. I received nothing but kindness, openness, a sense of trust, and honest interest from everyone I met. I was amazed by this community and the welcome I felt in it. It was a highlight in my nearly 10-year career to share adaptive recreation with a community that has been underserved. I look forward to seeing AMC be more represented in recreation and for Adaptive sports to be a staple at AMC conferences moving forward!"* 

 Truman Shoaff2024 Exhibitor - High Country Adaptive Sports 

 *"Matthew had the time of his life on the waves. He didnt want the day to end. It was freeing and genuinely heart warming to witness not just him but everyone else experiencing the wake surfing in a way that worked for them. It was an experience him and I will never forget and I hope to do again. We also made some great friends out on the water and can't wait to see them again at the next conference. I hope to see even more amcers turn out for the next adaptive sporting event!."* 

 Rebeccah Gomez2024 Attendee - AMC Family 

 *"I was truly impressed by the adaptability and willingness of each participant during the recent AMCSI adaptive mountain biking event at conference hosted by Catalyst. What stood out to me was how each participant was eager to troubleshoot bike fit with me and remained flexible to the limitations of the equipment. Every rider is unique, and their valuable input on adjusting bike controls helped create a fun and successful ride for everyone. The collaborative spirit and determination displayed were truly uplifting, making the event a memorable and impactful experience for all involved."* 

 Matt Kirby2024 Exhibitor - Catalyst Sports 

 *"I participated in the adaptive mountain biking program with Catalyst Sports this past summer. I had an AMAZING experience; the volunteers were incredible and riding felt nothing short of euphoric. I hope to do it again next conference!"* 

 Person With AMCAMCSI Member 

 *"This was our first experience working with the AMC Community, and it was truly wonderful. As partners in the adaptive sports program for this year's AMCSI conference, we had the pleasure of collaborating with many dedicated individuals. Starting over a year ago with initial planning alongside Kim Kolstad, followed by monthly meetings, and culminating in our attendance and sports provision at the conference, we have been thoroughly impressed by the entire community. Everything was well-organized and perfectly executed. It's clear that those at the heart of this event put so much of their time, energy, and passion into it because they genuinely love what they do."* 

 Gillian Sharp2024 Exhibitor - Catalyst Sports 

 *"It was such an honour to receive the first time scholarship to the AMC conference. The conference topics were so helpful and provided a nexus for new research, projects and technologies. The conference was such an amazing experience filled with laughter, friendship, and emotion. While I had met a few people with AMC throughout my life, the conference introduced me to a diverse community that came together to celebrate, reflect, and embrace AMC. In my 40s, this was a completely new experience. There were times I felt sadness that the conference did not exist throughout my childhood. There were times when looking at the younger generations of AMCers, and I was filled with pride hearing what they wanted to accomplish. And there were times that I felt deep gratitude and love for the family and friends who stood alongside us AMCers to advocate and break barriers. Traveling with a disability comes with many additional costs. Being able to attend the conference as a first-time participant with the scholarship helps to relieve so many barriers that exist with attending out-of-town events. Thank you."* 

 Alessia2024 Attendee - AMCSI Member 

 *"As a Recreational Therapist I love seeing people get out and get active. I have been to many conferences that focus on other conditions over the years, and this was the first time I have had the pleasure of seeing the families attend and those with AMC of all ages. The conference atmosphere felt like a family including attendees, volunteers, speakers, and staff. It was refreshing to be involved with such a dynamic culture. I am excited that the conference showcased adapted sports and recreation!"* 

 Jo Crawford2024 Exhibitor - AZ Adaptive Watersports 

 ![20th AMCSI Annual Conference Silent Auction](https://amcsupport.org/wp-content/uploads/2024/07/AMCSI25_silent-auction-1.jpg) 

### 🚨 SILENT AUCTION PRE-REGISTERED DONATIONS NEEDED! 🚨

**How You Can Help:** 
🔹 All donations MUST BE pre-registered so we can start bidding as soon as the conference opens! 
🔹 Pre-register here: [**https://forms.gle/c1tFGu1ipfUtpwUw5** ](https://forms.gle/c1tFGu1ipfUtpwUw5)

**Where Do I Send It?** 
🔹 Bringing a donation? Awesome! Once you’ve registered it, simply bring it with you to the conference. 
🔹 Can’t make it? No worries! Email us at (info@amcsupport.org), & we’ll send you the mailing address.

**Need donation ideas? Get inspired!**
🎁 State-Themed Gift Baskets – Represent your state with local goodies! 🏞️ 
✈️ Airline Connections? Help us secure round-trip tickets for the auction! ✈️ 
🛍️ Small Business Love – Homemade candles, sauces, jams—yes, please! ❤️ 
🎬 Movie Theater Hookup? See if your local AMC or theater will donate! 🎟️ 
🔧 Know a tool company rep? Snap-On, Milwaukee—let’s make it happen! 🔨

## [Prom Night – Bubbles & Beaches!](https://amcsupport.org/conference-scholarship/)

 [ ![](https://amcsupport.org/wp-content/uploads/2024/07/AMCSI25_prom-1.jpg) ](https://amcsupport.org/conference-scholarship/) 

 [ ![](https://amcsupport.org/wp-content/uploads/2024/07/AMCSI25_prom-2.jpg) ](https://amcsupport.org/conference-scholarship/) 

We’re *bubbling over with excitement* to invite you to the **“Bubbles & Beaches” Prom Night** at the **20th Annual AMCSI Conference** in beautiful **Norfolk, VA** this summer! 🎉

Get ready for a fun, family-friendly night of dancing, laughter, and magical seaside vibes as we celebrate 20 years with AMCSI !

📸 **PLUS — Don’t miss our fabulous Photo Booth Fun!** Strike a pose with your friends and family. You’ll want to capture every moment!

👗 **What to Wear?** As always, COME AS YOU ARE! But if you would like to dress to impress — Think beach party meets prom night! Here are some fun, family-friendly ideas:

🌸 **Girls** – Twirl-worthy dresses in pastel colors (like lavender or seafoam), flower crowns, and sparkly shoes. 
🧢 **Boys** – Tropical or ocean-print shirts, khaki shorts, or comfy slacks with fun bowties or suspenders. Accessorize with some fun cool dude sunglasses.

**Teens & Adults** –
• Mermaid-inspired looks: shimmery fabrics, sea tones, or fishtail hems
• Beachy vibes: flowy dresses, island prints, and light shawls
• Bubble-inspired fun: layered tulle skirts or dresses with an airy, whimsical feel
• Casual beach formal: linen pants, pastel polos, or seashell accessories

The theme is playful and relaxed, so whether you go **full mermaid glam**, **sunset surfer chic**, or anything in between, just come as your fabulous self! 🌞🌴🫧

📍 **Where?** Norfolk, VA
📅 **When?** During prom night at the AMCSI Conference
🎈 **Who’s Invited?** All conference attendees — kids, teens, adults, and families!

✨ **Please remember:**
✔️ All attire must be **family-friendly and age-appropriate**
🚫 **This is a ZERO TOLERANCE event for alcohol consumption**
🪪 **Name badges are REQUIRED for entry — no exceptions!**

The theme is playful and relaxed, so whether you go **full mermaid glam**, **sunset surfer chic**, or anything in between, just come as your fabulous self! 🌞🌴🫧

Get your beachy best ready—we can’t wait to see you on the dance floor AND in the photo booth! 💃🕺📸

\#AMCSI2025 #BubblesAndBeaches #PromNight #FamilyFun #PhotoBoothMagic #NorfolkVibes #AMCFamily

 [  Register Today!  ](#) 

### Conference Planning Committee

 [ ![](https://amcsupport.org/wp-content/uploads/2025/01/AMCSI-Meet-The-Team-2025-Michele.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-planning-committee/#michele) 

##### [Ms. Michele Schaffer](https://amcsupport.org/20th-annual-amcsi-conference-planning-committee/#michele)

 [ ![conference-crew-betsy-gates](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-betsy-gates.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-planning-committee/#betsy) 

##### [Ms. Betsy Gates-Ehlers](https://amcsupport.org/20th-annual-amcsi-conference-planning-committee/#betsy)

 [ ![conference-crew-maureen-goede](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-maureen-goede.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-planning-committee/#mo) 

##### [Ms. Maureen Goede](https://amcsupport.org/20th-annual-amcsi-conference-planning-committee/#mo)

 [ ![conference-crew-anna-van-bosse](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-anna-van-bosse.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-planning-committee/#ana) 

##### [Ms. Ana van Bosse](https://amcsupport.org/20th-annual-amcsi-conference-planning-committee/#ana)

 [ ![](https://amcsupport.org/wp-content/uploads/2025/01/Jan-Shea-02.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-planning-committee/#jan) 

##### [Ms. Jan Shea](https://amcsupport.org/20th-annual-amcsi-conference-planning-committee/#jan)

 [ ![conference-crew-larina-swans0n-REV](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-larina-swans0n-REV.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-planning-committee/#larina) 

##### [Ms. Larina Swanson-Carter](https://amcsupport.org/20th-annual-amcsi-conference-planning-committee/#beth)

 [ ![Beth Sellers Head Shot Photo](https://amcsupport.org/wp-content/uploads/2025/01/Beth-Sellers-headshot.jpg) ](https://amcsupport.org/20th-annual-amcsi-conference-planning-committee/#beth) 

##### [Ms. Beth Sellers](https://amcsupport.org/20th-annual-amcsi-conference-planning-committee/#beth)

 [ ![20th AMCSI Annual Conference Volunteers](https://amcsupport.org/wp-content/uploads/2025/05/AMCSI25_volunteers.jpg) ](https://www.signupgenius.com/go/10C0D4FA5A623A1F94-56970734-amcnorfolk#/) 

### 🎉 VOLUNTEERS WANTED! 🎉

 Be part of something amazing at the 20th Annual AMCSI Conference in Norfolk, VA — happening July 9–12, 2025!💙🌟

We’re looking for passionate, friendly, fun-loving volunteers to help us make this milestone year unforgettable!

Here’s what you need to know: 
✅ Must be 16+ (younger volunteers welcome with an adult) 
✅ Mandatory volunteer training: Wednesday, July 9 at 2:30 PM EST 
✅ Perks include a VIP-style lanyard, early reg access, and more! 🎁
💻 Sign up using a desktop for the smoothest experience

Got questions? We’ve got answers!💙🙌 📧 volunteer.amcsi@gmail.com

 [  Sign Up Today!  ](https://www.signupgenius.com/go/10C0D4FA5A623A1F94-56970734-amcnorfolk#/) 

### Get Involved!

Do you have a company/organizations or know of any in your area and want to get involved in our 20th Annual AMCSI Conference? Click on the buttons below to view the options we have available or click on the lick to download our Conference Sales Kit today!

 [  Become A Sponsor  ](https://amcsupport.org/20th-sponsorship-signup/) 

 [  Become An Exhibitor  ](https://amcsupport.org/20th-exhibitor-signup/) 

[**CLICK HERE to view this years Exhibitors**](https://amcsupport.org/20th-annual-amcsi-conference-exhibitors/)

 [  Advertise In Program  ](https://amcsupport.org/20th-program-form/) 

#### [**Click here to download a PDF file of the Conference Sales Kit** ](https://amcsupport.org/wp-content/uploads/2025/03/AMCSI25_Sales_Kit.pdf)

*(Note: you can open the PDF on a computer and type in your information & email it to us at ****)*

### Important Documents

Learn about our [**Code Of Conduct**](https://amcsupport.org/20th-annual-amcsi-conference-important-documents/#conduct), [**General Liability Waiver**](https://amcsupport.org/20th-annual-amcsi-conference-important-documents/#liability) & **[Photo Release](https://amcsupport.org/20th-annual-amcsi-conference-important-documents/#photo)** information before you arrive!

### Past Conferences

 [ 

 ](https://amcsupport.org/past-conference-photo-galleries/) [ ](https://amcsupport.org/past-conference-photo-galleries/) 

 [  View Photo Galleries  ](https://amcsupport.org/past-conference-photo-galleries/)

**Categories:** 20th Annual AMCSI Conference, AMC Events, Archived

**Tags:** 20th Annual AMCSI Conference, AMCSI, Arthrogryposis, Past Conference Listing

---

### [19th Annual AMCSI Conference](https://amcsupport.org/19th-annual-amcsi-conference/)

**Published:** December 10, 2023
**Author:** Ted Houser

**Content:**

## Conference Registration Is Open!

With a condition so rare that only one in 3000 babies born have this neuromuscular disorder, it’s easy to comprehend how alienated anyone with arthrogryposis multiplex congenita (AMC) must feel. Through the hard work of one mother’s vision and an army of members, the AMC support group has helped bridge the gap with the power of the internet. It is not only the group’s mission to provide and encourage a greater understanding and awareness of this condition, but also to provide a support system. To help those that have felt all their lives an outcast or alone, meet others who have lived that same life, to meet other families who have the same concerns and to provide a resource of information.

 ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-5.jpg) 

 [  Download PDF Of Registration Rates  ](#) 

But meeting online is not enough. It’s hard to explain to a mom exactly how another mom has taught her child to sit up without the use of his arms, or how one child learned to stand. What so many people take for granted: the ease of walking, typing, eating and breathing those with AMC have had to struggle to adapt to this world. Our conferences solidify that bridge and strengthen the bond of our AMC family. Once a year, we come together, bring professionals, doctors, physical therapists, occupational therapists, provide workshops, and invite people throughout the world to learn, share, laugh, cry, and grow.

We invite you to our 3-day conference, coming together to learn about Arthrogryposis, raise awareness, and create community. #AMCatl24

#### Step 1

 [  Become A Member  ](https://amcsupport.org/become-a-member/) 

#### Step 2

 [  Register For Conference  ](#) 

# Guest Speakers

 [ ![Dr_Louise_Reid_Nichols](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Louise_Reid_Nichols.jpg) ](https://amcsupport.org/speakers/#reid) 

#### [Dr. Reid Nichols](https://amcsupport.org/speakers/#reid)

 [ ![Speaker-Dr-Dan-REV](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Dr-Dan-REV.jpg) ](https://amcsupport.org/speakers/#zlotolow) 

#### [Dr. Dan Zlotolow](https://amcsupport.org/speakers/#zlotolow)

 [ ![Speaker image kimberly kolstad the keynote speaker at the 19th Annual AMCSI Conference in Atlanta, GA](https://amcsupport.org/wp-content/uploads/2024/04/Speaker-image-kimberly-kolstad.jpg) ](https://amcsupport.org/speakers/#kimberly) 

#### [Kimberly Kolstad](https://amcsupport.org/speakers/#kimberly)

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-Meet-The-Team-Dr-Harold_van-Bosse.jpg) ](https://amcsupport.org/speakers/#haorld) 

#### [Dr. Harold van Bosse](https://amcsupport.org/speakers/#haorld)

 [ ![Speaker-Don-Brown](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Don-Brown.jpg) ](https://amcsupport.org/speakers/#don) 

#### [Don Brown](https://amcsupport.org/speakers/#don)

 [ ![Speaker-Dr-Maureen-Donohue](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Dr-Maureen-Donohue.jpg) ](https://amcsupport.org/speakers/#reenee) 

#### [Dr. Maureen Donohue](https://amcsupport.org/speakers/#reenee)

 [ ![20th Annual AMCSI Conference Guest Speaker Theresa-Willkomm](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Thersa-Willkomm.jpg) ](https://amcsupport.org/speakers/#theresa) 

#### [Dr. Theresa Willkomm](https://amcsupport.org/speakers/#theresa)

 [ ![Speaker-Lauren-Hyer](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Lauren-Hyer.jpg) ](https://amcsupport.org/speakers/#lauren) 

#### [Dr. Lauren Hyer](https://amcsupport.org/speakers/#lauren)

 [ ![Speaker-Noemi-Dahan-Oliel](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Noemi-Dahan-Oliel.jpg) ](https://amcsupport.org/speakers/#noemi) 

#### [Dr. Noémi Dahan-Oliel](https://amcsupport.org/speakers/#noemi)

 [ ![Speaker-Phillip-Giampietro](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Phillip-Giampietro.jpg) ](https://amcsupport.org/speakers/#phillip) 

#### [Dr. Phillip Gaimpietro](https://amcsupport.org/speakers/#phillip)

 [ ![Speaker-Fran-Guardo](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Fran-Guardo.jpg) ](https://amcsupport.org/speakers/#fran) 

#### [Dr. Fran Guardo](https://amcsupport.org/speakers/#fran)

 [ ![Speaker-Jan-Shae](https://amcsupport.org/wp-content/uploads/2024/02/Speaker-Jan-Shae.jpg) ](https://amcsupport.org/speakers/#shea) 

#### [Jan Shea](https://amcsupport.org/speakers/#shea)

 [ ![Speaker_Dr_Sarah_Nossov](https://amcsupport.org/wp-content/uploads/2024/02/Speaker_Dr_Sarah_Nossov.jpg) ](https://amcsupport.org/speakers/#nossov) 

#### [Dr. Sarah Nossov](https://amcsupport.org/speakers/#nossov)

 [ ![AMCSI24Speaker-image-Lisa-Wagner](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24Speaker-image-Lisa-Wagner.jpg) ](https://amcsupport.org/speakers/#lisa) 

#### [Dr. Lisa V. Wagner](https://amcsupport.org/speakers/#lisa)

 [ ![AMCSI24Speaker-image-Megan-Mitchell](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24Speaker-image-Megan-Mitchell.jpg) ](https://amcsupport.org/speakers/#megan) 

#### [Megan Mitchell](https://amcsupport.org/speakers/#megan)

 [ ![Speaker-image-caroline-elfassy](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-image-caro-elfassy.jpg) ](https://amcsupport.org/speakers/#caroline) 

#### [Caroline Elfassy](https://amcsupport.org/speakers/#caroline)

 [ ![Speaker-image-rose](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-image-rose.jpg) ](https://amcsupport.org/speakers/#rose) 

#### [Rose Elekanachi](https://amcsupport.org/speakers/#rose)

 [ ![Speaker-image-kristen-donlevie](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-image-kristen-donlevie.jpg) ](https://amcsupport.org/speakers/#kristen) 

#### [Kristen Donlevie](https://amcsupport.org/speakers/#kristen)

 [ ![Speaker-image-ahlam-zidan](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-image-ahlam-zidan.jpg) ](https://amcsupport.org/speakers/#ahlam) 

#### [Ahlam Zidan](https://amcsupport.org/speakers/#ahlam)

 [ ![Speaker image tricia bucci](https://amcsupport.org/wp-content/uploads/2024/04/Speaker-image-tricia-bucci.jpg) ](https://amcsupport.org/speakers/#tricia) 

#### [Tricia Bucci](https://amcsupport.org/speakers/#tricia)

 [ ![Speaker image jaccalyn owens headshot](https://amcsupport.org/wp-content/uploads/2024/04/Speaker-image-jaccalyn-owens.jpg) ](https://amcsupport.org/speakers/#jaccalyn) 

#### [Jaccalyn Owens](https://amcsupport.org/speakers/#jaccalyn)

 [ ![Speaker Matthew P Cavedon at the 19th Annual AMCSI Conference in Atlanta, Georgia](https://amcsupport.org/wp-content/uploads/2024/05/Speaker-Matthew-P-Cavedon.jpg) ](https://amcsupport.org/speakers/#matt) 

#### [Matthew P. Cavedon](https://amcsupport.org/speakers/#matt)

 [ ![Speaker Dr. Arun Hariharan at the 19th Annual AMCSI Conference in Atlanta, Georgia](https://amcsupport.org/wp-content/uploads/2024/05/Speaker-Dr-Arun-Hariharan.jpg) ](https://amcsupport.org/speakers/#arun) 

#### [Dr. Arun Hariharan](https://amcsupport.org/speakers/#arun)

 [ ![Speaker image Nancy Quinn](https://amcsupport.org/wp-content/uploads/2024/05/Speaker-image-nancy.jpg) ](https://amcsupport.org/speakers/#nancy) 

#### [Nancy Quinn](https://amcsupport.org/speakers/#nancy)

## [Brayden Dame Conference Scholarship](https://amcsupport.org/brayden-dame-scholarship/)

 [ ![Brayden_Dame_Scholarship_01](https://amcsupport.org/wp-content/uploads/2023/12/Brayden_Dame_Scholarship_01.jpg) ](https://amcsupport.org/brayden-dame-scholarship/) 

#### Made possible by a generous donation from the Calvin and Marissa Allen Foundation in honor of Brayden Dame, this scholarship will be awarded to a family in our AMC community. The grant will cover registration cost, lodging and travel to 19th Annual AMCSI Conference in Atlanta, Georgia.

 [  Learn More  ](https://amcsupport.org/brayden-dame-scholarship/) 

## [AMCSI Conference Scholarship](https://amcsupport.org/conference-scholarship/)

 [ ![](https://amcsupport.org/wp-content/uploads/2024/03/AMCSI-conf-scholarship-skylar.jpg) ](https://amcsupport.org/brayden-dame-scholarship/) 

#### This Conference Scholarship is made possible by a generous donation from a member of our community. The donor wished to remain anonymous. We are so grateful to have the opportunity to award another attendee this scholarship.

 [  Learn More  ](https://amcsupport.org/conference-scholarship/) 

## [CLick Here To Check Out This Years Exhibitors!](https://amcsupport.org/exhibitors/)

 ![](https://amcsupport.org/wp-content/uploads/2023/12/adaptive-sports-climber.jpg) 

### Adaptive Sports

Sponsored By

 [ ![Centurionlogo_color_600](https://amcsupport.org/wp-content/uploads/2023/12/Centurionlogo_color_600.png) ](https://centurionboats.com/) 

 [ ![Wake_for_warroirs_black-red_logo](https://amcsupport.org/wp-content/uploads/2023/12/vinyl_wfw2015_black-600.png) ](https://www.wakeforwarriors.org/) 

 [ ![nautique-boat-company-inc-logo-vector-color-600](https://amcsupport.org/wp-content/uploads/2023/12/nautique-boat-company-inc-logo-vector-color-600.png) ](https://centurionboats.com/) 

##### Are you curious or interested in the outdoors?

Then sign up to get involved in some adaptive sports fun on July 3rd, before the 19th Annual AMCSI Conference in Atlanta, Georgia

We’ll have three adaptive sports that you can get into; Mountain Biking, Rock Climbing & Wake Surfing!

 [  Signup Today  ](#) 

 [  Donate To Adaptive Sports  ](https://www.azadaptivewatersports.org/kim-amcsi-2024) 

# Conference Planning Committee

 [ ![conference-crew-anna-van-bosse](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-anna-van-bosse.jpg) ](https://amcsupport.org/planning-committee/#anna) 

#### [Ana van Bosse](https://amcsupport.org/planning-committee/#anna)

 [ ![conference-crew-michele-shaffer](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-michele-shaffer.jpg) ](https://amcsupport.org/planning-committee/#michele) 

#### [Michele Schaffer](https://amcsupport.org/planning-committee/#michele)

 [ ![conference-crew-maureen-goede](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-maureen-goede.jpg) ](https://amcsupport.org/planning-committee/#maureen) 

#### [Maureen Goede](https://amcsupport.org/planning-committee/#maureen)

 [ ![conference-crew-beth-sellers](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-beth-sellers.jpg) ](https://amcsupport.org/planning-committee/#beth) 

#### [Beth Sellers](https://amcsupport.org/planning-committee/#beth)

 [ ![conference-crew-betsy-gates](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-betsy-gates.jpg) ](https://amcsupport.org/planning-committee/#betsy) 

#### [Besty Gates-Ehlers](https://amcsupport.org/planning-committee/#betsy)

 [ ![conference-crew-larina-swans0n-REV](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-larina-swans0n-REV.jpg) ](https://amcsupport.org/planning-committee/#larina) 

#### [Larina Swanson-Carter](https://amcsupport.org/planning-committee/#larina)

 [ ![conference-crew-jan-shae](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-jan-shae.jpg) ](https://amcsupport.org/planning-committee/#jan) 

#### [Jan Shea](https://amcsupport.org/planning-committee/#anna)

 ![conference_homepage-schedule](https://amcsupport.org/wp-content/uploads/2023/12/conference_homepage-schedule.jpg) 

### Conference Schedule

Schedule is subject to change at any time. Please keep checking the website, announcements, and social media to remain updated.

Email us at [info@amcsupport.org]() if you have any questions

 [  View Full Schedule  ](https://amcsupport.org/schedule/) 

## Online Sponsorship, Exhibitor, & Program Forms

### [**SPONSORSHIP SIGNUP FORM**](https://amcsupport.org/19th-sponsorship-form)

### [**EXHIBITOR SIGNUP FORM**](https://amcsupport.org/19th-exhibitor-form)

### [**PROGRAM AD SIGNUP FORM**](https://amcsupport.org/19th-program-form/)

[**Download PDF of full 2024 Conference Sales Kit**](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI24_Sponsorship_Exhibitor_Kit-REV2.pdf)

 ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_Conference_Volunteers.jpg) 

### Conference Volunteers

Sign up by clicking the button below to volunteer at the AMC Annual Conference in Atlanta, GA on July 3-6, 2024. All times are in EST. 🤝✨

Please read the information below as some changes and updates are included.

Volunteers must be over 16 to volunteer alone. Pre-teens may volunteer \*with\* a parent or designated adult in certain locations.

Volunteers are encouraged to attend the volunteer training on Wednesday at 2:30pm. Any volunteers who attend the training AND volunteer for at least 4 hours will receive an exclusive lanyard (must meet both requirements). Volunteers who attend the training will also be granted special access to a special volunteer-only early registration line for conference at 3:30pm immediately following the training.

This sign-up will not work well on a mobile device – it is best to use a computer.

If you have any questions, please email **** Thank you for helping make the AMC conference amazing! We couldn’t do it without you!🌟🌟🌟

 [  Sign Up Here To Volunteer  ](#) 

## 18th Annual AMCSI Conference

July 3-5, 2023
Columbus, Ohio

#### Thank you to all that attended!

 [  View Photo Gallery  ](https://amcsupport.org/18th-annual-amcsi-conference-photo-gallery/)

**Categories:** AMCSI Annual Conference, Archived, Arthrogryposis

**Tags:** 19th Annual AMCSI Conference, 19th Annual Conference, AMCSI, Arthrogryposis, Past Conference Listing

---

### [AMC Holiday Fund](https://amcsupport.org/amc-holiday-fund/)

**Published:** January 4, 2026
**Author:** Ted Houser

**Content:**

##### Every year, we want to express our heartfelt appreciation & #Love for the incredible support we’ve received from our AMC Community, Organizations, Hospitals, & Fundraisers.

We’re excited to continue the AMC Holiday Fund in 2026, a fundraiser that aims to bring joy & relief to AMC families nationwide during the holiday season.

Our mission is simple: help AMC families enjoy the holidays without the burden of expenses. Many AMC families face overwhelming challenges, including medical expenses & hospital visits. Your support can make their holiday season one to remember & every contribution brings us closer to achieving this goal.

Your donations will go directly to support various AMC families within our community.

##### As a token of our appreciation, every donation of $200 or more will receive a free June 30th T-shirt!

Let’s come together & make this holiday season magical for AMC families. Your generosity can bring smiles, warmth, & happiness to those who need it most.

### Testimonials from past Recipients

 "We just wanted to thank you all so much for choosing us to receive the grant for the holidays! It made such a huge difference for us for the holidays!!" 

 ~ The Ferrone's 

 "I want to say Thank you so much to AMCSI for helping our family out this holiday season. 2023 has been a roller coaster of a year, and our family has experienced so much financial hardship, Ending the year with losing most of our belongings with our house flooding, and If that wasn’t enough, Our AMCer Jhay breaking his leg in December in a wheelchair accident, Causing a lot of missed work for me as a single Mom right around the holiday season. I am grateful to AMCSI for sponsoring our family for the holiday fund. The children were able to receive some nice gifts, We were able to put food on the table in a time of need and catch up on bills we had fallen behind on. Thank you so much! We are forever grateful for our AMC Family! We love you guys! Jhaylen personally says Thank you as he was able to get a new bed set and legos!" 

 ~ Jhaylen Family 

 “We have been members of AMCSI since 2012. Our daughter Red was born with Arthrogryposis multiplex congenita. We've been blessed to attend the annual conference since she was 5 years old. She just turned 18. The pandemic stole 2 years of conferences. This past year has paid a huge toll on our finances. We've also had a lot of medical and personal stuff going on. Both of our older cars have taken turns being in and out of the shop. At one point they were both unusable. We were drowning in debt. We put our pride aside and applied for the holiday grant. We were very surprised and appreciative when we found out we had gotten it. It took a lot of stress off of us. We were able to get stuff we needed as well as be able to buy her a couple of things. It was the lift we needed to get us back on our feet. We couldn't have done it without this grant from AMCSI <3 This organization has blessed us in so many ways. Physically, emotionally and now financially. We look forward to being able to go to conference again this year, we especially enjoy volunteering our time as well.” 

 ~ The Fisher’s 

### **GRANT PROGRAM DETAILS:** 

**Funds**
A grant will be awarded to approved grantee. Funds can only be issued to the AMCer or parent/legal guardian of the AMCer. If your AMCer is under 18, this form MUST be filled out and signed by a parent/ legal guardian of the AMCer. If you are nominating a family, please provide your contact information as well.

*Please note grant guidelines are subject to change.*

### **Eligibility requirements for the AMC Holiday Grant:**

- Assistance is awarded to individuals with the diagnosis of arthrogryposis or to the direct (parent or legal guardian) family member of the affected individual.
- Current registered member of AMCSI
    - All applicants **MUST** be a current member of Arthrogryposis Multiplex Congenita Support Inc.
    - Our members help make the community give back grants possible for hundreds of our AMC families.
        **A limited number of scholarships for membership is available upon request.**
- Applicants must reside in the US or Canada
- Proof of diagnosed condition of arthrogryposis

### AMC Holiday Grant Application

##### All (required) (\*) fields must be filled out.

Your application will not be processed until all required items are received.
Please do not email to check on the status of your application. We will reach out you if further information is needed.

Funding for this grant is available thanks to our AMCSI Members, Friends & Family! Thank you so much for making this grant possible.

      Personal Information 

  I am:  A parent of an individual with AMC A Caregiver/Relative  An Adult with AMC  Other

  If you selected 'other' above, please write your answer here:   

  Name   

  Email   

  Phone   

  Address   

  Address 2   

  City   

  State   

  Zip   

  AMCSI Membership #   

  Name of AMCer   

  Age of AMCer   

  Orthopedic Surgeon/Hospital/Clinic that treats you/your AMCer   

  How many members of your current household?   

  Please list any agencies/organizations that are assisting you with holiday assistance this year. (Salvation Army, Local Church group, etc.)   

  Please tell us about your family? Please provide details for our grant committee members to review.   

  How can AMCSI help you & your family this holiday season? Please be as detailed as possible in your response.   

  Please describe in detail your current needs   

  Required Documents Checklist. Please email info@amcsupport.org (required)  Proof of Medical Diagnosis (arthrogryposis multiplex congenita)

 If you are nominating a family for the AMC Holiday Fund, Please submit your contact information here. 

  Name   

  Email   

  Phone   

  If you are nominating a family for this grant, do you wish to remain anonymous?  Yes No, please let the family know. 

 Acknowledgements 

  I understand that I must submit required documentation (proof of medical appointment, diagnosis and receipts) in order to receive funding.

A letter from your GP, Pediatrician, Orthopedic Surgeon that clearly states your diagnosis of arthrogryposis. (required)  Yes No

  I understand that my application will be cross referenced with other giving organizations. (required)  Yes No

  I certify that, to the best of my knowledge and ability, the information included in this application, is accurate as of the date of this application signed below. (required)  Yes No

  If your family is selected for the AMC Holiday Fund, I agree that our family's testimonial can be utilized on AMCSI's social's, newsletters, emails, and website. (required)  Yes No

  Signature   

  Date   

   Send

**Categories:** AMC Holiday Grant, Grants

**Tags:** AMC Holiday Fund, AMC Holiday Grant, AMC Holiday Grant 2026, Grants, Holiday Fund, Upcoming

---

### [BOD FAQs](https://amcsupport.org/bod-faqs/)

**Published:** September 2, 2026
**Author:** Ted Houser

**Excerpt:** Explore AMCSI Board of Directors FAQs addressing finances, governance, organizational decisions, restricted donations, and other member questions.

**Content:**

# AMCSI Board of Directors FAQs

AMCSI is committed to transparency and open communication with our members. This page provides answers to frequently asked questions regarding the Board of Directors, AMCSI’s finances, organizational decisions, governance, and other matters of interest to our membership.

The FAQs below will be updated as new questions arise and additional information becomes available. Our goal is to provide members with clear, accessible information about the organization and the decisions that help shape its future.

##### Click below to view each Board of Directors FAQs:

    AMCSI Board Update: Transparency, Finances & Governance 

     Dear Members of AMCSI,

A big thank you to everyone who was able to attend our public board meeting 3 weeks ago! We cannot make this organization successful without you!

In response to some questions that have arisen since that meeting:

We have posted all the IRS Form 990s for AMCSI dating back to 2011 here. In case you’re not familiar, a 990 is the tax form required of all non-profits. These forms have always been available through the IRS website. However, we recognize that retrieving these from the IRS can be cumbersome, so we made them more easily accessible on our site at: [Board of Directors Meetings, Bylaws, & Financials](https://amcsupport.org/board-of-directors-meetings-bylaws-financials/).

There have been questions around the donation made to AMCSI from Ladies Oriental Shrine of North America a couple of years ago. They made a restricted donation of $75,000 to AMCSI: this money may only be used to fund the purchase of Obi feeding devices for AMCSI members in need and to sponsor new families to attend conference. Utilizing these restricted funds, the BOD recently approved the purchase of an Obi device for a child with AMC in California, and 12 families participated as first-time attendees over the past two conferences. See our [August Newsletter](https://amcsupport.org/amcsi26_august_newsletter/) for one of their stories & to receive our monthly newsletter with these highlights, please sign up at: [Join Our Newsletter](https://amcsupport.org/join-our-newsletter/). We continue to evaluate opportunities to provide future conference scholarships, with the goal of maximizing member benefit from the remaining funds.

A number of members have questioned the decision to hire an Executive Director in 2023, especially considering the large associated expense. It is important to note that Harold van Bosse is the only current member of the Board who was on the board when those decisions were made. There had been a long recognition that the growth of AMCSI represented a challenge for continued fundraising, and that the organization was becoming so large that regulatory responsibilities were becoming much harder to manage. As a fully volunteer organization, AMCSI leadership was concerned that missteps could weaken future financial health and possibly imperil our standing as a 501c organization. In 2021, the BOD hired an outside consultant to help provide direction, and the outcome of that months-long process was the realization that AMCSI would benefit from a salaried executive director. In 2022, the BOD held a first round of interviews of executive directors that was unsuccessful in identifying an appropriate candidate. The result of the second round was the hiring of Maria Cherjovsky, who had extensive experience in the administration of non-profit organizations like AMCSI.

Ms. Cherjovsky was given the directive to assess our organizational structure and to fortify our fundraising. Her initial evaluation of AMCSI found several regulatory vulnerabilities, which, if not addressed, could have put AMCSI’s 501c status at risk. Rectifying these issues consumed most of her time, and she was unable to fully focus on fundraising. Unfortunately, despite the positive results in restructuring and bringing the appropriate entities into play for compliance (e.g., Harbor Compliance), it proved untenable for Ms. Cherjovsky to remain in the position. Please know that the current BOD remains committed to developing strategies for moving forward, creating a strong organization with a reliable financial support structure. The BOD benefits greatly from those who volunteer time, knowledge, and experience.

We are continuing to work diligently with counsel on the governance/bylaw issues discussed in the public meeting. We will include updates on these concerns in the monthly newsletter when there is new information to share.

If you have reached out to us about your willingness to help, please know we are working on following up with you.

Sincerely,

AMCSI Board of Directors
Tracey Schalk, President **(de facto)** Matt Cavedon, Vice President **(de facto)** Siera Leone, Secretary **(de facto)** Mark Indreika, Treasurer **(de facto)** Dr. Harold van Bosse, Medical Director

**Categories:** About Us

**Tags:** Board Of Directors Meetings, BOD, FAQs

---

### [AMCSI - Meet The Team](https://amcsupport.org/amcsi-meet-the-team/)

**Published:** December 10, 2023
**Author:** Ted Houser

**Excerpt:** About AMCSI — Empowering the Arthrogryposis Community Worldwide

Founded in 2001, AMCSI (Arthrogryposis Multiplex Congenita Support, Inc.) began as a small online group of mothers searching for answers, support, and understanding after their children were diagnosed with Arthrogryposis—a rare, non-progressive congenital condition affecting joint movement. What started as a heartfelt chat among parents has grown into the world’s largest and most trusted online community for AMC awareness, education, and support.

Today, AMCSI connects thousands of individuals and families across the globe, offering expert-backed resources, emotional support, advocacy tools, and life-changing events. Our mission is to ensure no one faces AMC alone. Through our website, conferences, and outreach programs, we continue to spread awareness, promote research, and uplift those affected by this rare condition.

Join us as we champion inclusion, celebrate ability, and provide hope to the AMC community—one story at a time.

**Content:**

### About AMCSI — Empowering the Arthrogryposis Community Worldwide

Founded in 2005, **AMCSI** *(Arthrogryposis Multiplex Congenita Support, Inc.)* began as a small online group of mothers searching for answers, support, and understanding after their children were diagnosed with Arthrogryposis—a rare, non-progressive congenital condition affecting joint movement. What started as a heartfelt chat among parents has grown into the world’s largest and most trusted online community for AMC awareness, education, and support.

Today, AMCSI connects thousands of individuals and families across the globe, offering expert-backed resources, emotional support, advocacy tools, and life-changing events. Our mission is to ensure no one faces AMC alone. Through our website, conferences, and outreach programs, we continue to spread awareness, promote research, and uplift those affected by this rare condition.

Join us as we champion inclusion, celebrate ability, and provide hope to the AMC community—one story at a time.

##### Below are a few ways to get started:

 [  Become A Memebr  ](https://amcsupport.org/become-a-member/) 

 [  Signup To Our Newsletter  ](https://amcsupport.org/join-our-newsletter/) 

 [  Official AMCSI Store  ](https://amcsupport.org/store/) 

# Meet The Team

 ![AMCSI - Ani Samargian](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-Meet-The-Team-Ani-Samargian.jpg) 

## Ani Samargian

### AMCSI Founder/Community Support Advocate

Ani Samargian is the Founder and Community Support Advocate of Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI), where she has spent more than two decades building connections, expanding resources, and supporting individuals and families affected by AMC.

Ani’s journey in the AMC community began following her daughter’s prenatal diagnosis. What started as a search for information and connection grew into a lifelong commitment to ensuring that individuals and families affected by AMC have access to support, education, resources, and a community that understands their experiences.

Through AMCSI, Ani has helped connect individuals with AMC, families, medical professionals, researchers, and advocates around the world. Her work spans nonprofit leadership, family and community support, educational programming, conference development, advocacy, research collaboration, and partnerships between the AMC community and the professionals who serve it.

Ani also brings the voice and lived perspective of the AMC community to research and professional collaborations. She has contributed as a co-author to multiple peer-reviewed publications addressing rehabilitation for children with arthrogryposis, pregnancy and prenatal counseling, adult experiences with amyoplasia, the role of support communities, and international collaboration in AMC research, care, and education.

Her educational and leadership background includes nonprofit management studies at Winthrop University and leadership development through the Grassroots Leadership Development Institute at the Spartanburg County Foundation.

At the heart of Ani’s work is a simple commitment: **no one affected by AMC should have to navigate their journey alone.** For more than 20 years, she has worked to build a stronger, more connected AMC community where individuals and families are heard, supported, and included in the conversations and decisions that affect their lives.

 ![Arthrogryposis - Ted Houser - Artist](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-Meet-The-Team-Ted-Houser-REV.jpg) 

## Ted Houser

### I. C. - Director of Sales/Marketing & Digital Strategy

**Ted Houser** is a digital strategist and UX-focused web designer with experience leading websites, campaigns, and conversion-focused initiatives for nonprofits, events, and small businesses. Proven ability to improve SEO visibility, increase revenue from sponsorships and merchandise, and build scalable digital systems that support engagement, fundraising, and operational efficiency. Strong background in WordPress development, UX/UI, content strategy, analytics, and Adobe Creative Suite.

With over 20+ years of experience in graphic design, event production, marketing, and web development. As the founder and owner of TBSDesigns since 2006, he has collaborated with businesses and organizations around the world, specializing in branding, website creation, and international logo designs. Based in Philadelphia, Ted is proud to bring his expertise and lived experience as an individual with Arthrogryposis Multiplex Congenita (AMC) to the team, dedicated to supporting and empowering the AMC community and their families.

## Board Of Directors

 ![Tracey Schailk AMCSI Board Member - Member At Large](https://amcsupport.org/wp-content/uploads/2024/08/AMCSI-Meet-The-Team-Tracey-S-2024.jpg) 

## Tracey Schalk

### President *(de facto)*

Tracey Schalk lives with AMC in all limbs. She has a bachelor’s degree in Political science and disability studies from The Ohio State University. She has worked in various positions in Ohio’s developmental disabilities system of care, doing case management and vocational rehab, and, currently, quality assurance and eligibility determination. She is on the Board of Directors for Arthrogryposis Ohio and was part of the team that helped start the AMC Adult Registry. She lives in Findlay, Ohio, with her husband, John, and dog, Winston.

 ![](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI-Meet-The-Team-Matthew-P-Cavedon-3.jpg) 

## Matthew P. Cavedon

### Vice President *(de facto)*

Matthew P. Cavedon has arthrogryposis and uses a wheelchair. In his youth, Cavedon was a national spokesperson for Boundless Playgrounds and a member of the National Council on Disability’s Youth Advisory Committee. He graduated from Harvard College and Emory University. A former law clerk and public defender, he is currently the Robert Pool Fellow at the Center for the Study of Law and Religion at Emory University. Cavedon and his wife live in South Carolina and are active in their Catholic parish.

 ![Michele Schaffer - Vice President of Programming](https://amcsupport.org/wp-content/uploads/2026/06/Michele-2026.jpg) 

## Michele Schaffer

### Vice President Of Programming

Michele Schaffer and her husband Allen have four adult children, David, Andrew-AMC, Christopher, and Kaytlin. Michele currently works for the New Albany Plain Local School District as an Intervention Specialist. She joined the Board of Directors of Arthrogryposis Multiplex Congenita Support, Inc., in 2006. With the help of the amazing Loon Crew, she has planned the Annual Conference since 2010. In her free time, Michele enjoys reading, crafting, and volunteering. Michele and her family currently reside in Columbus, Ohio.

 ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-Meet-The-Team-Dr-Harold_van-Bosse.jpg) 

## Dr. Harold van Bosse

### Medical Director

Harold J.P. Van Bosse, M.D. has been practicing pediatric orthopedic surgery exclusively since completing his orthopedic residency at the University of Illinois in Chicago in 1994, and his fellowship at Toronto’s Hospital for Sick Children in 1995. His specialty interests within pediatric orthopedics are arthrogryposis multiplex congenita (AMC), Prader-Willi syndrome (PWS), idiopathic clubfoot deformity, limb malalignment conditions, and pediatric spine deformities, especially of the growing spine. AMC and PWS alone make up more than 90% of his practice, allowing him to delve deeply into his special interest. He has published widely on topics related to arthrogryposis, clubfeet, and Prader-Willi syndrome. When developing an arthrogryposis center, the goals are to allow children with arthrogryposis to reach their fullest potential, both by addressing their limb deformities, as well as helping them to function/adapt to the limitations they have. Dr. Van Bosse considers himself privileged to follow patients from both North and South America, as well as Europe and Asia. He could not have gotten this far without the support of his wife, Ana.

 ![Mark Indreika in Alaska](https://amcsupport.org/wp-content/uploads/2026/08/Mark-Indreika.jpg) 

## Mark Indreika

### Interim Treasurer *(de facto)*

Mark Indreika has spent 29 years teaching high school English in the Chicago area. He attended Northern Illinois University earning undergraduate degrees in journalism and in English education. He also completed a graduate degree in English and American Literature. Before the pandemic, he spent two years editing and writing the old AMCSI newsletter, AMC Today. He enjoyed the work since he has a passion for telling stories, especially the stories of people with AMC. When he retires from teaching in 2026, he looks forward to devoting even more time to AMCSI. He said this about the organization, “My wife Jane and I have been members of AMCSI for over 10 years. Before my first conference, I saw myself as somewhat of an anomaly, but now I see myself as a member of a very large and inclusive community. People with AMC come from all socioeconomic backgrounds; from all cultures and races; and from all political and spiritual persuasions. Unlike the rest of our divided society, however, our community has found unity.

 ![Siera Leone AMCSI Board Member - Member At Large](https://amcsupport.org/wp-content/uploads/2024/08/AMCSI-Meet-The-Team-Siera-L-2024.jpg) 

## Siera Leone

### Interim Secretary *(de facto)*

Siera discovered AMCSI while searching for resources on Arthrogryposis and found a supportive community. Since then she has attended several conferences and learned something new each time. Siera joined the board to support the community that helped her. She works for RIPIN, a nonprofit that helps all Rhode Islanders throughout their lifespans navigate the special education, health insurance, and healthcare systems. She supports RIPIN’s administrative department, co-facilitates the Chronic Pain Self-Management Program, and is a mentor for the Youth Advisory Council, a group of youth and young adults who make a difference in health issues affecting that population. Siera served on Rhode Island’s Independent Living Council. She lives in Wakefield, Rhode Island. When not working, Siera enjoys good food, new experiences, and learning fun facts about the Ocean State.

## Medical Advisory Board

 ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-Meet-The-Team-Dr-Harold_van-Bosse.jpg) 

## Dr. Harold van Bosse

### Medical Director

Harold J.P. Van Bosse, M.D. has been practicing pediatric orthopedic surgery exclusively since completing his orthopedic residency at the University of Illinois in Chicago in 1994, and his fellowship at Toronto’s Hospital for Sick Children in 1995. His specialty interests within pediatric orthopedics are arthrogryposis multiplex congenita (AMC), Prader-Willi syndrome (PWS), idiopathic clubfoot deformity, limb malalignment conditions, and pediatric spine deformities, especially of the growing spine. AMC and PWS alone make up more than 90% of his practice, allowing him to delve deeply into his special interest. He has published widely on topics related to arthrogryposis, clubfeet, and Prader-Willi syndrome. When developing an arthrogryposis center, the goals are to allow children with arthrogryposis to reach their fullest potential, both by addressing their limb deformities, as well as helping them to function/adapt to the limitations they have. Dr. Van Bosse considers himself privileged to follow patients from both North and South America, as well as Europe and Asia. He could not have gotten this far without the support of his wife, Ana.

 ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-Meet-The-Team-Dr-Judith-Hall.jpg) 

## Dr. Judith Hall

### Medical Advisor

Dr. Judith Hall is a clinical geneticist and pediatrician. She trained at Wellesley College, the University of Washington School of Medicine, and the Johns Hopkins Hospital. She is presently Emerita Professor of Pediatrics and Medical Genetics at the University of British Columbia, Vancouver, Canada. Her area of research interest is human congenital anomalies and in particular arthrogryposis (multiple congenital contractures). She has published over 300 original peer reviewed articles, 140 chapters, conference proceedings, and 10 books. Dr. Hall is also the co-author of the AMC Text Atlas . She has been involved in arthrogryposis clinics for over 35 years with a particular interest in sorting out the causes (including genetic), natural history, and best therapies for individuals affected with arthrogryposis. She has published over 50 articles and chapters on arthrogryposis, and she continues to be actively involved in learning as much as possible about arthrogryposis so that she can help families and affected individuals.

 ![Reenee - Medical Advisor](https://amcsupport.org/wp-content/uploads/2023/12/Reenee-headshot-2025-web.jpg) 

## Dr. Maureen Donohoe

### PT, DPT

Dr. Donohoe is a board certified paediatric clinical specialist whose expertise is in paediatric orthopaedics. She has been working with contracture disorders for over 30 years, as the primary physical therapist in the hospital’s Arthrogryposis Program, Osteogenesis Imperfecta Program and Clubfoot Program. Dr. Donohoe authored the chapters on arthrogryposis and osteogenesis imperfecta in all six editions of Physical Therapy for Children, authored “Therapy, Orthotics and Assistive Devices for Osteogenesis Imperfecta” in Osteogenesis Imperfecta: A Case-Based Guide to Surgical Decision-Making and Care, “Ambulatory Assistive Devices for Children and Youth with Cerebral Palsy and Activities of Daily Living Supports for Persons with Cerebral Palsy” in Cerebral Palsy (2nd edition), the Relapsed Clubfoot in Paediatric Clinical Case Studies, as well as “Sports and Recreation” in Children with Osteogenesis Imperfecta: Strategies to Enhance Performance. She has been involved in over ten research studies related to physical ability for individuals with arthrogryposis and clubfeet. She has lectured nationally and internationally on these topics.

 ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-Meet-The-Team-Dr-Sara-Lemin.jpg) 

## Dr. Sara Lemin

### Medical Advisor

Dr. Sara Lemin is a board-certified Obstetrician Gynecologist practicing full-time in Canton, Ohio. She has served as the chairman of the Department of OB/GYN at Cleveland Clinic Mercy Hospital and is currently an Assistant Program Director of the OB/GYN residency program at Aultman Hospital/NEOMED. In addition to her private practice, Dr Lemin has a particular interest in the prenatal detection of arthrogryposis and raising awareness among pregnancy care providers in order to help more families prepare for the birth of their child with AMC. Dr Lemin and her husband Ian have seven children, including two boys with AMC, blessing them with a unique position at the intersection of AMC and pregnancy care. Together they founded the non-profit Take TIME For AMC, an organization dedicated to research and promotion of the prenatal detection of arthrogryposis. Dr Lemin is honored to work alongside her distinguished colleagues on the Medical Advisory Board for AMCSI.

## AMCSI International Ambassador

 ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-Meet-The-Team-Misha-Dreamwalker.jpg) 

## Misha "Dream" Walker

### International Ambassador

Misha “Dream” Walker from Arequipa, Peru, was born with Arthrogryposis. Now living in Lima, Peru, Misha works as an insurance broker and as an Inspirational speaker/blogger as part of her “Dream Walker” project. Misha devotes her life to helping others in need of guidance, and raising awareness for AMC globally and by using her life experiences to inspire people to seize the opportunities offered to them. Misha is an advocate for people with disabilities, motivating them to alter their view of the world around them and how to interact with it, and embrace their lives to the fullest, whilst also pushing to reshape the world´s view of what it means to be disabled.

On her free time, Misha likes to go the beach with her husband, spend time with friends and paint, she also loves music and fast cars.

## AMCSI Junior Ambassador

 ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-Meet-The-Team-Keira.jpg) 

# Keira Roko

Junior Ambassador

 ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-Meet-The-Team-Yardirel-Gonzalez-Siebens.jpg) 

# Yadriel Gonzalez-Siebenns

Junior Ambassador

 ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-Meet-The-Team-Rosa.jpg) 

# Rosa Vaughan

Junior Ambassador

**Categories:** Arthrogryposis, Meet The Team

**Tags:** AMCSI, Arthrogryposis, Meet The Team

---

### [The Long Road To AMC Awareness 2026](https://amcsupport.org/the-long-road-to-amc-awareness-2026/)

**Published:** April 3, 2026
**Author:** Ted Houser

**Excerpt:** USA here we come! 🇺🇸 Is with a heart full of love and hope that we are thrilled to announce we will back at raising Arthrogryposis awareness in the US, where it all began but never ends. As many families keep reaching out to be part of this beautiful journey! 
Oh!! Where we’ll begin?!?
Where ever will will finish?!?
Actually, those are already decided, but we really need your help with the rest. 
This years ‘The Long Road to AMC Awareness’ trip is coming back to the USA, and we need your help deciding our route.  Our preliminary route takes us all across the eastern states.
Would you like to join us and be part of our long road to the @amcsupport conference this year? If you are from one of the states announced and would like to take part please comment below where are you located and we will try our best to make it to you.
Our hearts are happy! The old lady rides again, black asphalt, blue hands, huge hugs and the best community to visit. Can’t wait for June 💙
#TheLongRoadToAMCAwareness
To learn more about AMC please visit: @amcsupport AMCSUPPORT.org

**Content:**

# The Long Road To AMC Awareness Europe/UK! 

 ![The Dream Walker Project - The Long Road To AMC Awareness Europe EUROPE… HERE WE COME!💙 This September and October, The Long Road to AMC Awareness is crossing the Atlantic once again. We’ll be driving through the UK, Spain, and Italy, visiting AMC families, sharing stories, learning from one another, and reminding every family we meet that they are never alone. And this is only the beginning. We’re also working on attending community meet ups in additional European countries, and we can’t wait to share those details with you as the plans come together. If you’re an AMC family in Europe and would like a visit from us, we’d love to hear from you. Every visit, every conversation, and every new connection helps make our community a little closer and a little stronger. See you on the road? 💙 TogetherWeAreStronger #TheDreamWalkerProject #TheLongRoadToAMCAwareness #AMCAwareness #Arthrogryposis #ArthrogryposisAwareness](https://amcsupport.org/wp-content/uploads/2026/08/MM26-Euro-trip-2-1080.jpg) 

 ![The Dream Walker Project - The Long Road To AMC Awareness Europe EUROPE… HERE WE COME!💙 This September and October, The Long Road to AMC Awareness is crossing the Atlantic once again. We’ll be driving through the UK, Spain, and Italy, visiting AMC families, sharing stories, learning from one another, and reminding every family we meet that they are never alone. And this is only the beginning. We’re also working on attending community meet ups in additional European countries, and we can’t wait to share those details with you as the plans come together. If you’re an AMC family in Europe and would like a visit from us, we’d love to hear from you. Every visit, every conversation, and every new connection helps make our community a little closer and a little stronger. See you on the road? 💙 TogetherWeAreStronger #TheDreamWalkerProject #TheLongRoadToAMCAwareness #AMCAwareness #Arthrogryposis #ArthrogryposisAwareness](https://amcsupport.org/wp-content/uploads/2026/08/Misha-Mike-Europe-announcement-2-1080.jpg) 

# EUROPE… HERE WE COME!💙

This September and October, The Long Road to AMC Awareness is crossing the Atlantic once again.

We’ll be driving through the UK, Spain, and Italy, visiting AMC families, sharing stories, learning from one another, and reminding every family we meet that they are never alone.

And this is only the beginning….

We’re also working on attending community meet ups in additional European countries, and we can’t wait to share those details with you as the plans come together.

If you’re an AMC family in Europe and would like a visit from us, we’d love to hear from you. Every visit, every conversation, and every new connection helps make our community a little closer and a little stronger.

## See you on the road? 💙

### Together We Are Stronger

\#TheDreamWalkerProject #TheLongRoadToAMCAwareness 
\#AMCAwareness #Arthrogryposis #ArthrogryposisAwareness

# The Long Road To AMC Awareness USA! 

 ![](https://amcsupport.org/wp-content/uploads/2026/04/629094812_18070878320540412_7443784053723346720_n.jpg) 

 ![](https://amcsupport.org/wp-content/uploads/2026/04/The-Long-Road-To-AMC-Awareness-Dates_Locations.jpg) 

# USA here we come! 

It is with a heart full of love and hope that we are thrilled to announce we will back at raising Arthrogryposis awareness in the US, where it all began but never ends. As many families keep reaching out to be part of this beautiful journey!

**Oh!! Where we’ll begin?!?**

**Where ever will will finish?!?**

Actually, those are already decided, but we really need your help with the rest.

This years ‘The Long Road to AMC Awareness’ trip is coming back to the USA, and we need your help deciding our route. Our preliminary route takes us all across the eastern states.

Would you like to join us and be part of our long road to the @amcsupport conference this year? If you are from one of the states announced and would like to take part please comment below where are you located and we will try our best to make it to you.

Our hearts are happy! The old lady rides again, black asphalt, blue hands, huge hugs and the best community to visit. Can’t wait for June ![💙](https://static.xx.fbcdn.net/images/emoji.php/v9/tb/2/16/1f499.png)

[\#TheLongRoadToAMCAwareness](https://www.facebook.com/hashtag/thelongroadtoamcawareness?__eep__=6&__cft__[0]=AZbDIZvqgD9n_EBOuHKyTM6KPW7HUgQsvH3xP2CZDEehCjxM28GjANDOANRZWhk5pj1kaD7jBHPyU_LDVeGqQZu9vzivDBl8jbz52ZUstqPiKENdo765J2algZVncTE0Wc1m1h7yFarmQEouct9aR_PM&__tn__=*NK-R)

View last years travels of The Long Road To AMC Awareness by [clicking here](https://amcsupport.org/mishas-long-road-to-amc-awareness-2025/#misha25).

**Categories:** AMC Events

**Tags:** AMC Awareness, AMCSI, Misha and Mike, Misha’s Long Road To AMC Awareness, The Long Road To AMC Awareness 2026, Upcoming

---

### [Corporate Partners](https://amcsupport.org/corporate-partners/)

**Published:** July 28, 2026
**Author:** Ted Houser

**Content:**

# Corporate Partnerships

 ![Cover of the AMCSI Corporate Impact Partnership Packet featuring individuals and families affected by Arthrogryposis within large "AMCSI" letters, highlighting corporate sponsorship and partnership opportunities that support research, accessibility, education, advocacy, and family programs.](https://amcsupport.org/wp-content/uploads/2026/07/AMCSI-Corporate-Impact-Partnership-cover-web.jpg) 

## Corporate Impact Partnership Program

AMCSI partners with corporations, foundations, and organizations that are committed to supporting research, accessibility, education, advocacy, and family programs for the Arthrogryposis community.

Our Corporate Impact Partnership Program offers multiple levels of engagement, from annual sponsorships to fully customized partnerships that align with your organization’s philanthropic and corporate social responsibility objectives.

To save from scrolling and go directly to the sections, please click below:
[Partnership Opportunities](https://amcsupport.org/corporate-partners/#partnerships) | [Signature Program Sponsorships](https://amcsupport.org/corporate-partners/#signature) | [Measuring Your Investment](https://amcsupport.org/corporate-partners/#measuring) | [Download The Partnership Packet](https://amcsupport.org/corporate-partners/#download)

 [  Download the Corporate Impact Partnership Packet  ](https://amcsupport.org/amcsi-corporate-impact-partnership-packet/) 

 *“My favorite part of the conference was the teen session because that’s where I met a lot of my friends at the conference, and it was funny and cool to go to something where everyone had the same disability as me.”* 

 ~ Ryan 

 *"To all my AMC’ers… If you’ve never been, you should absolutely go!!!! I attended for the first time last year and it was incredibly insightful and extremely fun!!!!!"* 

 ~ Bong Delrosario 

 *“Attending the AMC Conference reminded me that I’m not alone. It was a powerful ‘been there, done that’ moment seeing so many people living full, independent lives gave me hope that I can and will live a long, successful, healthy life.”* 

 ~ Shameia R. 

### Partnership Opportunities

Our partnership program includes annual investment opportunities ranging from $5,000 to $250,000+, along with customized sponsorships that support specific programs and initiatives.

**Partnership levels include:**
• Legacy Partner
• Visionary Partner
• Champion Partner
• Leadership Partner
• Community Partner
• Supporting Partner

Each level provides recognition, engagement opportunities, and measurable impact reporting.

 [  Download the Corporate Impact Partnership Packet  ](https://amcsupport.org/amcsi-corporate-impact-partnership-packet/) 

 *“Our experience was wonderful, I grew up with arthrogryposis and I had never seen such a sense of community and support. I was very overwhelmed with emotions. It made me reflect a lot on growing up feeling like it was just me who was different. As well as reflecting on how many different obstacles a person can overcome, things some can see as impossible, someone else has adapted to. It was beautiful. We were lucky to join Kelly and Maria’s family during dinner. Kelly really made me feel welcomed and helped break my introverted personality 🙂 As a person who grew up with AMC and a mother of an AMCer , my favorite part of the conference was watching the kids and their fearless spirit. Their smiles filled my heart and eased my worries about Rayan ever feeling isolated when he grows up. We are hoping to join again next year in Ohio!”* 

 ~ Hend 

 *"This was my very first AMCSI Conference, which I was able to attend courtesy of a generous donor. When I joined one of the many sessions available to discuss a variety of topics, I felt like I had known many of these people my entire life despite never having met almost all of them. I found it very eye-opening to hear from other people with AMC from all walks of life about what their experiences were like, both similarly and different to myself. There is immense value in holding an event like this every year because there were so many times growing up where I felt like I was one of one. I'm very grateful to Ani and the rest of the AMCSI staff for ensuring a fantastic event that I will remember forever, and also hope to attend annually moving forward."* 

 ~ Kevin S. 

 *"Growing up, I never met anyone with AMC in person. This organization allowed me to accomplish meeting others my age, similar type of AMC and more! As a first-time attendee, I had an incredible time connecting with people who share similar lived experiences. Whether it was contributing to the research, Meeting Valerie Pepe for the first time, leading an impromptu jam session to share my love of music, or simply enjoying drinks and laughter with some amazing individuals — I felt truly seen, supported, and uplifted. It was a deeply validating and heartwarming experience."* 

 ~ Julie M. 

### Signature Program Sponsorships

**Organizations may also choose to support a specific initiative, including:**
• International Ambassador Program
• Family Travel Scholarship Fund
• Medical Education Program
• Parent Mentor Program
• Accessibility & Inclusion Initiative
• Advocacy & Awareness Campaign
• Annual Educational Conference

Additional conference sponsorships and customized opportunities are also available.

 [  Download the Corporate Impact Partnership Packet  ](https://amcsupport.org/amcsi-corporate-impact-partnership-packet/) 

 *“Attending the Arthrogryposis Conference for the very first time was an unforgettable experience for our family, made possible through the generosity of the scholarship program. Walking into a space filled with so many beautiful young adults with arthrogryposis, living confidently, being themselves, and having fun, was incredibly powerful for me as a mom. It gave me hope and reminded me that my son has such a bright future ahead of him. One of the most meaningful parts for me personally was connecting with other mothers who truly understand the joys and challenges of this journey. Having those conversations, sharing stories, and feeling that instant sense of community was deeply comforting and inspiring. For my son, the highlight was making new friends—friends who share his experiences and with whom he immediately felt a special connection. Seeing his smile as he laughed and played with them is something I’ll never forget. For my husband, one of the moments that stood out was meeting Teresa, an extraordinary person who paints beautiful artwork using her mouth. Her creativity and determination left a lasting impression on him and reminded us of the strength and possibilities within this community. We returned home from the conference with full hearts, new friendships, and a sense of belonging that we didn’t even realize we were missing. We are so grateful to have been given this opportunity and will carry the inspiration, hope, and connections we found with us forever.”* 

 ~ Veronica P. 

 *"Norē LOVED PROM NIGHT! They played his jam and he immediately wanted to come out if his chair to break dance on the floor 🤣 Seeing everybody cheer him on and him grabbing the mic to get everybody to sing AMC-123 instead of ABC 123 like the song goes melted my Mama heart. The daily sessions during the conference filled me with so much information I never could've imagined. I thoroughly enjoyed sitting in on the doctors, therapists, and every speaker whose sessions we attended. The small groups/talks were special to me in so many ways. This trip, we named "The Sonshine Voyage," was our very first solo adventure together, just me and my SONshine! And tho no one could see it, it was empowering in every possible way. I connected with other moms walking similar paths, and found comfort, strength, & inspiration in those conversations. Watching Norien flourish in a space built just for him filled my heart more than words can ever say. We're so grateful to Ani, to the AMCSI crew, the Dust Family(who generously donated), our family who helped us make it happen, and to the entire AMC community for welcoming us with such warmth. This wasn’t just a trip. It was a beginning, a light-filled reminder that we are never alone, and that beautiful things bloom when we least expect them. 👣💙✨️"* 

  ~ Tess *(Nore's Mom)* 

 *“I have always wanted to attend the annual conference. This year I thought was a good year because Ryan (my AMCer) turned 18, and we are trying to figure out what is next for him. Ryan also had never met another person with Arthrogryposis, so it would also be a good opportunity to see what life looks like with other people who share his disability. I can only say that it was the best 5 days in a long time. We felt so accepted and able to ask questions and talk openly about day-to-day life and strategies/struggles. The sessions I attended all gave me takeaways. They gave me some information that I hadn’t heard before, as well as ideas for the future, including getting more information about repeating some surgeries Ryan had as a baby. I think this time with friends that share Ryan’s disability gave him a whole new outlook on being independent and figuring out his way. We are already talking about attending next year and figuring out plans for how we can raise funds for AMCSI. We want the conference to continue for years to come.”* 

 ~ Mikki *(Ryan’s Mom)* 

### Measuring Your Investment

**Corporate partners receive annual reporting demonstrating the impact of their investment, including metrics such as:**
• Families Served
• Scholarships Awarded
• Healthcare Professionals Educated
• Research Collaborations
• Countries Represented
• Educational Resources Distributed
• Digital Outreach And Engagement

### [See Our Full Impact](https://amcsupport.org/see-our-impact/)

### Download the Partnership Packet

**The Corporate Impact Partnership Packet includes:**
• Partnership Levels And Benefits
• Signature Program Sponsorships
• Conference Sponsorship Opportunities
• Recognition Opportunities
• Custom Partnership Options

 [  Download the Corporate Impact Partnership Packet  ](https://amcsupport.org/amcsi-corporate-impact-partnership-packet/)

**Categories:** Corporate Partners

**Tags:** AMCSI, Arthrogryposis, Corporate Partners

---

### [253 For AMC](https://amcsupport.org/253foramc/)

**Published:** August 21, 2026
**Author:** Ted Houser

**Content:**

### Celebrating 5-Years of 253 For AMC

 [ ](https://amcsupport.org/wp-content/uploads/2026/08/2022-253-FOR-AMC.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/08/2023-253-FOR-AMC.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/08/2024-253-FOR-AMC.jpg) [ ](https://amcsupport.org/wp-content/uploads/2026/08/2025-253-FOR-AMC.jpg) 

 ![](https://amcsupport.org/wp-content/uploads/2024/09/Marshall-2024-SharynPeaveyPhoto-S83_8299-1024x683.jpg) 

### 253 for AMC

Marshall Johnson was born with a rare condition called Arthrogryposis Mutiplex Congenita (AMC). Sport and movement have always been Marshall’s therapy: physically, mentally, spiritually. In 2022 he cycled 253 miles from Burlington, Vermont to Portland, ME, creating awareness and raising funds along the way. Now an annual bike ride and fundraiser, “253 for AMC” recognizes our differences … and celebrates them!

Every dollar raised goes to AMCSI, a 501 (c)(3) serving as one of the leading centers of support globally for those impacted by Arthrogryposis. On behalf of the entire organization, we thank you for your interest and generosity – your support makes [**our work**](https://amcsupport.org/) possible.

Photograph courtesy of

 [ ![Sharyn Peavey Photography](https://amcsupport.org/wp-content/uploads/2024/04/2019_SharynPeavey_LogoF_black_900.png) ](https://www.sharynpeavey.com/) 

# Mountain Biking to 253

## We’re gearing up for the Fourth Annual 253 for AMC Fundraiser & Awareness Campaign & this year, we’re hitting the trails on mountain bikes!

Whether you love riding bikes or just want to be part of the good vibes, there will be exciting ways for both riders and non-riders to get involved.

### Mark your calendars! 
Dates are set for September 19-20, 2026 for the Maine ride.

Our goal = 53 miles of mountain biking in Carrabassett Valley over 2 days**.**

Call/Message Marshall (207-653-0222) for meeting spots & ways to help.

### 2-days & 53 miles to benefit AMCSI – 2025

 [ ](https://amcsupport.org/wp-content/uploads/2025/10/253-For-AMC-2025-4.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/10/253-For-AMC-2025-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/10/253-For-AMC-2025-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/10/253-For-AMC-2025-5.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/10/253-For-AMC-2025-3.jpg) 

Be sure to watch Marshall’s video message from Day 3 of the 2025 ride, filmed on the trails in Carrabassett Valley, Maine, where he shares his gratitude for everyone who helped make this possible.

### TO DONATE USE THE FORM BELOW!

To credit a Team Member simply select them below.

**Categories:** 253 For AMC, AMC Events

**Tags:** 253 For AMC, AMC Events, AMCSI Fundraising, Biking, Fundraiser, Maine, Mountain, Mountain Bibking, Sugarloaf, Sugarloaf Mountain, Upcoming

---

### [22nd Annual AMCSI Conference Sponsorship](https://amcsupport.org/22nd-annual-amcsi-conference-sponsorship/)

**Published:** July 21, 2026
**Author:** Ted Houser

**Content:**

# Support The Mission By Becoming A Sponsor

The Annual Arthrogryposis Multiplex Congenita Support, Inc. Conference provides an opportunity for people affected by arthrogryposis multiplex congenita (AMC) to gather & exchange ideas and support. During this annual 3-day event, over 600 family members & medical professionals learn from each other on “best practices” in the treatment of & living with AMC. Please join us as a conference sponsor!

To learn how to help, please scroll below, to go directly to the conference sponsorship options, please **[click here.](https://amcsupport.org/22nd-annual-amcsi-conference-sponsorship/#options)**

##### [Click to view & read about past conference experiences!](https://amcsupport.org/conference-testimonials-22nd/)

## Stronger support starts with one connection 💙

### Help us expand the reach of the AMCSI Annual Conference by introducing us to your company’s giving or sponsorship programs.

**Help Us Reach More Sponsors in 2 Minutes 💙**
1\. Copy one of the messages below *(A, B, or C)*
2\. Send it to your HR, manager, or CSR team
3\. That’s it, you just helped support AMCSI’s mission *(it’s as easy as 1, 2, 3)*

### Copy, Paste & Send

*(**OR** click on the **“Ready To Option A, B, or C”** buttons at the bottom of each example to launch your email program with the email subject line and body copy already set, simply add the senders email address)*

**Option A: Super Short *(fast action)***

Hi,

Does our company offer nonprofit sponsorships or community partnerships?

I’m connected with AMCSI, which hosts an annual conference supporting individuals and families with AMC. I wanted to see if this is something we could support.

 [  Ready To Send Option A  ](mailto:?subject=2-minute%20ask%20that%20could%20make%20an%20impact&body=Hi,%20%0D%0A%20%20%0D%0A%20Does%20our%20company%20offer%20nonprofit%20sponsorships%20or%20community%20partnerships?%0D%0A%20%20%0D%0AI’m%20connected%20with%20AMCSI,%20which%20hosts%20an%20annual%20conference%20supporting%20individuals%20and%20families%20with%20AMC.%20I%20wanted%20to%20see%20if%20this%20is%20something%20we%20could%20support.%0D%0A%20%20%0D%0Ahttps://amcsupport.org/21st-annual-amcsi-conference/) 

**Option B: Standard *(balanced)***

Hi,

I wanted to ask if our company participates in nonprofit sponsorships or community partnerships.

I’m connected with AMCSI (Arthrogryposis Multiplex Congenita Support, Inc.), which hosts an annual conference supporting individuals and families affected by AMC.

I thought this might align with our community impact efforts. Here’s more information:

Thanks for taking a look!

 [  Ready To Send Option B  ](mailto:?subject=Potential%20sponsorship%20opportunity%20to%20explore&body=Hi,%20%0D%0A%20%20%0D%0A%20I%20wanted%20to%20ask%20if%20our%20company%20participates%20in%20nonprofit%20sponsorships%20or%20community%20partnerships.%0D%0A%20%20%0D%0AI’m%20connected%20with%20AMCSI%20(Arthrogryposis%20Multiplex%20Congenita%20Support,%20Inc.),%20which%20hosts%20an%20annual%20conference%20supporting%20individuals%20and%20families%20affected%20by%20AMC.%0D%0A%20%20%0D%0AI%20thought%20this%20might%20align%20with%20our%20community%20impact%20efforts.%20Here’s%20more%20information:%20https://amcsupport.org/21st-annual-amcsi-conference/%0D%0A%20%20%0D%0AThanks%20for%20taking%20a%20look!) 

**Option C: More Formal *(corporate-friendly)***

Hello,

I’m reaching out to inquire about potential nonprofit sponsorship or partnership opportunities within our organization.

I’m connected with AMCSI (Arthrogryposis Multiplex Congenita Support, Inc.), a nonprofit that hosts an annual conference providing resources and support for individuals and families affected by AMC.

I believe this may align with our company’s CSR or community engagement initiatives.

Additional details can be found here:

Thank you for your consideration.

 [  Ready To Send Option C  ](mailto:?subject=CSR%20Opportunity:%20AMCSI%20Annual%20Conference&body=Hello,%20%0D%0A%20%20%0D%0A%20I’m%20reaching%20out%20to%20inquire%20about%20potential%20nonprofit%20sponsorship%20or%20partnership%20opportunities%20within%20our%20organization.%0D%0A%20%20%0D%0AI’m%20connected%20with%20AMCSI%20(Arthrogryposis%20Multiplex%20Congenita%20Support,%20Inc.),%20a%20nonprofit%20that%20hosts%20an%20annual%20conference%20providing%20resources%20and%20support%20for%20individuals%20and%20families%20affected%20by%20AMC.%0D%0A%20%20%0D%0AI%20believe%20this%20may%20align%20with%20our%20company’s%20CSR%20or%20community%20engagement%20initiatives.%0D%0A%20%20%0D%0AAdditional%20details%20can%20be%20found%20here:%20https://amcsupport.org/21st-annual-amcsi-conference/%0D%0A%20%20%0D%0AThank%20you%20for%20your%20consideration.) 

# SPONSORSHIP OPTIONS

There can be more than one of each sponsorship level. To view the information, please click below to view each level’s options.

    PRESENTING SPONSOR: $50,000 

     ##### AMCSI’s Presenting Sponsorship option is one of the highest levels of Sponsorship offered. This affords Sponsor named media and advertising partnership status across the board as the Legacy Sponsor of the AMCSI Conference.

**Media**
• First option on all incoming media, handled by the AMCSI media
• Dedicated email-announcing Sponsorship. Inclusion on all subsequent emails

**Logo Exposure**
• All logo use will be approximately 25% larger than any other Sponsor
• All advertising *(Print, Outdoor, Online – seen by up to (21.4k+ followers), across our social media accounts)*
• All pages of amcsupport.org
• Official Show Program

**Online Exposure**
• Logo inclusion on header image or video
• Permanent large header logo banner on All-Conference webpages amcsupport.org *(Run of the site)*
• Featured Conference speaker posts on amcsupport.org
• All email marketing campaigns
• Inclusion on all facets of the @amcsupport social network *(21.4k+ followers)*, including all header and profile images

**Onsite Exposure**
• Exhibitor Registration Sponsor-branded. All production costs are the responsibility of AMCSI.
• Check-In/T-shirt pickup counter Sponsor-branded. All production costs are the responsibility of AMCSI.
• Bold exhibitor listing within the Official Conference Program
• Seen by up to 600 AMC Families
Conference Program Exposure
• Cover of the Official Show Program
• 2-page premium spread *(artwork to be provided by sponsor in JPEG format at 300 dpi)*
***(must be supplied by 5/28/2027)***
• Seen by up to 600 AMC Families

**Other Notes**
• First right of refusal to all future events

     PLATINUM SPONSORSHIP: $25,000 

     • Your company’s logo on the https://amcsupport.org sponsor page, with a direct link to your website for one year 
• Full-page Ad in the Conference program *(Seen by up to 600 AMC Families) (artwork to be provided by sponsor in JPEG format at 300 dpi)*
***(must be supplied by 5/28/2027)***
• Social media Sponsor post *(up to (21.4k+ followers)* across our social media)
• Logo placed on the bottom of Conference webpages
• AMCSI Gift Basket with a ribbon pin, ribbon magnet, and two silicone bracelets *($30 retail value)* 
• Customized slide-in looping slideshow presentation.

     GOLD SPONSORSHIP: $15,000 

     • Your company’s logo on the https://amcsupport.org sponsor page with a direct link to your website for one year 
• Full-page Ad in the Conference program *(Seen by up to 600 AMC Families) (artwork to be provided by sponsor in JPEG format at 300 DPI)*
***(must be supplied by 5/28/2027)***
• Social media Sponsor post *(up to (21.4k+ followers)* across our social media)
• Logo placed on the bottom of Conference webpages
• AMCSI ribbon pin (retail value $24) 
• Customized slide-in looping slideshow presentation

     SILVER SPONSORSHIP: $10,000 

     • Customized slide-in looping slideshow presentation 
• Full-page Ad in the Conference program *(Seen by up to 600 AMC Families) (artwork to be provided by sponsor in JPEG format at 300 DPI)*
***(must be supplied by 5/28/2027)***
• Logo placed on the bottom of Conference webpages

     DINNER SPONSORSHIP: $10,000 

     • Customized slide-in looping slideshow presentation 
• Full-page Ad in the Conference program *(Seen by up to 600 AMC Families) (artwork to be provided by sponsor in JPEG format at 300 DPI)*
***(must be supplied by 5/28/2027)***
• Logo placed on the bottom of Conference webpages

     T-SHIRT SPONSORSHIP: $8,000 

     • Your company’s logo on the back of the conference t-shirt (Seen all across the country after the event)
• Your company’s logo on the https://amcsupport.org sponsor page, with a direct link to your website for one year 
• Full-page Ad in the Conference program *(Seen by up to 600 AMC Families) (artwork to be provided by sponsor in JPEG format at 300 DPI)*
***(must be supplied by 5/28/2027)***
• Social media Sponsor post *(up to (21.4k+ followers) across our social media)*
• Logo placed on the bottom of Conference webpages
• AMCSI Gift Basket with a ribbon pin, ribbon magnet, and two silicone bracelets *($30 retail value)* 
• Customized slide-in looping slideshow presentation.

     BRONZE SPONSORSHIP: $5,000 

     • Name/Company listed on a Bronze Donor Slide in a looping slide show presentation 
• Logo placed on the bottom of Conference webpages
• Full-page Ad in the Conference program *(Seen by up to 600 AMC Families) (artwork to be provided by sponsor in JPEG format at 300 DPI)*
***(must be supplied by 5/28/2027)***
• Logo listed in the conference program

     ADAPTIVE SPORTS SPONSORSHIP: $5,000 

     • Your company’s logo onthe https://amcsupport.org sponsor page, with a direct link to your website for one year 
• Full-page Ad in the Conference program *(Seen by up to 600 AMC Families) (artwork to be provided by sponsor in JPEG format at 300 DPI)*
***(must be supplied by 5/28/2027)***
• Social media Sponsor post (up to *(21.4k+ followers)* across our social media
• Logo placed on the bottom of Conference webpages
• AMCSI Gift Basket with a ribbon pin, ribbon magnet, and two silicone bracelets *($30 retail value)* 
• Customized slide-in looping slideshow presentation.

     MOVING TRUCK SPONSORSHIP: $1,200 

     • This sponsorship will cover our conference moving expenses, which include all of our setup items and AMCSI Shop.
• Half-page Ad in the Conference program *(Seen by up to 600 AMC Families)*
*(artwork to be provided by sponsor in JPEG format at 300 dpi)*
***(must be supplied by 5/28/2027)***
• Logo placed on the bottom of Conference webpages

     PATRON SPONSORSHIP: $300 

     • Listed on a shared Patron Donor Slide in a looping slide show presentation • Name listed as Patron in the conference program

### Additional Partnership Opportunities

Beyond our Spornsorhip Program, organizations may choose to align their support with specific initiatives that reflect their philanthropic priorities, community engagement goals, or areas of strategic interest.

• Welcome Reception
• AMCSI Conference Scholarship
• Children’s Programming
• Teen & Young Adult Program
• AMC Research
• Education Packets
• Annual Conference Prom

• Annual Conference Wi-Fi
• Annual Conference Lanyards
• Accessibility Services
• Live Streaming During 
Annual Conference
• Registration Experience
• Family Resource Center

##### [Click here to download a PDF file of the Conference Exhibitor Sales Kit](https://amcsupport.org/amcsi-22nd-annual_amcsi-conference-sales-kit/)

*(Note: you can open the PDF on a computer and type in your information & email it to us at: *

##### Reach out if you have any questions by emailing us at [info@amcsupport.org]()

If you are ready to signup, please use the form below. Once you hit Submit you will be sent to a payment page to pay for your sponsorship level online.

#### The Sponsorship Submission Form

       Name   

  Email   

  Address   

  Address 2   

  City   

  State   

  Zip   

  Cell Phone   

  Phone   

  Contact Name   

  Email   

  Please provide a website link (if applicable)   

  Please provide social media links (if applicable)   

  PLEASE CHECK THE LEVEL OF SPONSORSHIP:  PRESENTING SPONSOR: $50,000 PLATINUM SPONSORSHIP: $25,000 GOLD SPONSORSHIP: $15,000 SILVER SPONSORSHIP: $10,000 DINNER SPONSORSHIP: $10,000 T-SHIRT SPONSORSHIP: $8,000 BRONZE SPONSORSHIP: $5,000 ADAPTIVE SPORTS SPONSORSHIP: $5,000 MOVING TRUCK SPONSORSHIP: $1,200 PATRON SPONSORSHIP: $300

  Please upload a logo, preferably as a true vector (EPS) file or a high-resolution file with a transparent background.   

If you have any questions please email ted@amcsupport.org

   Submit

**Categories:** 22nd Annual AMCSI Conference, AMC Events

**Tags:** 22nd Annual AMCSI Conference Sponsorship, AMCSI, Annual, Conference, Sponsorship

---

### [Join Our Newsletter](https://amcsupport.org/join-our-newsletter/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

# Join Our Newsletter

**Sign up today & stay in the know for all things AMCSI, AMC Community and medical news!** *(Allow 5-10 days before you begin receiving emails and check your spam or junk folders.)*

### [**Click here to fillout our Join Our Newsletter Form**](https://amcsupport.org/join-our-newsletter/#join)

 [ ![AMCSI August Newsletter cover featuring Lilith Rodriguez](https://amcsupport.org/wp-content/uploads/2026/08/AMCSI26_August_Newsletter-cover-1.jpg) ](https://amcsupport.org/wp-content/uploads/2026/08/AMCSI26_August_Newsletter-cover-1.jpg) 

**AMCSI Newsletter** August 2026

 [ ![AMCSI 2026 July Newsletter cover](https://amcsupport.org/wp-content/uploads/2026/07/AMCSI26_July_Newsletter-cover-scaled.jpg) ](https://amcsupport.org/wp-content/uploads/2026/07/AMCSI26_July_Newsletter-cover-scaled.jpg) 

**AMCSI Newsletter** July 2026

 [ ![Explore the June 2026 AMCSI Newsletter featuring the story behind AMC Awareness Day, conference updates for the 21st Annual AMCSI Conference, AMC education resources, new parent information, monthly giving opportunities, member benefits, professional guest speakers, exhibitor highlights, advocacy initiatives, and the latest news from the Arthrogryposis Multiplex Congenita community. Stay connected with AMCSI programs, events, resources, and ways to support individuals and families affected by AMC.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI26_June_Newsletter-cover-index.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI26_June_Newsletter-cover-index.jpg) 

**AMCSI Newsletter** June 2026

 [ ![Cover image for the May 2026 AMCSI newsletter featuring Michael O’Hearn standing in a red, white, and blue Team USA Paralympic winter uniform. He is wearing a large red Ralph Lauren Team USA jacket, white snow pants, winter boots, and a Team USA knit hat, smiling in front of a snowy winter sports backdrop with a ski lift. The AMCSI logo appears prominently at the top left with the full organization name, Arthrogryposis Multiplex Congenita Support, Inc. The cover highlights newsletter sections including conference updates, AMC learning resources, new parent information, monthly giving, exhibitors, sponsors, and community news. A promotional graphic in the lower right advertises the 21st Annual AMCSI Conference in Columbus, Ohio, July 1–4, 2026.](https://amcsupport.org/wp-content/uploads/2026/05/AMCSI26_May_Newsletter-cover.jpg) ](https://amcsupport.org/wp-content/uploads/2026/05/AMCSI26_May_Newsletter-cover.jpg) 

**AMCSI Newsletter** May 2026

 [ ![AMCSI April newsletter featuring community updates, AMC resources, new parent information, monthly giving opportunities, and highlights from the 21st Annual AMCSI Conference in Columbus, Ohio. Stay connected with the AMC community through education, support programs, fundraising updates, and featured stories.](https://amcsupport.org/wp-content/uploads/2026/04/AMCSI26_April_Newsletter-cover-index.jpg) ](https://amcsupport.org/wp-content/uploads/2026/04/AMCSI26_April_Newsletter-cover-index.jpg) 

**AMCSI Newsletter** April 2026

 [ ![https://amcsupport.org/amcsi26_march_newsletter/ Featuring
Luca ‘Lazylegz’ Patuelli & Ill Abilities (pgs. 4-6) OUR VISION • Website Highlight - Ways To Give • Adult Zoom Every Saturday • Become A Member (pg. 2) AMCSUPPORT.ORG WEBSITE DIRECTORY (pg. 3) ALL ABOUT AMC: LEARNING TOGETHER! (pg. 7) ARTHROGRYPOSIS NEW PARENT INFORMATION PACKET (pg. 8) MONTHLY GIVING (pg. 9) ARE YOU A MEMBER? (pg. 10) GENERAL REGISTRATION (pg. 11) 21st ANNUAL AMCSI CONFERENCE • General Registration Is Open & Bee A Star - Prom • Conference Keynote Speaker Todd Craighead • Professional Guest Speakers • New Conference AMCer Exhibitor Whitney RMZ Creations • New Company Exhibitor Partners In Medicine • New Conference AMCer Exhibitor Project Lightning Bug • Jam With Julie & FAQs Info • Amazon Wishlist • Thank You To Our Sponsors • Become A Sponsor • Become An Exhibitor • Advertise In The Program (pg. 12-17) OTHER AMC/AMCSI NEWS • Zoom Monthly Preteen, Teen & Young Adult Hangouts • 14-year-old Lucy Rate wants the world to know wheelchair sports are ‘not easy sports’ • David Segal: Redefining What’s Possible Behind the Kit • CAAMC - Cincinnati Adaptive Arts & Music Camp • AMCSI Grant Spotlight • AMCSI Store (pgs. 18-23)](https://amcsupport.org/wp-content/uploads/2026/03/AMCSI26_March_Newsletter-cover-index.jpg) ](https://amcsupport.org/wp-content/uploads/2026/03/AMCSI26_March_Newsletter-cover-index.jpg) 

**AMCSI Newsletter** March 2026

 [ ![AMCSI | February Newsletter](https://amcsupport.org/wp-content/uploads/2026/02/AMCSI26_February_Newsletter-cover-index.jpg) ](https://amcsupport.org/wp-content/uploads/2026/02/AMCSI26_February_Newsletter-cover-index.jpg) 

**AMCSI Newsletter** February 2026

 [ ![Welcome to our January Newsletter. This issue opens the new year by highlighting the voices, resources, and opportunities that continue to strengthen the AMC community. Inside, you will meet Featured AMCER Althea Holmes, explore our vision for the year ahead, and find helpful tools such as the AMCSupport.org website directory, learning resources, and our new parent information packet. We also share updates on monthly giving, membership, early-bird conference registration, and detailed information about the 21st Annual AMCSI Conference, including speakers, exhibitors, and sponsorship opportunities. The newsletter concludes with community news, research updates, upcoming events, grants, and ways to stay connected and involved throughout the year.](https://amcsupport.org/wp-content/uploads/2026/01/AMCSI26_January_Newsletter-cover-index.jpg) ](https://amcsupport.org/wp-content/uploads/2026/01/AMCSI26_January_Newsletter-cover-index.jpg) 

**AMCSI Newsletter** January 2026

    2025 Newsletter Covers 

      [ ![Featured AMCER | Doug Moreau (pgs. 5-7) Jalon Walker, LB for the Atlanta Falcons, supported AMCSI for his cousin Edwin & Doug was there to meet him! (pg. 8) OUR VISION (pg. 2) • Letter From Alexis | President • Adult Zoom Every Saturday • Become A Member AMCSUPPORT.ORG WEBSITE DIRECTORY (pg. 3) GIVING TUESDAY – Dec. 2, 2025 (pg. 4) AMCSI HALLOWEEN COSTUME CONTEST WINNER! (pg. 9) AMC HOLIDAY FUND (pg. 10) ALL ABOUT AMC: LEARNING TOGETHER! (pg. 11) ARTHROGRYPOSIS NEW PARENT INFORMATION PACKET (pg. 12) MONTHLY GIVING (pg. 13) ARE YOU A MEMBER? (pg. 14) ‘26 & ‘27 CONFERENCE LOCATIONS & DATES (pg. 15) EARLY-BIRD REGISTRATION (pg. 16) • Professional Guest Speakers 21st ANNUAL AMCSI CONFERENCE (pg. 17) • New Conference AMCer Exhibitor Whitney - RMZ Creations • New Company Exhibitor Partners In Medicine GET INVOLVED IN CONFERENCE! (pg. 18) • Become A Sponsor • Become An Exhibitor • Advertise In The Program OTHER AMC/AMCSI NEWS (pgs. 19-22) • Zoom Monthly Preteen & Teen Hangouts • Research: Global Perspectives on Arthrogryposis 
 From The Womb To Adulthood • Mouth painter’s work printed on Christmas card • North Bay mouth and foot artist featured in national calendar • Man with Rare Condition Says There’s Never a Day He’s Alone Without Caregivers • AMCSI Grant Spotlight • AMCSI Store](https://amcsupport.org/wp-content/uploads/2025/11/AMCSI25_December_Newsletter-Cover-index.jpg) ](https://amcsupport.org/wp-content/uploads/2025/11/AMCSI25_December_Newsletter-Cover-index.jpg) 

**AMCSI Newsletter** December 2025

 [ ![AMCSI Newsletter | November 2025](https://amcsupport.org/wp-content/uploads/2025/11/AMCSI25_November_Newsletter-Cover.jpg) ](https://amcsupport.org/wp-content/uploads/2025/11/AMCSI25_November_Newsletter-Cover.jpg) 

**AMCSI Newsletter** November 2025

 [ ![AMCSI | Newsletter - October 2025](https://amcsupport.org/wp-content/uploads/2025/09/AMCSI25_October_Newsletter-cover.jpg) ](https://amcsupport.org/wp-content/uploads/2025/09/AMCSI25_October_Newsletter-cover.jpg) 

**AMCSI Newsletter** October 2025

 [ ![AMCSI25 September Newsletter cover](https://amcsupport.org/wp-content/uploads/2025/09/AMCSI25_September_Newsletter-Cover-index.jpg) ](https://amcsupport.org/wp-content/uploads/2025/09/AMCSI25_September_Newsletter-Cover-index.jpg) 

**AMCSI Newsletter** September 2025

 [ ![AMCSI25 August Newsletter cover photo shoot by Bob Wellmon Photography](https://amcsupport.org/wp-content/uploads/2025/08/AMCSI25_August_Newsletter-cover.jpg) ](https://amcsupport.org/wp-content/uploads/2025/08/AMCSI25_August_Newsletter-cover.jpg) 

**AMCSI Newsletter** August 2025

 [ ![AMCSI25 July Newsletter cover](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI25_July_Newsletter-cover.jpg) ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI25_July_Newsletter-cover.jpg) 

**AMCSI Newsletter** July 2025

 [ ![](https://amcsupport.org/wp-content/uploads/2025/05/AMCSI25_June_Newsletter-COVER.jpg) ](https://amcsupport.org/wp-content/uploads/2025/05/AMCSI25_June_Newsletter-COVER.jpg) 

**AMCSI Newsletter** June 2025

 [ ![AMCSI - Newsletter May 2025](https://amcsupport.org/wp-content/uploads/2025/05/AMCSI25_May_Newsletter-cover.jpg) ](https://amcsupport.org/wp-content/uploads/2025/05/AMCSI25_May_Newsletter-cover.jpg) 

**AMCSI Newsletter** May 2025

 [ ![April Newsletter cover](https://amcsupport.org/wp-content/uploads/2025/04/AMCSI25_Aoril_Newsletter-cover.jpg) ](https://amcsupport.org/wp-content/uploads/2025/04/AMCSI25_Aoril_Newsletter-cover.jpg) 

**AMCSI Newsletter** April 2025

 [ ![March Newsletter cover](https://amcsupport.org/wp-content/uploads/2025/02/AMCSI25_March_Newsletter-cover.jpg) ](https://amcsupport.org/wp-content/uploads/2025/02/AMCSI25_March_Newsletter-cover.jpg) 

**AMCSI Newsletter** March 2025

 [ ![February Newsletter cover](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_February_Newsletter-cover.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_February_Newsletter-cover.jpg) 

**AMCSI Newsletter** February 2025

 [ ![January Newsletter cover](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_January_Newsletter-cover.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_January_Newsletter-cover.jpg) 

**AMCSI Newsletter** January 2025

    2024 Newsletter Covers 

      [ ![AMCSI Newsletter – December Issue 2024](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_December_Newsletter-cover-web.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_December_Newsletter-cover-web.jpg) 

**AMCSI Newsletter** December 2024

 [ ![AMCSI November Newsletter](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_November_Newsletter-cover.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_November_Newsletter-cover.jpg) 

**AMCSI Newsletter** November 2024

 [ ![AMCSI October Newsletter](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_October_Newsletter-cover-web.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_October_Newsletter-cover-web.jpg) 

**AMCSI Newsletter** October 2024

 [ ![Arthrogryposis Multiplex Congenita Support, Inc. August/September Newrsletter cove](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_Aug-Sept_Newsletter-cover-web.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_Aug-Sept_Newsletter-cover-web.jpg) 

**AMCSI Newsletter** August/September 2024

 [ ![AMCSI24 July Newsletter Cover](https://amcsupport.org/wp-content/uploads/2024/07/AMCSI24_July_Newsletter-cover.jpg) ](https://amcsupport.org/wp-content/uploads/2024/07/AMCSI24_July_Newsletter-cover.jpg) 

**AMCSI Newsletter** July 2024

 [ ![AMCSI24 June Newsletter](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_June_Newsletter-cover-1.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_June_Newsletter-cover-1.jpg) 

**AMCSI Newsletter** June 2024

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_May_Newsletter-1.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_May_Newsletter-1.jpg) 

**AMCSI Newsletter** May 2024

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_April_Newsletter-cover.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_April_Newsletter-cover.jpg) 

**AMCSI Newsletter** April 2024

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_Mar_Newsletter-cover.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_Mar_Newsletter-cover.jpg) 

**AMCSI Newsletter** March 2024

 [ ![](https://amcsupport.org/wp-content/uploads/2024/03/AMCSI24_Feb-cover-700.jpg) ](https://amcsupport.org/wp-content/uploads/2024/03/AMCSI24_Feb-cover-700.jpg) 

**AMCSI Newsletter** Febraury 2024

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_Jan_Newsletter-900.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_Jan_Newsletter-900.jpg) 

**AMCSI Newsletter** January 2024

    2023 Newsletter Covers 

      [ ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_Dec_Newsletter-cover.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_Dec_Newsletter-cover.jpg) 

**AMCSI Newsletter**
December 2023

 [ ![AMCSI23_Oct_Newsletter-cover-small](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_Oct_Newsletter-cover-small.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_Oct_Newsletter-cover-small.jpg) 

**AMCSI Newsletter**
November 2023

 [ ![AMCSI23_Oct_Newsletter-cover_700](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_Oct_Newsletter-cover_700.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_Oct_Newsletter-cover_700.jpg) 

**AMCSI Newsletter**
October 2023

 [ ![AMCSI23_Sept_Newsletter-final_cover-900](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_Sept_Newsletter-final_cover-900.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_Sept_Newsletter-final_cover-900.jpg) 

**AMCSI Newsletter**
September 2023

 [ ![AMCSI23_August_Newsletter-cover-600](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_August_Newsletter-cover-600.png) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_August_Newsletter-cover-600.png) 

**AMCSI Newsletter**
August 2023

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_July_Newsletter-COVER-900.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_July_Newsletter-COVER-900.jpg) 

**AMCSI Newsletter**
July 2023

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_June_cover_900.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_June_cover_900.jpg) 

**AMCSI Newsletter**
June 2023

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_May_Newsletter-cover900pxH.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_May_Newsletter-cover900pxH.jpg) 

**AMCSI Newsletter**
May 2023

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_Newsletter-cover-web.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_Newsletter-cover-web.jpg) 

**AMCSI Newsletter**
March – April 2023

### Join Our Newsletter

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**Categories:** About Us, Arthrogryposis, Join Our Newsletter

**Tags:** About Us, AMC, AMC Support, Join Our Newsletter, Newsletter, Sign Up

---

### [AMC Websites - Get Featured](https://amcsupport.org/get-featured/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## Featured individuals living with Arthrogryposis

##### To become featured, please [**CLICK HERE**](https://amcsupport.org/amc-websites/#story) to fill out the form below.

 ![Lilith Rodriguez - AMCer Feature](https://amcsupport.org/wp-content/uploads/2026/08/Lilith-Rodriguez.jpg) 

**Lilith Rodriguez**

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCer-feature-June.jpg) ](https://www.facebook.com/mishadreamwalker) 

[**Misha & Mike**](https://www.facebook.com/mishadreamwalker)

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCer-feature-May.jpg) ](https://linktr.ee/mikeyohearn) 

[**Michael O’Hearn**](https://linktr.ee/mikeyohearn)

 ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCer-feature-April.jpg) 

**Evelyn-Gaddis**

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/ill-abilities-nyc-victory-theatre-luca-2-scaled.jpeg) ](https://www.illabilities.com) 

[**Luca ‘Lazylegz’ Patuelli & Ill Abilities**](https://www.illabilities.com)

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/9520f139-31ad-4b9e-8c43-b3bbe390a6ad.jpg) ](https://www.instagram.com/funkycoldmadinaa/) 

[**Madina Keita**](https://www.instagram.com/funkycoldmadinaa/)

 [ ![Althea Holmes](https://amcsupport.org/wp-content/uploads/2023/12/althea-holmes.jpg) ](https://www.instagram.com/ewknikleemee) 

[**Althea Holmes**](https://www.instagram.com/ewknikleemee)

 [ ![](https://amcsupport.org/wp-content/uploads/2025/11/3725978540663327197.jpg) ](https://amcsupport.org/wp-content/uploads/2025/11/3725978540663327197.jpg) 

**Doug Mareau**

 [ ![AMCSI November Newsletter cover feature Alyson Virgel](https://amcsupport.org/wp-content/uploads/2023/12/amc-websites-individuals-aly-virgel-2.jpg) ](https://www.instagram.com/alysonvirgel/) 

[**Alyson Virgel**](https://www.instagram.com/alysonvirgel/)

 [ ![Featured AMCer - Camille](https://amcsupport.org/wp-content/uploads/2025/10/amc-websites-individuals-camille.jpg) ](https://www.instagram.com/author_camille_mitchell) 

[**Camille Mitchell**](https://www.instagram.com/author_camille_mitchell)

 [ ![Featured AMCer - Danny](https://amcsupport.org/wp-content/uploads/2025/09/amc-websites-individuals-Danny.jpg) ](https://www.instagram.com/thatsdannygonzalez/) 

[**Daniel E. Gonzalez**](https://www.instagram.com/thatsdannygonzalez/)

 [ ![Featured AMCer - Marie](https://amcsupport.org/wp-content/uploads/2025/09/amc-websites-individuals-Marie.jpg) ](https://www.empoweredbyamc.org) 

[**Marie**](https://www.empoweredbyamc.org)

 [ ![Featured AMCer - Ewa](https://amcsupport.org/wp-content/uploads/2025/09/amc-websites-individuals-Ewa.jpg) ](https://www.instagram.com/ewa127/) 

[**Ewa Okla**](https://www.instagram.com/ewa127/)

 [ ![Featured AMCer - Brandon](https://amcsupport.org/wp-content/uploads/2025/09/amc-websites-individuals-Brandon.jpg) ](https://linktr.ee/brandonisms) 

[**Brandon Vera**](https://linktr.ee/brandonisms)

 ![](https://amcsupport.org/wp-content/uploads/2023/12/theresa-lucas-2.jpeg) 

[**Theresa Lucas**](http://www.theresalucas.com)

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/amc-websites-individuals-Misha-Dream-Walker-2.jpg) ](https://www.mishadreamwalker.com/) 

[**Misha “Dream” Walker**](https://www.mishadreamwalker.com/)

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/amc-websites-individuals-Marty-Sheedy-2.jpg) ](https://aloragrove.com/) 

[**Marty Sheedy**](https://aloragrove.com/)

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/amc-websites-individuals-david-solano.jpg) ](https://solanosnolimithoops.wixsite.com/mysite) 

[**David Solano**](https://solanosnolimithoops.wixsite.com/mysite)

 ![](https://amcsupport.org/wp-content/uploads/2023/12/amc-websites-individuals-Luca-Lazylegz-Patuelli-2.jpg) 

[**Luca “Lazylegz” Patuelli**](http://www.lazylegz.com)

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/amc-websites-individuals-Ted-Houser-2.jpg) ](https://tbsdesigns.com/about-designer/) 

[**Ted Houser**](https://tbsdesigns.com/about-designer/)

##### Other AMC Related Topics

- **[Take T.I.M.E. For AMC](https://taketimeforamc.org/)**
- [**AMG Fitness**](https://www.amgfitness.org/community/)

##### Adoption

- [**Reeces Rainbow**](http://reecesrainbow.org)
- [**Rainbow Kids**](http://www.rainbowkids.com/special-needs/orthopedic-conditions/arthrogryposis)
- [**Great Wall China Adoption Information Guide**](https://www.gwca.org)
- [**Children of All Nations Outreach Guide**](http://childrenofallnations.com)

### Tell Us Your Story & Get Featured!

##### **We would love to add you to the growing sites above, fill out the form below to get started & join our ever growing list of individuals living with AMC!**

It may take a few months before their feature is published, and not all submissions will be selected for the cover. However, they may be highlighted as a featured AMCer within the issue.

##### All (required) & (\*) must be filled out.

By signing up, you also agree to receive email marketing communication from AMC Support Inc. You understand that you can unsubscribe at any time.

       Name   

  Email   

  Phone   

  Upload Your Headshot Photos *(Each file must be under 10 mgs)*   

  Website/Social URL Links   

 Please answer the questions below to get featured in our Monthly newsletter. *(add 'no comment' if you d not wish to answer)* 

  Can you tell us a little about yourself and where you’re from?   

  How has living with arthrogryposis shaped who you are today?   

  What’s one misconception about AMC you wish people better understood?   

  What are you most proud of in your journey so far?   

  What impact have the people around you—family, friends, or community—had on your life with AMC?   

  What challenges have you faced, and how have you overcome them?   

  How has AMC impacted your education or career path?   

  Who or what inspires you most in your life?   

  What type of advocacy work are you currently involved in?   

  How do you hope your advocacy enriches the lives of others in the AMC community?   

  What advice would you give to newly diagnosed families?   

  What brings you the most joy in your daily life?   

  What kind of change would you most like to see in society’s approach to rare disabilities?   

  What’s a favorite memory from your childhood?   

  What hobbies, talents, or passions do you love sharing with others?   

  How do you stay motivated when times get hard?   

  What does inclusion mean to you?   

  If you could go back and give your younger self one piece of advice, what would it be and why?   

  If you could share one message with the world about living with AMC, what would it be?   

  What dreams or goals are you excited about for the future?   

   Submit

**Categories:** AMC Websites, Arthrogryposis, Find Supprt

**Tags:** AMC Websites, Featured, Find Support, Get Featured

---

### [Board Of Directors Meetings, ByLaws & Financials](https://amcsupport.org/board-of-directors-meetings-bylaws-financials/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

# Board Of Directors Meetings

### Upcoming Board of Directors (BOD) Meeting Dates.

All BOD Meetings will take place via phone conference the second Sunday of every month at 4 PM EST.

## Bylaws

Amended and Restated Bylaws of Arthrogryposis Multiplex Congenita, Support, Inc.

 [  Download PDF of Bylaws  ](https://amcsupport.org/wp-content/uploads/2024/01/Amended_and_Restated_Bylaws_of_AMCSI_2021.pdf) 

## Financial Reports & Records

##### [2024 Financials for Arthrogryposis Multiplex Congenita Support Inc.](https://app.candid.org/profile/8565466/arthrogryposis-multiplex-congenita-support-inc-20-8287870) – CANDID

*(Remaining records are coming soon…)*

##### [2011 990](https://amcsupport.org/2011_990/)

##### [2012 990](https://amcsupport.org/2012_990/)

##### [2013 990](https://amcsupport.org/2013_990/)

##### [2014 990](https://amcsupport.org/2014_990/)

##### [2015 990](https://amcsupport.org/2015_990/)

##### [2016 990](https://amcsupport.org/2016_990/)

##### [2017 990](https://amcsupport.org/2017_990/)

##### [2018 990](https://amcsupport.org/2018_990/)

##### [2019 990](https://amcsupport.org/2019_990/)

##### [2020 990](https://amcsupport.org/2020_990/)

##### [2021 990](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI_Tax_Form_990_2021.pdf)

##### [2022 990](https://amcsupport.org/2022_990/)

##### [2023 990](https://amcsupport.org/2023_990/)

##### [2024 990](https://amcsupport.org/2024_990/)

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI23_Annual_Report_cover900.jpg) ](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI22_Annual_Report.pdf) 

## Fundraising Disclosure Statement

**Categories:** About Us, Arthrogryposis, Board Of Directors Meetings, ByLaws &amp; Financials

**Tags:** About Us, Board Of Directors Meetings, ByLaws &amp; Financials

---

### [AMC FAQs - (Frequently Asked Questions)](https://amcsupport.org/amc-faqs/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## AMC FAQS - *(Frequently Asked Questions)*

#### What is Arthrogryposis Multiplex Congenita *(commonly called AMC)*?

The recognized definition of Arthrogryposis Multiplex Congentia is a condition that causes congenital contractures of two or more body parts. It is not a diagnosis but a umbrella term that is connected to over 300-400 more specific conditions and syndromes. Those conditions and syndromes happen for a variety of reasons but what they all have in common is the fact fetal akinesia occurred during pregnancy. Fetal akinesia is the term used to describe lack of motion during pregnancy. This lack of movment then causes a person to be born with stiff or crooked joints that have very little range of motion, or no range of motion at all. Arthro means joint, Gryposis means crooked, multiplex means multiple and congenita means existing at birth hence the name Arthrogryposis Multiplex Congenita.

#### How Does AMC develop?

At about the 5th to 6th week of pregnancy, the baby is still considered an embryo and joints begin to develop. The joint spaces develop by 7 weeks, and the limbs normally should be moving by 8 weeks of pregnancy. This motion of joints is extremely important, as it allows the joints and structures around the joints *(skin, ligaments, and muscles for example)* to develop. After 8 weeks of pregnancy the baby moves from embryo to fetus and *IF* the joints do not move the ligaments and tendons that cross the joint do not get stretched normally. In fact, the skin does not move normally either, which is why people with AMC often are missing the normal wrinkles that the rest of us have around our joints. A few reasons why a fetus may not move their joints : problems with the muscles, problems with the nerves going to the muscles, problems with the signals coming from the spinal cord or a problem with the brain.

#### How is the type of AMC determined?

The type of AMC is usually determined by what joints are affected at birth and how the contractures present themselves on the body. The doctor will perform a thorough physical examination taking a close look at all areas of the body such as the head, face, spine, abdomen, arms, legs, fingers and toes, to determine where the contractures are, and how they are affecting the body. AMC can affect major systems of the body such as the nervous and digestive systems as well as major organs so your doctor may order further testing depending on the findings of the physical examination. These further tests can include an MRI of the brain and spine and blood work to look at chromosomes. If the cause of AMC cannot be determined upon first evaluation don’t be discouraged. Remember AMC is RARE and it can sometimes be difficult to pin point just what caused it. Also some aspects of AMC become more obvious over time which then can lead to a more solid diagnosis. It is also important to point out that many doctors are inexperienced with AMC so it is highly suggested to do some research and find a doctor experienced treating AMC patients.

#### Are there different types of AMC?

There are 300-400 types of conditions and syndromes that can cause AMC. To simplify it, there are 3 basic groups that babies born with AMC can be divided into:

- **Amyoplasia –** A = no, myo=muscle, plasia=growth. Literally meaning no muscle growth. Amyoplasia is the most common type of AMC. It is estimated that one third of people born with AMC will have Amyoplasia about 1 in 10,000 and its typically referred to as ‘Classical type AMC.’ This is considered the non-genetic type of AMC, meaning there has been no mutation in the genes to cause the condition to be present, and it has not been something passed down from the parents. People with Amyoplasia usually have normal to above average intelligence with normal undamaged brain development.
- **Distal –** Distal arthrogryposis *(DA)* primarily affects the hands and feet. Other areas and body functions CAN be affected depending on what type of DA one has. There are currently 20+ different types all of which are linked back to genetic mutations. The best way to learn about you or your child’s specific type of DA is to discuss it with health care providers and people in the AMC community.
- **Everything Else –** This category is one of the most complex due to the fact that there are over 250 different diagnosis it. These include pterygium syndromes, lethal conditions, and atypical AMC. Anything that is not Distal or Amyoplasia goes into the Everything else category.

Another way of classifying AMC that is helpful to researchers and doctors treating AMC is:

- Arthrogryposis with mainly limb involvement
- Arthrogryposis with limb involvement and involvement with some other body area(s)
- Arthrogryposis with limb involvement and dysfunction of the central nervous system

#### Does AMC get better/is there a cure?

People with AMC look their worst when they are born. AMC is considered non-progressive which means joint contractures present at the time of birth, will not get worse. There is no cure for AMC but with proper treatment many children will grow up to live independent, full, active lives and indeed get better as time goes on. In fact, people with AMC many times have above average intelligence. They are doctors, dancers, motivational speakers, lawyers, architects, authors, artists, makeup artist, teachers, parents, social workers among other things. They are also notorious for their extraordinary abilities to adapt to the world around them. For example, someone who may have limited or no use of their arms and hands will use their feet, and/or their mouth to do everything their hands would have done for them. This can include driving, cooking, playing video games, putting on make up, changing a babies diaper, and even beautiful works of art!

#### How do you treat AMC ?

Treatment for AMC often includes: stretching, serial casting, range of motion exercises, physical therapy, occupational therapy, massage therapy, splinting, bracing and many times surgery.

#### What if I am pregnant with a baby with AMC?

Being told your un-born baby has AMC can be very scary. However you will now have time to connect to online support groups with other moms and dads of AMC babies. There you will find over whelming support and encouragement as well as recommendations for the various doctors your AMC baby will need. Being that AMC is rare many doctors are not familiar with it and some have never even heard of it. Having several months head start before your baby is born, to research and call around will be a big advantage. Dr. Judith Hall, one of the most knowledgeable geneticists on the subject of AMC recommends you talk to your obstetrician about the possibility of delivering the baby 2-3 weeks early, if the baby is healthy enough, and the lungs are fully developed. This will allow sooner treatment to the contractures. You may also want to talk with your doctor about delivering by C-section to reduce the risk of fractures, to which babies with AMC are more prone during the newborn period. Dr. Hall also recommends “in-utero therapy”.

- Drink Coffee or Tea 3x a day
- Take 10 deep breaths 3x a day
- Keep Moving. Exercise

Take a 10 minute fast walks at least once a day.

It is VERY important to note this should ONLY BE DONE in the 3rd TRIMESTER and ONLY DONE if cleared by your obstetrician.

#### Is assistance available for my child with AMC?

Your child will most likely qualify for early intervention services in your state. Early intervention services include access to physical and occupational therapists and help in keeping your baby progressing in developmental milestones. Most states provide early interventions services free of charge. Your child may also qualify for financial medical assistance through state level waivers or Medicaid. Talk to a hospital social worker, they can direct you to the appropriate programs. If you are out of the hospital, call your local Department of Health, and they should be able to direct you. Programs vary widely from one state to another. It is to your benefit to educate yourself on the programs and assistance that is available to you and your child in your area.

#### Can people with AMC have kids?

Men and woman with AMC can have children. They may face different challenges than a fully able bodied person, but many people with AMC that have children find smart and successful ways to get around their physical limitations.

#### Will my AMC child be able to live independently as an adult?

How AMC has impacted the body of the affected individual will greatly determine what kind of life they will have. Many people with AMC despite their physical limitations, will have a positive life experience and learn to live independently. Some people which AMC may need to live with assistance even in their adult life. It all depends on how severely one is affected.

#### Poll -Did you know your child had AMC before or after birth?

This has been a question in several Facebook groups.

Here is the break down out of 170 caregivers.

- 74- No
- 69 -Yes
- 23 -Knew about contractions , but no formal AMC diagnosis before birth
- 4- Adopted

#### Poll -Types of medication taken while pregnant?

There is no proof that a type of medicine caused AMC. This is a question that comes up regularly in the Facebook groups.

Poll -Out of a 171 moms

- 60- Vitamins
- 27- Tylenol
- 23- Anti nausea medicine
- 16- Iron Tablets
- 10- Antibiotics
- 7- Progesterone
- 6- No medicines
- 4- Thyroid
- 4- Cold
- 3- Vaccine
- 2- Muscle relaxers
- 1- Benadryl
- 1-Fluoxetine
- 1- Tylenol PM
- 1-Calcium
- 1- Zoloft/Paxil
- 1-Epilepsy medication
- 1-Baby Aspirin
- 2- Heartburn medication

#### Where do I start?

You just found out your child has AMC and don’t know what to do next.

1. Find an early intervention program in your area. The program provides early identification and screening of children with developmental delays and chronic health conditions.
2. Example for Georgia: 
3. Finding doctors- Check out our [Doctors](https://amcsupport.org/find-a-doctor/) page and reach out to the AMC community online.
4. Events- AMCSI has an annual conference to meet other families and doctors. Also, check [events](https://amcsupport.org/19th-annual-amcsi-conference/) to see if there are any mini meetups close to you.
5. [Find support online](https://amcsupport.org/facebook-groups/)– There are AMC groups all over the world that can help with your journey.

#### References for questions

*(The author would like to acknowledge Harold vanBosse, MD for their tremendous amount of help and support with this article.)*

**What is Arthrogryposis Multiplex Congenita** **(AMC)?** – [Arthrogryposis A Text Atla](https://amcsupport.org/arthrogryposis-a-text-atlas/)s. By: Judith G Hall MD, Lynn T Staheli MD, Kenneth M Jaffe MD, Diane O Paholke.

**How does Amc develop?**– [Arthrogryposis A Text Atlas](https://amcsupport.org/arthrogryposis-a-text-atlas/). By: Judith G Hall MD, Lynn T Staheli MD, Kenneth M Jaffe MD, Diane O Paholke.

**Are there different types of AMC?** – Introduction to Arthrogryposis Multiplex Congenita: [Arthrogryposis A Text Atlas](https://amcsupport.org/arthrogryposis-a-text-atlas/). By: Judith G Hall MD, Lynn T Staheli MD, Kenneth M Jaffe MD, Diane O Paholke

**How is the type of AMC determined?** – [Arthrogryposis A Text Atlas](https://amcsupport.org/arthrogryposis-a-text-atlas/). By: Judith G Hall MD, Lynn T Staheli MD, Kenneth M Jaffe MD, Diane O Paholke

**How do you treat AMC?** – [Arthrogryposis A Text Atlas](https://amcsupport.org/arthrogryposis-a-text-atlas/). By: Judith G Hall MD, Lynn T Staheli MD, Kenneth M Jaffe MD, Diane O Paholke

**What if I am pregnant with a baby with AMC?** – [Arthrogryposis A Text Atlas](https://amcsupport.org/arthrogryposis-a-text-atlas/). By: Judith G Hall MD, Lynn T Staheli MD, Kenneth M Jaffe MD, Diane O Paholke

**Categories:** Arthrogryposis, Frequently Asked Questions, Where To Start

**Tags:** Frequently Asked Questions, Resources, Where To Start

---

### [Awareness Day Downloads](https://amcsupport.org/awareness-day-downloads/)

**Published:** January 4, 2024
**Author:** Ted Houser

**Content:**

## Awareness Day Downloads

 [  AMC Fact Sheet  ](https://amcsupport.org/wp-content/uploads/2024/01/AMC_Awareness_June30th.jpg) 

 [  Proclamation Request  ](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI24_PR_Package-Proclamation.pdf) 

 [  Press Release Packet  ](https://amcsupport.org/amcsi-amc-awareness-day-pr-packet/%20) 

Right-click on the image to download it to your computer, then add it as your facebook header image.

 ![](https://amcsupport.org/wp-content/uploads/2023/12/fb_pg_hdr_june30th.jpg)

**Categories:** AMC Awareness Day, AMC Events

**Tags:** AMC Awareness Day, AMC Events

---

### [The Prairie 103 For AMC](https://amcsupport.org/the-prairie-103-for-amc/)

**Published:** July 31, 2026
**Author:** Ted Houser

**Content:**

![](https://amcsupport.org/wp-content/uploads/2025/08/IMG_0942-web-scaled.jpg) 

### The Prairie – 103 for AMC

##### Turning Miles Into Impact: My Journey

My name is Mark Indreika, and I was born with Arthrogryposis Multiplex Congenita (AMC), a rare condition that causes joint contractures in all four of my limbs.

In 2025 I challenged myself to ride 103 miles in one day as a fundraiser for AMCSI. Many seemed surprised, but I knew I could do it, and I did. People with arthrogryposis are like bumblebees. Their wings seem way too short to fly, but they fly anyway.

Once again I’m cycling to raise awareness for Arthrogryposis Multiplex Congenita (AMC) and to support AMCSI’s mission of connection and care. Every mile I ride is a step toward change, and you can be part of this journey with me.

**Together, we hope to:**
**•** Share the health benefits of cycling
**•** Raise awareness about Arthrogryposis Multiplex Congenita
**•** Support AMCSI’s mission to connect and serve the AMC community

Every dollar raised goes directly to Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI), a 501(c)(3) nonprofit supporting families around the world.

Every dollar raised goes directly to Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI), a 501(c)(3) nonprofit supporting families around the world.

Your support means so much to me and to everyone impacted by AMC. Thank you for helping me turn every mile into something bigger.

 [ ![Mark in a marathon on his sport tricycle](https://amcsupport.org/wp-content/uploads/2025/08/PXL_20250719_130243376.jpg) ](https://amcsupport.org/wp-content/uploads/2025/08/PXL_20250719_130243376.jpg) 

 [ ![Mark on his sport tricycle](https://amcsupport.org/wp-content/uploads/2025/08/Mark-top-photo.jpg) ](https://amcsupport.org/wp-content/uploads/2025/08/Mark-top-photo.jpg) 

### TO DONATE USE THE FORM BELOW!

To credit a Team Member (A.K.A. credit a Rider) simply select them below.

**Categories:** Fundraising, The Prairie 103 For AMC

**Tags:** The Prairie 103 For AMC, Upcoming

---

### [Research Submission Form](https://amcsupport.org/research-submission-form/)

**Published:** September 22, 2024
**Author:** Ted Houser

**Content:**

### Research Submission Form

#### Do you have an AMC Research Project you would like to share with AMCSI?

We would love to share your AMC Research Project, fill out the form below to get started!

##### All (required) & (\*) must be filled out.

By signing up, you also agree to receive email marketing communication from AMC Support Inc. You understand that you can unsubscribe at any time.

       Language *(English, French etc.)*   

  What country are you from?   

  Name   

  What Is Your Profession? *(required)*  Doctor Occupational Therapist Physical Therapist Student Other Specialist

  If you selected 'Other Specialist' please explain   

  Upload Abstracts *(Each file must be under 10 mgs)*   

  Email   

  Phone   

  Website URL   

  Social Media Account Links (Instagram, Facebook, Linkedin, etc)   

  Tell Us About Your Research Project   

   Submit

**Categories:** Find Supprt, Research

**Tags:** Arthrogryposis, Research, Submission Form

---

### [Testimonials](https://amcsupport.org/see-our-impact/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

# See Our Impact

## Testimonials & Feel-Good Stories

Do you have a favorite story to share with the AMC Community about how AMCSI has helped you through grants, scholarships, conferences, or how we have improved your life? We’d like to hear about it! Email us at info@amcsupport.org or fill out the form below!

Read our Testimonials & Feel-Good Stories below the form & share the AMC love!

Want to be featured? Submit your testimonial by **[clicking here to fill out the form below](https://amcsupport.org/testimonials/#testimonial)**

 ![We are proud to recognize Mackenzie as a recipient of an AMCSI College Scholarship and celebrate all she has accomplished throughout her academic journey. Mackenzie has been actively involved in her school and community through the Technology Student Association (TSA) Debate Team, Student Advisory Club, Student Council, National Honor Society, and Best Buddies. Her dedication to leadership, service, and academic excellence helped her graduate in the top 10% of her class. Her family shared this heartfelt message: "Thank you so very much for giving this to my baby girl! It will for sure be utilized. From the bottom of my heart, thank you so much." To hear a message from Mackenzie, please visit: https://amcsupport.org/testimonials/ Congratulations, Mackenzie! We are excited to see all that you accomplish in this next chapter and are honored to support your educational goals. 💙](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-testominial_mackenzie-5.jpg) 

🎓 **Congratulations to AMCSI College Scholarship Recipient Mackenzie!** 💙

We are proud to recognize Mackenzie as a recipient of an AMCSI College Scholarship and celebrate all she has accomplished throughout her academic journey.

Mackenzie has been actively involved in her school and community through the Technology Student Association (TSA) Debate Team, Student Advisory Club, Student Council, National Honor Society, and Best Buddies. Her dedication to leadership, service, and academic excellence helped her graduate in the top 10% of her class.

**Her family shared this heartfelt message:**
“Thank you so very much for giving this to my baby girl! It will for sure be utilized. From the bottom of my heart, thank you so much.”

We are excited to see all that you accomplish in this next chapter and are honored to support your educational goals. 💙

##### Listen to a message from Mackenzie

*(Note: not all browsers support this feature)*

  Your browser does not support HTML5 audio. Here is a [link to the audio](https://amcsupport.org/mackenzie-college-scholarship-ty/) instead.

“I am very thankful that I found your website. Using the excellent information from your website, along with other sources, I have been able to help guide her care in a more informed way. Thank you again for providing information that helps families like ours navigate this stage of life with arthrogryposis.”

~ Greg T.

### Learn how Arthrogryposis Multiplex Congenita Support, Inc. has helped Julie during her very first visit to the 20th Annual AMCSI Conference, in Norfolk, VA, on the AMCSI Scholarship!

# Past Conference Testimonials

 *"Norē LOVED PROM NIGHT! They played his jam and he immediately wanted to come out if his chair to break dance on the floor 🤣 Seeing everybody cheer him on and him grabbing the mic to get everybody to sing AMC-123 instead of ABC 123 like the song goes melted my Mama heart. The daily sessions during the conference filled me with so much information I never could've imagined. I thoroughly enjoyed sitting in on the doctors, therapists, and every speaker whose sessions we attended. The small groups/talks were special to me in so many ways. This trip, we named "The Sonshine Voyage," was our very first solo adventure together, just me and my SONshine! And tho no one could see it, it was empowering in every possible way. I connected with other moms walking similar paths, and found comfort, strength, & inspiration in those conversations. Watching Norien flourish in a space built just for him filled my heart more than words can ever say. We're so grateful to Ani, to the AMCSI crew, the Dust Family(who generously donated), our family who helped us make it happen, and to the entire AMC community for welcoming us with such warmth. This wasn’t just a trip. It was a beginning, a light-filled reminder that we are never alone, and that beautiful things bloom when we least expect them. 👣💙✨️"* 

  ~ Tess *(Nore's Mom)* 

 *“Attending the AMC Conference reminded me that I’m not alone. It was a powerful ‘been there, done that’ moment seeing so many people living full, independent lives gave me hope that I can and will live a long, successful, healthy life.”* 

 ~ Shameia R. 

 *"Growing up, I never met anyone with AMC in person. This organization allowed me to accomplish meeting others my age, similar type of AMC and more! As a first-time attendee, I had an incredible time connecting with people who share similar lived experiences. Whether it was contributing to the research, Meeting Valerie Pepe for the first time, leading an impromptu jam session to share my love of music, or simply enjoying drinks and laughter with some amazing individuals — I felt truly seen, supported, and uplifted. It was a deeply validating and heartwarming experience."* 

 ~ Julie M. 

 *"This was my very first AMCSI Conference, which I was able to attend courtesy of a generous donor. When I joined one of the many sessions available to discuss a variety of topics, I felt like I had known many of these people my entire life despite never having met almost all of them. I found it very eye-opening to hear from other people with AMC from all walks of life about what their experiences were like, both similarly and different to myself. There is immense value in holding an event like this every year because there were so many times growing up where I felt like I was one of one. I'm very grateful to Ani and the rest of the AMCSI staff for ensuring a fantastic event that I will remember forever, and also hope to attend annually moving forward."* 

 ~ Kevin S. 

 *“Attending the Arthrogryposis Conference for the very first time was an unforgettable experience for our family, made possible through the generosity of the scholarship program. Walking into a space filled with so many beautiful young adults with arthrogryposis, living confidently, being themselves, and having fun, was incredibly powerful for me as a mom. It gave me hope and reminded me that my son has such a bright future ahead of him. One of the most meaningful parts for me personally was connecting with other mothers who truly understand the joys and challenges of this journey. Having those conversations, sharing stories, and feeling that instant sense of community was deeply comforting and inspiring. For my son, the highlight was making new friends—friends who share his experiences and with whom he immediately felt a special connection. Seeing his smile as he laughed and played with them is something I’ll never forget. For my husband, one of the moments that stood out was meeting Teresa, an extraordinary person who paints beautiful artwork using her mouth. Her creativity and determination left a lasting impression on him and reminded us of the strength and possibilities within this community. We returned home from the conference with full hearts, new friendships, and a sense of belonging that we didn’t even realize we were missing. We are so grateful to have been given this opportunity and will carry the inspiration, hope, and connections we found with us forever.”* 

 ~ Veronica P. 

 *“Our experience was wonderful, I grew up with arthrogryposis and I had never seen such a sense of community and support. I was very overwhelmed with emotions. It made me reflect a lot on growing up feeling like it was just me who was different. As well as reflecting on how many different obstacles a person can overcome, things some can see as impossible, someone else has adapted to. It was beautiful. We were lucky to join Kelly and Maria’s family during dinner. Kelly really made me feel welcomed and helped break my introverted personality 🙂 As a person who grew up with AMC and a mother of an AMCer , my favorite part of the conference was watching the kids and their fearless spirit. Their smiles filled my heart and eased my worries about Rayan ever feeling isolated when he grows up. We are hoping to join again next year in Ohio!”* 

 ~ Hend 

 *"The AMC conference was a great way for us to meet members of the AMC community and really get to understand the condition better. It was a wonderful experience meeting everyone at the conference and building friendships with those in the AMC community which we hope to maintain over the years. It was great having the opportunity to demo our device for attendees and also receive feedback on ways to improve our existing device. The conference also helped us to think of new products which we hope to debut next year through the very insightful input of the conference attendees."* 

 Roisin ~ Summit Assistive Tech2024 Exhibitor - iReach Stylus 

 *"I walked into the conference lobby the morning before the conference began and asked a guy passing by if he was with the wake surfing group, and he said, "No, but could I come anyway?" Johnathon got in a van in Georgia and drove 2 hours with a complete stranger to Alabama on a whim, with little information to go off. I think this is a perfect example of what I experienced at the AMC conference. I received nothing but kindness, openness, a sense of trust, and honest interest from everyone I met. I was amazed by this community and the welcome I felt in it. It was a highlight in my nearly 10-year career to share adaptive recreation with a community that has been underserved. I look forward to seeing AMC be more represented in recreation and for Adaptive sports to be a staple at AMC conferences moving forward!"* 

 Truman Shoaff2024 Exhibitor - High Country Adaptive Sports 

 *"I was truly impressed by the adaptability and willingness of each participant during the recent AMCSI adaptive mountain biking event at conference hosted by Catalyst. What stood out to me was how each participant was eager to troubleshoot bike fit with me and remained flexible to the limitations of the equipment. Every rider is unique, and their valuable input on adjusting bike controls helped create a fun and successful ride for everyone. The collaborative spirit and determination displayed were truly uplifting, making the event a memorable and impactful experience for all involved."* 

 Matt Kirby2024 Exhibitor - Catalyst Sports 

 *"I participated in the adaptive mountain biking program with Catalyst Sports this past summer. I had an AMAZING experience; the volunteers were incredible and riding felt nothing short of euphoric. I hope to do it again next conference!"* 

 Person With AMCAMCSI Member 

 *"This was our first experience working with the AMC Community, and it was truly wonderful. As partners in the adaptive sports program for this year's AMCSI conference, we had the pleasure of collaborating with many dedicated individuals. Starting over a year ago with initial planning alongside Kim Kolstad, followed by monthly meetings, and culminating in our attendance and sports provision at the conference, we have been thoroughly impressed by the entire community. Everything was well-organized and perfectly executed. It's clear that those at the heart of this event put so much of their time, energy, and passion into it because they genuinely love what they do."* 

 Gillian Sharp2024 Exhibitor - Catalyst Sports 

 *"It was such an honour to receive the first time scholarship to the AMC conference. The conference topics were so helpful and provided a nexus for new research, projects and technologies. The conference was such an amazing experience filled with laughter, friendship, and emotion. While I had met a few people with AMC throughout my life, the conference introduced me to a diverse community that came together to celebrate, reflect, and embrace AMC. In my 40s, this was a completely new experience. There were times I felt sadness that the conference did not exist throughout my childhood. There were times when looking at the younger generations of AMCers, and I was filled with pride hearing what they wanted to accomplish. And there were times that I felt deep gratitude and love for the family and friends who stood alongside us AMCers to advocate and break barriers. Traveling with a disability comes with many additional costs. Being able to attend the conference as a first-time participant with the scholarship helps to relieve so many barriers that exist with attending out-of-town events. Thank you."* 

 Alessia2024 Attendee - AMCSI Member 

 *"As a Recreational Therapist I love seeing people get out and get active. I have been to many conferences that focus on other conditions over the years, and this was the first time I have had the pleasure of seeing the families attend and those with AMC of all ages. The conference atmosphere felt like a family including attendees, volunteers, speakers, and staff. It was refreshing to be involved with such a dynamic culture. I am excited that the conference showcased adapted sports and recreation!"* 

 Jo Crawford2024 Exhibitor - AZ Adaptive Watersports 

 ![Ferrone Family.- AMC Holiday Fund Recipients](https://amcsupport.org/wp-content/uploads/2023/12/IMG_1583.jpg) 

*“We just wanted to thank you all so much for choosing us to receive the grant for the holidays! It made such a huge difference for us for the holidays!! Thank you so much!”*

**~ The Ferrone’s** 2024 AMC Holiday Fund Recipients

 ![Gomez Family during the Adaptive Sports wake surfing experience at the 19th Annual AMCSI Conference in Atlanta, GA.](https://amcsupport.org/wp-content/uploads/2023/12/Gomez-Family-Adaptive-Sports2024-900.jpg) 

 *“I signed up my son for the adaptive sports not knowing exactly what it entailed, but excited to see what potential fun he could have at the event. I knew if we didn’t go check it out, we would never know if it would be something he would have really loved, and if we arrived and felt it wasn’t a good idea, then we could always decide to change our mind. It did not disappoint! My son had the time of his life at the adaptive wake surfing.
He has limited use of arms and legs, but the staff was eager to find a safe way for him to participate. They allowed me to get in the water to assist, just for my peace of mind. Afterwards, i was confident that he was safe and successful. Matthew had the time of his life on the waves. He didnt want the day to end. It was freeing and genuinely heart warming to witness not just him but everyone else experiencing the wake surfing in a way that worked for them. It was an experience him and I will never forget and I hope to do again. We also made some great friends out on the water and can’t wait to see them again at the next conference. I hope to see even more amcers turn out for the next adaptive sporting event!”*

**~ The Gomez Family** 19th Annual AMCSI Conference – Adaptive Sports, Wake Surfing

 ![The Fisher's photo of their child for their holiday grant testimonial.](https://amcsupport.org/wp-content/uploads/2023/12/The_Fishers-900.jpg) 

*“We have been members of AMCSI since 2012. Our daughter Red was born with Arthrogryposis multiplex congenita. We’ve been blessed to attend the annual conference since she was 5 years old. She just turned 18. The pandemic stole 2 years of conferences. This past year has paid a huge toll on our finances. We’ve also had a lot of medical and personal stuff going on. Both of our older cars have taken turns being in and out of the shop. At one point they were both unusable. We were drowning in debt. We put our pride aside and applied for the holiday grant. We were very surprised and appreciative when we found out we had gotten it. It took a lot of stress off of us. We were able to get stuff we needed as well as be able to buy her a couple of things. It was the lift we needed to get us back on our feet. We couldn’t have done it without this grant from AMCSI <3 This organization has blessed us in so many ways. Physically, emotionally and now financially. We look forward to being able to go to conference again this year, we especially enjoy volunteering our time as well.”*

**~ The Fisher’s**

 ![testominial_Jhaylen_R_900](https://amcsupport.org/wp-content/uploads/2023/12/testominial_Jhaylen_R_900.jpg) 

*“I want to say Thank you so much to AMCSI for helping our family out this holiday season. 2023 has been a roller coaster of a year and our family has experienced so much financial hardship, Ending the year with losing most of our belongings with our house flooding, and If that wasn’t enough, Our AMCer Jhay breaking his leg in December in a wheelchair accident, Causing a lot of missed work for me as a single Mom right around the holiday season. I am grateful to AMCSI for sponsoring our family for the holiday fund. The children were able to receive some nice gifts, We were able to put food on the table in a time of need and catch up on bills we had fallen behind on. Thank you so much! We are forever grateful for our AMC Family! We love you guys! Jhaylen personally says Thank you as he was able to get a new bed set and legos!”*

**~ Jhaylen R.**

 ![AMCSI-testimonial-Kylee](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-testimonial-Kylee.jpg) 

 ![AMCSI-testimonial-Kylee-02](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-testimonial-Kylee-02.jpg) 

*“When I saw that the testimonials & feel-good stories had open forms I knew it was time for me to share my story because the community really has changed me in a great way.*

*Originally, I didn’t have any self-intentions when going to the conference, other than to go, meet a few people, and just have fun. Going I did not do any research other than purchasing my ticket. Before this, my AMC community was small and limited to two people, whom I already did not talk with much. Growing up my resources and community were nothing and I was never told great things about the AMC community in general. My mental health at the time was rapidly declining and I didn’t know why so I figured I would at least connect with a few people whom I could relate with.*

*The first conference I went to was the 17th annual in Orlando, I had just turned 18, the conference was in my home town so I easily could get there. In the first 45 minutes of me being at my first conference, my entire perspective of the entire community changed. I was greeted, introduced to many, and shown around as it was kind of intimidating. The positive energy and warmness that just poured out was unbelievable, I immediately knew I was in the right place. The entirety of the conference was so informative, I learned so much more than I intentionally thought I would, and confirmed for me that I was in the right spot of connection, love, and support. After the conference was over I knew I just had to go the next year.*

*The 18th annual conference in Ohio opened me to a whole new level of acceptance I felt. Going to this conference I had intentions, I wanted to find resources, hear others’ experiences, make forever connections, and really open myself up to better mental health resources, and that is exactly what I was able to do. I finally felt “home” enough to let others in and be open. I will forever say this but there seriously is not another group of people I will stay up till the sun comes up with just talking and bonding. Hearing others’ stories, experiences, tips, etc., and bonding with the right people helped me find self-acceptance and realize I will never be alone and my resources are right here in this family of the AMC community. The energy and comfort I felt around every. single. person. was unmatched and I can not express how grateful I am for this community that I call family. The annual conference will be something I no longer miss, I will be there, to share, to listen, and connect.*

*“Remember, this isn’t goodbye, this is see you later. <3”*

**~ Kylee**

 ![AMCSI-testimonial-Amanda](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-testimonial-Amanda.jpg) 

*“It improved my life! To meet another people with same disability, and learn more about AMC too. And when meet up with Dr. Hall she told us I had distal arthrogryposis, and why!🙂💙👍*

*And after the first conference in Kansas City! My sister asked if she could started Facebook group for Canada! She was with us too. I am happy they accept it, and we had mini meet ups around in Canada.”*

**~ Amanda**

 ![AMCSI-testimonial-Fitzgerald-family-01](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-testimonial-Fitzgerald-family-01.jpg) 

 ![AMCSI-testimonial-Fitzgerald-family-02](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-testimonial-Fitzgerald-family-02.jpg) 

 ![AMCSI-testimonial-Fitzgerald-family-03](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-testimonial-Fitzgerald-family-03.jpg) 

*“We are new to the AMC community, yet we are not.*

*In 2019, our family began our path to adopt a little girl with suspected Arthrogryposis. We scrambled to complete paperwork, much of it very familiar as we had completed an adoption with this country several years prior. We took this time to also familiarize ourselves with AMC and that is how we found AMC Support. We learned that you offered an adoption grant and we applied, knowing there were likely so many in need. And we were humbled when we received a very generous check in the mail, an incredible help to offset adoption costs. We got much more familiar with AMC through your resources, yet still had so much to learn.*

*We completed all paperwork in 6 months are got approval to travel to her in January 2020. We booked our flights and had our adoption appointments in country scheduled for February 2020.*

*And then…COVID. The pandemic shut down our little girl’s birth country. And we were told to cancel our flights and wait. Little did we know that the country would remain closed to tourists of any kind for YEARS. We waited, often not knowing if we would ever meet the little girl we had fallen deeply in love with. We sent her letters and photos and occasionally saw glimpses of her via photo or video. We waited. And we waited.*

*During this time, we also dug deeper and deeper into the world of AMC. We still sat on the outskirts, perhaps needing to know and learn and grow to help her thrive. So much was uncertain. But we followed AMCSI on social media and frequently went to the website. We reached out to local facilities such as Shriners New England and Boston Childrens.*

*AND we waited, yet. In fact we waited for 3 and a half years. And then suddenly, we were invited to travel once again.*

*In June of this year, we traveled to China and finally met our daughter. She has been through so much, yet is thriving and full of joy. And she is determined, motivated.*

*She was positively diagnosed with Arthrogryposis by both Shriners and Boston Children’s. She received very minimal treatment up until now and is quickly showing us how motivated she is to move. She has a loaner wheelchair, has been fitted for her own and is beginning her first surgical treatment in January. She thrives in therapy and is thrilled to be able to be on the move!*

*Thank you to AMCSI. Thank you for the adoption grant. And thank you for being an incredible resource. We anticipate becoming a bigger part of this community.”*

**~ Fitzgerald family**

 ![AMCSI-testimonial-Shameia](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-testimonial-Shameia.jpg) 

 Ani joins Shameia in Greenville, SC to hand deliver some great news! All smiles and just a few tears shed as we close out our Hardship Grant program. Ms. Shameia was the recipient of our final hardship grant. She would like to thank AMCSI’s board of directors for their prompt decision and our donors for their support. The Hardship Grant has been reestablished as the Accessibility Grant that will assist many of our AMC families with ADL tools that will be instrumental for independent living. Please follow the link to apply. 

 [  Research Grant  ](https://amcsupport.org/research-grant/) 

 [  Medical Travel Grant  ](https://amcsupport.org/medical-travel-grant/) 

 [  Accessibility Grant  ](https://amcsupport.org/accessibility-grant/) 

 [  Mini-Meetup Grant  ](https://amcsupport.org/mini-meetup-grant/) 

 [  AMC Holiday Grant  ](https://amcsupport.org/amc-holiday-grant/) 

 [  Bereavement Grant  ](https://amcsupport.org/bereavement-grant/) 

 ![AMCSI-testimonial-Kahzryn](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-testimonial-Kahzryn.jpg) 

*“To say it’s been difficult to find the words to talk about this experience is an understatement. I was gifted the opportunity to attend a conference on Arthrogryposis (AMC), the condition I was born with. I never met anyone in person with AMC until this trip that I was so blessed to have received! I have really been unable to put into language what this incredible trip has brought me. Community, friendship, education, resources, self-acceptance, memories, hugs, some of the rawest love i’ve ever witnessed & felt to name a few. I received more hugs during this trip than I have in the past year.. The people in this community love BIG and I can’t explain how much my heart has been filled by them all. The way this community has loved and uplifted me is unmatched. I have been terrified with planning my medical future alone and this has given me HOPE. This experience has truly taken my heart and ran with it. I’m so immensely grateful to have made it in those rooms, to those that made this happen for me, and to all that made this whole conference possible in general.. There are truly no words I could use to explain what you’ve done for me and my heart and my FUTURE, but thank you a million times over.. See you next year!”*

**~ Kahzryn**

 ![AMCSI-testimonial-Skyler](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-testimonial-Skyler.jpg) 

*“A few weeks ago, Ani Samargian called me after an absolutely terrible day and gave me the most exciting yet terrifying opportunity of my life. This weekend I went to the Arthrogryposis Conference in Ohio, to tell me I was chosen for one of the scholarships. I had never gotten the opportunity to meet anyone like me, being that my disability is so rare. When I got there, I was hoping to run to my hotel room to prepare myself. But as soon as I walked in the lobby, I was faced with what I never thought I would experience. Not one, but maybe 50 others with my condition. Adults and children. I wasn’t ready but it was happening. So many emotions rushed through me and I just found a seat near the entrance and cried. Tears of relief that it finally happened, but also fear, and the overwhelming truth that I needed to face. I have AMC and I always will. I was a child that was traumatized and afraid, insecure and full of self hatred and closed off to the world. Confused and alone and ashamed. I needed to be free. All these years i carried these feelings into adulthood and all it did was hurt me. Since Ohio, I’ve felt lighter. Like a weight has been lifted and like I’ve finally looked in the mirror after being invisible for over 20 years. It feels as though my inner child finally got a big hug and was told that she would be okay. That she wasn’t all the things people told her she was. I can never thank you enough, Ani. You gave me the greatest gift I’ve ever received and helped me meet people that will be in my life forever.”*

**~ Skyler**

 ![AMCSI-testimonial-Kristen](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-testimonial-Kristen.jpg) 

*“There are few words to encompass the emotions of attending the AMCSI conference for the first time and as a grant recipient. I am 28 years old and had not met another individual with arthrogryposis until this year. Stepping into a space full of other individuals who look like me and who understand my disability in a way no one else in my life ever has felt like coming home. It would not have been possible for me to attend conference this year without the support of the Brayden Dame Scholarship. I am forever honored and grateful to have received this incredible award and for the opportunity to spend time with members of the Dame family. They, along with countless other AMCers, embraced me and helped me feel like an instant member of the AMC family. The conference provided me with invaluable connections that have made me feel so accepted and excited to immerse myself further into our community.”*

**~ Kristen**

 Love my AMC family and all the support there is for each other 

 Donna B.11/30/2023 

 "Arthrogryposis Multiplex Congenita Support (AMCSI) is a wonderful organization for parents who have just learned that their baby/child has AMC. When our daughter was born in the late 90's, we were told she had Arthrogryposis Multiplex Congenita (AMC). At that time there were very few resources available for us to learn more about this condition. In 2009, our daughter's Physical Therapist encouraged us to attend the AMC Conference in Philadelphia. We were excited to learn all that we could about this condition. It was certainly a life changing experience not only for our daughter but for us as parents. It was the first time our daughter saw other kids her age with the same condition and now has made life time friends. And for us as parents they arranged workshops that we attended to learn from Doctors and Medical Professionals and we met so many wonderful families. It gave us a chance to compare experiences with these families and become friends. AMCSI not only provides conferences every year for the families but they do so much more all year long. Also, it should be noted it is a volunteer organization. We owe many thanks to everyone associated with AMCSI!!" 

 ~ NANDASS10/29/2022 

 "By far, finding AMCSI has changed my wife and mine lives! Before finding AMCSI, neither one of us had ever met anyone else with AMC, my diffability. Now, we have been to multiple events sponsored by AMCSI that we have been able to meet others like me, network, learn and grow! They also helped support us financially when we were going through a rough patch with my health and some students were doing a Lift Up Bobby fundraiser for a lift on my vehicle for my scooter. I don't know where we were be without AMCSI in our lives!" 

 ~ rheimark10/28/2022 

 "I first learned about AMCSI and its annual conference in the summer 2013, but I was unable to attend. It was only a week before that I learned about it, so I started making plans for the following summer. To think that I had only seen one other person with AMC prior to turning 50 years old then to discover this organization. Life-changing to say the least. Now, I have connected with AMCers throughout the USA as well as with others in different countries. What a blessing that AMCSI has been to me. Meeting others. Sharing experiences and ideas. My times at the different conferences have been heartwarming, fulfilling, and humbling." 

 ~ DMoreau Member10/27/2022 

 "AMCSI runs amazing conferences that help my daughter, who has AMC, connect with other individuals just like her. AMCSI has helped us not feel so alone on our journey with AMC. We have real "AMC Family" because of the work of this amazing nonprofit." 

 ~ skeezekeannah Volunteer10/04/2022 

 "My name is Dajha Smith and I just recently had my 21st birthday and I have had Arthrogryposis my whole life. I am currently a junior in college studying Child Psychology, Business Administration, with a minor in pre law, and I just graduated with my Associates in Child Development. With all of that I want to open up a boys and girls for handicap children and be a Child Psychologist for them. I am just here to say that you can do ANYTHING you put your mind to and if you have children with AMC please don't downgrade them let them know that they can reach for the stars just like a normal person. If they have something that they want to try please just let them even if they fail at least they can say they tried. I know its hard not to do things for them but you have to let them be independent and make mistakes. I was in band in high school, theater, hero society and more because I never let anyone tell me I can't do something. And the most important thing to remember is to ALWAYS KEEP GOD FIRST because at the end of the day he has the last say so." 

 ~ dajhas Member01/11/2022 

 "I never imagined how much this organization would change my life. My grandson has arthrogryposis and before he was born, we had never heard of it. We attended our very first conference when he was 4 months old and make a point of planning for it every year. I am now a lot more involved, but will never forget that very first year. Our AMC family has made a huge difference in our lives and the life of my grandson. I have made friendships that will last a lifetime and most important, my grandson knows he is not alone." 

 ~ m92362 Volunteer02/20/2019 

 "My daughter has AMC. Her self esteem has improved because through this support group she has met peers and role models. I have also met other parents who have had similar experiences through this group. It has been a great support for me and also an opportunity for growth and learning via conferences." 

 ~ Chaney R.05/03/2013 

 "AMCSI makes it possible for people with Arthrogryposis and their families to see others that look just like them! Having the opportunity to see and interact with other AMC'ers is amazing! It's such a rare condition that you just don't see it very often." 

 ~ Betsy1605/03/2013 

 "Seven years ago, I had never heard of arthrogryposis. My granddaughter was born with AMC and it changed our world. Without the support and understanding of AMC, our family would have been rocked to the core. This little baby has grown and has become a wonderful child that can adapt to almost any situation. She has gone thru numerous surgeries, castings, braces and splints. Each time we run into a bump in the road, AMC Support has gotten us thru the hard times. They keep us updated with new medical advances, therapies and hardware that our children need. The AMC Support Group is our family." 

 ~ Cherford05/02/2013 

 "I am the mother of a son with AMC. We knew very little about arthrogryposis when we adopted him at age 5, two years ago. This group stepped up to help us know so much more about this rare condition and connect us with others were already parenting kids with AMC. I find support from this group almost daily. We appreciate the work they do!" 

 ~ Stacey F.05/02/2013 

 "I am the grandmother of a AMCer. She is now 3 months old and because of this org we are a whole lot smarter and feel a lot more in control. When my grand daughter left the hospital no one had said the word "arthrogryposis" my daughter read it on her discharge papers a few days later. I truly do not know where we would be if not for all the people we have found thanks to this org, including other parents and Gracie's new Doctor Dr. Vb at shriners in Philly. They really have helped change our lives for the better and have given us hope for Gracie's future. Thank you. :)" 

 ~ Tami604/05/2013 

 "This group has helped me more than anything with my sons condition! I had never heard the word Arthrogryposis before hearing it at an Ultrasound appointment while pregnant with my son. I was terrified and couldn't get much information from the doctor. I went online and this site was one of the first I found and I thank God for that! The families and their support, stories and possitive attitudes have forever changed my life! I don't know what condition my son would be in at this point without all of their wonderful advice and support! THANK YOU!!!!!!!" 

 ~ Castle411/06/2012 

 "When we were 21 1/2 weeks pregnant with our son Roger, we found out through a "routine" sonogram that our baby had what was believed to be Arthrogryposis. The doctor knew very little and even the maternal fetal specialist had limited knowledge on the condition. We found this support group on-line when a friend searched the term "AMC" and "blessed" and we came across the founder's web page about her daughter Abby and then the group web page. From that moment on, I memorized all the stories and information I could absorb and found hope, faith and a feeling of peace that everything was going to be all right. We have relied heavily on the information and support found within this group of AMAZING people and don't know how well we would be doing without them! Roger is almost three and doing just great! They are so informative by means of sharing every, and I mean EVERY aspect of what can be expected. We are truly indebted to Ani, Theresa, Tracey and Peg, just to name a very few." 

 ~ Lisa155 10/30/2012 

 "A few months ago my wife and I were surprised to find out we were pregnant with our 9th child (4th biological - we have 5 adopted). All of our biological children have been healthy, so the news of Declan having Arthrogryposis seemed overwhelming. We knew that termination was never an option, but resources on AMC seemed lacking. AMC Support has helped provide a wealth of tips, knowledge and advice to our family. We are very thankful for this agency and recommend it to anyone looking for resources on AMC." 

  ~ Bryan8 10/30/2012 

 "We knew our daughter would have problems before she was born since she did not move in womb and they could not see the base of her spine on ultrasound. After birth and three weeks of test we were told she had Arthrogryposis, not that we'd heard of it before or knew anything about it. Jump ahead 10 years and we stumble upon the AMC Support, Inc. website and annual conference information. We attended our first conference this year, it was eye and heart opening! We found out so many tips, tricks, ideas, inventions, and FRIENDS and SUPPORT. Our daughter discovered she was "not unusual" after meeting and playing with kids of all ages. AMC Support, Inc. is making it possible for parents like me to discover and share all the various aspects of living with a AMC person. Thank You AMC Support, Inc!" 

 ~ LonM10/30/2012 

 "Truthfully I am not only just a volunteer but a client served as well. I started out as a client served and continue as one but also I volunteer in moderating the chat that we hold every week online. The people I have met through this support group, AMCSI, have become my family. Without them I wouldn't be able to ask questions from the people who have been there and done that and I couldn't bond with the mothers and fathers who are going through it now or will be going through it soon. We are a family, we are friends. Two years I spent alone (besides my family) doing my best to flounder through therapies and surgeries and AMCSI offered up their memebers to help us through the hard times and find people who would share our small triumphs." 

 ~ Kristin D. Volunteer10/16/2012 

 "My son's condition was unknown to us so we were surprised at his birth about all the differences he had. When we found out that it was Arthrogryposis we started looking into things. I had even did a search trying to find support groups. I came up empty handed, but then a little before he had turned 2 yrs old I decided to look again and this time I must have put the right wording in because up came AMCSI. I had never felt more relieved in my life.. For almost 2 yrs I felt alone and then there it was my light to guide me through the tunnel. Everyone has been so wonderful and accepting and helpful. Having others who understand you is quite a wonderful feeling and I'm glad that I found AMCSI in that search." 

 ~ Anonymous04/21/2011 

 "My 3 year old son has Arthrogryposis, and this support group has been wonderful for our family. We have attended two conventions where we were able to meet with hundreds of other families with members who also have AMC. This condition is very rare, so it is vitally important to be as educated and supported as possible - and we have learned to much and have so much comfort in knowing we are a part of this support group and are connected to all the other families." 

 ~ Danielle17 Member08/10/2012 

 "When my son was diagnosed with AMC I immediately searched online to find some answers about why this happened and what I needed to do next. I came across amcsupport.org and was quickly greeted by others and welcomed onto the forums. I found answers to many questions and loads of support from others dealing with the same things. I was able to go to a convention and meet people of all ages affected by AMC. It was incredible! It was then that I knew my son was going to be ok." 

 ~ Jessilyn H. Volunteer06/22/2011 

 "This organization has been my saving grace. Last summer, I became the mother of a child with a mild case of AMC. Through this support group, I have had my hope renewed, and many, many questions answered. This group has shown me that children with AMC can thrive, and become well adjusted adults living close to "normal" lives. It has shown me that people with AMC don't have a disability, they have a "diff-ability". AMC'ers can do just about everything a 'typical' person does... they just may do it differently!" 

 ~ Jennifer N. Member06/22/2011 

 "As a 55 yr. old with AMC who had no contact with other AMC'ers until I was in my late 20's and only for one day. I was overjoyed to have discovered this ORG. It has enabled me to meet hundreds of AMC'ers virtually across the world. I'll be attending my first conference next month and will be meeting many more. The stories shared by these adults and parents of young children, and their kids, have been an incredible inspiration to me. They help me to see how far I have come in my journey with AMC and in turn enable me to light the way for them on the earliest steps on theirs. None of this would have been possible without this amazing ORG. I hope one day there will be no need for such an ORG. Until then, I hope it grows exponentially to envelope many many more in the support, knowledge and inspiration I have come to know and love through their heartfelt mission." 

 ~ Kathleen M.06/22/2011 

 "This support group is my extended family for my daughter. I do not know what I would do without the support and guidance we receive from them. They are our large extended family from around the world. AMC is not very known not only to special needs families, but unfortunately also many physicians. It is vital that we spread the word and raise awareness about AMC so that a family may be able to improve the quality of life their child may be living." 

 ~ kdavison 06/17/2011 

 "AMC Support Inc is the most wonderful thing to happen to our family and our diff-abled son. We wouldn't be where we are today without them. The information that is shared, the shoulders to lean on, the encouragement, I don't know what we'd do without them. The yearly conferences are amazing. It's so wonderful to meet so many people that are "just like us". Other children for my son to meet that are just like him, other parents who are going through the same thing. It's always a good time. Truely, we would not be where we are today with them. THANK YOU AMCSI! From the bottom of my heart, I can't say thank you enough for all you do!" 

 ~ Colsons Mom05/03/2011 

 "In 2005 I came in contact with Ani, little Abby's Mom.(Abby is the child that inspired amcsupport.org) Through emails and phone calls, I heard Ani talk about her "dream"... A Non Profit Support Organization for families affected by arthrogryposis. At the first Arthrogrposis Conference in Chicago IL2006, I was able to meet Ani, Abby and many other families. Right then and there I saw the need for Ani's DREAM... So I went home, teamed up with a few others and worked many hours to make her dream come true! In 2007 we became an official Non Profit organization! (501(c) (3) Through the past few years, I have meet many families from around the world. We have laughed, cried and shared our lives together. I can never explain excatly what my "AMC Family" means to me and how honored I am to have served as Vice President and now President of this great Organization!" 

 ~ Theresa L. Board Member05/03/2011 

 "When my son was born, my family felt completely alone, even many medical professionals had not heard of the rare neuromuscular condition arthrogryposis multiplex congenita. I found the group through a friend when my son was almost 5. It changed our lives. The group has done so much not only for my family,but also for may other framiles across the country and around the world. I have been honored to serve as the Vice President of the Board of Directors, and have recently begun serving as program chair. I volunteer many hours each week to assure that NO other family with a loved one with arthrogryposis feels isolated and alone." 

 ~ Michele S. Board Member04/28/2011 

 "I don't even know where to start! AMCSI owns a major part of my heart! My daughter Bailey was born with AMC August 21st 2008, we were un-aware of any complications before birth so when she was born with AMC my Husband and I were very shocked and scared. Doctors were telling us of the thing's she wouldn't be able to do, the affects, the therapies and doctors she would need to see.. etc. It was a very overwhelming expierence and we were very frightened. We found AMCSI through an internet search when Bailey was a few months old and it was the BEST link I could have ever clicked on in my entire life. They took my family in like their own, offered support and most of all friendship. They made us realize that it was not about what Bailey wouldn't be able to do but about what she WOULD be able to do! They squashed our fears and opened our hearts! I couldn't ask for a better organization to be apart of! I'm so blessed to know many warm-hearted people through this support group and I am thankful everyday for them!" 

 ~ Elicia.B. Member04/25/2011 

 "In January of 2009 I found out my baby had a congenital anomaly. I was given a few possible diagnoses. The day she was born we were given a definitive answer. My daughter had Arthrogryposis Multiplex Congenita. I was so confused and was looking for support. I found amcsupport.org. through an online search engine. Then I found the forums. I asked questions and received an instant answer from Tracey one of the board members. I have learned so much in the past two years. last year we even went to the 5th AMC convention. I had NEVER met anyone with AMC in person. I was so excited to see what they had to offer. I was able to attend workshops for me and workshops to learn about my daughter's AMC. I must say meeting adult AMC'ers as we call them was priceless. I cannot imagine my life without the AMCSI. If I have a question I know I can go to the forums and get an answer. They have many links that help us find resources in our area. I hope amcsupport.org and AMCSI is around forever. Two years ago I was alone. Now I have been embraced by a wonderful support group. Thank You AMCSI" 

 ~ Alanna O.04/23/2011 

 "AMC gave us HOPE when we were lost and had NO answers.....we absolutely LOVE them and we are CHANGED forever because of them.....you can read more about our story at http://graceemma.blogspot.com/ They have given us so much, now its time to give back!" ~ Erica P. Volunteer 04/18/2011 "I have watched AMCSI grow into a non profit over the years from the small informal group it started as. It began as a support group with online forums and has grown immensely over the years providing outreach to new families receiving the diagnosis, parents of children with AMC, and to adults with AMC from various parts of the globe. AMCSI provides a wonderful way to connect with others whether you are a new expecting parent, parent to a child with AMC, or an adult looking to connect with others that understand where you have been or what you are going through. Our "family" connects through the free online support forums and through the annual conference which is a wonderful time to network and learn about current treatment options, make new friends, meet old ones, and to receive support. I am very proud to be a part of this growing organization as it continues to bring support to AMCers, educate the public and medical field, and bring awareness to the public of what arthrogryposis multiplex congenita is." 

 ~ amcmaggie Board Member04/17/2011 

 "My daughter was diagnosed with AMC several months before she was born. We had never heard of her condition and couldn't even pronounce it. Because of the volunteers at AMCSupport.org, we changed from two terrified (and emotionally devastated) parents-to-be to educated and prepared parents. These complete strangers called us "Family" and patiently prepared us to be great parents to our sweet girl. If it weren't for this group of people, we would have settled for inferior treatment, thinking it was our only option. This is the greatest non profit in the world and it is made up of the best people in the world. I love AMCSupport.org and I love all the people that make it what it is." 

 ~ Jessi S.04/14/2011 

 "Best organization ever. Period. I won't be the only glowing testimonial so I'll keep it short. This organization has helped encourage and support me through the worst trials of my new life with a very special daughter. There were times I was at my worst and a word from a member put me to rights. I would not be as confident or happy today without them. My daughter stood for the first time after a surgery suggested to me by a board member. We were told she never would. Then after several ideas about physical therapy were shared she started self-feeding and using her arms more. Love this group!" 

 ~ Alexis W.04/14/2011 

### Testimonial Submission

##### All (required) (\*) documents must be sent to info@amcsupport.org

We will reach out you if further information is needed.

       Name   

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  Upload Your Photos *(each image must be under 10 mgs)*   

  Tell us your experience with this nonprofit (required):   

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**Categories:** About Us, Arthrogryposis, Board Of Directors Meetings, ByLaws &amp; Financials, Testimonials

**Tags:** About Us, Testimonials

---

### [All About AMC: Learning Together](https://amcsupport.org/all-about-amc-learning-together/)

**Published:** September 20, 2025
**Author:** Ted Houser

**Content:**

# All About AMC: Learning Together

**All ABOUT AMC: Learning Together** is a fun and easy-to-read information packet designed especially for children, families, and classmates who want to better understand Arthrogryposis Multiplex Congenita (AMC). Inside, you’ll find simple explanations, illustrations, and interactive pages that answer common questions like what AMC is, how to say it, and what it looks like in everyday life. You’ll also discover the unique strengths and possibilities of kids with AMC, **plus a page to personalize with your own story**. This packet is all about learning together and celebrating what makes each AMCer unique.

 [ ![AMCSI All About AMC Learning Together - packet cover](https://amcsupport.org/wp-content/uploads/2025/09/AMCSI_All-About-AMC-Learning-Together-cover.jpg) ](https://amcsupport.org/amcsi_all-about-amc-learning-together/) 

 [  View/Download English PDF  ](https://amcsupport.org/amcsi_all-about-amc-learning-together/) 

 [ ![AMCSI All About AMC Learning Together - packet Spanish cover](https://amcsupport.org/wp-content/uploads/2025/09/AMCSI_All-About-AMC-Learning-Together-Spanish-1.jpg) ](https://amcsupport.org/amcsi_all-about-amc-learning-together-spanish/) 

 [  View/Download Spanish PDF  ](https://amcsupport.org/amcsi_all-about-amc-learning-together-spanish/) 

### What is Arthrogryposis Multiplex Congenita (AMC)?

**Arthrogryposis** 
**→** Curved Joints‍️

**Multiplex** 
**→** Multiple

**Congenita** 
**→** Born with it

**For short: AMC 💙**

 ![Fun fact illustration with e lightbulb](https://amcsupport.org/wp-content/uploads/2025/09/fun-fact.png) 

“AMC affects 1 in 3,000 people… That means 1 in 3,000 people were born awesome!”

 ![What-is-AMC](https://amcsupport.org/wp-content/uploads/2025/09/What-is-AMC.png) 

### How to Say “Arthrogryposis”

**Ar →** “ARGHHH” like a pirate

**Thro →** “Throw a ball”

**Gry →** Rhymes with “Pie”

**Po →** Rhymes with “Poe” *(like Edgar Allan Poe)* 
**Sis →** Short for “Sister”

 ![Fun fact illustration with e lightbulb](https://amcsupport.org/wp-content/uploads/2025/09/fun-fact.png) 

“Now you can say it like a pro!”

 ![How to say Arthrogryposis](https://amcsupport.org/wp-content/uploads/2025/09/How-to-say.png) 

### What AMC Looks Like

- Some joints are stiff or curved
- Sometimes joints are “stuck” in one position
- Muscles may be smaller or weaker
- AMC can affect all joints in the body. You might be surprised that this can even include the jaw and spine, in addition to all the joints in the arms and legs
- Babies, teens, and adults live with Arthrogryposis.

 ![Fun fact illustration with e lightbulb](https://amcsupport.org/wp-content/uploads/2025/09/fun-fact.png) 

“There are more than 520 different types of AMC!”

 ![What AMC Looks Like](https://amcsupport.org/wp-content/uploads/2025/09/What-AMC-looks-like.png) 

### AMC in Everyday Life *(Pt. 1)*

These pages explain what classmates might notice and how AMC affects day-to-day activities:

- People with AMC might move differently Some use wheelchairs, walkers, braces, or hand splints
- You may see students wearing casts or devices that help with movement

Many kids with AMC have surgeries, casting, or therapy:

- Physical Therapy (PT)
- Occupational Therapy (OT)
- Speech Therapy
- Most AMCers wear foot braces (AFOs or KAFOs) to stretch joints or help with positioning

 ![AMC everyday life part 1](https://amcsupport.org/wp-content/uploads/2025/09/AMC-everyda-life-pt1.png) 

### AMC in Everyday Life *(Pt. 2)*

- Some use speaking devices to communicate
- Others use adaptive feeding tools, like the a robotic feeding device, a raised surface for a plate or sandwich access, or special utensils
- Computers, dictation software, and speak-to-type programs may help AMCers with schoolwork
- Some AMCers need aides or nurses to help with restroom breaks, while others may have a one-on-one aide or 
    paraprofessional to help them participate in class and meal activities

 ![AMC everyday life part 2](https://amcsupport.org/wp-content/uploads/2025/09/AMC-everyda-life-pt2.png) 

### AMC in Everyday Life *(Pt. 3)*

- AMCers may use a tool that helps them raise their hand in class
- Some AMCers have more than one diagnosis or disability, 
    such as:
    – Autism 
    – Vision differences including low vision and even blindness 
    – Hearing differences
    – Other medical or developmental challenges
- AMCers have times that they miss school for doctors’ appointments/surgeries & return with casts/splints

 ![Fun fact illustration with e lightbulb](https://amcsupport.org/wp-content/uploads/2025/09/fun-fact.png) 

“Every AMCer is unique, and each one has different strengths, needs, and abilities!”

 ![AMC everyday life part 3](https://amcsupport.org/wp-content/uploads/2025/09/AMC-everyda-life-pt3.png) 

### AMC Superpowers & Possibilities

- AMCers are often described as:
    – Smart – Tough – Resourceful
- AMCers grow up to be incredible people doing incredible things!
- We have AMCers who are:
    – Doctors and Nurses
    – Lawyers, Paralegals, Court Reporters, and Advocates
    – Athletes and Olympians
    – Artists, Musicians, Actors, and Professional Dancers
    – Entrepreneurs, Rangers, Accountants, Engineers & Educators 
    – And More!

 ![Fun fact illustration with e lightbulb](https://amcsupport.org/wp-content/uploads/2025/09/fun-fact.png) 

“The sky’s the limit!”

 ![AMC superpowers & possibilities](https://amcsupport.org/wp-content/uploads/2025/09/AMC-superpowers.png) 

### How to Be a Good Friend

Tips for classmates:

- Ask before helping
- Be patient
- Include everyone
- Celebrate differences
- Be curious, not judgmental
- Share your similar interests

 ![Kindness Reminder](https://amcsupport.org/wp-content/uploads/2025/09/kindness-reminder.png) 

“We’re all unique and that’s what makes us awesome!”

 ![How to be a good friend](https://amcsupport.org/wp-content/uploads/2025/09/Be-A-good-friend.png) 

### You Can Make a Difference!

- Every June, the world comes together to raise awareness for Arthrogryposis Multiplex Congenita (AMC).
    • June 30th is Arthrogryposis Awareness Day
    • The entire month of June is AMC Awareness Month
- How You Can Help
    • Wear blue any day of the year to show your support
    • Share what you’ve learned about AMC with friends, family, and your community
    • Celebrate AMCers, whether it’s on birthdays, school spirit days, or community events
- Stay Connected & Take Action
    Your voice matters. Your support matters. Together, we make a difference.
- Learn more, access resources, and join our global AMC Community at:

**Categories:** Where To Start

**Tags:** All About AMC, Learning Together, Resources

---

### [Find A Doctor](https://amcsupport.org/find-a-doctor/)

**Published:** December 10, 2023
**Author:** Ted Houser

**Content:**

![AMCSI_find-a-doctor_hdr-1080](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI_find-a-doctor_hdr-1080.jpg) 

# Find A Doctor

Are you a Doctor or Practicing Physician who sees AMC patients & not on this list? Please click the button below to get listed.

You can also use this form to update your photo or information.

 [  Submit/Update Doctor's Information  ](https://amcsupport.org/find-a-doctor/#find-doctor) 

We have collected a list of physicians based on the ones we have been made aware of. If you’re familiar with other specialists, please [email us](mailto:info@amcsupport.org) & we will update the list.
[Australia](https://amcsupport.org/find-a-doctor/#australia) | [Canada](https://amcsupport.org/find-a-doctor/#canada) | [Philippines](https://amcsupport.org/find-a-doctor/#philippines) | [United Kingdom](https://amcsupport.org/find-a-doctor/#unitedkingdom) | [United States](https://amcsupport.org/find-a-doctor/#usa)

**Doctors By US States**
[Arizona](https://amcsupport.org/find-a-doctor/#arizona) | [Boston](https://amcsupport.org/find-a-doctor/#boston) | [California](https://amcsupport.org/find-a-doctor/#california) | [Colorado](https://amcsupport.org/find-a-doctor/#colorado) | [Connecticut](https://amcsupport.org/find-a-doctor/#connecticut) | [Deleware](https://amcsupport.org/find-a-doctor/#deleware) | [Florida](https://amcsupport.org/find-a-doctor/#florida) | [Georgia](https://amcsupport.org/find-a-doctor/#georgia) | [Iowa](https://amcsupport.org/find-a-doctor/#iowa) | [Illinois](https://amcsupport.org/find-a-doctor/#illinois) | [Indiana](https://amcsupport.org/find-a-doctor/#indiana) | [Kentucky](https://amcsupport.org/find-a-doctor/#kentucky) | [Louisiana](https://amcsupport.org/find-a-doctor/#louisiana) | [Maryland](https://amcsupport.org/find-a-doctor/#maryland) | [Michigan](https://amcsupport.org/find-a-doctor/#michigan) | [Minnesota](https://amcsupport.org/find-a-doctor/#minnesota) | [Missouri](https://amcsupport.org/find-a-doctor/#missouri) | [North Carolina](https://amcsupport.org/find-a-doctor/#northcarolina) | [New York](https://amcsupport.org/find-a-doctor/#newyork) | [Ohio](https://amcsupport.org/find-a-doctor/#ohio) | [Oregon](https://amcsupport.org/find-a-doctor/#oregon) | [Pennsylvania](https://amcsupport.org/find-a-doctor/#pennsylvania) | [South Carolina](https://amcsupport.org/find-a-doctor/#southcarolina) | [South Dakota](https://amcsupport.org/find-a-doctor/#southdakota) | [Tennesse](https://amcsupport.org/find-a-doctor/#tennesse) | [Texas](https://amcsupport.org/find-a-doctor/#texas) | [Virginia](https://amcsupport.org/find-a-doctor/#virginia)

### Australia

 ![Dr. Matthias Axt](https://amcsupport.org/wp-content/uploads/2023/12/DrMatthiasAxt-2.jpg) 

### Dr. Matthias Axt

***Pediatric Ortho Lower
Children’s Hospital at Westmead***
Locked Bag 4001 Westmead, 2145 Australia
**Phone: (02) 9845 2879**

### Canada

 ![Dr. Debra Bartley](https://amcsupport.org/wp-content/uploads/2023/12/DrDebraBartley.jpg) 

### Dr. Debra Bartley

***Orthopedic Surgery
Children’s Hospital London Ontario***
800 Commissioners Road, East 
London, Ontario | N6A 5W9. Canada
**Phone: (519) 685-8021**

 ![Dr. Reggie C. Hamdy](https://amcsupport.org/wp-content/uploads/2023/12/DrReggieCHamdy_.jpg) 

### Dr. Reggie C. Hamdy

***Pediatric Ortho Upper
Shriner’s Hospital of Canada***
1003 Boulevard Decarie, Montreal
Quebec | H4A 0A9, Canada
**Phone: (514) 842-4464**

 ![Dr. Chantal Janelle](https://amcsupport.org/wp-content/uploads/2023/12/DrChantalJanelle.jpg) 

### Dr. Chantal Janelle

***Pediatric Ortho Upper
Shriner’s Hospital of Canada***
1003 Boulevard Decarie, Montreal
Quebec | H4A 0A9, Canada
**Phone: (514) 842-4464**

 ![Dr. Maryse Bouchard](https://amcsupport.org/wp-content/uploads/2024/02/Dr-headshot-dr-maryse-bouchard.jpg) 

### Dr. Maryse Bouchard

***Pediatric Orthopedic Surgeon, Lower Limbs and Clubfoot
The Hospital for Sick Children***
555 University Ave
Toronto, Ontario
Canada
**Phone: (416) 813-5840**
*press 3*

### Philippines

 ![Dr. Julyn Aguilar](https://amcsupport.org/wp-content/uploads/2023/12/Dr-Julyn-Aguilar.jpg) 

### Dr. Julyn Aguilar

***Pediatric Orthopedic
St. Luke’s Medical Center***
Rizal Drive corner 32nd Street
Bonifacio Global City, Taguig
Metro Manila, Philippines
**Phone: +63 2 789 7700**

### United Kingdom

 ![Dr. Gráinne Bourke](https://amcsupport.org/wp-content/uploads/2023/12/Miss_Grainne_Bourke.jpg) 

### Dr. Gráinne Bourke

***Consultant Plastic, Reconstructive & Hand Surgeon 
Leeds Teaching Hospital***
Harehills Leeds
West Yorkshire, LS9 7LN
United Kingdom
**Phone: +44 (0)113 243 3144**

 ![Dr. Andrea Jester](https://amcsupport.org/wp-content/uploads/2023/12/Miss_Andrea_Jester.jpg) 

### Dr. Andrea Jester

***Consultant Plastic and Hand Reconstruction Surgeon
Bimingham Childrens Hospital***
Steelhouse Lane
Bimingham, B4 6NH 
United Kingdom
**Phone: +44 (0)121 333 9999**

 ![Dr. Ruth Lester](https://amcsupport.org/wp-content/uploads/2023/12/Miss_Ruth_Lester.jpg) 

### Dr. Ruth Lester

***Consultant Plastic, Reconstructive & Hand Surgeon
Birmingham Children’s Hospital***
Steelhouse Lane
Bimingham, B4 6NH 
United Kingdom
**Phone: +44 (0)121 333 9999**

 ![Dr. Hari Prem](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Hari_Prem.jpg) 

### Dr. Hari Prem

***Orthopedic Lower 
Multiple***
81 Harborne Road
Edgbaston Birmingham, B152FL
United Kingdom
**Phone: 121 450 8928**

**Doctors By US States**
[Arizona](https://amcsupport.org/find-a-doctor/#arizona) | [Boston](https://amcsupport.org/find-a-doctor/#boston) | [California](https://amcsupport.org/find-a-doctor/#california) | [Colorado](https://amcsupport.org/find-a-doctor/#colorado) | [Connecticut](https://amcsupport.org/find-a-doctor/#connecticut) | [Deleware](https://amcsupport.org/find-a-doctor/#deleware) | [Florida](https://amcsupport.org/find-a-doctor/#florida) | [Georgia](https://amcsupport.org/find-a-doctor/#georgia) | [Iowa](https://amcsupport.org/find-a-doctor/#iowa) | [Illinois](https://amcsupport.org/find-a-doctor/#illinois) | [Indiana](https://amcsupport.org/find-a-doctor/#indiana) | [Kentucky](https://amcsupport.org/find-a-doctor/#kentucky) | [Louisiana](https://amcsupport.org/find-a-doctor/#louisiana) | [Maryland](https://amcsupport.org/find-a-doctor/#maryland) | [Michigan](https://amcsupport.org/find-a-doctor/#michigan) | [Minnesota](https://amcsupport.org/find-a-doctor/#minnesota) | [Missouri](https://amcsupport.org/find-a-doctor/#missouri) | [North Carolina](https://amcsupport.org/find-a-doctor/#northcarolina) | [New York](https://amcsupport.org/find-a-doctor/#newyork) | [Ohio](https://amcsupport.org/find-a-doctor/#ohio) | [Oregon](https://amcsupport.org/find-a-doctor/#oregon) | [Pennsylvania](https://amcsupport.org/find-a-doctor/#pennsylvania) | [South Carolina](https://amcsupport.org/find-a-doctor/#southcarolina) | [South Dakota](https://amcsupport.org/find-a-doctor/#southdakota) | [Tennesse](https://amcsupport.org/find-a-doctor/#tennesse) | [Texas](https://amcsupport.org/find-a-doctor/#texas) | [Virginia](https://amcsupport.org/find-a-doctor/#virginia)

### USA | Arizona

 ![Dr. Mohan Belthur](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Mohan_Belthur.jpg) 

### Dr. Mohan Belthur

*Phoenix Children’s Hospital
Arthrogryposis Clinic* 
1919 E Thomas Rd.
Phoenix, AZ 85016
Phone: (602) 933-0044

### USA | Boston

 ![Dr. Collin May](https://amcsupport.org/wp-content/uploads/2023/12/Dr-headshot-Dr-Collin-May.jpg) 

### Dr. Collin May

*Boston Children’s Hospital
Orthopedic Surgery – Lower Extremity Program*
300 Longwood Ave.
Boston, MA 02115
Phone: (617) 355-6021

 ![Dr. Samantha Spencer](https://amcsupport.org/wp-content/uploads/2023/12/Dr-headshot-Dr_Samantha_Spencer.jpg) 

### Dr. Samantha Spencer

*Boston Children’s Hospital
Orthopedic Surgery – Lower Extremity Program*
300 Longwood Ave.
Boston, MA 02115
Phone: (617) 355-6021

### USA | California

 ![Dr. Robert Kay](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Robert_Kay.jpg) 

### Dr. Robert Kay

*Pediatric Ortho Lower
Children’s Hospital Los Angeles*
4650 Sunset Blvd.
Los Angeles, CA 90027
Phone: (323) 361-2142

 ![Dr. Joan Wright](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Joan_Wright.jpg) 

### Dr. Joan Wright

*Pediatric Ortho Upper
Orthopedic Institute for Children*
403 West Adams Blvd.
Los Angeles, CA 90007
Phone: (213) 741-8330

 ![Dr. Candice McDaniel](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Candice_McDaniel.jpg) 

### Dr. Candice McDaniel

*Pediatric Ortho Upper
Shriners Hospitals for Children
Northern California*
2425 Stockton Blvd.
Sacramento, CA 95817
Phone: (916) 453-2000

 ![Dr. Deirdre Ryan](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Deirdre_Ryan.jpg) 

### Dr. Deirdre Ryan

*Pediatric Ortho Lower
Children’s Hospital Los Angeles*
4650 Sunset Blvd.
Los Angeles, CA 90027
Phone: (323) 361-2142

 ![Dr. Nina Lightdale-Miric](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Nina_Lightdale-Miric.jpg) 

### Dr. Nina Lightdale-Miric

*Pediatric Ortho Upper
Children’s Hospital Los Angeles*
4650 Sunset Blvd.
Los Angeles, CA 90027
Phone: (323) 361-2142

 ![Dr. Mark Krieger](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Mark_Krieger.jpg) 

### Dr. Mark Krieger

*Neurology Spine
Children’s Hospital Los Angeles*
4650 Sunset Blvd.
Los Angeles, CA 90027
Phone: (323) 361-2169

 ![Dr. Lisa Lattanza](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Lisa_Lattanza.jpg) 

### Dr. Lisa Lattanza

*Pediatric Ortho Upper
Shriners Hospitals for Children
Northern California*
2425 Stockton Blvd.
Sacramento, CA 95817
Phone: (916) 453-2000

 ![Dr. Jennette Boakes](https://amcsupport.org/wp-content/uploads/2023/12/Dr-Jennette-Boakes.jpg) 

### Dr. Jennette Boakes

*Pediatric Ortho Lower
Shriners Hospitals for Children
Northern California*
2425 Stockton Blvd.
Sacramento, CA 95817
Phone: (916) 453-2000

 ![Dr. Michelle James](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Michelle_James.jpg) 

### Dr. Michelle James

*Pediatric Ortho Upper
Shriners Hospitals for Children
Northern California*
2425 Stockton Blvd.
Sacramento, CA 95817
Phone: (916) 453-2000

 ![Dr. Joel Lerman](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Joel_Lerman.jpg) 

### Dr. Joel Lerman

*Pediatric Ortho Lower
Shriners Hospitals for Children
Northern California*
2425 Stockton Blvd.
Sacramento, CA 95817
Phone: (916) 453-2000

 ![Dr. Micah K. Sinclair](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Micah_K_Sinclair.jpg) 

### Dr. Micah K. Sinclair

*Pediatric Hand Surgery
Shriners Children’s Hospital Northern California, UC Davis Medical Center*
2425 Stockton Blvd.
Sacramento, CA 95817
Phone: (916) 453-2191

### USA | Colorado

 ![Dr. Laurel Benson](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Laurel_Benson.jpg) 

### Dr. Laurel Benson

*Pediatric Ortho Upper
Rocky Mountain Hospital for Children*
2055 High St , Suite 130
Denver, CO 80205
Phone: (303) 861-2663

 ![Dr-headshot-dr-sarah-sibbel](https://amcsupport.org/wp-content/uploads/2024/02/Dr-headshot-dr-sarah-sibbel.jpg) 

### Dr. Sarah Sibbel, MD

*Pediatric Hand and Upper
Children’s Hospital Colorado*
13123 East 16th Avenue
Aurora CO 80045
Phone: (720)777-6600

 ![Dr-headshot-dr-frank-scott](https://amcsupport.org/wp-content/uploads/2024/02/Dr-headshot-dr-frank-scott.jpg) 

### Dr. Frank Scott, MD

*Hand Wrist & Elbow (Adult and Pediatric Orthopedics)
Children’s Hospital Colorado*
13123 East 16th Avenue
Aurora CO 80045
Phone: (720) 777-6600 

### USA | Connecticut

 ![Dr. David Frumberg](https://amcsupport.org/wp-content/uploads/2023/12/Dr_David_Frumberg.jpg) 

### Dr. David Frumberg

*Pediatric/Adult Ortho
Yale University*
47 College Street, Room 221
New Haven, CT 06510
Phone: (203) 785-2579

### USA | Deleware

 ![Dr. Jennifer Ty](https://amcsupport.org/wp-content/uploads/2023/12/Dr-Jennifer-Ty.jpg) 

### Dr. Jennifer Ty

*Pediatric Ortho Hand
AI Dupont Hospital*
1600 Rockland Rd.
Wilmington, DE 19803
Phone: (800) 416-4441

 ![Dr. Reid Nichols from Nemours](https://amcsupport.org/wp-content/uploads/2025/01/Dr-headshots-Dr-Reid-Nichols.jpg) 

### Dr. Louise Reid Nichols

*Pediatric Ortho lower
AI Dupont Hospital*
1600 Rockland Rd.
Wilmington, DE 19803
Phone: (800) 416-4441

### USA | Florida

 ![Dr. David Feldman](https://amcsupport.org/wp-content/uploads/2023/12/Dr_David_Feldman.jpg) 

### Dr. David Feldman

*Adults and Children
Paley Orthopedic & Spine Institute
St. Mary’s Medical Center*
901 45th Street
Kimmel Building
West Palm Beach, FL 33407
Phone: (561) 844-5255

 ![Dr. Matthew Dobbs](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Matthew_Dobbs.jpg) 

### Dr. Matthew Dobbs

*Pediatric Orthopedic
St. Mary’s Medical Center*
901 45th Street
Kimmel Building
West Palm Beach, FL 33407
Phone: (561) 844-5255

 ![Dr. Timothy J. Irwin, MD](https://amcsupport.org/wp-content/uploads/2026/04/Dr_Timothy_J_Irwin_MD.jpg) 

### Dr. Timothy J. Irwin, MD

*Pediatric Hand & Upper Extremity
Rothman Orthopedics/AdventHealth for Children*
265 East Rollins Street, Suite 11100
Orlando, FL 32804
Phone: (844) 407-4070

 ![20th Annual AMCSI Conference Guest Speaker Dr. Aaron Huser](https://amcsupport.org/wp-content/uploads/2024/07/Dr-Aaron-Huser.jpg) 

### Dr. Aaron Huser

*Lower Extremity
Paley Orthopedic & Spine Institute*
901 45th Street
Kimmel Building
West Palm Beach, FL 33407
**Phone: (561) 844-5255**

 ![Speaker Dr. Arun Hariharan at the 19th Annual AMCSI Conference in Atlanta, Georgia](https://amcsupport.org/wp-content/uploads/2024/05/Speaker-Dr-Arun-Hariharan.jpg) 

### Dr. Arun Hariharan

*Pediatric Orthopedic & Spine
Paley Orthopedic & Spine Institute*
901 45th Street
Kimmel Building
West Palm Beach, FL 33407
**Phone: (561) 844-5255**

### USA | Georgia

 ![Dr. Joshua Ratner](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Joshua_Ratner.jpg) 

### Dr. Joshua Ratner

*Adults & Children
The Hand & Upper Extremities*
980 Johnson Ferry Rd., NE
Suite 1020
Atlanta, GA 30342
Phone: (404) 255-0226

 ![Dr. Allan Peljovich](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Allan_Peljovich.jpg) 

### Dr. Allan Peljovich

*Adults & Children
The Hand & Upper Extremities*
980 Johnson Ferry Rd., NE
Suite 1020
Atlanta, GA 30342
Phone: (404) 255-0226

 ![Dr. Bronier Costas](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Bronier_Costas.jpg) 

### Dr. Bronier Costas

*Adults & Children
The Hand & Upper Extremities*
980 Johnson Ferry Rd., NE
Suite 1020
Atlanta, GA 30342
Phone: (404) 255-0226

 ![Dr. Gary Lourie](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Gary_Lourie.jpg) 

### Dr. Gary Lourie

*Adults & Children
The Hand & Upper Extremity*
980 Johnson Ferry Rd., NE
Suite 1020
Atlanta, GA 30342
Phone: (404) 255-0226

 ![Dr. Jeffrey Klugman](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Jeffrey_Klugman.jpg) 

### Dr. Jeffrey Klugman

*Adults & Children
The Hand & Upper Extremities*
980 Johnson Ferry Rd., NE
Suite 1020
Atlanta, GA 30342
Phone: (404) 255-0226

 ![Dr. Bryce Gillespie](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Bryce_Gillespie.jpg) 

### Dr. Bryce Gillespie

*Adults & Children
The Hand & Upper Extremities*
980 Johnson Ferry Rd., NE
Suite 1020
Atlanta, GA 30342
Phone: (404) 255-0226

 ![Dr. Erika Templeton](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Erika_Templeton.jpg) 

### Dr. Erika Templeton

*Adults & Children The Hand & Upper Extremities*
980 Johnson Ferry Rd., NE
Suite 1020
Atlanta, GA 30342
Phone: (404) 255-0226 

 ![Dr. Forbes](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Forbes.jpg) 

### Dr. Forbes

*Primary Pediatrics
Cobb Pediatrics*
3405 Dallas Hwy SW
\#300
Marietta, GA 30064

### USA | Iowa

 ![Dr. Jose Morcuende](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Jose_Morcuende.jpg) 

### Dr. Jose Morcuende

*Pediatric Orthopedic
The University of Iowa Hospital*
200 Hawkins Drive
Iowa City, IA 52242
Phone: (800) 777-8442

### USA | Illinois

 ![Dr. Terry Light](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Terry_Light.jpg) 

### Dr. Terry Light

*Orthopedics Uppers
Loyola Medicine*
2160 S 1st Ave
Maywood, IL 60153
Phone: (708) 216-4570

 ![Dr. Luciano Dias](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Luciano_Dias.jpg) 

### Dr. Luciano Dias

*Orthopedic Lower
Rehabilitation Institute of Chicago*
345 East Superior Street
Chicago, IL 60611
Phone: (800) 354-7342

 ![Dr. Vineeta T. Swaroop](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Vineeta_T_Swaroop-3.jpg) 

### Dr. Vineeta T. Swaroop

*Orthopedic Lowers
Rehabilitation Institute of Chicago*
345 East Superior Street
Chicago, IL 60611
Phone: (800) 354-7342

 ![Dr. Jeffrey Ackman](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Jeffrey_Ackman.jpg) 

### Dr. Jeffrey Ackman

*Pediatric Ortho Lower
Shriners Chicago*
2211 N Oak Park Ave.
Chicago, IL 60707
Phone: (773) 622-5400

### USA | Indiana

 ![Dr. Susan Cordes](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Susan_Cordes.jpg) 

### Dr. Susan Cordes

*Genetic Counselor
Maternal Fetal Medicine*
7120 Clearvista Way
\#5900
Indianapolis, IN 46256
Phone: (317) 621-9210

### USA | Kentucky

 ![Dr. Henry Iwinski](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Henry_Iwinski.jpg) 

### Dr. Henry Iwinski

*Pediatric Orthopedic
Shrines Hospital Lexington*
1900 Richmond Rd.
Lexington, KY 40502
Phone: (859) 266-2101

### USA | Louisiana

 ![Dr. William Accousti](https://amcsupport.org/wp-content/uploads/2023/12/Dr_William_Accousti.jpg) 

### Dr. William Accousti

*Pediatric Ortho
Lowe
Children’s Hospital New Orleans*
200 Henry Clay Ave.
New Orleans, LA 70118
Phone: (504) 896.9569

### USA | Maryland

 ![Dr. Heather Lochner](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Heather_Lochner.jpg) 

### Dr. Heather Lochner

*Pediatric Ortho Hand
John Hopkins Children’s*
1800 Orleans Street
Baltimore, MD 21287
Phone: (410) 955-5000

 ![Dr. John Tis](https://amcsupport.org/wp-content/uploads/2023/12/Dr_John_Tis.jpg) 

### Dr. John Tis

*Pediatric Ortho
John Hopkins Children’s*
1800 Orleans Street
Baltimore, MD 21287
Phone: (410) 955-5000

 ![Dr. Mary Garza](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Mary_Garza.jpg) 

### Dr. Mary Garza

*Pediatrician
Maryland Pediatric Group*
10807 Falls Road
Suite 200
Lutherville, MD 21093
Phone: (410) 321-9393

 ![Dr. Joshua Abzug](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Joshua_Abzug.jpg) 

### Dr. Joshua Abzug

*Pediatric Orthopedics
University of Maryland*
1 Texas Station Court
Suite 300
Timonium, MD 21093
Phone: (410) 328-2999

 ![Dr. Paul Sponseller](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Paul_Sponseller.jpg) 

### Dr. Paul Sponseller

*Johns Hopkins Outpatient Center*
601 N. Caroline St.
5th Floor
Baltimore, MD 21287
Phone: (443) 997-2663

 ![Dr. Ranjit Varghese](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Ranjit_Varghese.jpg) 

### Dr. Ranjit Varghese

*Johns Hopkins Outpatient Center*
601 N. Caroline St.
5th Floor
Baltimore, MD 21287
Phone: (443) 997-2663

### USA | Michigan

 ![Dr. Michael Forness](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Michael_Forness.jpg) 

### Dr. Michael Forness

*Pediatric Orthopedic
Devos Childrens Hospital*
35 Michigan St NE
\#4150
Grand Rapids, MI 49503
Phone: (616) 267-2600

 ![Dr. Phillip Nowicki](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Phillip_Nowicki.jpg) 

### Dr. Phillip Nowicki

*Pediatric Ortho
Helen DeVos Childrens Hospital*
35 Michigan St. NE
Grand Rapids, MI 49503
Phone: (616) 267-2600

### USA | Minnesota

 ![Dr. Steven Moran](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Steven_Moran.jpg) 

### Dr. Steven Moran

*Orthopedic Hand
Mayo Clinic – Minnesota*
200 First St. SW
Rochester, MN 55905
Phone: (507) 538-3270

 ![Dr-headshot-dr-ann-van-heest](https://amcsupport.org/wp-content/uploads/2024/02/Dr-headshot-dr-ann-van-heest.jpg) 

### Dr. Ann Van Heest, MD

*Pediatric Orthopedic Hand Surgeon
Gillette Children’s*
200 University Avenue East
St. Paul, MN 55101
Phone: (651) 291-2848

 ![Dr. tenner Guillaume, MD](https://amcsupport.org/wp-content/uploads/2024/02/Dr-headshot-dr-tenner-guillaume-md.jpg) 

### Dr. Tenner Guillaume, MD

*Pediatric Spine Surgeon
Gillette Children’s*
200 University Avenue East
St. Paul, MN 55101
Phone: (651) 291-2848

 ![Dr-headshot-dr-alison-schiffern](https://amcsupport.org/wp-content/uploads/2024/02/Dr-headshot-dr-alison-schiffern.jpg) 

### Dr. Alison Schiffern, MD

*Pediatric Orthopedic Surgeon
Gillette Children’s*
200 University Avenue East
St. Paul, MN 55101
Phone: (651) 291-2848

 ![Dr-headshot-dr-joel-kolmodin-md](https://amcsupport.org/wp-content/uploads/2024/02/Dr-headshot-dr-joel-kolmodin-md.jpg) 

### Dr. Joel Kolmodin, MD

*Pediatric Orthopedics
Essentia Health-Duluth Clinic 3rd Street (Building F)*
400 E 3rd St
 Duluth, MN 55805 
Phone: (218) 786-8364

 ![Dr-headshot-dr-todd-a-milbrandt-md](https://amcsupport.org/wp-content/uploads/2024/02/Dr-headshot-dr-todd-a-milbrandt-md.jpg) 

### Dr. Todd A. Milbrandt, M.D.

*Pediatric Orthopedic Surgeon
Mayo Clinic* 
Rochester, MN 
Phone: (507) 405-2631

 ![Dr. Walter Troung](https://amcsupport.org/wp-content/uploads/2024/02/Dr-headshot-dr-walter-troung.jpg) 

### Dr. Walter Truong

*Pediatric Orthopedic and Spine Surgeon
Gillette Children’s*
200 University Avenue East
St. Paul, MN 55101
Phone: (651) 291-2848

### USA | Missouri

 ![Dr. Charles Goldfarb, M.D.](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Charles_Goldfarb.jpg) 

### Dr. Charles Goldfarb, M.D.

*Upper extremities- Children & Adults
Shriners Hospitals for Children — St. Louis*
4400 Clayton Ave. 
St. Louis, MO 63110
Phone: (314) 432-3600
& 
*St. Louis Children’s Hospital*
One Children’s Place
St. Louis, MO 63110
Phone: (314) 514-3500.
[Dr. Charles Goldfarb’s Blog](http://congenitalhand.wustl.edu/search/label/Arthrogryposis)

 ![Dr. Lindley Wall](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Lindley_Wall.jpg) 

### Dr. Lindley Wall

*Upper extremities- Children & Adults
Shriners Hospitals for Children — St. Louis*
4400 Clayton Ave.
St. Louis, MO 63110
Phone: (314) 432-3600

& 
*St. Louis Children’s Hospital*
One Children’s Place
St. Louis, MO 63110
Phone: (314) 514-3500.

### USA | New York

 ![Dr. David M Scher](https://amcsupport.org/wp-content/uploads/2023/12/Dr_David_M_Scher.jpg) 

### Dr. David M Scher

*Pediatric Ortho Lower
Hospital for Special Surgeries*
535 East 70th Street
New York, NY 10021
Phone: (212) 606-1253

 ![Dr. David Chiu](https://amcsupport.org/wp-content/uploads/2023/12/Dr_David_Chiu.jpg) 

### Dr. David Chiu

*Orthopedic Hand/ Plastic Surgery
NYU Langone*
900 Park Ave.
New York, NY 10021
Phone: (212) 879-8880

 ![Dr. Wesley Carrion](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Wesley_Carrion.jpg) 

### Dr. Wesley Carrion

*Pediatric Orthopedic
Stony Brook Children’s Hospital*
101 Nicholls Road
Stony Brook, NY 11794
Phone: (631) 689-8333

 ![Speaker-Dr-Dan-REV](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Dr-Dan-REV.jpg) 

### Dr. Dan A. Zlotolow

*Orthopaedic Hand Surgery/Pediatric and Adult
The Hospital for Special Surgery*
523 East 72nd Street, 2nd Floor
New York, NY 10021
Phone: (212) 774-2642

 ![Dr. Nina Bakoyiannis, PhD](https://amcsupport.org/wp-content/uploads/2026/04/Dr_Nina_Bakoyiannis.jpg) 

### Dr. Nina Bakoyiannis, PhD

**NYS Clinical Psychologist** 
150 E 58th Street,, 2nd Floor – SelfWorks
New York, NY 10155
Phone: (732) 347-6359‬
NinaBakoPhD@gmail.com
NinaBakoPhD.com

 ![Dr. Harold J.P. van Bosse](https://amcsupport.org/wp-content/uploads/2024/03/2_AMCSI-Meet-The-Team-Dr-Harold_van-Bosse.jpg) 

### Dr. Harold J. P. van Bosse

*Pediatric Orthopedic Surgery, Orthopedic Surgery
Good Samaritan University Hospital*
1223 Montauk Highway, Suite B
Oakdale, NY 11769
Phone: (631) 228-5525

### USA | North Carolina

 ![Dr. Kelly Vanderhave](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Kelly_Vanderhave.jpg) 

### Dr. Kelly Vanderhave

*Pediatric Ortho Lower
Levine Children’s Specialty Center – Pediatric Orthopaedics*
1001 Blythe Blvd.
Suite 200
Charlotte, NC 28203
Phone: (704) 381-8870

 ![Dr L Andrew Koman MD](https://amcsupport.org/wp-content/uploads/2025/05/Dr-headshots-Dr-L-Andrew-Koman-MD.jpg) 

### Dr. L. Andrew Koman, MD

 *Pediatric Orthopaedics Hand & Upper Extremity
Levine Children’s Specialty Center – Atrium Health Wake Forest Baptist Orthopaedics and Sports Medicine – Medical Plaza Miller*
131 Miller St
Winston Salem, NC 27103
Phone: (336) 716-8200

### USA | North Dakota

 ![Dr. Kari Casas](https://amcsupport.org/wp-content/uploads/2024/02/Dr-headshot-dr-kari-casas.jpg) 

### Dr. Kari Casas

*Pediatric Geneticist 
Sanford Veterans Square Clinic*
3955 56th St. S..
Suite D
Fargo, North Dakota 58104
Phone: (701) 234-2431 

 ![Dr. Brian Sauer](https://amcsupport.org/wp-content/uploads/2024/02/Dr-headshot-dr-brian-sauer.jpg) 

### Dr. Brian Sauer

*Pediatric Orthopedics Surgeon
SSanford Orthopedics & Sports Medicine Fargo*
1720 University Drive S.
Fargo, North Dakota 58103
Phone: (701) 417-6000 

### USA | Ohio

 ![Dr. Roger Cornwall](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Roger_Cornwall.jpg) 

### Dr. Roger Cornwall

*Pediatric Ortho Upper
Children’s Hospital of Cincinnati*
3333 Burnet Ave.
Cincinnati, OH 45229
Phone: (513) 636-4785

 ![Molly Thomas, PT, DPT](https://amcsupport.org/wp-content/uploads/2023/12/Molly_Thomas_PT_DPT_PCS.jpg) 

### Molly Thomas

*Molly.Thomas@cchmc.org
Molly Thomas, PT, DPT, PCS*
Cincinnati, Ohio
Phone: (513) 636-4651
Fax: (513) 636-7975

 ![Dr. Melissa Martinek](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Melissa_Martinek.jpg) 

### Dr. Melissa Martinek

*Pediatric Ortho Lower
Dayton Children’s Hospital*
Various cities in Ohio
Phone: (937) 641-3010
[Schedule Apt.](https://www.childrensdayton.org/doctors/melissa-martinek-do-phd?fbclid=IwAR17rYts0ArNc3NGO6wJSzi-FijmyBO-18Mue6s-hITkKtcrS1r9L42E9b8)

 ![20th Annual AMCSI Conference Guest Speaker Dr. Stephanie Russo](https://amcsupport.org/wp-content/uploads/2024/02/Dr-headshot-dr-stephanie-russo.jpg) 

### Dr. Stephanie Russo, MD, PhD

*Pediatric Hand and Peripheral Nerve Surgeon 
Akron Children’s* 
One Perkins Square
Akron, Ohio 44308
Phone: (330) 543-1000  

 ![Dr. Mark Adamczyk](https://amcsupport.org/wp-content/uploads/2024/02/Dr-headshot-dr-mark-adamczyk.jpg) 

### Dr. Mark Adamczyk

*Pediatric Orthopedic Surgeon 
Akron Children’s* 
One Perkins Square
Akron, Ohio 44308
Phone: (330) 543-1000  

 ![Dr. Drew Engles](https://amcsupport.org/wp-content/uploads/2024/02/Dr-headshot-dr-drew-engles.jpg) 

### Dr. Drew Engles, MD

*Hand and Microvascular Surgeon 
Akron Children’s* 
One Perkins Square
Akron, Ohio 44308
Phone: (330) 543-1000  

### USA | Oregon

 ![Dr. Ellen Raney](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Ellen_Raney.jpg) 

### Dr. Ellen Raney

*Pediatric Orthopedic
Shriners Hospitals for Children — Portland*
3101 SW Sam Jackson Park Rd.
Portland, OR 97239
Phone: (503) 241-5090

 ![Dr. Krister Freese](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Kriste_Freese.jpg) 

### Dr. Krister Freese

*Pediatric Orthopedic Upper 
Shriners Hospitals for Children — Portland*
3101 SW Sam Jackson Park Rd.
Portland, OR 97239
Phone: (503) 241-5090

### USA | Pennsylvania

 ![Dr. Keith Baldwin](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Keith_Baldwin.jpg) 

### Dr. Keith Baldwin

*Scoliosis Treatment
Childrens Hospital Philadelphia*
3400 Spruce St.
Philadelphia, PA 19104
Phone: (800) 879-2467

 ![20th Annual AMCSI Conference Guest Speaker Dr. Dan Zlotolow](https://amcsupport.org/wp-content/uploads/2024/07/Dr-Dan-Zlotolow.jpg) 

### Dr. Dan A. Zlotolow

*Pediatric Ortho Upper
Shriners Hospital for Children Philadelphia*
3551 N Broad St.
Philadelphia, PA 19140
Phone: (215) 430-4288

### USA | South Carolina

 ![Dr. Lauren Hyer](https://amcsupport.org/wp-content/uploads/2026/03/Dr_Lauren_Hyer.jpg) 

### Dr. Lauren Hyer, M.D.

*Shriners Hospital For Children Greenville*
950 W Faris Rd.
Greenville, SC 29605
Phone: (864) 271-3444

 ![Dr. Shae Ray](https://amcsupport.org/wp-content/uploads/2023/12/Dr_headshot_Dr_Shae_Ray.jpg) 

### Dr. Shae Ray

*Adult and Pediatric Hand Surgery, Shriners Hospital For Children Greenville*
950 W Faris Rd.
Greenville, SC 29605
Phone: (864) 867-0407

### USA | South Dakota

 ![Charlie Broberg (PA-C)](https://amcsupport.org/wp-content/uploads/2023/12/Charlie_Broberg_PA-C.jpg) 

### Charlie Broberg (PA-C)

*Orthotics & Physiatry*
Lifescape Rehab
Phone: (605) 444-9727

 ![Dr. Geoffrey Haft](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Geoffrey_Haft.jpg) 

### Dr. Geoffrey Haft

*Orthopedic Surgeon*
Avera Orthopedics
Phone: (605) 789-5584

 ![Dr. Patrick Munson](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Patrick_Munson.jpg) 

### Dr. Patrick Munson

Sanford Ear Nose & Throat (ENT)br> Phone: (605) 328-8200

### USA | Tennesse

 ![Dr. Izabela Galdyn](https://amcsupport.org/wp-content/uploads/2023/12/Dr-Izabela-Galdyn.jpg) 

### Dr. Izabela Galdyn

*Pediatric Hand & Peripheral Nerve Surgeon Monroe Carell Jr. Children’s Hospital at Vanderbilt*
2200 Children’s Way
Nashville, Tennesse 37203
Phone: (615) 322-8777

 ![Dr. Chelsea Brown In Nashville, Tennessee](https://amcsupport.org/wp-content/uploads/2023/12/Dr-headshot-dr-chelsea-brown.jpg) 

### Dr. Chelsea Brown

*Orthopedic Hand and Upper Extremity Surgery Vanderbilt University Medical Center, Monroe Carell Children’s Hospital*
1211 Medical Center Drive
Nashville, Tennesse 37232
Phone: (615) 936-1000

 ![Dr. Robert Rinaldi MD](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Robert_Rinaldi.jpg) 

### Dr. Robert Rinaldi

*Pediatric Rehabilitation Medicine Monroe Carell Jr. Children’s Hospital at Vanderbilt*
2201 Children’s Way, Suite 1318
Nashville, Tennesse 37212
Phone: (615) 322-0738

### USA | Texas

 ![Dr. Gloria Gogola](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Gloria_Gogola.jpg) 

### Dr. Gloria Gogola

*Pediatric Ortho Upper
Shriners Hospital Houston*
6977 Main St.
Houston, TX 77030
Phone: (713) 797-1616

 ![Dr. Tony Herring](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Tony_Herring.jpg) 

### Dr. Tony Herring

*Pediatric Orthopedic
Texas Scottish Rite Hospital for Children*
2222 Welborn St.
Dallas, TX 75219
Phone: (214) 559-5000

 ![Dr. Amy McIntosh](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Amy_McIntosh.jpg) 

### Dr. Amy McIntosh

*Pediatric Orthopedic
Texas Scottish Rite Hospital for Children*
2222 Welborn St.
Dallas, TX 75219
Phone: (214) 559-5000

 ![Dr. Scott N. Oishi, MD, FACS](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Scott_Oishi.jpg) 

### Dr. Scott N. Oishi, MD, FACS

*Upper Extremity/Hands
Scottish Rite for Children Hospital*
2222 Welborn St.
Dallas, Texas 75219
Phone: (214) 559-07842

 ![Dr. William Morris](https://amcsupport.org/wp-content/uploads/2024/02/Dr-headshot-dr-william-morris.jpg) 

### Dr. William Z. Morris, M.D.

*Scottish Rite in Dallas*
2222 Welborn St
Dallas, TX 75219
Phone: (214) 559-5000 

 ![Dr. Anthony I. Riccio M.D.](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Anthony_I_Riccio_MD.jpg) 

### Dr. Anthony I. Riccio M.D.

 *Pediatric Orthopedic Surgeon
Scottish Rite for Children Hospital*
2222 Welborn St
Dallas, TX 75219
Phone: (214) 559-5000

### USA | Virginia

 ![Dr. Mark J. Romness](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Mark_J_Romness.jpg) 

### Dr. Mark J Romness

*Pediatric Ortho Lowers
University Health Systems*
1204 W. Main St.
Charlottesville, VA 22903
Phone: (434) 924-2301

 ![Dr. Bobby Chhabra](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Bobby_Chhabra.jpg) 

### Dr. Bobby Chhabra

*Pediatric Ortho Uppers
UVA Hand Center*
415 Ray C. Hunt Dr.
Charlottesville, VA 22903
Phone: (434) 982-4263

AMCSI does not recommend any doctors or therapist. Our goal is to collect information to help you on your journey. For more information or questions about the doctors\\therapist ask the AMCSI community through our [Facebook](https://www.facebook.com/AMCSUPPORT/) page.

### Submit/Update Doctor's Information

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By signing up, you agree to receive email marketing communication from AMC Support Inc. You understand that you can unsubscribe at any time.

       Please choose one:  Submit New Doctor Listing Update Existing Doctor's Information

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**Categories:** Arthrogryposis, Find A Doctor

**Tags:** Doctor, Find A Doctor, Medical Professional, Where To Start

---

### [Parents & Caregivers](https://amcsupport.org/parents-caregivers/)

**Published:** December 31, 2025
**Author:** Ted Houser

**Excerpt:** Supporting the Caregivers & Parents of people with Arthrogryposis

**Content:**

# Parents & Caregivers

This space was created for parents, caregivers, and guardians walking the complex and deeply personal journey of supporting a child with Arthrogryposis. Rooted in lived experience, it exists to remind you that you are not alone, that your well-being matters, and that support is not a luxury, it is essential.

Here you will find community, understanding, and resources designed to help you navigate caregiving, connect with others who truly understand, and feel seen, supported, and valued every step of the way.

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-17-rgz9x0svyyg3thh8w0qay8uefv7ibbj1ial3q7tl88.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-17.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-16-rgz9wxzdegc8unlcchif8rk0npleo87uhwmnadxrqw.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-16.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-15-rgz9wu80n473k7qsyfvwysi6a63xtfsx5e0pda3cfs.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-15.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-14-rgz9wrei2m38lduwewo19b7si0hu6chq5028xg7iyg.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-14.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-13-rgz9wokzi3zdmjyzvdg5jtxepuvqj96j4m3shmbph4.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-13.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-12-rgz9wlrgxlvinq33bu89ucn0xp9mw5vc485c1sfvzs.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-12.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-11-rgz9wixyd3rnow76sb0e4vcn5jnj92k53u6vlyk2ig.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-11.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-10-rgz9wg4fslnsq2ba8rsife29de1flz8y3g8f64o914.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-10.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-9-rgz9wdax83jxr8fdp8kmpwrvl8fbyvxr329yqasfjs.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-9.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-8-rgz9wahenlg2sejh5pcr0fhht2t8bsmk2obiagwm2g.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-8.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-7-rgz9w7nw33c7tknkm64vay740x74opbd2ad1un0sl4.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-7.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-6-rgz9w4udil8cuqro2mwzlgwq8rl11m061welet4z3s.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-6.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-5-rgz9w20uy34hvwvrj3p3vzmcglyxeioz1ig4yz95mg.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-5.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-4-rgz9vz7cdl0mx2zuzkh86ibyogctrfds14hoj5dc54.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-4.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-3-rgz9vxbnzwy29v2lajnz1it1hom3c16bcv6pklg4hk.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-3.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-2-rgz9vtkb8kswzf81wi1grjr7454mh8re0ckrnhlp6g.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-2.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-1-rgz9vqqso2p20lc5cytl22gtbziiu5g6zymb7npvp4.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-1.jpg)

### A Letter to Parents & Caregivers

 ![](https://amcsupport.org/wp-content/uploads/2025/12/Ani.jpg) 

Dear Parents and Caregivers,

If you are reading this, chances are you are carrying more than most people can see.
I want you to know, before anything else, that you are not alone.

My name is Ani Samargian, and I am the Founder of Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI). But just as importantly, I am a mother of a child with arthrogryposis. Like many of you, my journey began with a diagnosis that changed everything, bringing fear, uncertainty, advocacy, love, exhaustion, and a fierce determination I didn’t know I had.

I understand the long days filled with appointments, therapies, paperwork, and advocacy.
 I understand the emotional weight of making decisions when there are no clear answers.

 I understand the quiet moments,, late at night, when the world is still, and the worry is loud.

I also understand the deep love, pride, and joy that comes from watching our children defy expectations, grow into themselves, and show us what resilience truly looks like.

AMCSI was created from this lived experience from the understanding that families affected by AMC need more than information. They need community, compassion, and connection. And caregivers, parents, grandparents, guardians, need support too.

Too often, caregivers are expected to be strong without pause, to carry everything without complaint, and to pour endlessly from a cup that is rarely refilled. This resource space exists to say clearly and intentionally:

You matter. Your well-being matters. Your story matters. Below you will find resources designed to support you tools to help prevent burnout, opportunities to connect with other caregivers, and ways to reach out for one-on-one or group support when you need it most.

If you ever feel overwhelmed, unseen, or unsure, please know that reaching out is not a sign of weakness, it is a sign of courage. Whether through our support groups, one-on-one peer connections, conferences, or future caregiver gatherings, AMCSI is here to walk alongside you.

We also want to honor your voice.

If you feel called to share your story whether it’s about early diagnosis, years into caregiving, moments of burnout, triumphs, grief, hope, or growth—we would be honored to listen. Your story may help another parent feel less alone, another caregiver feel seen, or another family find the courage to keep going.

There is no pressure. No timeline. No expectation of perfection. Just an open door and a listening heart.

You are doing an extraordinary job in circumstances most people will never fully understand. Please be gentle with yourself. Please ask for support when you need it. And please remember that AMCSI exists because of families like yours—and for families like yours.

With understanding and compassion,

**Ani Samargian**  *Founder | Community Support Advocate* 
Arthrogryposis Multiplex Congenita Support, Inc. *(AMCSI)* 💙

### Supporting the Caregivers: You Matter Too

**Resources for Parents & Caregivers of Children with Arthrogryposis (AMC)**

Caring for a child with arthrogryposis is a journey filled with fierce love, advocacy, strength, and resilience, but it can also be exhausting, isolating, and overwhelming.

At AMCSI, we believe that supporting caregivers is essential to supporting children. This page was created to offer validation, connection, and practical tools to help parents and caregivers care for themselves while caring for their children.

You are not meant to carry this alone.

###      Understanding Caregiver Burnout 

Caregiver burnout is physical, emotional, and mental exhaustion caused by prolonged stress and responsibility.

It is not a failure, it is a natural response to carrying a heavy load for a long time.

**Common signs of caregiver burnout include:**

- Constant fatigue, even after rest
- Feeling overwhelmed, irritable, or emotionally numb
- Guilt for wanting time to yourself
- Difficulty sleeping or concentrating
- Withdrawing from friends or activities you once enjoyed
- Feeling pressure to “stay strong” at all costs

If any of this resonates with you, please know: you are not alone, and help is available.

###      Permission to Care for Yourself 

You are allowed to:

- Take breaks
- Ask for help
- Set boundaries
- Say “no” without explanation
- Rest without guilt

Caring for yourself is not selfish, it is sustainable caregiving.

###      💙 Gentle Affirmations for Caregivers 

- I am doing the best I can with what I have
- Rest is productive
- I am allowed to need support
- My worth is not measured by my output
- I do not have to be strong every moment

###      Long-Term Caregivers: Sustaining the Journey 

If you’ve been doing this for years:

- Your exhaustion is valid
- Advocacy fatigue is real
- You deserve care too

Long-term caregiving requires support, rest, and renewal, not just endurance.

###      Newly Diagnosed Parents: You Are Not Alone 

If you are new to an AMC diagnosis, everything may feel overwhelming.

Please know:

- It’s okay to grieve
- It’s okay to feel scared or uncertain
- You don’t need all the answers right now

Focus on today, not the whole journey.

AMCSI is here to help you find community, information, and hope, step by step.

###      Connect With Other Parents, Caregivers & Moms 

One of the most powerful tools against burnout is being understood.

Join Our AMC Facebook Support Groups

AMCSI hosts and moderates several private, supportive Facebook groups for parents, caregivers, and individuals with AMC.

These spaces allow you to:

- Ask questions safely
- Share experiences and resources
- Celebrate milestones
- Find comfort on difficult days

👉 Explore and join our AMC [**Facebook Support Groups**](https://amcsupport.org/facebook-groups)

You are welcome whether you are newly diagnosed, years into this journey, or anywhere in between.

###      One-on-One Peer Support 

Sometimes you don’t need a group, you just need one person who understands.

If you are feeling overwhelmed, isolated, or simply need someone to talk to who has walked this journey, we are here.

📧 Email us at: **[info@amcsupport.org]()**

We would be honored to help connect you with:

• Another parent
• A caregiver
• A mom or dad with lived AMC experience

This is peer-to-peer support rooted in compassion and shared understanding.

### Practical Tools to Help Prevent Burnout

###      Build a Support Circle 

You don’t need a large village, sometimes one safe, understanding person is enough.

- Identify 1–2 people you can lean on
- Be specific when asking for help
- Accept help without apologizing

###      Create Micro-Moments of Rest 

Rest doesn’t have to mean time away or a vacation.

- Sit quietly with a cup of coffee or tea
- Step outside for fresh air
- Stretch, breathe, or journal for a few minutes
- Listen to music or a favorite podcast

Small moments of rest matter.

###      Release the Need for Perfection 

You are managing medical appointments, therapies, school accommodations, advocacy, and emotional labor, often all at once.

Some days, ***“good enough”*** is more than enough.

###      Name the Hard Things 

Suppressing emotions increases burnout.

- Talk with another AMC parent or caregiver
- Journal your thoughts
- Seek counseling or therapy when possible

You are allowed to love your child deeply and acknowledge how hard this journey can be.

###      Quick Burnout Check-In 

Ask yourself:

- When was the last time I rested?
- Who knows how I’m really doing?
- What do I need this week, not someday?

###      Help I Would Accept List 

Write down:

- Rides to therapy
- Meals
- Childcare
- Errand help
- Someone to listen

Keep this list ready for hard days.

###      Advocacy Fatigue Tools 

- Keep a shared medical binder or digital folder
- Bring a support person to appointments
- Rotate advocacy tasks when possible
- Remember: you don’t have to fight every battle

### Mental & Emotional Health Resources

If you are experiencing emotional distress or feel at risk of burnout, additional support may help:

- **[988 Suicide & Crisis Lifeline](https://988lifeline.org/)** *(U.S.)*
- Psychology Today Therapist Finder | Search by caregiver stress or chronic illness
- Hospital social workers | Often available at no cost

If you are outside the U.S., please reach out to local mental health or health services in your country.

### AMCSI Programs That May Help Ease the Load

AMCSI supports the whole family through programs including:

- Medical Travel Grants
- Accessibility Grants
- Scholarships
- Bereavement & Family Support Grants
- Annual AMC Conference *(education, connection, and community)*

**👉 [Learn more about our Grants](http://amcsupport.com/grants)**

### 💙 Caregiver Support 

Need support right now? You don’t have to wait or figure this out alone.

- Join our [**Facebook Support Groups**](https://amcsupport.org/facebook-groups/)
- Email us for one-on-one peer connection: [**info@amcsupport.org**]()
- Let us know if you’re interested in a caregiver support Zoom. Please email or message us at **[info@amcsupport.org]()**

Your well-being matters. to your child, to your family, and to us.

**Categories:** Arthrogryposis

**Tags:** Aerthrogryposis, Caregivers, Parents

---

### [New Diagnosis](https://amcsupport.org/new-diagnosis/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

# Parents & Caregivers

This space was created for parents, caregivers, and guardians walking the complex and deeply personal journey of supporting a child with Arthrogryposis. Rooted in lived experience, it exists to remind you that you are not alone, that your well-being matters, and that support is not a luxury, it is essential.

Here you will find community, understanding, and resources designed to help you navigate caregiving, connect with others who truly understand, and feel seen, supported, and valued every step of the way.

### [**Learn More**](https://amcsupport.org/parents-caregivers/)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-17-rgz9x0svyyg3thh8w0qay8uefv7ibbj1ial3q7tl88.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-17.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-16-rgz9wxzdegc8unlcchif8rk0npleo87uhwmnadxrqw.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-16.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-15-rgz9wu80n473k7qsyfvwysi6a63xtfsx5e0pda3cfs.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-15.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-14-rgz9wrei2m38lduwewo19b7si0hu6chq5028xg7iyg.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-14.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-13-rgz9wokzi3zdmjyzvdg5jtxepuvqj96j4m3shmbph4.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-13.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-12-rgz9wlrgxlvinq33bu89ucn0xp9mw5vc485c1sfvzs.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-12.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-11-rgz9wixyd3rnow76sb0e4vcn5jnj92k53u6vlyk2ig.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-11.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-10-rgz9wg4fslnsq2ba8rsife29de1flz8y3g8f64o914.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-10.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-9-rgz9wdax83jxr8fdp8kmpwrvl8fbyvxr329yqasfjs.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-9.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-8-rgz9wahenlg2sejh5pcr0fhht2t8bsmk2obiagwm2g.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-8.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-7-rgz9w7nw33c7tknkm64vay740x74opbd2ad1un0sl4.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-7.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-6-rgz9w4udil8cuqro2mwzlgwq8rl11m061welet4z3s.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-6.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-5-rgz9w20uy34hvwvrj3p3vzmcglyxeioz1ig4yz95mg.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-5.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-4-rgz9vz7cdl0mx2zuzkh86ibyogctrfds14hoj5dc54.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-4.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-3-rgz9vxbnzwy29v2lajnz1it1hom3c16bcv6pklg4hk.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-3.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-2-rgz9vtkb8kswzf81wi1grjr7454mh8re0ckrnhlp6g.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-2.jpg)

[![Supporting the Caregivers](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-Parents-and-Caregivers-1-rgz9vqqso2p20lc5cytl22gtbziiu5g6zymb7npvp4.jpg)](https://amcsupport.org/wp-content/uploads/2025/12/AMCSI-Parents-and-Caregivers-1.jpg)

 [ ![NICU Packet for New Parents](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI25_NICU_Packet_Page_01.jpg) ](https://amcsupport.org/amc_information_packet/) 

### Arthrogryposis New Parent Information Packet

Welcome to the AMC Family! It is probably a “family” you never knew existed until now, and being a part of it was not in your plans when you found out you were expecting. Finding out your child has arthrogryposis is a shocking experience, whether it was discovered by ultrasound during your pregnancy or not until birth. The joy, wonder, and hope for your new baby can quickly be overshadowed by fear, confusion, and isolation. The flood of medical information can be overwhelming. WE ARE HERE TO HELP! Arthrogryposis Multiplex Congenita Support, Inc (AMCSI) and Take TIME for AMC, Inc are two 501(c)3 non-profit organizations formed with the goal of raising awareness of AMC and providing pertinent information to individuals and families touched by AMC as well as the medical community who cares for them.

 [  View/Download PDF Packet  ](https://amcsupport.org/amc_information_packet/) 

# For families with young AMCers

### All About AMC: Learning Together

**All ABOUT AMC: Learning Together** is a fun and easy-to-read information packet designed especially for children, families, and classmates who want to better understand Arthrogryposis Multiplex Congenita (AMC). Inside, you’ll find simple explanations, illustrations, and interactive pages that answer common questions like what AMC is, how to say it, and what it looks like in everyday life. You’ll also discover the unique strengths and possibilities of kids with AMC—plus a special page to personalize with your own story. This packet is all about learning together and celebrating what makes each AMCer unique.

 [  View/Download PDF Packet  ](https://amcsupport.org/amcsi_all-about-amc-learning-together/) 

 [ ![AMCSI All About AMC Learning Together - packet cover](https://amcsupport.org/wp-content/uploads/2025/09/AMCSI_All-About-AMC-Learning-Together-cover.jpg) ](https://amcsupport.org/amcsi_all-about-amc-learning-together/) 

# Knitted With Love

### A Special Invitation to the Grandmothers of AMC Children 💙

Your hands have comforted generations. Now they can comfort an AMCer.

We invite grandmothers of children with Arthrogryposis Multiplex Congenita (AMC) to donate *(NEW)* handmade blankets for AMC babies in the NICU and children facing long hospital stays. Each blanket provides warmth, comfort, and reassurance when families need it most.

**One blanket. Endless comfort.**

##### [**Learn More & Request Blanket Mailing Address**](https://amcsupport.org/knitted-with-love/)

[![Grandmothers Blanket Donation Program | Comfort for AMC Babies in NICU | AMCSI](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-knitted-blanket-3-ri364fg05oihcve9b3ol92k4nfp4g6gwqeb03mnyd4.jpg)](https://amcsupport.org/wp-content/uploads/2026/01/AMCSI-knitted-blanket-3.jpg)

[![Grandmothers Blanket Donation Program | Comfort for AMC Babies in NICU | AMCSI](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-knitted-blanket-4-ri364cmhl6eme1icrkgpjl9qva30t35pq0cjnss4vs.jpg)](https://amcsupport.org/wp-content/uploads/2026/01/AMCSI-knitted-blanket-4.jpg)

[![Grandmothers Blanket Donation Program | Comfort for AMC Babies in NICU | AMCSI](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-knitted-blanket-2-ri364aqt7ic1qtl32jngelqtoicadoy91r1kp8ux88.jpg)](https://amcsupport.org/wp-content/uploads/2026/01/AMCSI-knitted-blanket-2.jpg)

[![Grandmothers Blanket Donation Program | Comfort for AMC Babies in NICU | AMCSI](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-knitted-blanket-5-ri38uaf3oqh63d8xveiaudjr3lcttqyvireuspkek8.jpg)](https://amcsupport.org/wp-content/uploads/2026/01/AMCSI-knitted-blanket-5.jpg)

[![AMCer-on-blanket](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCer-on-blanket-rlx97ns3iq7k834l37q9tbyqlkf9x27pccqrgy11h4.jpg)](https://amcsupport.org/wp-content/uploads/2026/04/AMCer-on-blanket.jpg)

#### Click on the image for the full presentation resource below.

 [ ![Tyler-holt-amc-presentation](https://amcsupport.org/wp-content/uploads/2023/12/Tyler-holt-amc-presentation.jpg) ](https://www.canva.com/design/DAF_bCtsY0M/ZKS4Q_2bLUUqOn_kJNIv4A/view?utm_content=DAF_bCtsY0M&utm_campaign=designshare&utm_medium=link&utm_source=editor#1) 

## New Diagnosis Form

If you are a parent of a child diagnosed with arthrogryposis multiplex congenita, please fill out the form below. A member of our team will reach out to you for support and resources.

       Full Name   

  Email   

  Phone   

  Address   

  Address 2   

  City   

  State   

  Zip   

  Child's Full Name   

  Child's Date Of Birth   

  Relationship To Child   

  Select An Option Parent Sibling Grandparent Other  

  Is your child currently in the NICU?  Yes No Recently Discharged

  If you are currently in the hospital, which hospital & what is the mailing address?   

 In order to empower our AMC Community, please answer the following questions below. 

  How did you hear about AMCSI?  Facebook Instagram Website Friend/Family Member Medical Professional Other

  Would you be interested in a 1:1 Zoom call with a support parent? A support parent is a vetted member of our community who is willing to meet with you one on one to answer any questions you may have about AMC.  Yes No  Maybe Later

 Be sure to download your PDF copy of the NICU Packet for New Parents on the Thank You page that this goes to after clicking the 'Send' button! 

   Send

**Categories:** Arthrogryposis, New Dignosis, Where To Start

**Tags:** New Diagnosis, Where To Start

---

### [Scholarships](https://amcsupport.org/scholarships/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## AMCSI Scholarships

Scholarships from Arthrrogryposis Multiplex Congenita Support, inc. help first time AMCers get to Conference and experience the love and joy of the AMC Community.

### [Conference
Scholarship](https://amcsupport.org/conference-scholarship/)

This AMCSI Conference Scholarship is made possible by a generous donation from a member of our community. The donor wished to remain anonymous. We are so grateful to have the opportunity to award another attendee this scholarship.

The AMCSI Conference …

 [  Read More  ](https://amcsupport.org/conference-scholarship/) 

### [Georgia McLaughlin College Scholarship](https://amcsupport.org/georgia-mclaughlin-college-scholarship/)

Georgia McLaughlin was a long time supporter of the mission of our organization. Her love for education, workplace, and our AMC family was felt by many in the years of our inception. Ms. McLaughlin’s memory and wishes will be honored by our college by our college grant recipients.

 [  Read More  ](https://amcsupport.org/georgia-mclaughlin-college-scholarship/) 

## AMCSI Grants

### [Accessibility 
Grant](https://amcsupport.org/accessibility-grant/)

Accessibility Grant Arthrogryposis Multiplex Congenita Support Inc. (AMCSI) offers an accessibility grant to individuals who meet the eligibility requirement. Any tool that helps a person with AMC.

 [  Read More  ](https://amcsupport.org/accessibility-grant/) 

### [Adoption
Grant](https://amcsupport.org/adoption-grant/)

The AMCSI Adoption Grant is designed to support families in the process of adopting a child diagnosed with Arthrogryposis Multiplex Congenita (AMC).

 [  Read More  ](https://amcsupport.org/adoption-grant/) 

### [AMC Holiday 
Grant](https://amcsupport.org/amc-holiday-fund/)

“I want to say Thank you so much to AMCSI for helping our family out this holiday season. 2023 has been a roller coaster of a year, and our family has experienced so much financial hardship…”

 [  Read More  ](https://amcsupport.org/amc-holiday-fund/#holidaygrant) 

### [Bereavement 
Grant](https://amcsupport.org/bereavement-grant/)

Bereavement Grant AMCSI’s bereavement grant is available to any immediate family member of an AMCer who has passed away. AMCSI will provide one grant of $500 for funeral expenses to.

 [  Read More  ](https://amcsupport.org/bereavement-grant/) 

### [Medical Travel](https://amcsupport.org/medical-travel-grant/)
[Grant](https://amcsupport.org/medical-travel-grant/)

Medical Travel Grant AMCSI’s Medical Travel Grant assists families who are traveling for surgery related appointments. Reimbursement includes: ground transportation and lodging.

 [  Read More  ](https://amcsupport.org/medical-travel-grant/) 

### [Mini-Meetup 
Grant](https://amcsupport.org/mini-meetup-grant/)

Mini Meetup Grant Mini meetup grant is available to any AMCSI member hosting a local meet up for AMC families.

 [  Read More  ](https://amcsupport.org/mini-meetup-grant/) 

### [Research 
Grant](https://amcsupport.org/research-grant/)

Research Grant Part of AMCSI’s mission is to support families and individuals affected by arthrogryposis multiplex congenita (AMC) by providing resources that will assist in the…

 [  Read More  ](https://amcsupport.org/research-grant/)

**Categories:** Financial Aid, Scholarships

**Tags:** Financial Aid

---

### [Grants](https://amcsupport.org/grants/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## AMCSI Grants

### [Accessibility 
Grant](https://amcsupport.org/accessibility-grant/)

Accessibility Grant Arthrogryposis Multiplex Congenita Support Inc. (AMCSI) offers an accessibility grant to individuals who meet the eligibility requirement. Any tool that helps a person with AMC.

 [  Read More  ](https://amcsupport.org/accessibility-grant/) 

### [Adoption
Grant](https://amcsupport.org/adoption-grant/)

The AMCSI Adoption Grant is designed to support families in the process of adopting a child diagnosed with Arthrogryposis Multiplex Congenita (AMC).

 [  Read More  ](https://amcsupport.org/adoption-grant/) 

### [AMC Holiday 
Grant](https://amcsupport.org/amc-holiday-fund/)

“I want to say Thank you so much to AMCSI for helping our family out this holiday season. 2023 has been a roller coaster of a year, and our family has experienced so much financial hardship…”

 [  Read More  ](https://amcsupport.org/amc-holiday-fund/#holidaygrant) 

### [Bereavement 
Grant](https://amcsupport.org/bereavement-grant/)

Bereavement Grant AMCSI’s bereavement grant is available to any immediate family member of an AMCer who has passed away. AMCSI will provide one grant of $500 for funeral expenses to.

 [  Read More  ](https://amcsupport.org/bereavement-grant/) 

### [Medical Travel](https://amcsupport.org/medical-travel-grant/)
[Grant](https://amcsupport.org/medical-travel-grant/)

Medical Travel Grant AMCSI’s Medical Travel Grant assists families who are traveling for surgery related appointments. Reimbursement includes: ground transportation and lodging.

 [  Read More  ](https://amcsupport.org/medical-travel-grant/) 

### [Mini-Meetup 
Grant](https://amcsupport.org/mini-meetup-grant/)

Mini Meetup Grant Mini meetup grant is available to any AMCSI member hosting a local meet up for AMC families.

 [  Read More  ](https://amcsupport.org/mini-meetup-grant/) 

### [Research 
Grant](https://amcsupport.org/research-grant/)

Research Grant Part of AMCSI’s mission is to support families and individuals affected by arthrogryposis multiplex congenita (AMC) by providing resources that will assist in the…

 [  Read More  ](https://amcsupport.org/research-grant/) 

## AMCSI Scholarships

Scholarships from Arthrrogryposis Multiplex Congenita Support, inc. help first time AMCers get to Conference and experience the love and joy of the AMC Community.

### [Conference
Scholarship](https://amcsupport.org/conference-scholarship/)

This AMCSI Conference Scholarship is made possible by a generous donation from a member of our community. The donor wished to remain anonymous. We are so grateful to have the opportunity to award another attendee this scholarship.

The AMCSI Conference …

 [  Read More  ](https://amcsupport.org/conference-scholarship/) 

### [Georgia McLaughlin College Scholarship](https://amcsupport.org/georgia-mclaughlin-college-scholarship/)

Georgia McLaughlin was a long time supporter of the mission of our organization. Her love for education, workplace, and our AMC family was felt by many in the years of our inception. Ms. McLaughlin’s memory and wishes will be honored by our college by our college grant recipients.

 [  Read More  ](https://amcsupport.org/georgia-mclaughlin-college-scholarship/)

**Categories:** Arthrogryposis, Financial Aid, Grants

**Tags:** Financial Aid, Grants

---

### [Georgia McLaughlin College Scholarship](https://amcsupport.org/georgia-mclaughlin-college-scholarship/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## Georgia McLaughlin College Scholarship

 Georgia McLaughlin was a long time supporter of the mission of our organization. Her love for education, workplace, and our AMC family was felt by many in the years of our inception. Ms. McLaughlin’s memory and wishes will be honored by our college grant recipients. 

AMCSI proudly offers educational scholarships for individuals pursuing higher education. The Georgia McLaughlin College Scholarship is awarded every year to students and is based on academic achievement, future goals, and need. Eligible applicants must submit an essay, reference letters, and verification of diagnosis (Arthrogryposis Multiplex Congenita). Georgia McLaughlin was a dear friend and supporter of AMCSI since the very beginning stages of our organization. She was a champion of higher education and loved the AMC Community. We hope to continue to honor her legacy by awarding college scholarships to AMC’ers who wish to pursue an accredited technical, 4 year, or graduate degree.

\*Please check with your advising department or the Department of Education to see your school’s accreditation (Visit for guidance ed.gov/accreditation).

College scholarship funds will be dispersed evenly for two semesters; $500 per semester. Application deadline each year is July 30.

- The student applicant must maintain a **minimum GPA of a B average** (correct responses on 80% of coursework) while enrolled in college/university to qualify for funds. Proof of GPA will be **required**.
- All funds are awarded to current AMCSI members with the diagnosis of arthrogryposis multiplex congenita.
- Applicant **must** be a U.S. citizen or permanent legal resident of the United States or Canada.
- Acceptance notification for the AMCSI College Grant fund will be sent to the applicant by August 30. We can **ONLY** mail the grant funds to a school address inside the United States or Canada.
- Application deadline each year for second semester is December 20. Acceptance notification for the AMCSI College Grant fund will be sent to the applicant by January 6. We can **ONLY** mail the grant funds to a school address inside the United States or Canada.
- Applicant must have been accepted to, and intend to enroll in, an accredited college, university, or trade school.

### Georgia McLaughlin College Scholarship Form

##### All (required) (\*) documents must be sent to info@amcsupport.org

Your application will not be processed until all required items are received.
Please do not email to check on the status of your application. We will reach out you if further information is needed.

      Personal Information 

  Name   

  Email   

  Phone   

  Address   

  Address 2   

  City   

  State   

  Zip   

  AMCSI Membership # *(located in the upper right corner of your AMCSI Membership Card.)* **[CLICK HERE To View An AMCSI Membership Card Sample](https://amcsupport.org/become-a-member/#membershipcard)**   

  Date Of Birth   

  Pronouns   

  Race   

 Education Information 

  Name of College/University student has been accepted   

  Classification at time of attendance.
Freshman, Sophomore, Junior, Senior, Graduate Student   

  Number of University level units accumulated to date   

  Degree Program   

  ACT/SAT Score   

  Current High School/College GPA   

  What special recognition have you received for outstanding work such as honors, prizes or scholarships?   

  Specify school activities, school offices, band, athletics, clubs, school publications, civic organizations, volunteer work, etc, including what the activity is, position held, hours spent, and the year(s)of participation.   

 Uploads are required 

  Upload proof of Medical Diagnosis   

  Upload transcripts   

  Upload references   

  Upload photos   

  Required Documents Checklist (email scanned documents to info@amcsupport.org)  Proof of Medical Diagnosis (arthrogryposis multiplex congenita) Transcripts Essay References (Please submit two recent references - non-family members only)  Photo (By submitting your photo, you give AMCSI permission to announce your grant award on our website and social media)

 Essay 

  Please write an essay (250 word minimum) on the following prompt taken verbatim from Georgia’s last will and testament: “How has your disability affected the way you see the world? Pick an experience from your own life concerning your disability and explain how and why it has influenced your development.” What impact would this scholarship have on your education?   

  Please state your goals and aspirations in life.   

  What is your passion?   

 Acknowledgements 

  I understand that I must submit required documentation (proof of diagnosis, transcripts, acceptance letter, essay, photo) in order to receive funding. (required)  Yes No

  I understand that AMCSI will distribute approved grant funds to my college/university. (required)  Yes No

  I certify that, to the best of my knowledge and ability, the information included in this application, is accurate as of the date of this application signed below. (required)  Yes No

  Signature   

  Date   

   Send

**Categories:** Arthrogryposis, Financial Aid, Georgie McLaughlin College Scholarship, Scholarships

**Tags:** Financial Aid, Georgie McLaughlin College Scholarship, Scholarships

---

### [Important Documents](https://amcsupport.org/22nd-important-documents/)

**Published:** July 28, 2026
**Author:** Ted Houser

**Content:**

#### Important Documents

####      Code of Conduct 

We are committed to providing a friendly, safe and welcoming environment for all, regardless of gender, sexual orientation, disability, ethnicity, or religion. This code of conduct outlines our expectations for participant behavior as well as the consequences for unacceptable behavior.

We invite all sponsors, volunteers, speakers, attendees, media, exhibitors, and other participants to help us make the AMCSI Conference a safe and positive experience for everyone.

All event participants must abide by this code of conduct at all conference venues and conference-related social events.

All decisions about appropriate or inappropriate behavior are at the sole discretion of the event organizers AMCSI Board of Directors & Planning Team.

######  **EXPECTED BEHAVIOR**

- Be considerate and respectful.
- Refrain from demeaning, discriminatory, or harassing behavior and speech.
- Be mindful of your surroundings and of your fellow attendees. Alert conference organizers if you notice a dangerous situation or someone in distress.

######  **UNACCEPTABLE BEHAVIOR**

- Unacceptable behavior includes but is not limited to intimidating, harassing, abusive, discriminatory, derogatory, demeaning behavior, inappropriate physical contact, and unwelcomed sexual conduct by any attendees of AMCSI and related events like the after-hours networking parties.
- Harassment includes offensive verbal comments related to gender, sexual orientation, race, religion, or disability; inappropriate use of nudity and/or deliberate intimidation, stalking or following; harassing photography or recording in an aggressive manner; disruption of talks or other events.
- Inappropriate Clothing for Family Friendly Event
- Verbal, Written or Physical Abuse (pushing, shoving, or use of any physical force), threats, whatsoever against any person, which in any way creates a disturbance that is disruptive or dangerous.
- Possession of any item that can be used as a weapon and may cause danger to others.
- Any lewd behavior or offensive language, including but not limited to sexually explicit language, materials or conduct, profanity, obscene gestures, racial, religious, gender, or ethnic slurs.
- Drinking alcohol outside designated areas. Please drink responsibly.
- Possession or use of any illegal substance. AMCSI does not tolerate the use or abuse of illegal substances anywhere in the venue.
- Smoking in non-designated areas.
- Assembling for the purpose of, or resulting in, disturbing the peace, or committing any unlawful act.
- Failure to obey any rules or regulations of the Venue.

######  **CONSEQUENCES OF UNACCEPTABLE BEHAVIOR**

- Unacceptable behavior will not be tolerated.
- Anyone asked to stop unacceptable behavior is expected to comply immediately.
- If a participant engages in unacceptable behavior, the conference organizers may take any action they deem appropriate, up to and including expulsion from the conference without warning or refund.

######  **WHAT TO DO IF YOU WITNESS OR ARE A VICTIM OF UNACCEPTABLE BEHAVIOR**

- If you are subjected to unacceptable behavior, notice that someone else is being subjected to unacceptable behavior, or have any other concerns during the event, please notify a member of AMCSI Board of Directors and Planning Team as soon as possible. All reports will remain completely confidential.

The AMCSI Board of Directors and Planning Team will be available to help participants contact hotel venue security and/or local law enforcement as deemed necessary, or to otherwise assist victims in reporting unlawful unacceptable behavior.

If you have any questions, please contact the planning team at

[**info@amcsupport.org**]()

####      General Liability Waiver 

All persons participating in the 2026 AMCSI Conference in Columbus, Ohio, (hereinafter referred to as “Event”) held on July 1 – July 4, 2026 are required to read, agree to, and sign this waiver before participating.

I hereby release and forever discharge Arthrogryposis Multiplex Congenita Support, Inc., its Board of Directors, and any person working jointly and severally, volunteers, directors, officers, administrators, agents, and assigns (hereinafter referred to as “the Releasees”) from all liability for any and all claims or causes of action of any kind or nature whatsoever and particularly on account of any injuries, both to person and property, which may result from or develop in the future as a result of my participation in the Event.

I further agree that if, despite this Release and Waiver of Liability I or any person on my behalf makes a claim against the Releasees, I will indemnify, save and hold harmless the Releasees from any monetary losses including, but not limited to, legal fees and litigation costs. This release is binding on my heirs, executors, assigns, and administrators.

The undersigned is aware of the risks of participation in the Event. The undersigned assumes all risks. The risks include those foreseen and unforeseen, known and unknown. We may also share or disclose your data to comply with a court order or other legal obligation, to enforce the Site terms of use, and to protect the rights, property or safety of our users and other third parties.

We may disclose data to government or law enforcement officials or private parties as we determine, in our sole and absolute discretion, is necessary or appropriate to respond to claims or to comply with legal processes, to comply with laws, regulations or ordinances or to prevent or stop illegal, unethical or actionable activity.

If a minor child accompanies me and participates in the Event, I shall be responsible for supervising such minor child (or children). I agree to indemnify the Releasees from and against any claims for damages or injuries (to the child or third parties) to the extent such claims arise from or are related to my failure to exercise due care in supervision.

I acknowledge that photographs may be taken of persons taking part in the Event by AMCSI and waive any rights of compensation or ownership there to. I hereby authorize and consent to either or both of the Releasees, making make use of any Event-related photographs in which I and/or my minor child or children may be included for purposes of news reporting and/or public relations and, further, authorize either or both of the Releasees to publish and/or re-publish such photograph or photographs in the fundraising materials and literature in connection with the Event and other fundraising events.

I hereby declare that I:

- Have read, understood, and voluntarily accept the terms and conditions of this document.
- Recognize my right to seek legal counsel before submitting my registration form.
- Am waiving legal rights and in knowing this, I agree to it of my own free will.
- I am aware that my agreement to this Waiver and Release of Liability is in effect once I submit this registration form.

Please submit your full name on registration form, if you accept.

####      Photo Release 

1\. Video/audio capture of AMCSI sessions and activities is strictly prohibited without express written permission from BOTH: 1.) the session presenter/s, person/s, and 2.) AMCSI. AMCSI reserves all video/audio taping and photography rights at conferences and events. No video or audio taping is permitted in session rooms.

2\. Amateur video/audio capture and still photographs are permitted of ambient environments, informal exchanges, and sessions and activities not organized by AMCSI, outside of AMCSI session rooms, provided that appropriate permissions have been granted by the parties affected. AMCSI assumes no liability for copyright and/or intellectual property violations that may occur as a result.

3\. Under no circumstances may any length or quality of video/audio capture of AMCSI sessions be used for marketing, advertising, or commercial purposes without express written permission from BOTH: 1.) the session presenter/s, and 2.) AMCSI.

4\. Private recording is not allowed without permission. The Board of Directors are authorized to halt the creation of unauthorized recordings.

5\. Any costs associated with the creation of an audio/video record must be incurred by those wishing to create the audio/video recording unless funding is specifically authorized by the Board of Directors of AMCSI.

6\. Audio/video material created at an AMCSI event shall not be used by the recorders for financial gain without permission from the Board of Directors of AMCSI.

7\. AMCSI will be provided with a copy of each instance of audio/video recording created at an AMCSI event, within 30 days of the creation of the recording.

8\. Any costs associated with the creation of an audio/video record must be incurred by those wishing to create the audio/video recording unless funding is specifically authorized by AMCSI.

9\. AMCSI is authorized to reuse the copy in a non-profit manner that is consistent with AMCSI’s Mission and Vision.

10\. Requests for audio/video capture of AMCSI Events may be made by emailing bod@amcsupport.org

**Categories:** 22nd Annual AMCSI Conference, AMC Events

**Tags:** AMCSI, AMCStrong, Code of Conduct, General Liability Waiver, Important Documents, Photo Release

---

### [22nd Annual AMCSI Conference FAQs](https://amcsupport.org/22nd-faqs/)

**Published:** July 28, 2026
**Author:** Ted Houser

**Content:**

### 22nd Annual AMCSI Conference FAQs

##### Event Registration & Membership Fees

    Why is AMCSI charging a registration fee? 

     AMCSI strives to provide a Conference that provides not only support to our community, but education as well. To do this, unfortunately it costs money. The VOLUNTEER planning team strives to keep costs as affordable as possible, but like everything else, costs continue to rise and donations are few. Therefore, we must charge a fee to help cover the costs of the event.

     What if I am already a Member? 

     If you already have a Membership please skip Step 1 & go to Step 2 “Conference Registration” button.

You will need your Membership # to register for conference.

     Who has to register? 

     Anyone who will be attending or participating in ANY AMCSI functions, including but not limited to sessions, AMC prom, or dinner, must be registered for the conference. This includes, but is not limited to, friends, personal care assistants, nurses, extended family, etc. This is for the safety and security of our attendees. Children (anyone under the age of 18) MUST be registered with an adult.

     If I am an Individual Member, can I bring additional family members/friends at member rates? 

     Since you do not have a family membership, any additional registrations would be at the non-member prices. Consider joining with a family membership! A family membership would be an option for those living in the same household. Others would need their own memberships.

**Note:** Anybody over 18 needs their own membership, regardless of “Family” status.

     We have a family membership, can we register our children as members? 

     If you have a family membership, your membership includes two adults and any minor children in the family. Therefore, your children can be registered at member rates. Adult children (18 and over) each need their OWN membership to register at member rates.

**Note:** Anybody over 18 needs their own membership, regardless of “Family” status.

     Where is my Membership number? 

     When you become a member, you will receive a **Membership Confirmation Email** with a link to view your Membership card & it should be in the bottom right corner of your Membership card image (on older cards) & in the upper right corner if you are a recent AMCSI Member.

***Note:** This is the current view of the Membership Cards from Zeffy. Older cards may have the number in the bottom right corner and may be difficult to read or see. Please email us if you have trouble with the older Membership card formatting at info@amcsupport.org.*

![](https://amcsupport.org/wp-content/uploads/2025/11/AMCSI-Membership-Card-sampke-1024x715.png)

     My child holds a lifetime membership, but I am not a member. Can I register under my child's membership? 

     If your child holds the membership in their name, only your child can register as a member. You and your second child would need to register at NON Member rates. (Consider a Family Membership!)

     We have a family membership, but our child is over the age of 18. Can they register under our family membership? 

     No. If your child is 18 or over, they are no longer considered a Minor Child. They would need to hold their own membership to AMCSI in order to register as a member.

**Note:** Anybody over 18 needs their own membership, regardless of “Family” status.

     Is the price for 1-day or all 3-days? 

     The ticket price is for all 3-days. There are no 1-day tickets.

     Does AMCSI offer a One-Day Ticket? 

     No. Registration is for ALL 3-Days, we do not offer single-day tickets.

     What is your refund policy? 

     **When registering, attendees agree to the following refund terms:**

- All refund requests must be submitted **in writing** to **.**
- Requests made via social media **will not** be honored.
- The date of the email request will determine the refund amount.
- Eventbrite fees are **non-refundable**.

 **Refund Schedule:**

- **149 days prior to July 1, 2026** → Full refund minus $50 administrative fee + Eventbrite fees
- **90 days prior to July 1, 2026** → 50% refund minus $50 administrative fee + Eventbrite fees
- **60 days or less prior to July 1, 2026** → No refunds

 **Eventbrite Per Ticket Fees:**

- Service fee: 3.70% + $1.79 per ticket
- Processing fee: 2.90% per order
- Sales tax: 8.90%

Refunds will typically be processed within 14 days of official notification and within the refund limits.

 [  Go Back To Conference Homepage  ](https://amcsupport.org/22nd-annual-amcsi-conference/) 

##### Traveling

    Acessible Traveling Information 

     ##### Attendees will be responsible for coordinating their own transportation throughout the conference.

**For those requiring wheelchair-accessible transportation, Columbus offers several options:**

- Yellow Cab of Columbus provides a limited number of wheelchair-accessible vans. Because availability is limited, we strongly recommend reserving accessible transportation at least 2-3 hours in advance whenever possible. Taxi service is generally available from 6:00 AM to 11:00 PM.
- If you can transfer from your wheelchair or folding scooter into a vehicle seat and store your mobility device in the trunk or rear cargo area, standard taxi and rideshare vehicles may also be an option.

**Additional transportation resources:**
• [Yellow Cab of Columbus](https://yellowcabofcolumbus.com/)
• [MobilityWorks Wheelchair Van Rentals](https://www.mobilityworks.com/wheelchair-vans-for-rent/)
• [Columbus Transport Services](https://www.experiencecolumbus.com/meetings/plan/accessibility/)
• [Safe Hands Transportation](https://safehandsohio.com/schedule/)
*(Note: Use the links above at your own risk. AMCSI is not responsible for the content, accuracy, or availability of external websites or resources linked.)*

Planning ahead will help ensure a smooth and stress-free conference experience. We encourage all attendees to review their transportation needs before arriving in Columbus.

     Adaptive Sports | Power Soccer Traveling Information 

     ##### ⚽ Power Soccer Participants at #AMCOH26 ⚽

Important travel tip before heading to Adaptive Sports!

**If you enter the school address into your GPS, it may direct you to the staff parking lot, which is a long distance from the gym entrance.**
📍 Instead, use GPS coordinates: 40.0860869, -82.8135438

🚗 **Biggest takeaway:**
DO NOT turn into the drive at the stoplight on Chatham Green Dr. This will take you to the staff lot.

➡️ Continue to Kardules Flds Way
➡️ Follow the drive toward the school building
➡️ Turn right
➡️ The gym entrance is located near the tennis courts and accessible ramp

📄 Click the button to download the complete Power Soccer directions.

 [  Download PDF Of Directions  ](https://amcsupport.org/amcoh26-adaptive-soccer-2/) 

 [  Go Back To Conference Homepage  ](https://amcsupport.org/22nd-annual-amcsi-conference/) 

##### Hotel

    At what hotel is the conference? 

     **Hilton Columbus at Easton**
3900 Chagrin Drive
Columbus, OH 43219

**Note:** ***You will receive your Discounted AMCSI Hotel Booking Link in your Registration Confirmation Email.** Please use a valid email address during registration & check your spam or junk folder after registering for conference.*

     How much does the hotel room cost, and how do I get the group rate? 

     **Rooms & Rates** *(through our booking Link **ONLY**)*
Prices coming soon…

**Disounted AMCSI Hotel booking link is received in your Registration Confirmation email.** *(Be sure to use a valid email address & check your junk/spam folder after registering for conference.)*

Once you click on the hotel booking link from your email confirmation, please look for this section on that webpage, the booking link is highlighted in yellow:

     How do I book my room with the group rate? 

     After you register for the conference, you will receive a confirmation email. In that email will be a link to reserve your hotel room.

     How do I reserve an Accessible Room? 

     You will ind all of the accessible options when you receive your Hotel Booking link in you Conference Registration confirmation email.

If none are shown, please contact the hotel directly for availability.

**Hilton Columbus at Easton**
[(614) 414-5000](https://www.google.com/search?client=firefox-b-1-d&q=Hilton+Columbus+at+Easton+3900+Chagrin+Drive+Columbus%2C+OH+43219#)

     Does the hotel have lockout/connecting rooms? 

     Most hotels have lockout/connecting rooms. Please contact the hotel to cofirm their availability.

     Can I use a debit card to reserve my hotel room? 

     Yes, you may use a debit card to reserve your room. Please be aware the hotel will charge one night’s room and tax/fees to the card at the time of reservation. Also please note that when using a debit card during the event, the hotel will place a “30% Hold” on the reservation to cover any potential charges made to the room. Those funds will not be available until after they are refunded 5-10 days after checkout. This is not something under AMCSI’s control. Please contact the hotel directly with any questions.

     Can I cancel my Hotel Reservation? 

     Every hotel has different policies regarding room cancellations. Please contact the hotel directly.

     Can my reservation include days before or after the dates of the conference? 

     The three days prior to the start conference and the three days after conference ends are called “Shoulder Dates.” Based on hotel availability, rooms may be booked at our discounted rates on these dates.

     Is there a coin laundry on property? 

     No.

     PARKING 

      [ ![Hilton Easton Hotel Parking Entrance Update](https://amcsupport.org/wp-content/uploads/2026/06/Hotel-parking.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/Hotel-parking.jpg) 

##### HOTEL UPDATE!

**If you have attended a conference at the Columbus Hilton at Easton in the past, please note:**

You can only access the parking lot via the main entrance on Chagrin Drive. *(The entrances off of Easton Loop Way/Brighton Rose Way are no longer open, hopefully next year! :))*

**ALSO NOTE:** Although the booking website says parking is $12 per night, **parking is complimentary to AMCSI attendees**. *(It is a portion of the booking website that cannot be changed.)*

     Is it ok for my family to stay at a different hotel? 

     AMCSI recommends that, if at all possible, you stay at our conference hotel for several reasons. We have a contract with the hotel to fill a specific number of rooms (at a discounted rate) in return for use of the meeting space. If AMCSI does NOT fill the contracted block during the conference, we are charged a large fee. By staying at the conference hotel, you are helping AMCSI by doing *your part* to help support the conference. Staying at the conference hotel also provides greater opportunities to connect with other families and the speakers. Families have shared that they felt they missed out on parts of the conference by staying at another property.

 [  Go Back To Conference Homepage  ](https://amcsupport.org/22nd-annual-amcsi-conference/) 

##### Conference

    Where will the sessions be held? 

     In the hotel meeting space. You don’t have to go outside!

     Is the conference a good place to bring siblings or should they stay home? 

     The WHOLE family is WELCOME to attend! We try to have sessions for everyone.

     Children’s Programming 

     AMCSI provides a room for Children’s Programming. ***This is NOT CHILDCARE***. An adult or responsible caregiver over the age of 16 is required to stay with all children. Parents/Caregivers MAY NOT LEAVE their child unattended for any reason in the Children’s Programming sessions.

     Can my child attend the sessions with me? 

     Your child may attend the sessions with you; however, please know that some of the medical sessions may include photographs of medical procedures that a child may find disturbing. We also ask that if your child needs your attention, you respect the speaker and attendees and care for them outside of the session room.

     Will we get a list of those attending with their contact information? 

     AMCSI will not publish our list of attendees for privacy reasons but we do include a blank page in our program for you to write down contact info from families you chose to exchange that with as well as have an “I attended” thread on our forums after the conference for those who choose to participate.

     When will AMCSI announce the location of the 22nd annual conference? 

     2026 and 2027 will both be in Columbus, Ohio. There will be no new announcement for 2027.

     Why can't I attend the sessions noted as "Moms, Dads, Grandparents, Siblings, Teens/Adults/Men/Women with arthrogryposis" with my spouse/teen/sibling? 

     To respect the privacy of individuals in these highly personal sessions, AMCSI tries to maintain an atmosphere of confidentiality and promote peer to peer connections during these sessions.

     I am not comfortable allowing my tween/teen with arthrogryposis to attend the session without me. How can you reassure me that discussions are age appropriate? 

     We have adults with arthrogryposis serving as moderators in this session, this is to assure that topics discussed are age appropriate.

**Teen/Tween Sessions:** Are two adults deep, with at least one of those adults typically being a member or former member of the BOD. Anybody in sessions with teens/tweens has been vetted.

 [  Go Back To Conference Homepage  ](https://amcsupport.org/22nd-annual-amcsi-conference/)

**Categories:** 22nd Annual AMCSI Conference, AMC Events

**Tags:** AMCSI, Annual, Conference, FAQs

---

### [Become A Member](https://amcsupport.org/become-a-member/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

# Become A Member

Our AMC community fully funds all of our programs. We could not do any of this without the help of our membership, donors, sponsors, fundraisers, friends, and family. We appreciate each and every one of you.

AMCSI is a nationally recognized 501(c)(3) Non-Profit Organization.

 [  Become A Member  ](https://www.zeffy.com/en-US/ticketing/6808115b-4616-4e5c-bdae-9eb758bd4975) 

 [ ![AMCSI member using a power wheelchair smiles at the AMCSI Annual Conference beside a "Become A Member" message encouraging support for the Arthrogryposis community.](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI26-membership-monday-8.jpg) ](https://www.zeffy.com/en-US/ticketing/6808115b-4616-4e5c-bdae-9eb758bd4975) 

Sample AMCSI Membership Card

 [ ![AMCSI Membership Card sample](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-Membership-Card-sampke.png) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-Membership-Card-sampke.png) 

This is a sample of the Membership Card that will be sent to the email address provided on your AMCSI Membership form.

Your Membership Number is located in the upper right corner. The black square will display as a QR Code, which you can scan to update or adjust your membership information.

Please remember to check your spam or junk folder after registering and save the Membership Confirmation email, as it contains the link to your Membership Card.

 "The information we have had access to through this organization’s public presence has been invaluable!" 

 Beth L. 

 "Contribution given so that no mother of an AMC child will ever have to "go it alone" & feel the guilt that my mother & countless others went thru before Ani Samargian founded AMCSupport; along with the many others who volunteer their time to keep it running & growing! ...
Thank You!!!" 

 ~ Dale W. 

***Please note that Zeffy does require a very small processing fee – At checkout, you will see the percentages. Please feel free to change the amount to $0.00 via their custom setting to deactivate the processing fee.***

*AMCSI Membership is NOT registration for our annual conference. Please follow the links on our website to purchase your conference tickets.*

*AMCSI Memberships are non-refundable, thank you for supporting our mission & vision.*

### Membership Options

Click on the button below to view the available Membership Options, right click to download it.

 [  Download PDF  ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_Membership_Tiers.pdf) 

**By becoming a member of AMCSI, you are helping us:**
Provide Brochures in English, French and Spanish to our AMC Community as well as medical professionals, hospitals, NICUs, OB’s, and therapy facilities worldwide.

• Provide an up-to-date website with current information and resources to help assist our families in the latest interventions for AMC.

• Pave the way in international waters by attending or hosting meetings and conferences. We will also provide our international families support, information and knowledge through social media, our website, translated brochures and informational packets.

• Provide tools to help our AMC families to promote AMC Awareness Day on June 30th.

• Provide grant opportunities for our AMC community:

– AMC Mini Meetups, Events and Annual Conference

– Bereavement Fund (Financial Assistance to any family who has lost a loved one diagnosed with arthrogryposis multiplex congenita)

– Research Fund (Financial Assistance to our Medical Community with a special interest in researching arthrogryposis multiplex congenita)

– College Scholarship (Financial Assistance for Graduating HS Seniors)

– Medical Travel Grant (travel & lodging for AMC related surgery)

– Conference Grant (A limited number of grants to attend our annual conference may be available)

– Accessibility Grant

AMCSI’s annual membership is valid for one year from the time of purchase. Auto-renew is optional if selected at checkout. Please note that auto-renewal will be deactivated upon request or at the discretion of the AMCSI Board of Directors. Membership must be active before applying to any grant. Membership levels, as defined by AMCSI [Bylaws](https://www.amcsupport.org/bylaws)., are approved by the AMCSI Board of Directors.

## Membership Dates

Upon joining, you will have the option to automatically renew your membership each year on the anniversary of your original enrollment date.

Lifetime Memberships will no longer be offered. All new and existing membership tiers will be available through annual auto-renewal. Current Lifetime Members will be grandfathered in and will retain their Lifetime Membership benefits.

Thank you for your continued support and for being a valued member of our community.

If you have any questions, please email .

**Categories:** Arthrogryposis, Become A Member, Membership Info

**Tags:** Become A Member, Membership Info

---

### [22nd Annual AMCSI Conference Exhibitor](https://amcsupport.org/22nd-annual-amcsi-conference-exhibitor/)

**Published:** July 21, 2026
**Author:** Ted Houser

**Content:**

# Become A Vendor Today!

We’re excited to showcase the incredible organizations and businesses joining us this year, be sure to visit their tables during the conference!

**Interested in becoming a vendor?** Scroll down to explore vendor opportunities and complete the online registration form to reserve your spot. *(A downloadable & digtally fillable PDF version is also available below)*

##### [Click here to download a PDF file of the Conference Exhibitor Sales Kit](https://amcsupport.org/amcsi-22nd-annual_amcsi-conference-sales-kit/)

*(Note: you can open the PDF on a computer and type in your information & email it to us at: *

# EXHIBITOR OPTIONS

There can be more than one of each exhibitor level. To view the information for each option, please click below to view each level’s options.

    DIRECT LITERATURE: $800 

     • Company brochure included in Conference Registration Packet,5provided to each registered family
• Brochures must be approved by AMCSI prior to acceptance
• Half-page Ad in the Conference program
*(Artwork to be provided by vendor in JPEG / PDF format at 300 dpi)*
***(must be supplied by 5/28/2027)***

     COMPANY VENDOR TABLE: $500 

     • Available for individuals or organizations that are representing a corporation
• Two (2) representatives per table *(each additional representative is $50.00)*
• 6Ft. draped and skirted table
• Two (2) chairs
• Single line ID sign
• Half-page Ad in the Conference program 
*(Artwork to be provided by vendor in JPEG / PDF format at 300 dpi)*
***(must be supplied by 5/28/2027)***

     NON-COMPANY VENDOR TABLE: $250 

     • Available for individuals or organizations that are not representing a corporation
• Two (2) representatives per table (each additional representative is $50.00)
• 6Ft. draped and skirted table
• Two (2) chairs
• Single line ID sign
• 1/8 page Ad in the Conference program 
*(Artwork to be provided by vendor in JPEG / PDF format at 300 dpi)*
***(must be supplied by 5/28/2027)***

     AMCer VENDOR TABLE 

     • **Available exclusively for individuals with Arthrogryposis**
• 6Ft. draped and skirted table
• Two (2) chairs
• Single line ID sign
• Half-page Ad in the Conference program 
*(Artwork to be provided by vendor in JPEG / PDF format at 300 dpi)*
***(must be supplied by 5/28/2027)***

For pricing, please email us at: [info@amcsupport.org]()

##### Reach out if you have any questions by emailing us at [info@amcsupport.org]()

If you are ready to signup, please use the form below. Once you hit Submit you will be sent to a payment page to pay for your sponsorship level online.

#### The Vendor Submission Form

       Name   

  Email   

  Address   

  Address 2   

  City   

  State   

  Zip   

  Cell Phone   

  Phone   

  Contact Name   

  Email   

  Please provide a website link (if applicable, not required)   

  Please provide social media links (if applicable, not required)   

  PLEASE CHECK THE LEVEL OF EXHIBITOR:  Direct Literature: $800 Company Vendor Table: $500 Non-Company Vendor Table $250 AMC Vendor Table *(This option is exclusively for those with Arthrogryposis)*

  Please upload a logo, preferably as a true vector (EPS) file or a high-resolution file with a transparent background.   

  Please upload any promotional photos.   

If you have any questions please email ted@amcsupport.org

   Send

**Categories:** 22nd Annual AMCSI Conference, AMC Events

**Tags:** 22nd Annual AMCSI Conference Exhibitor, AMCSI, Conference, Exhibitor

---

### [22nd Annual AMCSI Conference Program](https://amcsupport.org/22nd-annual-amcsi-conference-program/)

**Published:** July 21, 2026
**Author:** Ted Houser

**Content:**

# Advertising Info & Options

Advertise in the official AMCSI Conference Program and showcase your organization to hundreds of attendees while supporting those with Arthrogryposis.

Please fill out the form below to order online today.

##### [Click here to download a PDF file of the Conference Exhibitor Sales Kit](https://amcsupport.org/amcsi-22nd-annual_amcsi-conference-sales-kit/)

*(Note: you can open the PDF on a computer and type in your information & email it to us at: *

### Conference Program Specs

**Acceptable FIles:**
• Electronic ONLY *(PDF, JPG, EPS, TIF)*
• 300 DPI minimum resolution (Color Ads) (Please Embed All Images & Outline All Fonts)

If you have any questions about the file setup or acceptable files, please contact: **

***(artwork to be provided by exhibitor in JPEG format at 300 dpi – must be supplied by Friday, May 28, 2027)***

 ![](https://amcsupport.org/wp-content/uploads/2023/12/FP_image_sample.jpg) 

**FULL PAGE SIZE IS – 5.5’’W x 8.5”’H**

***1/4’’ BLEED ON EACH SIDE*** 
***FULL PAGE BLEED FILE SIZE IS – 6’’W x 9’’H***

**BLACK LINE IS THE LIVE ART AREA** 
**KEEP ANYTHING IMPORTANT INSIDE THIS AREA** 
**5’’W x 8’’H**

\~~~~~~~~~~~~~~~~~~~~

**FULL PAGE CUT AD SIZE (5.5”W x 8.5”H):** 
• With 1/4 Bleed on each side = 6”W x 9’H 
(Bleed is any image or color that extends past the actual cut Ad size) 
• Please keep any important things like text inside the Live Area

 ![](https://amcsupport.org/wp-content/uploads/2023/12/HalfP_image_sample.jpg) 

**HALF PAGE SIZE** 
**5’’W x 3.75”’H** 
\~~~~~~~~~~~~~~~~~~~~ 
• THERE IS NO BLEED

 ![](https://amcsupport.org/wp-content/uploads/2023/12/program_wrtr_pg_size-683x1024.jpg) 

**QUARTER PAGE SIZE** 
**2.5’’W x 3.75”’H** 
\~~~~~~~~~~~~~~~~~~~~ 
• THERE IS NO BLEED

Sample Ad sizes are not actual sizes, if you have any questions, please contact:

**Reach For The Stars send a personalized note to your favorite AMCer, MAXIMUM of 200** characters (approximately 35 words)

---

 **PAYMENT OPTIONS:** CHECK VIA MAIL, PAYPAL (CREDIT CARDS), ONLINE ORDERS

**Online: Please fill out the form below and once you hit submit it will bring you to the payment form for you to pay for the Event Program options you are signing up for.** (GiveButter charges a transaction fee, below are your other options)

• **Checks:** Make Checks Payable to: AMCSI , Please note “Conference Program” on memo line
Mail to: AMCSI, P.O. Box 6291, Spartanburg, SC 29304

• **Paypal:** You can pay with a major credit card and you do not need an account.
You must email a copy of your completed form to bod@amcsupport.org
www.paypal.com | AMCSI Paypal Account: bod@amcsupport.org

#### The Program Ad Form 

       Name   

  Email   

  Address   

  Address 2   

  City   

  State   

  Zip   

  Cell Phone   

  Phone   

  Contact Name   

  Email   

  PLEASE CHECK YOUR PROGRAM AD:

Back Cover - Nemours  Inside Front Cover - $350 Inside Back Cover - $300 Full Page - $250 Half Page - $150 Quarter Page - $75 Reach For The Stars Note $30 (For Non-Memebrs)  Reach For The Stars Note $25 (For Members)

  If you have your ad ready, please uplaod it (Files accepted: EPS, PDF, 300 dpi JPG)   

If you have any questions please email ted@amcsupport.org

   Send

**Categories:** 22nd Annual AMCSI Conference, AMC Events

**Tags:** 22nd Annual AMCSI Conference Program, AMCSI, Annual, Conference, Program

---

### [Conference Testimonials](https://amcsupport.org/conference-testimonials-22nd/)

**Published:** July 21, 2026
**Author:** Ted Houser

**Content:**

## Testimonials

We are truly grateful for the thoughtful testimonials shared by attendees of our past Annual AMCSI Conferences. Hearing how these gatherings have supported, connected, and uplifted members of the AMC community means so much to us. Each message reflects the heart of why we do this work, and we deeply appreciate everyone who takes the time to share their experience. Your words help guide our efforts and strengthen the sense of community that makes the conference so meaningful year after year.

If you would like to tell us about your experience at conferences or recevieing grants/scholarships from AMCSI please [**CLICK HERE**](https://amcsupport.org/testimonials/).

 *“I have always wanted to attend the annual conference. This year I thought was a good year because Ryan (my AMCer) turned 18, and we are trying to figure out what is next for him. Ryan also had never met another person with Arthrogryposis, so it would also be a good opportunity to see what life looks like with other people who share his disability. I can only say that it was the best 5 days in a long time. We felt so accepted and able to ask questions and talk openly about day-to-day life and strategies/struggles. The sessions I attended all gave me takeaways. They gave me some information that I hadn’t heard before, as well as ideas for the future, including getting more information about repeating some surgeries Ryan had as a baby. I think this time with friends that share Ryan’s disability gave him a whole new outlook on being independent and figuring out his way. We are already talking about attending next year and figuring out plans for how we can raise funds for AMCSI. We want the conference to continue for years to come.”* 

 ~ Mikki *(Ryan’s Mom)* 

 *“My favorite part of the conference was the teen session because that’s where I met a lot of my friends at the conference, and it was funny and cool to go to something where everyone had the same disability as me.”* 

 ~ Ryan 

 *"To all my AMC’ers… If you’ve never been, you should absolutely go!!!! I attended for the first time last year and it was incredibly insightful and extremely fun!!!!!"* 

 ~ Bong Delrosario 

 *"Norē LOVED PROM NIGHT! They played his jam and he immediately wanted to come out if his chair to break dance on the floor 🤣 Seeing everybody cheer him on and him grabbing the mic to get everybody to sing AMC-123 instead of ABC 123 like the song goes melted my Mama heart. The daily sessions during the conference filled me with so much information I never could've imagined. I thoroughly enjoyed sitting in on the doctors, therapists, and every speaker whose sessions we attended. The small groups/talks were special to me in so many ways. This trip, we named "The Sonshine Voyage," was our very first solo adventure together, just me and my SONshine! And tho no one could see it, it was empowering in every possible way. I connected with other moms walking similar paths, and found comfort, strength, & inspiration in those conversations. Watching Norien flourish in a space built just for him filled my heart more than words can ever say. We're so grateful to Ani, to the AMCSI crew, the Dust Family(who generously donated), our family who helped us make it happen, and to the entire AMC community for welcoming us with such warmth. This wasn’t just a trip. It was a beginning, a light-filled reminder that we are never alone, and that beautiful things bloom when we least expect them. 👣💙✨️"* 

  ~ Tess *(Nore's Mom)* 

 *“Attending the AMC Conference reminded me that I’m not alone. It was a powerful ‘been there, done that’ moment seeing so many people living full, independent lives gave me hope that I can and will live a long, successful, healthy life.”* 

 ~ Shameia R. 

 *"Growing up, I never met anyone with AMC in person. This organization allowed me to accomplish meeting others my age, similar type of AMC and more! As a first-time attendee, I had an incredible time connecting with people who share similar lived experiences. Whether it was contributing to the research, Meeting Valerie Pepe for the first time, leading an impromptu jam session to share my love of music, or simply enjoying drinks and laughter with some amazing individuals — I felt truly seen, supported, and uplifted. It was a deeply validating and heartwarming experience."* 

 ~ Julie M. 

 *"This was my very first AMCSI Conference, which I was able to attend courtesy of a generous donor. When I joined one of the many sessions available to discuss a variety of topics, I felt like I had known many of these people my entire life despite never having met almost all of them. I found it very eye-opening to hear from other people with AMC from all walks of life about what their experiences were like, both similarly and different to myself. There is immense value in holding an event like this every year because there were so many times growing up where I felt like I was one of one. I'm very grateful to Ani and the rest of the AMCSI staff for ensuring a fantastic event that I will remember forever, and also hope to attend annually moving forward."* 

 ~ Kevin S. 

 *“Attending the Arthrogryposis Conference for the very first time was an unforgettable experience for our family, made possible through the generosity of the scholarship program. Walking into a space filled with so many beautiful young adults with arthrogryposis, living confidently, being themselves, and having fun, was incredibly powerful for me as a mom. It gave me hope and reminded me that my son has such a bright future ahead of him. One of the most meaningful parts for me personally was connecting with other mothers who truly understand the joys and challenges of this journey. Having those conversations, sharing stories, and feeling that instant sense of community was deeply comforting and inspiring. For my son, the highlight was making new friends—friends who share his experiences and with whom he immediately felt a special connection. Seeing his smile as he laughed and played with them is something I’ll never forget. For my husband, one of the moments that stood out was meeting Teresa, an extraordinary person who paints beautiful artwork using her mouth. Her creativity and determination left a lasting impression on him and reminded us of the strength and possibilities within this community. We returned home from the conference with full hearts, new friendships, and a sense of belonging that we didn’t even realize we were missing. We are so grateful to have been given this opportunity and will carry the inspiration, hope, and connections we found with us forever.”* 

 ~ Veronica P. 

 *“Our experience was wonderful, I grew up with arthrogryposis and I had never seen such a sense of community and support. I was very overwhelmed with emotions. It made me reflect a lot on growing up feeling like it was just me who was different. As well as reflecting on how many different obstacles a person can overcome, things some can see as impossible, someone else has adapted to. It was beautiful. We were lucky to join Kelly and Maria’s family during dinner. Kelly really made me feel welcomed and helped break my introverted personality 🙂 As a person who grew up with AMC and a mother of an AMCer , my favorite part of the conference was watching the kids and their fearless spirit. Their smiles filled my heart and eased my worries about Rayan ever feeling isolated when he grows up. We are hoping to join again next year in Ohio!”* 

 ~ Hend

**Categories:** 22nd Annual AMCSI Conference, AMC Events

**Tags:** AMCSI, Conference, Conference Testimonials, Testimonials

---

### [Zoom Sessions / Zoom Registration](https://amcsupport.org/zoom-sessions-zoom-registration/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## AMC Support Zoom Groups

### Register to receive monthly email notifications on the upcoming PreTeen & Teen Zoom Hangouts!

##### They are also posted month**ly on [Facebook](https://www.facebook.com/AMCSUPPORT/) & [Instgram](https://www.instagram.com/amcsupport/)** *(@amcsupport)*!

 ![The image is from the 20th Annual AMCSI Conference in Norfolk, VA, which is a photo of the Preteen AMCers from the prom backdrop. The top has a bright red color with a transparent gradient coming down from the top, with the words ’SATURDAY, JANUARY 10, 2026, 2:00 PM EST, (ZOOM INFO IN POST)’ written in white in the upper left corner. In the upper-left corner, the AMCSI Logo is shown with the FB, IG, BlueSky, TikTok, YouTube & X logos, and @AMCSUPPORT in white.](https://amcsupport.org/wp-content/uploads/2023/12/amcsi-preteens.jpg) 

 ![The image is from the 20th Annual AMCSI Conference in Norfolk, VA, which is a photo of the Teen AMCers from the prom backdrop. There is a short gradient to transparency at the top & bottom & in the upper right corner, it says “Saturday, January 17, 2026, 2:00 PM EST, (Zoom info in post)” in white. In the upper left corner is the AMCSI logo, accompanied by the logos of Facebook, Instagram, BlueSky, TikTok, YouTube & X, with the text "@AMCSUPPORT" in white.](https://amcsupport.org/wp-content/uploads/2023/12/AMC-Teens.jpg) 

##### All (required) & (\*) must be filled out.

By signing up, you agree to receive email marketing communication from AMC Support Inc. You understand that you can unsubscribe at any time.

       Parent / Gaurdains First Name   

  Parent / Gaurdains Last Name   

  Email   

  PreTeen / Teen Name   

 Please read & fillout the Photo Release form which is ONLY used for promotional videos and photos of our AMC PreTeen & Teen Hangout Sessions. **[DOWNLOAD THE PHOTO RELEASE FORM HERE](https://amcsupport.org/amcsi25_photo-release-teen-preteen-zoom/)** 

  Please upload the signed Photo Release PDF Form by clicking the 'Browse' button after you have dopwnloaded it and filled it out.   

   🤍 Subscribe 🤍   

### **Monthly Young Adult Zoom Hangouts posted on [Facebook](https://www.facebook.com/AMCSUPPORT/) & [Instgram](https://www.instagram.com/amcsupport/)** *(@amcsupport)*!

 ![A group photo of those with AMC at the 20th Annual AMCSI Conference in Norfolk, Virginia, July 9-12, 2025.](https://amcsupport.org/wp-content/uploads/2025/10/AMCSI-group-photo.jpg) 

### **Every Saturday at 8pm EST, AMC Adult Zoom Hangout!**

See the Zoom info below

 [ ![AMCSI blue background with the word ‘ZOOM’ ghosted on a diagonal in a step & repeat pattern, with the AMCSI logo in white, centered at the top, and the title AMC Adults Every Saturday (Time Zones: 8:00 pm EST, 7:00 pm CMT | 6:00 pm GMT | 5:00 pm PCT | 12:00 pm NZ. Showing a photo of adult AMCers from the 20th Annual CMASI Conference in Norfolk, VA. In the bottom left corner is the AMCSI logo, accompanied by the logos of Facebook, Instagram, BlueSky, TikTok, YouTube & X, with the text "@AMCSUPPORT" & in the bottom right the hashtags “#AMCSI” & “#AMCadultZoom” all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI26_adult-zoom.jpg) ](https://us02web.zoom.us/j/82575582605?pwd=8Wf3QxZAAbAFnfT9sbzpuNq4ld3gE3.1) 

**Zoom Link:
[Adult Zoom Session](https://us02web.zoom.us/j/82575582605?pwd=8Wf3QxZAAbAFnfT9sbzpuNq4ld3gE3.1)**

**Meeting ID:** 825 7558 2605
**Passcode:** 465342

**Categories:** Arthrogryposis, Get Involved, Zoom Sessions / Zoom Registration

**Tags:** Get Involved, Zoom Sessions / Zoom Registration

---

### [Smokin' For A Cause](https://amcsupport.org/smokin-for-a-cause/)

**Published:** July 15, 2026
**Author:** Ted Houser

**Content:**

# Smokin’ for a Cause: Wheeler’s BBQ Competition & Fundraiser

##### *Benefiting AMCSI (Arthrogryposis Multiplex Congenita)*

Fire up your smokers and join us for the 2nd Annual Smokin’ for a Cause: Wheeler’s BBQ Competition & Fundraiser. This exciting community event brings together BBQ enthusiasts, families, and supporters for a day of great food, friendly competition, and fundraising in support of Arthrogryposis Multiplex Congenita Support, Inc. *(AMCSI)*.

**This year’s competition is held in memory of Dutton Ceray, honoring his legacy while raising funds to support individuals and families affected by AMC.**

### Calling All Pitmasters!
Think your BBQ is award-winning? Gather your team and put your skills to the test!

**Competition Categories:**
🥩 Best Ribs
🍗 Best Chicken

**Entry Information:**
Entry Fee: $150 per team
Meat: Provided by each competing team
Awards: 1st, 2nd, and 3rd Place Winners

**Event Details:**
Date: Saturday, October 24, 2026
Time: 11:00 AM – 5:00 PM
Location: 
6234 County Road 218
Jacksonville, FL 32234

##### Ready to compete or have questions about the event?
For registration and additional information, contact:
Jason Wheeler
📞 904-496-8806

###### Whether you’re competing, cheering on your favorite pitmaster, or simply enjoying some incredible barbecue, your participation helps support our mission and the AMC Families we serve.

Come enjoy a day of food, fun, and community while making a difference.

**Categories:** AMC Events

**Tags:** AMCSI, BBQ, Dutton Cercy, Fundraiser, Smokin' For A Cause, Upcoming

---

### [Start a Fundraiser - Ways AMCSI Can Help](https://amcsupport.org/ways-amcsi-can-help/)

**Published:** January 22, 2024
**Author:** Ted Houser

**Content:**

![](https://amcsupport.org/wp-content/uploads/2024/01/rogersrun.jpg) 

*(Photo credit: [Rogers Run](https://www.rogersrun4amc.com) for AMC has donated over $124k to AMCSI over the last 14 years.)*

#### Start a Fundraiser

AMCSI can help amplify your fundraising with a dedicated landing page that includes your fundraising story, your logo (if you have one), and a custom donation setup where your supporters can donate directly to your cause. 100% of those funds go right back into helping families through all the of our programs and grants.

### [Please fill out the form below to let us know!](https://amcsupport.org/ways-amcsi-can-help/#fundraiser)

Your dedication, compassion & tireless support make it possible for us to uplift and empower the AMC community in meaningful ways.

**Because of your efforts, we’re able to provide:**

- AMCSI Conference Scholarships
- Accessibility, Adoption, Bereavement, Medical Travel, Mini-Meetup & Research Grants
- AMCSI Annual Conference
- And the unforgettable AMC Holiday Grant—bringing joy & lasting memories to families during the holidays.

Checks can be mailed to:
**Arthrogryposis Multiplex Congenita Support Inc. (AMCSI)**
P.O. Box 6291
Spartanburg, SC 29304

### Below are some suggestion on how to help!

- Create a birthday celebration fundraising event
- Employee Match – Ask your company about donation matches
- Donate in Memory Of – Honor A loved One
- Legacy Donation – put AMCSI in your Will
- Yard-sales, Bake-sales, Lemonade Stands
- Pancake Breakfast/Lunch/Dinner
- Corn-hole Tournament
- Restaurant Partnership/Wine Tasting:
    Pub Crawl
- Sip’n Paint
- Host An Event:
    - Hip Hop Festival
    - Comedy Night
    - [Val’s AMC Music Festival](https://amcsupport.org/valerie-pepes-amc-music-festival/)
    - Val’s Bowl-A-Thon
    - Reach out to local musicians
    - [253 For AMC](https://amcsupport.org/253-for-amc/)
    - [Misha’s Long Road To AMC Awareness](https://amcsupport.org/mishas-long-road-to-amc-awareness/)
- Organize a 5K *(Run, walk or roll)*:
    Bike Race – 253 For AMC, Color Run
- Motorcycle Run *(Ride for AMC Charity)*
- Golf Tournament
- Employment Donor Match Programs
- Crazy Hat Day At School
- [Stream for AMCSI](https://tiltify.com/arthrogryposis-multiplex-congenita-support-inc-amcsi)

### Thank you for believing in the mission & helping us make a difference.

 ![](https://amcsupport.org/wp-content/uploads/2026/04/88e69b18-7c53-4dfe-8d11-362ecc3132ec-scaled.jpg) 

 ![Rogers Run 2025](https://amcsupport.org/wp-content/uploads/2024/01/rogers-run-2025.png) 

 ![253 for AMC](https://amcsupport.org/wp-content/uploads/2024/01/253-for-amc.png) 

 ![Vals AMC Music Fest](https://amcsupport.org/wp-content/uploads/2024/01/vals-music-fest.png) 

 ![AMC and Me](https://amcsupport.org/wp-content/uploads/2024/01/amc-and-me.png) 

 ![19th Annual Group Photo](https://amcsupport.org/wp-content/uploads/2024/01/19th-annual-group-photo.png) 

##### Tell Us About Your Fundraiser/Event

##### All (required) & (\*) must be filled out.

By signing up, you also agree to receive email marketing communication from AMC Support Inc. You understand that you can unsubscribe at any time.

       Name   

  Email   

  Phone   

---

  Why are you contacting us?  Starting/Learning how to create an AMC Mini Meetup/Event  Share an AMC Mini Meetup/Event near me

---

 Submit information about your Fundraiser/Event 

  What is the name of your Fundraiser/Event?   

  Where is the location of your Fundraiser/Event?   

  Please describe your Fundraiser/Event:   

  Start-date   

  End-date   

  Start-time   

  End-time   

---

 Does the Fundraiser/Event have a website? 

  Does the Fundraiser/Event have a website?  Yes No

  If yes, include website URL:   

  Does your Fundraiser/Event have social accounts?  Yes No

 If yes, please add the social links below: 

  Facebook   

  Instagram Link   

  TikTok Link   

  Bluesky   

  X (formerly Twitter) Link   

  Other Social Links   

   Submit

**Categories:** Get Involved, Ways To help AMCSI

**Tags:** Get Involved, Ways To Help AMCSI

---

### [AMC Awareness Day](https://amcsupport.org/amc-awareness-day/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

##### June 30th Is AMC Awareness Day

 Days

 Hours

 Minutes

 Seconds

 Happy AMC Awareness Day! 

# Learn About All Of The Ways To Celebrate AMC Awareness Day In Your Location!

Click below to easily navigate through this page 🙂

[Lighting Request](https://amcsupport.org/amc-awareness-day/#lighting) | [AMC Awareness Day Flag](https://amcsupport.org/amc-awareness-day/#flag) | [Social Media Header & Transparent Profile Overlay Images](https://amcsupport.org/amc-awareness-day/#social) | [Ways To Spread Awareness](https://amcsupport.org/amc-awareness-day/#awareness) | [Request Proclamations](https://amcsupport.org/amc-awareness-day/#proclamations) | [AMC Awareness PR Packet](https://amcsupport.org/amc-awareness-day/#pr-packet) | [Past Years AMCer Spotlight & Fact Promotions](https://amcsupport.org/amc-awareness-day/#past)

### We will be adding each days Arthrogryposis fact (Starting June 1st), leading up to AMC Awareness Day *(June 30th)* here. To learn how to get involved please scroll below.

    2026 AMC Awareness Daily AMCer Spotlight 

      [ ![](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-29.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-29.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-28.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-28.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-27.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-27.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-26.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-26.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-25.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-25.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-24.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-24.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of an AMCer who has Sheldon Hall Syndrome and has made the middle school dance and basketball teams! She has clubfoot, vertical talus, a corrected leg length discrepancy, and hand/wrist/elbow contractures, with a large blue ribbon on the right, a white bumblebee in the bottom-left corner. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-23.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-23.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of Taela, who was born with AMC, is the brightest, sweetest little girl! 💙, with a large blue ribbon on the right, a white bumblebee in the bottom-left corner. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-22.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-22.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of Rylee may have Arthrogryposis, but it does not define her. She is strong, resilient, stubborn in the best way, and continues to exceed expectations every single day. Watching her fight for every milestone has been one of the greatest privileges of our lives. We couldn’t be more proud of our girl💕🦋!, with a large blue ribbon on the right, a white bumblebee in the bottom-left corner. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-21.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-21.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of Jaxson with his custom elbow & wrist splints!, with a large blue ribbon on the right, a white bumblebee in the bottom-left corner. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-20.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-20.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of Everleigh, who is two years old & enjoying her summer with mom & brother, Elliot!, with a large blue ribbon on the right, a white bumblebee in the bottom-left corner. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-19.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-19.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of Hudson: he is 3 years old and has upper-extremity involvement. He is the bravest, smartest, funniest little dude you could ever meet. He loves sports, and it is amazing to watch him adapt and overcome in his own little ways already at such a young age, with a large blue ribbon on the right, a white bumblebee in the bottom-left corner. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-18.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-18.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of Addison, a bright and determined 5-year-old from Ontario, Canada, living with Arthrogryposis Multiplex Congenita (AMC). She loves competitive dance, hockey, spending time with her sisters, and sharing her fun personality with everyone around her. After multiple treatments, surgeries, and years of wearing AFO braces, Addison continues to face every challenge with courage and perseverance, reminding us that every milestone is worth celebrating, with a large blue ribbon on the right, a white bumblebee in the bottom-left corner. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-17.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-17.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of Hazel, whose family has been a part of our wonderful group on Facebook since her mother was pregnant with her two-year-old AMC warrior. She is affected in her hands (especially her left), wrists, and feet. Hazel is #AMCstrong, with a large blue ribbon on the right, a white bumblebee in the bottom-left corner. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-16.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-16.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of Janet, who is currently 65 years young. Up until four years ago, she had only met two or three people who had AMC. Janet had stumbled upon a post by Misha on Facebook and reached out to her. That year, the Orlando conference was fully booked, but she was able to go down from Jacksonville on the last night of the conference and had the wonderful opportunity to meet Misha and Marty. What a life-changing experience! Janet has now attended three more conferences, and I am looking forward to the 2026 conference! At the 2025 conference, I participated in power soccer and had a spectacular time, with a large blue ribbon on the right, a white bumblebee at the bottom left corner. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-15.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-15.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of Samya, who is 24 now, and wanted to share one of her favorite moments meeting Ward "Scarman" Foley, with a large blue ribbon on the right with the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-14.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-14.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of Sara, who is 30 years old, a mom to a perfect 11-year-old boy, a fiancé, a travel agent, a full-time auditor for a furniture store & a lover of all things Disney & travel, with a large blue ribbon on the right with the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-13.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-13.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact “There are approximately 500+ types of arthrogryposis, with variations within each of those found types.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-12.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-12.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of Rod holding himself upside down between two golf carts, with a large blue ribbon on the right with the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-11.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-11.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of Zennedi standing in a pretty white dress, with a light, off-white, pink ribbon in her hair & matching pink boots, with a large blue ribbon on the right with the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-10.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-10.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of Douglas standing with the New Orleans Saints owner, Mrs. Gayle Benson, Doug's Mom (Joan Black), Drew Brees, with a large blue ribbon on the right with the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-9.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-9.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of Wyatt doing one of his favorite activities, riding his horse!🐴💙, with a large blue ribbon on the right with the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-8.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-8.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of a young AMCer in a blue-and-white princess dress for her AMC Awareness Day, with a large blue ribbon on the right with the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-7.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-7.jpg) 

 [ ![#AMCAwarenessDay #AMCstrong #Arthrogryposis #BlueForAMC #AMCCommunity The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of an AMCer in the Alberta mountains in Canada, with a large blue ribbon on the right with the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white. #AMCCommunity #ArthrogryposisMultiplexCongenita #RareCondition #DisabilityAwareness #DisabilityCommunity #AdaptiveLife #AdaptiveSports #Accessibility #InclusiveCommunity #CommunitySupport #LivingWithAMC #AMCFamily #RareButStrong #DisabilityAdvocate #AdaptiveLiving #ShowYourStrength #PhotoSubmission #AwarenessCampaign #JuneAwareness #SupportRareConditions #AMCpride #StrongerTogether #VisibleWithAMC #LifeWithAMC #RareCommunity](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-6.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-6.jpg) 

 [ ![#AMCAwarenessDay #AMCstrong #Arthrogryposis #BlueForAMC #AMCCommunity The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of an AMCer smiling with a fish she caught, with a large blue ribbon on the right with the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white. #AMCCommunity #ArthrogryposisMultiplexCongenita #RareCondition #DisabilityAwareness #DisabilityCommunity #AdaptiveLife #AdaptiveSports #Accessibility #InclusiveCommunity #CommunitySupport #LivingWithAMC #AMCFamily #RareButStrong #DisabilityAdvocate #AdaptiveLiving #ShowYourStrength #PhotoSubmission #AwarenessCampaign #JuneAwareness #SupportRareConditions #AMCpride #StrongerTogether #VisibleWithAMC #LifeWithAMC #RareCommunity](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-5.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-5.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of an AMCer working on set acting in things that she loves, with a large blue ribbon on the right with the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-4.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-4.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of an AMCer in his wheelchair going to school with his sister, with a large blue ribbon on the right with the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-3.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-3.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of an AMCer working on a painting using her mouth with a large blue ribbon on the right with the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-amc-awareness-day-2.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-amc-awareness-day-2.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a photo of an AMCer smiling in her red dress & black graduation cap with a large blue ribbon on the right with the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#AMCawareness” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-amc-awareness-day-1.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-amc-awareness-day-1.jpg) 

     2026 AMC Awareness Daily Facts 

      [ ![](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-30.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-30.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-29-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-29-fact.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-28-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-28-fact.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-27-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-27-fact.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-26-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-26-fact.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-25-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-25-fact.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-24-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-24-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact “ZC4H2 is an X-linked form of arthrogryposis found in boys and girls. Individuals have abnormal muscle tone and learning differences, not common in most other forms of arthrogryposis.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-23-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-23-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact “ZC4H2 is an X-linked form of arthrogryposis found in boys and girls. Individuals have abnormal muscle tone and learning differences, not common in most other forms of arthrogryposis.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-22-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-22-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact “About 1/3 of cases of AMC are amyoplasia type which is non-genetic & sporadic in the population. There is no known cause for amyoplasia.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-21-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-21-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact “There is no cure for arthrogryposis. The goal of treatment is to maximize independence in activities of daily living.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-20-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-20-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact “Most kids with arthrogryposis grow up to be successful adults. In fact, a study showed that adults with AMC tend to attain higher levels of education at a higher rate than the general population.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-19-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-19-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact “As research progresses, the cause of amyoplasia needs to be identified, gene mapping in genetic types continues, and long-term outcomes are being tracked for kids and adults.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-18-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-18-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact “Knowing the genetic cause of arthrogryposis helps drive future medical treatment strategies.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-17-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-17-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact “With full exome sequencing, more genetic links to arthrogryposis are being found on a regular basis. That’s why supporting AMC research is more important than ever!” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-16-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-16-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact “Joint contractures develop because the unborn baby fails to move properly & can be a prenatally missed diagnosis of AMC. Movement is vital to proper joint development.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-15-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-15-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact “Treatment for Arthrogryposis often includes: Stretching the joints, serial casting, physical, occupational & speech therapies, bracing, tendon releases & lengthening, osteotomies (bone cuts), and external fixators.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-14-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-14-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact “Common joint contractures include: Clubbed feet or vertical talus, extended or flexed knees, dislocated and/or externally rotated hips, internally rotated shoulders, extended or flexed elbows, flexed wrists, adducted thumbs (stuck-in-palm), fingers fisted or extended.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-13-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-13-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact “There are approximately 500+ types of arthrogryposis, with variations within each of those found types.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-12-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-12-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact “Arthrogryposis Multiplex Congenita is an umbrella diagnosis, which means AMC can also be a symptom of many syndromes & underlying conditions.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-11-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-11-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact “Intellectual ability is typical in most individuals with Arthrogryposis but some people do have an intellectual disability with AMC.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-10-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-10-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact "AMC is non-progressive but the contractures can recur after treatment.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-9-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-9-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact "All joints can be affected including the spine and jaw.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-8-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-8-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact "It is a condition not a disease and it occurs 1 in 3,000 live births.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-7-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-7-fact.jpg) 

 [ ![#AMCstrong #AMCAwareness #Arthrogryposis #AMCAwarenessDay The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact "• Arthrogryposis - Curved Joint, ~ arthro - joint, ~ gryp - curved, • Multiplex - Multiple, • Congenital - Present At Birth, •AMC” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white. #AMCCommunity #ArthrogryposisMultiplexCongenita #RareCondition #DisabilityAwareness #DisabilityCommunity #AdaptiveLife #AdaptiveSports #Accessibility #InclusiveCommunity #CommunitySupport #LivingWithAMC #AMCFamily #RareButStrong #DisabilityAdvocate #AdaptiveLiving #ShowYourStrength #PhotoSubmission #AwarenessCampaign #JuneAwareness #SupportRareConditions #AMCpride #StrongerTogether #VisibleWithAMC #LifeWithAMC #RareCommunity](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-6-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-6-fact.jpg) 

 [ ![#AMCstrong #AMCAwareness #Arthrogryposis #AMCAwarenessDay The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact "More than 3 joints have to affected in 2 areas of the body to have a diagnosis of AMC.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white. #AMCCommunity #ArthrogryposisMultiplexCongenita #RareCondition #DisabilityAwareness #DisabilityCommunity #AdaptiveLife #AdaptiveSports #Accessibility #InclusiveCommunity #CommunitySupport #LivingWithAMC #AMCFamily #RareButStrong #DisabilityAdvocate #AdaptiveLiving #ShowYourStrength #PhotoSubmission #AwarenessCampaign #JuneAwareness #SupportRareConditions #AMCpride #StrongerTogether #VisibleWithAMC #LifeWithAMC #RareCommunity](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-5-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-5-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact "A joint contacture is a joint that lacks normal range of motion or in other words the joints are stiff and stuck.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-4-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-4-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact "Having good bone density is important for those who have arthrogryposis, therefore taking vitamin D is sometimes helpful.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-3-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-3-fact.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-amc-awareness-day-2-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-amc-awareness-day-2-fact.jpg) 

 [ ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, with a ghosted image of teh AMCSI logo feet and the AMC Fact "Arthrogryposis is defined as multiple congenital (from birth) joint contractures or multiple joints that are stuck in one position and have very little flexibility.” written above everything, in bold white lettering, with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-amc-awareness-day-1-fact.jpg) ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-amc-awareness-day-1-fact.jpg) 

June 30, 2005, was the day www.amcsupport.org was launched by our founder, Ani Samargian. This website was the seed for Arthrogryposis Multiplex Congenita Support, Inc., becoming an official non-profit two years later.

Every year, on this day, we spread the word about arthrogryposis multiplex congenita (AMC) over all social media platforms. Join the movement and help us tell the world about AMC using our hashtags #blueforAMC & #AMCstrong! There are many great ways to get involved with AMCSI & celebrate on June 30th!

### [**During the entire month of June, we are offering a Store Code: BLUEFORAMC for 10% OFF all store merchandise!**](https://www.shop.amcsupport.org/)

The AMCSI Board of Directors selected the color blue as the official June 30th, Awareness Day color in 2010. In 2006, blue was selected as the website and message board theme.

# Before June 30th, help us turn more landmarks blue for AMC Awareness Day 💙

### Communities nationwide are lighting landmarks in blue to raise awareness for Arthrogryposis Multiplex Congenita (AMC). 💙

**Confirmed so far:**
🔷 Niagara Falls, NY
🔷 Philadelphia City Hall, PA

### We need your help next.

Reach out to your mayor’s office, city council, parks department, or state and federal representatives and ask them to recognize AMC Awareness Day by lighting a local landmark blue on June 30.

##### Many locations are approved simply because someone in the community asks.

If your request is approved, send us the details and photos so we can share it with the AMC community:
📩 [info@amcsupport.org]()

### Confirmed Locations:

 [ ![Before June 30th, help us turn more landmarks blue for AMC Awareness Day 💙 Communities nationwide are lighting landmarks in blue to raise awareness for Arthrogryposis Multiplex Congenita (AMC). Confirmed so far: 🔷 Niagara Falls, NY 🔷 Philadelphia City Hall, PA We need your help next. Reach out to your mayor’s office, city council, parks department, or state and federal representatives and ask them to recognize AMC Awareness Day by lighting a local landmark blue on June 30. Many locations are approved simply because someone in the community asks. If your request is approved, send us the details and photos so we can share it with the AMC community: 📩 info@amcsupport.org #BlueForAMC #AMCStrong #AMCAwarenessDay #Arthrogryposis #RareConditionsAwareness](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI26-lighting-request-cityhall.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI26-lighting-request-cityhall.jpg) 

Philadelphia City Hall
Pennsylvania

 [ ![Before June 30th, help us turn more landmarks blue for AMC Awareness Day 💙 Communities nationwide are lighting landmarks in blue to raise awareness for Arthrogryposis Multiplex Congenita (AMC). Confirmed so far: 🔷 Niagara Falls, NY 🔷 Philadelphia City Hall, PA We need your help next. Reach out to your mayor’s office, city council, parks department, or state and federal representatives and ask them to recognize AMC Awareness Day by lighting a local landmark blue on June 30. Many locations are approved simply because someone in the community asks. If your request is approved, send us the details and photos so we can share it with the AMC community: 📩 info@amcsupport.org #BlueForAMC #AMCStrong #AMCAwarenessDay #Arthrogryposis #RareConditionsAwareness](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI26-lighting-request-niagara.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI26-lighting-request-niagara.jpg) 

Niagara Falls
New York

 [ ![The distinctive Sperry Tower glows blue against the night sky in Eagan, Minnesota. Standing nearly 200 feet tall with its signature ringed design and thousands of LED lights, the landmark serves as both a communications tower and a highly visible community beacon in support of AMC Awareness Day on June 30. The AMCSI logo appears in the upper-left corner, with the AMC footprint symbol in the upper-right corner.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI26-lighting-request-sperry-tower.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI26-lighting-request-sperry-tower.jpg) 

Sperry Tower
Minnesota

 [ ![The illuminated lookout tower and beacon at Brant Street Pier shine blue above Lake Ontario in Burlington, Ontario. Extending 137 meters over the waterfront, this iconic landmark offers panoramic views of the shoreline and serves as a symbol of community awareness and support for Arthrogryposis (AMC) on June 30. The AMCSI logo appears in the upper-left corner, with the AMC footprint symbol in the upper-right corner.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI26-lighting-request-brant-st-pier.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI26-lighting-request-brant-st-pier.jpg) 

Brant Street Pier 
Lookout Tower, Ontario

 [ ![We're excited to announce that Boathouse Row along the Schuylkill River in Philadelphia has officially confirmed it will light up blue on Tuesday, June 30th, in honor of AMC Awareness Day! Our growing list of confirmed landmarks now includes: 🔷 Philadelphia City Hall, Pennsylvania 🔷 Niagara Falls, New York 🔷 Sperry Tower, Minnesota 🔷 Brant Street Pier Lookout Tower, Ontario 🔷 Boathouse Row, Philadelphia, Pennsylvania Now let's keep the momentum going! Help us add even more landmarks to the list by reaching out to your mayor's office, city council, parks department, or state and federal representatives. A simple request is often all it takes to have a local landmark recognized for AMC Awareness Day. Learn how to get involved: https://amcsupport.org/amc-awareness-day/ If your request is approved, we'd love to celebrate it! Send us the details and photos so we can share them with the AMC community. 📩 info@amcsupport.org #BlueForAMC #AMCStrong #AMCAwarenessDay #Arthrogryposis #RareConditionsAwareness](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI26-lighting-request-boathouse-row-schuykill-river.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI26-lighting-request-boathouse-row-schuykill-river.jpg) 

Boathouse Row on the 
Schuykill River
Philadelphia, PA

 ![AMC Bumble Bee in Blue for June 30th!](https://amcsupport.org/wp-content/uploads/2023/12/BumbleBee.png) 

### “Aerodynamically, the bumblebee shouldn’t be able to fly, but the bumblebee doesn’t know it, so it goes on flying anyway.” – Mary Kay Ash

# Fly the Blue for AMC!

### Want to make a big statement for AMC Awareness Day? 💙

Download the official AMCSI AMC Awareness Day Flag and have it printed locally so you can proudly display it at your home, school, workplace, community event, or anywhere you celebrate AMC Awareness Day.

The print-ready PDF is free to download & designed for a large, eye-catching flag that can be enjoyed year after year.

 ![Sample Only - Official AMC Awareness Day Flag](https://amcsupport.org/wp-content/uploads/2026/05/AMC_Awareness_Day_waving_flag.jpg) 

 ![The AMCSI logo is small, white, in the upper-left corner & the background is a dark blue-to-blue circular gradient. It says ‘AMC AWARENESS DAY TUESDAY, JUNE 30TH’ in white, big lettering next to the AMCSI logo, & 'New 6 ft. x 4 ft. AMC Awareness Day Flag!' with a photo of the actual flag below it & 'Download the print-ready PDF file today!' with a large blue ribbon on the right & the white bumblebee on the bottom left corner of it. Near the bottom is a blue-to-dark-blue gradient bar that runs behind the ribbon on the right & all the entire width, with the AMC Awareness Day AMCSI website link "https://amcsupport.org/amc-awareness-day/#flag" in bold white lettering across it. At the bottom right are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X. The text "@AMCSUPPORT" is located above them, on the bottom left, and the hashtags “#BlueForAMC” & “#AMCstrong” are displayed on the bottom right, all in white.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-flag.jpg) 

 **Flag Specifications**

- 6 feet wide × 4 feet high
- 1-inch bleed on all sides
- Artwork is white
- Print on any shade of blue available from your flag printer
- We recommend royal blue for the classic AMC Awareness Day look

 [  Download PDF FIle  ](https://amcsupport.org/amcsi-amc-awareness-day-flag/) 

### Download the file, take it to your favorite flag printer, help turn your community #BlueforAMC!

***NOTE:** The file is for your flag printer to work with. If they already have the blue flags then they can remove the background in the file on their end. If they do not and will be printing the background on a white flag then it is there for them to use.*

**Right-click** on either image below to save it to your desktop to upload as your Facebook header image or place over a photo for your social media profile image.

Header image

 ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_fb_pg_hdr_june30th-REV.png) 

Profile Transparent Overlay image

 ![AMCSI | AMC Awareness Day social media profile transparent over-lay](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI_fb_blueforamc_frame850.png) 

### How can you spread AMC awareness on June 30th?

There are several ways you can help spread awareness on Arthrogryposis Awareness Day:

- Post on social media (Facebook, Twitter, & Instagram) using one of our graphics.
- Wear blue, take a photo, & post it on any or all social media platforms using the hashtags #BlueForAMC, #Inclusion, #Acceptance, #Advocate, #AMCawarenessDay, and/or #ArthrogryposisAwarenessDay.
- Change your cover (header) photo on Facebook with the image below.
- Update your social profile pic with our AMC Awareness frame: [**wibbonize.com/blueforamc\\**](https://track.pstmrk.it/3/twibbonize.com%2Fblueforamc/99yy/5Pi9AQ/AQ/711c5f2e-0aeb-4af0-82a5-c0b16e635445/6/7kl5MmxCH9)
- Please send an email about AMC Awareness Day to your friends & family, encouraging them to wear blue on June 30th

## Proclamations

 [ ![Promotional graphic from AMCSI announcing the City of Philadelphia's recognition of AMC Awareness Day. The image features a bold blue background with iconic Philadelphia imagery subtly incorporated into the design. The headline, "Philadelphia Joins AMC Awareness Day Recognition!" is displayed prominently in white text. A copy of the official City of Philadelphia proclamation recognizing June 30, 2026, as AMC Awareness Day is showcased in the center of the graphic. The AMCSI logo appears in the upper left corner, while blue AMC footprint graphics and social media icons are incorporated throughout the design. The graphic celebrates Philadelphia's support for AMC awareness and ongoing efforts to increase public understanding of Arthrogryposis Multiplex Congenita.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-proclamations-philadelphia.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-proclamations-philadelphia.jpg) 

 [ ![Promotional graphic from AMCSI announcing Texas's recognition of AMC Awareness Day. The image features a bold blue background with a large Texas star ghosted in the background. The headline, "Texas Joins AMC Awareness Day State Recognition!" is displayed prominently in white text. A copy of the official Texas proclamation recognizing June 30, 2026, as AMC Awareness Day is showcased in the center of the graphic. The AMCSI logo appears in the upper left corner, while blue AMC footprint graphics and social media icons are incorporated throughout the design. The graphic celebrates Texas's support for AMC awareness and ongoing efforts to increase public understanding of Arthrogryposis Multiplex Congenita.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-proclamations-texas.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-proclamations-texas.jpg) 

 [ ![Promotional graphic from AMCSI announcing Rhode Island's recognition of Arthrogryposis Awareness Day. The image features a bold blue background with a large Rhode Island anchor ghosted on top, & the headline "Louisiana joins AMC Awareness Day State Recognition!" is displayed prominently in white text. A copy of the official Rhode Island gubernatorial proclamation declaring June 30, 2026, as Arthrogryposis Awareness Day is showcased in the center of the graphic. The AMCSI logo appears in the upper left corner, while blue AMC footprint graphics & social media icons are displayed throughout the design. The graphic celebrates Rhode Island's support for AMC awareness & ongoing efforts to increase public understanding of Arthrogryposis Multiplex Congenita.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-proclamations-louisiana.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-proclamations-louisiana.jpg) 

 [ ![Promotional graphic from AMCSI announcing Rhode Island's recognition of Arthrogryposis Awareness Day. The image features a bold blue background with a large Rhode Island anchor ghosted on top, & the headline "Rhode Island joins AMC Awareness Day State Recognition!" is displayed prominently in white text. A copy of the official Rhode Island gubernatorial proclamation declaring June 30, 2026, as Arthrogryposis Awareness Day is showcased in the center of the graphic. The AMCSI logo appears in the upper left corner, while blue AMC footprint graphics & social media icons are displayed throughout the design. The graphic celebrates Rhode Island's support for AMC awareness & ongoing efforts to increase public understanding of Arthrogryposis Multiplex Congenita.](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-proclamations-rhode-island.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-proclamations-rhode-island.jpg) 

 [ ![A blue promotional graphic from AMCSI announcing AMC Awareness Day recognition in Puerto Rico. At the top is the AMCSI logo beside a stylized Puerto Rican flag flowing across the design. Large white text reads: “Puerto Rico joins Kentucky & Utah in AMC Awareness Day State Recognition!” with “June 30th” displayed below. The background features subtle blue silhouettes of people, creating a community-focused feel. Along the bottom are AMCSI’s social media icons and the hashtags #AMCSI and #StateLevelProclamations. Arthrogryposis Multiplex Congenita, AMC Awareness, AMC Awareness Day, disability advocacy, state legislation, Puerto Rico, Kentucky, Utah, health equity, civic engagement](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-proclamations-puerto-rico.jpg) ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-proclamations-puerto-rico.jpg) 

## AMC Awareness Day Proclamation FAQ

#### What is a proclamation?

A proclamation is a formal public statement. It is a major statement made in front of an audience or the authoritative word on some subject. It’s most often used in an official or government context. Proclamations can be created at the local, state, and federal level.

#### Why do I have to request a proclamation every year?

A proclamation is an official document to commemorate a specific time period (day, week, or month) for the purpose of raising awareness about an issue, or celebrating milestones. Therefore, if a proclamation has been issued in the past, a new request still needs to be requested each year.

#### Why is it important to obtain proclamations?

Proclamations are a great way to raise awareness within your community about arthrogryposis. You can use the proclamation for media outreach and social media.

#### Where do I request proclamations from?

Municipalities include: Governor’s office, Town, Cities, Boroughs, Counties or Parishes. A city or county website may list appropriate contacts.

#### Who do I request proclamations from?

A state Governor, Mayor, First Selectman, City Council or County Commission’s office

#### How do I get started in obtaining a proclamation?

Email AMCSIBOD@gmail.com to sign up for your state. We will maintain a list so our volunteers don’t duplicate efforts. If there is another volunteer working on your state, we can put you in contact with them to join forces.

Most states request submission of a request 2 months prior to AMC Awareness Day, June 30 each year.

Follow up 10 to 14 days after you submit the request.

#### What happens when I get the proclamation?

Share with AMCSI and the AMC community and flood the internet with photos. Don’t forget to add hashtags #AMCAwareness, #arthrogryposis and #AMCAwareness2019

Write a letter, post on officials Facebook and\\or Twitter account to the mayor, governor or legislators and thank them for their support in bringing official attention to Arthrogryposis.

#### What do I write?

Here is an example of what to write:

- **Organization:** AMC Support
    **Website:** AMCSUPPORT.ORG
- Arthrogryposis Awareness Day Proclamation
- **Whereas:** Arthrogryposis Multiplex Congenita (AMC) is a condition that causes many joints to be stiff and crooked at birth. A newborn with arthrogryposis lacks the normal range of motion in one or more joints. This condition develops prenatally and can be caused by an underlying condition or syndrome; andWhereas: Arthrogryposis Multiplex Congenita is an umbrella diagnosis, meaning that it is a part of many other
    conditions and syndromes. There are over 400 different types of AMC of which Amyoplasia, Distal Escobar Syndrome is the most common: and
- **Whereas:** A newborn has to have three contracted joints in two different body areas to be diagnosed with arthrogrypoisis. This occurs in 1 in 3,000 births; and
- **Whereas:** Joints that can be affected by AMC include the joints in the hands, feet, hips, knees, elbows, shoulders, wrists, fingers, toes, as well as the jaw and the spine. Though all joints can be affected, some may be unaffected as no two people experience the same symptoms; and
- **Whereas:** Though arthrogryposis is not curable, it is treatable. Treatment goals aim to allow those living with the condition as much independence in their daily lives as possible; now
- **Therefore:** I, Phil Murphy, Governor of New Jersey, do hereby proclaim June 30, 2024, as ARTHROGRYPOSIS AWARENESS DAY in New Jersey.

May 2026 | PR Packet For Immediate Release

**In this Press Release:**

1\. #BlueForAMC Information 💙

2\. How To Celebrate AMC Awareness Ideas 💙

3\. Learn about getting Proclamations set up 
in your City 💙

4\. Where As Statement Example 💙

5\. AMCSI Facts & Information 💙

 [  Download PDF of PR Packet  ](https://amcsupport.org/amcsi-amc-awareness-day-pr-packet/) 

 [ ![Arthrogryposis Multiplex Congenita Support, Inc. PR Packet](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI24_PR_Package-1-qj3qrpvbilt0d9azio41jzltypic39as80cmcfdclc.png "Arthrogryposis Multiplex Congenita Support, Inc. PR Packet") ](https://amcsupport.org/amcsi-amc-awareness-day-pr-packet/) 

### Past Photo Galleries & AMC Awareness Day Fact Promos

    2025 AMC Awareness Day Photo Gallery 

      [ ](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-amc-awareness-day-15.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-18.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-25.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-34.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-32.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-27.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-26.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-22.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-14.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-10.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-33.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-31.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-30.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-29.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-28.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-24.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-23.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-21.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-20.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-19.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-17.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-16.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-15.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-13.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-12.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-11.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-9.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-8.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-7.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-6.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-5.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-4.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-3.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/07/AMCSI-AMC-Awareness-Day-2025-1.jpg) 

     2025 Arthrgryposis Daily Facts & AMCer Spotlights 

      [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-27.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-27-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-26.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-26-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-25.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-25-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-24-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-24.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-23.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-23-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-22.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-22-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-21.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-21-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-20-rev.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-20.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-20-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-19.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-19-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-18.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-18-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-15.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-15-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-16-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-16.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-17.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-17-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-14.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-14-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-13-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-13.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-12.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-12-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-5-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-6-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-7-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-5-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-6-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-7-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-8-2.jpg) [ 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](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-3-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-2-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI25_june-30th-awareness-day-2-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-1-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/06/AMCSI25_june-30th-awareness-day-1-2.jpg) 

     2024 Arthrogryposis Daily Facts! 

      [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_AMC-Awareness-Day-29.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_AMC-Awareness-Day-28.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_AMC-Awareness-Day-27.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_AMC-Awareness-Day-26.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_AMC-Awareness-Day-25.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_AMC-Awareness-Day-24.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_AMC-Awareness-Day-23.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_AMC-Awareness-Day-22.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_AMC-Awareness-Day-21.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_AMC-Awareness-Day-20.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_AMC-Awareness-Day-19.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_AMC-Awareness-Day-18.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_AMC-Awareness-Day-17.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI_AMC-Awareness-Day-16.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI_AMC-Awareness-Day-15.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI_AMC-Awareness-Day-14.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI_AMC-Awareness-Day-13.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI_AMC-Awareness-Day-12.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI_AMC-Awareness-Day-11.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI_AMC-Awareness-Day-10.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI_AMC-Awareness-Day-9.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_AMC-Awareness-Day-8.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI_AMC-Awareness-Day-7.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_AMC-Awareness-Day-6.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI_AMC-Awareness-Day-5.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI_AMC-Awareness-Day-4.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI_AMC-Awareness-Day-3.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI_AMC-Awareness-Day-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI_AMC-Awareness-Day-2.jpg) 

     2023 June 30th Celebration Photo Gallery 

      [ ](https://amcsupport.org/wp-content/uploads/2024/03/1_AMCSI-June-30th-AMC-Awareness-Day-2023-5.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-27.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-12.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-10.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-6.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-26.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-25.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-24.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-23.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-22.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-21.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-20.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-19.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-18.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-17.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-16.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-15.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-14.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-13.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-11.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-9.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-8.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-7.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-5.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-4.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-3.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-June-30th-AMC-Awareness-Day-2023-2.jpg)

**Categories:** AMC Awareness Day, AMC Events, Arthrogryposis

**Tags:** AMC Awareness Day, AMC Events, Upcoming

---

### [Arthrogryposis: New Parent Information Packet](https://amcsupport.org/newparent/)

**Published:** September 20, 2025
**Author:** Ted Houser

**Content:**

[ ![NICU Packet for New Parents](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI25_NICU_Packet_Page_01.jpg) ](https://amcsupport.org/amc_information_packet/) 

#  Arthrogryposis New Parent Information Packet 

Welcome to the AMC Family! It is probably a “family” you never knew existed until now, and being a part of it was not in your plans when you found out you were expecting. Finding out your child has arthrogryposis is a eye-opening experience, whether it was discovered by ultrasound during your pregnancy or not until birth. The joy, wonder, and hope for your new baby can quickly be overshadowed by fear, confusion, and isolation. The flood of medical information can be overwhelming. WE ARE HERE TO HELP! Arthrogryposis Multiplex Congenita Support, Inc (AMCSI) and Take TIME for AMC, Inc are two 501(c)3 non-profit organizations formed with the goal of raising awareness of AMC and providing pertinent information to individuals and families touched by AMC as well as the medical community who cares for them.

 [  View/Download PDF  ](https://amcsupport.org/amc_information_packet/)

**Categories:** Where To Start

**Tags:** AMCSI, Arthrogryposis, Arthrogryposis: New Parent Information Packet, Information Packet, New Parent, Resources

---

### [Conference Scholarship](https://amcsupport.org/conference-scholarship/)

**Published:** March 18, 2024
**Author:** Ted Houser

**Content:**

# AMCSI Conference Scholarship Grant – 2026

 ![](https://amcsupport.org/wp-content/uploads/2024/03/AMCSI-Conferecne_scholarship-awarded-2.jpg) 

 ![](https://amcsupport.org/wp-content/uploads/2024/03/AMCSI-Conferecne_scholarship-awarded-1.jpg) 

### 21st Annual AMCSI Conference | Columbus, Ohio
July 1–4, 2026

This AMCSI Conference Scholarship is made possible by the generous donation of Paul and Wendy Tracy. We are deeply grateful for their support and their commitment to helping members of our community attend conference.

The AMCSI Conference Scholarship will be awarded to a member of our community. The scholarship supports attendance at the 21st Annual AMCSI Conference in Columbus, Ohio.

A limited number of families will be selected to receive a full grant scholarship.

---

#### **This scholarship is available to:**

• A member with Arthrogryposis Multiplex Congenita *(AMC)* **OR** a parent of a child with Arthrogryposis Multiplex Congenita *(AMC)*
• One immediate family member *(spouse, caregiver, parent, etc.)*

Reimbursement of eligible travel and lodging expenses will take place after the conclusion of the conference once valid receipts are submitted and reviewed.

---

#### **📌 Eligible expenses include:** 

✔️ **Conference Registration** – for the recipient and one guest
✔️ **Hotel Stay** – 3 nights *(July 1–4)* Amount shall not exceed **$562.86** ✔️**Airfare:** • Must be **economy class
•** Airfare should not exceed **$500** ✔️**Taxi/Uber:
•** To and from the airport and the conference location *(round trip)*
• Cost not to exceed **$50 per ride** ✔️ **If traveling by vehicle:** Mileage will be reimbursed at the **current federal mileage rate**

---

#### **📌 Application Deadline**

✔️ All applications must be submitted no later than **April 15, 2026**. Incomplete applications will not be considered.

---

#### **📌 Important Notes:** 

🔹 AMCSI does not process conference registration or book travel, hotel accommodations, incidentals, or parking.
🔹 All travel arrangements are the responsibility of the applicant.
🔹 Reimbursement will only be issued after the conference and once receipts are verified.
🔹 Please do not contact us regarding the status of your application. We will contact you if any further information is required.

---

#### **📌 Post-Conference Testimony**

AMCSI would greatly appreciate a brief post-conference testimony to share on our website and social media platforms.

**Please submit:** • Your written testimony
• Any photos you would like included along with your reimbursement receipts to: ****

---

#### **📌 Requirements:**

✔️ Applicant must reside in the United States or Canada
✔️ Applicant must be a **paid member of AMCSI in good standing** to apply for this scholarship grant
✔️ Applicant must provide documentation of an AMC diagnosis
✔️ Applicant must have AMC **or** be a parent of a child with AMC
✔️ Applicant must be 18 years or older **or be the parent/legal guardian of a minor with AMC.**
✔️ Applicant must be a first-time attendee of AMCSI’s annual conference
✔️ Applicant must be an active participant in the annual conference
✔️ Application is not complete without paid membership and required documentation

Scholarship recipients will receive an email notification about their grant award by June 1st.

 *"It was such an honour to receive the first time scholarship to the AMC conference. The conference topics were so helpful and provided a nexus for new research, projects and technologies. The conference was such an amazing experience filled with laughter, friendship, and emotion. While I had met a few people with AMC throughout my life, the conference introduced me to a diverse community that came together to celebrate, reflect, and embrace AMC. In my 40s, this was a completely new experience. There were times I felt sadness that the conference did not exist throughout my childhood. There were times when looking at the younger generations of AMCers, and I was filled with pride hearing what they wanted to accomplish. And there were times that I felt deep gratitude and love for the family and friends who stood alongside us AMCers to advocate and break barriers. Traveling with a disability comes with many additional costs. Being able to attend the conference as a first-time participant with the scholarship helps to relieve so many barriers that exist with attending out-of-town events. Thank you."* 

 Alessia2024 Attendee - AMCSI Member 

### AMCSI Scholarship Application Is Now Closed

##### All (required) (\*) documents must be sent to info@amcsupport.org

Your application will not be processed until all required items are received.
Please do not email to check on the status of your application. We will reach out you if further information is needed.

### Application closes April 15th at 11:59 pm

**Categories:** Financial Aid, Grants

**Tags:** Conference Scholarship, Financial Aid, Scholarships

---

### [Donate](https://amcsupport.org/donate/)

**Published:** March 5, 2024
**Author:** Ted Houser

**Excerpt:** Join Our Monthly Giving Circle
“Just $5 or $10 a month. A lifetime of impact for the AMC community.”
Your monthly support creates lasting change—helping families attend our annual conference, funding adaptive sports and inclusive activities for kids, and sustaining resources and outreach all year long. Together, small gifts make a big difference. 💙

**Content:**

### ✨ Join Our Monthly Giving Circle ✨

“Just $5 or $10 a month. A lifetime of impact for the AMC community.”

Your Monthly Gift Makes a Difference. Imagine the impact if hundreds of supporters each gave just $5 or $10 a month. Together, we can:

- Support families at our annual conference 💙
- Fund adaptive sports and inclusive activities for kids 🏅
- Provide year-round resources, outreach, and hope to the AMC community 🌍

 **Your Gift Powers Our Community Give Back Programs:**
💙 Medical Travel Grant – easing the burden of hospital trips and surgeries
💙 College Scholarship – empowering students with AMC to pursue their dreams
💙 Conference Scholarship – helping more families attend our annual conference
💙 Bereavement Grant – supporting families through unimaginable loss
💙 Research Grant – advancing knowledge and treatment of AMC
💙 Accessibility Grant – assisting families with adaptive needs at home and school

### Why Monthly Giving Matters

Monthly giving is simple, sustainable, and transformative. It allows AMCSI to plan ahead, expand programs, and reach even more families in need.

$5/month → Sends resource packets to newly diagnosed families
$10/month → Supports adaptive equipment, grants, and conference access

#### **[💙 Join our Monthly Giving Circle today](https://givebutter.com/donate-support-amcsi)**

Every dollar counts. Every heart matters. Together, we strengthen the AMC community. 💙
*(Now accepting cashapp & venmo donations & the default is set to Monthly)*

“I am very thankful that I found your website. Using the excellent information from your website, along with other sources, I have been able to help guide her care in a more informed way. Thank you again for providing information that helps families like ours navigate this stage of life with arthrogryposis.”

~ Greg T.

### Learn how Arthrogryposis Multiplex Congenita Support, Inc. has helped Julie during her very first visit to the 20th Annual AMCSI Conference, in Norfolk, VA, on the AMCSI Scholarship!

**Categories:** About Us, Arthrogryposis

**Tags:** AMCSI, Donate, Monthly Donations

---

### [Community Bike Night Supporting AMC Awareness](https://amcsupport.org/amc-awareness-bike-night-utah/)

**Published:** May 12, 2026
**Author:** Ted Houser

**Excerpt:** Join AMC Awareness Bike Night at Black Sheep Bar & Grill in West Jordan, Utah, for an evening of motorcycles, food specials, raffles, and community support. Held from 7 PM to 9 PM on the 2nd Wednesday of each month, this public fundraiser helps support AMC Awareness and the families we serve. Enjoy whiskey, ribs, wings, prizes, and a great night out while supporting a meaningful cause.

**Content:**

## West Jordan, Utah

 ![Event by Jayson Bird and AMC Awareness Ride & Support Public · Anyone on or off Facebook 🔥🏍️ AMC AWARENESS BIKE NIGHT 🏍️🔥 Come out and support a great cause while enjoying an awesome night of bikes, food, and fun! 📍 Black Sheep Bar & Grill – West Jordan, Utah South Valley's newest Bar & Grill has now opened in West Jordan with Great Food, a full bar, big screen TVs, and the friendliest staff in town. 🕖 7:00 PM – 9:00 PM 🍖 Whiskey, Ribs & Wings Specials 🎟️ Raffles + 50/50 Raffle 🏍️ Bikes • Community • Good Times All proceeds help support AMC Awareness and the families we serve 💙 Bring your crew, bring your bikes, and let’s make it a night to remember.](https://amcsupport.org/wp-content/uploads/2026/05/AMC-Awareness-Bike-Night-4.png) 

# 🔥🏍️ AMC AWARENESS BIKE NIGHT 🏍️🔥

### Event by Jayson Bird and AMC Awareness Ride & Support

##### Come out and support a great cause while enjoying an awesome night of bikes, food, and fun!

**📍 Black Sheep Bar & Grill – West Jordan, Utah**
South Valley’s newest Bar & Grill has now opened in West Jordan with Great Food, a full bar, big screen TVs, and the friendliest staff in town.

🕖 7:00 PM – 9:00 PM
🍖 Whiskey, Ribs & Wings Specials
🎟️ Raffles + 50/50 Raffle
🏍️ Bikes • Community • Good Times

### All proceeds help support AMC Awareness and the families we serve 💙

Bring your crew, bring your bikes, and let’s make it a night to remember.

Join AMC Awareness Bike Night at Black Sheep Bar & Grill in West Jordan, Utah, for an evening of motorcycles, food specials, raffles, and community support. Held from 7 PM to 9 PM on the 2nd Wednesday of each month, this public fundraiser helps support AMC Awareness and the families we serve. Enjoy whiskey, ribs, wings, prizes, and a great night out while supporting a meaningful cause.

### [Follow on Facebook](https://www.facebook.com/share/1CR73GRuRz/)

**Categories:** Arthrogryposis

**Tags:** AMC Awareness, AMC Awareness Bike Night, AMC Events, Arthrogryposis, Bike Night, Upcoming, Utah

---

### [Arthrogryposis Medical Institutions ](https://amcsupport.org/arthrogryposis-medical-institutions/)

**Published:** April 30, 2026
**Author:** Ted Houser

**Excerpt:** Specialized arthrogryposis care from leading institutions including Shriners Children's, Nemours Children's Health, and Paley Orthopedic & Spine Institute, offering coordinated treatment, therapy, and surgical expertise for children with AMC.

**Content:**

# Arthrogryposis Medical Institutions

Families navigating Arthrogryposis Multiplex Congenita (AMC) often benefit from specialized, multidisciplinary care. Leading institutions such as Shriners Children’s, Nemours Children’s Health, and Paley Orthopedic & Spine Institute provide dedicated programs focused on improving mobility, independence, and quality of life for children with arthrogryposis.

Together, these institutions represent some of the leading resources available to individuals and families seeking expert care, innovative treatment options, and long-term support for arthrogryposis.

 [ ![Shriners Children's Hospital Logo in Color](https://amcsupport.org/wp-content/uploads/2024/06/L_SC_e_h_4c_p_p-color900.png) ](https://www.shrinerschildrens.org/en/pediatric-care/arthrogryposis) 

At Shriners Children’s, care is delivered through a team-based approach that may include orthopedic surgeons, physical and occupational therapists, and advanced motion analysis specialists. Treatment plans are tailored to each child and often include therapy, splinting, casting, and surgical interventions when appropriate, all with the goal of maximizing function and daily independence.

 [  Visit Shriners Main Website  ](https://www.shrinerschildrens.org/en/pediatric-care/arthrogryposis) 

 [  Visit Shriners Greenville  ](https://www.shrinerschildrens.org/en/locations/greenville) 

 [  Visit Shriners Philadelphia  ](https://www.shrinerschildrens.org/en/locations/philadelphia) 

 [  Visit Shriners St. Louis  ](https://www.shrinerschildrens.org/en/locations/st-louis) 

 [  Visit Shriners Chicago  ](https://www.shrinerschildrens.org/en/locations/chicago) 

 [  Visit Shriners Erie  ](https://www.shrinerschildrens.org/en/locations/erie) 

 [  Visit Shriners Pasadena  ](https://www.shrinerschildrens.org/en/locations/southern-california) 

 [ ![Nemours Children's Hospital Logo](https://amcsupport.org/wp-content/uploads/2025/07/Nemours-logo-900-horizontal.png) ](https://www.nemours.org/onsitesearch.html?q=Arthrogryposis) 

Nemours Children’s Health offers coordinated, family-centered care across multiple locations, including the Delaware Valley region. Their programs integrate specialists, assistive technology, orthotics, and therapy services to help children with AMC develop mobility and participate fully in everyday activities.

 [  Visit Website  ](https://www.nemours.org/onsitesearch.html?q=Arthrogryposis) 

 [ ![Paley Childrens Hospital Logo](https://amcsupport.org/wp-content/uploads/2025/02/Paley-Logo-vector-900pxW.png) ](https://paleyinstitute.org/?s=Arthrogryposis&asl_active=1&p_asl_data=1&customset%5B0%5D=post&customset%5B1%5D=page&asl_gen%5B0%5D=content&asl_gen%5B1%5D=title&qtranslate_lang=0&filters_initial=1&filters_changed=0) 

At Paley Orthopedic & Spine Institute, patients receive highly specialized orthopedic care with an emphasis on individualized treatment strategies. Their approach may combine physical therapy, casting, and advanced surgical techniques, with early intervention playing a key role in improving long-term joint mobility and function.

 [  Visit Website  ](https://paleyinstitute.org/?s=Arthrogryposis&asl_active=1&p_asl_data=1&customset%5B0%5D=post&customset%5B1%5D=page&asl_gen%5B0%5D=content&asl_gen%5B1%5D=title&qtranslate_lang=0&filters_initial=1&filters_changed=0) 

 [ ![HSS | Hospital for Special Surgery](https://amcsupport.org/wp-content/uploads/2026/04/hss-logo-flat.jpg) ](https://www.hss.edu/search?query=Arthrogryposis) 

Every doctor, nurse and therapist at HSS is uniquely focused on treating patients with musculoskeletal conditions. This means that whether you need a hip replacement, treatment for lupus, or complex surgery for an injury, your care will come from an expert in the field. In addition, our surgical and nonsurgical specialists ensure the best care that is customized for each patient’s need.

 [  Visit Website  ](https://www.hss.edu/search?query=Arthrogryposis) 

 [ ![Yale Medecine](https://amcsupport.org/wp-content/uploads/2026/04/Yale-Medecine.png) ](https://www.nemours.org/onsitesearch.html?q=Arthrogryposis) 

David Frumberg, MD specializes in complex orthopedic conditions that require more attention and care. He works closely with patients and their families to understand their needs and unique goals. He enjoys collaborating with other medical professionals to maximize the functioning and comfort of patients of all ages. Dr. Frumberg utilizes state of the art surgical techniques, and is devoted to providing his patients with innovative and compassionate care.

 [  Visit Website  ](https://www.yalemedicine.org/specialists/david-frumberg) 

 [ ![Scottish Rite For Children](https://amcsupport.org/wp-content/uploads/2026/04/Scottish-rite-for-children.png) ](http://scottishriteforchildren.org) 

GIVING CHILDREN BACK THEIR CHILDHOOD

Every day our world-renowned experts provide care, guidance and innovation to help kids run, jump and play.

 [  Visit Website  ](http://scottishriteforchildren.org) 

 [ ![Phoenix Children's](https://amcsupport.org/wp-content/uploads/2026/04/Phoenix-Childrens.png) ](https://phoenixchildrens.org/) 

We treat each patient like family.

We know that there’s nothing more important than your child’s health. That’s why our team of expert providers are dedicated to providing your family with the best health care possible.

 [  Visit Website  ](https://phoenixchildrens.org/) 

 [ ![Good Samaritan University Hospital](https://amcsupport.org/wp-content/uploads/2026/04/ch_gsuh_digital_h_rev_color_rgb.png) ](https://www.catholichealthli.org/good-samaritan-university-hospital) 

*Good Samaritan* Hospital – West Islip, *NY*, part of Catholic Health system, is now *Good Samaritan University Hospital*. Recognized for high-quality healthcare.

 [  Visit Website  ](https://www.catholichealthli.org/good-samaritan-university-hospital) 

## Submit A Medical Institution

If you would like to add other medical institutions that support (AMC) to this page, please fill out the form below. *(**Note:** we will confirm submission before adding)*

       Medical Institution Name   

  Medical Institution Website URL   

   Send

**Categories:** Where To Start

**Tags:** Arthrogryposis, Arthrogryposis Medical Institutions, Institutions, Medical, Nemours, Paley, Resources, Shriners

---

### [Arthrogryposis Resources](https://amcsupport.org/arthrogryposis-resources/)

**Published:** April 30, 2026
**Author:** Ted Houser

**Excerpt:** Arthrogryposis Resource Center

A centralized hub for learning, reference, and support materials related to Arthrogryposis Multiplex Congenita (AMC). This page brings together key educational tools, clinical references, and family resources designed to help individuals, caregivers, and professionals better understand AMC and navigate care with confidence.

Explore foundational learning through All About AMC: Learning Together and AMC FAQs, or dive deeper into clinical and academic material within the AMC Library and AMCresearch.org. Access detailed references such as Arthrogryposis: A Text Atlas and the Arthrogryposis: New Parent Information Packet, along with practical guidance in Occupational Therapy, History & Facts, and My Own Knowledge: Care Notebook. Additional planning and long-term support topics include Laws, Wills & Estate Plans, as well as Words To for terminology and foundational concepts.

**Content:**

# Arthrogryposis Resource Center

A centralized hub for learning, reference, and support materials related to Arthrogryposis Multiplex Congenita (AMC). This page brings together key educational tools, clinical references, and family resources designed to help individuals, caregivers, and professionals better understand AMC and navigate care with confidence.

Explore foundational learning through All About AMC: Learning Together and AMC FAQs, or dive deeper into clinical and academic material within the AMC Library and AMCresearch.org. Access detailed references such as Arthrogryposis: A Text Atlas and the Arthrogryposis: New Parent Information Packet, along with practical guidance in Occupational Therapy, History & Facts, and My Own Knowledge: Care Notebook. Additional planning and long-term support topics include Laws, Wills & Estate Plans, as well as Words To for terminology and foundational concepts.

 ###  [ All About AMC: Learning Together ](https://amcsupport.org/all-about-amc-learning-together/) 

 [ Learn More » ](https://amcsupport.org/all-about-amc-learning-together/) 

  ###  [ AMC FAQs – (Frequently Asked Questions) ](https://amcsupport.org/amc-faqs/) 

 [ Learn More » ](https://amcsupport.org/amc-faqs/) 

  ###  [ AMC Library ](https://amcsupport.org/amc-library/) 

 [ Learn More » ](https://amcsupport.org/amc-library/) 

  ###  [ Arthrogryposis Medical Institutions ](https://amcsupport.org/arthrogryposis-medical-institutions/) 

 [ Learn More » ](https://amcsupport.org/arthrogryposis-medical-institutions/) 

  ###  [ Arthrogryposis: A Text Atlas ](https://amcsupport.org/arthrogryposis-a-text-atlas/) 

 [ Learn More » ](https://amcsupport.org/arthrogryposis-a-text-atlas/) 

   [![NICU Packet for New Parents](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI25_NICU_Packet_Page_01.jpg)

 ](https://amcsupport.org/newparent/)###  [ Arthrogryposis: New Parent Information Packet ](https://amcsupport.org/newparent/) 

 [ Learn More » ](https://amcsupport.org/newparent/) 

  ###  [ History & Facts ](https://amcsupport.org/history-facts/) 

 [ Learn More » ](https://amcsupport.org/history-facts/) 

  ###  [ Laws, Wills & Estate Plans ](https://amcsupport.org/laws-wills-estate-plans/) 

 [ Learn More » ](https://amcsupport.org/laws-wills-estate-plans/) 

  ###  [ My Own Knowledge: Care Notebook ](https://amcsupport.org/my-book-of-knowledge-care-notebook/) 

 [ Learn More » ](https://amcsupport.org/my-book-of-knowledge-care-notebook/) 

  ###  [ Occupational Therapy ](https://amcsupport.org/occupational-therapy/) 

 [ Learn More » ](https://amcsupport.org/occupational-therapy/) 

  ###  [ What Is Arthrogryposis? ](https://amcsupport.org/what-is-arthrogryposis/) 

 [ Learn More » ](https://amcsupport.org/what-is-arthrogryposis/) 

  ###  [ Words To Know ](https://amcsupport.org/words-to-know/) 

 [ Learn More » ](https://amcsupport.org/words-to-know/) 

### [AMCresearch.org](https://amcresearch.org)

**Categories:** Where To Start

**Tags:** AMC Resources, Arthrogryposis Resources

---

### [What Is Arthrogryposis?](https://amcsupport.org/what-is-arthrogryposis/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

# What is Arthrogryposis Multiplex Congenita (AMC)?

 Arthrogryposis multiplex congenita (AMC) is a term used to describe a group of congenital conditions characterized by joint contractures in two or more body areas. While the precise cause may be unknown for some individuals, causes are variable and may include genetic, parental and environmental factors, as well as abnormalities during fetal development. Individuals with AMC have limited joint movement, with or without muscle weakness, in the involved body areas. Contractures vary in distribution and severity, do not progress to previously unaffected joints, but may change over time due to growth and treatment. Spinal deformities may be present at birth or develop throughout childhood and adolescence. Depending on the underlying diagnosis, other body systems such as the respiratory, gastro-intestinal, genito-urinary and central nervous system may be affected. Cognition may be affected if the central nervous system is involved; sensation is usually intact. The impact on mobility, activities of daily living and participation is variable. 

#### Introduction to Arthrogryposis Multiplex Congenita
 By Dr. Harolad Van Bosse

Interview with Dr. Harold van Bosse, orthopedic surgeon with Shriners Hospitals for Children-Philadelphia..

##### Introduction to Arthrogryposis Multiplex Congenita: Part 1 Introduction to Arthrogryposis

##### Introduction to Arthrogryposis Multiplex Congenita: Part 2, Philosophy of Care

##### Introduction to Arthrogryposis Multiplex Congenita: Part 3, Treatment Options

### Types of Arthrogryposis

The recognized definition of Arthrogryposis Multiplex Congentia (AMC) is a condition that causes congenital contractures of two or more body parts. It is important to remember that AMC is not a diagnosis but is an umbrella term that covers over 300-400 different types of conditions and syndromes.

A simple way to categorize this complex issue is:

- [Amyoplasia](https://amcsupport.org/variations-of-amc/#amyoplasia)
- [Distal](https://amcsupport.org/variations-of-amc/#distal)
- [Other Types of Arthrogryposis](https://amcsupport.org/variations-of-amc/#othertypes)

#### Resources

- [History of Arthrogryposis](https://amcsupport.org/history-facts)
- [Arthrogryposis Facts](https://amcsupport.org/history-facts/#amcfacts)
- [Arthrogryposis: A Text Atlas](https://amcsupport.org/arthrogryposis-a-text-atlas)
- [Research](https://amcsupport.org/research)
- [Brochures](https://amcsupport.org/literature-and-films/#brochures)

**Categories:** About AMC, Arthrogryposis, Where To Start

**Tags:** About AMC, Resources, Where To Start

---

### [Community](https://amcsupport.org/community/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

### AMC Family Facebook Groups

[**Discord Young Adults With AMC**](https://discord.com/invite/wwKvwFgrd2?fbclid=IwAR1ALY02TR7yoj6SMyHjxPX_Z6dYXoGUCvUDD5bkxZZY3E0WVadAM9YcAEY)

[**Adults With AMC Staying Healthy & Active**](https://www.facebook.com/groups/438325829611192)

[**[Adults with Arthrogryposis Multiplex Congenita (AMC)](https://www.facebook.com/groups/501914143488209/)**](https://www.facebook.com/groups/501914143488209)

[**Arthrogryposis Moms**](https://www.facebook.com/groups/arthrogryposismom)
AMC Moms ONLY

[**Moms of AMCers with Multiple Disabilities**](https://www.facebook.com/groups/2204004063167760)

[**AMC Dads**](https://www.facebook.com/groups/397378640310159)
AMC Dads ONLY

[**AMC Parents**](https://www.facebook.com/groups/439860022833103)
Moms, Dads, Caregivers Only

[**AMC Grandparents**](https://www.facebook.com/groups/173435979456160/)

[**AMC Family**](https://www.facebook.com/groups/189396987761754)
Extended family members, friends, doctors, & therapists are welcome!

[**Familia AMC**](https://www.facebook.com/groups/246125662493925)
Artrogriposis Múltiple Congenita

[**AMC Swap**](https://www.facebook.com/groups/213819105302223/)
A place for amc families to swap sell or give useful items used or needed by someone with amc.

[**AMC Angels**](https://www.facebook.com/groups/424690374241259/)
Please do not join this group if you are not a bereaved parent

[**AMC Adoption**](https://www.facebook.com/groups/382159071813810)

### AMC Version Facebook Groups

[**Escobar Families**](https://www.facebook.com/groups/108735125831988)

[**Distal Arthrogryposis**](https://www.facebook.com/groups/318602805793706/)

### AMC Location Facebook Groups

[**AMC Canada**](https://www.facebook.com/groups/180743808654909)

[**The Arthrogryposis Group**](https://www.facebook.com/groups/2248429390/)

[**ARTHROGRYPOSIS**](https://www.facebook.com/groups/133454450005482/)

[**Greenville Shriners AMC Family**](https://www.facebook.com/groups/2471604072851524)

[**Shriners Philly AMC Families**](https://www.facebook.com/groups/169725236375699)

[**Nemours Family**](https://www.facebook.com/groups/nemoursamc)

[**Cardinal Glennon St. Louis**](https://www.facebook.com/groups/199020009578104)

[**AMC California**](https://www.facebook.com/groups/153947524814410)

[**AMC Tennessee**](https://www.facebook.com/groups/1394308157565852)

[**AMC Alabama**](https://www.facebook.com/groups/492581324145978)

[**AMC Ohio**](https://www.facebook.com/groups/244883092208642)

[**Texas Arthrogryposis Support**](https://www.facebook.com/groups/AMCTEXAS)

[**Shriners Houston Families**](https://www.facebook.com/groups/1713691152015024)

### AMC Medical Professional Facebook Groups

[**Medical Advisory Group for Arthrogryposis**](https://www.facebook.com/groups/314879066572510)
Medical Professionals only

**Categories:** Arthrogryposis, Facebook Groups, Find Supprt

**Tags:** Facebook Groups, Find Support

---

### [Words To Know](https://amcsupport.org/words-to-know/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

# Words to Know

Learning the lingo to something new is an important part of the process & we are here to help you. Below are some of the many things we have learned along or travels with AMC.

### Amyoplasia

A condition distinguished by a generalized lack in the newborn of muscular development & growth, with contracture and deformity at most joints. It is the most common form of arthrogryposis.

### AFO (ankle-foot-orthosis)

A brace typically made of plastic that is worn on the lower leg and foot to support the ankle and hold the foot in the new corrected position.

### Casting

Typically a non-surgical approach aimed at correcting tightness around a joint or resolving a contracture. Methods and protocol vary.

### Gastroenterologist

Gastroenterologist is a doctor that deals with disorders of the stomach and intestines.

### Geneticist

Geneticist is a biologist who studies genetics, the science of genes, heredity, and variation of organisms.

### Neurologist

Neurologist is a physician specializing in neurology and trained to investigate, or diagnose and treat neurological disorders.

### Contracture

Permanent shortening of a muscle or joint.

### Club foot or Clubbed Feet

A congenital deformity of the foot that is twisted so that the sole of the foot cannot be placed flat on the ground for walking. There are many types and varieties, and is fairly common occurring in 1 in 1,000 live births in the U.S. per year.

### Extension

The unbending or straightening of any joint in the body.

### Flexion

The bending movement of any joint in the body.

### Geneticist

A doctor who specializes in the diagnosis, prognosis, and, in some cases, treatment of genetic diseases.

### Hip dysplasia

The failure of the hip joints to develop normally, gradually deteriorating and leading to the loss of hip function.

### Knee-Ankle-Foot-Orthosis (KAFOs)

Typically include an AFO in the lower portion connected by metal rods and a joint at the knee. These type of braces can stop, limit, or assist motion in the ankle, foot, and knee.

### Lower extremities or Lowers

This includes hips, legs, knees, ankles, feet, and toes. Oftentimes, lower extremity specialists will also include the spine.

### Occupational Therapy (OT)

A form of therapy concerned with providing independence in activities of daily living.

### Pronation

Rotation of the hand and forearm so that the palm faces backwards or downwards. Also, a comparable rotation of the foot consisting of abduction followed be eversion.

### Physical Therapy (PT)

A form of therapy that typically uses specially designed exercises and equipment to help patients gain or re-gain motion and independence.

### Serial casting

Typically a non-surgical approach aimed at correcting tightness around a joint or resolving a contracture by casting changed at a high frequency.

### Spica

An orthopedic cast used to immobilize the hip. It is typically used after surgery and includes the trunk of the body and upper portion of legs.

### Supination

Rotation of the hand and forearm so that the palms face upwards. Also, a comparable rotation of the foot consisting of adduction followed by inversion.

### Stretching

The act of extending or flexing a part of one’s body in order to reach its maximum range of motion.

### Upper extremities or Uppers

This includes shoulders, arms, elbows, wrists, fingers, and thumbs.

**Categories:** Where To Start, Words To Know

**Tags:** Resources, Where To Start, Words To Know

---

### [Occupational Therapy](https://amcsupport.org/occupational-therapy/)

**Published:** September 17, 2024
**Author:** Ted Houser

**Content:**

### Occupational Therapy Doctoral Capstone Project

With the help of many AMCers, Kristen Donlevie created these tools through her occupational therapy doctoral dissertation project.

They serve to ease the process of seeking medical care for adults with AMC. One handout is aimed at AMCers with tips and tricks to having successful interactions with medical professionals, while the other is aimed at medical professionals who may work with AMCers.

Please feel free to use these tools for your benefit. When you are beginning a relationship with a new medical provider, you may consider sending the medical practitioner tool to them before your first visit.

Please contact Kristen via email at [**donlevie@bu.edu**](mailto:donlevie@bu.edu) with any questions.

## English Version

 [ ![Occupational Therapy AMC medical practitioner sheet](https://amcsupport.org/wp-content/uploads/2024/09/Occupational_Therapy_AMC_medical_practitioner_sheet.jpg) ](https://amcsupport.org/wp-content/uploads/2024/10/Occupational_Therapy_AMC_medical_practitioner_sheet-REV.pdf) 

### Occupational Therapy AMC Medical Practitioner Sheet

 [  View/Download PDF  ](https://amcsupport.org/wp-content/uploads/2024/10/Occupational_Therapy_AMC_medical_practitioner_sheet-REV.pdf) 

 [ ![](https://amcsupport.org/wp-content/uploads/2024/09/Occupational_Therapy_AMCer_sheet.jpg) ](https://amcsupport.org/wp-content/uploads/2024/10/Occupational_Therapy_AMCer_sheet-REV.pdf) 

### Occupational Therapy 
AMCer Sheet

 [  View/Download PDF  ](https://amcsupport.org/wp-content/uploads/2024/10/Occupational_Therapy_AMCer_sheet-REV.pdf) 

## French Version

 [ ![Occupational Therapy AMC medical practitioner sheet French Version](https://amcsupport.org/wp-content/uploads/2024/09/Occupational_Therapy_AMC_medical_practitioner_sheet-French.jpg) ](https://amcsupport.org/wp-content/uploads/2024/11/Occupational_Therapy_AMC_medical_practitioner_sheet-French.pdf) 

### Fiche du médecin ergothérapie AMC

 [  View/Download PDF  ](https://amcsupport.org/wp-content/uploads/2024/11/Occupational_Therapy_AMC_medical_practitioner_sheet-French.pdf) 

 [ ![](https://amcsupport.org/wp-content/uploads/2024/09/Occupational_Therapy_AMCer_sheet-French.jpg) ](https://amcsupport.org/wp-content/uploads/2024/11/Occupational_Therapy_AMCer_sheet-French.pdf) 

### Ergothérapie Fiche 
AMCer

 [  View/Download PDF  ](https://amcsupport.org/wp-content/uploads/2024/11/Occupational_Therapy_AMCer_sheet-French.pdf)

**Categories:** Where To Start

**Tags:** Arthrogryposis, Occupational Therapy, Resources, Therapy

---

### [My Own Knowledge: Care Notebook](https://amcsupport.org/my-book-of-knowledge-care-notebook/)

**Published:** September 20, 2025
**Author:** Ted Houser

**Content:**

[ ![My Book of Knowledge](https://amcsupport.org/wp-content/uploads/2025/09/Book-of-Knowledge-AMCSI-REV-1.jpg) ](https://amcsupport.org/book-of-knowledge-amcsi-rev/) 

# My Own Knowledge: Care Notebook

A Care Notebook is a helpful tool for families with children who have special health care needs. This notebook allows you to keep all important health information in one organized place, making it easier to track your child’s medical journey and share details with members of their care team. Creating your own Care Notebook allows it to be personalized to your child, reflecting their unique medical history and current health information.

 [  View/Download PDF  ](https://amcsupport.org/book-of-knowledge-amcsi-rev/)

**Categories:** Where To Start

**Tags:** AMCSI, Care, My Own Knowledge: Care Notebook, Notebook, Resources

---

### [Laws, Wills & Estate Plans](https://amcsupport.org/laws-wills-estate-plans/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## Laws, Wills and Estate Plans

**[Americans with Disabilities Act](http://www.ada.gov/adahom1.htm)**
The ADA prohibits discrimination and ensures equal opportunity for persons with disabilities in employment, State and local government services, public accommodations, commercial facilities, and transportation.

**[Wrights Law](http://www.wrightslaw.com/)**

Parents, educators, advocates, and attorneys come to Wrightslaw for accurate, reliable information about special education law, education law, and advocacy for children with disabilities.

**[Special Needs Trust Administration Manual](https://www.amazon.com/Special-Needs-Trust-Administration-Manual/dp/0595331068)**

The Special Needs Trust Administration Manual is an invaluable guide for anyone who is managing a Special Needs Trust for a person with disabilities.

[**Special Needs Answers**](http://www.specialneedsanswers.com)

Get answers to your long-term care and estate planning issues.

**ABLE**
In 2014, the Achieving a Better Life Experience (ABLE) Act was signed into law. The ABLE Act allows people with disabilities to create tax-advantaged savings accounts called ABLE accounts.

The money in ABLE accounts can be used for qualified disability-related expenses, such as education, housing and transportation. Most importantly, ABLE accounts allow people with disabilities to save money without losing their eligibility for federally funded benefits such as Medicaid or Supplemental Security Income (SSI).
[ABLE National Resourse Center](https://www.ablenrc.org/?fbclid=IwAR07pw5R2bCJK2eXwNNmMhlWtddb2tnTGSoDj0x2FQvQhRZVmxbiBRfF8GQ) | [Info On ABLE Accounts](https://www.irs.gov/government-entities/federal-state-local-governments/able-accounts-tax-benefit-for-people-with-disabilities?fbclid=IwAR1RcUy7AHqlfvAPAKffRL3yH1L6QI9yrvsKuR17ESN_c1vE0S9z7RJXkAo)

**Categories:** Arthrogryposis, Laws, Wills &amp; Estate Plans, Where To Start

**Tags:** Laws, Laws Wills &amp; Estate Plans, Resources, Where To Start, Wills &amp; Estate Plans

---

### [History & Facts](https://amcsupport.org/history-facts/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## The History of Arthrogryposis

**1642** An oil painting that resides in the Musée du Louvre in Paris called “The Clubfoot (also known as The Club-Footed Boy by Jusepe de Ribera.

![](https://amcsupport.org/wp-content/uploads/2024/01/amc_history-1642_oilpainting-167x300.jpg)

**1822** Guerin added the concept of congential extremities.

**1841** An anatomist named Adolph Wilhelm Otto described a case of congenital myodystrophy.

![](https://amcsupport.org/wp-content/uploads/2024/01/amc_history-1841_embryo_illustration-169x300.jpg)

**1897** Schantz subsequently termed “multiple congenial contractures.

**1905** E. Rosenkraz collected 56 cases that were similar in nature and labeled them arthrogryposis.

**1913** Rocher termed the process as “multiple congenital articular rigidities”.

**1923** WB Stern coined the phrase “arthrogryposis multiplex congenital (AMC)”

**1925** Lewn reviewed the orthopedic characteristics of the disease and used the term arthrogryposis multiplex congenital (AMC) in reporting his clinical cases.

**1932 – 1934** Sheldon described clinical features of congential multiple contractures in child and used for the first time the name “amyoplasia congenita”.

**1934** Middleton studied muscle tissues from patients and defined the disease as of muscular origin.

**1947** Brant , Adams et al in 1953, Wolf and coworkers in 1955 attempted to define a neurological of myogenic cause for the entity.

**1998** Dr. Hall was the first to define Amyoplasia (the most common form of arthrogryposis) and the book she co-edited called [Arthrogryposis: A Text Atlas](https://www.amcsupport.org/arthrogryposis-a-text-atlas) became the definitive publication on arthrogryposis (a condition where some or all joints have reduced range of motion).

## Arthrogryposis Facts

*Thank you to Tracey Schalk for writing these facts!*

Arthrogryposis is defined as multiple congenital (from birth) joint contractures or multiple joints that are stuck in 1 position and have very little flexibility.

A newborn has to have 3 contracted joints in two different body areas to have a diagnosis of arthrogryposis.

Arthrogryposis in an umbrella diagnosis, which means that it is part of other many conditions and syndromes. These conditions and syndromes are usually referred to as the type of arthrogryposis. Currently there are 400 identified types of AMC. Amyoplasia, Distal and Escobar Syndrome are the more common types (but they’re still rare within the general population). Some individuals never have their type of AMC identified.

All types of Arthrogryposis occur 1 in 3,000 live births. Each type is than more rare from there. Amyoplasia occurs approximately 1 in 10,000 births. Sadly, about 20-30% of infants born with AMC won’t make it to their 1st birthday because they have severe central nervous system dysfunction or have a genetic type that is lethal and some baby’s don’t make it for unknown reasons.

Arthrogryposis is caused by an unborn baby not moving properly during fetal development. A baby has to move its limbs for proper joint development to happen. When a joint doesn’t move for a long period of time, it gets stuck and contracted. Why a baby fails to move its joints depends on the type of AMC. For example, In Amyoplasia (a non-genetic type), it happens the muscles fail to develop. In Escobar Syndrome (a genetic type) the messages that impact a person’s muscle movement is affected, the message isn’t able to get through very well making it more difficult for them to move.

Common joints contractures in arthrogryposis include: Clubbed feet or vertical talus, extended (straight) or flexed knees, dislocated and/or externally rotated hips, internally rotated shoulders, extended or flexed elbows, flexed wrists, adducted thumbs (stuck-in-palm), fingers fisted or extended.

Arthrogryposis is not curable but it is very treatable! Usually the goal of treatment is to make a person as independent as possible in activities of daily living (ADL’s). ADL’s are those things you do every day to take care of yourself (eating, dressing, eat).

Treatment for arthrogryposis usually involves: stretching (to increase joint range of motion), physical therapy to work on overall strength and gross motor skills (walking, standing), occupational therapy to work on fine motor skills and self-help skills (grasping, feeding), speech therapy to work on speech and oral motor skills, serial casting (including the Ponseti Method for clubfeet), splinting, bracing (AFO’s, KAFO’s) and orthopedic surgery (osteotomies (bone cuts) to change angle or rotation of a bone, soft tissue releases (releasing and lengthening tight muscles and tendons), muscle/tendon transfers (changes what body part a muscle/ tendon moves) and external fixators (metal frames that are applied over a deformity that is exceptionally rigid/tight and needs to be corrected slowly or to lengthen short bones). Some individuals opt for through the knee amputation. There are other therapies as well: hippo therapy (using horses for therapy), aqua therapy (therapy in a warm water pool) and massage therapy to name a few.

Arthrogryposis is considered an orphan condition by the National Organization for Rare Disorders, Inc. (NORD) because it affects less than 200,000 people in the United States. Statistically speaking, The US has 313 million people so about 104,000 people would have arthrogryposis but this doesn’t account for the babies who don’t survive infancy. Rare disorders and conditions are significantly less like to be researched.

1/3rd of all cases of arthrogryposis are amyoplasia type. Amyoplasia means a lack of muscle development, this means muscles can be completely absent (they just failed to developed during fetal development) and the ones that did develop can be weak or are not of normal size. Amyoplasia is not considered genetic because it doesn’t repeat in families however there is still no known definitive cause to explain why amyoplasia occurs.

Arthrogryposis can affect just the arms/hands (sometimes referred to as upper extremity only) or just the legs/feet (sometimes referred to as lower extremity only) or it affects all the limbs (sometimes referred to as all extremity). Having all 4 limbs affected is the most common.

Many people with arthrogryposis have other co-existing conditions. These other co-existing conditions may be part of their type of AMC. Some of these other co-existing conditions include: cleft lip and/or palate, an airway that is narrow, weak suck/swallow, gastroschisis (intestines on the outside), tethered spinal cord, facial birthmarks (also called stork bites, angel kiss), micrognathia (small or recessed jaw), vision and hearing impairments, plagiocephaly (abnormal head shape) and severe scoliosis (curvature of the spine) can cause lung problems. These other conditions can lead to needing trachs (a tube in the airway that helps with breathing), g-tubes (a feeding tube), hearing aides and cranial remolding orthosis (helmet).

The distal arthrogryposis types are characterized by the joint contractures being isolated or more severe in the distal joints, basically the hands and the feet. Distal means furthest from the core of the body), but other joints can be affected. Hands being clenched and fingers stuck in a fist and clubfeet are very common. Most distal types are genetic but some are not. There are approximately 10 types of Distal arthrogryposis.

Lack of movement during fetal development is called Fetal akinesia. The fetal akinesia leads to the arthrogryposis (joint contractures) but there are other signs in a newborn that they didn’t move properly while in the womb. Extra hair or long dark hair can be present in areas that lacked movement. There can also be dimples over joints that didn’t move correctly.

Babies born with arthrogryposis can have a very rough start in life. Many babies with AMC accidentally have their bones broken during delivery or during the neonatal period. The lack of movement can make their bones more brittle (this is not the same as brittle bone disease) and if the position of the contractures are not favorable for delivery (for example if a baby’s hips are externally rotated and knees stuck in flexion) a lot of force may be needed to deliver them, resulting in fractured bones. The thighbones (femurs) and the upper arm bones (humerus) are common bones to be broken. Some babies have their limbs fractured immediately after birth because their medical team doesn’t know how to move them yet. If AMC is detected before birth a c-section may be needed to try to avoid broken bones but even with a c-section it can still happen. Some kids continue to have fractures throughout childhood from accidental falls.

If a baby is diagnosed with arthrogryposis before birth it’s now recommended that the mother take steps to get the baby moving, because the more movement there is, the less rigid the contractures will be. At the 2009 AMC Conference, Dr. Hall (the top geneticist in the study of arthrogryposis) said that mothers should drink caffeine, exercise and take deep breaths often. All of those things will keep the baby moving as much as possible. She also recommended delivering at around 37 weeks if the baby’s lungs are mature so that physical therapy can be started sooner.

With treatment many people with arthrogryposis will walk, while some will need a wheelchair. Regardless of whether they walk or use wheels, it’s all about effective mobility. Those who walk may need braces (AFO’s, KAFO’s or HKAFO’s) or walking aides (walkers or crutches). There are two types of wheelchairs people with AMC may use depending on how they’re affected, manual chairs (which are propelled with the arms) or power chairs (which are propelled by a motor).

There is no cure and even fabulous treatment can’t regain normal range of motion and strength in every joint BUT Its AMAZING what people with Arthrogryposis figure out how to do despite “crooked” limbs! People with AMC kind of make range of motion and normal muscle mass look over rated. Think about this….could you make a fruit salad \*without\* using your hands!?

Arthrogryposis can cause height and weight deficits in childhood and subsequently in adulthood. Children with AMC tend to be on the low end of the growth charts for weight (or not on the chart at all). As adults they tend to be 4-8 inches shorter than familial height and weigh 10-20 lbs less than their peers. Obesity should be avoided because it makes it harder to move limbs that are already weaker (taken from page 24 of the AMC Text Atlas)

Lack of movement during fetal life causes the joint contractures in arthrogryposis but another sign that there was lack of movement is lack of creases over the joints. Look at the skin over your joints when they’re straight, there are creases visible, a lot of babies with AMC lack these in the joints their affected in.

Despite the fact that Arthrogryposis is not curable kids with arthrogryposis grow up to be success and independent adults. Some people will be able to care for themselves unaided, while Some people will need aides to come in and help with some daily tasks. Some professions adults with AMC have chosen include, doctors, lawyers, dentists, engineers, teachers, artists, business owners, professors, chemists, personal trainers, social workers, authors, musicians, journalists and more!

Adults with arthrogryposis are prone to developing osteoarthritis, some earlier in life than their typical peers. It’s not known exactly why arthritis develops in adults with AMC, it’s either because of abnormal joint surfaces (due to the contractures) or its because of the vigorous PT early in life that’s necessary to increase joint mobility. Some adults will need joint replacements to relieve the pain of the arthritis. (adapted from the AMC Text Atlas).

Arthrogryposis is not considered progressive; it’s as severe as it’s going to get at birth, and the contractures won’t worsen with time. It is however regressive in nature. This means that even after any type of treatment (even highly effective treatment whether it be surgical or non-surgical) the contractures/ deformity can re-occur. So a foot can go back into a clubbed position, a knee can get stuck in a flexed position again, a wrist can stop going to neutral again ect, this is also called relapse. Post-treatment bracing (like after casting or surgery) is very important to try to prevent relapse but even strict brace wear doesn’t stop all relapses. Once a person stops growing the contractures are less likely to re-occur.

Most kids and adults who have a diagnosis of arthrogryposis are cognitively typical, meaning their IQ scores are normal or above normal. Some people with AMC will have some level of mental impairment that affects their IQ score.

Amyoplasia, one of the most common types of Arthrogryposis, can occur in identical twins but only 1 baby is affected and one is typical. This is one of the reasons that amyoplasia is not considered genetic. AMC can happen in just 1 twin of a fraternal set and AMC can happen in both twins if the AMC is genetic in nature.

Arthrogryposis is not a newly identified condition. Adolph Otto officially described it in 1841. There is also evidence of it in literature as early as the 12th century (perhaps earlier) and it’s likely that the beggar in the 1642 painting, “the clubfoot”, (which hangs in the Louvre) has some form of AMC (the text atlas says amyoplasia, another article says distal).

Arthrogryposis is not a widely studied condition but Dr. Judith Hall, a clinical geneticist, has been studying AMC for 40 years and has advanced the medical community’s understanding of joint contractures in a newborn. In her talk at the 2012 AMC conference she reiterated that arthrogryposis is a symptom of an underlying condition/ syndrome. Her dedication to the AMC community is astonishing. She stayed at conference for 2.5 days and met with families all day long, giving them answers no one else could. As a community we are forever indebted to her for the advancements in understanding the causes of AMC.

Hall said at conference that it used to be believed that all cases of lower extremity only arthrogryposis were amyoplasia type but that now its known that a whole list (she showed the list) of conditions and syndromes can cause contractures in the legs only.

According to Dr. Fisher from OrthoIndy (who spoke at conference) there is very, very little information in the medical literature on joint replacements in adults with AMC and degenerative arthritis. Dr. Fishers experiences in replacing joints affected by AMC in 2 of his patients have been positive and he is publishing an article soon about one of his patients! Like with all things AMC related, there needs to be more research on aging with joint contractors!

A lot more is known about arthrogryposis now compared to 40 years ago when Dr. Hall started her research but we need to push for even more research. The cause of amyoplasia needs to be discovered, the genes in some genetic types need to be identified, there needs to more research into more/different treatment options, there needs to be more information available about the long-term results/ affects of current treatment and there needs to be more research on aging with arthrogryposis.

**Categories:** History and Facts, Where To Start

**Tags:** History &amp; Facts, Resources, Where To Start

---

### [Arthrogryposis: A Text Atlas](https://amcsupport.org/arthrogryposis-a-text-atlas/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

[ ![](https://amcsupport.org/wp-content/uploads/2023/12/Arthrogryposis_Text_Atlas-1080h.jpg) ](https://amcsupport.org/wp-content/uploads/2024/01/arthrogryposis_text_atlas.pdf) 

# Arthrogryposis
 A Text Atlas

The term arthrogryposis describes a range of congenital contractures that lead to childhood deformities. It encompasses a number of syndromes and sporadic deformities that are rare individually but collectively are not uncommon. Yet the existing medical literature on arthrogryposis is sparse and often confusing. The aim of this book is to provide health care professionals, individuals affected with arthrogryposis, and their families with a helpful guide to better understand the condition and its therapy. With this goal in mind, the editors have taken great care to ensure that the presentation of complex clinical information is at once scientifically accurate, patient–oriented, and accessible to readers without a medical background.

The book is authored primarily by members of the medical staff of the Arthrogryposis Clinic at Children’s Hospital and Medical Center in Seattle, Washington, one of the leading teams in the management of the condition, and will be an invaluable resource for both health care professionals and families of affected individuals.

 [  View/Download PDF  ](https://amcsupport.org/wp-content/uploads/2024/01/arthrogryposis_text_atlas.pdf)

**Categories:** Arthrogryposis, Arthrogryposis: A Text Atlas, Where To Start

**Tags:** Arthrogryposis: A Text Atlas, Resources, Where To Start

---

### [AMC Library](https://amcsupport.org/amc-library/)

**Published:** October 3, 2025
**Author:** Ted Houser

**Content:**

[ ![AMCSI Collection of Arthrogryposis related books & literature](https://amcsupport.org/wp-content/uploads/2025/10/AMC-Library-Logo-1080pxW.png) ](https://amcsupport.org/amc-library/) 

##### **Welcome to the AMC Library**

Your welcoming corner of the AMC Community where knowledge meets heart. Here, you’ll find an ever-growing collection of books, articles, guides, and AMC crafted resources that tell stories of strength, hope, and discovery.

Whether you’re a newly diagnosed family, a curious friend, or someone seeking insight, this is your treasure trove of information, encouragement, and connection. Dive in, let the pages uplift you, surprise you, and remind you you’re not alone on this AMC Journey.

##### **Do you have Arthrogryposis & have written a book?**

Let us know, we would LOVE to add it to our AMC Library & promote it on our socials!

##### [**CLICK HERE to fill out the form below today!**](https://amcsupport.org/amc-library/#book)

 [ ![](https://amcsupport.org/wp-content/uploads/2025/10/Funky.jpg) ](https://www.leslibraires.ca/livres/funky-the-duck-with-dancing-dreams-luca-patuelli-9782925553021.html) 

**Funky. The duck with dancing dreams**

Funky the duck dreams of performing at the infamous DuckFest… But he was born with shorter limbs that prevent him from dancing like the others. With the support of his parents, some perseverance and training, he creates a style as unique as himself!

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**Please Don’t Stare**

An educational, inspiring story about a young girl named Joie who was born with a disability called Arthrogryposis.

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 [ ![AMCSI All About AMC Learning Together - packet cover](https://amcsupport.org/wp-content/uploads/2025/09/AMCSI_All-About-AMC-Learning-Together-cover.jpg) ](https://amcsupport.org/all-about-amc-learning-together/) 

**All About AMC: Learning Together!**

A fun and easy-to-read information packet designed especially for children, families, and classmates who want to better understand Arthrogryposis Multiplex Congenita (AMC).

 [  View PDF  ](https://amcsupport.org/amcsi_all-about-amc-learning-together/) 

 [ ![NICU Packet for New Parents](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI25_NICU_Packet_Page_01.jpg) ](https://amcsupport.org/amc_information_packet/) 

**Arthrogryposis New Parent Information Packet**

A welcome packet for families during pregnancy and early infancy for a child with Arthrogryposis
Multiplex Congenita.

 [  View PDF  ](https://amcsupport.org/amc_information_packet/) 

 [ ![The Amazing Curvy Kid By Mark with TAGNZ Want to be one of the first to get your hands on The Amazing Curvy Kid? Simply fill out this pre-order request! Once the book is hot off the press, we’ll send you the cost (including postage) and our payment details. Oh, and guess what? Every pre-ordered copy comes signed! Thanks for your excitement—we can’t wait to share this adventure with you!](https://amcsupport.org/wp-content/uploads/2024/01/The-Amazing-Curvy-Kid-by-Mark-from-TAGNZ-900.jpg) ](https://www.markliddle.nz) 

**The Amazing Curvy Kid**
**By Mark with TAGNZ**

Want to be one of the first to get your hands on The Amazing Curvy Kid? Simply fill out this pre-order request! Once the book is hot off the press, we’ll send you the cost (including postage) and our payment details. Oh, and guess what? Every pre-ordered copy comes signed! Thanks for your excitement—we can’t wait to share this adventure with you!

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**MOSAIC – A Memoir By Laura Gaddis Mosaic** is a story of exploration and self-identification, of grief, relationships, tackling mental health, and how to walk through difficult times when there is nowhere else to go.

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**My Book of Knowledge – AMCSI** A fillable online PDF file can be filled in on a computer or mobile device, and it includes digital signatures and images.

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**Living with Arthrogryposis Multiplex Congenita (AMC):** *5 Lessons Learned — A Sister’s Perspective* By Laura Sharon

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**The Adventure of Grace and Rose**
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**Her Own Two Feet**
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**Differently Abled** By Mira McCarty

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**Child of Promise: One Woman’s Journey from Tragedy to Triumph** By Cheryl Green

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**Thank My Lucky Scars** By Ward Foley

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**God Didn’t Make Me a Woman Because I Had Enough Problems** By Ward Foley

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**Sammy’s Physical Therapy Adventure Coloring & Activity Book** By Dr. Michael L. Fink

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**Some Crawl and Never Walk** By Cheryl Green

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**In Capable Arms: Living a Life Embraced by Grace** By Sarah Kovac

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**A Guide for Parents of Children with Special Needs: Where to Start** By Robert K. Page II

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**Just A Krooked Kid** By Goodwin Hale

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### Tell Us About Your Book!

##### All (required) & (\*) must be filled out.

By signing up, you agree to receive email marketing communication from AMC Support Inc. You understand that you can unsubscribe at any time.

       Name   

  Email   

  Phone   

  Please upload your book cover art *(or photos)*   

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  Social Media URL Links *(separete each link by a coma & a space)*   

  Book purchase URL link *(if applicable)*   

   🤍 Subscribe 🤍

**Categories:** Arthrogryposis

**Tags:** AMC Library, AMC Written Books, Arthrogryposis Books, Books, Resources

---

### [Help Us Reach More Sponsors in 2 Minutes 💙](https://amcsupport.org/reach-more-sponsors/)

**Published:** April 7, 2026
**Author:** Ted Houser

**Excerpt:** Looking to support a meaningful cause? 💙 Help the AMCSI Annual Conference by introducing us to your company’s sponsorship or corporate giving programs using our quick outreach tools.

**Content:**

# Stronger support starts with one connection 💙

### Help us expand the reach of the AMCSI Annual Conference by introducing us to your company’s giving or sponsorship programs.

**Help Us Reach More Sponsors in 2 Minutes 💙**
1\. Copy one of the messages below
2\. Send it to your HR, manager, or CSR team
3\. That’s it, you just helped grow AMC support

### A B C… it’s as easy as 1 2 3 💙
Just copy, paste, & send.

### Copy, Paste & Send

*(**OR** click on the **“Ready To Option A, B, or C”** buttons at the bottom of each example to launch your email program with the email subject line and body copy already set, simply add the senders email address)*

**Option A: Super Short *(fast action)***

Hi, does our company offer nonprofit sponsorships or community partnerships?

I’m connected with AMCSI, which hosts an annual conference supporting individuals and families with AMC. I wanted to see if this is something we could support.

 [  Ready To Send Option A  ](mailto:?subject=2-minute%20ask%20that%20could%20make%20an%20impact&body=Hi,%20does%20our%20company%20offer%20nonprofit%20sponsorships%20or%20community%20partnerships?%0D%0A%20%20%0D%0AI’m%20connected%20with%20AMCSI,%20which%20hosts%20an%20annual%20conference%20supporting%20individuals%20and%20families%20with%20AMC.%20I%20wanted%20to%20see%20if%20this%20is%20something%20we%20could%20support.%0D%0A%20%20%0D%0Ahttps://amcsupport.org/21st-annual-amcsi-conference/) 

**Option B: Standard *(balanced)***

Hi, I wanted to ask if our company participates in nonprofit sponsorships or community partnerships.

I’m connected with AMCSI (Arthrogryposis Multiplex Congenita Support, Inc.), which hosts an annual conference supporting individuals and families affected by AMC.

I thought this might align with our community impact efforts. Here’s more information:

Thanks for taking a look!

 [  Ready To Send Option B  ](mailto:?subject=Potential%20sponsorship%20opportunity%20to%20explore&body=Hi,%20I%20wanted%20to%20ask%20if%20our%20company%20participates%20in%20nonprofit%20sponsorships%20or%20community%20partnerships.%0D%0A%20%20%0D%0AI’m%20connected%20with%20AMCSI%20(Arthrogryposis%20Multiplex%20Congenita%20Support,%20Inc.),%20which%20hosts%20an%20annual%20conference%20supporting%20individuals%20and%20families%20affected%20by%20AMC.%0D%0A%20%20%0D%0AI%20thought%20this%20might%20align%20with%20our%20community%20impact%20efforts.%20Here’s%20more%20information:%20https://amcsupport.org/21st-annual-amcsi-conference/%0D%0A%20%20%0D%0AThanks%20for%20taking%20a%20look!) 

**Option C: More Formal *(corporate-friendly)***

Hello, I’m reaching out to inquire about potential nonprofit sponsorship or partnership opportunities within our organization.

I’m connected with AMCSI (Arthrogryposis Multiplex Congenita Support, Inc.), a nonprofit that hosts an annual conference providing resources and support for individuals and families affected by AMC.

I believe this may align with our company’s CSR or community engagement initiatives.

Additional details can be found here:

Thank you for your consideration.

 [  Ready To Send Option C  ](mailto:?subject=CSR%20Opportunity:%20AMCSI%20Annual%20Conference&body=Hello,%20I’m%20reaching%20out%20to%20inquire%20about%20potential%20nonprofit%20sponsorship%20or%20partnership%20opportunities%20within%20our%20organization.%0D%0A%20%20%0D%0AI’m%20connected%20with%20AMCSI%20(Arthrogryposis%20Multiplex%20Congenita%20Support,%20Inc.),%20a%20nonprofit%20that%20hosts%20an%20annual%20conference%20providing%20resources%20and%20support%20for%20individuals%20and%20families%20affected%20by%20AMC.%0D%0A%20%20%0D%0AI%20believe%20this%20may%20align%20with%20our%20company’s%20CSR%20or%20community%20engagement%20initiatives.%0D%0A%20%20%0D%0AAdditional%20details%20can%20be%20found%20here:%20https://amcsupport.org/21st-annual-amcsi-conference/%0D%0A%20%20%0D%0AThank%20you%20for%20your%20consideration.) 

### LinkedIn Outreach Version/Exampl*e*

We’re currently preparing for the 21st Annual AMCSI Conference and are looking to expand our network of sponsors and partners.

Many organizations have corporate giving, sponsorship, or community outreach programs designed to support nonprofits and meaningful initiatives like this.

If you’re connected to AMCSI or the AMC community, a quick introduction or inquiry to your company’s HR, CSR, or community relations team can go a long way.

You can simply ask if your company supports: • Event sponsorships • Nonprofit partnerships • Community or disability-focused initiatives

Conference details: 

Every connection helps us create a stronger, more supported community 💙

\#AMCstrong #CorporateGiving #CSR #NonprofitPartnerships #CommunitySupport

**Categories:** 21st Annual AMCSI Conference, AMC Events

**Tags:** Conference, Corporate Giving, Help Us Reach More Sponsors in 2 Minutes, Sponsors, Sponsorships

---

### [Accessibility Grant](https://amcsupport.org/accessibility-grant/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## Accessibility Grant

 Arthrogryposis Multiplex Congenita Support Inc. (AMCSI) offers an accessibility grant to individuals who meet the eligibility requirement. Any tool that helps a person with AMC achieve independence. Examples include ramps, lifts, grab bars, bidets, handrails, lowered cooktops, curved utensils, feeding devices, sock aides, dressing sticks, or technology that makes writing or speaking easier. 

##### Arthrogryposis Multiplex Congenita Support Inc. (AMCSI) offers an accessibility grant to individuals who meet the eligibility requirements.

Please note grant guidelines are subject to change.

Eligibility requirements for the Accessibility Grant:

- Assistance is awarded to individuals with the diagnosis of arthrogryposis or to the direct (parent or legal guardian) family member of the affected individual.
- Current registered member of AMCSI
    - All applicants MUST be a current member of Arthrogryposis Multiplex Congenita Support Inc. If you are not a member, please [**click here**](https://www.zeffy.com/en-US/ticketing/6808115b-4616-4e5c-bdae-9eb758bd4975).
    - Our members help make the community give back grants possible for hundreds of our AMC families.
        A limited number of scholarships for membership is available upon request.
- Applicants must reside in the US or Canada
- Proof of diagnosed condition of arthrogryposis

Applicants who are approved or denied may reapply every 12 months (certain conditions apply)

Grant amount varies based on available funds, stated need, and unanimous approval by AMCSI’s hardship committee during quarterly reviews.

Please allow 6-8 weeks for applications to be reviewed and finalized. Please do not email to check the status of your application. We will email you with updates or any required documents we may need.

In some cases, emergency funding will be fast tracked.

**Program Details:**

**Funds**
A grant up to $1000 will be awarded for the accessibility grant.
Funds are reimbursed to the applicant upon receipt of required documents.

**What is covered under the accessibility grant**
Any tool that helps a person with AMC achieve independence.
Examples include ramps, lifts, grab bars, bidets, handrails, lowered cooktops, curved utensils, feeding devices, sock aides, dressing sticks, or technology that makes writing or speaking easier.

### Accessibility Grant Application Form

##### All (required) (\*) documents must be sent to info@amcsupport.org

Your application will not be processed until all required items are received.
Please do not email to check on the status of your application. We will reach out you if further information is needed.

Funding for this grant is available thanks to our AMCSI Members, Run 4 Jack, Rogers Run, 253 for AMC, Valerie Pepe’s AMC Bowl-A-Ton, Valerie Pepe’s AMC Music Festival and AMCSI’s Awareness Day campaign, Facebook birthday fundraisers & T-shirt sales.

Funds can only be issued to the AMCer or parent/legal guardian of the AMCer. If your AMCer is under 18, this form MUST be filled out and signed by a parent/ legal guardian of the AMCer.

      Personal Information 

  Name   

  Email   

  Phone   

  Address   

  Address 2   

  City   

  State   

  Zip   

  AMCSI Membership # *(located in the upper right corner of your AMCSI Membership Card.)* **[CLICK HERE To View An AMCSI Membership Card Sample](https://amcsupport.org/become-a-member/#membershipcard)**   

  Name of AMCer   

  Age of AMCer   

 Medical Information 

  Orthopedic Surgeon/Hospital that treats you/your AMCer   

 Additional Information 

  Please list grant organizations that are assisting you. (Paley Foundation, Miracle Flights, Helping AMC Families, etc.)   

  Do you have a current crowdfunding campaign? (GoFundMe, Facebook Fundraiser, etc.)   

  Please describe your current fundraising efforts, and amount you were able to raise.   

  Please describe in detail your current needs   

 Uploads are required 

  Upload proof of Medical Diagnosis   

  Upload receipts   

  Upload a request for insurance denial documentation (not required)   

  Required Documents Checklist (required)  Proof of Medical Diagnosis (arthrogryposis multiplex congenita) Receipts (Funding cannot be dispersed without submitted receipts) Other

  Please include your full GoFundMe Link   

  If you selected 'other' above, please write your answer here:   

  Please tell us about yourself/your family.   

  Please describe why this grant is important to you.   

 Acknowledgements 

  I understand that I must submit required documentation (proof of medical appointment, diagnosis and receipts) in order to receive funding (required)  Yes No

  I understand that this grant is a reimbursement program. (required)  Yes No

  I understand that my application will be cross referenced with other giving organizations.(required)  Yes No

  I certify that, to the best of my knowledge and ability, the information included in this application, is accurate as of the date of this application signed below. (required)  Yes No

  Signature   

  Date   

   Send

**Categories:** Accessibility Grant, Arthrogryposis, Financial Aid, Grants

**Tags:** Accessibility Grant, Financial Aid, Grants

---

### [Knitted With Love](https://amcsupport.org/knitted-with-love/)

**Published:** January 23, 2026
**Author:** Ted Houser

**Excerpt:** Grandmothers Blanket Donation Program | Comfort for AMC Babies in NICU | AMCSI

Donate a handmade blanket to comfort AMC babies in the NICU and children facing long hospital stays. A special invitation for grandmothers to share warmth, love, and care.

**Content:**

# Knitted With Love

### A Special Invitation to the Grandmothers of AMC Children 💙

Your hands have comforted generations. Now they can comfort an AMCer.

We invite grandmothers of children with Arthrogryposis Multiplex Congenita (AMC) to donate *(NEW)* handmade blankets for AMC babies in the NICU and children facing long hospital stays. Each blanket provides warmth, comfort, and reassurance when families need it most.

**One blanket. Endless comfort.**

### [Click here to help them with supplies!](https://www.amazon.com/hz/wishlist/ls/2R80T5TNDTKN8)

 ![](https://amcsupport.org/wp-content/uploads/2026/04/AMCer-on-blanket.jpg) 

[![Grandmothers Blanket Donation Program | Comfort for AMC Babies in NICU | AMCSI](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-knitted-blanket-3-ri364fg05oihcve9b3ol92k4nfp4g6gwqeb03mnyd4.jpg)](https://amcsupport.org/wp-content/uploads/2026/01/AMCSI-knitted-blanket-3.jpg)

[![Grandmothers Blanket Donation Program | Comfort for AMC Babies in NICU | AMCSI](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-knitted-blanket-4-ri364cmhl6eme1icrkgpjl9qva30t35pq0cjnss4vs.jpg)](https://amcsupport.org/wp-content/uploads/2026/01/AMCSI-knitted-blanket-4.jpg)

[![Grandmothers Blanket Donation Program | Comfort for AMC Babies in NICU | AMCSI](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-knitted-blanket-2-ri364aqt7ic1qtl32jngelqtoicadoy91r1kp8ux88.jpg)](https://amcsupport.org/wp-content/uploads/2026/01/AMCSI-knitted-blanket-2.jpg)

[![Grandmothers Blanket Donation Program | Comfort for AMC Babies in NICU | AMCSI](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI-knitted-blanket-5-ri38uaf3oqh63d8xveiaudjr3lcttqyvireuspkek8.jpg)](https://amcsupport.org/wp-content/uploads/2026/01/AMCSI-knitted-blanket-5.jpg)

### To the grandmothers of children born with Arthrogryposis Multiplex Congenita (AMC): 

You are the keepers of tradition, the steady presence in uncertain moments, and the ones who know how to turn love into something tangible.

We invite you to share that gift by donating a *(NEW)* handmade blanket for an AMC baby or child facing hospitalization. Many families affected by AMC spend extended time in the NICU or pediatric hospital units.

These stays are often long, emotional, and overwhelming. A soft, handmade blanket becomes more than warmth. It becomes a sense of familiarity, comfort, and connection during a time when families need it most.

Every stitch is a reminder that these children and families are surrounded by a community that cares.

**Your handmade blanket can:**

- Provide comfort to a newborn AMCer in the NICU
- Offer warmth and reassurance to a child during a long hospital stay
- Carry the care, patience, and love that only a grandmother’s hands can give

**Blanket Guidelines**

- Handmade items only
- Crocheted or knitted blankets preferred • Baby-sized blankets for NICU use or larger blankets for children • Soft, washable yarns recommended

Before mailing your blanket, please email us at **[info@amcsupport.org]()** to request the shipping address. This allows our team to properly prepare each gift before it is delivered to an AMC baby or child.

***Thank you for sharing your time, talent, and love in a way that brings comfort when it is needed most. One blanket can make a meaningful difference.***

##### [Click Here to follow the Grandparents Facebook Group Page](https://www.facebook.com/groups/173435979456160)

**Categories:** New Dignosis, Where To Start

**Tags:** Blankets, Grandma, Grandmothers, Knitted With Love, Love, Newborn Blankets

---

### [Ways To Give](https://amcsupport.org/ways-to-give/)

**Published:** October 4, 2025
**Author:** Ted Houser

**Excerpt:** Ways to Give
There are so many meaningful ways to make a difference for the AMC community! 💙
Whether you choose to donate once, give monthly, or start your own fundraiser, every gift helps AMCSI continue providing support, resources, and connection to families worldwide.
Explore the options below and find the giving method that works best for you:
• Donate: Make a one-time gift that supports AMCSI programs year-round.
• Monthly Contributions: Join our circle of recurring donors and create lasting impact.
• Company Match: Double your donation through your employer’s matching program.
• Be a Fundraiser: Rally your friends, family, or coworkers for a cause that matters.
• Give in Tribute: Honor someone special with a gift in their name.
• Employee Giving: Support AMCSI through payroll deductions or workplace campaigns.
• Give Freely: Make a contribution of any size, anytime—it all adds up!
Together, we can strengthen and support the AMC community—one gift at a time.

**Content:**

### Ways to Give

There are so many meaningful ways to make a difference for the AMC community! 💙
Whether you choose to donate once, give monthly, or start your own fundraiser, every gift helps AMCSI continue providing support, resources, and connections to families worldwide.

**Your Gift Makes a Difference**

Every donation helps AMCSI uplift the AMC community through vital programs that bring hope, connection, and support. From easing travel costs for medical care to funding research, scholarships, and accessibility needs, your generosity powers life-changing impact for individuals and families living with Arthrogryposis Multiplex Congenita (AMC). 💙

**Join Our Monthly Giving Circle**

“Just $5 or $10 a month. A lifetime of impact for the AMC community.”

Your monthly support creates lasting change, helping families attend our annual conference, funding adaptive sports and inclusive activities for kids, and sustaining resources and outreach all year long. Together, small gifts make a big difference. 💙

 [  Join Our Monthly Giving Circle  ](https://amcsupport.org/monthly-giving-circle/) 

**Company Match**

Double your impact with a matching gift! Many employers offer donation matching programs that can instantly multiply the value of your contribution to AMCSI.

Check with your HR or corporate giving department to see if your employer offers a match. A few minutes of paperwork could mean twice the support for the AMC community!

 [  Learn How  ](https://amcsupport.org/company-match/) 

**Be A Fundraiser for AMCSI**

Looking for ways to make an impact? Your creativity and energy can change lives in the AMC community. From bake sales and lemonade stands to 5Ks, golf tournaments, sip’n’paints, or music events, 50/50 raffles; every idea counts!

AMCSI can help amplify your efforts with a custom fundraising page featuring your story, logo, and donation setup—100% of funds go directly to our high-impact programs!

 [  Learn How AMCSI Can Help  ](https://amcsupport.org/ways-amcsi-can-help/) 

**Give in Tribute**

Honoring a loved one with AMC is a way to celebrate their life and legacy. Each year, at our conference, we remember those we’ve lost with a Memory Tree, Slideshow, and Scrapbook.

Families who have experienced loss can also apply for our [**Bereavement Grant**](https://amcsupport.org/bereavement-grant/) to help with funeral or burial expenses.

To add a loved one to our memorial page please email us at .

 [  View The AMC Memorial Page  ](https://amcsupport.org/amc-memorials/) 

**Leave a Legacy Gift**

Leaving a legacy gift is a meaningful way to ensure that support, education, and connection continue for future generations of the AMC Community.

Your thoughtful planning today helps AMCSI provide ongoing resources, grants, scholarships, and programs that empower individuals and families living with Arthrogryposis Multiplex Congenita (AMC).

 [  Fill Out Legacy Form  ](https://amcsupport.org/leave-a-legacy-gift/) 

**IRA Charitable Rollovers**

Make a meaningful impact on the AMC Community with an IRA Charitable Rollover. Individuals age 70½ or older can donate directly from their IRA to AMCSI, counting toward their Required Minimum Distribution without increasing taxable income.

Learn how to start your IRA rollover and make a lasting difference today.

 [  Start Today  ](https://amcsupport.org/ira-charitable-rollovers/) 

**Donation Partnership**

AMCSI partners with Givebutter to make giving simple, safe, and secure.

Every donation goes directly to supporting the AMC Community, helping fund essential programs, grants, and scholarships that make a real difference in the lives of individuals and families affected by Arthrogryposis Multiplex Congenita (AMC).

“I am very thankful that I found your website. Using the excellent information from your website, along with other sources, I have been able to help guide her care in a more informed way. Thank you again for providing information that helps families like ours navigate this stage of life with arthrogryposis.”

~ Greg T.

### Learn how Arthrogryposis Multiplex Congenita Support, Inc. has helped Julie during her very first visit to the 20th Annual AMCSI Conference, in Norfolk, VA, on the AMCSI Scholarship!

### Your gift helps us to:

• Keep our annual conference affordable for 600+ attendees worldwide.
• Provide accessibility and mini meet-up grants for AMC families.
• Support education for families, medical providers, and new diagnoses.
• Offer adoption, bereavement, and scholarship support.
• Grow awareness and connection through social media and our website.
• Help fund Arthrogryposis Medical Research

### **Even More Ways to Give**

Beyond direct donations, there are many ways to support AMCSI’s mission, whether it’s easing travel costs for medical care, funding research, providing scholarships, or improving accessibility for those living with AMC. Every contribution helps strengthen resources and opportunities for the AMC community.

- #### Start Fundraising With Tiltify
    
    Learn how to use Twitch, Facebook, or YouTube livestreams to raise support for the AMC community. Start fundraising through [**Tiltify**](https://tiltify.com/arthrogryposis-multiplex-congenita-support-inc-amcsi) today.

- #### Donate At PayPal Checkout
    
    Go to the **[PayPal Giving Fund](https://www.paypal.com/US/fundraiser/charity/4247014)** section of the PayPal app or website, where you can search for and select a charity to donate to directly, or you can set a favorite charity that may appear at checkout. You can also find charities during a purchase by looking for the “Give at Checkout” option and selecting a cause from there.

- #### eBay For Charity
    
    You can help the AMC community while buying or selling on eBay:
    • As a Seller: Donate 10% to 100% of your final sale price to AMCSI.
    • As a Buyer: Shop our Charity Listings, where a portion of proceeds goes directly to supporting programs, grants, and scholarships for those with AMC. **[Visit eBay](https://charity.ebay.com/charity/i/Arthrogryposis-Multiplex-Congenita-Support,-Inc./103016)**

**Categories:** Fundraising

**Tags:** AMCSI, Arthrogryposis, Be A Fundraiser, Corporate Match, Donate, Upcoming, Ways To Give

---

### [Monthly Giving Circle](https://amcsupport.org/monthly-giving-circle/)

**Published:** September 30, 2025
**Author:** Ted Houser

**Content:**

![AMCSI Monthly Support Logo](https://amcsupport.org/wp-content/uploads/2026/02/AMCSI-Monthly-Support-logo.png) 

 [ ![At the top is the AMCSI Monthly Support Logo in blue with an off-white glow. The background is a close-up of two hands with Arthrogryposis, holding a white coffee cup. The foam art on top of the coffee is shaped like the AMCSI logo, footprints, and a heart. Overlaid text reads “AMCSI Monthly Support.” AMCSI’s logo, social media handle & platform icons, Facebook, Instagram, BlueSky, TikTok, YouTube & X logos with @AMCSUPPORT, appear in the lower left corner, and the hashtags “#AMCSI & #MonthlySupport” appear in the lower right corner.](https://amcsupport.org/wp-content/uploads/2025/09/AMCSI25-monthly-donation-2.jpg) ](https://givebutter.com/amcsi) 

##### Every gift makes a difference. When you join the AMCSI Monthly Giving Circle, even the smallest monthly contribution provides steady, reliable support for individuals and families living with Arthrogryposis Multiplex Congenita.

A few dollars each month adds up to meaningful impact over time. It helps fund programs, resources, conference scholarships, and year-round community support.

Please consider setting up a monthly donation today and stand with the AMC community all year long.

**By giving $5 or $10 a month, you can help AMCSI continue life-changing work in the AMC community:**
✨ **Grants & Scholarships:** Giving students, families, and individuals the chance to thrive.
✨ **Annual Conference:** Uniting hundreds of families, medical experts, and community members each year.
✨ **Family Resources:** Sending vital information to newly diagnosed families so they never feel alone.
✨ **Inclusive Activities:** Supporting adaptive sports and events that celebrate ability and connection.

**Your monthly gift turns small change into big change:**
**$5/month →** Sustains family resources year-round
**$10/month →** Expands scholarships and helps more families attend conference

##### 💙 Join our Monthly Giving Circle today

**Categories:** Get Involved

**Tags:** AMCSI, Arthrogryposis, Donations, Giving, Monthly Donations, Monthly Giving Circle

---

### [Assistive Devices](https://amcsupport.org/assistive-devices/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

### Assistive Devices & Everyday Items

You will find our continually growing list of devices that many of our AMCers use on daily routines from bathing, showering, eating and more.

We want to thank everyone for their input & sharing their ideas in helping us put these items together in one location. The impact this has on so many who may be struggling with figuring out ways to do things is imperative to our goal and we could not do this without your unwavering support! Please continue to inform us so that we can share new techniques with those affected with Arthrogryposis Multiplex Congenita.

**NOTE:** Some of the shop links may be a general Amazon search link for that item due to different requirements that some may need. That way you can begin searching for the best version for you.

**If you use a device that we do not have listed please fill out the [FORM BELOW](https://amcsupport.org/assistive-devices/#device) and we will add it to our list!**

#### Items you can purchase today!

[Everyday Items](https://amcsupport.org/assistive-devices/#everyday) | [Kitchen/Cooking/Eating](https://amcsupport.org/assistive-devices/#kitchen) | [Bathroom](https://amcsupport.org/assistive-devices/#bathroom) | [Body Care](https://amcsupport.org/assistive-devices/#body) | [Clothing/Getting Dressed](https://amcsupport.org/assistive-devices/#clothing)

Also check out **[Consumer Reports Adaptive Living, Aging & Accessibility](https://www.consumerreports.org/adaptive-living-aging-accessibility-a6599758859/)** webpage for more items.

#### Along with these great items listed below, check out [Dr. Maureen Donohoe & Nemours Pinterest](https://bit.ly/ArthrogryposisDevices) page for some other ideas!

 [ ![Adaptive Clothing - Pinterest](https://amcsupport.org/wp-content/uploads/2024/08/DrMaureenDonohoe-Nemours-adaptive-clothing.jpg) ](https://www.pinterest.com/nemours/arthrogryposis/adaptive-clothing/) 

 [ ![Preschool - Pinterest](https://amcsupport.org/wp-content/uploads/2024/08/DrMaureenDonohoe-Nemours-preschool.jpg) ](https://www.pinterest.com/nemours/arthrogryposis/preschool/) 

 [ ![Bathroom - Pinterest](https://amcsupport.org/wp-content/uploads/2024/08/DrMaureenDonohoe-Nemours-bathroompg_.jpg) ](https://www.pinterest.com/nemours/arthrogryposis/bathroom/) 

 [ ![Exercise / Play - Pinterest](https://amcsupport.org/wp-content/uploads/2024/08/DrMaureenDonohoe-Nemours-exercise-playpg_.jpg) ](https://www.pinterest.com/nemours/arthrogryposis/exercise-play/) 

 [ ![Feeding - Pinterest](https://amcsupport.org/wp-content/uploads/2024/08/DrMaureenDonohoe-Nemours-feeding.jpg) ](https://www.pinterest.com/nemours/arthrogryposis/feeding/) 

 [ ![Shoes - Pinterest](https://amcsupport.org/wp-content/uploads/2024/08/DrMaureenDonohoe-Nemours-shoes.jpg) ](https://www.pinterest.com/nemours/arthrogryposis/shoes/) 

 [ ![Spica Cast - Pinterest](https://amcsupport.org/wp-content/uploads/2024/08/DrMaureenDonohoe-Nemours-spica-cast.jpg) ](https://www.pinterest.com/nemours/arthrogryposis/spica-cast/) 

### Kitchen Tools & Equipment From Kelly’s Kitchen

Keep in mind that items may be temporarily out of stock when you click on a link. For Amazon items, Amazon will typically provide a list of similar options that are available for purchase to help guide you to alternative options.

#### [**Click Here View Kelly’s Kitchen Items**](https://www.kellys-kitchen.org/kitchen-tools-equipment?fbclid=IwY2xjawFGuLdleHRuA2FlbQIxMAABHS5TqSZk9wPOVdhzgbzCPa15lB4d-OOYNyjeX4Ek_lX2ocfSnKaQjjS6Lg_aem_jE5pIxnILEHFDkuVJ7luZQ)

### Everyday Items

[Everyday Items](https://amcsupport.org/assistive-devices/#everyday) | [Kitchen/Cooking/Eating](https://amcsupport.org/assistive-devices/#kitchen) | [Bathroom](https://amcsupport.org/assistive-devices/#bathroom) | [Body Care](https://amcsupport.org/assistive-devices/#body) | [Clothing/Getting Dressed](https://amcsupport.org/assistive-devices/#clothing)

 [ ![Telestik PAD3000 features our extraordinary washable adhesive disk that allows you to pick up items as heavy as one pound, yet delicate enough to pick up a piece of paper without damaging or crumpling or even a small pill!](https://amcsupport.org/wp-content/uploads/2024/09/Telestik.jpg) ](https://prismhealthservices.net/telestik-2-pc-set-set-of-3-functions?fbclid=IwY2xjawFGrNRleHRuA2FlbQIxMAABHRXucecxCv_eXja3YYp-_-qjM3MyFW02ElX5M6YAGX4W28aZ8WWsSzD7Jw_aem_MT0fiTRvi_kLLlC1679Ohw) 

# Telestik

*(2-pc set, set of 3 functions)*

Telestik PAD3000 features our extraordinary washable adhesive disk that allows you to pick up items as heavy as one pound, yet delicate enough to pick up a piece of paper without damaging or crumpling or even a small pill!

View Jenny using the Telestik in our [**This Is How I… Series**](https://amcsupport.org/this-is-how-i-series/)

 [  Purchase  ](https://prismhealthservices.net/telestik-2-pc-set-set-of-3-functions?fbclid=IwY2xjawFGrNRleHRuA2FlbQIxMAABHRXucecxCv_eXja3YYp-_-qjM3MyFW02ElX5M6YAGX4W28aZ8WWsSzD7Jw_aem_MT0fiTRvi_kLLlC1679Ohw) 

 [ ![Summit Assistive Tech The iReach Stylus](https://amcsupport.org/wp-content/uploads/2023/12/Stylus-Full-Assembly-900.jpg) ](https://www.summitassistivetech.com/store.html#/) 

### Summit Assistive Tech – The iReach Stylus

An ultra lightweight hands free solution to use touch screen devices or keypads made by Summit Assistive Tech.

 [  Purchase  ](https://www.summitassistivetech.com/store.html#/) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/Grabber_Reacher_Tool-900.jpg) ](https://www.amazon.com/Grabber-FitPlus-Premium-Reacher-Warranty/dp/B07T3HTBD9/ref=pd_bxgy_img_2/140-2224817-4131310?_encoding=UTF8&pd_rd_i=B07T3HTBD9&pd_rd_r=c4faa7ff-2ffe-4fc5-9b7d-80b9ad875997&pd_rd_w=LiLWp&pd_rd_wg=MMFW3&pf_rd_p=ce6c479b-ef53-49a6-845b-bbbf35c28dd3&pf_rd_r=RJQ0Y05V5D3Q1R31H0F0&psc=1&refRID=RJQ0Y05V5D3Q1R31H0F0) 

### Grabber Reacher Tool 

Innovative design to help you pick up items. 

 [  Purchase  ](https://www.amazon.com/Grabber-FitPlus-Premium-Reacher-Warranty/dp/B07T3HTBD9/ref=pd_bxgy_img_2/140-2224817-4131310?_encoding=UTF8&pd_rd_i=B07T3HTBD9&pd_rd_r=c4faa7ff-2ffe-4fc5-9b7d-80b9ad875997&pd_rd_w=LiLWp&pd_rd_wg=MMFW3&pf_rd_p=ce6c479b-ef53-49a6-845b-bbbf35c28dd3&pf_rd_r=RJQ0Y05V5D3Q1R31H0F0&psc=1&refRID=RJQ0Y05V5D3Q1R31H0F0) 

 [ ![Vive Foam Tubing (9 Pack) - Utensil Padding Grips - Spoon, Fork Round Hollow Medical Closed Cell Tube - Cut to Length](https://amcsupport.org/wp-content/uploads/2024/08/Utensil-Padding-Grips.jpg) ](https://amzn.to/4dHW3cv) 

### Foam Tubing

Vive Foam Tubing (9 Pack) – Utensil Padding Grips – Spoon, Fork Round Hollow Medical Closed Cell Tube – Cut to Length

 [  Purchase  ](https://amzn.to/4dHW3cv) 

 [ ![Oversized Wooden Back Scratcher: 18'' Extended Curved Handle for Better Reach, Handcrafted to Perfection, Instant Itch Relief, Gentle on Skin Leave No Scratch Marks (Brown)](https://amcsupport.org/wp-content/uploads/2024/08/Oversized-Wooden-Back-Scratcher.jpg) ](https://bit.ly/3SKuFmf) 

### Back Scratcher

Oversized Wooden Back Scratcher: 18” Extended Curved Handle for Better Reach, Handcrafted to Perfection, Instant Itch Relief, Gentle on Skin Leave No Scratch Marks (Brown)

 [  Purchase  ](https://bit.ly/3SKuFmf) 

 [ ![HOPELF 10PCS Dowel Rods Wood Sticks Wooden Dowel Rods - 1/2 x 17.5 Inch Bamboo Sticks - for Crafts，Hardwood Dowel Rod Assortment，Wooden Rod Sticks Doweling Rods，DIYers.](https://amcsupport.org/wp-content/uploads/2024/08/Dowel-Rods-Wood-Sticks.jpg) ](https://bit.ly/3YFwzZ9) 

### Dowel Rods

HOPELF 10PCS Dowel Rods Wood Sticks Wooden Dowel Rods – 1/2 x 17.5 Inch Bamboo Sticks – for Crafts, Hardwood Dowel Rod Assortment. Wooden Rod Sticks Doweling Rods，DIYers.

 [  Purchase  ](https://bit.ly/3YFwzZ9) 

### Kitchen/Cooking/Eating

[Everyday Items](https://amcsupport.org/assistive-devices/#everyday) | [Kitchen/Cooking/Eating](https://amcsupport.org/assistive-devices/#kitchen) | [Bathroom](https://amcsupport.org/assistive-devices/#bathroom) | [Body Care](https://amcsupport.org/assistive-devices/#body) | [Clothing/Getting Dressed](https://amcsupport.org/assistive-devices/#clothing)

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/Obi_Feeder-900.jpg) ](https://meetobi.com/) 

### Obi Feeder

Obi is a first of its kind, revolutionary dining device for individuals who lack upper extremity function. 

 [  Learn More  ](https://meetobi.com/) 

 [ ![Anti-Slip Eating Aid Tableware All-In-One Stainless Steel Flexible Auxiliary Table Wares for Arthritis Disabled Eating Tool](https://amcsupport.org/wp-content/uploads/2024/08/Anti-Slip-Eating-Aid-Tableware.jpg) ](https://bit.ly/Anti-Slip-Eating-Aid) 

### Anti-Slip Eating Aid Tableware

All-In-One Stainless Steel Flexible Auxiliary Table Wares for Arthritis Disabled Eating Tool

 [  Purchase  ](https://bit.ly/Anti-Slip-Eating-Aid) 

 [ ![DASH Tasti-Crisp™ Electric Air Fryer Oven, 2.6 Qt., Aqua – Compact Air Fryer for Healthier Food in Minutes, Ideal for Small Spaces - Auto Shut Off, Analog, 1000-Watt](https://amcsupport.org/wp-content/uploads/2024/08/Electric-Air-Fryer-Oven.jpg) ](https://amzn.to/3yuiuDh) 

### DASH Tasti-Crisp™ Electric Air Fryer Oven

2.6 Qt., Aqua – Compact Air Fryer for Healthier Food in Minutes, Ideal for Small Spaces – Auto Shut Off, Analog, 1000-Watt

 [  Purchase  ](https://amzn.to/3yuiuDh) 

 [ ![Elite Gourmet ETO2530M Double French Door Countertop Toaster Oven, Bake, Broil, Toast, Keep Warm, Fits 12" pizza, 25L capacity, Stainless Steel & Black](https://amcsupport.org/wp-content/uploads/2024/08/convectional-countertop-oven.jpg) ](https://amzn.to/4cmsFr7) 

### Conventional Countertop Oven

Great for those that may have trouble with stoves. This can be placed on a countertop for ease of use and is great for various different recipes.

 [  Purchase  ](https://amzn.to/4cmsFr7) 

 [ ![Amazon Basics 1800W Portable Induction Cooktop Burner, medium, Black](https://amcsupport.org/wp-content/uploads/2024/08/Induction-cooktop.jpg) ](https://amzn.to/3SNMpx0) 

### Induction Cooktop

Amazon Basics 1800W Portable Induction Cooktop Burner, medium, Black. Great for small spaces and easier than a full oven top.

 [  Purchase  ](https://amzn.to/3SNMpx0) 

 [ ![Base Pad keeps jar in place, reducing force required to open jar Accommodates any size jar lid Sharp, stainless steel teeth grip lid firmly Contoured, non-slip handle for better leverage Jar Opener is dishwasher safe; hand wash Base Pad](https://amcsupport.org/wp-content/uploads/2024/08/OXO-Good-Grips-Jar-Opener-with-Base-Pad.jpg) ](https://bit.ly/4dJhzOc) 

### Jar Opener

OXO Good Grips Jar Opener with Base Pad

 [  Purchase  ](https://bit.ly/4dJhzOc) 

 [ ![](https://amcsupport.org/wp-content/uploads/2024/08/Adult-Bibs.jpg) ](https://amzn.to/3X2LuuZ) 

### Adult Bibs

*Image shown* 2 Pack Silicone Adult Bibs for Eating Reusable Portable Waterproof Clothing Protectors With food Catcher For Men Women Easy To Clean

 [  Purchase  ](https://amzn.to/3X2LuuZ) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/Starfrit-Rotato-Express-Electric-Peeler.png) ](https://www.amazon.com/dp/B000X9EPT0) 

### Starfrit Rotato Express Electric Peeler

Safe & Easy to Use – Effortlessly Peels Vegetables and Fruit

 [  Purchase  ](https://www.amazon.com/dp/B000X9EPT0) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/Electric-Jar-Opener.png) ](https://www.amazon.com/dp/B0BW5LNM6F) 

### Electric Jar Opener

It can open jar lids automatically without any effort. To use it, you just put it on the jar, press the button, and you can open the jar.

 [  Purchase  ](https://www.amazon.com/dp/B0BW5LNM6F) 

### Bathroom

[Everyday Items](https://amcsupport.org/assistive-devices/#everyday) | [Kitchen/Cooking/Eating](https://amcsupport.org/assistive-devices/#kitchen) | [Bathroom](https://amcsupport.org/assistive-devices/#bathroom) | [Body Care](https://amcsupport.org/assistive-devices/#body) | [Clothing/Getting Dressed](https://amcsupport.org/assistive-devices/#clothing)

 [ ![Bidet Attachment for Toilet, Retractable Self Cleaning Cold Water Bidets for Existing Toilets, Bidet Toilet Seat Attachment with Pressure Controls, Bidet Attachment for Frontal & Rear Wash](https://amcsupport.org/wp-content/uploads/2024/08/Badet-for-toilets.jpg) ](https://amzn.to/4fJvdT4) 

### Badet for Toilets

*Image shown* Bidet Attachment for Toilet, Retractable Self Cleaning Cold Water Bidets for Existing Toilets, Bidet Toilet Seat Attachment with Pressure Controls, Bidet Attachment for Frontal & Rear Wash

 [  Purchase  ](https://amzn.to/4fJvdT4) 

 [ ![Bottom Wiping Aid - Long Reach Comfort Wipe - Self Wipe Assist Toilet Aids Wand](https://amcsupport.org/wp-content/uploads/2024/08/Bottom-Wiping-Aid.jpg) ](https://amzn.to/3TcvcOb) 

### Bottom Wiping Aid

Bottom Wiping Aid – Long Reach Comfort Wipe – Self Wipe Assist Toilet Aids Wand

 [  Purchase  ](https://amzn.to/3TcvcOb) 

 [ ![Safe-er-Grip Changing Lifestyles Suction Cup Grab Bars For Bathtubs & Showers; Safety Bathroom Assist Handle, White & Grey, 16 Inches](https://amcsupport.org/wp-content/uploads/2024/08/Shower-Handles.jpg) ](https://amzn.to/4dEvgOe) 

### Shower Handles

Safe-er-Grip Changing Lifestyles Suction Cup Grab Bars For Bathtubs & Showers; Safety Bathroom Assist Handle, White & Grey, 16 Inches

 [  Purchase  ](https://amzn.to/4dEvgOe) 

 [ ![Shower Chair (450lb) with Padded Armrests and Back, Shower Chair for Elderly and Disabled, Adjustable Height Shower Seat, Heavy Duty Shower Chair for Inside Shower, Handicap Shower Chair- Blue](https://amcsupport.org/wp-content/uploads/2024/08/Shower-chair.jpg) ](https://amzn.to/3AxFa5W) 

### Shower Chairs

*Image shown* Shower Chair (450lb) with Padded Armrests and Back, Shower Chair for Elderly and Disabled, Adjustable Height Shower Seat, Heavy Duty Shower Chair for Inside Shower, Handicap Shower Chair- Blue

 [  Purchase  ](https://amzn.to/3AxFa5W) 

 [ ![Long Anti-Slip Curved Handle Bath Body Brush Bath Brush for Middle Aged, Elderly/Pregnant Women Bath and Shower, 15.33 Inch](https://amcsupport.org/wp-content/uploads/2024/08/Long-Budy-Scrubbers.jpg) ](https://amzn.to/4dJUmey) 

### Long Handled Body Scrubbers

*Image shown* Long Anti-Slip Curved Handle Bath Body Brush Bath Brush, 15.33 Inch

 [  Purchase  ](https://amzn.to/4dJUmey) 

 [ ![ack Scrubber Anti Slip for Shower,Shower Brush Long Handle with Stiff and Soft Bristles,Body Exfoliator for Bath or Dry Brush(Blue)](https://amcsupport.org/wp-content/uploads/2024/08/Shower-Brush.jpg) ](https://amzn.to/4do9pe7) 

### Back Shower Brush

*Image shown* Back Scrubber Anti Slip for Shower,Shower Brush Long Handle with Stiff and Soft Bristles,Body Exfoliator for Bath or Dry Brush(Blue)

 [  Purchase  ](https://amzn.to/4do9pe7) 

 [ ![HAMITOR Toilet Bowl Brush Holder Set: Curved Design with Holder for Deep Cleaning Under Rim - Compact Hidden Scrubber for Small Space - Modern RV Bathroom Accessories - White](https://amcsupport.org/wp-content/uploads/2024/08/Toilet-Bowl-Brush.jpg) ](https://bit.ly/3WSPcX8) 

### Toilet Bowl Brush

Some have told us this works great for your back and body, simply lather it up and wash! HAMITOR Toilet Bowl Brush Holder Set: Curved Design with Holder for Deep Cleaning Under Rim – Compact Hidden Scrubber for Small Space – Modern RV Bathroom Accessories – White

 [  Purchase  ](https://bit.ly/3WSPcX8) 

 [ ![AARainbow 4 Packs Long Stretch Back Sponge with Rope Handles Back Scrubber Body Sponges for Bathing, Bath Shower Mesh Sponge Body Deep Cleaning for Men & Women (H-Gradient Color)](https://amcsupport.org/wp-content/uploads/2024/08/Long-Stretch-Back-Sponge-with-Rope-Handles_.jpg) ](https://amzn.to/3SNYGBJ) 

### Long Sponges With Handles

AARainbow 4 Packs Long Stretch Back Sponge with Rope Handles Back Scrubber Body Sponges for Bathing, Bath Shower Mesh Sponge Body Deep Cleaning for Men & Women (H-Gradient Color)

 [  Purchase  ](https://amzn.to/3SNYGBJ) 

 [ ![Exfoliating Mesh Soap Pouch Mesh Soap Saver Bag Bubble Foam Net for Body Facial Cleaning Tool, Random Colors (10)](https://amcsupport.org/wp-content/uploads/2024/08/Exfoliating-Mesh-Soap-Pouch.jpg) ](https://bit.ly/4ctc3OH) 

### Mesh Soap Pouches

Exfoliating Mesh Soap Pouch Mesh Soap Saver Bag Bubble Foam Net for Body Facial Cleaning Tool, Random Colors (10)

 [  Purchase  ](https://bit.ly/4ctc3OH) 

 [ ![AmazerBath Loofah Sponge, Shower Loofah for Men and Women - Body Scrubber Loofa Set of 3 Classic Black & White Edge, Bath Sponge 60g/PCS](https://amcsupport.org/wp-content/uploads/2024/08/Shower-Loofah.jpg) ](https://bit.ly/46I8RgV) 

### Loofahs

AmazerBath Loofah Sponge, Shower Loofah for Men and Women – Body Scrubber Loofa Set of 3 Classic Black & White Edge, Bath Sponge 60g/PCS

 [  Purchase  ](https://bit.ly/46I8RgV) 

 [ ![Large Shower Foot Scrubber Mat with Stronger Non-Slip Suction Cups, Back Scrubber Massage Pad Wall Mount, Feet Scrubbers for Use in Shower Dead Skin Remover, Silicone Body Scrubber Foot Cleaner](https://amcsupport.org/wp-content/uploads/2024/08/Large-Shower-Foot-Scrubber-Mat_.jpg) ](https://bit.ly/3yPw5F7) 

### Foot Scrubber Shower Matt

Large Shower Foot Scrubber Mat with Stronger Non-Slip Suction Cups, Back Scrubber Massage Pad Wall Mount, Feet Scrubbers for Use in Shower Dead Skin Remover, Silicone Body Scrubber Foot Cleaner

 [  Purchase  ](https://bit.ly/3yPw5F7) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/Shampoo-Buddy-Portable-Hair-Wash-Basin.png) ](https://www.amazon.com/dp/B08RY63HPG?th=1) 

### Shampoo Buddy Portable Hair Wash Basin

The Shampoo Buddy Portable Hair Wash Basin can be installed easily without using any tools. The water drains right into the sink – no drain hose or bucket needed!

 [  Purchase  ](https://www.amazon.com/dp/B08RY63HPG?th=1) 

### Body Care

[Everyday Items](https://amcsupport.org/assistive-devices/#everyday) | [Kitchen/Cooking/Eating](https://amcsupport.org/assistive-devices/#kitchen) | [Bathroom](https://amcsupport.org/assistive-devices/#bathroom) | [Body Care](https://amcsupport.org/assistive-devices/#body) | [Clothing/Getting Dressed](https://amcsupport.org/assistive-devices/#clothing)

 [ ![Tea Tree Oil Foot Soak with Epsom Salt - For Toenail Repair, Athletes Foot, Softens Calluses, Soothes Sore & Tired Feet, Nail Discoloration, odor Scent, Spa Pedicure Care - Made in USA 16 oz](https://amcsupport.org/wp-content/uploads/2024/08/Tea-Tree-Oil-Foot-Soak-with-Epsom-Salt.jpg) ](https://bit.ly/4doMjnI) 

### Loofahs

Tea Tree Oil Foot Soak with Epsom Salt – For Toenail Repair, Athletes Foot, Softens Calluses, Soothes Sore & Tired Feet, Nail Discoloration, odor Scent, Spa Pedicure Care – Made in USA 16 oz

 [  Purchase  ](https://bit.ly/4doMjnI) 

 [ ![AmazerBath Lotion Applicator for Back, Feet, 4 Replaceable Pads with 1 Long Handled, Back Sunscreen Applicator for Kids, Elderly, Women, Apply Cream Medicine Skin Cream Moisturizer Tanner, White](https://amcsupport.org/wp-content/uploads/2024/08/Lotion-Applicator.jpg) ](https://amzn.to/4dqqwwa) 

### Lotion Applicator

AmazerBath Lotion Applicator for Back, Feet, 4 Replaceable Pads with 1 Long Handled, Back Sunscreen Applicator for Kids, Elderly, Women, Apply Cream Medicine Skin Cream Moisturizer Tanner, White

 [  Purchase  ](https://amzn.to/4dqqwwa) 

 [ ![500 Pcs 6" Long Cotton Swabs with Wooden Sticks - Lint Free Gun Cleaning Swabs - Cotton Tipped Applicator for Makeup, Gun Cleaning & Lubricating, Pet Care, Hard-to-Reach Area Cleaning Tools](https://amcsupport.org/wp-content/uploads/2024/08/Long-qtips.jpg) ](https://amzn.to/3AxP9YV) 

### Long Handled QTips

500 Pcs 6″ Long Cotton Swabs with Wooden Sticks – Lint Free Gun Cleaning Swabs – Cotton Tipped Applicator for Makeup, Gun Cleaning & Lubricating, Pet Care, Hard-to-Reach Area Cleaning Tools

 [  Purchase  ](https://amzn.to/3AxP9YV) 

 [ ![Nail Clippers with 360-Degree Rotating Head - Stainless Steel Fingernails and Toenails Cutter Lagre and Small Sizes (Silver)](https://amcsupport.org/wp-content/uploads/2024/08/Rotating-nail-clippers.jpg) ](https://amzn.to/3YJXG5f) 

### Rotating Head Nail Clippers

Nail Clippers with 360-Degree Rotating Head – Stainless Steel Fingernails and Toenails Cutter Lagre and Small Sizes (Silver)

 [  Purchase  ](https://amzn.to/3YJXG5f) 

 [ ![Cortizone 10 Maximum Strength Intensive Healing Lotion for Eczema, 1% Hydrocortisone, 3.5 oz.](https://amcsupport.org/wp-content/uploads/2024/08/Cortizone-10-Maximum-Strength_.jpg) ](https://amzn.to/3yF61fW) 

### Cortizone 10 Maximum Strength

Great for cracked toes. Cortizone 10 Maximum Strength Intensive Healing Lotion for Eczema, 1% Hydrocortisone, 3.5 oz.

 [  Purchase  ](https://amzn.to/3yF61fW) 

 [ ![Zeasorb Super Absorbent Athlete's Foot Antifungal Treatment Powder, Dermatologist Recommended, Patented Odor Control Technology, with 2% Miconazole Nitrate and Soothing Aloe, Talc-Free, 2.5 oz Bottle](https://amcsupport.org/wp-content/uploads/2024/08/Zeasorb-Super-Absorbent_.jpg) ](https://amzn.to/4dHXNT1) 

### Zeasorb Super Absorbent Athlete’s Foot Antifungal Treatment Powder

Great for cracked feet. Dermatologist Recommended, Patented Odor Control Technology, with 2% Miconazole Nitrate and Soothing Aloe, Talc-Free, 2.5 oz Bottle

 [  Purchase  ](https://amzn.to/4dHXNT1) 

 [ ![CareAll Tolnaftate Cream USP 1%, 1.0 oz Tube (6 Pack), Effective Antifungal Treatment for Athlete’s Foot, Jock Itch, Ringworm. Relief from Itching. Compare to The Leading Brand.](https://amcsupport.org/wp-content/uploads/2024/08/CareAll-Tolnaftate-Cream.jpg) ](https://amzn.to/3X0ukOO) 

### CareAll Tolnaftate Cream

USP 1%, 1.0 oz Tube (6 Pack), Effective Antifungal Treatment for Athlete’s Foot, Jock Itch, Ringworm. Relief from Itching. Compare to The Leading Brand.

 [  Purchase  ](https://amzn.to/3X0ukOO) 

### Clothing/Getting Dressed

[Everyday Items](https://amcsupport.org/assistive-devices/#everyday) | [Kitchen/Cooking/Eating](https://amcsupport.org/assistive-devices/#kitchen) | [Bathroom](https://amcsupport.org/assistive-devices/#bathroom) | [Body Care](https://amcsupport.org/assistive-devices/#body) | [Clothing/Getting Dressed](https://amcsupport.org/assistive-devices/#clothing)

 [ ![Tarpop 3 Pairs Aloe Socks Moisturizing Spa Socks for Dry Cracked Feet Infused Socks Gel Sleeping Fuzzy Socks Lotion Socks Gift for Christmas Women Men Softening Dry Feet(White, Green, Colorful)](https://amcsupport.org/wp-content/uploads/2024/08/Aloe-Socks-Moisturizing-Spa-Sock.jpg) ](https://bit.ly/3WJUzI2) 

### Aloe Socks

Tarpop 3 Pairs Aloe Socks Moisturizing Spa Socks for Dry Cracked Feet Infused Socks Gel Sleeping Fuzzy Socks Lotion Socks Gift for Christmas Women Men Softening Dry Feet(White, Green, Colorful)

 [  Purchase  ](https://bit.ly/3WJUzI2) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/Sock_Aid-900.jpg) ](https://www.amazon.com/RMS-Deluxe-Sock-Foam-Handles/dp/B00U9TWCXU/ref=pd_bxgy_2/140-2224817-4131310?_encoding=UTF8&pd_rd_i=B00U9TWCXU&pd_rd_r=b01f65bf-9c0d-4af6-876b-76e54e88b711&pd_rd_w=Dag0C&pd_rd_wg=Wwr2Q&pf_rd_p=ce6c479b-ef53-49a6-845b-bbbf35c28dd3&pf_rd_r=74MA0BJ84WV991YXCBJQ&psc=1&refRID=74MA0BJ84WV991YXCBJQ) 

### Sock Aid

Socks Helper with Foam Handles 

 [  Purchase  ](https://www.amazon.com/RMS-Deluxe-Sock-Foam-Handles/dp/B00U9TWCXU/ref=pd_bxgy_2/140-2224817-4131310?_encoding=UTF8&pd_rd_i=B00U9TWCXU&pd_rd_r=b01f65bf-9c0d-4af6-876b-76e54e88b711&pd_rd_w=Dag0C&pd_rd_wg=Wwr2Q&pf_rd_p=ce6c479b-ef53-49a6-845b-bbbf35c28dd3&pf_rd_r=74MA0BJ84WV991YXCBJQ&psc=1&refRID=74MA0BJ84WV991YXCBJQ) 

 [ ![Stainless Steel Dressing Stick with Adjustable Design, Dressing Aids for Shoes, Socks, Shirts, and Pants, 17-26 Inch Length](https://amcsupport.org/wp-content/uploads/2024/08/Stainless-Steel-Dressing-Stick.jpg) ](https://amzn.to/4dCYwFL) 

### Telescopic Dressing Stick

Stainless Steel Dressing Stick with Adjustable Design, Dressing Aids for Shoes, Socks, Shirts, and Pants, 17-26 Inch Length

 [  Purchase  ](https://amzn.to/4dCYwFL) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/Dressing_Stick-900.jpg) ](https://www.amazon.com/RMS-Deluxe-Dressing-Stick-Shirts/dp/B01B24H3LQ/ref=sr_1_23?crid=3D9FIP0DQOZ33&dchild=1&keywords=assistive%20devices%20for%20disabled&qid=1605678515&sprefix=assistive%2Caps%2C221&sr=8-23) 

### Dressing Stick

Dressing Aid for Shoes, Socks, Shirts and Pants 

 [  Purchase  ](https://www.amazon.com/RMS-Deluxe-Dressing-Stick-Shirts/dp/B01B24H3LQ/ref=sr_1_23?crid=3D9FIP0DQOZ33&dchild=1&keywords=assistive%20devices%20for%20disabled&qid=1605678515&sprefix=assistive%2Caps%2C221&sr=8-23) 

 [ ![2 Pack Button Hook and Zipper Pull Helper - Dressing Button Aid Assist Tool for Arthritis Disabled Elderly - 2 in 1 Dressing Aids Tool](https://amcsupport.org/wp-content/uploads/2024/08/hook-zipper-pulls.jpg) ](https://amzn.to/4fJ6U7Y) 

### Hook & Zipper Pull

2 Pack Button Hook and Zipper Pull Helper – Dressing Button Aid Assist Tool for Arthritis Disabled Elderly – 2 in 1 Dressing Aids Tool

 [  Purchase  ](https://amzn.to/4fJ6U7Y) 

### Get Your Device Listed

##### All (required) & (\*) must be filled out.

       Name   

  Email   

  Phone   

  Name of Device   

  Description of Device   

  Shopping URL Link   

   🤍 Submit 🤍

**Categories:** Arthrogryposis, Assistive Devices, Find Supprt

**Tags:** Assistive Devices, Find Support

---

### [Giving Tuesday](https://amcsupport.org/giving-tuesday/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

![](https://amcsupport.org/wp-content/uploads/2023/12/AMC-girl-holding-someone-1.jpg) 

### Giving Tuesday December 2nd, 2025

Giving Tuesday is a global movement that encourages communities to give, collaborate, and celebrate generosity. Giving Tuesday falls on the Tuesday following Thanksgiving and aims for communities all over the world to give to charitable organizations. This day serves as a great reminder to encourage family and friends to give back to their favorite charities in any form, amount, or way that they can. By supporting AMCSI on #GivingTuesday you are helping fund future conferences, meetings, grants, scholarships, and research studies. Our annual AMC conference provides an invaluable medical and support resource to hundreds of families around the world.

 To give the gift of time please fill out our volunteer form. 

 [  Volunteer Today  ](https://amcsupport.org/volunteer/) 

### Learn how Arthrogryposis Multiplex Congenita Support, Inc. has helped Julie during her very first visit to the 20th Annual AMCSI Conference, in Norfolk, VA, on the AMCSI Scholarship!

You can find more information & promotional ideas for giving tuesday at 
[**Participate In Giving Tuesday**](https://www.givingtuesday.org/participate/)

Your support during Giving Tuesday will help AMCSI in the coming year with tools to help spreading awareness for arthrogryposis. In addition, donations will go toward helping AMCSI with the following:

 [ ](https://amcsupport.org/wp-content/uploads/2024/01/IMG_1546.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Fri-88-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Sat-6.png) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Misha.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Fri-10-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Sat-36-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-DrHaroldvanBosse.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-tricycle.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Fri-131-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Brittanie.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Fri-69-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2024/01/AMCOhio23-Fri-11-1.jpg) 

Our Annual Arthrogryposis Conference hosts over 600 attendees from across the US, Canada, South America, and Europe. Your donation helps keep registration fees low and fund children’s programming.

AMCSI will further expand our social media outreach to enable communication among individuals via Facebook, Twitter and the continued expansion of our support website.

AMC families can apply for a grant to facilitate “mini meet-ups”. The mini meet-ups are regional informal gatherings, held across the United States, bringing together many AMC’ers and their families. The gatherings enhance the community experience by making connections with other local AMC’ers and allowing for the sharing of support and information in a small, intimate setting. College Scholarship Grants are also available for graduating HS Seniors or continuing education students with AMC.

AMCSI will continue its campaign to provide education to care providers and new families. AMCSI is currently developing informational packets for Neonatal Intensive Care Units and various health care settings, to be distributed across the United States. The informational packets provide new parents, medical professionals and individuals with arthrogryposis support, education and a community of resources.

**Categories:** AMC Events, Arthrogryposis, Giving Tuesday

**Tags:** AMC Events, Giving Tuesday, Upcoming

---

### [Adaptive Clothing, Footwear & Sock Brands](https://amcsupport.org/adaptive-brands/)

**Published:** December 11, 2025
**Author:** Ted Houser

**Content:**

# Adaptive Clothing, Footwear & Sock Brands

This guide brings together a curated list of brands offering adaptive apparel, shoes, and socks designed for comfort, accessibility, and independence. From magnetic closures and easy-on designs to AFO/KAFO-friendly footwear and sensory-conscious socks, these brands provide solutions to make dressing easier, safer, and more inclusive for people of all ages and abilities.

##### **[Do you have an adaptive clothing line or know of one, please add here. ](https://amcsupport.org/adaptive-brands/#adaptive)**

### Adaptive Clothing Brands

**[Tommy Hilfiger Adaptive](https://usa.tommy.com/en/tommy-adaptive)** – Clothing (shirts, pants, outerwear) with magnetic closures, easy-open necklines or fastenings; available for men, women, and children.

**[Seven7](https://seven7jeans.com/shop/adaptive)** – Adaptive denim and pants, redesigned for comfort (especially for seated or wheelchair users), with easier closures.

[**JCPenney Adaptive**](https://www.jcpenney.com) – Clothing for children and adults — easy-on clothes, adaptive accessories like easy-pull socks, belts, and modified garments for accessibility.

[**Target Adaptive**](https://www.target.com) – Clothing (especially for children/kids), includes sensory-friendly, accessible designs, side-open pants, easier fastenings, etc.

[**Kohl’s Adaptive** –](https://www.kohls.com) Offers adaptive clothing collections (often including kids), aiming for accessible design and inclusive sizing/needs.

[**Zappos Adaptive**](https://www.zappos.com/e/adaptive) – Retailer offering a range of adaptive shoes and some adaptive clothing, good source for adaptive footwear and apparel under one roof.

[**MagnaReady**](https://magnaready.com) – Clothing using magnetic closures instead of buttons, helpful for people with limited dexterity, mobility issues, or caregiver-assisted dressing.

[**Silvert’s Adaptive Clothing & Footwear**](https://www.silverts.com) – Extensive adaptive apparel (tops, pants, nightwear) and adaptive footwear/socks, good for disabled adults, seniors, wheelchair users.

[**Buck & Buck**](https://www.buckandbuck.com) – Clothing focused on ease of dressing: Velcro or easy closures, adaptive pants/shirts, useful for seniors or people with limited mobility.

**[IZ Adaptive](https://izadaptive.com)** – Fashion designed for people with mobility limitations or wheelchair users — clothes optimized for comfort, accessibility, and inclusivity.

[**Joe & Bella**](https://joeandbella.com) – Adaptive clothing (pants, tops) with easy-access zippers/closures, designed for comfort and ease of dressing.

[**No Limbits**](https://no-limbits.com) – Adaptive wear for people with limb differences, braces, prosthetics, or limited mobility — design includes accommodations for prosthetics/orthotics.

[**Slick Chicks** ](https://slickchicksonline.com)– Adaptive underwear, loungewear, bras, and undergarments, useful for those needing easier closures, wheelchair access, comfort, or incontinence-aware designs.

### Adaptive Footwear *(AFO/KAFO-Friendly Shoes)*

[**BILLY Footwear**](https://billyfootwear.com) – Incorporates zippers along the sides of the shoes and around the toe, allowing the upper of each shoe to open and fold over completely. Thus the wearer can place his or her foot onto the shoe footbed unobstructed. Then, with a tug on the zipper pull, the shoe closes and secures over the user’s foot.

[**Friendly Shoes** ](https://friendlyshoes.com)– Solves more types of footwear challenges than any other shoe technology by making fitted shoes simpler to put on and more enjoyable to wear.

[**Anodyne Shoes**](https://www.anodyneshoes.com) – Re-inventing the paradigm in comfort.

[**Healthy Feet Store**](https://www.healthyfeetstore.com) – providing a broad selection of “Doctor recommended orthopedic, therapeutic and diabetic footwear” at EVERYDAY LOW PRICES

[**Flow Feet**](https://flowfeet.com) – offers quality diabetic and orthopedic shoes in a variety of styles and types – both classic and modern.

[**Memo Shoes**](https://memo-shoes.com) – is the highest quality children footwear in classic style, made of natural materials suitable for children’s feet.

[**Cadense**](https://cadense.com) – Combining robotic design, neurorehabilitation, and functional biomechanics, Cadense creates groundbreaking adaptive solutions.

[**Kizik**](https://kizik.com) – Adaptive footwear (casual/active) that is easy slip-in / hands-free — helpful for people with limited mobility or dexterity.

[**Nike FlyEase**](https://www.nike.com/flyease) – 
Nike (Inclusive / Adaptive-friendly lines) Offers shoes with adaptive-friendly designs (easy-on, adjustable) that may suit mobility-limited users or those using orthotics/orthoses.

### Adaptive Socks *(AFO/KAFO & Sensory-Friendly)*

[**Lairos**](https://lairos.com) – Our socks are designed not just for kids,
but also for toddlers, teens, and adults around the world who need comfort, protection, and style every day.

[**SmartKnit AFO Socks**](https://www.smartknit.com) – Therafirm’s unique ability to combine healthy, true gradient compression with the most up-to-date technologies available results in superior, quality compression garments.

[**Thrive Orthopedics CoolFit Socks**](https://thriveorthopedics.com) – Carbon-fiber fabrication is an art and science. We have the best fabricators in the world hand-making every AFO for our patients.

[**PediatRX AFO Socks**](https://flowfeet.com) – offers quality diabetic and orthopedic shoes in a variety of styles and types – both classic and modern.

[**June Adaptive Socks**](https://www.juneadaptive.com) – From people frustrated by inaccessible buttons and zippers to people recovering from medical treatments, people living with mobility challenges or disabilities can find fashion solutions at June Adaptive.

[**The Able Label**](https://www.theablelabel.com) – products are designed to be affordable, stylish, and comfortable to wear.

### Tell US About Your Adaptive Clothing Line

##### All (required) & (\*) must be filled out.

       Name   

  Email   

  Phone   

  Name of Adaptive Clothing Line/Specific Item   

  Description   

  Shopping URL Link   

   🤍 Submit 🤍

**Categories:** Find Supprt

**Tags:** Adaptive Clothing, Adaptive Footwear, Adaptive Socks, Brands, Clothing, Footwear

---

### [New Event](https://amcsupport.org/new-event/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

# Do you have an event planned?

Tell us about your event and lets collaborate in our efforts to spread Arthrogryposis Awareness!

### AMC Events Form

#### Are you starting an AMC Event or know of one in your area or want to learn how to create one?

Fill out the form below to get started or share the information about the AMC Events in your area today!

##### All (required) & (\*) must be filled out.

By signing up, you also agree to receive email marketing communication from AMC Support Inc. You understand that you can unsubscribe at any time.

       Name   

  Email   

  Phone   

  Why are you contacting us?  Starting/Learning how-to-create an AMC Mini Meetup/Event Share an AMC Mini Meetup/Event near me

---

 Starting an AMC Mini Meetup/Event 

  What is the name of your Mini Meetup/Event?   

  Where is the location of your Mini Meetup/Event?   

  Description of Mini Meetup/Event:   

  Start date of Mini Meetup/Event   

  End date of Mini Meetup/Event   

  Start-Time of Mini Meetup/Event   

  End-Time of Mini Meetup/Event   

  Does the Mini Meetup/Event have a website?  Yes No

  If yes, include website URL:   

  Does the Mini Meetup/Event have social accounts?  Yes No

  Facebook Link   

  Instagram Link   

  TikTok Link   

  X (formerly Twitter) Link   

  Other Social Links   

  Are you aware of our Mini Meetup Grant?  Yes No *(you can learn more about it at [Mini Meetup Grant](https://amcsupport.org/mini-meetup-grant/)*)

---

 Submitting information about an AMC Mini Meetup/Event. in your area 

  What is the name of the AMC Mini Meetup/Event in your area?   

  Where is location of the AMC Mini Meetup/Event in your area?   

  Description of the AMC Mini Meetup/Event:   

  Start date of Mini Meetup/Event   

  End date of Mini Meetup/Event   

  Start-Time of Mini Meetup/Event   

  End-Time of Mini Meetup/Event   

  Does the Mini Meetup/Event have a website?  Yes No

  If yes, include website URL:   

  Does the Mini Meetup/Event have social accounts?  Yes No

  Facebook Link   

  Instagram Link   

  TikTok Link   

  X (formerly Twitter) Link   

  Other Social Links   

   Submit

**Categories:** AMC Events, Arthrogryposis, Calendar Of Events, Upcoming Events

**Tags:** AMC Events, Calendar Of Events

---

### [Leave A Legacy Gift](https://amcsupport.org/leave-a-legacy-gift/)

**Published:** October 4, 2025
**Author:** Ted Houser

**Excerpt:** 🩵 Leave a Legacy with AMCSI
A legacy gift is more than a donation—it’s a lasting promise to future generations of the AMC Community.
By including AMCSI in your will, trust, or estate plans, you help ensure continued support for families, research, education, and connection for years to come. Every legacy gift strengthens our ability to provide grants, scholarships, and vital programs that make a lasting impact on the lives of those living with Arthrogryposis Multiplex Congenita (AMC).
Whether you’ve already made plans or are just beginning to explore your options, we’re here to help you shape a legacy that reflects your values and your commitment to the AMC Community.

**Content:**

### 🩵 Leave a Legacy with AMCSI

Leaving a legacy gift is a meaningful way to ensure that support, education, and connection continue for future generations of the AMC Community.

Your thoughtful planning today helps AMCSI provide ongoing resources, grants, scholarships, and programs that empower individuals and families living with Arthrogryposis Multiplex Congenita (AMC).

This form is a simple way to let us know your intentions or to request more information. It’s not legally binding—it simply allows our team to honor your wishes and connect with you in a way that’s comfortable for you.

##### Leave a Legacy Gift Form

##### All (required) & (\*) must be filled out.

By signing up, you also agree to receive email marketing communication from AMC Support Inc. You understand that you can unsubscribe at any time.

       Name   

  Email   

  Phone   

  Address   

  Address 2   

  City   

  State   

  Zip   

---

 Your Legacy Gift Intent

Please share what stage you’re at in your legacy planning. Your answers simply help us provide the right support, there are no obligations or legal commitments. 

  Have you already included AMCSI in your will or estate plans?  Yes, I’ve already included AMCSI I plan to include AMCSI I’d like more information about how to do this

  What type of legacy gift are you considering?  Bequest in a will or trust Beneficiary designation *(life insurance, IRA, or retirement account)* Charitable trust Other *(please describe)*

  Would you like to share the estimated value or percentage of your gift?   

---

 Recognition Preferences 

  May we include your name in our Legacy Donor listings (website, annual report, etc.)?  Yes, you may list my name(s) I prefer to remain anonymous Please contact me to discuss recognition options

  Would you like to dedicate your gift in honor or memory of someone?  Yes No

 If yes, please answer teh questions below: 

  Name of Honoree   

  Relationship   

---

 Stay Connected 

  Would you like someone from our team to contact you to discuss your legacy plans?  Yes, please contact me Not right now, thank you

  Preferred method of contact:  Email Phone Mail

  Preferred time to be contacted:  Morning Afternoon Evening No preference

---

 What Inspires You to Give

Sharing your story helps us understand what matters most to you and strengthens the heart of our AMC Community. 

  Would you like to share what inspired you to include AMCSI in your legacy plans?   

---

 Thank You! 

Thank you for considering a legacy gift to AMCSI. Your commitment helps ensure that families and individuals living with arthrogryposis have access to education, connection, and support for years to come.

All information shared here will remain confidential. This form does not create a legal obligation, it simply allows us to celebrate your generosity and stay in touch about your wishes. 

   Submit

**Categories:** Fundraising

**Tags:** AMCSI, Arthrogryposis, Gift, Legacy Gift

---

### [Company Match](https://amcsupport.org/company-match/)

**Published:** October 4, 2025
**Author:** Ted Houser

**Excerpt:** Company Match:
Double your impact with a matching gift! Many employers offer donation matching programs that can instantly multiply the value of your contribution to AMCSI. It’s a simple way to make your generosity go even further—helping us fund family support, research, and community programs for those affected by Arthrogryposis Multiplex Congenita.
Check with your HR or corporate giving department to see if your employer offers a match. A few minutes of paperwork could mean twice the support for the AMC community!

**Content:**

### Company Match

Our partnerships help expand what’s possible for individuals and families affected by Arthrogryposis Multiplex Congenita (AMC). AMCSI offers a variety of ways for supporters to engage with our community and make a tangible difference.

**Double Your Impact!**
Many employers offer matching gifts or payroll deductions for charitable donations. It’s usually as simple as filling out a quick form or searching your company’s giving portal for:
**Arthrogryposis Multiplex Congenita Support, Inc.**
**EIN: 20-8287870**

Platforms like Benevity or YourCause, or direct checks from employers, make sure your match reaches AMCSI. Just ask your HR or giving department to get started.

##### Contact your HR department today to learn about your companies Company/Corporate Match programs!

Your support enables programs that provide critical assistance, covering travel costs for medical care, offering scholarships for students and conference attendees, funding research to advance understanding of AMC, and improving accessibility for children and adults living with the condition.

Whether you are new to AMC or looking for meaningful ways to connect your organization with families and individuals impacted by this rare condition, we offer flexible partnership opportunities that align your support with high-impact initiatives that directly improve lives.

### The Basics

**What Are Matching Gifts?**

Matching gifts are a way for companies to double or even triple the impact of your donation to AMCSI. When an employee donates, they can request a matching contribution from their employer. The company then makes an additional gift to AMCSI, often matching 1:1, though some employers match at higher ratios like 2:1, 3:1, or 4:1.
This simple step can significantly increase support for families, programs, and research within the AMC community.

**Why are company matching gifts valuable?**

Company matching gifts are one of the most powerful, and yet often underutilized, forms of nonprofit fundraising. At their core, matching gifts represent free money that’s readily available to organizations like yours. When a donor gives and their employer matches that gift, your nonprofit receives twice the impact from a single donation.

Think of it this way: for every dollar donated, there’s potential for another dollar to follow, without asking the donor to reach back into their wallet. That means your fundraising team can double its results with no added expense.

**Why do company matching gifts often go unclaimed?**

Many donors aren’t aware that their employers offer company matching gift programs, which means nonprofits frequently miss out on this potential source of funding. On top of that, fundraising teams may not have a full understanding of how matching gifts work, and organizations don’t always know each donor’s employer or the details of their company’s matching policies.

### Learn about AMCSI’s multiple high-impact grants

### [Accessibility 
Grant](https://amcsupport.org/accessibility-grant/)

Accessibility Grant Arthrogryposis Multiplex Congenita Support Inc. (AMCSI) offers an accessibility grant to individuals who meet the eligibility requirement. Any tool that helps a person with AMC.

 [  Read More  ](https://amcsupport.org/accessibility-grant/) 

### [Adoption
Grant](https://amcsupport.org/adoption-grant/)

The AMCSI Adoption Grant is designed to support families in the process of adopting a child diagnosed with Arthrogryposis Multiplex Congenita (AMC).

 [  Read More  ](https://amcsupport.org/adoption-grant/) 

### [AMC Holiday 
Grant](https://amcsupport.org/amc-holiday-fund/)

“I want to say Thank you so much to AMCSI for helping our family out this holiday season. 2023 has been a roller coaster of a year, and our family has experienced so much financial hardship…”

 [  Read More  ](https://amcsupport.org/amc-holiday-fund/#holidaygrant) 

### [Bereavement 
Grant](https://amcsupport.org/bereavement-grant/)

Bereavement Grant AMCSI’s bereavement grant is available to any immediate family member of an AMCer who has passed away. AMCSI will provide one grant of $500 for funeral expenses to.

 [  Read More  ](https://amcsupport.org/bereavement-grant/) 

### [Medical Travel](https://amcsupport.org/medical-travel-grant/)
[Grant](https://amcsupport.org/medical-travel-grant/)

Medical Travel Grant AMCSI’s Medical Travel Grant assists families who are traveling for surgery related appointments. Reimbursement includes: ground transportation and lodging.

 [  Read More  ](https://amcsupport.org/medical-travel-grant/) 

### [Mini-Meetup 
Grant](https://amcsupport.org/mini-meetup-grant/)

Mini Meetup Grant Mini meetup grant is available to any AMCSI member hosting a local meet up for AMC families.

 [  Read More  ](https://amcsupport.org/mini-meetup-grant/) 

### [Research 
Grant](https://amcsupport.org/research-grant/)

Research Grant Part of AMCSI’s mission is to support families and individuals affected by arthrogryposis multiplex congenita (AMC) by providing resources that will assist in the…

 [  Read More  ](https://amcsupport.org/research-grant/) 

### Building Connections

AMCSI was created to provide a constant source of connection, guidance, and community for those affected by Arthrogryposis Multiplex Congenita (AMC). This online platform offers new and soon-to-be parents educational materials about an AMC diagnosis, while also serving as a resource hub for medical professionals—including occupational and physical therapists—to better understand and support individuals with AMC.

Through the network, people with AMC, their families, and care partners can access a variety of resources, join discussion groups, and connect with others who share similar experiences. Members can participate in smaller interest groups tailored to specific needs, such as newly diagnosed families connecting with experienced caregivers, or discussions on therapies, adaptive equipment, and daily living strategies.

AMCSI ensures that support, education, and vital resources are always within reach, helping the AMC community feel connected, informed, and empowered.

**Categories:** Fundraising

**Tags:** AMCSI, Arthrogryposis, Company Match, Corporate Sponsorship

---

### [IRA Charitable Rollovers](https://amcsupport.org/ira-charitable-rollovers/)

**Published:** October 4, 2025
**Author:** Ted Houser

**Excerpt:** Make a meaningful impact on the AMC Community with an IRA Charitable Rollover. Individuals age 70½ or older can donate directly from their IRA to AMCSI, counting toward their Required Minimum Distribution without increasing taxable income.
Your rollover supports programs, scholarships, and resources for individuals living with Arthrogryposis Multiplex Congenita. It’s simple, secure, and tax-smart.
Learn how to start your IRA rollover and make a lasting difference today.

**Content:**

### IRA Charitable Rollovers

Make a meaningful impact on the AMC Community with an IRA Charitable Rollover. Individuals age 70½ or older can donate directly from their IRA to AMCSI, counting toward their Required Minimum Distribution without increasing taxable income.

Your rollover supports programs, scholarships, and resources for individuals living with Arthrogryposis Multiplex Congenita. It’s simple, secure, and tax-smart.
Learn how to start your IRA rollover and make a lasting difference today.

**What Is an IRA Charitable Rollover?**
An IRA Charitable Rollover (also called a Qualified Charitable Distribution, or QCD) allows individuals 70½ or older to donate directly from their IRA to AMCSI. It’s a simple, tax-smart way to make a meaningful impact on the lives of those living with Arthrogryposis Multiplex Congenita.

**Benefits at a glance:**
• Counts toward your Required Minimum Distribution (RMD)
• No federal income tax on the transferred amount
• Supports AMCSI programs, grants, and scholarships

##### How It Works

**Step 1:** Check Eligibility
You must be at least 70½ and have a traditional IRA.
**Step 2:** Decide Your Gift
You can donate up to $100,000 per year directly from your IRA.
**Step 3:** Direct Transfer
Contact your IRA custodian to transfer your gift directly to AMCSI.
**Step 4:** Notify AMCSI
Let us know so we can acknowledge your gift and ensure it goes to the programs you care about.

##### Why Give Through Your IRA?

Make an Immediate Impact: Your gift funds programs, grants, and scholarships for individuals with AMC.

Tax-Efficient Giving: Reduce taxable income while fulfilling RMD requirements.
Simple and Secure: Direct transfers from your IRA mean your gift goes straight to AMCSI.

##### Ready to Give? Start Your IRA Charitable Rollover

AMCSI IRA Charitable Rollover Information:
• Organization Name: Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI)
• EIN: 20-8287870
• Mailing Address:
**Arthrogryposis Multiplex Congenita Support Inc.** *(AMCSI)*
P.O. Box 6291
Spartanburg, SC 29304

*Full out the form below to get started!*

##### IRA Charitable Rollover Form

##### All (required) & (\*) must be filled out.

By signing up, you also agree to receive email marketing communication from AMC Support Inc. You understand that you can unsubscribe at any time.

       Name   

  Email   

  Phone   

  Address   

  Address 2   

  City   

  State   

  Zip   

---

  Preferred method of contact:  Email Phone Mail

  IRA Custodian Name:   

  IRA Custodian Contact Info   

  Gift Amount   

  Approximate Transfer Date   

  Purpose / Designation  General Support Scholarships Programs/Grants Conference Other

  Comments / Special Instructions   

  Consent  I consent to AMCSI contacting me regarding my IRA Charitable Rollover gift.

 Your Legacy Gift Intent

Please share what stage you’re at in your legacy planning. Your answers simply help us provide the right support, there are no obligations or legal commitments. 

   Submit   

##### Need Help or Have Questions?

Email: ****

Your IRA can create a lasting difference in the AMC Community. Turn your Required Minimum Distribution into a gift that matters.

**Categories:** Fundraising

**Tags:** Charitable, IRA, IRA Charitable Rollovers, Rollovers

---

### [Literature and Films](https://amcsupport.org/literature-and-films/)

**Published:** January 9, 2024
**Author:** Ted Houser

**Content:**

### AMC written books have been moved to our new:

 [ ![AMCSI Collection of Arthrogryposis related books & literature](https://amcsupport.org/wp-content/uploads/2025/10/AMC-Library-Logo-1080pxW.png) ](https://amcsupport.org/amc-library/) 

## Medical Books 

 ![Arthrogryposis_A_Text_Atlas](https://amcsupport.org/wp-content/uploads/2024/01/Arthrogryposis_A_Text_Atlas.jpg) 

**Arthrogryposis: A Text Atlas** By Lynn T. Staheli (Editor),
Judith G. Hall (Editor),
Kenneth M. Jaffe (Editor),
Diane O. Paholke (Editor)

 [  View PDF  ](https://amcsupport.org/arthrogryposis-a-text-atlas/) 

 ![Arthrogryposis_Websters_Timeline_History_19552007](https://amcsupport.org/wp-content/uploads/2024/01/Arthrogryposis_Websters_Timeline_History_19552007.jpg) 

**Arthrogryposis: Webster’s Timeline History, 1955 – 2007** By Icon Group International

 [  Purchase  ](https://www.amazon.com/Arthrogryposis-Websters-Timeline-History-1955/dp/B003M0OERK/ref=sr_1_9?ie=UTF8&keywords=arthrogryposis&qid=1492445201&sr=8-9) 

 ![Congenital_Anomalies_of_the_UpperExtremity_Etiologyand_Management](https://amcsupport.org/wp-content/uploads/2024/01/Congenital_Anomalies_of_the_UpperExtremity_Etiologyand_Management.jpg) 

**Congenital Anomalies of the Upper Extremity: Etiology and Management** By Donald Laub

 [  Purchase  ](https://www.amazon.com/Congenital-Anomalies-Upper-Extremity-Management-ebook/dp/B00S170G7Q/ref=sr_1_18?ie=UTF8&keywords=arthrogryposis&qid=1492445410&sr=8-18) 

 ![Pediatric_Lower_Limb_Deformities_Principles_and_Techniques_of_Management](https://amcsupport.org/wp-content/uploads/2024/01/Pediatric_Lower_Limb_Deformities_Principles_and_Techniques_of_Management.jpg) 

**Pediatric Lower Limb Deformities: Principles and Techniques of Management** By Sanjeev Sabharwal

 [  Purchase  ](https://www.amazon.com/Pediatric-Lower-Limb-Deformities-Principles/dp/3319170961/ref=sr_1_13?ie=UTF8&keywords=arthrogryposis&qid=1492459248&sr=8-13) 

 ![Rare_Genetic_Disorders_That_Affect_the_Skeleton](https://amcsupport.org/wp-content/uploads/2024/01/Rare_Genetic_Disorders_That_Affect_the_Skeleton.jpg) 

**Rare Genetic Disorders That Affect the Skeleton** By H.J. Mankin MD (Author),
K.P. Mankin MD (Author)

 [  Purchase  ](https://www.amazon.com/dp/B0792KSJRT/ref=dp-kindle-redirect?_encoding=UTF8&btkr=1) 

## Brochures

#### In English

 ![AMCSI-brochure-english](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI-brochure-english.jpg) 

 [  View PDF  ](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI-brochure-english.pdf) 

#### In French

 ![AMCSI-brochure-french](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI-brochure-french.jpg) 

 [  View PDF  ](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI-brochure-french.pdf) 

#### In Spanish

 ![AMCSI-brochure-spanish](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI-brochure-spanish.jpg) 

 [  View PDF  ](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI-brochure-spanish.pdf) 

## Films & Videos

 [ ![Marnie King Makes Dorsal Hand Splints Pt 1](https://amcsupport.org/wp-content/uploads/2024/03/Marnie-King-Makes-Dorsal-Hand-Splints-1.jpg) ](https://vimeo.com/48450957) 

#### Marnie King Makes Dorsal Hand Splints, Pt. 1

In this video, Marnie King, (OTR/L of A.I. duPont Children’s Hospital), demonstrates how to make dorsal hand splints for daytime use.

\*Video provided for informational use only. Please consult your / your child’s physician prior to implementing any procedure or techniques demonstrated.

 [  Watch  ](https://vimeo.com/48450957) 

 [ ![Marnie King Makes Dorsal Hand Splints Pt 2](https://amcsupport.org/wp-content/uploads/2024/03/Marnie-King-Makes-Dorsal-Hand-Splints-2.jpg) ](https://vimeo.com/48474755) 

#### Marnie King Makes Dorsal Hand Splints, Pt. 2

In this video, Marnie King, (OTR/L of A.I. duPont Children’s Hospital), demonstrates how to make dorsal hand splints for nighttime use.

\*Video provided for informational use only. Please consult your / your child’s physician prior to implementing any procedure or techniques demonstrated.

 [  Watch  ](https://vimeo.com/48474755) 

 ![7_ways_of_AMC](https://amcsupport.org/wp-content/uploads/2024/01/7_ways_of_AMC.jpg) 

#### 7 Way of AMC

A series of videos by [The Dream Walker Project](https://www.youtube.com/@thedreamwalkerproject) showcasing techniques from other AMCers.

 [  Watch  ](https://www.youtube.com/playlist?list=PLPeMhSQGV2BlE0FJKW8QHcpSSQORJ3-Vb) 

 ![](https://amcsupport.org/wp-content/uploads/2024/01/video-amc-and-me_english.jpg) 

#### AMC and Me

A short film about Arthrogryposis Multiplex Congenita in children and youth. *(English version)*

 [  Watch  ](https://www.youtube.com/watch?v=hVI503QqM3g) 

 ![video-amc-and-me_spanish](https://amcsupport.org/wp-content/uploads/2024/01/video-amc-and-me_spanish.jpg) 

#### AMC and Me

A short film about Arthrogryposis Multiplex Congenita in children and youth. *(Spanish version)*

 [  Watch  ](https://www.youtube.com/watch?v=jKgEBlI0nAE) 

 ![video-amc-and-me_french](https://amcsupport.org/wp-content/uploads/2024/01/video-amc-and-me_french.jpg) 

#### AMC and Me

A short film about Arthrogryposis Multiplex Congenita in children and youth. *(French version)*

 [  Watch  ](https://www.youtube.com/watch?v=j_6SoZ7HCD4) 

 ![Bartholomews_Gift](https://amcsupport.org/wp-content/uploads/2024/01/Bartholomews_Gift.jpg) 

#### Bartholomew’s Gift

This video tells the heartwarming story of a young boy overcoming a severe disability and growing to become a man at peace with God and enjoying life to the full.

 [  Watch  ](https://www.amazon.com/gp/video/detail/B002KOO8GQ/ref=msx_wn_av) 

 ![Coping_with_Arthrogryposis_A_Parents_Perspective](https://amcsupport.org/wp-content/uploads/2024/01/Coping_with_Arthrogryposis_A_Parents_Perspective.jpg) 

#### Coping with Arthrogryposis: A Parent’s Perspective

This video takes a look at what a parent can expect when their child is born with arthrogryposis. It is a documentary formatted video that interviews parents, physicians and allied health care providers to provide helpful insight in to the treatment and management of the disease. It also addresses some of the psychological issues that family members face when a child is born with special needs.

 [  Watch  ](https://www.amazon.com/Coping-Arthrogryposis-A-Parents-Perspective/dp/B0091WSJMO/ref=sr_1_2?ie=UTF8&keywords=arthrogryposis&qid=1348772267&sr=8-2) 

 ![Hope_for_AMC](https://amcsupport.org/wp-content/uploads/2024/01/Hope_for_AMC.jpg) 

#### Hope for AMC

Parents and caregivers of children with arthrogryposis were asked, “What would you tell families new to the journey – To give hope for AMC?” Produced by parents of AMCers for anyone who has been touched by arthrogryposis multiplex congenita.

 [  Watch  ](https://vimeo.com/53997362) 

 ![The_Sweetest_Gift_Living_with_Arthrogryposis_Multiplex_Congenita_documentary](https://amcsupport.org/wp-content/uploads/2024/01/The_Sweetest_Gift_Living_with_Arthrogryposis_Multiplex_Congenita_documentary.jpg) 

#### The Sweetest Gift: Living with Arthrogryposis Multiplex Congenita documentary

My son was born with arthrogryposis in 2006. Arthrogryposis multiplex congenita is a rare physical condition affecting 1 in 3,000 births. This documentary will show how people of all ages are living and thriving with the condition, overcoming obstacles and living extraordinary lives. I wanted to share our story and all the stories of our AMC families. This is a story about hope and inspiration.

 [  Watch  ](https://vimeo.com/amcdocumentary) 

 ![A_Day_with_Theresa](https://amcsupport.org/wp-content/uploads/2024/01/A_Day_with_Theresa.jpg) 

#### A Day with Theresa

On this DVD you will see Theresa doing everyday things like dressing, washing up, brushing teeth, putting on makeup, doing hair, cleaning, painting, cooking, doing yard work, playing putt putt and video games, getting therapeutic massage, exercising, etc…

 [  Watch  ](https://vimeo.com/user3505584) 

 ![Scarman_A_Short_Documentary](https://amcsupport.org/wp-content/uploads/2024/01/Scarman_A_Short_Documentary.jpg) 

#### Scarman A Short Documentary

A short documentary about author and public speaker Ward ‘Scarman’ Foley directed by Robert Ashe, Lead Editor/ Two-Time Emmy Nominee for Conan on TBS.

 [  Watch  ](https://www.youtube.com/watch?v=UbToCgC0nXI)

**Categories:** Books, Brochurees, Films &amp; Videos, Find Supprt

**Tags:** Books, Brochures, Films, Find Support, Literature and Films

---

### [Medical Travel Grant](https://amcsupport.org/medical-travel-grant/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## Medical Travel Grant

 AMCSI’s Medical Travel Grant assists families who are traveling for surgery related appointments. Reimbursement includes: ground transportation and lodging. 

##### Arthrogryposis Multiplex Congenita Support Inc. (AMCSI) offers financial hardship assistance to individuals who meet the eligibility requirements and are experiencing a hardship that impacts their quality of life.

Eligibility requirements for the Medical Travel Grant:

- Assistance is awarded to individuals with the diagnosis of arthrogryposis or to the direct family member of the affected individual.
- Current registered member of AMCSI
    - All applicants MUST be a current member of Arthrogryposis Multiplex Congenita Support Inc. If you are not a member, please click here.
    - Our members help make the community give back grants possible for hundreds of our AMC families.
        Your order # from eventbrite is your membership #. Membership is valid until December of that year. If you are unable to purchase your membership at the time you submit your application, we will deduct the membership fee from your award after approval.
- Applicants must reside in the US or Canada
- Proof of diagnosed condition of arthrogryposis

Applicants who are approved or denied may reapply every 12 months *(certain conditions apply)*

Applicants must demonstrate financial need and will be required to submit documentation

Grant amount varies based on available funds, stated need, and unanimous approval by AMCSI’s hardship committee during quarterly reviews.

Please allow 6-8 weeks for applications to be reviewed and finalized.

In some cases, emergency funding will be fast tracked *(ie. RMDH closures due to pandemic)*

**The following are items can be reimbursed: *(Week of scheduled surgery ONLY)***
Ground Travel *(Uber, Taxi, Lyft)*
Car Rental
Lodging

**Items that will NOT be reimbursed:**
Air Travel
Parking
Tolls
Upgrades

Due to the number of applications we receive, we are unable to reimburse follow-up, therapy, or brace appointments at this time.

### Medical Travel Grant Application Form

##### All (required) (\*) documents must be sent to info@amcsupport.org

Your application will not be processed until all required items are received.
Please do not email to check on the status of your application. We will reach out you if further information is needed.

Funding for this grant is available thanks to our AMCSI Members, Run 4 Jack, Rogers Run, 253 for AMC, Valerie Pepe’s AMC Bowl-A-Ton, Valerie Pepe’s AMC Music Festival and AMCSI’s Awareness Day campaign, Facebook birthday fundraisers & T-shirt sales.

       Name   

  Email   

  Phone   

  Address   

  Address 2   

  City   

  State   

  Zip   

  AMCSI Membership # *(located in the upper right corner of your AMCSI Membership Card.)* **[CLICK HERE To View An AMCSI Membership Card Sample](https://amcsupport.org/become-a-member/#membershipcard)**   

  Name of AMCer   

  Age of AMCer   

 Medical Information 

  Attending Physician   

  Hospital   

  Surgery   

  Surgery Date   

 Additional Information 

  Please describe your sources of financial support   

  Please list grant organizations that are assisting you with this trip. (Paley Foundation, Miracle Flights, Helping AMC Families, etc.)   

  Do you have a current crowdfunding campaign? (GoFundMe, Facebook Fundraiser, etc.)   

  Please describe your current fundraising efforts, and amount you were able to raise   

  Please describe your current needs   

 Uploads are required 

  Upload Proof of Medical Diagnosis   

  Upload the Appointment Letter from healthcare provider   

  Upload receipts   

  Upload proof of financial hardship   

  Required Documents Checklist (required)  Proof of Medical Diagnosis (arthrogryposis multiplex congenita) Appointment letter from your health care provider Receipts (Funding cannot be dispersed without submitted receipts) Proof of financial hardship Other:

  If you selected 'other' above, please write your answer here:   

 Acknowledgements 

  I understand that I must submit required documentation (proof of medical appointment, diagnosis and receipts) in order to receive funding (required)  Yes No

  I understand that this grant is a reimbursement program. (required)  Yes No

  I understand that my application will be cross referenced with other giving organizations.(required)  Yes No

  I certify that, to the best of my knowledge and ability, the information included in this application, is accurate as of the date of this application signed below. (required)  Yes No

  Signature   

  Date   

   Send

**Categories:** Arthrogryposis, Financial Aid, Grants, Medical Travel Grant

**Tags:** Financial Aid, Grants, Medical Travel Grant

---

### [Mini-Meetup Grant](https://amcsupport.org/mini-meetup-grant/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## Mini Meetup Grant

 Mini meetup grant is available to any AMCSI member hosting a local meet up for AMC families. 

### Mini Meetup Grant Application Form

##### All (required) (\*) documents must be sent to info@amcsupport.org

Your application will not be processed until all required items are received.
Please do not email to check on the status of your application. We will reach out you if further information is needed.

Funding for this grant is available thanks to our AMCSI Members, Run 4 Jack, Rogers Run, 253 for AMC, Valerie Pepe’s AMC Bowl-A-Ton, Valerie Pepe’s AMC Music Festival and AMCSI’s Awareness Day campaign, Facebook birthday fundraisers & T-shirt sales.

       Name   

  Email   

  Phone   

  Address   

  Address 2   

  City   

  State   

  Zip   

  I am a (check one)  Parent Sibling Grandparent Adult with AMC

  Are you a member of AMCSI?  Yes No

  AMCSI Membership # *(located in the upper right corner of your AMCSI Membership Card.)* **[CLICK HERE To View An AMCSI Membership Card Sample](https://amcsupport.org/become-a-member/#membershipcard)**   

 **About The Event** 

  Location   

  Date   

  How many AMCSI families do you expect to attand?   

  How many non-AMCSI families do you expect to attand?   

  Has there been a regional event before? (check one)  Yes No

  If yes, how many Adults?   

  If yes, how many Children?   

 **Expenses** 

  Has there been a regional event before? (check one)  Yes No

  Is there a facility rental fee? (check one)  Yes No

  What is the fee?   

  Cost of food?   

  Other Costs? (Please list)   

 **Revenue** 

  Will you collect donations from attendees to help cover costs?  Yes No

  (If yes, please list)   

 By signing below, I understand the funding guidelines and agree to them. By accepting an event donation from Arthrogryposis Multiplex Congenita Support, Inc (AMCSI), I understand that AMCSI is not sponsoring this event. I hereby release and forever discharge AMCSI, and its Board of Directors from any and all liability in regards to this event. I further agree that if, despite this Release and Waiver of Liability, I or any person in attendance makes a claim against AMCSI, and its Board of Directors, I will indemnify, save and hold harmless Arthrogryposis Multiplex Congenita Support, Inc., and its Board of Directors from any monetary losses including, but not limited to, legal fees and litigation costs. This release is binding on my heirs, executors, assigns, and administrators. *(If you choose to submit this electronically via email, typing your name constitutes a signature and agreement to the above terms.)* 

  Signature   

  Date   

 Funding will be made available based upon approval by the Board of Directors of Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) and the availability of funds. The person(s) applying for this grant must be a paid members of AMCSI. AMCSI will reimburse the applicant by check, within 60 days after the submission of the original receipts. This grant may be used for food, non-alcoholic beverages, and facility rentals. The MAXIMUM grant total is $100.00. The grant application must be submitted at least 90 days prior to the meet-up by either mailing AMCSI at P.O. Box 6291, Spartanburg, SC 29304, or by filling out this online application. 

   Send

**Categories:** Arthrogryposis, Financial Aid, Grants, Mini Meetup Grant

**Tags:** Financial Aid, Grants, Mini-Meetup Grant

---

### [AMC Holiday Grant 2023](https://amcsupport.org/amc-holiday-grant-2023/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## 2023 AMC Holiday Grant

 "I want to say Thank you so much to AMCSI for helping our family out this holiday season. 2023 has been a roller coaster of a year, and our family has experienced so much financial hardship, Ending the year with losing most of our belongings with our house flooding, and If that wasn’t enough, Our AMCer Jhay breaking his leg in December in a wheelchair accident, Causing a lot of missed work for me as a single Mom right around the holiday season. I am grateful to AMCSI for sponsoring our family for the holiday fund. The children were able to receive some nice gifts, We were able to put food on the table in a time of need and catch up on bills we had fallen behind on. Thank you so much! We are forever grateful for our AMC Family! We love you guys! Jhaylen personally says Thank you as he was able to get a new bed set and legos!" 

 ~ Jhaylen R. 

 “We have been members of AMCSI since 2012. Our daughter Red was born with Arthrogryposis multiplex congenita. We've been blessed to attend the annual conference since she was 5 years old. She just turned 18. The pandemic stole 2 years of conferences. This past year has paid a huge toll on our finances. We've also had a lot of medical and personal stuff going on. Both of our older cars have taken turns being in and out of the shop. At one point they were both unusable. We were drowning in debt. We put our pride aside and applied for the holiday grant. We were very surprised and appreciative when we found out we had gotten it. It took a lot of stress off of us. We were able to get stuff we needed as well as be able to buy her a couple of things. It was the lift we needed to get us back on our feet. We couldn't have done it without this grant from AMCSI <3 This organization has blessed us in so many ways. Physically, emotionally and now financially. We look forward to being able to go to conference again this year, we especially enjoy volunteering our time as well.” 

 ~ The Fisher’s 

##### Arthrogryposis Multiplex Congenita Support Inc. (AMCSI) is proud to offer assistance to AMC families in need this Holiday Season.

Please note grant guidelines are subject to change.

**Eligibility requirements for the AMC Holiday Grant:**

- Assistance is awarded to individuals with the diagnosis of arthrogryposis or to the direct (parent or legal guardian) family member of the affected individual.
- Current registered member of AMCSI
    - All applicants **MUST** be a current member of Arthrogryposis Multiplex Congenita Support Inc.
    - Our members help make the community give back grants possible for hundreds of our AMC families.
        **A limited number of scholarships for membership is available upon request.**
- Applicants must reside in the US or Canada
- Proof of diagnosed condition of arthrogryposis

**Program Details:**

**Funds**
A grant of $1000 will be awarded to approved grantee.
Funds can only be issued to the AMCer or parent/legal guardian of the AMCer. If your AMCer is under 18, this form MUST be filled out and signed by a parent/ legal guardian of the AMCer. If you are nominating a family, please provide your contact information as well.

**Deadline**
December 11, 2024

### AMC Holiday Grant Application Form Is Corrently Closed

##### All (required) (\*) documents must be sent to info@amcsupport.org

Your application will not be processed until all required items are received.
Please do not email to check on the status of your application. We will reach out you if further information is needed.

Funding for this grant is available thanks to our AMCSI Members, Friends & Family! Thank you so much for making this grant possible.

**Categories:** AMC Holiday Grant, Arthrogryposis, Financial Aid, Grants

**Tags:** AMC Holiday Grant, Financial Aid, Grants

---

### [Ward Foley - Scarman](https://amcsupport.org/ward-foley-scarman/)

**Published:** August 7, 2025
**Author:** Ted Houser

**Content:**

# AMC MEMORIAL
“A moment in our arms, a lifetime in our hearts.”

 ![](https://amcsupport.org/wp-content/uploads/2023/12/blue_wings_feet-300x155.png) 

 [  Bereavement Grant  ](https://amcsupport.org/bereavement-grant/) 

It is with great sadness that we share the passing of our beloved favorite friend, Ward Foley.

Ward left this world August 6, 2025, after living a life full of purpose, heart, and unwavering faith. For many years, Ward, affectionately known as Scarman, captivated AMC families and countless others with his raw honesty, deep compassion, and remarkable sense of humor.

He had a rare gift: the ability to make people laugh, think, and feel deeply, often all at once. Through his storytelling, he reminded us that life isn’t about appearances or perfection; it’s about connection, love, and faith. Whether he was cracking a joke, speaking about his mother with deep love, or reflecting on God, grief, and grace, Ward always spoke from the heart.

He loved his family and friends fiercely and often shared stories about the strength of his mother. “She was the strong one,” he would say. That deep empathy shaped the way he saw the world and the way he saw people. He passed that strength on to our AMC families, offering hope and encouragement when we needed it most.

Ward always looked for the good in others. He taught us that “unlike” does not mean “unable,” that “some days it helps just to be able to say, ‘I hurt,’” and that “asking for help can be just as important as helping others.”

His faith was not naive; it was bold. He didn’t pretend to have all the answers, but he trusted God through every question. As he once wrote: “This is about faith. Trusting in God is all we have.”

Ward reminded us what truly matters in the end, not money or accolades, but relationships.

We are heartbroken by his passing but comforted by the love he shared, the laughter he gave, and the hope he carried into every room. His light will forever guide us.
“We are not given a good life or a bad life. We are given a life. It’s up to us to make it good or bad.” ~ Ward Foley (Scarman)

Thank you, Ward, for making our lives better just by being in them. Rest peacefully, dear friend.💙

**If you would like to contribute photos to Ward’s memorial gallery, please email us at: **

 [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-100.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-73.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-34.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-89.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-48.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Ward-Foley-Scarman-51.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-10.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-37.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-18.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-161.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-150.jpg) [ 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](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-88.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-138.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-74.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-33.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-162.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-86.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-157.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-9.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-156.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-12.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-163.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-81.jpg) [ 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](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-145.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-50.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-92.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-6.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-56-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-127.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-146.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-20.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-76.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-67.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-139.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-164.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/08/Ward-Foley-Scarman-46.jpg)

**Categories:** Find Supprt, Memorial

**Tags:** Memorial, Scarman

---

### [AMC Memorials](https://amcsupport.org/amc-memorials/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

# AMC MEMORIAL
“A moment in our arms, a lifetime in our hearts.”

 ![](https://amcsupport.org/wp-content/uploads/2023/12/blue_wings_feet-300x155.png) 

 [  Bereavement Grant  ](https://amcsupport.org/bereavement-grant/) 

Having a loved one diagnosed with arthrogryposis is a journey filled with challenges, strength, and profound emotion. For some in our community, that journey has included the unimaginable heartbreak of loss.

Over the years, we’ve stood together—celebrating milestones, offering support during the hardest days, and grieving side by side.

Each year at our annual conference, we honor the lives of those in our community who have passed with a special memorial section, including a Memory Tree, Slideshow, and Scrapbook.

If you know of a loved one in the AMC community whom we may have missed, please reach out to us at **** so we can ensure their memory is included.

To the families who have experienced this loss:

**Our hearts are with you.** 
We carry the memory of your AMCer with us always. Their light continues to shine through the love we share, the connections we build, and the enduring spirit of our AMC family.

AMCSI offers a **bereavement grant** for families in need of assistance with funeral or burial expenses.

**To learn more or apply, please visit: [**Bereavement Grant**](https://amcsupport.org/bereavement-grant/)**

If you would like to add your loved one to our memorial page and direct memorial donations to AMCSI, we are here to help. Please email us at **** for assistance with setting up the page.

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/Ward-Foley-Scarman-52.jpg) ](https://amcsupport.org/ward-foley-scarman/) 

**Ward Foley**
August 6, 2025

 [  Memorial  ](https://amcsupport.org/ward-foley-scarman/) 

 ![Rabeca](https://amcsupport.org/wp-content/uploads/2023/12/Rabeca.jpg) 

**Rebeca A. Patton**
October 27, 1977 ~ June 30, 2025

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/Olivia-Grace-Wagner_memorial-900.jpg) ](https://amcsupport.org/brian-wayne-page/) 

**Olivia Grace Wagner** 
May 3, 2023 – December 19, 2024

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/Brian_Wayne_Page-2.jpg) ](https://amcsupport.org/brian-wayne-page/) 

**Brian Wayne Page**
*February 7, 2013 – January 30, 2025*

 [  Donate  ](https://amcsupport.org/brian-wayne-page/) 

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Ciaran_Green_Headshot.jpg) 

**Ciaran Green**
*March 2, 2000 – December 7, 2022*

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Zoe-Margaret-Jacobs.jpg) 

**Zoë Margaret Jacobs**
*August 14, 2012 – April 16, 2023*

 ![](https://amcsupport.org/wp-content/uploads/2023/12/paul_john_eterno.jpg) 

**Paul John Eterno**
*July 21, 1986 – May 27, 2023*

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Mireille-Alethia-Griepentrog-600.jpg) 

**Mireille Alethia Griepentrog**
*September 23, 2019 – April 5, 2023*

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Nicholas_Casey_Bunch_Evans.jpg) 

**Nicholas Casey Bunch Evans**
*November 21, 2008 – June 3, 2023*

 ![](https://amcsupport.org/wp-content/uploads/2023/12/lydia-shea-midlothian-va-obituary.jpg) 

**Lydia Peyton-Irene Shea**
*November 28, 2018 – September 15, 2021*

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Lydia_Joy_Morris_Bloom.jpg) 

**Lydia Joy Morris-Bloom** *July 1, 2020 – July 4, 2020*

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Matt-Rangel-600.jpg) 

**Matt Rangel**
*September 23, 1966 – November 14, 2020*

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Isabel_Rose_Sander.jpg) 

**Isabel Rose Sander**
*2005 – 2019*

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Reid_Raquell.jpg) 

**Raquell Nicole Reid**
*August 6, 2018*

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Olivia_Helen_Mockeridge-600.jpg) 

**Olivia Helen Mockeridge**
*January 19, 2016 – August 24, 2016*

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Ezra-Nelson-600.jpg) 

**E’zra Nelson**
*April 22, 2010 – April 15, 2015*

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Caleb-Mayo.jpg) 

**Caleb Michael Mayo**
*December 12, 2013 – January 19, 2014*

**Ethan Alexander Garza**
January 12, 2016 – April 3, 2023

**Steve Chambers**
November 27, 1961 – December 29, 2020

**August Edward Pierce**
July 1, 2020 – July 4, 2020

**Lainey Marie Horning**
October 17, 2010 – April 21, 2019

**Emma Jean Schmidt**
August 6th 2018

**Jared J. Orner**
August 2, 2016

**Marisa Rose Border**
August 31, 1994 – October 31, 2016

**Andrea Nicole “Nickie” Dolan**
September 12, 1990 – January 25, 2014

**Zander Christian Young**
December 26, 2012 – February 4, 2014

**Laughton Joseph**
May 11, 2014

**Jeanne Bozenhard**
October 24, 1967 – May 28, 2014

**Gabriella “Ella” Lee Tucker**
May 14, 2014 – June 4, 2014

**Lua March Souz**
March 5, 2014 – October 12, 2014

**Claire Jane Cocklin**
February 19, 2010 – December 14, 2014

**Ian Boyd Hixson**
September 30, 2005 – Jan 16, 2013

**Kali Pauline Heglmeier**
August 23, 2012

**Payton Leigh Biddy**
April 22, 2010 – August 28, 2012

**Henry Dobrovits**
September 24, 2010 – November 28, 2012

**Cynthia Ann Sneddon**
September 2, 1981 – August 11, 2011

**Zaya Lynn Crofut**
April 29, 2011 – November 11, 2011

**Sarah Rose Tricarico**
August 12, 2010 – August 30, 2010

**Karrington Riley Reynolds**
August 21, 2006 – December 12, 2010

**Leah Catherine Tamash**
January 10, 2009 – January 30, 2009

**Alexis lrelyn Pendak**
November 20, 2008 – March 12, 2009

**Jameson McCormick**
April 17, 2009 – April 18, 2009

**Alannah Nicole Marshall**
November 4, 2008 – September 11, 2009

**Arthur Swales**
April 5, 2007

**Diana**
March 12, 2007 – April 16, 2007

**Rain Maia**
March 16, 2006 – November 30, 2006

**Caitlyn Rose Rout-Langdale**
July 31, 2005 – October 12, 2005

**Savannah Nicole Lehi**
November 16, 2005 – December 1, 2005

**Kendale John McCormick**
January 3, 2001 – January 3, 2001

**Nicholas John Martin**
1998

**Patrick William Martin**
1997

**Rylee Gene Mann**

**Klara Handke**

**David Border**

**Marissa Border**

**Jake Charles Cohen**

**Maxwell Samuel Benvie Taylor**

**Jared Orner**

**Emma Jean Schmidt**

**Ian Hixson**

**Barbara Waite**

**Patty Clarke**

**Categories:** AMC Memorials, Arthrogryposis, Where To Start

**Tags:** AMC Memorials, Where To Start

---

### [Play Without Limits](https://amcsupport.org/play-without-limits/)

**Published:** June 24, 2025
**Author:** Ted Houser

**Content:**

![Play Without Limits Logo](https://amcsupport.org/wp-content/uploads/2025/06/Play-without-limits_logo-1080.png) 

In 2024, Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) proudly partnered with TRAILS Adaptive—the global adaptive program at University of Utah Health. At the 19th annual AMCSI Conference in Atlanta, GA, TRAILS team members and volunteers introduced adaptive sports to attendees of all ages. This initiative aimed to build comfort and awareness among individuals with physical disabilities in accessing adaptive sports and recreation.

Research shows individuals with physical disabilities are at greater risk for depression and isolation (Noh et al., 2016). Adaptive sports promote physical health, community engagement, and psychosocial well-being (Brown et al., 2020; Tow et al., 2020). The Atlanta program proved transformative—participants described “unforgettable moments” like wake surfing and adaptive mountain biking, and highlighted the kindness and collaboration within the community.

To build on that success, Play Without Limits will return for the 20th AMCSI Conference, to be held in Norfolk, VA. AMCSI seeks to partner with Virginia-based adaptive sports organizations, Beyond Boundaries and Sportable to provide access, education, and empowering experiences for individuals with AMC. Funding will support lodging, transportation, equipment rentals, and partnership fees.

Play Without Limits will give individuals with Arthrogryposis Multiplex Congenita and their families the opportunity to explore adaptive sports in a safe, supportive setting. With your support, we aim to create lifelong memories and inspire continued engagement in inclusive recreational activities.

 [  Support Play Without Limits  ](https://givebutter.com/Play-Without-Limits) 

### Other Sources of Funding

The AMCSI conference is funded through multiple sources: 70% from attendee registrations, 20% from the AMCSI store and silent auction, 7% from sponsorships, and 3% from vendor table fees and ads. Remaining conference costs are covered by AMCSI’s general fund.
Currently, AMCSI is actively seeking sponsorships for Play Without Limits. Without dedicated support from grants or sponsorships, we will not be able to offer this program in 2025.

### Geographic Area Served

The 2025 AMCSI Conference will be held in Norfolk, VA, with outdoor activities located in Norfolk and Virginia Beach. Attendees include individuals from across the U.S. and internationally. Play Without Limits will host events in local areas and provide access to adaptive sports equipment and information on-site.

### Volunteer Opportunities

**Volunteer roles include:**

- General Volunteers: Assist with conference set-up, breakdown, and vendor support
- Greeters & Door Checkers: Welcome attendees and check registration badges at breakout sessions
- Play Without Limits Volunteers: Provide participant support during adaptive sports sessions (under TRAILS or Virginia leadership)
- Media Support: Capture event photography/videography and manage social media (under AMCSI media team)
- First Aid & Safety: Certified volunteers provide medical assistance and help enforce safety protocols

### 
Recognition & Visibility

**Partners will be recognized through:**

- Social media promotion
- Printed materials
- Conference slides
- Verbal acknowledgments during the event
- Optional speaking opportunity if desired by sponsorship representatives

### Associated Event

Play Without Limits is part of the 20th Annual AMCSI Conference. The conference includes educational breakout sessions, peer support, and presentations by volunteer medical professionals—including surgeons, therapists, and other experts—who provide valuable information to individuals and families affected by AMC.

### Impact Details

General Audience and Demographics Served:
AMCSI serves hundreds of individuals diagnosed with Arthrogryposis Multiplex Congenita (AMC), a rare neuromuscular condition that affects approximately 1 in 3,000 live births. With over 500 different types identified, AMC presents in diverse ways. Many of the children and youth we serve use mobility aids such as wheelchairs, walkers, crutches, leg braces, and prosthetics.

Play Without Limits represents a unique and, for many, once-in-a-lifetime opportunity—especially for those without access to adaptive sports programs in their local communities. AMCSI is deeply committed to inclusion and does not discriminate on the basis of race, age, sex, or disability. Our programs serve individuals of all ages and backgrounds.

**Anticipated Outputs and Outcomes:**

- Engage approximately 85 individuals with AMC and their families
- Offer up to 10 adaptive sports sessions (e.g., wake surfing, climbing, mountain biking)
- Partner with at least 4 adaptive sports organizations
- Recruit and train approximately 35 volunteers

 **Measured Outcomes:**

- Increased knowledge and confidence through pre- and post-event surveys
- 65% growth in participation from 2024
- Positive feedback regarding interest and engagement in adaptive sports
- Establishment of a replicable model for future AMCSI adaptive programming

**Long-Term Impact:**

Play Without Limits supports community inclusion, confidence-building, and ongoing participation in adaptive recreational activities—directly contributing to the vitality and well-being of the AMC community.

 [  Support Play Without Limits  ](https://givebutter.com/Play-Without-Limits)

**Categories:** Arthrogryposis

**Tags:** Adaptive Sports, Play Without Limits

---

### [Adoption Grant](https://amcsupport.org/adoption-grant/)

**Published:** June 17, 2025
**Author:** Ted Houser

**Content:**

## About the AMCSI Adoption Grant

The AMCSI Adoption Grant supports families adopting a child diagnosed with Arthrogryposis Multiplex Congenita (AMC). Please review the following eligibility requirements and important details before applying:

- A **completed home study** is required at the time of application.
- The child must have a **diagnosis of AMC**, confirmed through medical documentation or your adoption agency.
- The adoption is expected to **finalize within 12 months** of the application date.
- **Grant awards range from $500 to $2,500**, determined by available funds, demonstrated financial need, and unanimous approval from the AMCSI Adoption Committee during its monthly review.
- **Funds are distributed once the adoption is finalized.**
- If you are adopting **multiple children with AMC**, a separate application must be submitted for each child.
- Please ensure that your caseworker’s or agency’s **contact details are accurate and include a working phone number**, as we will contact them during the review process.

### Adoption Grant Submission Form

##### All (required) (\*) documents must be sent to info@amcsupport.org

Your application will not be processed until all required items are received. Please avoid emailing us to ask about your application status — we will contact you if further information is needed.

Funding for this grant is available thanks to our AMCSI Members, Run 4 Jack, Rogers Run, 253 for AMC, Valerie Pepe’s AMC Bowl-A-Ton, Valerie Pepe’s AMC Music Festival and AMCSI’s Awareness Day campaign, Facebook birthday fundraisers & T-shirt sales.

      Full names of all parties adopting child 

  First Name   

  Middle Name   

  Last Name   

  First Name   

  Middle Name   

  Last Name   

  Email   

  Phone   

  Address   

  Address 2   

  City   

  State   

  Zip   

  Name of caseworker   

  Phone   

  Agency/Organization Address: Street   

  City   

  State   

  Zip   

  Date of completed homestudy   

  Date of completed adoption   

  Estimated date of completed adoption   

  Was your adoption international or domestic?   

  Select One International Domestic  

  Name of agency   

  Is the adoption from foster care?  Yes No

  Is the child currently in your care?  Yes No

 Arthrogryposis multiplex congenita (AMC) is defined as multiple joint contractures present at birth. A person must have three or more joints affected in two or more areas of the body to receive the diagnosis of AMC. A joint contracture is joint that lacks normal range of motion. 

  Has your child been diagnosed with arthrogryposis multiplex congenita (AMC)?  Yes No

 Who diagnosed your child? (If the doctor is unknown, please put the name of the organization your child is listed with.) 

  Doctors' Name   

  Agency/Organization   

  What type of AMC does your child have? *(If unknown, write UNKNOWN.)*   

  Child’s age?   

  Annual household income?   

  Estimated total adoption cost?   

 The following questions are optional: 

  What made you decide to adopt a child with AMC?   

  Did you know anything about AMC before starting the adoption process? If so, what?   

  Do you have any questions about AMC for us?   

  What would this grant mean to you?   

  Would you be willing to update AMCSI on your adoption journey?   

  Select One Yes No  

  Would you be willing to provide AMCSI an adoption testimony?   

  Select One Yes No  

  Would you be interested in an adoption feature in our newsletter?   

  Select One Yes No  

---

 **AMCSI Consent to Release Confidential Information** 

 “I/We hereby authorize AMCSI to obtain and release the following information from the adopting party’s caseworker:

1. All materials related to the child(ren) being adopted
2. All personal information
3. All personal financial information, including proof of expenses related to the current adoption(s)

If any of this information is not provided by the caseworker, I/we agree to provide it directly and promptly.” 

  Your Full Name/Signature of Parent   

  Date   

  Your Full Name/Signature of Parent   

  Date   

 Please submit your completed application by hitting the SEND button below, and if you have any questions, please email us at – **info@amcsupport.org** 

   Send

**Categories:** Adoption Grant, Financial Aid, Grants

**Tags:** Adoption, Grants

---

### [NICU Packet](https://amcsupport.org/nicu-packet/)

**Published:** April 28, 2025
**Author:** Ted Houser

**Content:**

### Thank you so much for reaching out!

We’re excited to share our NICU Packet with you — a special welcome guide for families preparing for or caring for a baby with Arthrogryposis Multiplex Congenita during pregnancy & early infancy.
*(for medical professionals & new parents)*

To download your copy, simply right-click the button below & select “Save As.”

We’re here for you every step of the way!

 [  NICU Packet PDF  ](https://amcsupport.org/amc_information_packet/)

**Categories:** New Dignosis, Where To Start

**Tags:** AMCSI, New Diagnosis, NICU Packet

---

### [Research Grant](https://amcsupport.org/research-grant/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## Research Grant

Part of AMCSI’s mission is to support families and individuals affected by arthrogryposis multiplex congenita (AMC) by providing resources that will assist in the treatment and diagnosis of AMC. Supporting professionals engaged in AMC specific research is key to reaching this goal.

**Limitations**

- Grant to be issued annually.
- Subsequent grant requests for the same project must be submitted no sooner than the next calendar year when the grant funds renew.
- For ongoing grant requests, a set of benchmarks will be presented to and approved by AMCSI’s research grant committee in advance of subsequent applications. All benchmarks must be either met or have significant progress made for the committee to consider awarding future requests. All benchmarks for subsequent applications will be decided by the Research Grant Committee.

**Focus Area**
Research must be AMC-specific. No exceptions.

**Amounts**
Awarded amounts will be between $500-$2500 depending on available funds.

**Eligibility Requirements**

- Must have a reputation in medicine, science, or other advanced field. (This grant is not for high school or undergrad projects.)
- A report on the project at the completion of the grant year, as well as interim updates during the year, will be mandatory.

**Review Process** The AMCSI Research Grant committee will meet to discuss grant requests once a month. Grants will be awarded at committee discretion based on available funds.

### Research Grant Application Form

##### All (required) (\*) documents must be sent to info@amcsupport.org

Your application will not be processed until all required items are received.
Please do not email to check on the status of your application. We will reach out you if further information is needed.

Funding for this grant is available thanks to our AMCSI Members, Run 4 Jack, Rogers Run, 253 for AMC, Valerie Pepe’s AMC Bowl-A-Ton, Valerie Pepe’s AMC Music Festival and AMCSI’s Awareness Day campaign, Facebook birthday fundraisers & T-shirt sales.

       Name   

  Email   

  Phone   

  Address   

  Address 2   

  City   

  State   

  Zip   

 **Letter of Intent** 
Provide a brief description of the research being conducted. 

  What is your research question?   

  What is the background information on the research?   

  What research method will be used?   

 **Projective Narrative**
Provide an in-depth explanation of the research project. 

  What are the research questions and aims for the project?   

  Include a brief literature review of the research.   

  Provide a description of the theories.   

  What is the relevance of policy or practice?   

  State the specific hypotheses.   

  Include a thorough description of the research methods: research design, constructs, measures, and data sources   

  Include a data analysis plan.   

  Please include any photos, logos, or graphics   

 **Budget Plan** 
How will the funds needed be utilized? 

  Provide a projected total cost.   

  Provide a breakdown of need.   

  I certify that, to the best of my knowledge and ability, the information included in this application, is accurate as of the date of this application signed below. (required)  Yes No

  Signature   

  Date   

   Send

**Categories:** Arthrogryposis, Financial Aid, Grants, Research Grant

**Tags:** Financial Aid, Grants, Research Grant

---

### [Bereavement Grant](https://amcsupport.org/bereavement-grant/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## Bereavement Grant

AMCSI’s bereavement grant is available to any immediate family member of an AMCer who has passed away.

AMCSI will provide one grant of $500 for funeral expenses to the surviving spouse, parent/guardian or children of an individual with a confirmed medical diagnosis of arthrogryposis multiplex congenita.

These funds may be used to assist the family with any funeral expenses.

AMCSI’s Bereavement Fund is open to all members and nonmembers of AMCSI.

There is no age limit for the AMCer.

Funds must be dispersed to immediate family members only. Immediate family members are defined as spouse, parent/guardian or children.

The Bereavement Fund is open to all U.S. residents.

This application must be signed and returned with supporting documentation of the individual’s diagnosis and death.

### Bereavement Grant Submission Form

##### All (required) (\*) documents must be sent to info@amcsupport.org

Your application will not be processed until all required items are received.
Please do not email to check on the status of your application. We will reach out you if further information is needed.

Funding for this grant is available thanks to our AMCSI Members, Run 4 Jack, Rogers Run, 253 for AMC, Valerie Pepe’s AMC Bowl-A-Ton, Valerie Pepe’s AMC Music Festival and AMCSI’s Awareness Day campaign, Facebook birthday fundraisers & T-shirt sales.

       Name   

  Email   

  Phone   

  Address   

  Address 2   

  City   

  State   

  Zip   

  AMCer’s Name   

  Date of birth & death   

 AMCSI would like to extend our sincerest condolences and love to your family.

We would also like to offer to put your AMCer’s memorial picture (made by you or a member of the Board) on our AMC Angel memorial page located at a **[amcsupport.org/amc-memorials/](https://amcsupport.org/amc-memorials/)**. 

  Photo Upload (Image file must be under 10mg in file size)   

   Send

**Categories:** Arthrogryposis, Bereavement Grant, Financial Aid, Grants

**Tags:** Bereavement Grant, Financial Aid, Grants

---

### [Contact Us](https://amcsupport.org/contact-us/)

**Published:** January 20, 2024
**Author:** Ted Houser

**Content:**

## Contact Us

P.O. Box 6291
Spartanburg, SC 29304

1-805-55-AMCSI (1-805-552-6274)
[info@amcsupport.org]()

  [ Facebook  ](https://www.facebook.com/AMCSUPPORT/)   [ Instagram  ](https://www.instagram.com/amcsupport/)   [ Youtube  ](https://www.youtube.com/channel/UChuPEFwGlk7M5PHQk4_F7uQ)   [ Tiktok  ](https://www.tiktok.com/@amcsupport)   [ Linkedin  ](https://www.linkedin.com/company/amcsupport/)   [ Twitter  ](https://twitter.com/amcsupport)  

### Contact Us Form

       Name   

  Email   

  Phone   

  Address   

  Address 2   

  City   

  State   

  Zip   

  Message   

   Send

**Categories:** About Us, Contact Us

**Tags:** About Us, Contact Us

---

### [Volunteer](https://amcsupport.org/volunteer/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

##### Help us make a difference.

## Volunteer

At Arthrogryposis Multiplex Congenita Support, Inc. we believe in teamwork. For this reason our volunteers play a vital role in helping us make a difference for people living with arthrogryposis, their family and caregivers.

Volunteer opportunities include:

- joining our Board of Directors team
- being part of a committee
- helping us fundraise
- and more!

We are always looking for enthusiastic individuals, who are passionate about helping others, and will work with you to identify volunteer opportunities that best fit your interests.

By investing your time and talent, you can be part of AMCSI’s dream and help change the lives of many.

If you are interested in joining our team and becoming a volunteer, fill out the form below or send us an email at ****.

##### We look forward to working with you!

### Volunteer Registration

##### All (required) (\*) documents must be sent to info@amcsupport.org

Your application will not be processed until all required items are received.
Please do not email to check on the status of your application. We will reach out you if further information is needed.

##### Thank you for your interest in helping us make a difference.

       Name   

  Email   

  Are you a member of AMCSI? (required)  Yes No

  Areas of interest (required)  Regional Director State Representative Outreach Fundraising Social Media Marketing Volunteer Coordinator Virtual Assistant Zoom Moderator Other

  If you chose 'other' above, please write your answer here:   

  State representatives will assist in supporting AMC families in their local areas. Finding local resources and connecting with other AMC families. If you have a large AMC community in your state, You will also be responsible for hosting a mini meetup in your area. If you are interested in being a state representative, which state would you like to represent. Some states can have up to two representatives. You may be asked to communicate with your state representative and visit area hospitals to assist in raising awareness for #arthrogryposis.   

  AMCSI has divided the US into 9 regions. Each region could have 5-10 states. You would be in charge of communicating and working closely with each state rep. Regional directors will form a close relationship with specialists treating arthrogryposis. What state are you located in?   

  AMCSI will consider International Representatives if there is enough interest. What country are you from and are you willing to promote and raise awareness for #arthrogryposis in your country?   

  Please list other organizations you volunteer for presently or in the past.   

  Are you willing to sign a confidentiality agreement? (required)  Yes No

  Are you willing to submit a background check?  Yes No

  Are you interested in serving on AMCSI's Board of Directors? (required) 

Please submit your interest letter and resume to info@amcsupport.org. Must be a current paid member in good standing to apply. 18 years of age and older.  Yes No

  Are you interested in the Junior Ambassador position? (required)

The JA position is a 1 year term. You are expected to fundraise for AMCSI, raise awareness, visit AMC families, be active on all social media platforms, promote AMCSI campaigns. This position is available to AMCers 5 and older.  Yes No

  Briefly describe why you would be interested in being AMCSI's next Junior Ambassador

Please include your social media handles:   

  List any special training or skills that you believe would help AMCSI   

  How often are you willing to volunteer for AMCSI? (required)  Once a day Once a week Once a month Once a year Anytime you need me!

  If you are not interested in any of the above, would you be willing to host a Facebook birthday fundraiser for AMCSI to raise funds for our community give back programs? (required)  Yes! We would love to help fundraise for grant programs. No, thanks, but I will donate through your website.

   Send

**Categories:** Arthrogryposis, Get Involved, Volunteeer

**Tags:** Get Involved, Volunteeer

---

### [This Is How I … Series](https://amcsupport.org/this-is-how-i-series/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

![](https://amcsupport.org/wp-content/uploads/2023/12/This-Is-How-I_logo-900-768x152.png) 

“This Is How I …” video series & share some of the ways those with AMC get things done!🤗✨💙

**🎉 How to Participate:** 1️⃣ Create a video that reveals “This Is How I…” do something, for example driving.
2️⃣ Fill out the form below & send us your video via email at info@amcsupport.org or if you are having issues emailing it, upload it using https://wetransfer.com to our email address.

**🔍 What Happens Next:** Our dedicated team will review your videos, & they will be featured in our “This Is How I…” series. 🌍

Your journey will be celebrated on our YouTube channel, website, and social media platforms!

##### This Is How I…

👤 In our sixth episode, watch Jenny as she shows us how to use the Telestilk Stylus! 💙

**[View other Assistive Devices Here](https://amcsupport.org/assistive-devices/)**

##### This Is How I…

👤 In our fifth episode, watch Chris face painting with his mouth at the Greenville, SC mini meetup! 🖌️🎨💙

##### This Is How I…

👤 In our fourth episode, watch Barbara W. playing Tchaikovsky Canzonetta on her violin! We had the pleasure of having her on [**Together Tuesdays**](https://amcsupport.org/together-tuesdays/). We hope you enjoyr her playing as much as we do! 🙌👩🏻‍🦼💙

##### This Is How I…

👤 In our third episode, watch Felicity as she shows off her soccer skills! 🙌👩🏻‍🦼💙

##### This Is How I…

👤 In our second episode, watch Ted shows us how he drew the bumble bee that was then converted into a digital piece of art used on the 2023 June 30th t-shirt design & in the 18th Annual AMCSI Conference Program Design in Columbus, Ohio Jul 3-5, 2023 designs! 🙌✍🏻💙

##### This Is How I…

👤 In our first episode back, watch Marty Marty Sheedy, the founder of Project Scissorgait Foundation, demonstrate how he conquers the open road with style, proving that nothing can hold him back, not even Arthrogryposis! 🙌🛣️🚙💙

### This Is How I... Submission

##### All (required) (\*) documents must be sent to info@amcsupport.org

Your application will not be processed until all required items are received.
Please do not email to check on the status of your application. We will reach out you if further information is needed.

       Name   

  Email   

  Video Download Link   

 Send video using **[WeTransfer](https://wetransfer.com/)** *(Please use info@amcsupport.org when sending a video file with WeTransfer)* 

  Please describe or tell us about your Video:   

   Send

**Categories:** Get Involved, This Is How I … Series

**Tags:** Get Involved, This Is How I … Series

---

### [Thank you](https://amcsupport.org/thank-you/)

**Published:** April 22, 2025
**Author:** Ted Houser

**Content:**

## Thank you.

Your submission has been received.

**Categories:** Arthrogryposis

**Tags:** Thank you

---

### [Research](https://amcsupport.org/research/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## Research

Research is key in unlocking the unique and complex door to arthrogryposis multiplex congenita. AMCSI has created a research fund to help with financial assistance to our medical community with a special interest in researching arthrogryposis multiplex congenita.

Also, to learn more about adults with arthrogryposis connecting to a community of hope where they can be a part of innovative research that informs how we live and age, please visit:: amcresearch.org

#### Epigenetic signature of monozygotic twinning: a tool to study the vanishing twin syndrome and its connection to Amyoplasia

**Background**

- Amyoplasia is a non-genetic form of Arthrogryposis
- 10-fold increase of Amyoplasia in individuals that are part of an identical (monozygotic) twin pair
- Identical twins carry a unique and stable epigenetic signature

**Hypothesis**
Imbalanced blood flow (twin-twin transfusion) during the development of identical twins may contribute to Amyoplasia in one twin, while singletons with Amyoplasia may have experienced a vanishing twin.

**Study Design**
Generate epigenetic data from 30 cheek swab samples collected from Amyoplasia. (singletons, twins, and triplets) and vanishing twin cases

**Anticipated Results**
If identical twinning is the cause of Amyoplasia, individuals born alone should have an epigenetic signature more similar to identical twins than to controls

#### Interested in participating?

The study now available for enrollment via this link:
**[redcap.avera.org](https://redcap.avera.org/redcap/surveys/?s=W4DFTRCLRFJYAYKK)**

#### Study Investigators

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Beck_Jeffery1-500.jpg) 

**Dr. Jeffrey Beck**

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Judith_Hall-500.jpg) 

**Dr. Judith Hall**

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Jenny-van-Dongen-500.jpg) 

**Dr. Judith Hall**

###### Sponsored By

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/amsterdamreproductionanddevelopment.png) ](https://www.amsterdamumc.org) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/AIHGlogo.JPG) ](https://www.avera.org) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/NTR.png) ](https://tweelingenregister.vu.nl/) 

 ![](https://amcsupport.org/wp-content/uploads/2023/12/TGC.jpg) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/VU.png) ](https://vu.nl/nl) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/researach-AMCSI_logo.png) ](https://amcsupport.org/) 

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/university-of-deleware-logo.jpg) ](https://www.udel.edu/) 

The Move to Learn team at the University of Delaware (UD) has a new study aimed to help researchers understand people’s dressing needs when they have difficulty using both of their arms and hands.

**Why are we doing this study?**
Dressing is an important task we all do multiple times each day. We know that this task can be very hard to complete independently for people who have difficulty moving their hands or arms. We want to create resource lists that share solutions people have found to dressing challenges. We also want to learn more about how researchers can create new solutions, such as new types of laces or zippers, to help people dress on their own.

**Who can participate and what is involved?**
People 18 years or older can participate if they: 1) have trouble using both arms and hands and need help or a lot of time to open and/or close fasteners like buttons, zippers, snaps, or laces when dressing, 2) can communicate in English, 3) have good thinking and speaking skills, 4) and are available to come to STAR Campus at UD for one, approximately 2-hour visit. Participants in this study will be asked questions about their challenges with dressing and solutions they have found. They will also have their arm and hand strength, flexibility, and function tested.

**How can I get more information about the project?**
If you would like more information about the project, please contact Jennifer Marmon, , or 302-831-4615. If you have any questions

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/research-move-2-learn-logo.jpg) ](https://sites.udel.edu/move2learn/) 

 ![](https://amcsupport.org/wp-content/uploads/2023/12/height_and_weight-1024x683.jpg) 

### Height & Weight

Looking for Height and Weight Data for Younger AMCers.

 [  Learn More  ](https://amcsupport.org/height-and-weight/) 

 ![](https://amcsupport.org/wp-content/uploads/2023/12/long_term_study-1024x650.jpg) 

### Long-Term Study

Study to determine the long term health outcomes of individuals born with arthrogryposis.

 [  Learn More  ](https://www.amcresearch.org/) 

 ![](https://amcsupport.org/wp-content/uploads/2023/12/research_grant-1024x683.jpg) 

### Research Grant

Doing research for arthrogryposis? Download the AMCSI Research Grant here.

 [  Learn More  ](https://amcsupport.org/research-grant/) 

 ![](https://amcsupport.org/wp-content/uploads/2023/12/covid_survey_placeholder-1024x683.jpg) 

### Covid Survey

We are doing a quick survey to understand the impact the years have had on people with AMC.

 [  Learn More  ](https://amcsupport.org/covid-research)

**Categories:** Arthrogryposis, Find Supprt, Research

**Tags:** Find Support, Research

---

### [Global Support / World Map](https://amcsupport.org/global-support-world-map/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

### Global Resources

 - [OT Resource PDFs For Doctors](https://amcsupport.org/occupational-therapy/)

 - [OT Resource PDFs For Doctors](https://amcsupport.org/occupational-therapy/)

## Global Support Groups

 [ ![Alliance Arthrogrypose in France](https://amcsupport.org/wp-content/uploads/2023/12/Vivre-Avec-H-e1657629194766-980x372-2.jpg) ](https://www.arthrogrypose.fr/p/) 

**ALLIANCE ARTHROGRYPOSE (FRENCH)**

The association was created in 2005 and aims to:
• To allow people with arthrogryposis and their entourage to exchange their experiences
• To provide technical and moral assistance to families facing arthrogryposis
• Contribute to the medical research effort and the improvement of care practices related to arthrogryposis
• To promote the collection of information and its dissemination to the persons concerned and to the medical profession
• To promote and maintain links with associations related to “arthrogrypose” abroad
In 2022, the Arthrogrypose Alliance is the only French-speaking association related to Arthrogrypose.

To learn more about us, please visit: [**Alliance Arthrogrypose**](https://www.arthrogrypose.fr/p/)

##### Documentary: [Living with Arthrogryposis *(en)*](https://www.arthrogrypose.fr/p/documentary-living-with-arthrogryposis-en/#)

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Arthrogryposis-Group-Of-New-Zealand-TAGNZ.jpg) 

**ARTHROGRYPOSIS GROUP OF NEW ZEALAND (TAGNZ)**

We are a registered Charitable Trust (CC54932) run by a board and provide support and assistance to those living with AMC and family, friends & supporters.

To learn more about us, please visit: [**TAGNZ.ORG.NZ**](https://tagnz.org.nz/)

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Spain-AMC-Group-900.jpg) 

**ASOCIACIÓN DE ARTROGRIPOSIS MULTIPLE CONGENITA ESPAÑA**

We are a state-level non-profit association, declared a public utility entity. It was founded in Spain in 2014 with the hope of pooling resources, strengthening interpersonal relationships with affected families and entities related to Arthrogryposis.

To learn more about us, please visit: [**artrogriposis.org**](https://artrogriposis.org/asociacion/)

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Fundacion-AMC-Colombia.jpg) 

**Fundación AMC Colombia**

To learn more about us, please visit: [**Fundación AMC Colombia**](https://www.facebook.com/fundacionamccolombia)

 ![](https://amcsupport.org/wp-content/uploads/2023/12/TAG-full-logo-800x250-2.png) 

**The Arthrogryposis Group**

Our goal is the same as is it always was: To reach out to as many of them as possible to ensure they and their families know they are not alone, to provide them with support, information and the benefit of others’ experience and generosity.

To learn more about us, please visit: [**The Arthrogryposis Group**](https://arthrogryposis.co.uk)

 ![](https://amcsupport.org/wp-content/uploads/2023/12/cropped-AMCJPG-6-finland.png) 

**AMC Finland**

AMC Ry is an association that offers information and peer support about the diagnosis of AMC, i.e. Arthrogryposis multiplex congenita (Q74.3/ICD-10). In Finnish, the diagnosis is often known by the names: Congenital osteoarthritis and AMC.

To learn more about us, please visit: [**AMC Finland**](https://www.amc.fi)

### [Interactive Map Of Arthrogryposis](https://www.diseasemaps.org/arthrogryposis/?fbclid=IwAR1QMK76lw5hyp2CuUmormoAEJBbyaTtzqYc2WRkVZJHChBFHClneIxbmok)

 [ ![](https://amcsupport.org/wp-content/uploads/2023/12/interactive-map-of-arthrogryposis-1024x387.jpg) ](https://www.diseasemaps.org/arthrogryposis/?fbclid=IwAR1QMK76lw5hyp2CuUmormoAEJBbyaTtzqYc2WRkVZJHChBFHClneIxbmok)

**Categories:** Arthrogryposis, Find Supprt, Global Support / World Map

**Tags:** Find Support, Global Support / World Map

---

### [Brian Wayne Page](https://amcsupport.org/brian-wayne-page/)

**Published:** January 31, 2025
**Author:** Ted Houser

**Content:**

**Brian Wayne Page**
*February 7, 2013 – January 30, 2025*

 ![](https://amcsupport.org/wp-content/uploads/2023/12/Brian_Wayne_Page-2-1024x683.jpg) 

 [  Donate  ](https://givebutter.com/aBjiU1) 

**Brian Wayne Page** – your light will forever shine in our hearts.

Brian touched the lives of so many in our AMC community, leaving behind love, laughter, and cherished memories. His journey inspired us all, and his spirit will continue to guide us.

His incredible mother, Lashell, poured her heart into volunteering alongside our dedicated Loon Crew, creating unforgettable experiences for children at our annual conferences. His father, Robert, openly shared the joys and challenges of raising Brian, offering comfort and connection to so many AMC families.

In honor of Brian’s beautiful legacy, we will continue to serve our AMC community through grants and scholarships, ensuring his impact is felt for generations to come.

In lieu of flowers, the family asks that donations be made to **Arthrogryposis Multiplex Congenita Support, Inc.**, helping to carry forward the mission that meant so much to Brian and his family.

 [ ](https://amcsupport.org/wp-content/uploads/2025/01/Brian-Wayne-Page-4-scaled.jpeg) [ ](https://amcsupport.org/wp-content/uploads/2025/01/Brian-Wayne-Page-6-scaled.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/01/Brian-Wayne-Page-7.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/01/Brian-Wayne-Page-1-scaled.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/01/Brian-Wayne-Page-5-scaled.jpeg) [ ](https://amcsupport.org/wp-content/uploads/2025/01/Brian-Wayne-Page-3-scaled.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Brian_Wayne_Page-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/01/Brian-Wayne-Page-2-scaled.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/01/Brian_Wayne_Page.jpg) [ ](https://amcsupport.org/wp-content/uploads/2025/01/Brian-Wayne-Page-8.jpg) 

 [  Donate  ](https://givebutter.com/aBjiU1)

**Categories:** Memorial

**Tags:** Brian Wayne Page, Memorial

---

### [Medical Articles](https://amcsupport.org/medical-articles/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## Medical Articles

#### Growth Charts for Children With Arthrogryposis Multiplex Congenita

By Lauren C. Hyer – MD, Emily R. Shul – PhD, Bob Fray – PhD,
& David E. Westberry – MD

 [  View PDF  ](https://amcsupport.org/wp-content/uploads/2025/02/Hyer-AMC-Growth-Charts-Clinical-Pediatrics-2023.pdf) 

#### Prenatal diagnosis *(or lack thereof)* of Arthrogryposis Multiplex Congenita and its impact on the perinatal experience of parents: A retrospective survey

by [Sara Lemin](https://obgyn.onlinelibrary.wiley.com/authored-by/Lemin/Sara), [Harold J. P. van Bosse](https://obgyn.onlinelibrary.wiley.com/authored-by/van+Bosse/Harold+J.+P.), [Lauren Hutka](https://obgyn.onlinelibrary.wiley.com/authored-by/Hutka/Lauren), [Shea Soberdash](https://obgyn.onlinelibrary.wiley.com/authored-by/Soberdash/Shea), [Jay Patibandla](https://obgyn.onlinelibrary.wiley.com/authored-by/Patibandla/Jay)

 [  View PDF  ](https://amcsupport.org/wp-content/uploads/2024/04/Prenatal_Diagnosis_final_published_article.pdf) 

 [  View Article Online  ](https://obgyn.onlinelibrary.wiley.com/doi/10.1002/pd.6569) 

#### Advocating for Your Child from Within the System

by Filiberto Ontiveros Jr.

 [  View PDF  ](https://amcsupport.org/wp-content/uploads/2024/01/advocating-for-your-child.pdf) 

#### Amyoplasia Revisted

by Dr. Judith Hall

 [  View PDF  ](https://amcsupport.org/wp-content/uploads/2024/01/amyoplasia-revisited.pdf) 

#### Amyoplasia Uppers and Lowers

by Dr. Judith Hall

 [  View PDF  ](https://amcsupport.org/wp-content/uploads/2024/01/amyoplasia-uppers-lowers.pdf) 

#### Arthrogryposis as a Syndrome: Gene Ontology Analysis

by Dr. Judith Hall

 [  View PDF  ](https://amcsupport.org/wp-content/uploads/2024/01/amyoplasia-as-a-syndrome.pdf) 

#### Biomechanics of Fetal Movement

by Niamh C. Nowlan, PhD

 [  View PDF  ](https://amcsupport.org/wp-content/uploads/2024/01/Nowlan-eCM-2015.pdf) 

#### Rehabilitation needs of youth with arthrogryposis multiplex congenita: Perspectives from key stakeholders

Caroline Elfassy, Vasiliki Betty Darsaklis, Laurie Snider, Cynthia Gagnon, Reggie Hamdy & Noemi Dahan-Oliel

 [  View PDF  ](https://amcsupport.org/wp-content/uploads/2024/01/Rehabilitation-needs-of-youth-with-arthrogryposis-multiplex-congenita-Perspectives-from-key-stakeholders-PubMed.pdf) 

#### Research Briefs in Arthrogryposis Multiplex Congenita

Shriners Hospitals for Children

 [  View PDF  ](https://amcsupport.org/wp-content/uploads/2024/01/Extensive_arthrogryposis_research-Shriners.pdf) 

#### What’s New and Exciting in Arthrogryposis?

Dr. Judith Hall

 [  View PDF  ](https://amcsupport.org/wp-content/uploads/2024/01/Whats-New-and-Exciting-In-Arthrogryposis-by-Dr-Judith-Hall.pdf) 

#### Your Child’s Journey

Shriner’s in SC

 [  View PDF  ](https://amcsupport.org/wp-content/uploads/2024/01/Your-Childs-Journey-Shriners-SC-1-1.pdf)

**Categories:** Arthrogryposis, Find Supprt, Medical Articles

**Tags:** Find Support, Medical Articles

---

### [Speakers](https://amcsupport.org/speakers/)

**Published:** December 10, 2023
**Author:** Ted Houser

**Content:**

# Guest Speakers

 ![Speaker image kimberly kolstad the keynote speaker at the 19th Annual AMCSI Conference in Atlanta, GA](https://amcsupport.org/wp-content/uploads/2024/04/Speaker-image-kimberly-kolstad.jpg) 

## Kimberly Kolstad

### Keynote Speaker

**Kimberly Kolstad** is a full-time medical social worker at Craig H Neilsen Rehab Hospital at the University of Utah. For over 18 years she has been advocating for underprivileged individuals and most recently has had the opportunity to work with individuals with spinal cord injuries, amputations, and transplants. Kim has successfully created and runs a peer coaching program for patients with new spinal cord injuries. She works closely with TRAILS Adaptive Sports and has organized an event for Veterans with complex disabilities to experience the Tetra Watercraft. Kim has a love of adventure, and over the last two and a half years, her life has been changed for the better by participating in over 15 different adaptive sports, her favorites being snow skiing with the TetraSki, wake-surfing, and adaptive mountain biking. As a social worker and a person with AMC, Kim knows the importance of accessibility and inclusion for all. She is now advocating for adaptive sports to be known and accessible to all people with disabilities, especially those with AMC.

 ![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-Meet-The-Team-Dr-Harold_van-Bosse.jpg) 

## Dr. Harold van Bosse

Dr. Harold J. P. van Bosse, M.D. is a pediatric orthopedic surgeon at Cardinal Glennon Children’s Hospital in St. Louis, Missouri. Dr. van Bosse has been practicing pediatric surgery exclusively since completing his orthopedic residency at the University of Illinois in Chicago in 1994, and his fellowship at Toronto’s Hospital for Sick Children in 1995. His specialty interests within pediatric orthopedics are arthrogryposis multiplex congenita (AMC), Prader-Willi syndrome (PWS), idiopathic clubfoot deformity, limb malalignment conditions, and pediatric spine deformities, especially of the growing spine. AMC and PWS alone make up more than 90% of his practice, allowing him to delve deeply into his special interest. He has published widely on topics related to arthrogryposis, clubfeet, and Prader-Willi syndrome. When developing an arthrogryposis center, the goals are to allow children with arthrogryposis to reach their fullest potential by addressing their limb deformities and helping them function/adapt to their limitations. Dr. Van Bosse considers himself privileged to follow patients from North and South America, Europe and Asia. He could not have gotten this far without the support of his wife, Ana.

 ![Dr_Louise_Reid_Nichols](https://amcsupport.org/wp-content/uploads/2023/12/Dr_Louise_Reid_Nichols.jpg) 

## Dr. Reid Nichols

Reid Nichols, M.D., FAOA, FAAOS, is a pediatric orthopaedic surgeon at Nemours Children’s Health, Delaware Valley, and Assistant Professor of Orthopedic Surgery, at Thomas Jefferson University. She received her undergraduate degrees from the University of Virginia and from Johns Hopkins University School of Nursing. She earned her medical degree from Northeastern Ohio Universities College of Medicine. After graduating from residency in orthopaedic surgery at Maimonides Medical Center in Brooklyn, NY, she completed a limb lengthening and reconstruction fellowship at the International Center for Limb Deformity in Baltimore, MD. Under the supervision of John Herzenberg, M.D., she received advanced training in the management of clubfeet. She received advanced training in pediatric orthopaedics after completing a fellowship at the Nemours/Alfred I. duPont Hospital for Children. She is currently the president of the Limb Lengthening and Reconstruction Society(LLRS). She is active in many societies, including the Pediatric Society of North America, LLRS, American Academy of Orthopaedic Surgeons, American Orthopedic Association, and the Ruth Jackson Orthopaedic Society. She has served as the BOS representative for LLRS and is currently the POSNA BOS representative. Dr. Nichols’ clinical interests include limb deformity and reconstruction, clubfoot, arthrogryposis, and pediatric trauma. She serves as the director of the Clubfoot Clinic and co-director of the Arthrogryposis Clinic.

 ![Speaker-Dr-Dan-REV](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Dr-Dan-REV.jpg) 

## Dr. Dan Zlotolow

 Dr. Zlotolow is a Pediatric Upper Limb and Peripheral Nerve Surgeon at The Shriners Hospital for Children Philadelphia and Greenville, and The Hospital for Special Surgery in New York. He specializes in the care of children with Arthrogryposis, brachial plexus and peripheral nerve injuries, spinal cord injuries, complex post-traumatic deformities, congenital differences, and limb deficiencies. He leads medical outreach missions to Havana, Cuba and Kigali, Rwanda and has founded 3 professional societies including Plexus Nexus and the Pediatric Hand International Society of Surgeons (PHISOS). He travels nationally and internationally as a visiting professor and lecturer. He was also a team leader for Zion, the first pediatric hand transplant. 

 ![Speaker-Don-Brown](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Don-Brown.jpg) 

## Don Brown

Don Brown has been in the financial services industry for over 30 years. He has been recognized as an industry leader in both personal production and management. Educating individuals and families on how to properly plan for dependents with special needs is a primary focus of Don’s practice. He has volunteered for over 20 years with Camp Fatima of New Jersey, an all-volunteer camp for individuals with developmental challenges. Don is a graduate of Rutgers University and has earned the Chartered Financial Consultant, Chartered Special Needs Consultant, and Chartered Advisor for Senior Living designations.

 ![Speaker-Dr-Maureen-Donohue](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Dr-Maureen-Donohue.jpg) 

## Dr. Maureen Donohoe

Dr. Donohoe is a board-certified pediatric clinical specialist specializing in pediatric orthopedics. She has worked with contracture disorders for over 30 years as the primary physical therapist in the hospital’s Arthrogryposis Program, Osteogenesis Imperfecta Program, and Clubfoot Program. Dr. Donohoe authored the chapters on arthrogryposis and osteogenesis imperfecta in all six editions of Physical Therapy for Children, authored Therapy, Orthotics and Assistive Devices for Osteogenesis Imperfecta in Osteogenesis Imperfecta: A Case-Based Guide to Surgical Decision-Making and Care, Ambulatory Assistive Devices for Children and Youth with Cerebral Palsy and Activities of Daily Living Supports for Persons with Cerebral Palsy in Cerebral Palsy 2nd edition, the Relapsed Clubfoot in Paediatric Clinical Case Studies, as well as Sports and Recreation in Children with Osteogenesis Imperfecta: Strategies to Enhance Performance. She has been involved in over ten research studies on the physical ability of individuals with arthrogryposis and club feet. She has lectured nationally and internationally on these topics. This is her 15th visit to share information at the AMCSI meeting.

 ![20th Annual AMCSI Conference Guest Speaker Theresa-Willkomm](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Thersa-Willkomm.jpg) 

## Dr. Therese Willkomm

Dr. Therese Willkomm, Ph.D., is the Director of New Hampshire’s State Assistive Technology Program with the Institute on Disability at the University of New Hampshire (UNH) Dr. Willkomm is a clinical associate professor emeritus in the Department of Occupational Therapy. She developed, coordinated, and taught assistive technology courses for the Graduate Certificate Program in Assistive Technology for 23 years. She is known nationally and internationally for her innovative strategies for creating solutions in minutes. She has designed and fabricated over two thousand solutions for individuals with disabilities. She has presented her work in 42 states, ten foreign countries, and three U.S. Territories and has authored over 22 publications, including her recent book Assistive Technology Solutions in Minutes Book 3: – “Make Stuff and Love People”.

 ![Speaker-Lauren-Hyer](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Lauren-Hyer.jpg) 

## Dr. Lauren Hyer

Lauren C. Hyer, M.D. has worked at Shriners Hospitals for Children in Greenville, SC, since 2016. She completed her orthopedic surgery residency through Greenville Health System (now Prisma Health) in 2015. She spent the following year doing a pediatric orthopedic surgery fellowship at Phoenix Children’s Hospital in Arizona. Her main professional interests include arthrogryposis, gait improvement for cerebral palsy, and limb deficiency. Besides her work at Shriners, Dr. Hyer enjoys spending time with her husband and two young boys.

 ![Dr. Noémi Dahan-Oliel](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-image-noemi.jpg) 

## Dr. Noémi Dahan-Oliel

Dr. Noémi Dahan-Oliel is a Clinician Scientist at Shriners Hospital for Children-Canada and has been an Associate Professor at McGill University, School of Physical and Occupational Therapy since 2014. Her research program focuses on improving clinical outcomes for children living with musculoskeletal conditions, specifically arthrogryposis. Research designs include mixed methods, stakeholder engagement, and knowledge translation. Together with a wonderful multidisciplinary and multisite research team, she obtained funding for several clinical research projects in arthrogryposis. These projects include developing a registry for children with arthrogryposis across North America, expanding a registry for arthrogryposis internationally, developing a measure for the upper limb specifically for children with arthrogryposis, and exploring social deprivation and costs of caring in arthrogryposis to improve care and advance research in arthrogryposis.

 ![Speaker-image-caroline-elfassy](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-image-caro-elfassy.jpg) 

## Ms. Caroline Elfassy

Caroline Elfassy is an occupational therapist with a profound passion for upper extremity rehabilitation and outcome measure development. Recently, she completed her doctoral research at McGill University, where she focused on developing an upper extremity AMC-specific outcome measure (Shriners Hospital Arthrogryposis Pediatric Upper Extremity – SHAPE-UP), reflecting her commitment to advancing patient-centred care. Currently, Caroline is enrolled in post-doctoral training at the University of Montreal, collaborating with Ste-Justine and SickKids. In her current role, she is dedicated to enhancing mental health service delivery for children and youth with congenital upper limb differences (CoULD), aiming to address holistic care needs.

 ![Speaker-image-rose](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-image-rose.jpg) 

## Ms. Rose Elekanachi

 Rose Elekanachi is a 5th year Ph.D. candidate in the Rehabilitation Program at McGill University with a research interest in childhood disability, global health, rehabilitation and policy. She is a registered physical therapist with the Medical Therapy Rehabilitation Board of Nigeria and the Health and Care Professions Council in the UK. Rose is currently wrapping up her Ph.D. thesis on the direct, indirect and psychosocial costs in caregivers of children with AMC. Outside research, she enjoys reading novels, writing poems, travelling, and podcasting. 

 ![Speaker-image-kristen-donlevie](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-image-kristen-donlevie.jpg) 

## Ms. Kristen Donlevie

 Kristen Donlevie is an occupational therapy doctoral student at Boston University who has distal arthrogryposis. She recently finished her doctoral clinical rotations, with experience treating adults in inpatient and outpatient settings, and in acute care pediatrics at Boston Children’s Hospital. The culminating portion of her degree, her capstone, is focused on the development of an infographic tool for adults with AMC to enhance their experiences with healthcare practitioners. Outside of her doctoral degree, Kristen most enjoys time outside by any body of water, baking, reading, and being with family and friends. Last year was her first year as an attendee at the AMCSI conference and she is excited to be back! 

 ![Speaker-image-ahlam-zidan](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-image-ahlam-zidan.jpg) 

## Ms. Ahlam Zidan

 Ahlam Zidan is a Ph.D. candidate in Rehabilitation Sciences at McGill University (Canada). Her master’s degree from the University of Nottingham (UK) focused on the gross motor function of children with Cerebral palsy. Currently, Ahlam’s Ph.D. research aims to validate common mobility measures and explore the contextual factors associated with the developmental trajectory and mobility of children with AMC using a Shriners-funded AMC registry across 8 sites. Outside of study, Ahlam enjoys travel, coffee, tennis, and adrenaline activities like skydiving. 

 ![Speaker-Phillip-Giampietro](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Phillip-Giampietro.jpg) 

## Dr. Phillip Gaimpietro

Philip F. Giampietro, MD, PhD, is currently the Asok K. Ray, M.D. FRCS (EDIN) and Purnima Ray Endowed Professor of Pediatrics and Section Chief of Medical Genetics in the Department of Pediatrics at University of Illinois-Chicago School of Medicine. He received his B.S. in Biological Sciences at State University of New York at Stony Brook, Doctorate in Biomedical Sciences at the City University of New York and M.D. at the State University of New York at Stony Brook. Dr. Giampietro completed his internship in Pediatrics at the State University of New York at Stony Brook, a residency in Pediatrics at Long Island Jewish Medical Center, and a Fellowship in Medical Genetics at Weil Medical College of Cornell University. Throughout his career, he has been active in the education of medical students, genetic counseling students, physician assistants, and pediatric residents and fellows. Prior to his current position, Dr. Giampietro held positions at Rutgers -Robert Wood Johnson Medical School, Drexel University College of Medicine, University of Wisconsin- Madison, Marshfield Clinic, Marshfield Clinic and Weil Medical College of Cornell University. Dr. Giampietro’s research interests include dysmorphology and birth defects, in particular the genetics of congenital and idiopathic scoliosis. He has worked closely with orthopedic surgical colleagues, clinical and molecular geneticists, and epidemiologists to better understand genetic and environmental contributions to these conditions.

 ![Speaker-Fran-Guardo](https://amcsupport.org/wp-content/uploads/2023/12/Speaker-Fran-Guardo.jpg) 

## Dr. Fran Guardo

Fran Guardo, MEd, MPT, DPT, BSPTS C1&2 Director of Rehabilitation for the Paley Orthopedic and Spine Institute (POSI) since 2009. She is a sought-after speaker in the field of Rehabilitation of Limb Lengthening and Treatment of Arthrogryposis, where she trains therapists and surgeons internationally. She has authored multiple book chapters, presents nationally and internationally, and is an adjunct professor for Nova Southeastern University, where she lectures in the Physical Therapy Department.

 ![Speaker image Nancy Quinn](https://amcsupport.org/wp-content/uploads/2024/05/Speaker-image-nancy.jpg) 

## Ms. Nancy Quinn

Nancy Quinn, OTR/L is the Lead Occupational Therapist with Paley Orthopedic and Spine Institute. She joined the team in 2023, and applies her more than 20 years of diverse pediatric experience to the treatment of children with arthrogryposis. Her career has focused on the treatment of children with acquired and congenital limb differences. Previously she served as a Clinical Specialist for a large children’s hospital where she worked extensively with children with Brachial Plexus Birth Palsy, congenital hand anomalies, traumatic injuries of the hand and upper extremity, and infants with congenital heart disease. Nancy is a Certified Lymphedema Therapist and is certified in administering the Mini-Assisting Hand Assessment (Mini-AHA), the Hand Assessment for Infants (HAI) and is a master splint fabrication and teaching.

 ![Speaker-Jan-Shae](https://amcsupport.org/wp-content/uploads/2024/02/Speaker-Jan-Shae.jpg) 

## Ms. Jan Shea

Jan Shea, MSW, joined up with her colleagues at Virginia Commonwealth University’s Center on Transition Innovations in 2014 when she relocated to Richmond, VA from the Appalachian Mountains of Northeast Tennessee. Jan brought her background of juvenile justice and mental health to the team along with the invaluable skill set of spreading office cheer. Over the past 10 years, Jan has served across many projects within CTI. Her work ranges from supporting young adults with an intellectual disability pursuing a inclusive higher education certificate; serving as the program coordinator for a project exploring mental health supports for transfer students in Virginia; and as a Technology and Employment Coordinator for women with TBI/SCIs. When Jan isn’t working at CTI, she can be found attempting to paddle board in the waters around Greater Richmond and enjoying time with her family.

 ![Speaker_Dr_Sarah_Nossov](https://amcsupport.org/wp-content/uploads/2024/02/Speaker_Dr_Sarah_Nossov.jpg) 

## Dr. Sarah Nossov

 Sarah Nossov, M.D., is an orthopedic surgeon at Shriners Children’s Philadelphia. Dr. Nossov received her undergraduate degree in fine arts and a minor in computer science from Binghamton University. She then enrolled in a post-baccalaureate premedical program at Goucher College. She earned her medical degree as a distinguished scholar at University of North Carolina at Chapel Hill School of Medicine. In her first week of medical school, she was called to assist at a field hospital in Louisiana after Hurricane Katrina due to her emergency medical training. It was there that she worked side by side with volunteer orthopedic surgeons and her interest in bone health began — within the context of her desire to develop her commitment to community service. 

 ![AMCSI24Speaker-image-Lisa-Wagner](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24Speaker-image-Lisa-Wagner.jpg) 

## Dr. Lisa V. Wagner

Dr. Lisa V. Wagner DHS, OTR/L received her OT degree from the Medical University of South Carolina and her doctorate from the University of Indianapolis. Working for Shriners Hospitals for Children for the past 33 years has allowed Lisa to participate in various research projects resulting in peer-review articles, book chapter and the ability to speak nationally and internationally. She has co-developed three distinct outcome measures including the UBET, SHUEE and SCUES. She is a clinical instructor for the Assisting Hand Assessment. Passionate about children with AMC, she is currently collaborating on an outcome assessment for better understanding of the upper extremities in AMC and the development of rehabilitation guidelines for AMC.

 ![AMCSI24Speaker-image-Megan-Mitchell](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24Speaker-image-Megan-Mitchell.jpg) 

## Ms. Megan Mitchell

Megan Mitchell is an experienced attorney specializing in education civil rights and defense. Prior to the creation of her firm, Ms. Mitchell worked as an Attorney Advisor for the U.S. Department of Education in the Office for Civil Rights, known commonly as OCR. OCR is the branch of government tasked with enforcing Title II, Title VI, and Title IX at the federal level. In her current practice, Ms. Mitchell endeavors to ensure equitable access to education for all students, spanning both K-12 and post-secondary settings. She collaborates with K-12 families to safeguard their entitlement to a free, appropriate public education, crafting innovative and effective 504 plans and IEPs. Through her advocacy, Ms. Mitchell staunchly defends every student’s right to an inclusive learning environment. Ms. Mitchell earned her Juris Doctor degree from Emory University School of Law. At Emory Law, she served as Student Body President and was the sole student member of the university’s Board of Directors. Ms. Mitchell received her undergraduate degree from the University of North Carolina where she earned a double major in Political Science and International Studies. Ms. Mitchell lives in Atlanta, GA with her family

 ![Speaker image tricia bucci](https://amcsupport.org/wp-content/uploads/2024/04/Speaker-image-tricia-bucci.jpg) 

## Ms. Tricia Bucci 

 I have been a physical therapist at Shriner’s Childrens in Erie, PA and now at Shriners Children’s in Greenville, SC for a combined 26 years. Areas of focus in my career have included; training in the French Functional Method of Treatment for clubfeet, a strong interest and history of education in the treatment of torticollis and plagiocephaly, and now currently serving as a member of the Greenville Shriners Children’s AMC team with several years of experience working with and learning from children and teens with AMC. 

 ![Speaker image jaccalyn owens headshot](https://amcsupport.org/wp-content/uploads/2024/04/Speaker-image-jaccalyn-owens.jpg) 

## Ms. Jaccalyn Owens

 Jaccalyn received her Master’s in Prosthetics and Orthotics from the Georgia Institute of Technology in 2016. She is ABC-certified and state licensed in orthotics and prosthetics. She has been in the POPS departments with Shriners Children’s Hospital – Greenville since 2022. Her career focus areas have been prosthetics and higher-level lower extremity orthotics in the pediatric population. She is now serving as part of the AMC team at Shriners Children’s Hospital – Greenville. 

 ![Speaker Matthew P Cavedon at the 19th Annual AMCSI Conference in Atlanta, Georgia](https://amcsupport.org/wp-content/uploads/2024/05/Speaker-Matthew-P-Cavedon.jpg) 

## Mr. Matthew P. Cavedon

Matthew P. Cavedon is an AMCSI board member and the Robert Pool Fellow at the Center for the Study of Law and Religion at Emory University. A graduate of Harvard College and Emory, he has worked in constitutional litigation and as a public defender. He clerked for a federal district court and the Supreme Court of Georgia. Cavedon’s academic work focuses on criminal law, law and religion, and constitutional law.

 ![Speaker Dr. Arun Hariharan at the 19th Annual AMCSI Conference in Atlanta, Georgia](https://amcsupport.org/wp-content/uploads/2024/05/Speaker-Dr-Arun-Hariharan.jpg) 

## Dr. Arun Hariharan

Dr. Arun Hariharan is a pediatric orthopedic and spine surgeon at the Paley Institute, specializing in complex spinal deformities, including those found in arthrogryposis. He completed his medical education at the University of Michigan, followed by an orthopedic residency at the University of Maryland and Johns Hopkins, and pediatric orthopedic and spine fellowships at Nemours/A.I. duPont Hospital for Children and in Auckland, New Zealand. Actively involved in research and education, Dr. Hariharan has numerous publications and presentations and is a member of the Scoliosis Research Society (SRS) and the Pediatric Orthopaedic Society of North America (POSNA). His passion for patient care and innovation ensures the highest quality of care for his patients. Outside of his professional work, Dr. Hariharan enjoys spending time with his family and cheering for Michigan, Go Blue!

**Categories:** 19th Exhibitors, AMCSI Annual Conference, Arthrogryposis

**Tags:** 19th Annual AMCSI Conference, Speakers

---

### [FAQs](https://amcsupport.org/faqs/)

**Published:** December 10, 2023
**Author:** Ted Houser

**Content:**

## Conference FAQs

##### Questions about Registration

####      I need assistance registering myself/my family for conference.  

Please call us at 1-805-55-AMCSI (1-805-552-6274) if you need to process your registration over the phone. We will be happy to assist you.

This option is only available to those who do not have access to the internet.

####      Why is AMCSI Charging a registration fee? 

Due to the phenomenal growth of our organization, and the continually rising costs of hosting the conference, the Board of Directors of AMCSI has deemed it necessary to increase the registration fees to attend our annual conference.

This year’s registration fee includes your conference registration, conference materials, conference T-Shirt, and the annual dinner for each registered attendee.

Registration fee chart coming soon.

####      If I am an Individual Member, can I bring additional family members/friends at member rates? 

Since you do not have a family membership, any additional registrations would be at the non-member prices. Consider joining with a [**family membership**](https://amcsupport.org/become-a-member/)!

####      We have a family membership, can we register our children as members? 

If you have a family membership, your membership includes two adults and any children 17 and under. [**Become a Member**](https://amcsupport.org/become-a-member/) if you haven’t already done so!

####      Who has to register? 

Anyone who will be attending or participating in **ANY AMCSI functions**, including but not limited to sessions, AMC prom, or dinner, must be registered for the conference.

This includes, but is not limited to, friends, personal care assistants, nurses, extended family, etc. This is for the safety and security of our attendees. Children (anyone under the age of 18) **MUST** be registered with an adult.

####      My child holds a lifetime membership, but I am not a member. Can I register under my child's membership? 

If your child holds the membership in their name, only your child can register as a member. You would need to either purchase an additional family membership.

*(Lifetime memberships are no longer available.)*

####      We have a family membership, but our child is over the age of 18. Can they register under our family membership? 

No—If your child is 18 or over, they are no longer considered a Minor Child. They would need to hold their own membership to AMCSI in order to register as a member.

####      What is your refund policy? 

All refund requests must be in writing. Please email [info@amcsupport.org]().

Refund requests will be completed in a timely manner, and the time/date stamp on the email will determine the amount of refund according to the following schedule:

**REGISTRATION REFUNDS:**

60+ days prior to Saturday, June 29, 2024 – Full Refund minus a $25 administrative Fee & eventbrite fee

59-30 days prior to Saturday, June 29, 2024- 50% refund minus $25 administrative Fee & eventbrite fee

29 days or less prior to Saturday, June 29, 2024 – No Refunds

**Eventbrite fees are as follows:**

Per Ticket 
Service fee

3.70% + $1.79 per ticket

Processing fee

2.90% per order

Sales tax

8.90%

##### Questions About Hotel

[**Please download the Hyatt Regency’s Information PDF** ](https://amcsupport.org/hyatt-regency-atlanta-know-before-you-go/)

####      Traveling In On July 4th - Traffic 

Brace for heavy traffic due to the Peachtree Road Race (8:00 am to 11:00 am) in Atlanta, Georgia, on July 4th! 

Plan your arrival for the 4th & allow extra travel time due to road closures & foot traffic to navigate through the road race hustle.

Official road closures:

[https://bit.ly/Peachtree-Rd-Closures](https://bit.ly/Peachtree-Rd-Closures?fbclid=IwAR3POaMLIqQ7jr8DnwEM99mw7aawL6Fc2QdjLQKptN94yLmEU5_fY3VDefE)

####      At what hotel is the conference? 

Conference will be held at the Hyatt Regency Atlanta.

**Address**
265 Peachtree Street NE
Atlanta, GA 30303, US

You must [**register for the Conference**](https://amcatl24.eventbrite.com) with AMCSI, to receive the hotel booking link.

####      What time is check-in & check-out? 

Hotel check-in is 4:00 pm & check-out is 11:00 am.

####      How much does the hotel room cost, and how do I get the group rate? 

$127 + tax and fees per night.

A link to the discounted rate will be sent in your Registration Confirmation Email.

If the hotel says the rooms are full, try to adjust your arrival/departure dates.

####      How do I book my room with the group rate? 

After you register for the conference, you will receive a confirmation email. In that email, there will be a link to reserve your hotel room.

####      Nearest Pharmacy 

There is a CVS in the PeachtreeCenter/The Hub area that is connected to the Hyatt Regancy Atlanta by a covered walkway however it is not wheelchair accessible.

####      Can I cancel my Hotel Reservation? 

You may cancel or change your reservation **[online at Hyatts website](https://www.hyatt.com/hyatt/reservations/reservation.jsp)** using your first name, last name, and reservation confirmation number or credit card number. Your details will be sent securely.

Some reservations may not be retrievable online. If you have problems retrieving your reservation, please [**contact Hyatt**](https://about.hyatt.com/en/contact.html).

####      Can my reservation include days before or after the dates of the conference? 

AMCSI’s Group Rate is reserved for Wednesday, July 3rd-Saturday, July 6th.

Based on hotel availability, rooms may be booked at our discounted rates on these dates.

\*\*\*You must contact hotel in advance to inquire about Shoulder Dates. You will not be able to book these dates online.

####      Is there a coin laundry on the property? 

Unfortunately no, please consult with the front desk about laundry needs.

####      Does the airport/hotel have a shuttle? 

The Hartsfield-Jackson Atlanta International Airport (ATL) is 11 miles away from the hotel.

Please [**CLICK HERE**](https://www.hyatt.com/hyatt-regency/en-US/atlra-hyatt-regency-atlanta/hotel-info) to learn more about Hyatt Regancys’ Parking & Transportaion.

####      Hotel Parking 

Parking is $38.50 to Valet & the same price if you drive to their parking garage, there is no pull up parking at the hotel.

We recommend pulling up to unload and let them valet.

For more information about parking , please visit [**Hyatt Regnecy Atlanta Parking.**](https://www.hyatt.com/hyatt-regency/en-US/atlra-hyatt-regency-atlanta/hotel-info)

####      Hotel Elevators 

Elevators require your room key to activate & the area to activate them is very high up & difficult ro each from a wheelchair.

Please don’t be shy to ask anyone in our AMC family for assistance to activate the hotel elevator.

##### Questions About Conference

####      Coming soon... 

Info coming soon.

####      Coming soon... 

Info coming soon.

##### Questions About Food & Shopping

####      Dining 

There is two restaurants inside the hotel and in-room dining is available.

**The Peachtree Center/TheHub** is connected to the Hyatt Regancy Atlanta by a covered walkway however it is not wheelchair accessible. Exit the lobby and go right or left to access the elevator up to the restaurant. There are also fast-food options in this area.

There are numerous restaurants, events & attractions near the hotel. [**View their guide**](https://www.hyatt.com/hyatt-regency/en-US/atlra-hyatt-regency-atlanta/events-and-attractions).

####      Are there places to shop? 

YES, at the AMCSI Store!! *(You can also visit [**amcsupport.org/store**](https://www.amcsupport.org/store) to shop on the go!)*

There are numerous events & attractions near the hotel. [**View their guide**](https://www.hyatt.com/hyatt-regency/en-US/atlra-hyatt-regency-atlanta/events-and-attractions).

**Categories:** 19th FAQs, AMCSI Annual Conference, Arthrogryposis

**Tags:** 19th Annual AMCSI Conference, FAQs

---

### [Planning Committee](https://amcsupport.org/planning-committee/)

**Published:** December 10, 2023
**Author:** Ted Houser

**Content:**

# Conference Planning Committee

*(a.k.a. The Loon Crew)*

 ![conference-crew-michele-shaffer](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-michele-shaffer.jpg) 

## Michele Schaffer

Bio Coming Soon!

 ![conference-crew-maureen-goede](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-maureen-goede.jpg) 

## Maureen Goede

Bio Coming Soon!

 ![conference-crew-beth-sellers](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-beth-sellers.jpg) 

## Beth Sellers

 Beth is a mom to 3 kids at home, including 16 year old AMCer Taylin. Beth works as an assistive technology professional for Techvision, providing instruction to students who are blind or who have low vision. She also contracts with local school divisions to provide evaluations and resources for students and their IEP teams. Beth was recently appointed by the Governor of Virginia to the Virginia State Rehabilitation Council for the Blind and Visually Impaired. She also serves as a board member and officer for the local Center for Independent Living (Valley Associates for Independent Living) and in her spare time she volunteers for the local SPCA raising neonatal kittens. 

 ![conference-crew-betsy-gates](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-betsy-gates.jpg) 

## Betsy Gates-Ehlers

Betsy, mom to Jake (16, AMCer) and Karl (10), has finally ended her career as a professional student and has begun to enjoy a little “free” time! Betsy, her wife Andrea, and the boys spend much of their time doing activities with Scouts including camping trips and service projects. Jake is a soon-to-be Eagle Scout and Karl is currently finishing up his time in Cub Scouts. They also enjoy camping as a family with their two dogs, Loki and Thor.

 ![conference-crew-larina-swans0n-REV](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-larina-swans0n-REV.jpg) 

## Larina Swanson-Carter

Bio coming Soon!

 ![conference-crew-jan-shae](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-jan-shae.jpg) 

## Jan Shea

Jan Shea (she/her) is thrilled to be serving her first year on the Loon Crew for the AMCSI Conference. She now calls Richmond, VA home. She and her husband, James, embrace life to the fullest through adventure, travel, and laughter. Jan is the mother of Finley, Lydia (AMC Angel), and Groot (fur baby), an amateur paddleboarder, and a loyal friend. Professionally, Jan works with young adults with disabilities as they transition out of high school into what comes next. Jan brings warmth and commitment to her role, embodying the spirit of service in everything she does.

 ![conference-crew-anna-van-bosse](https://amcsupport.org/wp-content/uploads/2023/12/conference-crew-anna-van-bosse.jpg) 

## Ana van Bosse

Bio Coming Soon!

**Categories:** 19th Planning Committee, AMCSI Annual Conference, Arthrogryposis

**Tags:** 19th Annual AMCSI Conference, Planning Committee

---

### [Schedule](https://amcsupport.org/schedule/)

**Published:** December 10, 2023
**Author:** Ted Houser

**Content:**

## Annual Conference Events Include:

- First Time Attendee Session
- Medical Support/Information Sessions
- AMC Peer Support Sessions
- Children’s Programming
- AMCSI Dinner
- AMCSI Prom
- Annual Public Meeting
- Annual Group Photo
- Annual Silent Auction
- AMCSI Merchandise Store
- Exhibitors

## 19th Annual AMCSI Conference Schedule

Click on the image below or [**CLICK HERE**](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI24_Program_floorplan.pdf) to download a PDF of the Floorplans.

 [ ![19th Annual AMCSI Conference Program Floorplan](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI24_Program_floorplan.jpg) ](https://amcsupport.org/wp-content/uploads/2024/06/AMCSI24_Program_floorplan.pdf) 

## Schedule is subject to change.

##### Wednesday, July 3rd, 2024

####      2:30 PM - 3:30 PM | Volunteers Meetup 

Zoom

####      4:00 PM - 6:45 PM | Registration & Tshirt Pickup | AMC Store | Vendors 

Location: Regancy Foyer

####      7:00 PM - 8:00 PM | First-time Attendees Welcome 

Location: Regency V

####      7:30 PM - 10:00 PM | Informal Social Time for All Attendees Hotel 

Location: Bar/Lounge area of Hotel.

(Food & drink on your own)

## Schedule is subject to change.

##### Thursday, July 4th, 2024

####      8:00 AM - 6:00 PM | Registration/Tshirt Pickup | Silent Auction | AMC Store | Vendors 

Location: Regency Foyer

####      10:00 AM - 10:45 AM | Opening Ceremony | Keynote Speaker, Kim Kolstad - Adaptive Sports 

###### **Unleash Your Potential: Discover the Superpower of Adaptive Recreation**

**Imagine:** Pushing your limits further than ever before. Uncovering hidden strengths that go beyond daily life. Feeling a surge of independence and confidence you never knew existed.
For me, adaptive sports transformed my life. As a woman with AMC, I craved self-sufficiency and independence. Adaptive sports opened a whole new world of possibilities. In just 3 years, I’ve completely changed my life and have become healthier and happier than ever.
But here’s the shocker: It took me 40 years to find this.
That’s why I’m here. To tell you, it’s never too late. Even if you’re scared, take that first step. Trust the process and see what happens when the impossible becomes possible.

**Join me and discover your own potential.**

Location: Regency VI-VII

####      11:00 AM - 11:45 AM | Dr. Phillip Giampietro - Genetics 

###### What is a Genetic Evaluation and How Will it Benefit my Child?

In this session we will review the nuts and bolts of a genetic evaluation. We will discuss the components of a genetic evaluation including what historical and physical examination findings are important. We will delve into the different types of genetic testing utilized in clinical practice and discuss types of results which are expected along with limitations of testing. The process of genetic counseling will also be discussed.

Location: Hanover AB

####      11:00 AM - 11:45 AM Support Session | Sib Shop 10 and Up 

Location: Hanover C

####      11:00 AM - 11:45 AM Support Session | Moms of AMCers 10 and under 

Location: Hanover D

####      11:00 AM - 11:45 AM Support Session | Young adults with AMC 18-24 

Location: Hanover E

####      11:00 AM - 11:45 AM | Dr. Reid Nichols - Lowers 

###### Hip in AMC

Contractures of the hip are present in almost 90% of AMC children. Hip dislocations are seen in 30% to 40% of AMC children. The purpose of this talk is to clarify some of the medical jargon that surrounds this complex joint. There is no “one way” to treat an AMC hip, so the aim of this talk is to bring a better understanding of what the surgeon is thinking when planning surgery.

Location: Hanover FG

####      11:00 AM - 1:00 PM | BOD Office Hours 

Location: Chicago A

####      12:00 PM - 2:00 PM | Lunch 

(On your own)

####      2:00 PM - 2:45 PM | Dr. Arun Hariharan - Spine 

###### In “Moving the Curve: Modern Approaches to Spinal Care in Arthrogryposis

Dr. Arun Hariharan will explore the latest advancements in treating spinal deformities associated with arthrogryposis. The talk will cover innovative surgical techniques and treatment strategies that improve patient outcomes. Dr. Hariharan will share insights from his experience and research in pediatric spine surgery. Attendees will learn about the integration of cutting-edge technologies and personalized care plans in managing complex spinal conditions in AMC. This presentation aims to enhance understanding and collaboration among healthcare professionals dedicated to improving the lives of patients with arthrogryposis.

Location: Hanover AB

####      2:00 PM - 2:45 PM Support Session | Moms of AMCers 11 and Up 

Location: Hanover E

####      2:00 PM - 2:45 PM | Ms. Kim Kolstad with Mr. Cullen Robinson, Ms. Jo Crawford & Mr. Truman Shoaff - Adaptive Sports 

###### Adpative Sports

Adaptive recreation can be broadly defined as any recreational activity that is modified to enable people with physical or mental disabilities to participate in said activity. Adaptations could range from something as simple as using an orange bib to help guide someone with a visual impairment to a customized piece of equipment that allows for physical expression in that recreational environment. This brings up the question, “How can I participate?” If you are looking to answer this question or learn more about what a recreational activity may look like for you, stop by for this hour-long open informational discussion with TRAILS Adaptive Sports, TetraAdapt, High Country Adaptive Sports, Arizona Adaptive Water Sports, and Paradox Climbing. Each program has some informational videos and lots of knowledge on how everyBODY can participate in sports and recreation.

Location: Hanover FG

####      3:00 PM - 3:45 PM | Dr. Noémi Dahan-Oliel with Ahlam Zidan, PT and PhD student & Caroline Elfassy, OT, PhD. - Research 

###### Development milestones in children with AMC: Understanding and creating new tools.

The development of a child is determined by complex interactions between various factors, such as the severity of the child’s condition and environmental factors. Better understanding how children with AMC reach developmental milestones was shared as an important need by families of children with AMC, and having tools to evaluate children with AMC was voiced as an important deliverable for clinicians.

**This session will describe:**
**a)** The development of children with AMC between 0-5 years of age using data from an AMC registry of 400 children across North America.
**b)** The SHAPE-UP (Shriners Hospital Arthrogryposis Pediatric Evaluation-UPper Extremity) tool to evaluate the upper extremity in children 1-21 years of age.

This talk will shed light on how this information can be useful for parents, clinicians, and researchers working with a child with AMC.

Location: Hanover AB

####      3:00 PM - 3:45 PM Support Session | Teen Boys with AMC 13-17 

Location: Hanover C

####      3:00 PM - 3:45 PM Support Session | Adults with AMC 25-49 

Location: Hanover E

####      3:00 PM - 3:45 PM | Dr. Dan Zlotolow - Uppers 

This discussion will include a brief overview of the treatment goals and options for improving hand and arm function in children and adults. Volunteers from the audience will then be asked to come up for live demonstration of key examination findings. The goal is to have patients and their families understand the latest advances and what options are open to them.

Location: Hanover FG

####      4:00 PM - 4:45 PM | Dr. Harold van Bosse 

###### Arthrogryposis 101:

Arthrogryposis multiplex congenita (AMC) is a term to describe a spectrum of disorders that all have something in common – the babies were born with multiple joint contractures. This talk is designed to provide a structure to understand arthrogryposis, in terms of its causes, and differences between the common types of AMC. In that way, the information gained should provide participants with a knowledge foundation to help the get the most out of other medical talks in the conference. It will also touch upon some of the procedures done to correct lower extremity deformities.

Location: Hanover AB

####      4:00 PM - 4:45 PM Support Session | Teen Girls 13-17 

Location: Hanover C

####      4:00 PM - 4:45 PM Support Session | Adults with AMC 50 and up 

Location: Hanover D

####      4:00 PM - 4:45 PM Support Session | Tween Girls 9-12 

Location: Hanover E

####      4:00 PM - 4:45 PM | Dr. Lisa Wagner - Orthotics 

###### Upper Extremity Orthotics EVERYONE?

Orthotics (Splinting) are a part of AMC journey. However why do we wear them? What is their purpose? Are there other options? This session will review the basics of orthotics from the general components/materials to the varied purposes of orthosis. Participant discussion is encouraged throughout especially with alternative options to UE splinting and suggestions for handling our little Houdini’s.

Location: Hanover FG

####      5:00 PM - 5:45 PM | Mr. Don Brown 

###### **Understanding ABLE Accounts & Special Needs Trusts**

Learn how these two pillars of special needs planning may be used to maximize resources. Topics include protecting government benefits, eligibility requirements, guidelines for use, and funding options. Information will be presented simply and practically on how you might best provide quality of life and a lifetime of care. Participants are welcome to a resource kit and complimentary consultation.

Location: Hanover AB

####      5:00 PM - 5:45 PM Support Session | Dads 

Location: Hanover C

####      5:00 PM - 5:45 PM Support Session | Tween Boys 9-12 

Location: Hanover D

####      5:00 PM - 5:45 PM Support Session | Adults with AMC co-ed 18 and Up 

Location: Hanover E

####      5:00 PM - 5:45 PM | Dr. Sara Nossov - Lowers 

###### Lower Extremity Deformity and Arthrogryposis

I am so excited to talk with everyone about the basics of what defines deformity of the legs including angular deformity like knock knees and bowlegs. I will teach you how deformity doctors figure out how to balance a leg to a more anatomic position. We will also discuss the implications of rotational deformity to the hips, knees, and feet and some features that are specific to arthrogryposis. I will explain some of the surgical options that may be appropriate for these problems. We will touch on hip, knee, and ankle contractures, but these will be covered more in depth by other speakers.

Location: Hanover FG

####      6:45 PM - 8:00 PM | Dinner 

Location: Regency VI-VII

## Schedule is subject to change.

##### Friday, July 5th, 2024

####      8:00 AM - 5:00 PM | Registration/Tshirt Pickup | Silent Auction | AMC Store 

Location: Regency Foyer

####      9:00 AM - 9:45 AM | Dr. Maureen Donohoe - Clinical Specialist 

###### What to know about lower extremity amputations

A hot topic in arthrogryposis is amputation. This session will review the many amputation options for those with lower extremity limb deformity. Not all have positive outcomes with this surgical intervention. This session will address types of amputations, prosthetic components, and the strategies needed for success and independence.

Location: Hanover AB

####      9:00 AM - 9:45 AM Support Session | Women with AMC 

Location: Hanover C

####      9:00 AM - 9:45 AM | Quiet Room 

Location: Hanover D

####      9:00 AM - 9:45 AM Support Session | Men with AMC 

Location: Hanover E

####      9:00 AM - 9:45 AM Support Session | AMC Adult Panel: How do you do that? 

Come join a diverse panel of Adults with AMC as they discuss their hobbies and interests and some tricks and tips on how to make it work!

Location: Hanover FG

####      10:00 AM - 10:45 AM | Dr. Lauren Hyer - Lowers 

###### The foot is the most commonly affected area in persons with arthrogryposis.

Because the foot and ankle complex is composed of 28 bones and 33 joints, it can also be one of the more tricky aspects of arthrogryposis to manage. During this session we will discuss everything from clubfoot to congenital vertical talus as well as treatment from infancy through adulthood. We hope this session will be informative to parents and patients alike.

Location: Hanover AB

####      10:00 AM - 10:45 AM Support Session | Women with AMC cont. 

Location: Hanover C

####      10:00 AM - 10:45 AM | Quiet Room 

Location: Hanover D

####      10:00 AM - 10:45 AM Support Session | Men with AMC cont. 

Location: Hanover E

####      10:00 AM - 10:45 AM | Dr. Noémi Dahan-Oliel With Ms. Kristen Donlevie, OT student & Ms. Rose Elekanachi, PT, PhD student - Research 

###### Toolkits for adults with AMC and caregivers

As AMC is rare, individuals with AMC and caregivers of children with AMC may experience challenges in accessing care, getting information, and finding supports.

To address these challenges, this session will present the work of two trainees on:
**a)** The developmental of a toolkit for adults with AMC using focus groups with knowledge users and experts;
**b)** Describing the caregiving experience in AMC using information collected from a survey and interviews across 4 countries.

This session will provide tools to raise awareness on the needs of adults with AMC and caregivers of children with AMC. We are looking forward to your feedback during this session in order to refine our projects!

Location: Hanover FG

####      11:00 AM - 11:45 AM | Dr. Harold van Bosse - Spine 

###### Spine:

The incidence of scoliosis in children with arthrogryposis multiplex congenita (AMC) is estimated to be about 20% over the course of childhood. Babies can be born with curves, or they can develop a curve at any time during childhood. In this talk, we will discuss the various ways that spine curves can present, and options for treatment, including bracing, spine casting, non-fusion (“growth friendly”) implants, and spinal fusions.”

Location: Hanover AB

####      11:00 AM - 11:45 AM | Quiet Room 

Location: Hanover D

####      11:00 AM - 11:45 AM Support Session | Adults with AMC Dating 

Location: Hanover E

####      11:00 AM - 11:45 AM | Dr. Therese Willkomm - DIY 

###### Make Stuff and Love People – Creating Assistive Technology Solutions in Minutes

This session will discuss new methods, materials and resources for creating hundreds of assistive technology solutions in minutes using low-cost materials including Coroplast, InstaMorph, loc-Line, PVC, and 10 different specialty tapes for rapid solution creations. This session will also discuss the importance of embracing the “…ABLE” principle in developing solutions that are: Adjustable, moldable, reuseable, removeable, affordable, washable, collapsible, portable, pliable, repurposeable and more. Learn how to become an AT McGyver, McGyva, or McGyvett for quickly solving every day challenges on the fly.

Location: Hanover FG

####      11:00 AM - 1:00 PM | BOD Office Hours 

Location: Hanover E

####      12:00 PM - 2:00 PM | Lunch 

(On your own)

####      2:00 PM - 2:45 PM | Ms. Megan Ballard-Mitchell - attorney specializing in education civil rights & Defense 

This presentation will focus on the application of Section 504 and Title II in schools. We will cover the laws protecting physical accessibility in schools, covering aspects such as doors, sidewalks, hallways, parking, and access to facilities for guests, guardians and students. We will discuss the federal laws that apply to public and charter schools and almost all colleges and universities, and how these laws, when correctly implemented, should eliminate barriers to education from pre-k through college and beyond. Additionally, we will review how Section 504 protects students’ fair access to the classroom and day-to-day learning environment – including ways to help schools craft the best 504 plan for an individual student’s specific needs.

Location: Hanover AB

####      2:00 PM - 2:45 PM Support Session | Significant Others of AMCers 

Location: Hanover C

####      2:00 PM - 2:45 PM | Quiet Room  

Location: Hanover D

####      2:00 PM - 2:45 PM Support Session | Fathers with AMC 

Location: Hanover E

####      2:00 PM - 2:45 PM | Dr. Fran Guardo & Ms. Nancy Quinn OTR 

###### Effective therapeutic intervention for individuals with arthrogryposis occurs through a lifetime continuum.

Session attendees will gain an understanding of early intervention strategies and how early intervention is the first and key opportunity to promote movement and independence in children with arthrogryposis. An overview of rehabilitation following surgical interventions will educate the attendee on how children further progress with movement and independence as they grow and mature.

Location: Hanover FG

####      3:00 PM - 3:45 PM | Ms. Jan Shea 

###### What comes next after high school for students with disabilities.

“Let’s talk about life after high school” is a chance to have a conversation and share resources about what college can look like for yourself/your son/daughter/loved one after high school. This presentation is going to talk about the difference between college and high school, what college accommodations are, tips for prospective students researching colleges, the national movement for inclusive postsecondary education, saving up for college, and setting expectations for college and employment early.

Location: Hanover AB

####      3:00 PM - 3:45 PM Support Session | Grandparents 

Location: Hanover C

####      3:00 PM - 3:45 PM | Quiet Room 

Location: Hanover D

####      3:00 PM - 3:45 PM Support Session | Mothers with AMC 

Location: Hanover E

####      3:00 PM - 3:45 PM Support Session | AMC Adult Panel - Careers 

Come join a group of Adults with arthrogryposis as they discuss their diverse careers of choice, and how they were able to achieve their goals.

Location: Hanover FG

####      4:00 PM - 4:45 PM | Ms. Tricia Bucci PT & Ms. Jaccy Owens  

###### Simple Solutions to Complex Cases; An Interdisciplinary Approach to Orthotic Care in AMC

This presentation will include case studies of children with AMC and describe the collaboration between physical therapy and orthotics as we work to optimize each child’s mobility and functional skills. This will include detailed videos and pictures of each case study. The goal of the presentation is to describe the interdisciplinary approach used between physical therapy and orthotics and the materials that were used for these complex cases.

Location: Hanover AB

####      4:00 PM - 4:45 PM | Quiet Room 

Location: Hanover D

####      4:00 PM - 4:45 PM Support Session | Gay Straight Alliance 

Location: Hanover E

####      4:00 PM - 4:45 PM | Mr. Matthew P. Cavedon - Disability Law 

This session will be about disability law, especially the right to accessibility in public accommodations and to employment. A good companion to the separate session on disability rights in education.

Location: Hanover FG

####      7:00 PM - 9:00 PM | AMCSI Prom - '80s Theme 

Location: Regency VI-VII

####      9:00 PM - 11:00 PM | Set up for Painting with Theresa 

Location: Regency V

## Schedule is subject to change.

##### Saturday, July 6th, 2024

####      9:00 AM - 12:00 PM | Silent Auction | AMC Store 

###### **All Bidding Ends At Noon** 

Location: Regency Foyer

####      9:00 AM - 10:00 AM | AMCSI Group Photo 

Location: Regency VI-VII

####      10:00 AM - 11:45AM | Painting with Theresa 

Location: Regency V

####      11:00 AM - 11:45 AM | AMCSI Board of Directors Meeting 

Location: Regency VI-VII

####      12:00 PM - 1:15 PM | Closing Ceremony | Lady Karen Przytula, Grand High Priestess 

Location: Regency VI-VII

##### Children's Schedule

###### **DISCLAIMER: PARENTS MUST STAY WITH THEIR CHILDREN IN CHILDREN’S PROGRAMMING.**

All Children’s Programing will be located in Regency V room.

## Schedule is subject to change.

##### Thursday, July 4th, 2024

####      2:00 PM | Make-It Take It | part 1 

Attend either part 1 or part 2 – these sessions are identical. Find your inner super hero while you decorate wearables such as masks, capes, or even yourself with temporary tattoos. Once you get your gear on, make a few other crafts just for fun!

####      3:00 PM | Make-It Take It | part 2 

Attend either part 1 or part 2 – these sessions are identical. Find your inner super hero while you decorate wearables such as masks, capes, or even yourself with temporary tattoos. Once you get your gear on, make a few other crafts just for fun!

####      4:00 PM & 5:00 PM | Game Time | part 1 & 2 

Attend Part 1, Part 2, or both! This session will continue for 2 hours with no break in between. Drop in for as long as you like. Have fun playing games with new friends, building with legos or 
magnet blocks, or just hanging out in a fun social space. This is a 
fun, unstructured time to play games with other AMC families.

## Schedule is subject to change.

##### Friday, July 5th, 2024

####      10:00 AM | Music with Chaney 

An AMC conference favorite! Join Chaney Roko for a sing-along of your favorite songs! Kids of all ages are welcome to come sing and dance.

####      11:00 AM | Cosplay Characters 

Come meet a real superhero! You never know who you might see!

####      2:00 PM | Story time with Tammy E. 

Who wants to hear a story? Join Ms. Tammy for an interactive story time with lots of fun books and stories. All ages welcome.

####      3:00 PM & 4:00 PM | Glow Party 

Superheros love to dance…. in the dark! Come get some glow gear and dance the afternoon away with glow sticks, black lights and music. This is a drop in session – stay for as long or as short of a time as you like during the two hour session.

## CHILDREN’S PROGRAMMING & REMINDERS

- ALL children under the age of 18 MUST be supervised by an adult at ALL times. Due to the lack of volunteers, we are unable to provide childcare.
- An individual aged 14 or older MUST remain in the Children’s Programming Room with your child(ren) during all Children’s Programming.
- During Painting with Theresa please don’t let children ‘swim’ in the paint.
- Badges MUST be worn to all conference sessions, including prom, and activities. AMCSI reserves the right to deny entrance to conference events to individuals lacking conference ID badges. This is for the safety and security of all Attendees. You may be asked to return to your guestroom to get your badge. PLEASE wear them at all times in the conference area.
- Children’s Programming is available during conference sessions but is not childcare.
- Please use the hashtag #AMCatl24 when posting to social media!
- The hotel elevators are for the use of all guests, children are not permitted to “play” on the elevators.
- In being respectful of our presenters, individual conversations should be taken outside of the conference rooms during presentations.
- Areas outside of the conference rooms are available should your child need your full attention while a speaker is presenting.
- Please remember we are able to provide this conference through the generosity of our members and attendees.
- Alcohol is NOT permitted at any AMCSI event. Please visit one of the many establishments on the hotel property.
- Attendees may not use the conference space after scheduled events have ended for the day.
- As always, consult with your or your child’s physician before implementing any new ideas as a result of attending this conference.
- Please remember that aside from your hotel room, all hotel areas are considered “Public Spaces” and individuals who are not a part of our conference may pass through. Please keep all belongings you bring to the meeting space with you at all times and be aware of those around you.
- All Attendees agreed to abide by the code of conduct at registration. AMSCI reserves the right to enforce the code of conduct.

## Online Sponsorship, Exhibitor, & Program Forms

### [**SPONSORSHIP SIGNUP FORM**](https://amcsupport.org/19th-sponsorship-form)

### [**EXHIBITOR SIGNUP FORM**](https://amcsupport.org/19th-exhibitor-form)

### [**PROGRAM AD SIGNUP FORM**](https://amcsupport.org/19th-program-form/)

[**Download PDF of full 2024 Conference Sales Kit**](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI24_Sponsorship_Exhibitor_Kit-REV2.pdf)

**Categories:** 19th Schedule, AMCSI Annual Conference, Arthrogryposis

**Tags:** 19th Annual AMCSI Conference, Schedule

---

### [Sponsors](https://amcsupport.org/sponsors/)

**Published:** December 10, 2023
**Author:** Ted Houser

**Content:**

### Thank You To Our 19th Annual AMCSI Conference Sponsors

**Hyatt Regancy Atlanta**
In Atlanta, Georgia | July 3 – July 6 • 2024

##### AMCSI Conference Sponsors

 [ ![Shriners Children's Hospital Logo in Color](https://amcsupport.org/wp-content/uploads/2024/06/L_SC_e_h_4c_p_p-color900.png) ](https://www.shrinerschildrens.org/en) 

 [ ![Case + Sedey LLC Logo](https://amcsupport.org/wp-content/uploads/2024/05/CS-LLC-logo-OL-600.png) ](https://caseandsedey.com) 

 [ ![Clark Associates Charitable Foundation_Logo_green](https://amcsupport.org/wp-content/uploads/2023/12/CACF_Logo-600.png) ](https://www.clarkassociatesinc.biz) 

 [ ![marietta_diner_color_logo-500](https://amcsupport.org/wp-content/uploads/2023/12/marietta_diner_color_logo-500.png) ](https://mariettadiner.com) 

##### Grant Awarded to AMCSI

 [ ![We were notified that we’re receiving a @4imprint #4onebyone promotional products grant!](https://amcsupport.org/wp-content/uploads/2023/12/4imprint_logo-900.png) ](https://www.4imprint.com) 

##### AMCSI Conference Painting With Theresa Sponsor

 [ ![BLICK-Art-Materials-stacked-black-900](https://amcsupport.org/wp-content/uploads/2024/03/BLICK-Art-Materials-stacked-black-900.png) ](https://www.dickblick.com/stores/georgia/atlanta/) 

##### Adaptive Sports Sponsors

 [ ![Centurionlogo_color_600](https://amcsupport.org/wp-content/uploads/2023/12/Centurionlogo_color_600.png) ](https://centurionboats.com/) 

 [ ![Wake_for_warroirs_black-red_logo](https://amcsupport.org/wp-content/uploads/2023/12/vinyl_wfw2015_black-600.png) ](https://www.wakeforwarriors.org/) 

 [ ![nautique-boat-company-inc-logo-vector-color-600](https://amcsupport.org/wp-content/uploads/2023/12/nautique-boat-company-inc-logo-vector-color-600.png) ](https://nautique.com/) 

 [ ![Catalyst-logo-600](https://amcsupport.org/wp-content/uploads/2023/12/Catalyst-logo-600.png) ](https://www.catalystsports.org/) 

 [ ![AAWS-FINAL-logo-2023-color-600](https://amcsupport.org/wp-content/uploads/2023/12/AAWS-FINAL-logo-2023-color-600.png) ](https://www.azadaptivewatersports.org/) 

 [ ![High-Country-Adaptive-Sports-Logo_color-600](https://amcsupport.org/wp-content/uploads/2023/12/HCAS-Logo_color-600.png) ](https://highcountryadaptive.org) 

##### Patron Sponsors

**First Command Bryan Tuschen**

**Wosnik Law**

**Cotto & Cochran Immigration Group**

**Matt & Julie Cavedon**

**Premium Distributors**

## [**SPONSORSHIP SIGNUP FORM**](https://amcsupport.org/19th-sponsorship-form)

[Download PDF of full 2024 Conference Sales Kit](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI24_Sponsorship_Exhibitor_Kit-REV2.pdf)

**Categories:** 19th Sponsors, AMCSI Annual Conference, Arthrogryposis

**Tags:** 19th Annual AMCSI Conference, Sponsors

---

### [Exhibitors](https://amcsupport.org/exhibitors/)

**Published:** December 10, 2023
**Author:** Ted Houser

**Content:**

### Join us in Altanta, Georgia July 3-6 and meet all of these wonderful Exhibitors!

 [ ![AMCSI24_exhibitor_adaptive](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_exhibitor_adaptive-sports-01-1024x1024.jpg) ](https://amcsupport.org/19th-adaptive-sports/) 

Learn all about the world of Adaptive Sports! To get involved in the activities on July 3rd, **[CLICK HERE!](https://amcsupport.org/19th-adaptive-sports/)**

 [ ![AMCSI24_exhibitor_summit_assistive](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_exhibitor_summit_assistive-tech2-1024x1024.jpg) ](https://www.summitassistivetech.com/#/) 

The iReach Stylus by [**Summit Assistive Tech**](https://www.summitassistivetech.com/#/), stop by their table to learn more about this adaptive product.

 [ ![AMCSI24_exhibitor_adaptive](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_exhibitor_arthrgyposis-ohio-1024x1024.jpg) ](https://www.arthrogryposisohio.org/) 

Meet the **[Arthrogryposis Ohio](https://www.arthrogryposisohio.org/)** Team whose focus is raising awareness of Arthrogryposis within Ohio.

 [ ![AMCSI24_exhibitor_mira-mccarty](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_exhibitor_mira-mccarty-1024x1024.jpg) ](https://www.amazon.com/Differently-Abled-Mira-McCarty/dp/B0CQPN8MLW/ref=sr_1_17?crid=2ZF4T10HN4OL&keywords=Differently%20Abled&qid=1703607059&sprefix=differently%20abled%2Caps%2C310&sr=8-17) 

Meet Mira McCarty. auther of [**Differently Abled**](https://www.amazon.com/Differently-Abled-Mira-McCarty/dp/B0CQPN8MLW/ref=sr_1_17?crid=2ZF4T10HN4OL&keywords=Differently%20Abled&qid=1703607059&sprefix=differently%20abled%2Caps%2C310&sr=8-17), a book that introduces students or children to the idea of disabilities.

 [ ![AMCSI24_exhibitor_paintings](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_exhibitor_paintings-by-summer-1024x1024.jpg) ](https://paintingsbysummer.com/) 

Check out the beautiful artworks by [**Paintings by Summer**](https://paintingsbysummer.com/). Ask her about her techniques & purchase some art!

 [ ![AMCSI24_exhibitor_theresa](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_exhibitor_theresa-artist-2-1024x1024.jpg) ](https://www.theresalucas.com/) 

Continueing the creative trend, stop by [**Theresa Lucas Artist**](https://www.theresalucas.com/) table and get creative with Theresa!

 [ ![AMCSI24_exhibitor_valeries](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI24_exhibitor_valeries-remarkable-steps-1024x1024.jpg) ](https://www.amazon.com/Valeries-Remarkable-Steps-Valerie-Pepe/dp/1735846074) 

Ask Valerie about her true stories from her children’s book [**Valerie’s Remarkable Steps**](https://www.amazon.com/Valeries-Remarkable-Steps-Valerie-Pepe/dp/1735846074).

**Hyatt Regancy Atlanta**
In Atlanta, Georgia | July 3 – July 6 • 2024

### See You In Altanta!

## [**Register Today!**](https://amcsupport.org/19th-annual-amcsi-conference/)

### [**EXHIBITOR SIGNUP FORM**](https://amcsupport.org/19th-exhibitor-form)

[**Download PDF of full 2024 Conference Sales Kit**](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI24_Sponsorship_Exhibitor_Kit-REV2.pdf)

**Categories:** 19th Exhibitors, AMCSI Annual Conference, Arthrogryposis

**Tags:** 19th Annual AMCSI Conference, Exhibitors

---

### [Membership Tiers](https://amcsupport.org/membership-tiers/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Categories:** Membership Info, Membership Tiers

**Tags:** Membership Info, Membership Tiers

---

### [Logo Usage](https://amcsupport.org/logo-usage/)

**Published:** January 5, 2024
**Author:** Ted Houser

**Content:**

### Logo/Design Usage

All AMCSI logos/designs, including the names and logos set forth herein, may not be altered or redrawn in any way, including changes in typestyle, proportion, letter spacing, color or placement of the individual elements making up the logo.

Changing a key graphic element, however good your intentions may be, detracts from the consistency of AMCSI’s logos.

You must follow these usage guidelines:

1. The words “Arthrogryposis Multiplex Congenita Support, Inc.” and the footprints should never be separated or switched around. Both elements are locked up.
2. A minimum of 0.25 inches of clear space needs to surround the logo to separate it from other elements, such as logos and symbols. This area, referred to as the area of non-interference, will preserve the visual impact and legibility of the AMCSI logo.
3. No other logos, symbols, words, designs or trademarks should be used near or combined with the AMCSI logo.
4. Do not add any graphic elements around the logo within the area of non-interference.
5. Do not place the logo on a heavily patterned background.
6. Do not stretch or distort the logo.
7. Do not substitute other typefaces or fonts for the logotype.
8. Do not enclose the logo in any shapes.
9. Do not change the letterspacing of the logotype or move the footprints in relation to the logotype.
10. Do not place type within the area of non-interference.
11. Do not use the footprint design alone.
12. Do not change the color of the logo, it should ALWAYS be Dark Blue (unless printed in grayscale).
13. Do not place images or clip art next to the logo.
14. Terms and Conditions

The logos can be provided are for non-commercial media use only. The use of these logos by any person other than the media or for commercial purposes is strictly prohibited unless such use is granted by the AMCSI Board of Directors.

If you have any questions please email [info@amcsupport.org]()

**Categories:** Arthrogryposis

**Tags:** Logo, Logo Usage

---

### [Disclaimer](https://amcsupport.org/disclaimer/)

**Published:** January 5, 2024
**Author:** Ted Houser

**Content:**

### Disclaimer

This site is not intended to provide diagnosis, treatment or medical advice. It is for informational purposes only and is not intended to take the place of a trained medial professional who knows the details of your medical history. Readers are advised to consult with a physician or other qualified health professional regarding any treatment.

**Categories:** Arthrogryposis

**Tags:** Diagnosis, Disclaimer, Informational, Medical Advice

---

### [Copyright Notice](https://amcsupport.org/copyright-notice/)

**Published:** January 5, 2024
**Author:** Ted Houser

**Content:**

### Copyright Notice

This website and ALL content is protected under the U.S. copyright laws and it is the exclusive property of Arthrogryposis Multiplex Congenita Support, Inc., [www.amcsupport.org](https://amcsupport.org/).

The commercial and/or non-commercial use of content found within this website is prohibited. This includes, but is not limited to: photos, videos, logos, graphic designs or text. The reproduction or distribution of the contents in any form is prohibited by law, without advance written permission from Arthrogryposis Multiplex Congenita Support, Inc. To request permission, please email .

**Categories:** Arthrogryposis

**Tags:** Copyright

---

### [How To Participate](https://amcsupport.org/how-to-participate/)

**Published:** January 4, 2024
**Author:** Ted Houser

**Content:**

# HOW TO PARTICIPATE:

### To Create/Join A Team:

Please click on this link [**253 For AMC**](https://givebutter.com/253foramc) and follow the steps below:

### **STEP 1**
Click on Create/Join A Team

 ![](https://amcsupport.org/wp-content/uploads/2024/01/Step1.jpg) 

### **STEP 2** Add Your Info & Click Sign Up

 ![](https://amcsupport.org/wp-content/uploads/2024/01/Step2.jpg) 

### **STEP 3** Choose a Team OR Create Your Own

 ![](https://amcsupport.org/wp-content/uploads/2024/01/Step3.jpg) 

### OR DONATE DIRECTLY BELOW!

**Categories:** 253 For AMC, AMC Events

**Tags:** 253 For AMC, AMC Events

---

### [Privacy Policy](https://amcsupport.org/privacy-policy/)

**Published:** January 5, 2024
**Author:** Ted Houser

**Content:**

### Privacy Policy

Your privacy is important to Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI).

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) attaches great importance to protecting personal data and maintaining privacy.

This policy describes the types of personal information we may collect from you, the purposes for which we use the information, the circumstances in which we may share the information and the steps that we take to safeguard the information to protect your privacy.

The personal data we collect and why

When entering your data into the online membership registration site (Eventbrite: privacy policy), we collect this data from you for the purpose of registering your membership to Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI). You are not required to supply any of the information that we request. However, choosing not to do so may result in our being unable to become a member of Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI).

Use and disclosure of your personal data

By submitting this membership form you consent to the processing of all entered information by Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) and online registration site (Eventbrite) as described in this privacy statement.

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) will use the personal information to process your membership, communicate with you (including but not limited to: Mail, telephone, email, and social media), and obtain your feedback in regard to the organization. In doing so, your information may be transferred throughout Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) and shared with members of Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) serving as volunteers in carrying out our Mission and Vision Statement

Arthrogryposis Multiplex Congenita Support, Inc., (AMCSI) shows general geographical information about members on www.amcsupport.org. This information includes the cities and countries of our members. This information is publicly available to all visitors to https://amcsupport.org/membershipmap.html.

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) will not sell or disclose your personal data to other third parties without your express consent.

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) does not share your personally identifiable information with other organizations for their marketing or promotional uses without your prior express consent.

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) may only use the data to provide you with further information from Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) if you opt-in this service by ticking the relevant box on the membership application.

We may disclose member information to affiliated companies or other businesses or persons to: provide website hosting, maintenance, and security services; fulfill orders; conduct data analysis and create reports; and assist Arthrogryposis Multiplex Congenita Support, Inc., (AMCSI) in improvement of our organization. We require these parties process all information in compliance with this Privacy Notice, and we authorize only a limited use of such information, and we require these parties to use reasonable security to maintain confidentiality.

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) may disclose your personally identifiable information if required to do so by law or in the good faith belief that such action is necessary to comply with state and federal laws or respond to a court order, judicial or other government subpoena, or warrant in the manner required by the requesting entity.

Arthrogryposis Multiplex Congenita Support, Inc.(AMCSI) reserves the right to disclose member information that we believe, in good faith, is appropriate or necessary: to take precautions against liability; to protect Arthrogryposis Multiplex Congenita Support, Inc., (AMCSI) from fraudulent, abusive, or unlawful uses; to investigate and defend ourselves against third-party claims or allegations; to assist government enforcement agencies; to protect the security or integrity of the Arthrogryposis Multiplex Congenita Support, Inc., (AMCSI) www.amcsupport.org; or to protect the rights, property, or personal safety of Arthrogryposis Multiplex Congenita Support, Inc., (AMCSI), our Users, or others.

**OUR COMMITMENT TO DATA SECURITY**

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) utilizes commercially reasonable physical and technical safeguards to maintain the integrity and security of personal information. We cannot however guarantee ensure or warrant the security of information transmitted to Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI), and therefore you do so at your own risk. Once your information is in the possession of Arthrogryposis Multiplex Congenita Support, Inc.(AMCSI), commercially reasonable physical and technical safeguards are in place to maintain the integrity and security of personal information However, this in no way implies a guarantee that personal information may not be accessed, altered, misused, disseminated or destroyed by a breach of our security.

If at any time, Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) learns of a breach of security, we will attempt to notify you electronically so that you can make appropriate arrangements to minimize impact. Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) utilizes commercially reasonable physical and technical safeguards to maintain the integrity and security of personal information. Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) will also post a notice on our website www.amcsupport.org if a breach of security occurs.

**OUR COMMITMENT TO CHILDREN’S PRIVACY**

If you are under 13 years of age, you may not become a member of Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) without the express consent of a custodial parent or guardian.

If you are under 13 years of age, please do not become a member of Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI)

Protecting the privacy of children is very important to us, for that reason, Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) does not knowingly collect or maintain personally identifiable information for persons under 13 years of age, beyond that information provided by a parent or guardian for conference registration. (See conference registration privacy policy) If Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) learns that personally identifiable information of a person less than 13 years of age has been collected without express consent of a parent or guardian, Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) will take the appropriate steps to delete this information.

If you are the parent or legal guardian of a child under 13 who has independently become a member without your express consent, please notify Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) by sending a written request to the email or address below. Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) will then take the appropriate steps terminate that child’s membership and delete their information. You may be required to supply a valid means of identification as a security precaution to assist us in preventing the unauthorized disclosure of the child’s personal information. We will process your request within the time provided by applicable law

[**INFO@AMCSUPPORT.ORG**](mailto:INFO@AMCSUPPORT.ORG)
or
**Arthrogryposis Multiplex Congenita Support, Inc.**
P.O. Box 6291
Spartanburg, SC 29304

International Members

Members joining Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) from the European Economic Area or other Non-United States Territories, please note that any data you enter into the online registration site (Eventbrite) will be transferred outside the European economic area or other Non-United States Territory for use by Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) and its affiliates for the purposes described in this policy. You hereby expressly consent to such transfers of your data to the United States and other countries.

Controlling your personal data

You are entitled to access any personal data about you held by Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) by sending a written request to the email or address below. You may be required to supply a valid means of identification as a security precaution to assist us in preventing the unauthorized disclosure of your personal information. We will process your request within the time provided by applicable law.

You are also entitled to have Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) modify or delete any information that you believe is incorrect or out of date. Please contact the individual identified below.

If you decide that Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) may provide you with further information from Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) by ticking the relevant opt-in box in the online registration form and you do not wish to get such information any longer please contact the Board of Directors.

[**INFO@AMCSUPPORT.ORG**](mailto:INFO@AMCSUPPORT.ORG)
or
**Arthrogryposis Multiplex Congenita Support, Inc.**
P.O. Box 6291
Spartanburg, SC 29304

Additional information

If your relationship with Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) ends, we will continue to treat your personal data, to the extent we retain it, as described in this privacy statement.

Updating this statement

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) may update this privacy policy by posting a new version on this website. You should check this page occasionally to ensure you are familiar with any changes.

**Categories:** Arthrogryposis

**Tags:** Arthrogryposis, Privacy, Privacy Policy

---

### [Height and Weight](https://amcsupport.org/height-and-weight/)

**Published:** January 9, 2024
**Author:** Ted Houser

**Content:**

## Height and Weight

Information is being collected to plot data specifically for AMCers under the age of 2 to compare with traditional growth curves.

However, if you have info for an older AMCer over the age of 2, you can also share your info. Please feel free to submit your data as many times as you would like if you have saved your AMCer’s growth data over time.

## Growth Data for AMCers

You can share growth data for yourself or your AMCer by clicking the button below.

 [  Share Data  ](https://docs.google.com/forms/d/e/1FAIpQLSdteW2PEcTfxMi5aFUMsjnhRtNcL7fo1NJ8yrc9MZ6oDhOPEg/viewform) 

*We do NOT collect any personal information with this form. Submission of data is completely voluntary.*

Data collected through November 11, 2020 has been plotted against “traditional” growth charts from the World Health Organization. You may download the charts using the link below. Please note

Data for “traditional” growth charts was taken from the World Health Organization’s Traditional Growth Chart sheet.

Families and individuals impacted by AMC were permitted to anonymously submit height and weight information online via a Google Form.

No verification or additional quality control was performed on this data. Furthermore this information has not been reviewed by anyone in a professional medical capacity.

Minor corrections were made to submitted data to convert measurements to consistent units (e.g. 22 and 1/2 inches changed to 22.5 inches).

Data were plotted for AMCers by sex, age, and diagnosis against the WHO growth charts/percentiles. AMCer data are shown in black markers in the sheets: “Weight Chart – Boys”, “Weight Chart – Girls”, “Length Chart – Boys” and “Length Chart – Girls”.

This information is shared purely for informational purposes only and is not meant to substitute for the advice provided by your own physician or other medical professional. This information is not intended to diagnose, treat, cure, or prevent any disease and should not be treated as medical advice. AMCSI assumes no responsibility for the improper use of and self-diagnosis and/or treatment using this information. For any suspected or known illness or health concern, always consult with your physician or health care provider

Download current data below!

 [  Download  ](https://amcsupport.org/wp-content/uploads/2024/01/AMCer-growth-data-as-of-April-7-2018.pdf)

**Categories:** Find Supprt, Research

**Tags:** Find Support, Height and Weight, Research

---

### [Covid Research](https://amcsupport.org/covid-research/)

**Published:** January 9, 2024
**Author:** Ted Houser

**Content:**

![](https://amcsupport.org/wp-content/uploads/2023/12/covid_survey-785x1024.jpg) 

We are doing a quick survey to understand the impact the last 3 yrs have had on people with AMC. Many of you have responded and completed it – thank you!

Some have expressed participating in the COVID survey but have not completed the survey. We ask that you take 10 minutes to do so. You will see the consent form looks similar, but the add-on COVID study is in the consent. Please continue on to the consent click-box & the new survey will appear.

For those who have not expressed interest yet, please email me ([**bonita.sawatzky@ubc.ca**](mailto:bonita.sawatzky@ubc.ca)) & I’ll send you the link and the ID # that belongs to you. You need this to do the survey.

Thank you so much. Also, a quick heads up, we are planning our first webinar for AMC for anyone interested on May 23rd at 12 pm noon PST. Our topic is Exercise and Fitness in AMC: what can it look like?

Bonita Sawatzky, PhD
Associate Professor, Director | Respect, Equity, Accessibility
Diversity & Inclusion (READI)
Faculty of Medicine, Department of Orthopaedics
The University of British Columbia | IVGH

**Categories:** Find Supprt, Research

**Tags:** Covid Research, Find Support, Research

---

### [Proclamations](https://amcsupport.org/proclamations/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## Proclamations

## AMC Awareness Day Proclamation FAQ

#### What is a proclamation?

A proclamation is a formal public statement. It is a major statement made in front of an audience or the authoritative word on some subject. It’s most often used in an official or government context. Proclamations can be created at the local, state, and federal level.

#### Why do I have to request a proclamation every year?

A proclamation is an official document to commemorate a specific time period (day, week, or month) for the purpose of raising awareness about an issue, or celebrating milestones. Therefore, if a proclamation has been issued in the past, a new request still needs to be requested each year.

#### Why is it important to obtain proclamations?

Proclamations are a great way to raise awareness within your community about arthrogryposis. You can use the proclamation for media outreach and social media.

#### Where do I request proclamations from?

Municipalities include: Governor’s office, Town, Cities, Boroughs, Counties or Parishes. A city or county website may list appropriate contacts.

#### Who do I request proclamations from?

A state Governor, Mayor, First Selectman, City Council or County Commission’s office

#### How do I get started in obtaining a proclamation?

Email AMCSIBOD@gmail.com to sign up for your state. We will maintain a list so our volunteers don’t duplicate efforts. If there is another volunteer working on your state, we can put you in contact with them to join forces.

Most states request submission of a request 2 months prior to AMC Awareness Day, June 30 each year.

Follow up 10 to 14 days after you submit the request.

#### What happens when I get the proclamation?

Share with AMCSI and the AMC community and flood the internet with photos. Don’t forget to add hashtags #AMCAwareness, #arthrogryposis and #AMCAwareness2019

Write a letter, post on officials Facebook and\\or Twitter account to the mayor, governor or legislators and thank them for their support in bringing official attention to Arthrogryposis.

#### What do I write?

Here is an example of what to write:

- **Organization:** AMC Support
    **Website:** AMCSUPPORT.ORG
- Arthrogryposis Awareness Day Proclamation
- **Whereas:** Arthrogryposis Multiplex Congenita (AMC) is a condition that causes many joints to be stiff and crooked at birth. A newborn with arthrogryposis lacks the normal range of motion in one or more joints. This condition develops prenatally and can be caused by an underlying condition or syndrome; andWhereas: Arthrogryposis Multiplex Congenita is an umbrella diagnosis, meaning that it is a part of many other
    conditions and syndromes. There are over 400 different types of AMC of which Amyoplasia, Distal Escobar Syndrome is the most common: and
- **Whereas:** A newborn has to have three contracted joints in two different body areas to be diagnosed with arthrogrypoisis. This occurs in 1 in 3,000 births; and
- **Whereas:** Joints that can be affected by AMC include the joints in the hands, feet, hips, knees, elbows, shoulders, wrists, fingers, toes, as well as the jaw and the spine. Though all joints can be affected, some may be unaffected as no two people experience the same symptoms; and
- **Whereas:** Though arthrogryposis is not curable, it is treatable. Treatment goals aim to allow those living with the condition as much independence in their daily lives as possible; now
- **Therefore:** I, Phil Murphy, Governor of New Jersey, do hereby proclaim June 30, 2021, as ARTHROGRYPOSIS AWARENESS DAY in New Jersey.

**Categories:** Arthrogryposis, Get Involved, Proclamations

**Tags:** Get Involved, Proclomations

---

### [Our Mission & Vision](https://amcsupport.org/our-mission-vision/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

![](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI-mission-and-vision-757x1024.jpg) 

# Our Mission

To provide and encourage more understanding and mutual support among anyone diagnosed with arthrogryposis multiplex congenita (AMC).

To create a higher AMC awareness standard through conferences, meetings, and studies.

 [  Become A Member  ](https://amcsupport.org/become-a-member/) 

# Our Vision

To provide educational material to new or soon-to-be parents regarding the diagnosis of Arthrogryposis Multiplex Congenita (AMC).

To provide a resource of information to the medical field to include, but not limited to, occupational therapists, physical therapists to assist them in treating a child or person with the diagnosis of AMC.

To provide ongoing support, resources & access to anyone with AMC.

**Categories:** About Us, Arthrogryposis, Our Mission &amp; Vision

**Tags:** About Us, Our Mission &amp; Vision

---

### [Press Release](https://amcsupport.org/press-release/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

# Press Release

 Become a Member & receive our “In The Know” Newsletters, PR Packets, Annual Reports, Conference information emails & more! 

 [  Become A Mamber  ](https://amcsupport.org/become-a-member/) 

May 2024 | PR Packet For Immediate Release
In this Press Release:

1\. #BlueForAMC Information 💙

2\. How To Celebrate AMC Awareness Ideas 💙

3\. Learn about getting Proclamations set up 
in your City 💙

4\. Where As Statement Example 💙

5\. AMCSI Facts & Information 💙

 [  Download PDF of PR Packet  ](https://amcsupport.org/wp-content/uploads/2024/01/AMCSI24_PR_Package.pdf) 

 ![Arthrogryposis Multiplex Congenita Support, Inc. PR Packet](https://amcsupport.org/wp-content/uploads/elementor/thumbs/AMCSI24_PR_Package-1-qj3qrpvbilt0d9azio41jzltypic39as80cmcfdclc.png "Arthrogryposis Multiplex Congenita Support, Inc. PR Packet")

**Categories:** About Us, Arthrogryposis, Press Release

**Tags:** About Us, Press Release

---

### [Types Of Therapy](https://amcsupport.org/types-of-therapy/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

![](https://amcsupport.org/wp-content/uploads/2023/12/dr-maureen-donohue-find-a-therapist.jpg) 

# Types of Therapy

#### Therapy

Physical therapy is a medical treatment used to restore functional movements, such as standing, walking, and moving different body parts. Physical therapy can be an effective treatment for medical conditions or injuries resulting in pain, movement dysfunction, or limited mobility.

#### Alternative Medicine & Therapies

Alternative medicine is any practice that is perceived by its users to have the healing effects of medicine, but does not originate from evidence gathered using the scientific method, is not part of biomedicine, or is contradicted by scientific evidence or established science.

AMCSupport.org does not condone nor support alternative types of therapies.

Please see [AMC-Alternative Treatments, Therapies](https://www.facebook.com/groups/391240540943943/) Facebook page for other alternate therapies.

### Aquatic Therapy

Aquatic therapy refers to treatments and exercises performed in water by a qualified aquatic therapist for relaxation, fitness, physical rehabilitation, and other therapeutic benefit.

### HippoTherapy 

Hippotherapy is the use of horseback riding as a therapeutic or rehabilitative treatment, especially as a means of improving coordination, balance, and strength.

### Physical Therapy

Physical therapy is the treatment of disease, injury, or deformity by physical methods such as massage, heat treatment, and exercise rather than by drugs or surgery.

### Occupational Therapy

Occupational therapy (OT) is the use of assessment and treatment to develop, recover, or maintain the daily living and work skills of people with a physical, mental, or cognitive disorder. Occupational therapists also focus much of their work on identifying and eliminating environmental barriers to independence and participation in daily activities.

### Craniosacral Therapy

Craniosacral Therapy (CST) is a gentle, hands-on approach that releases tensions deep in the body to relieve pain and dysfunction and improve whole-body health and performance. It was pioneered and developed by Osteopathic Physician John E. Upledger after years of clinical testing and research at Michigan State University where he served as professor of biomechanics. More info: .

### Kinesiology tape or K-Tape

Kinesiology tape is an elastic cotton strip with an acrylic adhesive that is used with the intent of treating pain and disability from athletic injuries and a variety of other physical disorders. Research suggests that elastic taping may help relieve pain, but not more than other treatment approaches, and there is no evidence that it can reduce disability.

### Speech Therapy

Speech therapy is the assessment and treatment of communication problems and speech disorders. It is performed by speech-language pathologists (SLPs), which are often referred to as speech therapists. Speech therapy techniques are used to improve communication.

### E-Stem or Electrical muscle stimulation

Electrical muscle stimulation (EMS), also known as neuromuscular electrical stimulation (NMES) or electromyostimulation is the elicitation of muscle contraction using electric impulses.

### Nerolink Therapy

Neurolink (NIS) is a neurological integration system based on neuroscience principles. The brain is the most knowledgeable about your body. With NIS, the brain makes the corrections needed by the body as it evaluates all aspects of body function and their interdependencies. More info: [https://www.youtube.com/watch?v=7TjqGKlbc1c&feature=youtu.be](https://www.youtube.com/watch?v=7TjqGKlbc1c&feature=youtu.be).

### The Field Center for Children's

The Field Center for Children’s Integrated Development is dedicated to eliminating long-term difficulties faced by children with developmental delays through the use of the Feldenkrais Method. To accomplish this, the center focuses on treatment, family involvement, education and scientific research. For more information go to

**Categories:** Arthrogryposis, Types Of Therapy, Where To Start

**Tags:** Types Of Therapy, Where To Start

---

### [Types Of Doctors](https://amcsupport.org/types-of-doctors/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

![](https://amcsupport.org/wp-content/uploads/2023/12/dr-haroldvb-patient.jpg) 

# Types of Doctors

#### Understanding Different Types Of Doctors

Depending on your diagnosis of Arthrogryposis, you may need to find a specific Doctor for a specific need. Below are descriptions of different medical professionals that can help you understand the medical terminology.

#### Locating a Doctor In Your Area

Location can also play an important role when searching for a Medical Specialist. We have gathered a large number of Medical Specialists across the US & in other international locations to help you make the best decision for you or your child diagnosed with Arthrogryposis.

Please click on the button below to view our full list of Doctors.

 [  Find A Doctor  ](https://amcsupport.org/find-a-doctor/) 

###  Cardiologists

Cardiologists are doctors with special training and skill in finding, treating and preventing diseases of the heart and blood vessels. To make a diagnosis, cardiologists may give physical exams, order tests, or prescribe medications, recommend lifestyle changes depending on the visit or findings.

### Craniofacial 

Craniofacial doctors work with abnormalities are birth defects of the face or head? Some, like cleft lip and palate, are among the most common of all birth defects.

### Dietitian

Dietitians are experts in dietetics; that is, human nutrition and the regulation of diet. A dietitian alters their patient’s nutrition based upon their medical condition and individual needs. Dietitians are regulated healthcare professionals licensed to assess, diagnose, and treat nutritional problems.

### Gastroenterologist

Gastroenterologist is a doctor that deals with disorders of the stomach and intestines.

### Geneticist

Geneticist is a biologist who studies genetics, the science of genes, heredity, and variation of organisms.

### Neurologist

Neurologist is a physician specializing in neurology and trained to investigate, or diagnose and treat neurological disorders.

### Occupational therapist (OT)

Occupational therapist (OT) works with a client to help them achieve a fulfilled and satisfied state in life through the use of “purposeful activity or interventions designed to achieve functional outcomes which promote health, prevent *injury or disability* and which develop, improve, sustain or restore the highest possible level of independence.”

### Ophthalmology

Ophthalmology is a specialist in medical and surgical eye problems.

### Orthopedic Surgeon or Orthopedists

Orthopedic Surgeon or Orthopedists is a physician who corrects congenital or functional abnormalities of the bones with surgery, casting and bracing. Orthopedists also treat injuries to the bones. There are Orthopedic Surgeons that specialize in the upper or lower part of the body.

### Otolaryngologist (ENT)

Otolaryngologist (ENT) are physicians trained in the medical and surgical management and treatment of patients with diseases and disorders of the ear, nose, throat (ENT), and related structures of the head and neck. They are commonly referred to as ENT physicians.

### Pediatrician

A *pediatrician* is a doctor who manages the health of your child, including physical, behavior, and mental health issues. He’s trained to diagnose and treat childhood illnesses — from minor health problems to serious diseases.

### Pediatrist

 Pediatrists are specialist in the care of babies. 

### Physiatrists

 Physiatrists are specialist physicians who treat patients that have had injuries or suffer from disabilities that affect physical and cognitive functioning. 

### Physical Therapist (PT) or Physiotherapy

Physical Therapist (PT) or Physiotherapy is physical medicine and rehabilitation specialty that, by using mechanical force and movements, remediates impairments and promotes mobility, function, and quality of life through examination, diagnosis, prognosis, and physical intervention.

### Primary care physicians

The primary care physician specializes in care of the whole person. The term is based on the idea that one goes to a primary care provider first and is then referred to other professionals.

### Pulmonologist

Pulmonologist is a medical specialist that deals with diseases involving the respiratory tract.

### Speech Therapist

Speech Therapist specializes in the evaluation, diagnosis, and treatment of communication disorders, cognition, voice disorders, and swallowing disorders.

**Categories:** Arthrogryposis, Types Of Doctors, Where To Start

**Tags:** Types Of Doctors, Where To Start

---

### [Shriners’ Greenville Mini-Meetups](https://amcsupport.org/shriners-greenville-mini-meetups/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

#### Shriner’s Greenville Mini-Meetup

## Greenville, South Carolina October 14, 2023

### Shriner’s Greenville Mini-Meetup October 14, 2023

A great day in Greenville, South Carolina, at the Shriners Hospital for Children. AMC families joined together for support, great conversations, pizza, and fun! It was great seeing our Florida and Georgia friends join us for this mini-meetup! We can’t wait to see you all again in April.

**Your support makes these mini-meetups possible!**

 [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-8.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-21.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-3.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-5.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-7.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-23.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-17.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-11.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/1f4463f9-27e0-4be6-a50e-6fd37ec4ad6f.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-1.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-18.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-29.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-12.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-2.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-13.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-6.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-9.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-25.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-19.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-24.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-28.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-27.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-26.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-15.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-20.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-22.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-30.jpg) [ ](https://amcsupport.org/wp-content/uploads/2023/12/Shriners-Greenville-Mini-Meetup-10-14-23-10.jpg)

**Categories:** AMC Events, Arthrogryposis, Shriners’ Greenville Mini-Meetups

**Tags:** AMC Events, Shriners’ Greenville Mini-Meetups

---

### [Variations Of AMC](https://amcsupport.org/variations-of-amc/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Content:**

## Amyoplasia

#### What is Amyoplasia?

Amyoplasia (A = no, myo=muscle, plasia=growth) means no muscle growth and is the most common type of AMC . It is estimated that one third of people born with AMC will have Amyoplasia, about 1 in 10,000 and it’s typically referred to as ‘Classical type AMC.’ This is considered the non-genetic form of AMC, meaning there has been no mutation in the genes to cause the condition to be present, and is not passed down from the parents.

Common traits of people with Amyoplasia are:

- Affected in both arms and legs, and often the spine
- Internally rotated shoulders
- Extended elbows
- Flexed wrists
- Contractors of the fingers
- Lower limbs can be stuck in various positions
- Hips can have flexion/abduction/external rotational contractures (Buddha position or frog position)
- Dislocated hips (about 30%)
- Hip extension contractures (less common)
- Flexion contractures of the knees
- Extension contractures of the knees (less common)
- Club feet
- About 10% affected individuals may have squashed or missing fingers and toes. (less common)
- Scoliosis (20-30%)
- Splotchy red mark on the face (stork bite)
- About 10% of Amyoplasia cases individuals may have abdominal abnormalities such as gastroschisis. Gastroschisis is a condition in which a hole is present in the wall of the abdomen allowing the intestines to intrude out of the abdominal space. (less common)
- Normal or above average intelligence

---

References:

Amyoplasia – Arthrogryposis A Text Atlas. By: Judith G Hall MD, Lynn T Staheli MD, Kenneth M Jaffe MD, Diane O Paholke.

Amyoplaisia Revisited. By: Dr. Judith Hall

## Distal

People with distal arthrogryposis (DA) are primarily affected in the hands and feet. Other areas and body functions can be affected depending on what type one has. There are currently 20+ different types of DA all of which are linked back to genetic mutations. The best way to learn about you or your child’s specific type is to discuss it with health care providers and people in the AMC community. Here are a few of the more common types of distal arthrogryposis.

#### Type 1:

Type 1 is characterized by joint deformities that restrict movement in the hands and feet.

#### Common traits of distal type 1 are:

- Facial sparing
- Multiple contractures in hands and feet
- Clenched hands
- Overlapping fingers
- A hand deformity in which all of the fingers are angled outward toward the little finger. This is called ulnar deviation
- Hips and knees can be affected but it is less common and usually mild
- Club feet

#### Type 2A (Freeman-Sheldon Syndrome):

Freeman-Sheldon Syndrome primarily affects the hands, feet and face. Distinctive facial features such as a small mouth, with purse lips give the appearance of a whistling face, hence also being called “Whistling Face Syndrome”.

Common traits of Freeman-Sheldon Syndrome are:

- Prominent forehead and brow ridges
- Widely spaced eyes
- Deep set eyes
- Outside corner of the eyes that point downward
- Narrowing of the eye openings
- Droopy eye lids
- Eyes that do not look in the same direction
- Sunken appearance of the middle of the face
- Short nose and a long area between the nose and the mouth
- Deep folds in the skin between the nose and lips
- Full cheeks
- Small mouth with pursed lips
- Chin dimple shaped like an H or a V
- Small tongue and jaw and a high arch in the roof of the mouth
- Difficulty swallowing
- Multiple contractors in hands and feet
- A hand deformity in which all of the fingers are angled outward toward the little finger. This is called ulnar deviation.
- Club feet
- Spine that curves to the side (scoliosis)
- Failure to gain weight and grow at expected weight
- Respiratory complications
- Speech problems
- Hearing loss
- Malignant hyperthermia (MH) is a condition where people have negative reactions to certain drugs used during general anesthesia. If it is of concern you can speak to your doctor about avoiding the use of succinylcholine during general anesthesia.

#### Type 2B (Sheldon-Hall Syndrome):

Sheldon-Hall Syndrome is similar to Freeman Sheldon Syndrome in that both have joint contractures of various areas of the body. However there are enough differences between the two that they are considered separate conditions.

Common traits of Sheldon-Hall Syndrome are:

- Triangular shaped face
- Outside corner of the eyes that point downward
- Deep folds in the skin between the nose and lips
- Attached ear lobes
- Small mouth with pursed lips
- High arched roof of the mouth
- Extra folds of skin on the neck
- Permanently bent fingers and toes
- Overlapping fingers
- A hand deformity in which all of the fingers are angled outward toward the little finger. This is called ulnar deviation.
- Club feet
- Vertical talus deformity

#### Type 9 (Beals Syndrome):

Beals syndrome is also known as congenital contractural archnodactyly (CCA) and has many of the same features as Marfan Syndrome. While Beals and Marfan share similar features they are also very distinct in the way they affect a person so it is important to obtain a accurate diagnosis so appropriate treatment can be given.

Common traits of Beals syndrome are:

- Abnormally shaped ears resulting in a crumpled appearance
- Unusually small jaw and or high arched palate
- Abnormal short neck
- Rounded upper back
- Chest sinks in or sticks out
- Long narrow body type with long limbs
- Abnormally long slender fingers and toes
- Joints being stuck in a permanent flexed position
- Contractors in elbows and hands
- Contractures in feet
- Club feet
- Contractures affecting the hips, knees and ankles
- Curved spine (scoliosis)
- Backward or lateral curved spine
- Reduced bone mass
- Underdeveloped muscles
- Cardiovascular complications. It is recommended that those with Beals Syndrome have their heart monitored yearly as a precaution because on occasion heart issues like aortic enlargement or mitral valve regurgitation can occur.

---

References:

[Distal type 1 ](https://ghr.nlm.nih.gov)

[Disable World](https://www.disabled-world.com)

[Distal type 2A *(Freeman Sheldon)*](https://ghr.nlm.nih.gov)

[Malignant Hyperthermia, Coexisting Disorders, and Enzymopathies: Risks and Management Options. By: Joan Benca,MD & Kirk Hogan MD, JD.](https://pubmed.ncbi.nlm.nih.gov/19762731/)

[Distal type 2B *(Sheldon Hall)*](https://ghr.nlm.nih.gov)

[Orphanet Journal of Rare Diseases](https://ojrd.biomedcentral.com)

[Distal type 9 *(Beals – NORD)*](https://rarediseases.org)

[Escobar Syndrome](https://ghr.nlm.nih.gov)

## Upper Extremities

*This site is not intended to provide diagnosis, treatment or medical advice. It is for informational purposes only and is not intended to take the place of a trained medial professional who knows the details of your medical history. Readers are advised to consult with a physician or other qualified health professional regarding any treatment.*

####  Common Upper Extremity Characteristics:

- Internal Rotation of the Shoulders
- Extension or Flexion Contractures of the Elbow
- Flexion Contractures of the Wrists
- Thumb in Palm
- Extension or Flexion Contractures of Individual Fingers

#### Courses of Treatment:

**Therapy**

Occupational Therapy (OT) and/ or Physical Therapy (PT) should begin as soon as possible to increase passive range of motion (ROM). This can be done through a clinic or at home with your local Early Intervention Provider. Either way you should be taught stretches to do at home with your child. The first year is crucial to gain range back in any joint. Here are some representative common stretches to try. Always speak to your child’s health care professional before starting any kind of new routine. Read more about different [Types of Therapy](https://amcsupport.org/types-of-therapy/).

**Stretches**

A therapist should evaluate and identify joints requiring therapeutic attention, and then teach the caregiver how to correctly stretch the joints. The caregiver should practice stretching under supervision to insure proper technique to prevent accidental injuries, and to under exercise expectations. Issues such as previous surgeries, medication, bone density, etc., must be considered. Ranges of motion (ROM) exercises are individualized for each persons’ needs and should be directed by a therapist or a doctor. When performing stretches with a child, it is important to have the activity be fun and functional. Action songs, feeding, and dressing activities are all opportunities to naturally encourage upper body ROM activities.

**Orthotic Management**

Supporting the wrists in the best possible alignment should start as early as possible. Splinting the wrists and hands in infancy allows the soft tissue to lengthen and takes advantage of the infant’s flexibility. Splints may also be recommended for elbow or shoulder as well. Splints come in a wide variety of materials and shapes to help meet the individual’s specific needs. Sometimes several different orthotics are recommended at the same time, allowing greater stretch during inactive portions of the day while greater opportunity for functional activities at active times of the day. Here are some examples of types of upper extremity orthotics one may encounter:

Dynamic Splints: Dynamic splints push the joint into greater stretch when the limb relaxes. These orthotics typically are heavy and bulky so are not typically used for very small children. Dynamic splints are best used for joints that only move in one place such as an elbow. Some of the brands associated with this type of passive stretching include:

- Bamboo Splint – a dynamic elbow splint for children with special needs that encourages extension of the elbow at more favorable angles in order to learn gross and fine motor skills as well as prevent undesired (oral/facial) interaction. Learn more: [Bamboo Brace](http://www.bamboobrace.com/company)
- Dyansplint – stretches joints that are lacking range of motion. Learn more: [Dynasplint](http://www.dynasplint.com/)
- JAS: Joint Active System- This is a device used to progressively gain range of motion but is used most frequently with individuals that have larger extremities. Learn more: [Joint Active Systems](http://jointactivesystems.com/)
- Ultraflex- Learn more: [Ultraflex Systems](http://www.ultraflexsystems.com/)

Static Splints: Static Splints are designed to hold an extremity or a joint at the same angle each time the brace is put on. It may be designed to allow support, holding the joints for stability while allowing functional tasks or for stretch, holding the joint at end range alignment while the person relaxes in the stretch. Some examples of static splints are as follows:

- Benik – Soft neoprene splints with a metal bar that can be manipulated to provide different amounts of stretch. Learn more: [Benik](http://www.benik.com/)
- Bivalved cast: The limb is casted using plaster and/ or fiberglass casting material. Once hardened, the cast is carefully removed then finished with moleskin and velcro to allow the individual to wear the cast for times of stretch but remove it when it is not needed.
- Custom Molded Splints – These are fabricated by an OT, a PT, or an Orthotist. Usually these splints are fabricated out of a thermoplastic material (plastic which is heated to allow it to mold easily) molded directly on the individual’s extremity. Often the splints are secured with velcro straps. These orthotics hold the joint in one position to allow a prolonged stretch
- Joe Cool Splint – Thumb abduction splints made of soft, flexible neoprene and have an adjustable hook and loop closure system. They do have a latex component, and they can be hand washed in cold water (line dry). Learn more: [Joe Cool](http://www.joecoolco.com/)

#### Surgery

Often with children who have little passive elbow flexion, surgery is recommended. Doctors often recommend an elbow capsular release as early as a year, but usually within the first 5 years of life. This may be delayed to ensure that the child is ambulatory before changing the power of straight elbows. This is a surgery done by releasing the tight fibrous structures in the elbow that constrict movement. After this if a child still does not develop any active flexion or enough functional passive flexion doctors may recommend a muscle transfer to provide elbow bending (flexion). This depends on the quality of the donor muscles as well. Common muscles used are the muscle from the back (latissimus dorsi), or a part of the triceps (referred to as a split triceps transfer). Most doctors will not perform this surgery on children under 4 or 5, because the child needs to participate in the therapy following the surgery to re-train the muscle motion, wear splints to protect the transfer, etc. Every doctor is different in how aggressively they treat upper extremity problems. Some doctors do not believe this surgery is effective at all and may not offer this as an option to their patients. In addition there are also several hand surgeries that can be performed. For children with a serious flexion contracture in their wrists a small triangular wedge of bone (wedge osteotomy) can be removed to bring the wrist to a more neutral resting position. There are also surgeries for thumb-in-palm, if extremely severe, and various finger surgeries. With the future of needing thumb position for management of touch screens and electronic devices for text messaging, thumb alignment is being looked at more critically than it ever before, in order to maximize long term function.

## Lower Extremities

#### Common Lower Extremity Characteristics:

- Common contractures of the legs present at birth
- Clubfeet or vertical talus,
- Dislocated hips,
- Externally rotated femurs
- Flexion or extension contractures Of the knees

####  Courses of Treatment:

 **Therapy**

Occupational Therapy (OT) and/ or Physical Therapy (PT) should begin as soon as possible to increase passive range of motion (ROM). This can be done through a clinic or at home with your local Early Intervention Provider. Either way you should be taught stretches to do at home with your child. The first year is crucial to gain range back in any joint. Here are some representative common stretches to try. Always speak to your child’s health care professional before starting any kind of new routine. Read more about different [Types of Therapy](https://amcsupport.org/types-of-therapy/).

**Stretches**

A therapist should evaluate and identify joints requiring therapeutic attention, and then teach the caregiver how to correctly stretch the joints. The caregiver should practice stretching under supervision to insure proper technique to prevent accidental injuries, and to under exercise expectations. Issues such as previous surgeries, medication, bone density, etc., must be considered. Ranges of motion (ROM) exercises are individualized for each persons’ needs and should be directed by a therapist or a doctor. When performing stretches with a child, it is important to have the activity be fun and functional. Action songs, feeding, and dressing activities are all opportunities to naturally encourage upper body ROM activities.

We are researching orthotic management and surgeries for lower extremities. Please check back soon.

## Other Types of Arthrogryposis

This category is one of the most complex due to the fact that there are over 250 different diagnosis. Anything that is not Distal or Amyoplasia AMC goes into everything else category.

These include,but not limited too:

- Pterygium syndromes
- Lethal conditions
- Atypical AMC

#### Pterygium syndromes

Pterygium syndrome is a congenital condition where webbing of the skin occurs around the joints causing a lack of muscle movement which then causes muscle weakness and joint contractures. Escobar syndrome and Lethal multiple pterygium syndrome are a few pterygium syndromes that are connected to AMC. Escobar type multiple pterygium syndrome (Escobar syndrome). There are different types of pterygium syndromes, Escobar being one of the more common types.

Common traits of Escobar syndrome are:

Webbing of the skin that affects

- Skin on the neck
- Fingers
- Forearms
- Inner thighs
- Backs of knees

Other Features

- Droopy eye lids
- Outside corners of the eyes point downward
- Skin folds covering the inner corner of the eyes
- Low set ears
- Small jaw
- Arms and legs that cannot fully extend
- Scoliosis
- Respiratory distress at birth due to underdeveloped lungs
- Males can have undescended testes

Lethal multiple pterygium syndrome is tragically individuals with this form of multiple pterygium syndrome typically do not make it past the 2nd or 3rd trimester of pregnancy.

Common traits of Lethal multiple pterygium syndrome are:

- Abnormally small head
- An opening in the roof of the mouth which is called cleft palet
- Fluid filled sac typically found on the back of the neck
- Excessive fluid in the body
- Severe multiple contractors
- Underdevelopment of the heart, lungs, or brain
- Twisting of the intestines
- Kidney abnormalities
- A hole in the muscle that separates the abdomen from the chest cavity

Lethal multiple pterygium syndrome also falls under the Lethal conditions subgroup in the Everything else category.

#### Lethal Conditions

Tragically it is estimated that 1/3 of babies born with AMC will either be still born or die during their first year of life. There are several forms of AMC that can be deadly. As mentioned above Lethal Multiple pterygium syndrome is one. Another is Cerebro-oculo-facio-skeletal (COFS) as well as Restrictive dermopathy. Cerebro-oculo-facio-skeletal syndrome (COFS) . People with COFS will progressively deteriorate and sadly many times will not survive past 7 years old.

Common traits of COFS can be:

- Extremely small head
- Abnormally small eyes
- Clouding of the eyes lens (cataract)
- Horizontally narrow opening between the eye lids
- Unusually prominent nose
- Abnormally large ears
- Upper lip over lapping lower lip
- Abnormally long groove in upper lip
- Unusually small jaw
- Elbows with flexion contractures
- One line in the palm of the hand formed by the fusion of two lines
- Hip deformities
- Knees with flexion contractures
- Congenital vertical talus deformity (rocker bottom)
- Grove over the length of the soles of the feet
- Osteoporosis
- Lack of muscle tone
- Feeding difficulties
- Vulnerability to respiratory infections
- Failure to thrive
- Developmental retardation

Restrictive dermopathy – Restrictive dermopathy is a lethal genetic skin condition that is connected to AMC. Unfortunately most born with Restrictive dermopathy will not make it past the first week of life.

Common traits of Restrictive dermopathy are:

- delayed and stunted prenatal growth
- reduced fetal movements
- excessive amount of amniotic fluid
- premature rupture of the membranes
- thin tight skin
- translucent skin
- skin with damage at body parts that bend
- facial dysmorphism
- joint ankylosis (stiffness or fixation of joints and/or union of separate bones to
- form a single bone)
- death with in the first week of life

#### Atypical AMC

Atypical AMC is a term used to describe individuals with a unknown type of AMC. AMC is rare and highly complex and it can take years for certain people to receive the diagnosis that caused AMC, and some may never receive a diagnosis at all. This can be a very long and frustrating journey for many families seeking answers about their loved ones with AMC, or a AMCer seeking answers for themselves.

AMCSI can connect you with support groups, other parents and caregivers through social media, mini-meet ups, and the yearly AMC conference. This will give you an enormous amount of moral support and also ideas for tools and adaptive equipment to help you or your child along.

AMC is a rare condition and it’s important to find an experienced doctor that will effectively treat you or your child. Whether you are Atypical or have a diagnosis you will need treatment and support groups are an excellent place to connect with others who can lead you in the right direction.

[Find a Doctor](https://amcsupport.org/find-a-doctor/)

---

References:

[Lethal multiple pterygium syndrome](https://ghr.nlm.nih.gov)

[Cerebo-oculo-facio-skeletal syndrome *(NORD)*](https://rarediseases.org)

[Restrictive Dermopaty](https://www.omim.org)

**Categories:** Arthrogryposis, Variations Of AMC, Where To Start

**Tags:** Variations Of AMC, Where To Start

---

### [Distal](https://amcsupport.org/distal/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Categories:** Arthrogryposis, Distal, Variations Of AMC, Where To Start

**Tags:** Distal, Variations Of AMC, Where To Start

---

### [Other Types Of AMC](https://amcsupport.org/other-types-of-amc/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Categories:** Arthrogryposis, Other Types Of AMC, Where To Start

**Tags:** Other Types Of AMC, Variations Of AMC

---

### [Upper & Lower Extremities](https://amcsupport.org/upper-lower-extremities/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Categories:** Arthrogryposis, Upper Extremities, Variations Of AMC, Where To Start

**Tags:** Upper &amp; Lower Extremities, Variations Of AMC, Where To Start

---

### [Amyoplasia](https://amcsupport.org/amyoplasia/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Categories:** Amyoplasia, Arthrogryposis, Variations Of AMC, Where To Start

**Tags:** Amyoplasia, Variations Of AMC, Where To Start

---

### [AMC Events](https://amcsupport.org/amc-events/)

**Published:** December 11, 2023
**Author:** Ted Houser

**Categories:** AMC Events, Arthrogryposis

**Tags:** AMC Events, AMCSI, Arthrogryposis

---


## Pages

### [Supporting Families with Arthrogryposis for over 20 Years](https://amcsupport.org/)

**Published:** December 8, 2023
**Author:** Ted Houser

**Excerpt:** Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) is the leading worldwide organization dedicated to supporting individuals and families affected by Arthrogryposis (AMC), a rare congenital condition. For over two decades, we've provided trusted information, heartfelt connection, and life-changing community to those navigating a new diagnosis or living with AMC. Whether you're a parent seeking guidance, an adult living with Arthrogryposis, or a medical professional looking for resources, AMCSI is here to inform, inspire, and connect. Join our global network and help us raise awareness, share hope, and build a brighter future for everyone affected by AMC.

**Content:**

# What is Arthrogryposis?

Arthrogryposis multiplex congenita (AMC) is a term used to describe a group of congenital conditions characterized by joint contractures in two or more body areas.

1 out of every 3,000 babies will have arthrogryposis, with over 500 known variations & we are here to help.

 [  Learn More  ](https://amcsupport.org/about-amc/) 

 [  Ways To Give  ](https://amcsupport.org/ways-to-give/) 

 [  Events/Fundrasors  ](https://amcsupport.org/upcoming-events-fundraisers/) 

### We encourage you to explore our extensive navigation bar, thoughtfully designed to help individuals and families affected by Arthrogryposis Multiplex Congenita (AMC) quickly find the support, information, and connections they need.

Whether you are a newly diagnosed family looking for guidance, searching for experienced AMC doctors and specialists, or hoping to connect through AMC events, conferences, and fundraisers, you’ll find a wide range of trusted resources available to you. Our site brings together educational materials, community support, financial assistance options, and real-life stories, all in one place, so you never have to navigate the AMC journey alone.

Take your time browsing through each section to discover tools, programs, and opportunities created to support every stage of life with AMC.

 [  New Diagnosis  ](https://amcsupport.org/new-diagnosis/) 

 [  Official AMC Store  ](https://amcsupport.org/store/) 

 [  Grants/Scholarships  ](https://amcsupport.org/grants/) 

 [  Find A Doctor/Specialist  ](https://amcsupport.org/find-a-doctor/) 

“I am very thankful that I found your website. Using the excellent information from your website, along with other sources, I have been able to help guide her care in a more informed way. Thank you again for providing information that helps families like ours navigate this stage of life with arthrogryposis.”

~ Greg T.

### AMCSI | Global Support for Arthrogryposis (AMC)

Trusted resources, expert guidance, and a worldwide community for individuals, families, and professionals navigating AMC. Connect, learn, and raise awareness with us.

 ![AMCSI - Pump and premature baby feeding in hospital](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI_New_Disgnosis-05-2.jpg) 

### New Diagnosis

If you are a parent of a child diagnosed with arthrogryposis multiplex congenita, please fill out the form below. A member of our team will reach out to you for support and resources.

 [  Submit Your Form Today  ](https://amcsupport.org/new-diagnosis/) 

### Our Vision

To provide educational material to new or soon-to-be parents regarding the diagnosis of Arthrogryposis Multiplex Congenita (AMC).

To provide a resource of information to the medical field to include, but not limited to, occupational therapists, physical therapists to assist them in treating a child or person with the diagnosis of AMC.

To provide ongoing support, resources & access to anyone with AMC.

### Ways to Give

There are so many meaningful ways to make a difference for the AMC community! 💙
Whether you choose to donate once, give monthly, or start your own fundraiser, every gift helps AMCSI continue providing support, resources, and connections to families worldwide.

 [  Support Today  ](https://amcsupport.org/ways-to-give/) 

# Corporate Partnerships

 ![Cover of the AMCSI Corporate Impact Partnership Packet featuring individuals and families affected by Arthrogryposis within large "AMCSI" letters, highlighting corporate sponsorship and partnership opportunities that support research, accessibility, education, advocacy, and family programs.](https://amcsupport.org/wp-content/uploads/2026/07/AMCSI-Corporate-Impact-Partnership-cover-web.jpg) 

## Corporate Impact Partnership Program

AMCSI partners with corporations, foundations, and organizations that are committed to supporting research, accessibility, education, advocacy, and family programs for the Arthrogryposis community.

Our Corporate Impact Partnership Program offers multiple levels of engagement, from annual sponsorships to fully customized partnerships that align with your organization’s philanthropic and corporate social responsibility objectives.

To save from scrolling and go directly to the sections, please click below:
[Partnership Opportunities](https://amcsupport.org/corporate-partners/#partnerships) | [Signature Program Sponsorships](https://amcsupport.org/corporate-partners/#signature) | [Measuring Your Investment](https://amcsupport.org/corporate-partners/#measuring) | [Download The Partnership Packet](https://amcsupport.org/corporate-partners/#download)

 [  Become A Corporate Partner Today!  ](https://amcsupport.org/amcsi-corporate-impact-partnership-packet/) 

### Become A Member

Our AMC community fully funds all of our programs. We could not do any of this without the help of our membership, donors, sponsors, fundraisers, friends, and family. We appreciate each and every one of you.

AMCSI is a nationally recognized 501(c)(3) Non-Profit Organization.

 [  Become A Member  ](https://www.zeffy.com/en-US/ticketing/6808115b-4616-4e5c-bdae-9eb758bd4975) 

 [ ![AMCSI member using a power wheelchair smiles at the AMCSI Annual Conference beside a "Become A Member" message encouraging support for the Arthrogryposis community.](https://amcsupport.org/wp-content/uploads/2023/12/AMCSI26-membership-monday-8.jpg) ](https://www.zeffy.com/en-US/ticketing/6808115b-4616-4e5c-bdae-9eb758bd4975) 

 [ ![22nd Annual AMCSI Conference Logo](https://amcsupport.org/wp-content/uploads/2025/08/AMCOH27_logo-1920.png) ](https://amcsupport.org/22nd-annual-amcsi-conference/) 

##### Celebrating 22 years with our AMC family! We cannot wait to see you all!

## June 30 – July 3, 2027 in Columbus, Ohio

## Support the AMCSI Annual Conference

Support the AMCSI Annual Conference through sponsorships, exhibitor opportunities, program advertising, donations, or volunteer involvement. Your support helps provide educational sessions, adaptive recreation, family networking, youth and adult programs, and accessible experiences for individuals and families affected by Arthrogryposis Multiplex Congenita (AMC). Every contribution helps AMCSI continue hosting one of the most anticipated annual gatherings dedicated to the AMC community while expanding awareness, education, and support throughout the year.

 [  Download The Conference Sale Kit  ](https://amcsupport.org/22nd-annual-amcsi-conference/) 

### **Important Note:**

Please **do not contact hotels to make reservations at this time**. We are still finalizing our hotel block and group pricing. Early reservations made outside of our official block may not be eligible for adjustments once our arrangements are confirmed.

Thank you for your patience and support, we can’t wait to share what’s ahead!

 [  Learn more...  ](https://amcsupport.org/22nd-annual-amcsi-conference/) 

 [  OFFICIAL AMC STORE  ](https://amcsupport.org/store/) 

### AMC Community Testimonials

“There are few words to encompass the emotions of attending the AMCSI conference for the first time and as a grant recipient. The conference provided me with invaluable connections that have made me feel so accepted and excited to immerse myself further into our community.”

~ Kristen

“AMCSI is a wonderful organization for parents who have just learned that their baby/child has AMC. The Conference in Philadelphia was a life-changing experience for our daughter and us as parents.We owe many thanks to everyone associated with AMCSI!!”

~ NANDASS

“Since Ohio, I’ve felt lighter. Like a weight has been lifted and like I’ve finally looked in the mirror after being invisible for over 20 years. It feels as though my inner child finally got a big hug and was told that she would be okay. Ani, you gave me the greatest gift I’ve ever received and helped me meet people that will be in my life forever."

~ Skyler

 [  View All Testimonials  ](https://amcsupport.org/testimonials/) 

### Get Involved

##### Volunteer, join us every Tuesday on Facebook or our monthly Zoom sessions & more!

 [  Zoom Sessions  ](https://amcsupport.org/zoom-sessions-zoom-registration/) 

 [  Together Tuesdays  ](https://amcsupport.org/together-tuesdays/) 

 [  This Is How I... Series  ](https://amcsupport.org/this-is-how-i-series/) 

 [  Volunteer  ](https://amcsupport.org/volunteer/) 

 [ ![AMCSI 2026 July Newsletter cover](https://amcsupport.org/wp-content/uploads/2026/07/AMCSI26_July_Newsletter-cover-scaled.jpg) ](https://amcsupport.org/join-our-newsletter/) 

 [ ![](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI26_June_Newsletter-cover-index.webp) ](https://amcsupport.org/join-our-newsletter/) 

 [ ![](https://amcsupport.org/wp-content/uploads/2026/05/AMCSI26_May_Newsletter-cover.webp) ](https://amcsupport.org/join-our-newsletter/) 

 [ ![https://amcsupport.org/amcsi26_march_newsletter/ Featuring
Luca ‘Lazylegz’ Patuelli & Ill Abilities (pgs. 4-6) OUR VISION • Website Highlight - Ways To Give • Adult Zoom Every Saturday • Become A Member (pg. 2) AMCSUPPORT.ORG WEBSITE DIRECTORY (pg. 3) ALL ABOUT AMC: LEARNING TOGETHER! (pg. 7) ARTHROGRYPOSIS NEW PARENT INFORMATION PACKET (pg. 8) MONTHLY GIVING (pg. 9) ARE YOU A MEMBER? (pg. 10) GENERAL REGISTRATION (pg. 11) 21st ANNUAL AMCSI CONFERENCE • General Registration Is Open & Bee A Star - Prom • Conference Keynote Speaker Todd Craighead • Professional Guest Speakers • New Conference AMCer Exhibitor Whitney RMZ Creations • New Company Exhibitor Partners In Medicine • New Conference AMCer Exhibitor Project Lightning Bug • Jam With Julie & FAQs Info • Amazon Wishlist • Thank You To Our Sponsors • Become A Sponsor • Become An Exhibitor • Advertise In The Program (pg. 12-17) OTHER AMC/AMCSI NEWS • Zoom Monthly Preteen, Teen & Young Adult Hangouts • 14-year-old Lucy Rate wants the world to know wheelchair sports are ‘not easy sports’ • David Segal: Redefining What’s Possible Behind the Kit • CAAMC - Cincinnati Adaptive Arts & Music Camp • AMCSI Grant Spotlight • AMCSI Store (pgs. 18-23)](https://amcsupport.org/wp-content/uploads/2026/03/AMCSI26_March_Newsletter-cover-index.jpg) ](https://amcsupport.org/join-our-newsletter/) 

 [ ![Welcome to our January Newsletter. This issue opens the new year by highlighting the voices, resources, and opportunities that continue to strengthen the AMC community. Inside, you will meet Featured AMCER Althea Holmes, explore our vision for the year ahead, and find helpful tools such as the AMCSupport.org website directory, learning resources, and our new parent information packet. We also share updates on monthly giving, membership, early-bird conference registration, and detailed information about the 21st Annual AMCSI Conference, including speakers, exhibitors, and sponsorship opportunities. The newsletter concludes with community news, research updates, upcoming events, grants, and ways to stay connected and involved throughout the year.](https://amcsupport.org/wp-content/uploads/2026/01/AMCSI26_January_Newsletter-cover-index.jpg) ](https://amcsupport.org/join-our-newsletter/) 

 [ ![Featured AMCER | Doug Moreau (pgs. 5-7) Jalon Walker, LB for the Atlanta Falcons, supported AMCSI for his cousin Edwin & Doug was there to meet him! (pg. 8) OUR VISION (pg. 2) • Letter From Alexis | President • Adult Zoom Every Saturday • Become A Member AMCSUPPORT.ORG WEBSITE DIRECTORY (pg. 3) GIVING TUESDAY – Dec. 2, 2025 (pg. 4) AMCSI HALLOWEEN COSTUME CONTEST WINNER! (pg. 9) AMC HOLIDAY FUND (pg. 10) ALL ABOUT AMC: LEARNING TOGETHER! (pg. 11) ARTHROGRYPOSIS NEW PARENT INFORMATION PACKET (pg. 12) MONTHLY GIVING (pg. 13) ARE YOU A MEMBER? (pg. 14) ‘26 & ‘27 CONFERENCE LOCATIONS & DATES (pg. 15) EARLY-BIRD REGISTRATION (pg. 16) • Professional Guest Speakers 21st ANNUAL AMCSI CONFERENCE (pg. 17) • New Conference AMCer Exhibitor Whitney - RMZ Creations • New Company Exhibitor Partners In Medicine GET INVOLVED IN CONFERENCE! (pg. 18) • Become A Sponsor • Become An Exhibitor • Advertise In The Program OTHER AMC/AMCSI NEWS (pgs. 19-22) • Zoom Monthly Preteen & Teen Hangouts • Research: Global Perspectives on Arthrogryposis 
 From The Womb To Adulthood • Mouth painter’s work printed on Christmas card • North Bay mouth and foot artist featured in national calendar • Man with Rare Condition Says There’s Never a Day He’s Alone Without Caregivers • AMCSI Grant Spotlight • AMCSI Store](https://amcsupport.org/wp-content/uploads/2025/11/AMCSI25_December_Newsletter-Cover-index.jpg) ](https://amcsupport.org/join-our-newsletter/) 

 [ ![AMCSI Newsletter | November 2025](https://amcsupport.org/wp-content/uploads/2025/11/AMCSI25_November_Newsletter-Cover.jpg) ](https://amcsupport.org/join-our-newsletter/) 

 [ ![April Newsletter cover](https://amcsupport.org/wp-content/uploads/2025/04/AMCSI25_Aoril_Newsletter-cover.jpg) ](https://amcsupport.org/join-our-newsletter/) 

 [  Subscribe To Our Newsletter  ](https://amcsupport.org/join-our-newsletter/) 

 ![AMCSI GRATEFUL TUESDAY](https://amcsupport.org/wp-content/uploads/2024/11/AMCSI24_grateful_tuesday-1024x1024.jpg) 

### Every Tuesday let’s celebrate **GRATEFUL TUESDAY** – because there’s so much to be thankful for!

From the amazing Doctors, PT/OT Specialists, & Medical Professionals to our incredible Donors, Sponsors, Volunteers, & the AMC Community, YOU are the heart of everything we do. 💙

Let’s keep the gratitude flowing & continue supporting the Arthrogryposis Community together.💙
*(Please share this with family, friends, employers, & companies)*

##### 💭 Share what YOU are grateful for by filling out our online form today at ➡️ [**Grateful Tuesday**](https://amcsupport.org/grateful-tuesday/#grateful) ⬅️

Choose Grateful Tuesday when donating ツ

### How we can help

Below are a few of the ways we can help you or your family member with AMC.

[![AMCSI New Diagnosis](https://amcsupport.org/wp-content/uploads/2024/03/3_AMCSI_New_Disgnosis-05-2.jpg)](https://amcsupport.org/new-diagnosis/)#### [Where To Start?](https://amcsupport.org/new-diagnosis/)

Learn about how to find a Doctor, types of therapy, about AMC & so much more.

[![AMCSI Events image](https://amcsupport.org/wp-content/uploads/2025/04/AMCSI24_homepg_placeholer-events.jpg)](https://amcsupport.org/upcoming-events-fundraisers/)#### [AMC Events](https://amcsupport.org/upcoming-events-fundraisers/)

Our Annual AMCSI Conference, various mini-meetups & fundraisers around the country.

[![19th Annual AMCSI Conference - Official Tshirt](https://amcsupport.org/wp-content/uploads/2026/03/Screenshot_20260329_172431_Gallery1.jpg)](https://amcsupport.org/facebook-groups/)#### [Find Support](https://amcsupport.org/facebook-groups/)

From research, to Facebook groups, to assistive devices, to books & more.

[![Julie from the 21st Annual AMCSI Conference](https://amcsupport.org/wp-content/uploads/2026/04/2B7A4180-X4.jpg)](https://amcsupport.org/grants/)#### [Grants/Scholarships](https://amcsupport.org/grants/)

Research, medical mini-meetup, accessibility grants & scholarships available.

---

### [Official Arthrogryposis Store | Your One-Stop Shop For AMC Awareness #AMCstrong](https://amcsupport.org/store/)

**Published:** June 30, 2026
**Author:** Ted Houser

**Excerpt:** Welcome to the AMCSI Store! Every purchase you make helps us raise awareness, build community, and support families affected by Arthrogryposis. We hope you loved your shopping experience—and we can’t wait to see you rocking your

**Content:**

Showing all 6 results

  Default sorting Sort by popularity Sort by average rating Sort by latest Sort by price: low to high Sort by price: high to low   - [ Sale! ![AMC Awareness Day Coaster](https://amcsupport.org/wp-content/uploads/2026/06/AMC-Awareness-Day-coaster-300x300.jpg)## AMC Awareness Day Coasters – Preorder
    
     $15.00 Original price was: $15.00.$10.00Current price is: $10.00.](https://amcsupport.org/products/coasters/amc-awareness-day-coasters-preorder/)[](#)[  ](https://amcsupport.org/products/coasters/amc-awareness-day-coasters-preorder/ "Quick View")[Add to cart](/wp-admin/admin-ajax.php?action=as_async_request_queue_runner&nonce=9392d7711c&add-to-cart=23977)  
- [ Sale! ![AMC Awareness Day license plate](https://amcsupport.org/wp-content/uploads/2026/06/AMC-Awareness-Day-License-plate-300x300.jpg)## AMC Awareness Day License Plate – Preorder
    
     $30.00 Original price was: $30.00.$20.00Current price is: $20.00.](https://amcsupport.org/products/license-plate/amc-awareness-day-license-plate-preorder/)[](#)[  ](https://amcsupport.org/products/license-plate/amc-awareness-day-license-plate-preorder/ "Quick View")[Add to cart](/wp-admin/admin-ajax.php?action=as_async_request_queue_runner&nonce=9392d7711c&add-to-cart=23975)  
- [ Sale! ![AMC Awareness Day zipup hoodie](https://amcsupport.org/wp-content/uploads/2026/06/AMC-Awareness-Day-zipup-hoodie-2-300x300.jpg)## AMC Awareness Day Zip-Up Hoodie – Preorder
    
     $50.00 Original price was: $50.00.$40.00Current price is: $40.00.](https://amcsupport.org/products/clothing/hoodie/amc-awareness-day-zip-up-hoodie/)[](#)[  ](https://amcsupport.org/products/clothing/hoodie/amc-awareness-day-zip-up-hoodie/ "Quick View")[Select options](https://amcsupport.org/products/clothing/hoodie/amc-awareness-day-zip-up-hoodie/)    This product has multiple variants. The options may be chosen on the product page
- [ Sale! ![AMCSI notebook](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-Notebook-1-300x300.jpg)## AMCSI Notebook – Preorder
    
     $15.00 Original price was: $15.00.$10.00Current price is: $10.00.](https://amcsupport.org/products/notebook/amcsi-notebook/)[](#)[  ](https://amcsupport.org/products/notebook/amcsi-notebook/ "Quick View")[Add to cart](/wp-admin/admin-ajax.php?action=as_async_request_queue_runner&nonce=9392d7711c&add-to-cart=23976)  
- [ Sale! ![AMC Awareness Wristbands](https://amcsupport.org/wp-content/uploads/2024/08/Be_strong_amc_strong_wristband-01-300x300.jpg)## NEW: AMC Awareness Wristbands
    
     $4.00 Original price was: $4.00.$2.00Current price is: $2.00.](https://amcsupport.org/products/wristbands/new-amc-awareness-wristband/)[](#)[  ](https://amcsupport.org/products/wristbands/new-amc-awareness-wristband/ "Quick View")[Select options](https://amcsupport.org/products/wristbands/new-amc-awareness-wristband/)    This product has multiple variants. The options may be chosen on the product page
- [ Sale! ![#AMCSTRONG Wristbands for Adults & Children](https://amcsupport.org/wp-content/uploads/2024/08/amc_strong_wristband-300x300.jpg)## AMC Strong Wristbands
    
     $5.00 Original price was: $5.00.$1.00Current price is: $1.00.](https://amcsupport.org/products/wristbands/amc-strong-wristbands/)[](#)[  ](https://amcsupport.org/products/wristbands/amc-strong-wristbands/ "Quick View")[Select options](https://amcsupport.org/products/wristbands/amc-strong-wristbands/)    This product has multiple variants. The options may be chosen on the product page

**Shipping & Delivery**
Some of our products are handmade by a member of the AMC community, so each item takes a little extra time to create. Once available, please allow 5–10 days for processing and 2–4 weeks for delivery. A shipping confirmation email will be sent to the address provided at checkout. Please check your spam or junk folder if you do not see it.

**Returns**
No refunds.

---

### [Accessibility Statement](https://amcsupport.org/accessibility-statement/)

**Published:** March 26, 2025
**Author:** Ted Houser

**Content:**

### Accessibility Statement for 

**Arthrogryposis Multiplex Congenits Support, Inc. (AMCSI)** is committed to ensuring digital accessibility for people with disabilities. We are continually improving the user experience for everyone and applying the relevant accessibility standards.

#### Conformance status

The Web Content Accessibility Guidelines (WCAG) defines requirements for designers and developers to improve accessibility for people with disabilities. It defines three levels of conformance: Level A, Level AA, and Level AAA.

**Arthrogryposis Multiplex Congenits Support, Inc. (AMCSI)** is making constant efforts to improve the accessibility of its site and services in the belief that it is our collective moral obligation to allow seamless, accessible, and unhindered use for those of us with disabilities.

We aim to make all pages and content on [**https://amcsupport.org**](https://amcsupport.org) accessible, but some content may not yet fully meet the highest accessibility standards. This could be due to challenges in identifying the most suitable technological solution.

We may revise this Statement periodically to reflect improvements or changes to our accessibility practices.

### Feedback

We welcome your feedback on the accessibility of **Arthrogryposis Multiplex Congenits Support, Inc. (AMCSI)** website. Please let us know if you encounter accessibility barriers on our website:

E-mail: [**info@amcsupport.org**](mailto:info@amcsupport.org)

We try to respond to feedback within 3–5 business days.

*This statement was created on 3/26/2025.*

---

### [Cart](https://amcsupport.org/cart/)

**Published:** June 30, 2026
**Author:** Ted Houser

**Content:**

Cart

 ### Looks like your cart is empty.

Here’s a few items that you might enjoy!

- [ Sale! ![AMC Awareness Wristbands](https://amcsupport.org/wp-content/uploads/2024/08/Be_strong_amc_strong_wristband-01-300x300.jpg)## NEW: AMC Awareness Wristbands
    
     $4.00 Original price was: $4.00.$2.00Current price is: $2.00.](https://amcsupport.org/products/wristbands/new-amc-awareness-wristband/)[](#)[  ](https://amcsupport.org/products/wristbands/new-amc-awareness-wristband/ "Quick View")[Select options](https://amcsupport.org/products/wristbands/new-amc-awareness-wristband/)    This product has multiple variants. The options may be chosen on the product page
- [ Sale! ![AMCSI notebook](https://amcsupport.org/wp-content/uploads/2026/06/AMCSI-Notebook-1-300x300.jpg)## AMCSI Notebook – Preorder
    
     $15.00 Original price was: $15.00.$10.00Current price is: $10.00.](https://amcsupport.org/products/notebook/amcsi-notebook/)[](#)[  ](https://amcsupport.org/products/notebook/amcsi-notebook/ "Quick View")[Add to cart](/wp-admin/admin-ajax.php?action=as_async_request_queue_runner&nonce=9392d7711c&add-to-cart=23976)  
- [ Sale! ![AMC Awareness Day Coaster](https://amcsupport.org/wp-content/uploads/2026/06/AMC-Awareness-Day-coaster-300x300.jpg)## AMC Awareness Day Coasters – Preorder
    
     $15.00 Original price was: $15.00.$10.00Current price is: $10.00.](https://amcsupport.org/products/coasters/amc-awareness-day-coasters-preorder/)[](#)[  ](https://amcsupport.org/products/coasters/amc-awareness-day-coasters-preorder/ "Quick View")[Add to cart](/wp-admin/admin-ajax.php?action=as_async_request_queue_runner&nonce=9392d7711c&add-to-cart=23977)  
- [ Sale! ![AMC Awareness Day license plate](https://amcsupport.org/wp-content/uploads/2026/06/AMC-Awareness-Day-License-plate-300x300.jpg)## AMC Awareness Day License Plate – Preorder
    
     $30.00 Original price was: $30.00.$20.00Current price is: $20.00.](https://amcsupport.org/products/license-plate/amc-awareness-day-license-plate-preorder/)[](#)[  ](https://amcsupport.org/products/license-plate/amc-awareness-day-license-plate-preorder/ "Quick View")[Add to cart](/wp-admin/admin-ajax.php?action=as_async_request_queue_runner&nonce=9392d7711c&add-to-cart=23975)  

 [  Start shopping  ](https://amcsupport.org/store/) 

**Shipping Information**
Once the product is available, please allow 5 – 10 days for processing and delivery. You will receive a shipping confirmation email at the address provided during checkout. Be sure to check your spam or junk folder if you don’t see it in your inbox.

**Shipping & Delivery**
Some of our products are handmade by a member of the AMC community, so each item takes a little extra time to create. Once available, please allow 5–10 days for processing and 2–4 weeks for delivery. A shipping confirmation email will be sent to the address provided at checkout. Please check your spam or junk folder if you do not see it.

**Returns**
No refunds.

---

### [Checkout](https://amcsupport.org/checkout/)

**Published:** June 30, 2026
**Author:** Ted Houser

**Content:**

Checkout

#### Last Chance Add-Ons!

Please scroll down to continue checking out.

- [ Sale! ![AMC Awareness Day zipup hoodie](https://amcsupport.org/wp-content/uploads/2026/06/AMC-Awareness-Day-zipup-hoodie-2-300x300.jpg)## AMC Awareness Day Zip-Up Hoodie – Preorder
    
     $50.00 Original price was: $50.00.$40.00Current price is: $40.00.](https://amcsupport.org/products/clothing/hoodie/amc-awareness-day-zip-up-hoodie/)[](#)[  ](https://amcsupport.org/products/clothing/hoodie/amc-awareness-day-zip-up-hoodie/ "Quick View")[Select options](https://amcsupport.org/products/clothing/hoodie/amc-awareness-day-zip-up-hoodie/)    This product has multiple variants. The options may be chosen on the product page
- [ Sale! ![AMC Awareness Day license plate](https://amcsupport.org/wp-content/uploads/2026/06/AMC-Awareness-Day-License-plate-300x300.jpg)## AMC Awareness Day License Plate – Preorder
    
     $30.00 Original price was: $30.00.$20.00Current price is: $20.00.](https://amcsupport.org/products/license-plate/amc-awareness-day-license-plate-preorder/)[](#)[  ](https://amcsupport.org/products/license-plate/amc-awareness-day-license-plate-preorder/ "Quick View")[Add to cart](/wp-admin/admin-ajax.php?action=as_async_request_queue_runner&nonce=9392d7711c&add-to-cart=23975)  
- [ Sale! ![AMC Awareness Day Coaster](https://amcsupport.org/wp-content/uploads/2026/06/AMC-Awareness-Day-coaster-300x300.jpg)## AMC Awareness Day Coasters – Preorder
    
     $15.00 Original price was: $15.00.$10.00Current price is: $10.00.](https://amcsupport.org/products/coasters/amc-awareness-day-coasters-preorder/)[](#)[  ](https://amcsupport.org/products/coasters/amc-awareness-day-coasters-preorder/ "Quick View")[Add to cart](/wp-admin/admin-ajax.php?action=as_async_request_queue_runner&nonce=9392d7711c&add-to-cart=23977)  
- [ Sale! ![AMC Awareness Wristbands](https://amcsupport.org/wp-content/uploads/2024/08/Be_strong_amc_strong_wristband-01-300x300.jpg)## NEW: AMC Awareness Wristbands
    
     $4.00 Original price was: $4.00.$2.00Current price is: $2.00.](https://amcsupport.org/products/wristbands/new-amc-awareness-wristband/)[](#)[  ](https://amcsupport.org/products/wristbands/new-amc-awareness-wristband/ "Quick View")[Select options](https://amcsupport.org/products/wristbands/new-amc-awareness-wristband/)    This product has multiple variants. The options may be chosen on the product page

**Shipping & Delivery**
Some of our products are handmade by a member of the AMC community, so each item takes a little extra time to create. Once available, please allow 5–10 days for processing and 2–4 weeks for delivery. A shipping confirmation email will be sent to the address provided at checkout. Please check your spam or junk folder if you do not see it.

**Returns**
No refunds.

---

### [Privacy Policy](https://amcsupport.org/privacy-policy/)

**Published:** June 30, 2026
**Author:** Ted Houser

**Content:**

### Privacy Policy

Your privacy is important to Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI).

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) attaches great importance to protecting personal data and maintaining privacy.

This policy describes the types of personal information we may collect from you, the purposes for which we use the information, the circumstances in which we may share the information and the steps that we take to safeguard the information to protect your privacy.

The personal data we collect and why

When entering your data into the online membership registration site (Eventbrite: privacy policy), we collect this data from you for the purpose of registering your membership to Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI). You are not required to supply any of the information that we request. However, choosing not to do so may result in our being unable to become a member of Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI).

Use and disclosure of your personal data

By submitting this membership form you consent to the processing of all entered information by Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) and online registration site (Eventbrite) as described in this privacy statement.

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) will use the personal information to process your membership, communicate with you (including but not limited to: Mail, telephone, email, and social media), and obtain your feedback in regard to the organization. In doing so, your information may be transferred throughout Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) and shared with members of Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) serving as volunteers in carrying out our Mission and Vision Statement

Arthrogryposis Multiplex Congenita Support, Inc., (AMCSI) shows general geographical information about members on www.amcsupport.org. This information includes the cities and countries of our members. This information is publicly available to all visitors to https://amcsupport.org/membershipmap.html.

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) will not sell or disclose your personal data to other third parties without your express consent.

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) does not share your personally identifiable information with other organizations for their marketing or promotional uses without your prior express consent.

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) may only use the data to provide you with further information from Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) if you opt-in this service by ticking the relevant box on the membership application.

We may disclose member information to affiliated companies or other businesses or persons to: provide website hosting, maintenance, and security services; fulfill orders; conduct data analysis and create reports; and assist Arthrogryposis Multiplex Congenita Support, Inc., (AMCSI) in improvement of our organization. We require these parties process all information in compliance with this Privacy Notice, and we authorize only a limited use of such information, and we require these parties to use reasonable security to maintain confidentiality.

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) may disclose your personally identifiable information if required to do so by law or in the good faith belief that such action is necessary to comply with state and federal laws or respond to a court order, judicial or other government subpoena, or warrant in the manner required by the requesting entity.

Arthrogryposis Multiplex Congenita Support, Inc.(AMCSI) reserves the right to disclose member information that we believe, in good faith, is appropriate or necessary: to take precautions against liability; to protect Arthrogryposis Multiplex Congenita Support, Inc., (AMCSI) from fraudulent, abusive, or unlawful uses; to investigate and defend ourselves against third-party claims or allegations; to assist government enforcement agencies; to protect the security or integrity of the Arthrogryposis Multiplex Congenita Support, Inc., (AMCSI) www.amcsupport.org; or to protect the rights, property, or personal safety of Arthrogryposis Multiplex Congenita Support, Inc., (AMCSI), our Users, or others.

**OUR COMMITMENT TO DATA SECURITY**

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) utilizes commercially reasonable physical and technical safeguards to maintain the integrity and security of personal information. We cannot however guarantee ensure or warrant the security of information transmitted to Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI), and therefore you do so at your own risk. Once your information is in the possession of Arthrogryposis Multiplex Congenita Support, Inc.(AMCSI), commercially reasonable physical and technical safeguards are in place to maintain the integrity and security of personal information However, this in no way implies a guarantee that personal information may not be accessed, altered, misused, disseminated or destroyed by a breach of our security.

If at any time, Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) learns of a breach of security, we will attempt to notify you electronically so that you can make appropriate arrangements to minimize impact. Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) utilizes commercially reasonable physical and technical safeguards to maintain the integrity and security of personal information. Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) will also post a notice on our website www.amcsupport.org if a breach of security occurs.

**OUR COMMITMENT TO CHILDREN’S PRIVACY**

If you are under 13 years of age, you may not become a member of Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) without the express consent of a custodial parent or guardian.

If you are under 13 years of age, please do not become a member of Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI)

Protecting the privacy of children is very important to us, for that reason, Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) does not knowingly collect or maintain personally identifiable information for persons under 13 years of age, beyond that information provided by a parent or guardian for conference registration. (See conference registration privacy policy) If Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) learns that personally identifiable information of a person less than 13 years of age has been collected without express consent of a parent or guardian, Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) will take the appropriate steps to delete this information.

If you are the parent or legal guardian of a child under 13 who has independently become a member without your express consent, please notify Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) by sending a written request to the email or address below. Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) will then take the appropriate steps terminate that child’s membership and delete their information. You may be required to supply a valid means of identification as a security precaution to assist us in preventing the unauthorized disclosure of the child’s personal information. We will process your request within the time provided by applicable law

[**INFO@AMCSUPPORT.ORG**](mailto:INFO@AMCSUPPORT.ORG)
or
**Arthrogryposis Multiplex Congenita Support, Inc.**
P.O. Box 6291
Spartanburg, SC 29304

International Members

Members joining Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) from the European Economic Area or other Non-United States Territories, please note that any data you enter into the online registration site (Eventbrite) will be transferred outside the European economic area or other Non-United States Territory for use by Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) and its affiliates for the purposes described in this policy. You hereby expressly consent to such transfers of your data to the United States and other countries.

Controlling your personal data

You are entitled to access any personal data about you held by Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) by sending a written request to the email or address below. You may be required to supply a valid means of identification as a security precaution to assist us in preventing the unauthorized disclosure of your personal information. We will process your request within the time provided by applicable law.

You are also entitled to have Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) modify or delete any information that you believe is incorrect or out of date. Please contact the individual identified below.

If you decide that Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) may provide you with further information from Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) by ticking the relevant opt-in box in the online registration form and you do not wish to get such information any longer please contact the Board of Directors.

[**INFO@AMCSUPPORT.ORG**](mailto:INFO@AMCSUPPORT.ORG)
or
**Arthrogryposis Multiplex Congenita Support, Inc.**
P.O. Box 6291
Spartanburg, SC 29304

Additional information

If your relationship with Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) ends, we will continue to treat your personal data, to the extent we retain it, as described in this privacy statement.

Updating this statement

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) may update this privacy policy by posting a new version on this website. You should check this page occasionally to ensure you are familiar with any changes.

---

### [Order Confirmation](https://amcsupport.org/order-confirmation/)

**Published:** June 30, 2026
**Author:** Ted Houser

**Content:**

Order Confirmation

### **Thank you so much for your order!**

Your confirmation email is on its way to your inbox.

We’re truly grateful for your support of AMCSI. Every purchase you make helps us raise awareness, build community, and support families affected by Arthrogryposis. We hope you loved your shopping experience, and we can’t wait to see you rocking your AMCSI gear with pride, be sure to tag us on socials **@amcsupport**!

##### Thank you for being a part of our mission & representing our amazing community.

  [ Facebook  ](https://www.facebook.com/AMCSUPPORT/)   [ Instagram  ](https://www.instagram.com/amcsupport/)   [ Youtube  ](https://www.youtube.com/@AMCsupport)   [ Icon-bluesky-logo  ](https://bsky.app/profile/amcsupport.bsky.social)   [ Tiktok  ](https://www.tiktok.com/@amcsupport)   [ Linkedin  ](https://www.linkedin.com/company/amcsupport/)   [ X-twitter  ](https://twitter.com/amcsupport)  

**Shipping & Delivery**
Some of our products are handmade by a member of the AMC community, so each item takes a little extra time to create. Once available, please allow 5–10 days for processing and 2–4 weeks for delivery. A shipping confirmation email will be sent to the address provided at checkout. Please check your spam or junk folder if you do not see it.

**Returns**
No refunds.

---

### [20 Years of AMC Support, Advocacy, Awareness & Community](https://amcsupport.org/20-years-of-amc-support-advocacy-awareness-community/)

**Published:** April 23, 2025
**Author:** Ted Houser

**Content:**

![AMC Bumble Bee in Blue for June 30th!](https://amcsupport.org/wp-content/uploads/2023/12/BumbleBee.png) 

## Celebrating 20 Years of Arthrogryposis Support, Advocacy & Awareness

2025 marked a major milestone, 20 years of AMCSI’s unwavering dedication to the Arthrogryposis Multiplex Congenita *(AMC)* Community. Since our founding, we’ve been committed to supporting, educating, & empowering individuals & families affected by AMC. As we celebrate this incredible journey, we’re proud to share some exciting news about how we’re making it easier than ever to connect with us.

### One Mission. One Destination.

No matter how you search, it all leads to one trusted source**, AMCSupport.org**. We’ve unified access to our resources by forwarding several key domains *(thank you to an anonymous donor who registered the domains below)* to our official website. Whether you’re seeking support, research, advocacy, or community, it all comes together in one place.

### The Journey Continues

This 20-year milestone isn’t just about looking back, it’s about moving forward with purpose. It’s a symbol of our growing reach, our expanding community & our continued promise to serve with compassion, clarity & care. We’re here for the families just beginning their journey, for medical professionals seeking knowledge & for every individual living with AMC.

# Thank You for Being Part of Our Story

Together, we’ve built something powerful. & we’re just getting started. Here’s to the next 20 years of amplifying awareness, advancing research & standing strong with the AMC community.

AMCSI is grateful to [TBSDesigns](https://tbsdesigns.com/20th-annual-amcsi-conference-design-campaign/) for the generous yearly donation of a portfolio of registered domains that strengthen access to Arthrogryposis information, resources, and community support.

These domains help guide individuals, families, and professionals to key areas of the AMCSI website where they can find reliable information, support services, and educational resources. This contribution enhances our ability to connect people with the information they need in a more direct and accessible way.

✔ 
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🎉 Join us every year on June 30th for [**AMC Awareness Day**](https://amcsupport.org/amc-awareness-day/)—purchase your AMC gear from our official [**AMCSI Store**](https://amcsupport.org/store/) & help spread the buzz!

 ![AMC Bumble Bee in Blue for June 30th!](https://amcsupport.org/wp-content/uploads/2023/12/BumbleBee.png)

---

### [Refund and Returns Policy](https://amcsupport.org/refund_returns/)

**Published:** April 4, 2025
**Author:** Ted Houser

**Content:**

Store Policy

### Overview

At this time, AMCSI does not offer refunds or accept returns.

**Shipping & Delivery**
Some of our products are handmade by a member of the AMC community, so each item takes a little extra time to create. Once available, please allow 5–10 days for processing and 2–4 weeks for delivery. A shipping confirmation email will be sent to the address provided at checkout. Please check your spam or junk folder if you do not see it.

**Returns**
No refunds.

#### Need Assistance?

For any questions regarding your order(s), please contact us at . We’re happy to help!

---


## Products

### [AMC Awareness Day Zip-Up Hoodie - Preorder](https://amcsupport.org/products/clothing/hoodie/amc-awareness-day-zip-up-hoodie/)

**Published:** June 30, 2026
**Author:** Ted Houser

**Content:**

### Preorder

Stay cozy in our new zip-up AMC Awareness Day hoodie. Light enough for the cool nights at the beach!

**Product categories:** /clothing, hoodie

**Product tags:** AMC Awareness Day, AMCSI, Hoodie, Zip-Up Hoodie

---

### [AMC Strong Wristbands](https://amcsupport.org/products/wristbands/amc-strong-wristbands/)

**Published:** July 14, 2026
**Author:** Ted Houser

**Content:**

\#AMCSTRONG Wristbands.

**Shipping Information**
Once the product is available, please allow 4–6 weeks for processing and delivery setup. You will receive a shipping confirmation email at the address provided during checkout. Be sure to check your spam or junk folder if you don’t see it in your inbox.

**Product categories:** /wristbands

**Product tags:** amcawareness, amcsupport, arthrogryposis

---

### [NEW: AMC Awareness Wristbands](https://amcsupport.org/products/wristbands/new-amc-awareness-wristband/)

**Published:** July 14, 2026
**Author:** Ted Houser

**Content:**

AMC Awareness Black & Blue, Blue & White, & Be Strong – AMC Strong wristbands.

**Shipping Information**
Once the product is available, please allow 5 – 10 days for processing and delivery setup. You will receive a shipping confirmation email at the address provided during checkout. Be sure to check your spam or junk folder if you don’t see it in your inbox.

**Product categories:** /wristbands

**Product tags:** amc awareness, AMCSI, amcsupport, arthrogryposis, Wristband

---

### [AMC Awareness Day License Plate - Preorder](https://amcsupport.org/products/license-plate/amc-awareness-day-license-plate-preorder/)

**Published:** June 30, 2026
**Author:** Ted Houser

**Content:**

### Preorder

Official AMC Awareness Day license plate, to take your awareness anywhere the road takes you.

**Product categories:** license plate

**Product tags:** #AMC Awareness Day Temporary Tattoo, AMC Awareness Day, License, Plate

---

### [AMCSI Notebook - Preorder](https://amcsupport.org/products/notebook/amcsi-notebook/)

**Published:** June 30, 2026
**Author:** Ted Houser

**Content:**

### Preorder

Jot down your favorite moments, your achievements, your goals, your thoughts wherever you are with this easy-to-carry, pocket-sized AMCSI notebook

**Product categories:** notebook

**Product tags:** AMCSI, Notebook

---

### [AMC Awareness Day Coasters - Preorder](https://amcsupport.org/products/coasters/amc-awareness-day-coasters-preorder/)

**Published:** June 30, 2026
**Author:** Ted Houser

**Content:**

### Preorder

AMC Awareness Day Coasters are a great way to include your awareness while protecting your tables and furniture!

**Product categories:** coasters

**Product tags:** AMC Awareness Day, AMCSI, Coasters

---


## Builder Templates

### [Product Category](https://amcsupport.org/shopengine-template/product-category/)

**Published:** April 4, 2025
**Author:** Ted Houser

**Content:**

**Shipping Information**
Once the product is available, please allow 5 – 10 days for processing and delivery. You will receive a shipping confirmation email at the address provided during checkout. Be sure to check your spam or junk folder if you don’t see it in your inbox.

---


## Tags

### [Find A Doctor](https://amcsupport.org/tag/find-a-doctor/)

**Description:** Find a Doctor that see AMC patients.

---

### [Meet The Team](https://amcsupport.org/tag/meet-the-team/)

**Description:** Meet the Team at AMCSI!

---

### [AMCSI](https://amcsupport.org/tag/amcsi/)

**Description:** Arthrogryposis Multiplex Contenita Support, Inc. (AMCSI)

---

### [Arthrogryposis](https://amcsupport.org/tag/arthrogryposis/)

**Description:** Arthrogryposis multiplex congenita (AMC) is a term used to describe a group of congenital conditions characterized by joint contractures in two or more body areas. While the precise cause may be unknown for some individuals, causes are variable and may include genetic, parental and environmental factors, as well as abnormalities during fetal development. Individuals with AMC have limited joint movement, with or without muscle weakness, in the involved body areas. Contractures vary in distribution and severity, do not progress to previously unaffected joints, but may change over time due to growth and treatment. Spinal deformities may be present at birth or develop throughout childhood and adolescence. Depending on the underlying diagnosis, other body systems such as the respiratory, gastro-intestinal, genito-urinary and central nervous system may be affected. Cognition may be affected if the central nervous system is involved; sensation is usually intact. The impact on mobility, activities of daily living and participation is variable.

---

### [Doctor](https://amcsupport.org/tag/doctor/)

**Description:** Doctors who see AMC patients.

---

### [Medical Professional](https://amcsupport.org/tag/medical-professional/)

**Description:** Find a Medical Professionals that see AMC patients with various versions of Arthgrogryposis.

---

### [19th Annual Conference](https://amcsupport.org/tag/19th-annual-conference/)

---

### [19th Annual AMCSI Conference](https://amcsupport.org/tag/19th-annual-amcsi-conference/)

---

### [Sponsors](https://amcsupport.org/tag/sponsors/)

---

### [Schedule](https://amcsupport.org/tag/schedule/)

---

### [Speakers](https://amcsupport.org/tag/speakers/)

---

### [Exhibitors](https://amcsupport.org/tag/exhibitors/)

---

### [Planning Committee](https://amcsupport.org/tag/planning-committee/)

---

### [FAQs](https://amcsupport.org/tag/faqs/)

---

### [Become A Member](https://amcsupport.org/tag/become-a-member/)

---

### [Membership Tiers](https://amcsupport.org/tag/membership-tiers/)

---

### [Types Of Doctors](https://amcsupport.org/tag/types-of-doctors/)

---

### [Types Of Therapy](https://amcsupport.org/tag/types-of-therapy/)

---

### [About AMC](https://amcsupport.org/tag/about-amc/)

---

### [Variations Of AMC](https://amcsupport.org/tag/variations-of-amc/)

---

### [Amyoplasia](https://amcsupport.org/tag/amyoplasia/)

---

### [Distal](https://amcsupport.org/tag/distal/)

---

### [Upper & Lower Extremities](https://amcsupport.org/tag/upper-lower-extremities/)

---

### [Other Types Of AMC](https://amcsupport.org/tag/other-types-of-amc/)

---

### [Frequently Asked Questions](https://amcsupport.org/tag/frequently-asked-questions/)

---

### [Where To Start](https://amcsupport.org/tag/where-to-start/)

---

### [Words To Know](https://amcsupport.org/tag/words-to-know/)

---

### [Arthrogryposis: A Text Atlas](https://amcsupport.org/tag/arthrogryposis-a-text-atlas/)

---

### [Laws](https://amcsupport.org/tag/laws/)

---

### [Wills & Estate Plans](https://amcsupport.org/tag/wills-estate-plans/)

---

### [History & Facts](https://amcsupport.org/tag/history-facts/)

---

### [AMC Memorials](https://amcsupport.org/tag/amc-memorials/)

---

### [AMC Events](https://amcsupport.org/tag/amc-events/)

---

### [Calendar Of Events](https://amcsupport.org/tag/calendar-of-events/)

---

### [AMC Awareness Day](https://amcsupport.org/tag/amc-awareness-day/)

---

### [Misha’s Long Road To AMC Awareness](https://amcsupport.org/tag/mishas-long-road-to-amc-awareness/)

---

### [253 For AMC](https://amcsupport.org/tag/253-for-amc/)

---

### [Shriners’ Greenville Mini-Meetups](https://amcsupport.org/tag/shriners-greenville-mini-meetups/)

---

### [Giving Tuesday](https://amcsupport.org/tag/giving-tuesday/)

---

### [Membership Info](https://amcsupport.org/tag/membership-info/)

---

### [New Diagnosis](https://amcsupport.org/tag/new-diagnosis/)

---

### [Laws Wills & Estate Plans](https://amcsupport.org/tag/laws-wills-estate-plans/)

---

### [About Us](https://amcsupport.org/tag/about-us/)

---

### [Find Support](https://amcsupport.org/tag/find-support/)

---

### [Research](https://amcsupport.org/tag/research/)

---

### [Facebook Groups](https://amcsupport.org/tag/facebook-groups/)

---

### [AMC Websites](https://amcsupport.org/tag/amc-websites/)

---

### [Assistive Devices](https://amcsupport.org/tag/assistive-devices/)

---

### [Books](https://amcsupport.org/tag/books/)

---

### [Medical Articles](https://amcsupport.org/tag/medical-articles/)

---

### [Global Support / World Map](https://amcsupport.org/tag/global-support-world-map/)

---

### [Financial Aid](https://amcsupport.org/tag/financial-aid/)

---

### [Grants](https://amcsupport.org/tag/grants/)

---

### [Research Grant](https://amcsupport.org/tag/research-grant/)

---

### [Medical Travel Grant](https://amcsupport.org/tag/medical-travel-grant/)

---

### [Accessibility Grant](https://amcsupport.org/tag/accessibility-grant/)

---

### [Mini-Meetup Grant](https://amcsupport.org/tag/mini-meetup-grant/)

---

### [AMC Holiday Grant](https://amcsupport.org/tag/amc-holiday-grant/)

---

### [Bereavement Grant](https://amcsupport.org/tag/bereavement-grant/)

---

### [Scholarships](https://amcsupport.org/tag/scholarships/)

---

### [Georgie McLaughlin College Scholarship](https://amcsupport.org/tag/georgie-mclaughlin-college-scholarship/)

---

### [Brayden Dame Scholarship](https://amcsupport.org/tag/brayden-dame-scholarship/)

---

### [Get Involved](https://amcsupport.org/tag/get-involved/)

---

### [Volunteeer](https://amcsupport.org/tag/volunteeer/)

---

### [Zoom Sessions / Zoom Registration](https://amcsupport.org/tag/zoom-sessions-zoom-registration/)

---

### [Together Tuesdays](https://amcsupport.org/tag/together-tuesdays/)

---

### [This Is How I … Series](https://amcsupport.org/tag/this-is-how-i-series/)

---

### [Proclomations](https://amcsupport.org/tag/proclomations/)

---

### [Our Mission & Vision](https://amcsupport.org/tag/our-mission-vision/)

---

### [Testimonials](https://amcsupport.org/tag/testimonials/)

---

### [Board Of Directors Meetings](https://amcsupport.org/tag/board-of-directors-meetings/)

---

### [ByLaws & Financials](https://amcsupport.org/tag/bylaws-financials/)

---

### [Press Release](https://amcsupport.org/tag/press-release/)

---

### [Join Our Newsletter](https://amcsupport.org/tag/join-our-newsletter/)

---

### [Logo Usage](https://amcsupport.org/tag/logo-usage/)

---

### [19th Sponsorship Form](https://amcsupport.org/tag/19th-sponsorship-form/)

---

### [19th Exhibitor Form](https://amcsupport.org/tag/19th-exhibitor-form/)

---

### [19th Program Form](https://amcsupport.org/tag/19th-program-form/)

---

### [Copyright](https://amcsupport.org/tag/copyright/)

---

### [Disclaimer](https://amcsupport.org/tag/disclaimer/)

---

### [Privacy Policy](https://amcsupport.org/tag/privacy-policy/)

---

### [Height and Weight](https://amcsupport.org/tag/height-and-weight/)

---

### [Covid Research](https://amcsupport.org/tag/covid-research/)

---

### [Literature and Films](https://amcsupport.org/tag/literature-and-films/)

---

### [Brochures](https://amcsupport.org/tag/brochures/)

---

### [Films](https://amcsupport.org/tag/films/)

---

### [19th Important Documents](https://amcsupport.org/tag/19th-important-documents/)

---

### [Valerie Pepe’s AMC Music Festival](https://amcsupport.org/tag/valerie-pepes-amc-music-festival/)

---

### [Adaptive Sports](https://amcsupport.org/tag/adaptive-sports/)

---

### [Contact Us](https://amcsupport.org/tag/contact-us/)

---

### [Previous Conference](https://amcsupport.org/tag/previous-conference/)

---

### [Past Conference](https://amcsupport.org/tag/past-conference/)

---

### [AMCSI Annual Conference](https://amcsupport.org/tag/amcsi-annual-conference/)

---

### [Auction Items](https://amcsupport.org/tag/auction-items/)

---

### [Ways To Help AMCSI](https://amcsupport.org/tag/ways-to-help-amcsi/)

---

### [Conference Scholarship](https://amcsupport.org/tag/conference-scholarship/)

---

### [Photo Gallery](https://amcsupport.org/tag/photo-gallery/)

---

### [Exhibitor](https://amcsupport.org/tag/exhibitor/)

---

### [BEcome an Exhibitor](https://amcsupport.org/tag/become-an-exhibitor/)

---

### [Privacy](https://amcsupport.org/tag/privacy/)

---

### [Medical Advice](https://amcsupport.org/tag/medical-advice/)

---

### [Informational](https://amcsupport.org/tag/informational/)

---

### [Diagnosis](https://amcsupport.org/tag/diagnosis/)

---

### [Newsletter](https://amcsupport.org/tag/newsletter/)

---

### [AMC Support](https://amcsupport.org/tag/amc-support/)

---

### [Sign Up](https://amcsupport.org/tag/sign-up/)

---

### [AMC](https://amcsupport.org/tag/amc/)

---

### [Logo](https://amcsupport.org/tag/logo/)

---

### [Nemours](https://amcsupport.org/tag/nemours/)

---

### [Alfred I. duPont Institute Hospital](https://amcsupport.org/tag/alfred-i-dupont-institute-hospital/)

---

### [Mini Meetup](https://amcsupport.org/tag/mini-meetup/)

---

### [AMC Mini Meetup](https://amcsupport.org/tag/amc-mini-meetup/)

---

### [Wilmington](https://amcsupport.org/tag/wilmington/)

---

### [Deleware](https://amcsupport.org/tag/deleware/)

---

### [AMC & Me](https://amcsupport.org/tag/amc-me/)

---

### [Run](https://amcsupport.org/tag/run/)

---

### [Roll](https://amcsupport.org/tag/roll/)

---

### [Arthrogryposis Awareness](https://amcsupport.org/tag/arthrogryposis-awareness/)

---

### [Join or Create A Team](https://amcsupport.org/tag/join-or-create-a-team/)

---

### [GreenvilleSC](https://amcsupport.org/tag/greenvillesc/)

---

### [Greenville](https://amcsupport.org/tag/greenville/)

---

### [South Carolina](https://amcsupport.org/tag/south-carolina/)

---

### [Playground Shelter](https://amcsupport.org/tag/playground-shelter/)

---

### [AMCawareness](https://amcsupport.org/tag/amcawareness/)

---

### [4th Symposium For Arthrogryposis](https://amcsupport.org/tag/4th-symposium-for-arthrogryposis/)

---

### [253 MILES](https://amcsupport.org/tag/253-miles/)

---

### [1 MISSION](https://amcsupport.org/tag/1-mission/)

---

### [19th Annual AMCSI Conference Volunteer](https://amcsupport.org/tag/19th-annual-amcsi-conference-volunteer/)

---

### [Volunteer](https://amcsupport.org/tag/volunteer/)

---

### [Program](https://amcsupport.org/tag/program/)

---

### [Hotel](https://amcsupport.org/tag/hotel/)

---

### [Hyatt Regency Atlanta](https://amcsupport.org/tag/hyatt-regency-atlanta/)

---

### [Photo Galleries](https://amcsupport.org/tag/photo-galleries/)

---

### [Grant](https://amcsupport.org/tag/grant/)

---

### [2023 Sessions](https://amcsupport.org/tag/2023-sessions/)

---

### [Video Sessions](https://amcsupport.org/tag/video-sessions/)

---

### [Arthrogryposis Ohio](https://amcsupport.org/tag/arthrogryposis-ohio/)

---

### [Meetup](https://amcsupport.org/tag/meetup/)

---

### [Ohio](https://amcsupport.org/tag/ohio/)

---

### [Resources](https://amcsupport.org/tag/resources/)

---

### [Occupational Therapy](https://amcsupport.org/tag/occupational-therapy/)

---

### [Therapy](https://amcsupport.org/tag/therapy/)

---

### [Submission Form](https://amcsupport.org/tag/submission-form/)

---

### [Utah](https://amcsupport.org/tag/utah/)

---

### [Utah AMC Mini Meetup 2024](https://amcsupport.org/tag/utah-amc-mini-meetup-2024/)

---

### [20th Annual AMCSI Conference](https://amcsupport.org/tag/20th-annual-amcsi-conference/)

---

### [Norfolk](https://amcsupport.org/tag/norfolk/)

---

### [Virginia](https://amcsupport.org/tag/virginia/)

---

### [Sponsorship](https://amcsupport.org/tag/sponsorship/)

---

### [Holiday Card Exchange](https://amcsupport.org/tag/holiday-card-exchange/)

---

### [Holiday Season](https://amcsupport.org/tag/holiday-season/)

---

### [Card](https://amcsupport.org/tag/card/)

---

### [Exchange](https://amcsupport.org/tag/exchange/)

---

### [Grateful Tuesday](https://amcsupport.org/tag/grateful-tuesday/)

---

### [Grateful](https://amcsupport.org/tag/grateful/)

---

### [Tuesday](https://amcsupport.org/tag/tuesday/)

---

### [Guest Speakers](https://amcsupport.org/tag/guest-speakers/)

---

### [Important Documents](https://amcsupport.org/tag/important-documents/)

---

### [Fundraising](https://amcsupport.org/tag/fundraising/)

---

### [Brian Wayne Page](https://amcsupport.org/tag/brian-wayne-page/)

---

### [Memorial](https://amcsupport.org/tag/memorial/)

---

### [Sponsorships](https://amcsupport.org/tag/sponsorships/)

---

### [Sponsor](https://amcsupport.org/tag/sponsor/)

---

### [The AMC Collective](https://amcsupport.org/tag/the-amc-collective/)

---

### [Thank you](https://amcsupport.org/tag/thank-you/)

---

### [NICU Packet](https://amcsupport.org/tag/nicu-packet/)

---

### [Mountain Biking](https://amcsupport.org/tag/mountain-biking/)

---

### [Adoption](https://amcsupport.org/tag/adoption/)

---

### [2025 Official Conference Program](https://amcsupport.org/tag/2025-official-conference-program/)

---

### [20th Annual AMCSI Conference Program](https://amcsupport.org/tag/20th-annual-amcsi-conference-program/)

---

### [Play Without Limits](https://amcsupport.org/tag/play-without-limits/)

---

### [Shriners](https://amcsupport.org/tag/shriners/)

---

### [Mini-Meetups](https://amcsupport.org/tag/mini-meetups/)

---

### [21st Annual AMCSI Conference](https://amcsupport.org/tag/21st-annual-amcsi-conference/)

---

### [Columbus](https://amcsupport.org/tag/columbus/)

---

### [Scarman](https://amcsupport.org/tag/scarman/)

---

### [21st Annual AMCSI Conference Sponsorship](https://amcsupport.org/tag/21st-annual-amcsi-conference-sponsorship/)

---

### [Conference](https://amcsupport.org/tag/conference/)

---

### [21st Annual AMCSI Conference Exhibitor](https://amcsupport.org/tag/21st-annual-amcsi-conference-exhibitor/)

---

### [21st Annual AMCSI Conference Program](https://amcsupport.org/tag/21st-annual-amcsi-conference-program/)

---

### [22nd Annual AMCSI Conference](https://amcsupport.org/tag/22nd-annual-amcsi-conference/)

---

### [Annual](https://amcsupport.org/tag/annual/)

---

### [The Prairie - 253 for AMC](https://amcsupport.org/tag/the-prairie-253-for-amc/)

---

### [AMC Holiday Grant 2024](https://amcsupport.org/tag/amc-holiday-grant-2024/)

---

### [AMC Holiday Grant 2025](https://amcsupport.org/tag/amc-holiday-grant-2025/)

---

### [Holiday Fund](https://amcsupport.org/tag/holiday-fund/)

---

### [Conference FAQs](https://amcsupport.org/tag/conference-faqs/)

---

### [All About AMC](https://amcsupport.org/tag/all-about-amc/)

---

### [Learning Together](https://amcsupport.org/tag/learning-together/)

---

### [Donate](https://amcsupport.org/tag/donate/)

---

### [Monthly Donations](https://amcsupport.org/tag/monthly-donations/)

---

### [Arthrogryposis: New Parent Information Packet](https://amcsupport.org/tag/arthrogryposis-new-parent-information-packet/)

---

### [New Parent](https://amcsupport.org/tag/new-parent/)

---

### [Information Packet](https://amcsupport.org/tag/information-packet/)

---

### [My Own Knowledge: Care Notebook](https://amcsupport.org/tag/my-own-knowledge-care-notebook/)

---

### [Care](https://amcsupport.org/tag/care/)

---

### [Notebook](https://amcsupport.org/tag/notebook/)

---

### [Fundraiser](https://amcsupport.org/tag/fundraiser/)

---

### [Monthly Giving Circle](https://amcsupport.org/tag/monthly-giving-circle/)

---

### [Giving](https://amcsupport.org/tag/giving/)

---

### [Donations](https://amcsupport.org/tag/donations/)

---

### [AMC Library](https://amcsupport.org/tag/amc-library/)

---

### [Arthrogryposis Books](https://amcsupport.org/tag/arthrogryposis-books/)

---

### [AMC Written Books](https://amcsupport.org/tag/amc-written-books/)

---

### [Ways To Give](https://amcsupport.org/tag/ways-to-give/)

---

### [Corporate Match](https://amcsupport.org/tag/corporate-match/)

---

### [Be A Fundraiser](https://amcsupport.org/tag/be-a-fundraiser/)

---

### [Company Match](https://amcsupport.org/tag/company-match/)

---

### [Corporate Sponsorship](https://amcsupport.org/tag/corporate-sponsorship/)

---

### [IRA Charitable Rollovers](https://amcsupport.org/tag/ira-charitable-rollovers/)

---

### [IRA](https://amcsupport.org/tag/ira/)

---

### [Charitable](https://amcsupport.org/tag/charitable/)

---

### [Rollovers](https://amcsupport.org/tag/rollovers/)

---

### [Legacy Gift](https://amcsupport.org/tag/legacy-gift/)

---

### [Gift](https://amcsupport.org/tag/gift/)

---

### [Conference Testimonials](https://amcsupport.org/tag/conference-testimonials/)

---

### [Conference Planning Committee](https://amcsupport.org/tag/conference-planning-committee/)

---

### [Professional Guest Speakers](https://amcsupport.org/tag/professional-guest-speakers/)

---

### [Doctors](https://amcsupport.org/tag/doctors/)

---

### [Lawyers](https://amcsupport.org/tag/lawyers/)

---

### [Medical Professionals](https://amcsupport.org/tag/medical-professionals/)

---

### [Medical Support](https://amcsupport.org/tag/medical-support/)

---

### [Jalon Walker](https://amcsupport.org/tag/jalon-walker/)

---

### [#11](https://amcsupport.org/tag/11/)

---

### [NFL](https://amcsupport.org/tag/nfl/)

---

### [My Cause My Cleats](https://amcsupport.org/tag/my-cause-my-cleats/)

---

### [Week 13](https://amcsupport.org/tag/week-13/)

---

### [My Cause](https://amcsupport.org/tag/my-cause/)

---

### [My Cleats](https://amcsupport.org/tag/my-cleats/)

---

### [21st Annual AMCSI Conference Schedule](https://amcsupport.org/tag/21st-annual-amcsi-conference-schedule/)

---

### [21st](https://amcsupport.org/tag/21st/)

---

### [Val's Bowl-A-Thin](https://amcsupport.org/tag/vals-bowl-a-thin/)

---

### [Adaptive Clothing](https://amcsupport.org/tag/adaptive-clothing/)

---

### [Adaptive Footwear](https://amcsupport.org/tag/adaptive-footwear/)

---

### [Adaptive Socks](https://amcsupport.org/tag/adaptive-socks/)

---

### [Clothing](https://amcsupport.org/tag/clothing/)

---

### [Footwear](https://amcsupport.org/tag/footwear/)

---

### [Brands](https://amcsupport.org/tag/brands/)

---

### [Parents](https://amcsupport.org/tag/parents/)

---

### [Caregivers](https://amcsupport.org/tag/caregivers/)

---

### [Aerthrogryposis](https://amcsupport.org/tag/aerthrogryposis/)

---

### [Upcoming](https://amcsupport.org/tag/upcoming/)

---

### [Events](https://amcsupport.org/tag/events/)

---

### [Fundraisers](https://amcsupport.org/tag/fundraisers/)

---

### [Upcoming Events & Fundraisers](https://amcsupport.org/tag/upcoming-events-fundraisers/)

---

### [AMC Holiday Fund](https://amcsupport.org/tag/amc-holiday-fund/)

---

### [AMC Holiday Grant 2026](https://amcsupport.org/tag/amc-holiday-grant-2026/)

---

### [Roger's Run 4 AMC](https://amcsupport.org/tag/rogers-run-4-amc/)

---

### [Rogers Run](https://amcsupport.org/tag/rogers-run/)

---

### [4 AMC](https://amcsupport.org/tag/4-amc/)

---

### [Knitted With Love](https://amcsupport.org/tag/knitted-with-love/)

---

### [Blankets](https://amcsupport.org/tag/blankets/)

---

### [Newborn Blankets](https://amcsupport.org/tag/newborn-blankets/)

---

### [Grandmothers](https://amcsupport.org/tag/grandmothers/)

---

### [Grandma](https://amcsupport.org/tag/grandma/)

---

### [Love](https://amcsupport.org/tag/love/)

---

### [Adaptive](https://amcsupport.org/tag/adaptive/)

---

### [Sports](https://amcsupport.org/tag/sports/)

---

### [ASC Kayaking](https://amcsupport.org/tag/asc-kayaking/)

---

### [ASC Cycling](https://amcsupport.org/tag/asc-cycling/)

---

### [Wheelchair Basketball](https://amcsupport.org/tag/wheelchair-basketball/)

---

### [Boccia](https://amcsupport.org/tag/boccia/)

---

### [Wheelchair 4-Foot Hoops](https://amcsupport.org/tag/wheelchair-4-foot-hoops/)

---

### [Siera](https://amcsupport.org/tag/siera/)

---

### [40 years](https://amcsupport.org/tag/40-years/)

---

### [Birthday](https://amcsupport.org/tag/birthday/)

---

### [Celebration](https://amcsupport.org/tag/celebration/)

---

### [Prom](https://amcsupport.org/tag/prom/)

---

### [Stars](https://amcsupport.org/tag/stars/)

---

### [Bees & Stars](https://amcsupport.org/tag/bees-stars/)

---

### [Bees and Stars](https://amcsupport.org/tag/bees-and-stars/)

---

### [Conference prom](https://amcsupport.org/tag/conference-prom/)

---

### [Val's Music Festival '26](https://amcsupport.org/tag/vals-music-festival-26/)

---

### [Music Festival](https://amcsupport.org/tag/music-festival/)

---

### [AMC Music Festival](https://amcsupport.org/tag/amc-music-festival/)

---

### [AMCSI Fundraiser](https://amcsupport.org/tag/amcsi-fundraiser/)

---

### [The Long Road To AMC Awareness 2026](https://amcsupport.org/tag/the-long-road-to-amc-awareness-2026/)

---

### [AMC Awareness](https://amcsupport.org/tag/amc-awareness/)

---

### [Misha and Mike](https://amcsupport.org/tag/misha-and-mike/)

---

### [Help Us Reach More Sponsors in 2 Minutes](https://amcsupport.org/tag/help-us-reach-more-sponsors-in-2-minutes/)

---

### [Corporate Giving](https://amcsupport.org/tag/corporate-giving/)

---

### [Book Signing](https://amcsupport.org/tag/book-signing/)

---

### [Valerie Pepe](https://amcsupport.org/tag/valerie-pepe/)

---

### [Arthrogryposis Resources](https://amcsupport.org/tag/arthrogryposis-resources/)

---

### [AMC Resources](https://amcsupport.org/tag/amc-resources/)

---

### [Arthrogryposis Medical Institutions](https://amcsupport.org/tag/arthrogryposis-medical-institutions/)

---

### [Medical](https://amcsupport.org/tag/medical/)

---

### [Institutions](https://amcsupport.org/tag/institutions/)

---

### [Paley](https://amcsupport.org/tag/paley/)

---

### [AMC Awareness Bike Night](https://amcsupport.org/tag/amc-awareness-bike-night/)

---

### [Bike Night](https://amcsupport.org/tag/bike-night/)

---

### [AMC Meetup](https://amcsupport.org/tag/amc-meetup/)

---

### [Concord](https://amcsupport.org/tag/concord/)

---

### [North Carolina](https://amcsupport.org/tag/north-carolina/)

---

### [Concord NC](https://amcsupport.org/tag/concord-nc/)

---

### [Philadelphia PA](https://amcsupport.org/tag/philadelphia-pa/)

---

### [Philly Philly](https://amcsupport.org/tag/philly-philly/)

---

### [Philly](https://amcsupport.org/tag/philly/)

---

### [Philly Meetup](https://amcsupport.org/tag/philly-meetup/)

---

### [Shriners Greenville](https://amcsupport.org/tag/shriners-greenville/)

---

### [ADL Camp](https://amcsupport.org/tag/adl-camp/)

---

### [Smokin' For A Cause](https://amcsupport.org/tag/smokin-for-a-cause/)

---

### [Dutton Cercy](https://amcsupport.org/tag/dutton-cercy/)

---

### [BBQ](https://amcsupport.org/tag/bbq/)

---

### [22nd Annual AMCSI Conference Sponsorship](https://amcsupport.org/tag/22nd-annual-amcsi-conference-sponsorship/)

---

### [22nd Annual AMCSI Conference Exhibitor](https://amcsupport.org/tag/22nd-annual-amcsi-conference-exhibitor/)

---

### [22nd Annual AMCSI Conference Program](https://amcsupport.org/tag/22nd-annual-amcsi-conference-program/)

---

### [Val's AMC Fall Music Festival](https://amcsupport.org/tag/vals-amc-fall-music-festival/)

---

### [Music](https://amcsupport.org/tag/music/)

---

### [Festival](https://amcsupport.org/tag/festival/)

---

### [Corporate Partners](https://amcsupport.org/tag/corporate-partners/)

---

### [AMCStrong](https://amcsupport.org/tag/amcstrong/)

---

### [Code of Conduct](https://amcsupport.org/tag/code-of-conduct/)

---

### [General Liability Waiver](https://amcsupport.org/tag/general-liability-waiver/)

---

### [Photo Release](https://amcsupport.org/tag/photo-release/)

---

### [The Prairie 103 For AMC](https://amcsupport.org/tag/the-prairie-103-for-amc/)

---

### [Get Featured](https://amcsupport.org/tag/get-featured/)

---

### [Featured](https://amcsupport.org/tag/featured/)

---

### [Past Conference Listing](https://amcsupport.org/tag/past-conference-listing/)

---

### [Maine](https://amcsupport.org/tag/maine/)

---

### [Mountain Bibking](https://amcsupport.org/tag/mountain-bibking/)

---

### [Sugarloaf Mountain](https://amcsupport.org/tag/sugarloaf-mountain/)

---

### [Sugarloaf](https://amcsupport.org/tag/sugarloaf/)

---

### [Mountain](https://amcsupport.org/tag/mountain/)

---

### [Biking](https://amcsupport.org/tag/biking/)

---

### [AMCSI Fundraising](https://amcsupport.org/tag/amcsi-fundraising/)

---

### [BOD](https://amcsupport.org/tag/bod/)

---

### [AMCSI Archives](https://amcsupport.org/tag/amcsi-archives/)

---

### [AMC Tour](https://amcsupport.org/tag/amc-tour/)

---

### [Morgan's Wonderland](https://amcsupport.org/tag/morgans-wonderland/)

---

### [San Antonio](https://amcsupport.org/tag/san-antonio/)

---

### [Texas](https://amcsupport.org/tag/texas/)

---


## Product categories

### [/clothing](https://amcsupport.org/product-category/clothing/)

---

### [/wristbands](https://amcsupport.org/product-category/wristbands/)

---

### [hoodie](https://amcsupport.org/product-category/clothing/hoodie/)

---

### [license plate](https://amcsupport.org/product-category/license-plate/)

---

### [notebook](https://amcsupport.org/product-category/notebook/)

---

### [coasters](https://amcsupport.org/product-category/coasters/)

---


## Product tags

### [arthrogryposis](https://amcsupport.org/product-tag/arthrogryposis/)

---

### [amcawareness](https://amcsupport.org/product-tag/amcawareness/)

---

### [amcsupport](https://amcsupport.org/product-tag/amcsupport/)

---

### [amc awareness](https://amcsupport.org/product-tag/amc-awareness/)

---

### [AMC Awareness Day](https://amcsupport.org/product-tag/amc-awareness-day/)

---

### [AMCSI](https://amcsupport.org/product-tag/amcsi/)

---

### [#AMC Awareness Day Temporary Tattoo](https://amcsupport.org/product-tag/amc-awareness-day-temporary-tattoo/)

---

### [Wristband](https://amcsupport.org/product-tag/wristband/)

---

### [License](https://amcsupport.org/product-tag/license/)

---

### [Plate](https://amcsupport.org/product-tag/plate/)

---

### [Notebook](https://amcsupport.org/product-tag/notebook/)

---

### [Coasters](https://amcsupport.org/product-tag/coasters/)

---

### [Hoodie](https://amcsupport.org/product-tag/hoodie/)

---

### [Zip-Up Hoodie](https://amcsupport.org/product-tag/zip-up-hoodie/)

---