OUR MISSION: To provide and encourage more understanding and mutual support among anyone affected with the diagnosis of arthrogryposis multiplex congenita (AMC). To create a higher standard of AMC awareness by means of conferences, meetings, and studies.
OUR VISION: To provide educational material to new parents, or soon-to-be parents regarding the diagnosis of arthrogryposis multiplex congenita (AMC).
To provide a resource of information to the medical field to include, but not limited to, occupational therapists, physical therapists to assist them in the treatment of a child or person with the diagnosis of AMC.
OUR HISTORY: Ani Samargian created amcsupport.org, an online arthrogryposis multiplex congenita (AMC) support group, in July of 2005. Ani, the mother of Abigail Marie, a child born with amyoplasia, a form of arthrogryposis, created the group because at the time, there was very little information available to families due to the rare occurrence of AMC. The online group was a direct result of the high volume of emails she received from families regarding a website she had created to document her daughter’s progress. During the ensuing years, the interest and activity of the online support group grew and blossomed. From the original 30 members, membership has grown to over 400 families. Once a strictly online community, AMC support brought families together for The First Annual AMC Conference, a real world gathering, in Chicago, Illinois, during the summer of 2006. A second Conference held in Arlington Texas, July 2007 brought even more families together. The largest portion of Ani’s dream was to form an IRS recognized 501(C)(3) corporation that would continue her support of families and medical professionals well into the future. With the help of an army of volunteers, and the generous contributions of Roland Pieper, an attorney whose granddaughter has arthrogryposis, a Board of Directors was created, and work began on the daunting process of becoming a non-profit corporation. Submission of the application for the approval of the IRS occurred on October 6, 2006. On September 7, 2007, Arthrogryposis Multiplex Congenita Support, Inc. was granted Non-profit status as a 501(C)(3)corporation, and that dream became a reality.