13th Annual AMCSI Conference – Schedule

The AMCSI 13th Annual Conference Schedule is under development. The following general draft schedule has been released to help attendees plan their travel to the conference. You may download a copy of the conference program here.

Please note that the schedule is draft and subject to change.

Wednesday, July, 4, 2018

Volunteer Training | 2:30pm to 3:30pm

Registration | 4pm to 7pm

Welcome Social (Food and drink not provided) | 7:15pm to 10pm

Thursday, July 5, 2018

Registration | 9am to 9:45am

Opening Ceremony with Keynote Speaker Dr. Judith Hall with a brief video presentation by Dr. Lynn Staheli – AMC a Text Atlas – 20 years later| 10am to 10:45am

General Sessions | 11am to 11:45am

  • First Time Attendee Welcome
  • Dr. David Feldman – New Developments in Lower Extremity Surgery in Arthrogryposis and the Future of Upper Extremity Management

Lunch | 12pm to 2pm

Registration | 12pm to 3:45pm

Dr. Judith Hall – What’s New in the Genetics of Arthrogryposis | 2pm to 2:45pm

Children’s Programming | 2pm to 5pm

General Sessions | 3pm to 3:45pm

  • Dr. Gary Nortiz – Understanding Pain and Pain Management in Arthrogryposis
  • Dr. Giampietro – What is a Genetic Evaluation and How Will This Benefit My Child and Family?
  • Devin Aumend & Kimberly Chaffin – A General Overview of OOD Services and Vocational Rehabilitation
  • Sib Shop

General Sessions | 4pm to 4:45pm

  • Dr. Kent Williams – Discussion of Gastrointestinal and Nutritional Issues
  • Adults with AMC – Not Gender specific (18 and over)
  • Teens and Tweens- Not Gender specific
  • Moms of AMCers 11 and over

Friday, July 6, 2018

Registration | 9am to 11:45am

Children’s Programming | 9am to 11:45am

General Sessions | 9am to 9:45am

  • Dr. Harold van Bosse – AMC 101 Part 1
  • Misha Walker – Limitless
  • Moms of AMCers (10 and Under)
  • Dr. Reenee Donohoe – Movement is Exercise

General Sessions | 10am to 10:45am

  • Dr. Harold van Bosse – AMC 101 Part 2
  • Dr. Therese Willkomm & Caitlyn Fulton – Creating Assistive Technology Solutions in Minutes for Individuals who Experience Arthrogryposis
  • Men with AMC (18 and over)
  • Women with AMC (18 and over)
  • Becky Prince – Come Learn the Sport of Boccia in an Interactive Demo

General Sessions | 11am to 11:45am

  • Dr. Natasha O’Malley – Management Goals and Treatment Options for Knee Issues in AMC
  • Dr. Suzanne Cherry & Dr. Lisa Wagner – Interdisciplinary Approach to treating AMC: Different perspectives and ideas
  • Dr. Noémi Dahan-Oliel – Research Update in arthrogryposis: Current and New projects for children and youth
  • Teens & Tweens with AMC – Male (11-17)
  • Teens & Tweens with AMC – Female (11-17)

Lunch | 12pm to 2pm

Registration | 2pm to 4:45pm

Children’s Programming | 2pm to 5pm

General Sessions | 2pm to 2:45pm

  • Robert Page – DIY with PVC
  • Don Brown – Ten Steps for Caretakers of Dependents with Special Needs
  • Dr. Naimisha Shah-Hoffman – Ways to Achieve Dental Health and Function in the World of Arthrogryposis
  • Tube Feeding – Support AMC
  • Partners of Adults with AMC

General Sessions | 3pm to 3:45pm

  • Dads of AMCers
  • Young Adults with AMC (18-25)
  • Amputation a Parent’s Perspective
  • Families through Adoption of an AMCer

General Sessions | 4pm to 4:45pm

  • Grandparents of AMCers
  • Dr. Claire Z. Kalpakjian & Rebecca Parten – Women’s Health & Disability Focus Group

Group Dinner & AMC Reach for the Stars Prom (Come as you are or Dress Up!) | 6:15pm to 10pm

Saturday, July 7, 2018

Group Photo | 9am to 9:45am

Painting with Theresa, Face Painting with Chris | 10am to 11:30am

Annual Meeting, Closing Ceremony, Announcement of 2019 Location | 2:00pm to 2:45pm

If you have any questions regarding the 13th Annual AMCSI Conference, please don’t hesitate to contact AMCSI at amcohio18@gmail.com.

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