8th Annual AMCSI Conference
With a condition so rare that only one in 3000 babies born have this neuromuscular disorder it's easy to comprehend how alienated anyone with arthrogryposis multiplex congenita (AMC) must feel. Through the hard work of one mother's vision and an army of members, the AMC support group has helped bridge the gap with the power of the internet. It is not only the group's mission to provide and encourage a greater understanding and awareness of this condition, but also to provide a support system. To help those that have felt all their lives an outcast or alone, meet others who have lived that same life, to meet other families who have the same concerns and to provide a resource of information.
But meeting on-line is not enough. It's hard to explain to a mom exactly how another mom has taught her child to sit up without the use of his arms, or how one child learned to stand. What so many people take for granted: the ease of walking, typing, eating and breathing those with AMC have had to struggle to adapt to this world. Our conferences solidify that bridge and strengthen the bond of our AMC family. Once a year we come together, bring professionals, doctors, physical therapists, occupational therapists, provide workshops and invite people throughout the world to learn, share, laugh, cry and grow.
AMCSI 8th Annual Conference Information
8th Annual AMCSI Conference:
July 3-7, 2013
Las Vegas, Nevada, United States of America
Note: If you register for conference, PLEASE book your room through the website link! If you call the hotel booking line, they will NOT honor the conference pricing! One of our members discovered this and there is a HUGE difference in room price!
What is the Annual AMCSI Conference?
The Annual AMCSI Conference provides an annual opportunity for families touched by Arthrogryposis Multiplex Congenita to gather at a central location and exchange ideas and support. AMCSI provides an opportunity for families to listen to some of the leading professionals in the treatment of Arthrogryposis Multiplex Congenita.
Who is AMCSI?
AMCSI is an organization created to provide information and support to those touched by Arthrogryposis Multiplex Congenita. Created in 2005, by founder Ani Mahan, AMCSI has grown from an online support message board, to an official IRS registered 501(c)(3) nonprofit. AMCSI provides information to not only families but also those in the medical community. AMCSI is run by a completely volunteer Board of Directors, as well as many additional volunteers who help keep programming current.
If you have any questions regarding the 8th Annual AMCSI Conference 2013, please don't hesitate to contact AMCSI at firstname.lastname@example.org.