P.O. Box 6291, Spartanburg, SC 29304




Privacy Policy

Your privacy is important to Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI).

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) attaches great importance to protecting personal data and maintaining privacy. This policy describes the types of personal information we may collect from you, the purposes for which we use the information, the circumstances in which we may share the information and steps that we take to safeguard the information to protect your privacy.

The personal data we collect and why

When entering your data into the online registration site (Eventbrite: privacy policy), we collect this data from you for the purpose of registering you for the conference. Of course, you are not required to supply any of the information that we may request. However, failure to do so may result in our being unable to register you for the conference.

Use and disclosure of your personal data

By submitting this registration form you consent to the processing of the entered information by Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) and online registration site (Eventbrite) as described in this privacy statement.

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) will use the personal information to process your registration, communicate with you, and obtain your feedback in regards to the conference. In doing so, your information may be transferred throughout Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) and shared with third parties who will be providing online registration support and accommodations.

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) will not sell or disclose your personal data to other third parties without your consent.

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) does not share your personally identifiable information with other organizations for their marketing or promotional uses without your prior express consent.

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) may only use the data to provide you with further information from Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) if you opt-in this service by ticking the relevant box.

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) may disclose your personally identifiable information if required to do so by law or in the good-faith belief that such action is necessary to comply with state and federal laws or respond to a court order, judicial or other government subpoena, or warrant in the manner required by the requesting entity.

International Attendees

Attendees attending the annual Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) Conference from the European Economic Area or other Non-United States Territories, please note that any data you enter into the online registration site (Eventbrite) will be transferred outside the European Economic Area or other Non-United States Territory for use by Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) and its affiliates for the purposes described in this policy. You hereby expressly consent to such transfers of your data to the United States and other countries.

Controlling your personal data

You are entitled to access any personal data about you held by Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) by sending a written request to the email or address below. You may be required to supply a valid means of identification as a security precaution to assist us in preventing the unauthorized disclosure of your personal information. We will process your request within the time provided by applicable law.

You are also entitled to have Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) modify or delete any information that you believe is incorrect or out of date. Please contact the individual identified below.

If you decide that Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) may provide you with further information from Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) by ticking the relevant opt-in box in the online registration form and you do not wish to get such information any longer please contact the Board of Directors at BOD@AMCSUPPORT.ORG

Or

Arthrogryposis Multiplex Congenita Support, Inc.
P.O. Box 6291
Spartanburg, SC 29304


Additional information

For general information on data protection in regards to our website and Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) in general, please visit www.amcsupport.org. If your relationship with Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) ends, we will continue to treat your personal data, to the extent we retain it, as described in this privacy statement.


If you have any questions regarding the 12th Annual AMCSI Conference, please don't hesitate to contact AMCSI at amcvegas17@gmail.com.

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