Press Kit – Arthrogryposis Awareness Day

June 1, 2017

For Immediate Release

ARTHROGRYPOSIS SUPPORT GROUP HOSTS 8TH ANNUAL AWARENESS DAY

On June 30th families across the globe will be wearing the color blue to honor those affected by
arthrogryposis multiplex congenita (AMC). This will be the eight annual AMC Awareness Day
sponsored by Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI), a fully volunteer based
501(c)(3) nonprofit organization that also hosts an annual support and medical conference.

Quick Facts About Arthrogryposis Multiplex Congenita

– Arthrogryposis is defined as multiple congenital (from birth) joint contractures or multiple joints
that are stuck in one position and have very little flexibility.

– Arthrogryposis in an umbrella diagnosis, which means that it is part of many other conditions
and syndromes. These conditions and syndromes are usually referred to as the type of
arthrogryposis. Currently there are 400 identified types of AMC. Amyoplasia, Distal and Escobar
Syndrome are the more common types (but they are still relatively rare within the general
population). Some individuals never have their type of AMC identified.

– Arthrogryposis is not a newly identified condition. Adolph Otto officially described it in 1841.
Literary evidence of arthrogryposis dates back as early as the 12th century. In 1642, a painting
entitled “the clubfoot” located in the Louvre, portrays a beggar believed to have a form of AMC,
though the specific type is still debated among experts.

– Stretching, various therapies (physical, occupational, speech etc.) and some surgical
interventions can help improve someone’s independence level and quality of life.

– Most children and adults who have a diagnosis of arthrogryposis are cognitively typical,
meaning their IQ scores are normal or above normal. Some people with AMC will have some
level of cognitive impairment.

Questions regarding the support group or to request more information about arthrogryposis
should be directed to the organization’s Board of Directors by emailing bod@amcsupport.org.
AMCSI | PO Box 6291 Spartanburg SC 29304 | bod@amcsupport.org | @amcsupport

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