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7th Annual AMCSI Conference


With a condition so rare that only one in 3000 babies born have this neuromuscular disorder it's easy to comprehend how alienated anyone with arthrogryposis multiplex congenita (AMC) must feel. Through the hard work of one mother's vision and an army of members, the AMC support group has helped bridge the gap with the power of the internet. It is not only the group's mission to provide and encourage a greater understanding and awareness of this condition, but also to provide a support system. To help those that have felt all their lives an outcast or alone, meet others who have lived that same life, to meet other families who have the same concerns and to provide a resource of information.

But meeting on-line is not enough. It's hard to explain to a mom exactly how another mom has taught her child to sit up without the use of his arms, or how one child learned to stand. What so many people take for granted: the ease of walking, typing, eating and breathing those with AMC have had to struggle to adapt to this world. Our conferences solidify that bridge and strengthen the bond of our AMC family. Once a year we come together, bring professionals, doctors, physical therapists, occupational therapists, provide workshops and invite people throughout the world to learn, share, laugh, cry and grow.



AMCSI 7th Annual Conference Information

7th Annual AMCSI Conference:
June 26-30, 2012
Hytatt Regency Indianapolis
Indianapolis, Indiana, United States of America

What is the 7th Annual AMCSI Conference 2012?
The 7th Annual AMCSI Conference provides an annual opportunity for families touched by Arthrogryposis Multiplex Congenita to gather at a central location and exchange ideas and support. AMCSI provides an opportunity for families to listen to some of the leading professionals in the treatment of Arthrogryposis Multiplex Congenita.

Who is AMCSI?
AMCSI is an organization created to provide information and support to those touched by Arthrogryposis Multiplex Congenita. Created in 2005, buy founder Ani Mahan, AMCSI has grown from an online support message board, to an official IRS registered 501(c)(3) nonprofit. AMCSI provides information to not only families but also those in the medical community. AMCSI is run by a completely volunteer Board of Directors, as well as many additional volunteers who help keep programming current.

Event Location:
Hyatt Regency Indianapolis will host the 7th Annual AMCSI Conference. Located in the heart of Indianapolis, Indiana. The Hyatt Regency Indianapolis is within walking distance to restaurants, shopping, and nightlife. Local transportation and parking available.

TRAVELING TO the 7th Annual AMCSI Conference 2012 BY AIR:
Most major airlines service the Indianapolis International Airport.

GETTING AROUND Indianapolis:
Indianapolis is a walking city. Our hotel offers a variety of restaurants and shops all within easy walking distance. The downtown area has been updated, so the sidewalks and curbs are accessible.

CAMERA USE:
You must have prior written approval to use a still or video camera in any session. If you use a camera without permission, you will be asked to leave the session.

SOLICITING BY NON-EXHIBITORS:
Non-exhibiting companies and employees are restricted from any type of solicitation at the 7th Annual AMCSI conference: This includes but is not limited to the conference sessions, public spaces, and at the Hyatt Regency Indianapolis.

QUESTIONS:
If you have any questions regarding the 7th Annual AMCSI Conference 2012, please don't hesitate to contact AMCSI at bod@amcsupport.org.



Please note: AMCSI will not announce the location for the 8th annual AMC Conference until closing ceremonies of the 7th annual AMC Conference in Indy. This is, and will continue to be, an AMCSI tradition. Our conference crew is an all volunteer unpaid group that is working VERY hard on making 2012 a success. If we announced 2013 before the end of 2012, they would be bombarded with questions. - Read more frequently asked questions.

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