We have many projects in process, and we promise to be diligent in communicating information not just on the board of directors level, but also to all the members of AMCSI. We are available to hear your ideas and do what is in the best interest of AMCSI. We strive to assure that our members feel free to question any matter with which you have concerns.
Typically each sub-committee will be headed by a board of director, but we will need a group effort for all of our events to come to fruition.
Ani Samargian | Founder
Ani Samargian is the proud mom of Abby, who was born with arthrogryposis, Aiden, and Isabella and Ciaran Allen. Ani serves on the Board of Directors of AMCSI, South Carolina Disabilities and Special Needs Board, and she is a Support Parent for Family Connection of South Carolina. Learning about Abby’s AMC and supporting families going through similar situations was the inspiration and drive behind amcsupport.org. Ani and her family live in Spartanburg, South Carolina.
Lana Prater | President
Lana Prater was born with arthrogryposis multiplex congenita. Lana has 2 adult children and married her best friend, Delmer, in 2005. Lana was so blessed attending her first conference in 2013, that she knew right away she wanted to be a part of this amazing organization and help others to have the same blessing. Lana volunteered for a non profit pet adoption agency and owned and operated her own cleaning company for 7 years. She now enjoys being a homemaker. Lana loves to sing, spend time with her family and make people laugh. Lana and Del reside in Lewiston Idaho.
Chris Hartwick | Vice President
Chris Hartwick, was born with arthrogryposis . He works full-time as a graphic designer for Bob Jones University. He is a founding member of the Artists Guild Gallery of Greenville where he is serving as 2nd VP and works with the guest artist press releases. He is a student artist with the Association of Mouth and Foot Painting Artists. In his spare time Chris enjoys cooking and karate. He currently resides in Greenville, SC.
Joey Balistreri | Secretary
Joey Balistreri is the proud parent of Liam, an incredible little two-year old-born with AMC. Joey is a former public school teacher and instructional coach and holds a Master’s in Public Administration with a focus in non-profit management from the University of North Carolina at Chapel Hill. Joey is excited to step into he role of Secretary on the AMCSI Board of Directors and continue advocating for Liam and others with AMC. In his free time, Joey loves spending time with his family and enjoying the outdoors; he’s also a classically trained violinist and enjoys participating in community orchestras. Joey and his family currently reside in Milwaukee, WI.
Michele Schaffer | Vice President of Programming
Michele Schaffer and her husband Allen have four children, David, Andrew-AMC, Christopher, and Kaytlin. Michele currently works for the New Albany Plain Local School District in the Special Education Department. Michele joined the Board of Directors of Arthrogryposis Multiplex Congenita Support, Inc., in 2006 and served as a Co-Chair for the 2008 Ohio Conference. She accepted the position Vice-President of Programming in 2010. In her free time, Michele enjoys attending her children’s activities, volunteering, reading and singing with The Voices of Ohio, a professional vocal ensemble. Michele and her family currently reside in Columbus, Ohio.
Sara Gaver | Parliamentarian
Sara Gaver, 23, from Jacksonville, Florida is affected in all 4 limbs with AMC. She is a recent graduate of the University of North Florida with a Bachelors in Health Administration. She is a well know disability advocate and was just appointed to the Florida Independent Living Council and Florida Rehabilitation Council. In her free time she loves to read and paint.
Ileana Hernandez | Media Director
Ileana Hernandez is from Los Angeles, CA. She was born with arthrogryposis and has been involved with arthrogryposis multiplex congenita Support, Inc. since 2010. Aside from keeping amcsupport.org and our social media sites up-to-date, Ileana works as a freelance graphic designer while attending school to become an art therapist and volunteers with the music and arts program at Children’s Hospital Los Angeles.
Don Bahr | Member-at-large
Don was born in Dickinson, North Dakota. Through the years, his treatment for arthrogryposis was provided by several hospitals with the majority of his care provided by Shriners Hospital for Crippled Children, Minneapolis, Minnesota, where he underwent more than 30 operations and many other procedures. He spent over 8. years as an inpatient. Don earned a BA Degree from Brigham Young University, Provo, UT and an MSW Degree from the University of Utah. He worked as a social worker in many capacities, ending his career as a psychiatric social worker for the Utah State Prison. In 1985, he was named Utah Handicapped Person of the year. For 32 years, Don was actively involved with Boy Scouts as a scoutmaster or assistant scoutmaster where he received many honors and awards. Don and his wife, Vonda, have eight children, seven living, 30 grandchildren, three great-grandchildren and are awaiting the arrival of three more! In his free time, Don enjoys the world and his farm.
Dr. Harold Van Bosse
Dr. Harold Van Bosse is on staff at the Shriners Hospital for Children in Philadelphia, where he has had the opportunity to develop a specialty practice in the treatment of children with arthrogryposis. In addition, he enjoys treating the entire realm of pediatric orthopedic surgical conditions, with special interests in limb deformity, neuromuscular disease, and pediatric spine deformities.
Dr. Judith Hall
Dr. Judith Hall is a clinical geneticist and pediatrician. She trained at Wellesley College, the University of Washington School of Medicine, and the Johns Hopkins Hospital. She is presently Emerita Professor of Pediatrics and Medical Genetics at the University of British Columbia, Vancouver, Canada. Her area of research interest is human congenital anomalies and in particular arthrogryposis (multiple congenital contractures). She has published over 300 original peer reviewed articles, 140 chapters, conference proceedings, and 10 books. Dr. Hall is also the co-author of the AMC Text Atlas . She has been involved in arthrogryposis clinics for over 35 years with a particular interest in sorting out the causes (including genetic), natural history, and best therapies for individuals affected with arthrogryposis. She has published over 50 articles and chapters on arthrogryposis, and she continues to be actively involved in learning as much as possible about arthrogryposis so that she can help families and affected individuals.
Maureen Donohoe, PT, DPT, PCS
Dr. Donohoe is a pediatric physical therapist and clinical specialist at Nemours/ Alfred I duPont Hospital for Children where she has specialized in pediatric orthopedics and participates in many of the hospital’s orthopedic specialty clinics. She has been the primary PT in the arthrogryposis program at the hospital since 1989 and the clubfoot program since 2009. Reenee has also spent the over 20 years working part time as a preschool and school based physical therapist. Most recently, through her personal contracting agency she has been supplying consultative PT services to adults with pediatric disorders. Dr. Donohoe has authored the chapters on arthrogryposis and osteogenesis imperfecta in tall five editions of the textbook Physical Therapy for Children, authored the Relapsed Clubfoot in Pediatric Clinical Case Studies, and the Sports and Recreation chapter in Children with Osteogenesis Imperfecta: Strategies to Enhance Performance. She is actively involved in research involving AMC and has been involved with multiple published research papers. She has had the opportunity to lecture nationally and internationally on AMC.
Maureen Goede was born in Chile, and grew up in Chile, Argentina and Ecuador before finally moving to Miami, FL where she attended high school. In 1983 she met her husband Armand and they were married in 1984. They have 5 children, Michelle, Massiel, Reinier, Josy and Ian. After Hurricane Andrew they moved up to Orlando, FL where Maureen received her Bachelor’s Degree in Accounting and then her Masters in Business Administration. Maureen is the proud grandmother of Sean, Breanna and Alayna who also live in Florida and 4 others who live out of the country. Sean was born with AMC, and when looking for answers about AMC they found AMC Support. Maureen, Josy and Sean attended their first AMC Convention in Chicago and look forward to the AMC Convention every year. Maureen and Sean have attended every single AMCSI Conference starting with Chicago and ending with the last one in 2012 in Indianapolis.
Jeroen Tebbens | Technical Director
Jeroen Tebbens also known as “King J.” Jeroen provides invaluable technical support to the Board of Directors. Jeroen resides in IJsselstein, Netherlands, and maintains the technical updates for both AMCSupport.org . Jeroen earned a degree from Polytechnic University (Netherlands) in Internet Communications and Computer Science. He is employed by Dimension Data Netherlands as an Implementation Consultant for Operations Management and Security. Jeroen does not allow his AMC to hold him back; in his spare time, he enjoys riding his motorcycle and swimming competitively with Masters Swimming, Netherlands.