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 AMC is not a roadblock....it is simply a different path.  -- Kaman

 
 
 

All About Arthrogryposis
Arthrogryposis-Multiplex-Congenita affects one in 3000 births. Learn more about this rare condition here.

Arthrogryposis - A Text Atlas
 
 

 


 Faces of AMC

 

  Positive Exposure  

AMC Convention - 2010
 

 Our 5th Annual AMC Convention! will be held in Lake Buena Vista, Florida

August 4-8 2010

4th & 8th are travel days, 5th & 6th meeting days & 7th "family fun day"

Check out info about the 5th annual AMC Convention

here--> FLORIDA

For information please email
florida@amcsupport.org

 

Your 2010 Convention Chairs
MaryBeth Eberhard (Director)
Maureen Goede
Savanna Keeton
Theresa Tamash

 

Order your Convention T-shirts!

Donate your old AFOs

**Convention page will be updated often**

2006 AMC Convention - Chicago
2007 AMC Convention - Texas
2008 AMC Convention - Ohio
2009 AMC Convention - PA



 



WelcOME TO AMCSUPPORT.ORG!
 

Our Mission

 To provide and encourage more understanding and mutual support among anyone affected with the diagnosis of Arthrogryposis Multiplex Congenita (AMC). To create a higher standard of AMC awareness by means of Conventions, Meetings, and Studies.
 

Our Vision
 

To provide educational material to new parents, or soon-to-be parents regarding the diagnosis of Arthrogryposis Multiplex Congenita (AMC).
 
To provide a resource of information to the medical field to include but not limited to occupational therapists, physical therapists to assist them in the treatment of a child or person with the diagnosis of AMC.

 

AMCSI By-Laws (Revised)
 

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Arthrogryposis Support Chat

 

 AMC Chat session will be held EVERY Thursday

8pm Eastern

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In Memoriam  

AMC Angels
Memorial page

 

 
 

Please show your support to our amcsupport.org with your donation. No donation can be too small!! With your help we can continue reaching out to the growing number of AMC Families world wide.

Arthrogryposis Multiplex Congenita Support Inc.

is a fully qualified 501(c)(3) charitable organization under IRS regulations.

 

Donations are tax-deductible as provided by law.

To donate, click on the icon above.

 

Thank You for your support.

 

 

Arthrogryposis Multiplex Congenita  Support Inc.
P.O. Box 1883
Salyersville, KY 41465

 

 

Dr. Martha Werler and the Slone Epidemiology Center at Boston University would like to conduct a pilot study of maternal events and exposures in relation to arthrogryposis in offspring and intend to apply for National Institutes of Health (NIH) funds to support such a study in the Fall.  To help convince the NIH that there are enough families to enroll in a larger study, we’re conducting a small preliminary study.  Families can access the preliminary study by following the link below.  If the more extensive study is approved by the NIH, families will again be sought to enroll.  Since the current, preliminary study does not retain the I.D. or e-mail address of participants, families are encouraged to keep an eye on amcsupport.org for updates. This study is for parents of AMC Children younger than 36 months old.

Link to study: http://slone-web.bu.edu/arthrogryposis

 

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 Copyright Notice. All photographs are the exclusive property of AMCSI (except where stated otherwise) and are protected under international copyright laws. They are made available for your personal viewing and educational purposes only. The photographs may not be copied, reproduced, redistributed, manipulated, projected, used or altered in any way without the prior express written permission of AMCSI.
Photo's taken by Rick Guidotti are exclusive property of Rick Guidotti & Positive Exposure and is used with his permission.